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How are you doing? We miss you!
Sheila, Stagg, Maggie & Katie (and now Lucy the dog, too) <sheila@staggandsheila.com>
- Wednesday, March 11, 2009 4:11 PM CDT
Hi Deirdre,
just stopping by to wish you all the best!

Di
Australia - Sunday, June 29, 2008 9:51 PM CDT
Dearest Deirdre,

I so wish I could ship millions of spoons across the ocean towards you NOW! I am picturing though the generous Universe blessing you with an abundance of spoons for the many years to come.

How kind of you to have gifted us with this update - I realize it takes lots of energy too!

With you, I am very proud of your brother and mother for their acomplishements. And above anything, I am soooo proud of you!!!

I also wish to let you know that life is taking me further away from Internet websites so I may not be able to follow your updates here.

You are forever in my heart and you know how I always wish the very best for you.

I am only an email away as well... Please don't hesitate to contact me if you wish to share something or have some extra servings of love, light and support be sent your way...

With many blessings and much love and light,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Tuesday, May 6, 2008 4:38 AM CDT
Hi there. This is the first time I have visited in awhile and enjoyed the Thanksgiving pictures but especially the couple Christmas pics of your apt. It looks very nice. See you in a couple of weeks. Love,
Janet
- Tuesday, April 29, 2008 9:26 PM CDT
How are you, dear one?
Would you have time/wish to share ever so little?
Love and Light,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Thursday, April 10, 2008 3:31 AM CDT


Peace and healing,
Annie

Annie <penguini1982@yahoo.com>
Rochester, MA - Sunday, March 23, 2008 12:55 AM CDT
Hi Deidre,
I hope you're having great days. God bless!

Di
Australia - Friday, March 14, 2008 6:57 PM CDT
Visiting... sending love and light... hoping each day brings in some way joy to your heart.
With tender cyber-hugs,
Eva


Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Monday, February 11, 2008 11:06 AM CST
Hi Deirdre.
Glad your holidays were good. How are counts/kidneys? How's it going on the med protocol?
Steroids. I might actually be a really nice person and not know it, because the steroids have been grumpifying me for two decades. Cheese is a good craving, btw. Lots of calcium to keep bones from thinning any more.
And is home base in Chicago now, instead of New York? It's a nifty city, but COLD.

Take care,
Follow neutropenic precautions,
Bundle up!

Miri B.
www.caringbridge.org/visit/mirib

Miri B.
- Monday, January 28, 2008 5:14 PM CST
Keep updating I love to hear how your life is going. You are an inspiration to me and you always have since I first found your page (or maybe you found mine) what was that five years ago? I love that despite the crap you have had to go through you keep going! Please continue to update! JA survivors.. we're a strong bunch!
Lisa Salvucci
San Mateo, CA USA - Wednesday, January 23, 2008 12:12 AM CST
Hi Deirdre!

I enjoyed reading about your Thanksgiving exploits - and it was great to see pictures of the family!

It sounds as though you are doing very well - and that is good news!

Say hello to the family next time you talk to them - and know that your are thought of and missed back in Maryland ~
Take care,
Sue Murphy

Sue Murphy <murfamily05@comcast.net>
Frederick, MD USA - Monday, January 21, 2008 10:51 AM CST
Dear Deirdre,

Electronic miracles are endless... I see only now your December update!

I am so glad to hear about the wonderful - if not eventless - time with the family at Thanksgiving.

The new training you took sounds so interesting. I hope you will be able to apply it in your work.

Your Christmas tree looks gorgeous - I am sure it has been much fun for some.

Lots of love and well wishes flying your way in this New Year...

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Friday, January 18, 2008 12:31 AM CST
I'm beginning to feel like a stalker. Update!
More saliently, the Child Life dept. at Mott Children's Hospital in Ann Arbor (I go to Children's of Michigan, in Detroit) is looking for Child Life Specialists. The Hospital is part of the University of Michigan complex, and quite excellent.
You are at one of the best in the country now, though. Oh well, info.
Happy New Year!

Miri B
- Monday, December 31, 2007 7:12 AM CST
And here are the pictures... Alleluia!
Beautiful are the girls on Thanksgivings and how cute and daring is little Ella! Thanks for sharing...

Enjoy the transistion, dear Deirdre, to a completely New Year never lived before.

May 2008 bring you radiant gifts!

With much love,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Wednesday, December 26, 2007 6:04 AM CST
Merry Christmas, Deirdre!
I'm back in the hospital. Hemosepsis and pneumonia.
Look at all you've accomplished this year and be proud.

Miri B.

Miriam Braunstein
- Thursday, December 20, 2007 10:44 PM CST
Dear Deirdre,

I am just paying you a little visit today. I hope you feel as possible and will enjoy a restful weekend.

With much love,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Friday, December 14, 2007 10:54 AM CST
keeping you in my prayers...love the kitties
http://www.caringbridge.org/visit/pam2007

pam <sylteach@aol.com>
- Friday, December 7, 2007 9:44 PM CST






Not long to go! Are you getting excited? We are!

Love Everyone at Post Pals


Post Pals - Putting a Smile on Childrens Faces

viks <viks@postpals.co.uk>
- Monday, November 26, 2007 4:29 PM CST
Dear Deirdre,
I give thanks for you, before, on and after Thanksgiving!!!
Much love,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Saturday, November 24, 2007 4:25 AM CST
Hi Deirdre,
I just wanted to wish you all the best. I'll be keeping you in my prayers :)

Di
Australia - Thursday, November 15, 2007 4:48 PM CST
Hi Deirdre.
Today, I feel like yelling. YAAARGH. Back inpatient.
Please post about how you are doing on the new meds and in general.
Love
From
Miri

Miriam Braunstein
Oak Park, MI USA - Monday, November 5, 2007 8:47 PM CST
Much love to our dear still-standing Deirdre!
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Friday, November 2, 2007 12:07 AM CDT
Dearest Deirdre,

Blessed be this holy anger! Lots of energy is bottled
in unexpressed anger... What a great idea to let it flow!
And you surely have plenty of excellent reasons to do so.

We stand by you and admire you through it all... the powerful and masterful way you translate emotions in words and the strong will and love for life that are also so perceptible.

It tells us that you are an exceptionable being - which we knew all along - and also that you plan to just go through it all and emerge whole on the other side of the tunnel.

So this disease has a name... Fine! It still doesn't define who you are, does it... It may just allow some days to know better what you face and most importantly how to treat it.

May you dance tonight or tomorrow with your anger, dance with your sickness, dance with your loved ones and angel friends, dance with your sorrow, dance with all that you are, dance with light and shadow and wholeness... Be it imagination or physical matters not, just honoring the movement, the breath of life, the transitions from one moment to the other...

With you, we dance and honor...

With much love and angel hugs,

Eva

PS: a very pleasant surprise to see my name mentioned in your update. Thank you!

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Friday, October 12, 2007 8:22 AM CDT
Hi Darlin'
It's been a long time, but I thought I'd say hi and that I'm thinking about you. St. Louis isn't the same without you and your family.

Chelsea Campbell Weber <cjca47@gmail.com>
- Thursday, October 11, 2007 10:37 PM CDT
Lisa, I followed your site. I am so sorry about your Mom and the JAS.
Deirdre, one thing I forgot in steroid frenzy: don't get too scared from the protein in your urine. Your kidneys can take quite a hit and bounce right back on treatment. If your BUN and creatinine aren't progressively affected, don't give up on your kidneys.

Miri

Miriam Braunstein
Oak Park, MI USA - Wednesday, October 10, 2007 4:57 PM CDT
Hey Deirdre,

I check in often but rarely sign. Sine I deleted my own caringbridge site I kind of just stopped signing.. lol but never stopped reading. Although I can't say I understand exactly how you feel, I will admit when the JAS came back I don't think I had ever been so pissed in my life. It was three months after my mom passed away and I walked out of my appointment looked up and said G-d are you kidding me? Now I sit here with a picc line in my arm to manage the affects the disease is having on my blood (twice a week iron infusions for the anemia..oh joy). I don't know exactly how you feel.. but I get it.. this blows. We're too young for this! Just wanted to let you know I never stopped reading, or praying for you for that matter. Stay strong!

With Love
Lisa

Lisa <lsalvucci42@yahoo.com>
CA - Wednesday, October 10, 2007 2:00 PM CDT
Wow! I feel like a rock star, there in your update!
I'm sorry to hear what you suspected is true-- but it must be a relief to know WHAT you are up against. When you know your enemy, you can prepare for the fight. I really think it is easier to be congenitally ill/disabled. I don't know what I'm missing-- so I don't miss it.
One other positive: NO MORE DOCTORS TELLING YOU YOU DON'T KNOW YOUR OWN BODY. You have a total DX now. Unarguable.
I hope you start to feel better soon. Is there a pain clinic at your hospital? You would benefit from an eval. at one. They won't be afraid to maintain you on painkillers if that's what allows you to function (my clinic at Children's has had me on sublingual morphine/IV Dilaudid for over a decade-- because it gives me quality of life.)Pain saps your energy.
Well, I'm on dexamethasone for the stupid vasculitis, so I'm babbling like a madwoman. When I go home, it's just Solumedrol, and I am relatively sane.
At any rate, thanks for linking me. Please come by to visit sometime. We're entering...the trach diaries! And cat photos will be posted as soon as I go home.

Take care,
Miri

Miriam Braunstein
Oak Park, MI USA - Tuesday, October 9, 2007 0:31 AM CDT
Dear Deirdre,

I hope you are as well as possible!

Sending you wondrous Indian Summer light from Brussels with big Cyber hugs and much love,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Friday, October 5, 2007 9:26 AM CDT
Hi. I've been following your page since you were an undergrad. I did a combined Bachelor/Master's, so I finished at 21 and completed my PhD when I was 28.
I have mitochondrial myopathy, a weird disease.
I'd like very much to invite you to my caringbridge page (still new), at www.caringbridge.org/visit/mirib
Good luck at your new job. Arkansas Children's is one of the best.
Miri B.

Miri B.
MI USA - Saturday, September 1, 2007 12:13 AM CDT
Dear Deirdre,

How wonderful to read so many poignant beautiful updates and to see that your family has now two new members with the lovely kittens.

Wherever you are, you make such a difference, also now in your job.

Thank you for sharing so much and for being you!

Love and Light,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Sunday, August 26, 2007 8:54 AM CDT
Diedre - Keep hanging in there. We're just checking in as we've been very bad about checking in on people!
Alia and Caroline <aliaalan@aol.com>
Apple Valley, MN 55124 - Wednesday, July 25, 2007 11:51 AM CDT
Hey Deirdre!
Its been a long time since I've signed in! hope you're doing ok!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosted by ImageShack.us

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, July 25, 2007 5:13 AM CDT
We miss you, too. We need to talk, soon. I love you.
Lisa <lisa@blumefamily.net>
Marietta, GA USA - Monday, July 23, 2007 11:56 PM CDT
Hi Sweetie - it is so good to see your updates (and pictures of the 'grand kitties')!!! I miss you too and look forward to getting to Little Rock soon...enjoy your time with your brother this weekend.
Merry Maid Mom <LeanyJoan@goltzland.com>
Chicago, IL USA - Thursday, July 19, 2007 2:31 PM CDT
Thinking of you and stopping by to see how you're doing. My prayers are with you.
Brian Schousek <schousek@gmail.com>
Houlton, WI USA - Wednesday, July 11, 2007 10:53 AM CDT
I'm glad to see your quick update. I know you have been extremely busy. New job, apt, city.........it's a lot to deal with. I have been thinking about you and hope all is going well. We love you.
Janet & Mike
- Thursday, July 5, 2007 5:29 PM CDT
Don't - for even one second - have any doubts about how much you helped us. There are no words to describe our love for you, our gratitude for what you did for us, for the enormous amount of support you provided while you were here. You, too, are braver than you believe, stronger than you seem, and smarter than you think :) We love you -
Lisa, Amanda, Kelsey and Morgan
Marietta, GA USA - Friday, April 20, 2007 8:28 AM CDT
Dierdre - just checking in to see how you and your family are doing. I'm a friend of your mom's from St. Louis. Good Luck on your new job and I'm sure you were such a comfort to your uncle's family in their time of great need. God Bless You and your family.
Sandra Sears <ssears@riverbendcapitalgroup.com>
St. Louis, MO USA - Saturday, April 14, 2007 11:34 AM CDT
hope all is well ur way
steph <guardianangellove2005@yahoo.com>
- Thursday, March 29, 2007 9:55 AM CDT
Wishing you a wonderful first day at work!
With love,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Monday, March 12, 2007 1:18 AM CDT
I know this is a kids poem but I LOVE it!





A giraffe looks in my window
At the same time everyday,
He just appears with silly ears,
When I turn on the light to play.

I tell him the things I do at two
While he munches and crunches the leaves,
That are so very tasty too,
From the tippy tops of the trees.

One night he didn’t look so good,
His eyes were filled with pain.
I asked him, "What is the problem, the food?"
He said, "I must explain!"

"My knees are hurting pretty bad
And my long neck is so sore.
I really do like our talks,
But I can't take much more!
If you do a favor for me,
I know how my pain will be free.

CAN YOU MOVE UP TO THE SECOND FLOOR!!!







Love from Post Pals



viks <viks@postpals.co.uk>
- Saturday, March 10, 2007 4:35 PM CST
hope alls well
steph
- Thursday, March 1, 2007 12:53 AM CST
Hi there. I haven't posted in a very long time...so you probably don't remember me! I just read your news...congratulations on your new job! Relocating is difficult, but Little Rock is a nice community for the most part.

Arkansas Children's Hospital is a great facility, I hear. My brother and his family live in Little Rock, and I believe they go to church with the hospital administrator. My nephew is currently being treated at ACH for what they believe is Neurofibromatosis. Gabriel is five years old, with the most beautiful blue eyes and red hair you've ever seen. He's such a sweet little guy. If you ever see him running around...give him some love from his Aunt Natalie!

We continue to keep you in our prayers in Kansas. Much luck to you in your new adventure!

Natalie
Tonganoxie, KS USA - Wednesday, February 21, 2007 4:18 PM CST
Hi Deirdre!
I'm so glad to hear that you've found a job! Sorry to hear that its not where you would like it to be...

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosting by PicsPlace.to

Joanne <joanne173@gmail.com>
Singapore, Singapore - Friday, February 9, 2007 4:05 AM CST
Dear Deirdre,

Congratulations for finding a real, exciting job! And loving support for transitioning into this new chapter of your life and accepting all necessary changes... You will be missed indeed while the heart-to-heart connection remains just as strong.

Glad to hear there have been some lightseeds during the difficult holiday times.

Love and Light,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Thursday, February 8, 2007 10:43 AM CST
Hey Deirdre!
Hoping all is going well with yah in this new yr!!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosting by PicsPlace.to

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, January 29, 2007 1:39 AM CST
Stopping by to check on you... How are you, dear one?... and to give you some cyber-hugs.
With love,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Thursday, January 25, 2007 7:33 AM CST
happy new year
steph
- Thursday, January 4, 2007 10:30 AM CST

Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA United States - Monday, December 25, 2006 3:08 PM CST
Dear Deirdre,

To beautiful you and your beautiful family, I wish you, relativelely speaking, a warm, peaceful and love-filled Christmas.

In loving light,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Sunday, December 24, 2006 7:01 AM CST
Dierdre,
What a GREAT journal with fabulous pictures of the family!! I didn't read it all, but got an update on all the fun you all had Thanksgiving and recently with Janet and her husband visiting. Lisa and the girl's are so very lucky to have you here with them. Happy Holidays and I hope you all have a Wonderful Christmas. I know it will be difficult this year with Dave gone. You all have so much love for each other that it will help you to get through with good memeories. See you all "Next Year". Love, Tena ( Lisa's neighbor)

Tena Simmons <tns3291@bellsouth.net>
marietta, GA USA - Wednesday, December 20, 2006 1:23 PM CST
hey deirdre just wanted to stop and say hi
steph
- Tuesday, December 5, 2006 9:05 PM CST
Hi Deirdre--thank you so much for the updates and pictures. I have missed them. But, I can only imagine the exhaustion you are feeling. I will see you in 8 days : ) Love,
Janet
- Tuesday, December 5, 2006 12:38 AM CST
Dear Deirdre,

Thank you so much for your two beautiful updates and for telling us about you and the family. Thanks also for reminding us that the Advent is a time to "stop", enjoy, contemplate and renew. It may be a useful reminder for many of us..

The writing fairies are with you... this is for sure. You have such a talent and write so very beautifully. May the energy fairies welcome you in the New Year.

For now I invite the angels of Joy and Infinite Love to surround you, to allow you to touch the joy at any time, to feel how much you are loved by your dear ones and the universe, to encourage you to love yourself so passionately that you can enjoy each moment to the fullest while respecting also the physical limits of your body.

Would you please place yourself/your body on the frontseat, together with the ones you love?

Wishing you to find the job of your dreams at the perfect moment.

With much love,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Monday, December 4, 2006 9:59 PM CST
Hi Deirdre!
I hope your thanksgiving went well gal!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosting by PicsPlace.to

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, December 4, 2006 1:16 AM CST
I give thank for you, dear Deirdre, today and every day.
Happy Thanksgivings,

Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Thursday, November 23, 2006 10:17 AM CST


Peace, healing, and love to you and your family.


Annie <penguini1982@yahoo.com>
Rochester, MA United States - Wednesday, November 22, 2006 5:57 PM CST
heres wishing you a great turkey day
steph <guardianangellove2005@yahoo.com>
- Monday, November 20, 2006 10:15 AM CST
Image Hosted by ImageShack.us

YOUR ALWAYS ON MY MIND TAKE CARE .


LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA Canadian Flag, - Sunday, November 19, 2006 7:16 PM CST
Dear sweet Deirdre,

Do you really realize just how precious you are, just how much you bring to your fammily, your friends, the Earth and Universe.

You sing a very unique note in the universal choir. It vibrates compassion, love, wisdom, understanding and so much more... It is rich and full because you include in it all the shades of light, just as you welcome all emotions present in you and around you.

Thank you for sharing your beautiful family and wonderful pics. Thank you for all you do and all you are. As best as you can, nurture yourself as you nurture others and... keep breathing! Your breath matters in the universe.

With deep appreciation and much love,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Saturday, November 18, 2006 12:46 AM CST
Hi Deirdre!
Sounds like you're going through a rough patch emotionally gal. *hugz* I'm sorry to hear that the fingers are starting to act up again. Can't be easy. You take care and take it 1 day at a time yah?

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosting by PicsPlace.to

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, November 13, 2006 2:58 AM CST
Are you in Atlanta? We'll be there this Sat/Sun..maybe we can try round two?
I LOVE Jars of Clay...Their "I'll Fly Away" reminds me of Haley.
Many Hugs!!

Cheryl and Angel Haley <bandcvincent@aol.com>
- Wednesday, November 1, 2006 3:23 PM CST
Hey gal,
Just stopping in to check on yah, still loving the picture! You sound like you have so much going on.

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosting by PicsPlace.to

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, October 30, 2006 3:13 AM CST
Boo!

Just wanted to wish you a....



Love Viks


viks <viks@postpals.co.uk>
- Sunday, October 29, 2006 1:42 PM CST
Deirdre- Just stopping in to say hi. Been a long time.... Looks like you're doing well (all things considered (c))


Brian Schousek <schousek@yahoo.com>
Eastern Twin Citie, wi USA - Thursday, October 26, 2006 9:32 PM CDT
Hey Deirdre,
I love the pictures! and I think it was so awesome of your dad to have done that!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, October 22, 2006 11:27 PM CDT
hey deirdre just stopping by to say hi
steph
- Sunday, October 22, 2006 9:33 PM CDT
At the risk of sounding mushy....
your family is so inspiring, encouraging, and heart warming. It is a beautiful thing to see.

We will be in Atlanta again for just a Sat-Sun, for the party we are hosting at the Children's Hospital. Nov 4/5th.
Thanks for understanding my flake-y-ness last time.

Take care!

Cheryl and Angel Haley <bandcvincent@aol.com>
- Sunday, October 15, 2006 3:44 PM CDT
Just stopped by the guestbook to leave a quick hello and let you know you and your family are in my prayers.
Jennifer A from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Carrolton, Texas - Saturday, October 14, 2006 10:17 PM CDT
Hi,
Your mom told me about your web-page. Great picture of you and your cousins. She also told me about your uncle's death. What a terrrible shock for everyone. His family is in my thoughts and prayers.
Barb

Barb Vogl <bvogl@cbgundaker.com>
- Monday, October 9, 2006 7:33 AM CDT
One more week until you return! We miss you! Hope you are enjoying your NYC time. We love you
Lisa, Amanda, Kelsey and Morgan
Marietta, GA USA - Sunday, October 8, 2006 12:29 AM CDT
Hey Deirdre...
Wow... its been such an emotional time for you. Hang in there gal.


With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Image Hosting by PicsPlace.to


Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, October 4, 2006 11:21 PM CDT
D! I still haven't heard that I am forgiven, and I NEED your friendsip! Did I tell you about the Sumo wreastler we saw there? Maybe if I sent you a pic of his backside (hysterical) I could get back on your good side.
Or I will fly to New Jersey and give you a pericure. Even though I hate feet.
:( :( :(

Cheryl and Angel Haley <bandcvincent@aol.com>
- Sunday, October 1, 2006 8:27 PM CDT
A sweet tender hug to you, dear Deirdre, from across the ocean. Wherever you are, your presence is precious and felt, even beyond the reach of your physical being...
Thank you for being you,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Sunday, October 1, 2006 1:39 PM CDT
Deirdre,
I have not read about you since part way through your first semster of graduate school. You and Adam took death and dying from me your last semester as an undergraduate. It was good to read that you finished your degree at what I remember to be your first choice grad school. I am still teaching. There have been a lot of changes on campus in just the two years since your graduation.

Pamela Woodruff <woodruff@gwu.edu>
Washington , DC USA - Thursday, September 28, 2006 9:52 AM CDT
HUGE APOLOGY!!! This is me, begging for forgiveness! I am so sorry!!
I really wasn't blowing you off...I fell asleep. :(
That is the sad truth. The story (and more apologies) are on my site.
A million apologies!

Cheryl and Angel Haley <bandcvincent@aol.com>
- Tuesday, September 26, 2006 10:05 PM CDT
Thank you so much for the updates and pictures. It is so helpful for me because I can't be there. Be sure to take care of yourself too and good luck with the job hunting. I will see you in about 2 1/2 weeks. Love,
Janet <janet.calaway@micorp.com>
- Monday, September 25, 2006 10:16 AM CDT
Hey Deirdre,
I don't come here in a while and so much happens! *hugz* Glad you're still coping despite it all. Hang in there girlie!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

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Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, September 21, 2006 4:34 AM CDT
You and your family are awe inspiring! The trials and tribulations you all have endured and you still find the time, patience and energy to help us! Thank you for all you do and God bless!
Beth Capezio <elc53@optonline.net>
Clifton, NJ - Wednesday, September 20, 2006 5:43 PM CDT
You are such a blessing! Thank God for you!


Aunt Dawn <dawnranea@insightbb.com>
Rockford, Il - Wednesday, September 20, 2006 0:15 AM CDT
Thanks so much for writing and posting updates. You and your whole family have my deepest sympathy and we have already prayed many times since we heard of your uncle's sudden, startling death. You are all very much in my thoughts and in my heart. Love Always, JeanMarie
JeanMarie Hinds <jhinds@new.rr.com>
Appleton, WI USA - Tuesday, September 19, 2006 8:28 PM CDT
I love your web site. The pictures and updates are a great way to keep everyone updated on your life. Sorry to hear about your Uncle Dave. What a loss on earth but think of the joy in heaven.
Diane Collar <rcdcjcjc@sbcglobal.net>
Appleton, WI USA - Tuesday, September 19, 2006 10:25 AM CDT
Thank you so much for the updates and especially the photos...it was sooo hard leaving you and the girls (Lisa, Amanda, Kelsey and Morgan) behind...I just want to scoop you all up and somehow take away your pain. The pictures are such a connection...I just need someone else to take a picture of you too so I can see how you are doing!!! It's a good thing I didn't send the BIG bag of skittles...otherwise Derby would have a big old belly ache! Tiger is watching over me as I type...she says 'meow' and wants to know if she'll like the new cats in your life!!! I love you so much my pretty precious sweetheart...take care of yourself as you take care of everyone else...((( )))
Mom <LeanyJoan@goltzland.com>
Jersey City, NJ USA - Monday, September 18, 2006 9:40 PM CDT
Deirdre, my sweet cousin...
Thank you for the wonderful additions
you have made to your page.
Every time I stop by I get teary eyed
but I've become an addicted, daily viewer...I can't help myself :)
Please know that just by being
there for mom and the girls (and me too)
means more than any of us
could express in words.
You are truly an amazing woman
and an inspiration for us all.
It brings comfort to my sad heart to
read some of the things I find
so hard to put together in my mind.
Who would've known that my little cousin
and childhood playmate would have such an
impact on the world and our hearts?
I love you so very much!! ~Amanda

Amanda Blume <amandamblume@hotmail.com>
Snellville, GA - Monday, September 18, 2006 2:36 PM CDT
Deirdre,

Thank you so much for your words. It is so nice to read so many of the things I've been feeling--somehow they make more sense when you say them. Thanks also for all you are doing for Lisa and the girls. ...and please call me Sheila instead of Miss Sheila :)

Sheila Shelton
- Monday, September 18, 2006 10:10 AM CDT
I am so sorry, Miss D. I had no idea you had suffered such a loss recently. My prayers are with your family
Coincidentally, we will be in Atlanta next week, and would love to meet if it is not an inconvienent time.
We have a meeting at Egleston Childrens Hospital on Friday, free (so far) on Saturday, and are attending a baby dedication (for Jordan Haley) on Sunday. We will leave for TN after the service.
Please email me if any of that looks like it could work for you.
My sincere sympathies to your aunt and cousins as well.

Cheryl and Angel Haley <bandcvincent@aol.com>
- Sunday, September 17, 2006 6:39 PM CDT
Hello, Just a short message to say



Love Viks






v <viks@postpals.co.uk>
- Sunday, September 17, 2006 4:05 PM CDT
(((Deirdre)))

Really sorry to hear about the immense loss to your family. And relieved, almost "happy" to feel how your support, love and compassion surround your aunt and cousins in those difficult times.

You are unique and precious, dear one. And as others may have said already, continue to - also - take care of yourself.

In love and appreciation,
Eva

Eva Van den Broeck <eva.michaele@skynet.be>
Brussels, Belgium - Sunday, September 17, 2006 9:05 AM CDT
Hi there. My name is Christin. I have lupus too. I'm 26 and in NJ. Found your site through share the love.org.....just wanted to say hello and that i understand. I have caringbridge site too....lupeychick is the handle.
Christin
NJ - Thursday, September 14, 2006 7:58 PM CDT
I know you don't like to go the doctor....but go anyway :)

Stay on top of things..they can get out of control too easily!

Okay, I'll stop preaching. Other than the illness, it sounds like things are going great. I'll bet you are amazing with the kids. :)

Cheryl and Angel Haley <bandcvincent@aol.com>
- Wednesday, August 30, 2006 9:14 AM CDT
Hi Deirdre!
Oh no! I'm so sorry that you had to go to the ER! I hope th cough is much better now!!!!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne’s Corner

Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, August 29, 2006 10:38 AM CDT
Dear Deirdre
You don't know me at all, but I feel that I've known you for quite a while. Like so many wonderful people, you've sent loving and supportive messages to Julianna during the terribly uncertain part of her life. I saw her yesterday and can tell you she is a very happy girl with sympathy for everyone she knows. She loves people on sight. She sees the good in everyone. She smiles from ear to ear. She is "normal" in every way. She is just 6 years old. Now the point is that she didn't just happen to get that way. She has a wonderful Mom and Dad who helped make her that way. But during all the medical trials of the past few years, THEY needed the support, assurance and love to keep their thinking clear. That's where you come in...a total stranger with the kind of support that you, as a caregiver, know the value of. I have always thought of you as a girl with a big heart, because you always sent your support which helped the whole family. I just want to say that I really really appreciate the kind of person you are and the good things you have done for Julianna, and others I suspect. You have made a difference in this world already. Acts of kindness are seldom big things, and they don't get near the "Thank you's" they deserve, but they form attitudes of faith and worth that are so valuable. That is what I admire so much about you.Though I will probably never have the pleasure of meeting you, I just wanted to say Thank You for being "you". Good luck in your own challenges Deirdre ! With the help and caring of others, we all feel more faith and confidence. God bless you.

Grandpa Banana <bjosephson@westman.wave.ca>
Brandon, Manitoba Canada - Monday, August 21, 2006 2:46 PM CDT
I am so sorry I didn't buy you dinner while I was at Times square last march. Maybee next year.
Jeff Petz <jeffpetz@cox.net>
Phx., Az. you. s. a. - Friday, August 18, 2006 11:43 PM CDT
Dear Deidre,
Thank you for taking the time to check out my site. I think it's an inspiration that you have accomplished so much in spite of the difficulties with your disease. I also think that it is wonderful that you aspire to help children who are fighting through similar circumstances. Keep up the good work!
Sincerely,
Jessica
http://www.caringbridge.org/visit/jessicainchiostro

Jessica Inchiostro <jaufner@hotmail.com>
MO - Friday, August 4, 2006 6:00 PM CDT
Thanks Deidre for your spunk. You recently answered some questions for our 11 year old daughter on the Lupus spoons page and she wanted us to say thanks. YOU GO GIRL
Janice Lazure <jangarywest3@hotmail.com>
CALGARY, AB CANADA - Tuesday, August 1, 2006 8:57 PM CDT
Hey Deirdre!
I'm sure that you'll make a difference in the world! Or at least in yours. I think its awesome what you're doing!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne's Corner


Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, August 1, 2006 4:31 AM CDT
There have been many times since we started Haley's foundation that I have wondered what in the world am I doing???
I could be DONE with this world of illness and death, and yet I open my heart and plop myself into everyone else's trauma and pain. Crazy? No....I do it because there is always that next person who needs what I can give.
That is what you are doing too. Making a difference.
I am so sorry this has been a hard time for you.

Cheryl and Angel Haley <bandcvincent@aol.com>
- Wednesday, July 26, 2006 4:21 PM CDT
Congratulations, Miss D!

We have not fallen off the planet here, just kind of dived under the radar. I am *SO* proud of you and what you have accomplished! Keep up the good work, but *TAKE CARE* of yourself!

Love and hugs from down south,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Monday, July 24, 2006 10:35 AM CDT
Crying and sighing with you.............can't wait to see you next weekend! Love,
Lisa, Dave, Amanda, Kelsey and Morgan
Marietta, GA USA - Friday, July 21, 2006 0:49 AM CDT
Just checking in...

We are SO proud of you..please keep journaling into your 'NEW' life...I am expecting God to use you in great ways!

Much love,

Cheryl and Angel Haley <bandcvincent@aol.com>
- Monday, June 19, 2006 10:10 AM CDT
Congratulations! You look absolutely gorgeous...and even a little smarter, I believe. :)

You signed Haley's guestbook a few weeks ago, and I had been coincidentally, on your site catching up with you, while you were signing in with us. A psycic connection, maybe?

As always, I am sending good thoughts, and warm cyber hugs!
Love,

Cheryl and Angel Haley <bandcvincent@aol.com>
- Monday, June 12, 2006 11:20 AM CDT
Hi Deirdre!
Congrats on graduating! It'll be my turn soon! lol... Commencement is in July. We should both have a party huh?

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne's Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, June 12, 2006 4:48 AM CDT
It was so good to see you this weekend - glad we were able to fit in Cone E. and a monument walk. Hope health things are going well and that you are enjoying your few days off before starting the internship. Let me know if you'll be in DC at all again this summer (preferably with a bit more advanced notice then 'hey, I'm here!'). :oP
Julie <jsb64@georgetown.edu>
Washington, DC - Thursday, May 25, 2006 9:42 PM CDT
Big congratulations on graduating!!! I've been thinking about you and glad you've survived the semester. I'll look forward to seeing pictures soon!
Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA United States - Friday, May 19, 2006 12:35 AM CDT
Congratulations Deirdre!!!!!!!

Kristi Schoolfield <snickles999@yahoo.com>
Grand Blanc , mi - Friday, May 19, 2006 7:17 AM CDT
Congratulations Deirdre! I have absolutely no doubt that you WILL change the world.

With love,

Katie, mom to Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Thursday, May 18, 2006 11:48 PM CDT
Hi Deirdre!
I'm so glad that your headache finally broke! Man... I hate migraines. I'm not good with them!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, May 3, 2006 10:07 AM CDT
Just thought I'd drop in with a friendly hello while I sit here at midnight taking a brief break from the several more hours of studying I have to put in for the evening. :oP While I am perpetually exhausted/drained/miserable, this whole new insomnia thing at least means I'm way more productive -- it's amazing what you can do during the normal 7 hours when I wish I could be sleeping. CANNOT BELIEVE you will be graduating so soon - has it really been that long since I was hanging out in your closet in Thurston? Hope you are hanging in there health-wise. Also quick explanation as to why my CB page disappeared -- I was tracking where incoming links were coming from, and noticed a hit from Harrisburg -- no idea who, but made me a little nervous about if anyone from home could have found it since nobody really knows there, so I just went ahead and took the page down altogether. Once my exams are over I'll send you a health update - managed to get myself a whole new slew of doctors but they're all still at GW so I have to switch over and find more at Georgetown once I'm dropped off my parents insurance when I turn 23, grrr. Hope you are doing well - not too much more time left as a student, and then you get to play grown-up and tackle the working world (well, does it really count as grown-up if you're just an unpaid intern still? And will you ever really be grown-up and mature? I think not!!). MISS YOU!
Julie http://ethidiumbromide.blogspot.com <julie.barber@gmail.com>
Washington, DC - Monday, May 1, 2006 11:08 PM CDT
Hey Deirdre!
Praying for your friend! And hang in there gal! I just ended my exams! Thank God! So I TOTALLY understand the feeling!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Friday, April 21, 2006 9:22 AM CDT
Stopping by to wish you a Happy Easter.
Hope you have a great day..

Kristi Schoolfield <snickles999@yahoo.com>
Grand Blanc , mi - Sunday, April 16, 2006 3:06 PM CDT



Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA United States - Friday, April 14, 2006 7:45 PM CDT
Image Hosted by ImageShack.us

Keeping you in my thoughts and in my prayer's always.



LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON AlbertaCanada, - Wednesday, April 12, 2006 2:33 PM CDT
Kudos to *you*, Miss D! Mt. Sinai.... WOW! It's so nice to see someone who has gone thorough so much to finally attain one of their dreams. You, my friend, will be, no, make that *are* an awesome Child Life specialist.

Yes, you still have to do the internship, but you've already got something most of them don't ----- life experience from the patient's point of view. And with your sensitivity to others, you will be such a blessing to so many children and their families! Just don't forget to take care of yourself in the process, so that others can benefit from your experiences, okay?

Hugs and prayers of thanksgiving from down South,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Wednesday, April 12, 2006 10:00 AM CDT
Hip hop, hippety hop
My “Easter Bunny” went off to the shop,
He bought me an egg and lots of chocs
And packed them into a cardboard box.
Then he wrapped it with paper and shiny string
It really was such a pretty thing.
Disaster struck when I opened the door-
He slid across the parquet floor,
He went round the corner and past the stairs
And finished up in a pile of chairs.
Of the Easter goodies not a trace,
he’d thrown them into my fireplace!
So a warning before you go opening doors
Make sure your “Bunny” has non-slip paws!





Happy Easter

With lots of love,

Everyone at Post Pals



viks <viks@postpals.co.uk>
- Monday, April 10, 2006 12:39 AM CDT
I would add one more thing to your list of March 5th...Encourager and supporter. You are blessed with compassion...it is probably one of your "spiritual gifts", although it may feel like a curse to you at times.
What is harder than suffering? Watching someone you love and care about suffer.
It is funny that you signed our book yesterday, I had just been thinking about you not 2 or 3 hours before, wondering how you were.
Thanks for sharing about the dreams.
You will be an amazing Child Life Specialist. Listen real hard, you will hear Haley cheering you on.

Love and prayers,

Cheryl and Angel Haley <bandcvincent@aol.com>
- Thursday, March 30, 2006 9:11 AM CST
What an insparation an you are so stong to go though so much and still accomplish so much!!!
Keeping you in our prayers
In Gods Love
www.caringbridge.org/tn/kayla
www.caringbridge.org/tn/mimmie

April "Angel" Mikayla Mimmie and Hunter Noah and Zach <babymsmom04@yahoo.com>
TN USA - Wednesday, March 29, 2006 3:16 PM CST
Image Hosted by ImageShack.us

Keeping you in my thoughts and in my prayer's always.

LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca ~THE PRAYER BEARS~>
EDMONTON AlbertaCanada, - Tuesday, March 28, 2006 4:42 PM CST
It's late, I've had my ambien, and I am not even sure I understood all of that, but the two things I got were.....YEA for your internship. I knew you would get whatever you put your mind to. AND, I am sorry your friend is having such a tough time. She is lucky to have such a compassionate friend in you. Prayers for her :)
Check in from time to time on Haley's site...the Foundation (including supporting peds lupus) is coming together nicely. We have chapters and boards, fundraisers planned. We even have a web designer creating us an amazing web page.
I'll keep you posted.
Chin up, sweet girl,

Cheryl and Angel Haley <bandcvincent@aol.com>
- Saturday, March 25, 2006 9:36 PM CST
Praying for you, Miss D, as well as your friend. Follow your heart, dear one, but *do* take care of yourself. (compulsive motherheart here) :-)

Hugs from down South for you both,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Friday, March 17, 2006 11:24 PM CST
Deirdre,Happy St.Patrick's Day!

Image hosting by Photobucket

God bless,love&hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa. usa - Friday, March 17, 2006 2:23 AM CST


Hey D.
If you feel you need to see her, take the bus. Follow your instincts. They are usually right.
I am sorry for your friend, it is a crappy group of diseases. Haley's doctor told me once, that lupus only happened to "Pretty girls". How insane is that? Was that supposed to make me feel better?? She has this horrible thing going on, but...well..she IS pretty cute.!!
Give me a break.
Hope you stay feeling decent, and your friend has a short stay.

Cheryl and Angel Haley <bandcvincent@aol.com>
- Thursday, March 16, 2006 10:26 PM CST

Annie <penguini1982@yahoo.com>
Rochester, MA United States - Wednesday, March 15, 2006 7:39 PM CST
best of luck and lupies all stick to gother
dx. lupus august, 2005

juanita peek <kooljoe703@peoplepc.com>
del rio, texas usa - Tuesday, March 14, 2006 12:08 AM CST
Hey Deirdre,
Just stopping in to check on yah!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, March 12, 2006 10:37 AM CST
Stoppin by to say hi
Kristi Schoolfield <snickles999@yahoo.com>
flint, Mi - Saturday, March 11, 2006 3:27 PM CST
Praying for your better health and I hope to meet you March 16-20th
Gephph <jeffpetz@cox.net>
Phoenix, Az. USA - Tuesday, March 7, 2006 9:11 AM CST
Hello Dierdre -

Just checking in to see how you are doing! Hope things are getting a little better...

Caroline <ajpranke@juno.com>
Apple Valley, MN USA - Monday, March 6, 2006 12:07 AM CST
Image Hosted by ImageShack.us

THE PRAYER BEARS

LOVE ALWAYS BRENDAMY LOVING DAD <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Friday, March 3, 2006 9:35 PM CST
Hey Deirdre...
Yeah!!! You go gal! Esp with the "you don't look sick"! lol... Hang in there and I hope things get better for yah!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, March 2, 2006 1:17 AM CST
Love Love Love the responses to "but you don't look sick"...not for me, but for when people say it (to me) bout my son...."but he looks so healthy"
Best wishes!

Travis and Brenda <fsgsmom@gmail.com>
Niceville, FL - Tuesday, February 28, 2006 8:36 PM CST
Hi Deirdre,

Sorry you're feeling so awful lately. It sounds like a rough day there and I really hope you're feeling better soon. I LOVE your list of responses to "But you don't LOOK sick!" Especially that last one! LOL I'll have to remember that one. Of course, I usually get the "You look good!" more so than that so I'll have to think up some responses to that one!

I hope you have a better day today. I'm thinking of you!

Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA United States - Tuesday, February 28, 2006 12:57 AM CST
Hi Deirdre,
Thank you so much for stopping by. It was so nice to hear from you. I really enjoyed your recent post, particularly the responses to "you don't look sick". I wish I had those in my arsenal when people used to tell me how good my son was doing, simply because his hair was growing back.

As usual, your courage and humor and wisdom are inspiring. I hope you are feeling better and that your fever has subsided.

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Monday, February 27, 2006 9:45 PM CST
Oh, Miss D!

I sympathize *completely* about the costochondritis!! I've had to deal with it myself off and on now since April, 1993. And it's interesting, that I also have a high sensitivity to light. Hmmmmmm, wonder if that is any connection whatsoever?

Completely changing gears here, I have to confess that I laughed out loud, reading your 10 responses to "But you don't look sick." Number one is the absolute *BEST*! I'm going to save that one for myself.

Hope you're soon feeling better. Bummer way to work. I know that you'd take any improvement in a heartbeat. Just because I'm not posting on here doesn't mean you're not in my thoughts and prayers. Whenever you get tired of NYC, come on down our way. I'm sure they can use a Child Life Specialist at Egleston or Scottish Rite. :-)

Hugs and prayers from down South,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Saturday, February 25, 2006 7:12 PM CST
Hey Deidre,
Sorry to hear you're feeling down... I totally admire you for admitting it and being brave enough to realise that you are moving forward and that you need to. I hope the days only get brighter and that you just do whatever it takes to get yourself through each day.. I have no idea what you're going through, which of course, makes it about a thousand times easier for me to say/write all of this... but I'm praying for you. Keep strong..

~*~*Girlie's Page*~*~

Love always,
XOXOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Sunday, February 19, 2006 2:48 AM CST
I'm glad to hear you and your cat are heading in a positive direction.
Regarding your scratching cat...have you ever used Soft Paws. I put them on two of my 'scratching' cats. I apply Soft Paws to cats at our local Humane Society. It's a good thing.
I find your entries to be a wonderfully uplifting read, even when you are feeling otherwise. It is my hope that your pain lessens and your good days more frequent!

Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Friday, February 17, 2006 9:03 PM CST
Just thought I'd drop by to say hello! Hope you didn't get crushed under the feet of snow that you got, teehee. Also hope that Tiger is doing much better -- funny how pets tend to take after us -- my first cat died of feline leukemia. Good luck with the medical team assembly, I am currently starting to put together a new one for myself with all sorts of new and exciting specialists at Georgetown so my commute will be much shorter (heck, maybe they'll even let me do my infusions in the lab now since it's in the cancer center... you know, IV in one arm, pipette and petri dish in the other). Hope all is well and you're feeling better, both physically and emotionally!
Julie <julie.barber@gmail.com>
Washington, DC - Wednesday, February 15, 2006 7:09 AM CST
Image Hosted by ImageShack.us
Image Hosted by ImageShack.us

LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Tuesday, February 14, 2006 9:45 PM CST
Haley's doctors were always generous in giving her pain meds. I didn't care if she became addicted, because without a cure, she would be on them for the long haul. We used different ones so she wouldn't build up a tolerance, we switched every few months.
In my opinion, it is not okay for you to be in pain or nauseous. I think you would feel better with the meds physically, and that would help you emotionally as well.
Of course, this is advice coming from a virtual basket case right now!! I just know how I felt with Haley, and how I would feel if you were my daughter.
I hope things get brighter for you very soon.

Cheryl and Angel Haley <bandcvincent@aol.com>
- Tuesday, February 14, 2006 12:30 AM CST
HAPPY VALENTINE'S DAY!


<penguini1982@yahoo.com>
Rochester, MA United States - Tuesday, February 14, 2006 11:05 AM CST
i hope you are feeling well. you sound sooo very sad in your update.... i hope you are feeling happier soon. tak ecare
Robyn mom to Nicole and angel PJ
www.caringbridge.org/visit/nicole


RW
Petawawa, Ontario (Canada), - Saturday, February 11, 2006 4:54 PM CST
Hi Deirdre,

First, I wanted to thank you for sharing the "spoons" link. I had never heard chronic illness explained that way, and I found that to be enlightening, to say the least.

Second, I wanted to tell you that I'm so sorry that you are having such a tough time of late, and that you have been in such awful pain for so many years. I don't even know you, and I wish there was something I could do to make life easier for you...I can't begin imagine how difficult your illness must be for your close friends and family, let alone how it must be for you. I'll keep you in my prayers; the very least I can do.

And lastly, I do not understand (and believe me, I've tried) why doctors care if a person with chronic pain becomes addicted to pain-killers. If the person will be in severe and debilitating pain indefinitely, and will have to take pain medication for as long as they are in pain simply to live a functional existence, what the heck difference does it make if they become addicted to the medicine that they have to take anyway?!!!! And from a slightly different slant, if the pain were to stop tomorrow, I'm pretty darn sure you'd be more than happy to live your life without the clouds of pain *and* medicine, even if you *had* become addicted to meds! I just don't get it. It's not like you're taking it for the fun of it. Shouldn't doctors' number one goal be to facilitate your living a pain-free life??! This whole subject just makes me mad.

Sorry for the self-indulgent rant, but if you can explain the rationale for doctor's apparent lack of common sense, please, please, please explain it to me. Or better yet, forget about explaining it to me, and use that spoon to do something fun.

I wish you a peaceful and restful Sunday.

((((cyber hug))))

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Saturday, February 4, 2006 11:04 PM CST
Hi Deirdre!
How are you doing?? I hope you're feeling better and that the weather is being nice and kind!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, January 29, 2006 10:13 AM CST
Hello, just thought i would pop by your page to have a nosey at how you are doing, i like the quote you used at the end




Love Viks from

viks <viks@postpals.co.uk>
- Saturday, January 21, 2006 11:38 AM CST
So much of what you said is achingly familiar. No pun intended! I wasn't the patient, but many times I grew so weary of the fight. We never made plans of any kind, everything depended on how Haley felt, which could change hour to hour and depend on how bad she wanted to go. She would push thru some pretty rotten stuff to get to the "important" things. Of course, as a child, she didn't have to work..we were lucky enough to be able to use all of her good hours for quality, fun stuff...and occasional schoolwork.
She was amazing, she was tough...and so are you. You and Sara have to keep up the good fight now. You have to be the warriors, and then the winners over this disease.
Praying for you.

Cheryl and Angel Haley <bandcvincent@aol.com>
- Thursday, January 19, 2006 7:58 AM CST
Okay, Miss D, it's been two weeks, and I know that in real-life terms for those with AI diseases, that's a blink, I'm just a little concerned that I haven't seen anything from you. Let us know that you're okay!

Praying for you here in Georgia,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Thursday, January 19, 2006 0:36 AM CST
HEy Deirdre!
Just checking in on you. Hope things are going better for you!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, January 15, 2006 11:19 AM CST
Oh gosh Deirdre, I'm not even sure where to begin. I had to go back and read your last entry too and I'm just sitting here shaking my head. I'm so sorry that you've been through so much lately. I don't even know if I should be wishing that there is some psychological component to all of this... or not? I don't really believe there is, but man... I wish that it was something that could be 'cured' like that. Yeah, I told you I didn't know what to say. Just know that there are a lot of people out there thinking of you and who care about you and who are praying every day for your health.

Lots of love,

Katie, mom to Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Saturday, January 14, 2006 10:04 PM CST
Image Hosted by ImageShack.us

hope you feel better soon.

LOVE ALWAYS BRENDA MY LOVING DAD FOREVER MY ANGEL <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Thursday, January 12, 2006 11:11 PM CST
HOPE YOU FEEL BETTER
steph the girl that adopted you from sharethelove.org
- Thursday, January 12, 2006 7:02 PM CST
Hi Deirdre!
Sorry to hear that you weren't feeling good! Hope you're better now!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care

Joanne’s Corner
~Simply Joanne~



Joanne <joanne173@gmail.com>
Singapore, Singapore - Saturday, January 7, 2006 11:43 AM CST
Well, well, *WELL*!!

HAPPY BIRTHDAY, MISS D!!!!

You and Sara are only 3 days apart on the birthday calendar. Hers is today! #24 in her case.

I read your post with great interest. You see, you give me insight into my own daughter's mind as well. I understand so well the dual mindset required by a disease such as RA. It's very, very similar to the one we need just to cope with lupus and fibromyalgia.

You want to hope, you want to be optimistic, you want to look to the future, you want to plan and hope and dream. But then life, known as auto-immune diseases, kicks you in the proverbial butt, and you have to face the real world, your world, that no one but you, or someone in a similar situation, can understand.

I don't pretend to understand completely. I can't because I don't have RA or lupus (thank you, Lord). But I have seen what it does to a perfectly normal, healthy young woman. It takes her up, turns her inside out, chews her up and spits her out, all without her permission or, in our case, her knowledge.

And you know the part that really drives me up the wall?

So many people, hearing that the lupus is in remission (for which we *are* grateful, believe me!), think that Sara's "back to normal", or close to it.

They don't understand the constant, chronic pain, or the ever present, draining fatigue. When they see her, after a long absence, it's not unusual to hear them say,"Well, she looks *great*!"

Looking great only requires good makeup (camouflage), a hair appointment at a good beauty salon, and nice clothing. It does nothing for the pain, the fatigue, the depression, etc. I appreciate their concern, but, honestly, sometimes, I just want to *shake* them and tell them that they don't have a clue!

Enough! I've ranted enough, and I really didn't intend to do that. Just wanted to let you know that, in a small way, I do have a level of comprehension and to tell you to keep on writing to us. I think it helps just to say it out loud, even if it's only on Caring Bridge, and get it out of your system. ;-)

And I wanted to give you a link to a wonderful website, sent to Sara by Terry Josephson, dad to Julianna Banana. This story about the "Spoon Theory" is so very, very clear about what it takes for a person with an auto-immune disease to cope, day in and day out. I hope it helps someone else, even family, to gain a better level of understanding of what you cope with. Here's the web address:

http://www.butyoudontlooksick.com/2004/11/the_spoon_theory.php#more

Sorry that I can't link it directly. You'll have to copy and paste into your browser. I'm not computer savvy enough yet to create a direct link. Or, at least, the brain fog has not lifted enough tonight for me to remember the html!

Take care of yourself, Miss D, even though some folks may have to be disappointed. I know that you don't want to disappoint them, but put yourself first! You know better than anyone else at any time what you're feeling capable of doing. Don't let them steamroll you!

And, by the way, *HAPPY, HAPPY, HAPPY, HAPPY, HAPPY, HAPPY BIIIIIRRRRRTTTTHHHHHDDDDDDAAAAAYYYYYY to *YOU*!!

Much love and hugs from down South where it is flat-out *COLD* tonight,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Friday, January 6, 2006 10:50 PM CST
First of all, Happy (slightly belated) Birthday!

I can understand exactly what you were writing about when it comes to planning and then having all your plans turn to rubbish because of a bad day, or a string of bad days. I have different levels of planning, some of which help when I'm feeling awful and some of which just make me feel worse because I have to pass up things I wanted to do. If I have to get up and go somewhere in the morning, when I'm waking up usually I have to lie in bed and plan out in my head what I'm going to wear so I don't expend the extra energy standing up in front of my closet. Most people don't think of showers as a luxury reserved for "good" days.

It's hard for people to really understand if they haven't been through something similar. That's one of the things that is so unique about Caringbridge - we have an understanding (most of us at least) that is so rare.

I hope you have a better day soon and are able to celebrate your birthday by having a good day! I'm thinking about you!

Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA United States - Friday, January 6, 2006 11:10 AM CST
Dear Deirdre,
Happy Birthday!!! I haven't signed in a long time but have been checking in on your site frequently. Was so sorry to hear that the monster came out of hibernation. I can relate...boy oh boy....can I relate. I'll be back on a different drug ASAP to tame my monster -if it ever gets approved by insurance. Meanwhile, I am looking at PhD programs...not a bad thought when weighing at least 40 hours of non flexible work against slightly more flexible school. I swear...being a career student should be an option for some of us...and then forgive the loans because we got so smart and have so much to give back from all that schooling. I hope your joints and chemo side effects give you a break. Praying that the monster goes back in hibernation and that you have a fabulous 2006. And praying that you get to savor every moment of the things you can plan...and plan on....

Shalom and Blessings,

Adena <adenashoshan@comcast.net>
Boulder, CO USA - Friday, January 6, 2006 0:09 AM CST
Happy Birthday!
Brian Schousek <schousek@yahoo.com>
lights, constant confusion lala-land - Thursday, January 5, 2006 11:30 PM CST


Love viks
www.postpals.co.uk

viks <viks@postpals.co.uk>
- Tuesday, January 3, 2006 10:02 AM CST
I know it's only tomorrow but I want to wish you an happy birthday!!!!
You deserve a great year!!!!

Jolyane <vague_2000@hotmail.com>
Montréal, Canada - Monday, January 2, 2006 2:59 PM CST


I'm sending lots of wonderful New Year's wishes your way and hoping that 2006 brings health, happiness, and more wonderful times than you'll be able to remember!


Annie <penguini1982@yahoo.com>
Rochester, MA United States - Friday, December 30, 2005 7:20 PM CST
Wanted to drop by last week to wish you a Merry Christmas, and find myself, instead, here to send it to you belatedly with another wish for you for a very Happy New Year!

It is my prayer that 2006 will be the year that the doctors find just the right combination of meds to kick RA's butt! And that we'll be reading instead of you having a marvelous time, doing anything and everything you've ever wanted to, but couldn't!

Hugs and blessings from down South,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Friday, December 30, 2005 0:00 AM CST
Still with you. Be strong...
Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Wednesday, December 28, 2005 10:26 PM CST
Image Hosted by ImageShack.us


MY CHRISTMAS ANGEL

LOVE ALWAYS BRENDA <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Sunday, December 25, 2005 2:51 AM CST
Yay!! Miss D is *back*!! :-)

Thanks for the warning about the snack, although I didn't actually take you up on it, but I figured that I denied myself at least 250 calories by avoiding the frozen yogurt that long! ;-p

When I have time to really respond, I will. But your thoughts are *so* similar in so many ways to my Sara's. She's been struggling with some of those same things. At least, I think so, but I'm only her mom, so what do I know, right? <:-o

Know that we remember you in our thoughts and prayers! And we're praying that the new stuff kicks in soon in the right way and you're kicking RA butt for Christmas!

Hugs from down South,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Friday, December 16, 2005 10:55 PM CST

Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, December 16, 2005 10:10 PM CST
Okay, Miss D, where *are* you? Getting worried not hearing anything here on CB. Let us know how you're doing, okay?

Worried down South and sending you hugs,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Wednesday, December 14, 2005 7:33 PM CST
Image Hosted by ImageShack.us

I know it's been like forever since I've visited you.
I have just been so busy.
But I think of you always.

LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Tuesday, December 6, 2005 7:25 PM CST
Hey Deirdre... where are you girlfriend? Hope all is well with you.

With love,

Katie, mom to Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Monday, December 5, 2005 4:36 PM CST
Hi Deirdre!
I hope you are feeling better now. Thinking of yah!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care

Joanne’s Corner
~Simply Joanne~


Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, December 5, 2005 12:21 AM CST
Hey Deirdre sorry I haven't posted a message to you in awhile.

Glad to hear you are doing ok, with the exception of silly blond receptionists(no offense to anyone that reads this).

I will check in on you later, and I will post again soon.

Steph
- Monday, November 28, 2005 10:13 PM CST
Hey Deirdre,

I stopped by to tell you about something that was emailed to me that made me think of you, but I was very sorry to hear that the road is so rough right now. I know it must be bad when you start editing what's supposed to be your thoughts on here...I know because I do the same thing. I sure do hope this can turn around for you, and that you have the strength you need in the meantime.

Someone emailed me "The Spoon Theory". Have you seen it before? It was written by a young woman with lupus, trying to describe what it was like to be sick. I immediately thought of you and Sara W. when I read it, like maybe I'm a step closer to understanding what it must be like to live with lupus. Anyways, in case you haven't seen this before, here's the link.

This little essay, along with lots more is from www.butyoudontlooksick.com . If you haven't been there before, you should check it out.

Take care and feel better,

Terry, Julianna Banana's dad <tjosephson@shaw.ca>
Winnipeg, Canada - Thursday, November 24, 2005 0:10 AM CST
I'm sorry you are having some tough times. I know all too well the feeling of getting no answers from the doctors.
You are always in our thoughts and prayers.

Cheryl and Angel Haley <bandcvincent@aol.com>
- Wednesday, November 23, 2005 9:50 AM CST
Image hosted by TinyPic.com

Thinking of you today...

Desiree Nichols (Sammy's Mommy) www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com>
Gordonsville, VA USA - Tuesday, November 22, 2005 12:49 AM CST
Hi Deirdre!
I'm so sorry to hear about what happened!!! HAng in there gal! And hey... email me if you ever need to talk or anything!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, November 22, 2005 9:36 AM CST
Wishing you a very bless Thanksgiving.
Sending lots of prayers your way+++++++++++++++++++++++++
Love LaKota and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, November 21, 2005 8:52 PM CST
OK first thing I thought... BEAUTIFUL pic of you in front of the waterfall! And look at all your HAIR!!!

Then I read your update... I am SO sorry that this crappy disease is back and hurting you... I so want to write some angry swear words but I won't. But I am thinking them...

Lots of love,

Katie, mom to Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Sunday, November 20, 2005 10:12 PM CST
Hey girly. I've checked on you from time to time for quite a while now, and I wanted to be sure to post today to let you know I'm thinking of you, and praying for you.
Natalie <cayennevoncajun@hotmail.com>
Tonganoxie, KS USA - Thursday, November 17, 2005 4:44 PM CST
Just checking in to see how you're doing and wanting to let you know you're in our thoughts and prayers.

Love and hugs from down South,

Merri Williams, Mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Sunday, November 13, 2005 9:39 PM CST
Hi Deirdre!
I'm sorry to hear that things have been so rough. *big hugz* But I kinda understand. Its always scary. The thought of things getting bad again just when everything was starting to look up. Just know that I'll always be praying hard for you ok? Hang in there!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, November 3, 2005 9:32 PM CST
Yea for you! $400.00 is alot of money...and you know our sweet Haley was cheering you on from Heaven. I hope you felt her with you that day.
You are a hero!

Cheryl and Angel Haley <bandcvincent@aol.com>
- Thursday, November 3, 2005 7:14 AM CST
Have you choosen a favorite restraunt?????????
Lenny Kognowski <A STRANGER THAT STOPS BY EVERY NOW / THEN@COX.NET>
Detroit, Mi US.A. - Wednesday, November 2, 2005 5:35 PM CST
Image Hosted by ImageShack.us

LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, October 31, 2005 11:51 PM CST
Image hosted by TinyPic.com
desiree nichols <rickysammyhannah@aol.com>
gordonsville, va - Monday, October 31, 2005 7:34 PM CST

Love, Annie <penguini1982@yahoo.com>
Rochester, MA - Saturday, October 29, 2005 2:45 PM CDT
Hey gal!
How are you doing?? Thinking of you!!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears~
Ones Who Care

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, October 26, 2005 10:46 AM CDT
Hey! I found your page on Share the Love and decided to stop by! Im glad that you are well! I want to be a social worker too, but I still have many years of college to go lol Hope everything is well with you!!
courtie (www.caringbridge.org/md/courtie) <jhcccourtie@aol.com>
- Monday, October 24, 2005 4:38 PM CDT
One last thank you, too, for the Enya recording: "How Can I Keep From Singing". It has become an anthem for me after this past summer. What a delightful surprise to hear it coming from my speakers as I read your page today. I had completely scrolled past the little toolbar and missed the title. :-)

Hugs from down South where it's a little nippy today,

Merri Williams, mom to Sara (http://www2.caringbridge.org/ga/sarawilliams/) <mamamerri@bellsouth.net>
Decatur, GA USA - Monday, October 17, 2005 12:32 AM CDT
Hello, Miss D!

Forgive me for not stopping by and signing in, but I truly haven't forgotten you or fallen off the face of the earth! :-) Life has just truly been a pain recently, in more ways than one.

Thanks for stopping by and signing Sara's page. It means a lot to me that someone is thinking of her right now. Things have not been easy lately, especially in the past week or so. And I can not get over your *HAIR*! GO, GIRL! What a head of hair! WOW! And I've really enjoyed the pics from Alaska and all of your travelogues. Sympathized with some of them as well. :-)

Keep on keeping on, Miss D, as only you can. Even if I'm not posting, I *am* reading and praying for you. And thanks for the reminder about the Lupus Walk. I'm going to put a bug in Sara's head about Atlanta's walk on 11/5. Maybe we can have "Haley's Angels" walking all over the country and kick lupus-butt at the same time. ;-)

Hugs from down South,

Merri Williams, mom to Sara <mamamerri@bellsouth.net>
Decatur, GA USA - Monday, October 17, 2005 12:26 AM CDT
hey there,

i found your page through annie (http://www.caringbridge.org/ma/annielyme) and i think you're wonderful! thanks so much for sharing your struggles and triumphs, girl. you are brave, beautiful, strong.

xox,
heather
(http://heiwalove.livejournal.com)

heather <violinexplosion@yahoo.com>
minneapolis, MN - Monday, October 17, 2005 2:54 AM CDT
Ah yes, the rain...the everlasting rain...I think it's time to invest in wellies!!! Just want to let you know that all of my clients are enjoying your Alaskan CD...thanks so much for giving it to me! It really is cathartic. Come on over to the Jersey side of the Hudson and I'll give your poor, aching joints a massage...I can relate!

Love you bunches...and you go, girl, in the Lupus walk...I'll be there in spirit...

Mom <LeanyJoan@goltzland.com>
Jersey City, NJ USA - Friday, October 14, 2005 2:02 PM CDT
Hi Deirdre!
You're amazing! With all the you're going through, you still find the time to try and make a difference!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears~
Ones Who Care

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, October 13, 2005 11:05 AM CDT
Image hosted by TinyPic.com
ALWAYS IN MY THOUGHTS AND PRAYERS

LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, October 12, 2005 10:08 PM CDT
Thinking about you...
Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Wednesday, October 12, 2005 0:14 AM CDT

Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, October 7, 2005 5:19 PM CDT
Hey D, sorry to hear life has you feeling down in the dumps. Hopefully things will start looking up soon
Chris Gooch's mom Share the Love
- Wednesday, October 5, 2005 8:11 PM CDT
its brooke again. anyhow, i actually stopped by to thank you again for 'alaskan prayer' as i've been crying on and off today, thinking about my dad's upcoming tests (he has stage 3 metastatic prostate cancer).. the song has just given me a lot of comfort. so, thank you soo so much. and then i just read your post.. i don't know you, but all i can say is, i'm sorry.. i'm sorry for your dreadful loss, i'm sorry that your ranks are thinning. i'm just sorry.
brooke robertshaw <rivervision@gmail.com>
eugene, oregon - Wednesday, October 5, 2005 1:33 AM CDT
Deirdre- it's your ole cuz Amanda here just dropping in to tell you hello and that I'm thinking of you. I love you and as always you are in my thoughts and prayers. Hey, that's a cute chick in that first picture of yours!! LOL! Have a good day, k?!
Amanda Blume <amanda_blume@hotmail.com>
Marietta, GA - Tuesday, October 4, 2005 11:38 AM CDT
Deirdre - I'm so sorry about Haley and Clare....hang in there. I'm thinking about you and sending hugs your way ((( )))
Lisa
Marietta, GA USA - Tuesday, October 4, 2005 11:26 AM CDT
hi, i'm just someone who happened upon your site... somehow. i don't remember how. anyhow, i usually am not one to leave comments, but i just wanted to say how much i love the song "alaskan prayer." its just the kind of music i love, and the subject is *whew*.. well, it rings so much with me. i live in oregon, one of the most beautiful places in the world. anyhow, i was feeling rather down tonight, and your song brought a smile to my face (esp. once i downloaded it and got it in itunes) and some much needed joy to my heart. also i'm jealous you got to alaska.. one day i hope to get up there.. i thought british columbia was beautiful, and i know alaska is even more so!
brooke robertshaw <rivervision@gmail.com>
eugene, oregon - Saturday, October 1, 2005 0:28 AM CDT
Hey Deirdre!!
I love your new photos! Now you just gave me a terrible craving to go on a holiday!!! lol...

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne’s Corner
~Simply Joanne~

Joanne <joanne173@gmail.com>
- Tuesday, September 27, 2005 9:17 PM CDT
Image hosted by TinyPic.com



Love AlwaysImage hosted by TinyPic.com My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, September 19, 2005 10:21 PM CDT
Wow that was quite an update! Loved the pictures of Alaska... I can see how the thought of glacier trekking may not have appealed last winter when Boston was pretty much one big glacier itself... LOL. Those little otters were too darn CUTE!!

I'm glad you continue to feel good, we keep you in our thoughts and prayers.

With love,

Katie, mom to Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Saturday, September 17, 2005 1:44 PM CDT
Hi Deirdre,

I found your page from Clare's and thought I would drop in an say hello.

So glad to hear that you are currently in remission and it sounds like you had a great summer.

The Alaska trip sounds awesome (except that I hate boats). My kids and husband and I love getting out into the wild and going camping. We are looking forward to being able to start doing that again next summer.

I hope you have a great year at school and can keep your disease under control with your current medication.

Sue (Katie's Mom); Katie's page
Ottawa, Canada - Friday, September 16, 2005 8:37 PM CDT
Wow! I had to take a nap after just READING all you did in a month's time! You are like the energizer bunny! :)

What a beautiful state Alaska is, I hope we can see it someday. We have promised Haley a Hawaii trip after her transplant (and the okay to travel, of course). Don't tell her, but it's as much for mom as it is for her!

Good luck in school. :)

Cheryl and Haley <bandcvincent@aol.com>
- Thursday, September 15, 2005 10:57 AM CDT
Deirdre - I love the new border and background on your page - I love fish! Anyway, I just dropped by to let you know that my page is (slightly) up and (somewhat) running and thanks to you, I am now a CaringBridge community member!

http://www.caringbridge.org/visit/julieulie

Julie <julie.barber@gmail.com>
Washington, DC - Monday, September 12, 2005 6:00 PM CDT
Just stopping by to see how your doing. Hope all is well
Kristi Schoolfield <snickles04@comcast.net>
flint, Mi - Sunday, September 11, 2005 8:25 AM CDT
Hey Deirdre!
How are you doing?? I sure hope all's going well and that you're feeling swell too!

Joanne’s Corner
~Simply Joanne~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, September 7, 2005 11:46 AM CDT

viks <viks@postpals.co.uk>
- Friday, September 2, 2005 8:12 PM CDT
deirdre just wanted to drop you a line to see how you were doing, hope all is well your way.
stephie
lanesville, indiana usa - Sunday, August 28, 2005 8:26 PM CDT
Hey Deirdre! I'm just stopping by to say hi and let you know that I'm thinking of you!! Hope all is well! God bless and *warm hugs* ><>†<><
Image hosted by Photobucket.com

*Jennifer C* <jenniferc@ilovetocolor.com>
Eugene, OR USA - Monday, August 22, 2005 10:11 PM CDT


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, August 19, 2005 0:07 AM CDT
Image hosted by TinyPic.com
BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Thursday, August 18, 2005 3:24 PM CDT
Hi Deirdre,

I found your page through Derek's, and I thought I'd write you a note since I have not been in touch for years. You really helped me so much in high school (my big sister in pit, and being there for me in winter guard when I was the only rookie) and I just wanted to let you know that you touched my life. I wish you luck at your new school! I'll be praying for you.
Chelsea

Chelsea Campbell <cjca47@mizzou.edu>
- Tuesday, August 16, 2005 8:32 PM CDT
Hi Deidre,
I am one of those lurkers who pops in every now and then to see how everything is going. I am very happy to see you have been able to have a great summer so far! Alaska will be amazing I am sure (I have always wanted to make my way out there one day!). I hope the rest of your summer continues to go as smoothly and that you have a great time enjoying the freedom from school:) I sure am trying to soak up as much rest and fun as possible before college starts again... It is odd how you can want to go back yet at the same time not look forward to it. Maybe they should make a college without all the work! Haha. Wishing you the best and keeping you in my thoughts and prayers

Anna Dutke <Dutke@stolaf.edu>
St. Paul, MN USA - Saturday, August 13, 2005 7:07 PM CDT
Hi Deidre,
Just popped in to let you know you are being thought of today,

www.postpals.co.uk

Love



Sue
Colchester, Essex, England - Friday, August 12, 2005 6:43 AM CDT
Hey Deirdre!
You won't believe how GOOD it is to hear that you're doing pretty good! Working and all. Thats totally awesome gal!!

Joanne’s Corner
~Simply Joanne~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Thursday, August 11, 2005 9:48 AM CDT
I just wanted to stop and say hi! I've been to your site a few times before, but can't remember if I ever signed your gb before. You are such an inspiration! I hope you are feeling well!
Heather www3.caringbridge.org/pa/heatherb <yheager62@yahoo.com>
Hanover, PA - Wednesday, August 10, 2005 11:01 PM CDT
WOW... I am SO happy to hear that you are feeling so good these days!! Guess I can't complain to you about the weird pinch I have in my shoulder from sleeping on it funny last night, huh? Thanks for reminding me I should be thankful for every day I'm waking up healthy.

Have a great time on your cruise, I know you'll have some amazing photos to share!

With love,

Katie, mom to Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Monday, August 8, 2005 8:51 PM CDT


Love Viks

viks <viks@postpals.co.uk>
- Monday, August 8, 2005 6:20 AM CDT
Just wanted to say hi. I've checked your site a couple of times and it's wonderful to hear that you're feeling so well. My sister has RA and we're still working on figuring out whether I have Lupus or RA, so I'm staring down a similar road to the one you've already travelled. Your frankness and strength are an inspiration and I hope this blessed remission continues for you!

Katie (www2.caringbridge.org/ca/kathryn) <kt.irvin@gmail.com>
Los Angeles, CA USA - Saturday, August 6, 2005 1:40 AM CDT
Image hosted by TinyPic.com
BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, July 27, 2005 8:50 PM CDT
Just wanted to let you know we are thinking about you.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Monday, July 25, 2005 8:43 PM CDT


Love Viks

viks <viks@postpals.co.uk>
- Wednesday, July 20, 2005 7:21 PM CDT
Hi Deirdre,

Just wanted to say hi! I hope you're having a great weekend!


Annie <penguini1982@yahoo.com>
Rochester, MA - Sunday, July 17, 2005 8:16 PM CDT
Hi Deirdre! I'm just stopping by to say hi and let you know that I'm thinking of you!! I haven't signed in a long time! My bad! I hope you have a GREAT week! God bless and *warm hugs* ><>†<><
Image hosted by Photobucket.com

*Jennifer C* <jenniferc@ilovetocolor.com>
Eugene, OR USA - Sunday, July 10, 2005 2:12 AM CDT
I can't believe you skipped town on us!! :)

Good luck with your new ventures and with the new meds. You know Hunter is still getting IV mtx... I know there was a shortage but it was supposed to be over in June?

Your hair looks great! :)

Love,

Katie, Mike, Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Monday, July 4, 2005 12:30 AM CDT
Hey Deirdre,
Just stopping by to say hi... have a great summer :)

**~~HAPPY FOURTH OF JULY!!!~~**

~*~*Girlie's Page*~*~

Love always,
XOXOXOXOXOXOX

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Monday, July 4, 2005 7:50 AM CDT
Could you please sign my friend Tony's guestbook he is in the hospital and could use some prayers! This is his caringbridge page www.caringbridge.org/ct/anthony!

Emily <lemondropbunny@juno.com>
Ellington, CT USA - Saturday, July 2, 2005 2:21 PM CDT



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Annie <penguini1982@yahoo.com>
Rochester, MA - Thursday, June 30, 2005 8:19 PM CDT
Hey, I didn't know there were people on Caring Bridge, that were around my age, (25), because I was looking at the kids pages. anyway. That rocks that you are getting better and stuff, and I hope that continues. I know it probably doesn't sound like much, but I'll check your page more often, if ya don't mind.
Gina <gina@lava-net.com>
Columbus, Ohio United States - Thursday, June 30, 2005 11:08 AM CDT
I was 20 003 I guess the person who came before me forgot to sign so that's why i'm signing.
I hope you are fine. I'M also dealing with 12 hours/day job and it became really hard on my joint to always be on the move
take care

Jolyane <vague_2000@hotmail.com>
Montreal, Canada - Tuesday, June 28, 2005 6:23 PM CDT
Image hosted by TinyPic.com
Image hosted by TinyPic.com

Image hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Tuesday, June 28, 2005 2:54 PM CDT
I haven't signed your guestbook in awhile... I have been slacking. But I do check your journal enteries often. The pictures are beautiful. Hopefully one day I will be able to sight see up North. I haven't been past Maryland!!! Just wanted to let ya know Sammy and I think about you, and your always in our prayers.
Sending MEGA HUGS your way from Virginia!!!

Desiree Nichols ( Princess Sammy's mommy) www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com>
Gordonsville, VA USA - Sunday, June 26, 2005 6:54 PM CDT
Wanted to stop by and let you know that I hadn't forgot ya, Hope all is well. Check on ya later...
steph <artiestephaniezollman@yahoo.com>
lanesville, usa - Tuesday, June 21, 2005 4:41 PM CDT
Hey D,

You look SO good! I can't believe your hair, it's so cute! And thank God, right - losing my hair was like the ultimate insult to me, & I didn't even lose everything. (what can I say, I'm vain, though this disease has tried its best to beat it out of me. Maybe that's what I'm supposed to learn?) Thanks for posting your sightseeing and pictures, it was like a virtual trip just to read about it! It sounds like a lot of fun...Well, hope the fun is continuing and that you're feeling as good as possible, and that life is treating you well (cos if not, we're gonna open a king-sized can of kick-butt on SOMEONE...).

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@MSN.COM>
Decatur, GA 30034 - Sunday, June 19, 2005 3:57 PM CDT
I thought I would stop by and say
Image hosted by TinyPic.com
Plus I had to let you know that I'm thinking of you always.

Image hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Friday, June 17, 2005 3:56 PM CDT
hey deirdre just wanted to drop by and say hi
steph <artiestephaniezollman@yahoo.com>
lanesville, indiana usa - Thursday, June 16, 2005 10:02 PM CDT
Hi Deirdre, just sending lots of love to you,

Viks


viks <viks@postpals.co.uk>
- Thursday, June 16, 2005 9:54 AM CDT
Hello deirdre
I was really happy to see an update, I hope you enjoy your time in NYC it's really a place I'm looking forward to visit. I hope you'll feel fine this summer, I know it's not always easy with humidity in summer for the joints
take care, and enjoy summer

<vague_2000@hotmail.com>
Canada, Montreal - Wednesday, June 15, 2005 7:03 PM CDT
Image hosted by TinyPic.com
My thoughts and prayers are with you ALL

Darla, mom to Angel Matt (FA) 7-3-90-4-22-04, www.caringbridge.org/in/angelbarneyboo <DLinden73@aol.com>
IN - Tuesday, June 14, 2005 9:44 PM CDT
just wanted to stop by....

thinking of you....

sending you lots of love

Craig, Lauren, and Helen

CRAIGGY
helen <trula1@comcast.net>
- Tuesday, June 14, 2005 10:22 AM CDT
Hey D,
It has been a long time and I just wanted to see how you are doing. Congradulations on NYU, I am sure that you will do well there and have a great time in the process. Other than that, I hope that everything is going well.
Mike

Michael M. Promis <MPromis@gmail.com>
- Tuesday, June 14, 2005 0:02 AM CDT
Deirdre--
thanks for checking back in on me...i adore your hair--it is sooo cute..i love your new photos especially at the botanical gardens...and the pics from ground zero..everytime i look at the american flag i see 9/11 a day we will never forget..
sending love,
chris

~Chris~ <clownfish_53@yahoo.com>
Appleton,WI, - Monday, June 13, 2005 0:24 AM CDT
Hi Deirdre,
I found you on Share the Love and I wanted to say hi and sign your guest book. I hope you don't mind. Congrats on your many accomplishments. You go, girl ! Good luck on your move to NY ! Don't go Yankee on us or follow Petie to the Mets. Remember Red Sox fans are true blue no matter where they live. I hope you are having a super day and feeling great. Your kitty cats are sooo cute. Keeping you in my prayers and sending hugs.

Lilly <Softshoe514@aol.com>
RI - Saturday, June 11, 2005 12:02 AM CDT
Hey D,

Wow, congratulations on finishing your first year! It seems like time flies sometimes (like Julianna's 5th birthday already), but then again, other times it drags. Mysterious. Anyway, so now you get a whole summer off to relax and hang out & plan your imminent takeover of NYC (please can you take over Marc Jacobs first, for me?)!!

Love
Sara :)
Sara's CB Page

PS Our wondercat, Casey, is almost Tiger's twin! It's so funny - I'll try to post some photos of Case soon.

Sara Williams <BethieAUS@msn.com>
Decatur, GA\ U\ - Friday, June 10, 2005 1:33 PM CDT
Hey Deirdre,
Have you ever thought of taking Arava? Its better then methotrexate in my opinion and it doesnt have a lot of side effects. Its something worth looking into.

Lisa www.caringbridge.org/ca/lisaspage <bncknwurnumber@aol.com>
Belmont, CA USA - Friday, June 10, 2005 12:50 AM CDT
Sorry it's been awhile just been so busy.
I haven't forgotten about you though.
Image hosted by TinyPic.comImage hosted by TinyPic.com

Image hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Friday, June 10, 2005 12:07 AM CDT
Hey, Deirdre, keep your chin up and stay focused. You seem like a girl who's got it together. I hope all is good with you.
Patsy (a caringbridge mom www2.caringbridge.org/mi/taylor)

Patsy <pvan35@hotmail.com>
Scotts, Mi USA - Wednesday, June 8, 2005 9:23 PM CDT
I've been hearing that people can't get into my guestbook I think I fixed it now I hope.Thinking of you always.
Image hosted by TinyPic.com

Image hosted by TinyPic.comMy Number 1 Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, May 30, 2005 10:39 PM CDT
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Annie <penguini1982@yahoo.com>
Rochester, MA - Saturday, May 28, 2005 5:26 PM CDT
Good luck with your move this weekend!!!
Lisa
Marietta, GA USA - Friday, May 20, 2005 12:54 AM CDT
I just wanted to pop in and say hi!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, May 17, 2005 7:41 PM CDT
I'm not sure I've signed in before (and am too lazy to look right now!) but I come to your page quite often and relate to many of the things you share. I'd love to get to know you better. Drop me a note sometime if you get a chance. Take care and God Bless!
Khalita Duke Peds BMT Aplastic Anemia <khalita@yahoo.com>
Lexington, NC - Monday, May 16, 2005 10:22 PM CDT
Good to see you updating your website! I have been thinking of you and wondering how you are doing....hang in there, sweet girl. Those things not yet seen will become very clear with time....and not necessarily our version of an acceptable amount of time (speaking as one impatient person to another!). We love you!
Lisa, Dave, Amanda, Kelsey and Morgan
Marietta, GA USA - Monday, May 16, 2005 9:08 AM CDT
Hey deirdre
just stopping to say hi,it looks like it's been crazy time for you, I hope everything will be back to normal soon, (as much as we have normal life ;) )
take care, enjoy your vacation, you deserve it

Jolyane <vague_2000@hotmail.com>
Montreal, Canada - Saturday, May 14, 2005 9:27 PM CDT
Hey Deirdre,

Miss you and looking forward to seeing you in DC sometime. I hope you get to visit here during the summer. I will be here or in the area at least through Nov and then just a bit south in Quantico.

Talk to you soon. -Adam

Adam Drexler <adrexler@gwu.edu>
Washington, DC USA - Wednesday, May 11, 2005 0:57 AM CDT
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Image hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta Canada, - Sunday, May 8, 2005 3:14 PM CDT
I am so sorry to hear about your cat, Our pets become part of the family, I know!
I'm glad you are moving closer to family, I'll bet your mom is glad too!!
Good luck with your papers.

Cheryl, and Haley <bandcvincent@aol.com>
- Friday, May 6, 2005 6:22 PM CDT
just wanted
to come by
and wish you
a great weekend.

sending you lots of love

Craig, Lauren, and Helen

CRAIGGY

helen <trula1@comcast.net>
- Friday, May 6, 2005 12:53 AM CDT
I'm so sorry about your little kitty :O(((( he will be missed. I think you made the right choice to move. You sound very happy to be moving closer to family and friends. Good for you!!!
Nicholas and Helen www.caringbridge.org/mn/nicholasb <hburger64@hotmail.com>
Ham Lake, MN USA - Thursday, May 5, 2005 5:00 PM CDT
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Image hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.com <brurka@shaw.ca>
Edmonton,Alberta Canada, - Thursday, May 5, 2005 12:29 AM CDT
Just checking in. Hope things are well.
Tracy M Hug a Bug <tmangin@sympatico.ca>
Windsor, ON Canada - Thursday, May 5, 2005 12:11 AM CDT
Hey Deirdre sorry to hear about your cat. I will be thinking of you and check on you later.
Steph
lanesville, indiana usa - Tuesday, May 3, 2005 8:14 PM CDT
Hi Deirdre,

I'm so sorry to hear about your cat. I'm pretty close to my pets as well and I know how hard it can be to lose one, especially one who has been there with you through everything.

I'm glad you've made the decision to transfer closer to home. It's a hard decision to make but in the long run it just makes sense. I've struggled with this decision many times, and now I know that living very far away from home just isn't possible when I'm really sick. I hope the transfer goes smoothly and you don't lose credits in the process!

Image hosted by Photobucket.com

Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, April 29, 2005 5:11 PM CDT
Image hosted by TinyPic.com
Image hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.comImage hosted by TinyPic.com <brurka@shaw.ca>
Edmonton,Alberta Canada, - Friday, April 29, 2005 3:01 PM CDT
I love your quote about getting the cat hair off the couch. Here's one I found awhile back that I'm sure you'll appreciate...
"Cats are like music. It's foolish to try and explain their worth, to those who don't appreciate them. ~Unknown"
I'm going to go home and hug my two rescued kitty babies too.

Julie Rogers - TNT Alumni & 2005 Summer Season Mentor <racingforhope@yahoo.com>
Dallas, TX - Thursday, April 28, 2005 3:34 PM CDT
Hi I found your site through Julianna Banana's site. I am sorry to hear about your kitty. I don't know what I would do if something happened to my cat! She is our baby. Good luck with your papers and best wishes as you transfer!
trisha <nativegal23@hotmail.com>
Norwood, pa USA - Thursday, April 28, 2005 2:38 PM CDT
I want you to know I'm going home right after work to hug both my cats. They are abandoned littermates too, and I can't bear the thought of going through what happened to you this past weekend!
Glad to hear you have decided to move closer to "home" ( that being where the heart is). It's been amazing to "watch" you deal with the health issues and the school stuff and do it in a strange city with no friends and family around. That being said, it's nice to think you will be close to those that love you most when you need them. Kudos for being so brave, and making the decision to move yet again.

Tracy M Hug a Bug <tmangin@sympatico.ca>
Windsor, ON Canada - Tuesday, April 26, 2005 1:00 PM CDT
Hi Deirdre,
I just found your site through a friends and I wanted to say hi. I'm so sorry to hear about your cat...sometimes animals are just as much family members as humans! Going to Columbia sounds SO exciting! My mom got her Phd there and STILL talks about how great the grad school programs are. I hope that you feel well and have a great week.

I'll check in again!
~Sarina
http://www3.caringbridge.org/pa/sarina_d/


Sarina
<sarina_d@yahoo.com>
Philadelphia, PA - Monday, April 25, 2005 7:05 PM CDT
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LOVE BRENDA Image hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta CANADA, - Sunday, April 24, 2005 6:30 PM CDT
Hey girl just thought i'd drop in and say hello
steph <artiestephaniezollman@yahoo.com>
lanesville, indiana usa - Thursday, April 21, 2005 4:10 PM CDT
Hi Deirdre!
Hey gal!! lol... How is the tummy doing? :) Just dropping by to check on you. I'll be in MA in like 11 days!!! How cool is that???

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Thursday, April 21, 2005 6:19 AM CDT
Sending lots of "Mousey Love" to you today,



Love

Viks

Post Pals - Putting a Smile on Childrens Faces

viks <viks@postpals.co.uk>
- Wednesday, April 20, 2005 5:32 PM CDT
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Image hosted by TinyPic.com
God Made You For A Reason

When I look upon my screen
I find a happy reason
the joy that comes to me from you
is gratitude so very pleasing...

What a wonderful creator
that made a friend like you,
He placed a sweet kind person
and gave me lots of comfort too.

A world without your kindness
would be a sad sad world.

But I don't have to worry,
there's no need to be,
because of you I am very happy,
and that's good enough for me.

I've found great people everywhere,
they come into my life.
Just like you, all those others too,
have given me delight.

So I thank God I met you,
I thank him for all seasons.
Now I know for sure with all my heart,
GOD Created YOU for a reason.

Image hosted by TinyPic.com

LOVE BRENDA Image hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta CANADA, - Sunday, April 17, 2005 11:54 PM CDT
Hi Deirdre
thinking of you

steph <artiestephaniezollman@yahoo.com>
lanesville, indiana usa - Thursday, April 14, 2005 7:02 PM CDT
I just wanted to come by and wish you a Rainbow day!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Thursday, April 14, 2005 2:59 PM CDT
Image hosted by TinyPic.com

Thinking and praying for you always.

LOVE BRENDA Image hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta CANADA, - Tuesday, April 12, 2005 9:37 PM CDT
Glad to hear you survived the endoscopy. Versed never works for me either...in fact I have a horrible colonoscopy story I'll share with you sometime....
Sorry to hear about the Plaquenyl, I know it was working for you. Haley had to stop taking it also (low platelets), and has done pretty well without it.
Good luck with your papers!
Hugs!!

Cheryl, and Haley <Bandcvincent@aol.com>
- Tuesday, April 12, 2005 8:42 AM CDT
Hey gal!
I hope you figure out which meds are the ones that will help good so you can get off the rest! lol... As for me... we still have no idea whats going on. lol... swelling joints, stiff, pain... all the yummy stuff huh?

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Sunday, April 10, 2005 7:20 AM CDT
Thinking about you....good luck tomorrow with the endoscopy. I've had one, they're not bad, actually pretty interesting if they let you see the screen, too! Love you -
Lisa
Marietta, GA USA - Thursday, April 7, 2005 11:28 PM CDT
I know it sounds kind of wierd, but I sure hope that the testing finds lupus, instead of RA. It's kind of like picking the lesser of two evils I suppose, but it's the LESSER part that's important. I can't imagine how you get through day after day with all the meds and appointments and papers and tests and whatever else life throws at you. The fact that you do it with such grace, and a great sense of humor is amazing. Wishing you the best of everything...
Tracy M Hug a Bug <tmangin@sympatico.ca>
Windsor, ON Canada - Thursday, April 7, 2005 9:47 AM CDT
I just wanted to say hi, I've been following your page for quite a while. I know it must be immensely frustrating to spend so much time grasping at so many straws trying to figure out what's wrong and how to help it. I sincerely hope that they get all this jumble figured out so they can begin with the best possible treatment and allieviate much of your pain. Take care and good luck with your studies!
Katie (www2.caringbridge.org/ca/kathryn)
CA - Thursday, April 7, 2005 2:30 AM CDT
I can't quite remember how I found you (maybe through Kendrie?) but today I just wanted you to know that I'm thinking of you. I'm also hoping the crazy quilt of classes and doctors and appointments is not to crazy. I know this time of the semester gets pretty full of papers and assignments and reading, so I REALLY hope that your energy level stays up. Sending you an extra boost of healing thoughts! Diana
Diana Fulner <dfulner@hotmail.com>
Louisville, KY USA - Wednesday, April 6, 2005 10:18 AM CDT
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LOVE BRENDA Image hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta Canada, - Wednesday, April 6, 2005 1:32 AM CDT
Hey Deirdre
Just wanted to pop in and say hello to ya. Hope all is well your way. Have a nice day.

Steph <artiestephaniezollman@yahoo.com>
Lanesville, Indiana usa - Tuesday, April 5, 2005 8:02 AM CDT
Hey Deirdre,

I'm sorry to hear that you've been having such a hard go of it lately. But it's great to hear that your rheumy isn't the degenerative kind! Of course, I have no clue what that actually means, but "not degenerative" must be good, right??

May spring treat you right,

Terry, Julianna Banana's dad <tjosephson@shaw.ca>
Winnipeg, Canada - Monday, April 4, 2005 11:41 PM CDT
Hi Deirdre, so sorry to hear you're feeling crummy again. We'll keep you in our prayers... that your docs figure this out and that you're feeling better soon.

And hey... at least it stopped raining!! ;)

Katie, Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Monday, April 4, 2005 12:10 AM CDT
Hi Deirdre - I haven't checked in on you in a while but you are always close in my thoughts....and your Mom has kept me updated. I am so sorry to hear that you are so sick. I am praying the docs will be able to help you! I can identify with the two year old who is sick, except at the doc's office!! Like the car that makes a noise everywhere except the shop. Hang in there and take care of yourself and know that we are thinking about you. Looking forward to seeing you in May! Love,
Lisa
Marietta, GA USA - Sunday, April 3, 2005 10:42 PM CDT
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LOVE BRENDA Image hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta Canada, - Sunday, April 3, 2005 12:56 AM CDT
Deirdre~~
You will surely remain in my daily thoughts and prayers!
God Bless,
Alyssa Lewellen, patient at The Children's Hospital of Illinois
www.thestatus.com
ID: Lewellen
password: beauty-kansas

Alyssa Lewellen <Aballerina5678@aol.com>
Peoria, IL USA - Saturday, April 2, 2005 10:56 PM CST
Hi Deirdre!
How are you doing?? Hope everything is going good!

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Friday, April 1, 2005 7:20 AM CST
Hi Deirdre!
Guess what? I'll be in MA in a month! Yep... its for a holiday! Maybe we can rig something up. lol... if you're still there... sorry to hear that your meds have been giving you trouble. Hope it all gets sorted out soon!

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Monday, March 28, 2005 6:28 AM CST
Happy Easter Deirdre
steph <artiestephaniezollman@yahoo.com>
Lanesville , indiana usa - Sunday, March 27, 2005 1:53 PM CST

HAPPY EASTER LOVE WWW.POSTPALS.CO.UK

Post Pals <info@postpals.co.uk>
- Saturday, March 26, 2005 4:58 AM CST
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Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, March 25, 2005 1:08 PM CST
sorry finally i pop back at your site....i just neglected to sign your guestbook the other night...but i wanted to say hello--and what a small world it is that you found me and have family near me.....well i hope you are feeling a bit better--and i just wanted to say....
Image hosted by Photobucket.com

love chris

~Chris's Page~ ( Wisconsin Angels/WI Friends of Allie) <clownfish_53@yahoo.com>
Appleton, WI - Friday, March 25, 2005 1:28 AM CST
Hey Deirdre,
I just adopted you from the sharethelove.org website and was wondering if you would email me some information about yourself. Things you like to do, things you like altogether. I have been checking in on you alot lately, sorry to hear about the computer fiasco.
http://www.caringbridge.org/in/morgan_fogakoldyke

steph <artiestephaniezollman@yahoo.com>
lanesville, indiana usa - Wednesday, March 23, 2005 4:54 PM CST
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LOVEImage hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta Canada, - Tuesday, March 22, 2005 3:18 PM CST
Image hosted by TinyPic.com
Just thought I would stop

in and say that I'm thinking of you always.

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LOVEImage hosted by TinyPic.comMy Loving Dad's Site <brurka@shaw.ca>
Edmonton,Alberta Canada, - Monday, March 21, 2005 11:01 PM CST
Hi Deirdre!
How are you doing? Thinking of yah!

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Monday, March 21, 2005 9:19 PM CST
Image hosted by Photobucket.com


Annie <penguini1982@yahoo.com>
Rochester, MA - Saturday, March 19, 2005 3:44 PM CST
Glad to hear you are having a good week! All except the computer fiasco anyway. I just had mine fixed too..our dog spilled a coke on it..who knew that was bad for a computer? :)
Many Hugs!!

Cheryl, and Haley <Bandcvincent@aol.com>
- Wednesday, March 16, 2005 7:18 PM CST
Hey gal!
Welcome back! lol... I need some of that cold weather! Was sitting in the doctor's office today and he was telling me that the blood tests came back with inflamation and everything and the word arthritis kept popping up and you kept popping into my mind everytime he said it! lol...

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, March 16, 2005 8:55 AM CST
HI, I love your site!!! I am impressed. I am glad that you joined sharethelove.org. There are so many awesome people out there that will pray for you. Keep an eye on your counter...it will shoot to the moon!
Summer <summer@summertimetots.com>
Chowchilla, CA - Monday, March 14, 2005 10:58 AM CST
Hey D,
I had no idea all this was going on. I've been out of things somewhat...at least the doctor was able to diagnosed you fairly quickly and get a handle on it. Squash it into submission and keep moving, right? Here's hoping the GI guy has good solutions and better drugs. I'm praying for you!

Love,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Thursday, March 10, 2005 5:08 PM CST





Hiya, sending some hugs and love to a wonderful Princess



Lots of love

Post Pals




Post Pals <info@postpals.co.uk>
- Thursday, March 10, 2005 11:35 AM CST
Hey Deirdre... hope you are enjoying your spring break in tropical New Jersey... :)

Keeping you in our thoughts and prayers...

Katie, Hayley, Hunter, and Taylor <dugan2b@yahoo.com>
Franklin, MA - Wednesday, March 9, 2005 1:10 PM CST
Hey gal!!
How's everything?? Hope you're doing good!

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, March 9, 2005 9:20 AM CST
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Sammy Nichols & Family <rickysammyhannah@aol.com>
Gordonsville, VA USA - Monday, March 7, 2005 9:12 PM CST
Deirdre, Thanks for giving me your webpage address in class the other day. We sometimes have no idea what the person next to us in class is going through. Now, I know you a little better. I will keep you in my thoughts and wish the best for you. I know that keeping up in school can be difficult with Dr. appointments--life will get better. You take care and have a great sping break. Colleen
Colleen Samson <csamson@bu.edu>
North Grafton, MA USA - Monday, March 7, 2005 9:49 AM CST
Hi Deirdre!
Haha! As an undergrad, I'd panic if my laptop died on me so I know the feeling! lol.. I always do major hurting in school cos I don't dare take my painkillers. I tried a couple of times and snoozed the class away! lol...

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With Love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Thursday, March 3, 2005 7:24 AM CST
Hello,
Just want you to know that your in our prayers.
Sending lots of prayers your way.+++++++++++++++++++++
Love LaKota and her mom Debbie.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
- Tuesday, March 1, 2005 11:38 AM CST



Annie <penguini1982@yahoo.com>
Rochester, MA - Monday, February 28, 2005 5:32 PM CST
Hey Deirdre,
Just dropping by to let you know I am thinking of you and hope you are feeling better than your last update. How are things going?

Blessings,
adena

Adena <adenashoshan@msn.com>
Boulder, CO USA - Sunday, February 27, 2005 11:00 PM CST
Hey Deirdre ~

Sigh. I am supposed to be coming here to offer some meaningful words of upliftingment and gooditude, but man.
I'm just ticked for you :( I just want Deirdre to be feeling well. I'm glad that the plaquenil seems to be helping, that you may be able to drop a neurologist from your physician-army, and that hearing aids can relieve those around you from the threat of their own impending deafness :) I know the following is essentially unhelpful, but all are heartfelt sentiments...I hope you catch a break from feeling bad; I hope that *they* can figure out an effective way to help you get through your days without pain, dizziness, etc.; I hope that you can have moments of not thinking about being sick. I'm thinking about you, and hope you have a nice week.

Want me to send you a box of Valentine's candy? We have plenty! :)

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Sunday, February 27, 2005 10:27 PM CST




Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, February 25, 2005 11:19 PM CST

Jolyane <vague_2000@hotmail.com>
Montreal, Qc Canada - Friday, February 25, 2005 3:43 PM CST
Just checking in on you... Your in our thoughts and prayers.(((HUGS)))
Princess Sammy <rickysammyhannah@aol.com>
- Friday, February 25, 2005 9:10 AM CST
Hey Deirdre. Sounds like you had a very busy week last week! I am glad your rheumy appointment went well. No going back for three months! Yeah! Sigh - we are jealous!! :)

I'm sorry to hear about the hearing loss. That is no good.

Once again, you are such a trooper and an inspiration. I hope that my little Caroline can meet you in person one day! Keep fighting!

Alia and Caroline Caroline <ajpranke@juno.com>
Eagan, MN 55122 - Thursday, February 24, 2005 2:53 PM CST
Hey girl!
How's everything?? I hope you're feeling better than when you last wrote... but if not... heres a big *hug* just in case. :)

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams
~Bridge of Dreams ~

Joanne <joanne_173@hotmail.com>
- Thursday, February 24, 2005 8:46 AM CST
Hope despite everything your soon feeling



Love Viks

viks <viks@postpals.co.uk>
- Saturday, February 19, 2005 10:47 AM CST
Hello!
Its me again!!! Are you doing any better?? :) Hope you have a great weekend!

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams
~Bridge of Dreams ~

Joanne <joanne_173@hotmail.com>
- Friday, February 18, 2005 2:18 AM CST
D~ I miss you. A lot. Things here have been ok, not fantastic, not terrible (you know the feeling). I thought you would appreciate that I had a Remicade last week and buckled 3 catheters before one would stay in. The bruises were rather impressive :) Hope you are doing ok. much love and *HUGS*
Chrissy Caggiano <ccagg@gwu.edu>
Washington, DC - Thursday, February 17, 2005 6:09 PM CST
Hey Deirdre, Sorry to hear about the stomach problems. Just a warning Palqunil is really harsh on the stomach.. it sometimes creates inflammation and diareah (SP) at least it did when I took it. But if its helping your joints thats totally awesome!! You are always in my prayers..

Lots of Love

Lisa www.caringbridge.org/ca/lisaspage <bncknwurnumber@aol.com>
- Tuesday, February 15, 2005 4:28 PM CST
Just dropping by to see how you're doing! Hope things continue to get better! We're thinking about you!


Ashlee & Madison (www.caringbridge.com/va/madisonblair <ablair@wileywilson.com>
Gretna, VA - Tuesday, February 15, 2005 3:48 PM CST
hey deirdre
try Boost they taste way better than ensure and they do the same job because they came in high calories too

Jolyane <vague_2000@hotmail.com>
montreal, Canada - Monday, February 14, 2005 8:47 PM CST
Hey Miss D,
Finally we are finding some time to visit our CB family, and you were top on the list. So sorry to hear about your medical problems....you and our Miss Haley can't seem to catch a break with this autoimmune stuff huh?? I wish I could do more.....
Funny you mentioned Plaquenil, they just stopped that with Haley (it lowers platelets - so after the bleed it became a no no), but while she was on it, it really helped her.
Have a happy Valentine's day!!
HUGS!!!!

Cheryl, and Haley <Bandcvincent@aol.com>
- Monday, February 14, 2005 7:59 PM CST
Hey Deirdre...
I hope you get that tummy sorted out really soon! But I'm glad your joints are doing better. :)

Joanne’s Corner
~Joanne’s Corner~

Joanne <joanne_173@hotmail.com>
- Monday, February 14, 2005 7:28 PM CST

Sammy Nichols & Family <rickysammyhannah@aol.com>
Gordonsville, VA USA - Monday, February 14, 2005 8:13 AM CST
So sorry you have these new things to deal with. I'm thinking of you!



Hugs, Annie
Annie <penguini1982@yahoo.com>
Rochester, MA - Sunday, February 13, 2005 10:57 PM CST
Hey Deirdre! I haven't forgotten about you, fellow grad student, and sometime when I get up to Boston to visit you'll definitely be on my list of people to see. I read your entry today and I'll be thinking of you and praying for you down here in DC... catch up with me on IM anytime you just need someone to talk to :).
Caitlin MacAlpine <cjm45@georgetown.edu>
Washington, DC USA - Sunday, February 13, 2005 8:16 PM CST
Hey Deirdre,
How are you doing? Can you e-mail me sometime when you have a chance? I'd like to ask you a couple questions since you (unfortunately - hate RA :-P) have more experience with methotrexate than I do. I'm wondering what dosages you started at and where you are now, side effects over time, etc., My doctor has seemed to downplay some of the side effects...and I'm wondering whose nuts...him or me ;-)

sending you smiles & strength,
Adena

Adena <adenashoshan@msn.com>
Boulder, CO USA - Saturday, February 12, 2005 11:35 PM CST
Stopping by to let you know that we are thinking of you and sending lots of prayers your way.++++++++++++++++++++++++++++++++++++++++++++++++++
Wishing you a very bless Valentine’s day!!!!!!!!!!
Love LaKota and her mom Debbie.
God be with you.

~*~LaKota~*~


http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@Hotmail.com>
St.Cloud, MN - Friday, February 11, 2005 1:42 PM CST
Hey Deirdre,
I'm FINALLY back to updating and visiting people again. I'm so sorry to hear about the latest diagnosis. Unfortunately, I can relate....and hope for both our sakes that additional diagnoses early in the year aren't a bad omen for the rest of the year!I wish this autoimmune stuff would just calm down, or go away or something! for the both of us. I can tell by your words and attitude that you are really a strong woman.....keep being strong...and allow yourself moments when you don't have to be quite so strong and you can just be, ok? I hope you get answers and help for the stuff that's going on in your body and that they can help you branch out from yogurt and crackers.
Come visit when you can.

Blessings and Shalom,
Adena

Adena <adenashoshan@msn.com>
Boulder, CO USA - Friday, February 11, 2005 8:42 AM CST
Hey, Deirdre --- I'm so sorry to hear about this latest complication (is it considered a complication?? New diagnosis?? Whatever it is -- IT STINKS!) and hope you are getting some answers. I will be checking back to see what your doctors are recommending, and will wish for you in the meantime some peace of mind, and some comfort, and the ability to eat something besides club crackers and yogurt -- yuck! :) Hope you are feeling better soon; know we are thinking of you,

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Thursday, February 10, 2005 8:56 PM CST
Hey DEIrdre,

You know, I was stopping by here to tell you the "big" news that I finally got off my hump and fixed the links back to your page here off of Julianna's, but that seems pretty small now. I'm sure sorry that you have been having such a difficult time of it lately...ferChrissakes, can't life just take it easy once in awhile?! I hope that you get some concrete answers and that whatever it is for sure, that you're feeling up to meeting it all head-on, Deirdre. Please know that we're behind to just as you have behind us!

Take care and have a cracker for me,

Terry Josephson, Julianna Banana's dad <tjosephson@shaw.ca>
Winnipeg, Canada - Wednesday, February 9, 2005 11:57 PM CST
wow u have been umm having a lot of things going on in your life. i wish i could hold you hand and help you through it. if u ever need a friend email me. stay strong. i know u can

www.caringbridge.org/canada/89

nakita <sk8ting_for_life@hotmail.com>
victoria, bc canada - Wednesday, February 9, 2005 9:51 PM CST
Deirdre ~

Aw nuts. I'm so sorry to hear that you've been dealing with more pain, and that you've likely got one more condition to deal with. I'm not coming up with any good supportive words at the moment; just some choice 4-letter ones on your behalf. I'll work on it and come back with something inspirational and uplifting tomorrow. In the meantime, know I'm thinking about you and hoping that you're feeling better.

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Monday, February 7, 2005 10:27 PM CST
Bless your heart....I have been patiently waiting for an update and then read on Derek's site that you had been in the ER but had no idea the extent...and your Mom mentioned Crohn's so I knew it was not fun....you poor, sweet girl. You are in my thoughts and prayers every day, whether I sign in or not. Hang in there, Love
Lisa <lblume2@yahoo.com>
Marietta, GA USA - Monday, February 7, 2005 8:17 PM CST
Wow, you are an amazing person Deirdre. So strong whether you want to believe it or not. Though it is hard to hear, God never gives us more than we can't handle and it is evident that God has all the confidence in the world in you. Though I don't sign in often, I am one of the reasons the meter on your page goes up daily. I will continue to keep you in my prayers especially now when you are trying to make sense of things. Hang in there, we are all behind you!
Kelly <Kandrade75@yahoo.com>
St. Petersburg, FL USA - Monday, February 7, 2005 8:05 AM CST
Hi Deirdre!
My goodness... you're always on the go go go! lol... Well, thats GOOD! :) Sure looks cold where you are... its so hot here I'm about to become roast chicken! lol

Joanne’s Corner
~Joanne’s Corner~

Joanne <joanne_173@hotmail.com>
- Sunday, February 6, 2005 8:58 AM CST
I got a good laugh out of the snow boot story... :) Wish Hayley and Hunter would appreciate it... Mommies *DO* know best, LOL!!

Hope this nice weather today has melted some of your snow... we were at the Jimmy Fund the Monday after the storm and it was RIDICULOUS... I don't think they even plowed the Longwood area! Nothing like trying to bulldoze through three feet of snow in a Honda Odyssey with three screaming kids in the back... :)

Pretty cool that you got to go to an inaugural ball - I can't wait to see some pictures!!

Katie, Hayley, Hunter and Taylor <dugan2b@yahoo.com>
Franklin, MA - Saturday, February 5, 2005 4:16 PM CST

Sammy Nichols & Family <rickysammyhannah@aol.com>
Gordonsville, VA USA - Saturday, February 5, 2005 8:43 AM CST
Hello kettle,

My name is the pot & I am calling you black. This is a demand for news & updates!!! (unless the snow has you buried) And yes, I realize this is coming from the girl who left her page alone for almost two months. Hence, I am the pot.

DEMAND FOR NEWS!!!

Love,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Saturday, February 5, 2005 1:11 AM CST
Hey deidre,
I have a funny story for ya. A good friend of mine that I went to school with K-12 is also name deidre. the Deidre I know got a scholarship to Boston College to play soccer and the stayed up there and is now a social worker. Deidre, Boston, social worker...strange....I think that is you too. Has your doctor had any concerns about celebrex. I take that and bextra and my doctor was looking into the pros and cons of them both. Tiger, Precious, Cali, Snowflake and Butter finger say,"MEOW!" Well actually butterfinger makes a twwet like meow sound. I think he thinks he is a bird sometimes.

Pam(www.caringbridge.org/nc/pamc) <sylteach@aol.com>
asheboro, nc - Thursday, February 3, 2005 11:55 PM CST
Hi Deirdre, The picture of you and your cats is just great. Dexter reminds me of my old cat-friend Tu who lived to be 19 and Tiger could be a clone of my first cat Tigger who was sweet as could be. Hope it's being a decent week for you, in as many ways as possible. Smiles, Diana Fulner
Diana Fulner <dfulner@hotmail.com>
Louisville, KY USA - Thursday, February 3, 2005 3:43 PM CST

Click smiley for angel jen

Enjoy your Ray of Sunshine today!
God bless,
angel jen
Rays of sunshine on Wings of Eagles
Isaiah 40:31

FROG = Forever Rely on God!

angel jen <angel.jen@mymacs.org>
Burns, TN USA - Thursday, February 3, 2005 1:18 AM CST
Hey D,
okay, I'm done drooling over all the pictures of Washington and Boston....snow always seems so nice when you don't actually have to deal with it. :) I like the sound of the new rheumy - I think that the younger ones are more open to, I guess, patient involvement and contribution. He definitely sounds more promising than ones that want to get rid of pain meds - say it with me now, "Oh, hell, no!" (works best if said with a South Georgia accent: "Oh, hay-ell, no!") I don't have any trouble with headaches now with Vicodin & B vitamins, UNLESS I have caffeine. It just seems to be a huge trigger for me - even the smallest amount of chocolate can set it off (which is quite a crisis at the moment, I mean, woman cannot live without chocolate). I have found, though, that when I do get a headache, Advil Migraine works for me, usually taking 3 (which is not the dosing instructions but oh, sue me, you know?). I just don't believe that for people like us that are dealing with body & joint pain, I don't think that rebound headaches are as big an issue as controling the original source of pain. Dang, I sound smart. :) Anyway, hope the snow has let up some & that you're all cosified in your apartment, feeling GOOD!!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, February 2, 2005 6:15 PM CST
Hi Deirdre - Just popping in to say Hi.Sounds like you had a busy few days in DC. Sorry to hear about the stomach pains. I sure hope that they go away soon!
~Caroline~ <ajpranke@juno.com>
Eagan, MN USA - Wednesday, February 2, 2005 10:42 AM CST
Deirdre- Looking at the photo currently on your front page I immediately think of what our dear Lizzy would ask: "Is Tiger a bad kitty?" This is from the little girl who, when she was 2 and asked what sound cats make, said "Hsssssss" as learned from our cat Matilda.

Keep looking out for yourself.

Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Tuesday, February 1, 2005 0:22 AM CST
G'day Deidre
I found your page through Girlie leiw and thought i would drop by hope you dont mind.
loved the photo's of the war memorial it looks so cold there we are in the middle of our summer (very hot)
be good stay healthy
love jacob's mum Jake's page


Deanne McLeod steinmetz
brisbane, Queensland Australia - Monday, January 31, 2005 4:54 AM CST
hi Deirdere,

My name is Laura i found you sight though annie's. I was reading your story and was touched by you. My brother just got his MBA from Bu and my mother went to undergard there and lived on babcok street too. I was thinking of getting an MSW from BU but am going to go To bridgewater state for a diffent program. Any ways I just wanted to say hi and let you know i am thinking about you.

Laura
www.carbridge.org/ma/laura

laura <queenlillycat@aol.com >
Framingham, ma - Sunday, January 30, 2005 11:23 PM CST
Hi Deirdre, Just checking in...I haven't been to your site in a while. I had forgotten about your college list of what you have learned...it hits home now as Ali will be going off to college in the fall. Your photos are wonderful!! And I will also visit your brother's site next.

Happy Belated Birthday- And we are rooting for you from California!!
XXOO, Marey and Cali Ali

Marey, Ali's mom <kteachermom@hotmail.com>
- Saturday, January 29, 2005 11:24 PM CST


It sounds like you had a really good time!!! I am so excitied for you!!!! We love DC too.... We went there for the childhood cancer tree lighting back in December!!! It was so beautiful!

Sammy Nichols & Family <rickysammyhannah@aol.com>
Gordonsville, VA USA - Saturday, January 29, 2005 8:55 PM CST
You sound like just the coolest person! I found your site through Kendrie's which I found through my cousin's and anyway I wanted to say hi and I'm glad I found you. I was born in St Louis and have a niece at American U in DC. GW has a great art therapy program and that's what I do, and my husband got an MSW. So it feels just a bit cosmic that I found your page. I'll keep you in my thoughts. Take good care of yourself! Diana Fulner
Diana Fulner <dfulner@hotmail.com>
Louisville, KY USA - Friday, January 28, 2005 11:45 PM CST
Hello deirdre
thanks for letting a note in my guestbook i really appreciate it. I love your new picture from DC it's look like a great city, you are really lucky to have study in both Boston and Washington. One day I really want to live in Boston, I've been there a couple of time and i fell in love with this city. I have a question for you because, shame on me I forgot to ask my rheumy about this one and i'm pretty sure you know about this. Is it possible that my hair start to fell again because of the methotrexate? because at first when I start it I lost a lot of hair but finally it stop, but since a couple of weeks my hair are falling again and it became really thick
hope you can answers me by mail or in my guestbook
take care

Jolyane <vague_2000@hotmail.com>
montreal, Canada - Friday, January 28, 2005 7:37 PM CST
Deirdre,

You are a beautiful & strong woman. I wish I could hug you! Thanks for stopping by Alex's JRA Page and signing his guestbook!

Alexander's Mom
Owatonna, MN USA - Thursday, January 27, 2005 3:10 PM CST
Hey,
Thanks for leaving me a note in my guestbook. We got hit really hard down here by Cape Cod, too. Even harder than Boston! And we got more today, too, so we probably have a good three feet by now. I haven't been out in it much at all but I did have to go out last night and it was kind of scary not being able to see around huge piles of snow at intersections. Thank goodness everyone is being extra careful driving.

Glad to hear you had a good trip to D.C. and had some good, quality time with your brother and old friends. It's always nice to catch up with people who've known you for a long time. And I know just what you mean about wishing people would be more interested in how you're doing. When people ask how I am, I never know if they really want the truth or if they're just being polite so most of the time I just say, "I'm okay." It is nice when people then say, "No, how are you really doing?" Nice to know they really want to know.

Hope you don't get buried too much deeper under the snow today!

<penguini1982@yahoo.com>
Rochester, MA - Wednesday, January 26, 2005 5:37 PM CST
hello deirdre
I guess you are currently lost in the blizzard, and I hope everything is fine with you.
take care

Jolyane <vague_2000@hotmail.com>
montreal, Canada - Sunday, January 23, 2005 11:36 AM CST
hi i just wanted to stop by and say hi iam thinking and praying for you
sending lots of love and hugs your way
connie

connie http://www2.caringbridge.org/ga/connie <cti25635@charter.net>
flowerybranch, ga usa - Friday, January 21, 2005 10:19 PM CST
Hi Deirdre,
I saw the link to your page on the lovely Julianna Banana's wish bracelet page. Your story is so inspiring, that I just wanted to stop by and say hi. I'll be praying for you! Keep smiling!
God bless,
Caitlin www.caringbridge.org/ct/caity

caitlin
- Friday, January 21, 2005 6:06 PM CST
Hey Deirdre,
Just checking in...have a good weekned!!!

~*~*Girlie's Page*~*~

Love always,
XOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Friday, January 21, 2005 6:00 AM CST
Just wanted to stop by and say hi!
<penguini1982@yahoo.com>
Rochester, MA - Thursday, January 20, 2005 2:52 PM CST
Deirdre - We are glad to hear you are hanging in there. Sounds like you have had a busy couple weeks. Keep strong!


You give us hope that Caroline will go on to do great things one day!

~Caroline~ <ajpranke@juno.com>
Eagan, MN 55122 - Monday, January 17, 2005 2:19 PM CST

Sammy Nichols & Family <rickysammyhannah@aol.com>
Gordonsville, VA USA - Monday, January 17, 2005 12:57 AM CST
Hey Deirdre!
Wow... you are 1 busy busy busy person! But I completely know how it is! Everything is flying all over my head now. lol... sch, readings, assignments, projects... ARGH! lol... Hey, at least your busy is the fun kind! *wink*

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Monday, January 17, 2005 9:34 AM CST
hey i have a form of JRA and i know how much it sucks mine is related to lupus ( SLE ) so i know what its like to be in pain. yet i do not know what its liket o be you so i will not lie. just hang in there. take care

www.caringbridge.org/canada/89

nakita <sk8ting_for_life@hotmail.com>
victoria, bc canada - Sunday, January 16, 2005 11:00 PM CST
hi deirdre
im sorry u been sick i hope you are doing better i hope you have a nice trip to dc i read what u posted today and i wish i could help these childern that is sick on here but all i can do is sign their guest book and let them know iam thinking and praying for them i came to your site thru joanne's site i just wanted to let you know iam praying and thinking about you i hope your trip to dc will be exciting for you take care and remember to pace your self i too sufer with fibro and arthirtis and alot of other health issues i have a site on here so drop by and sign my guest book
sending you gentle hugs and alots of love your way
connie

connie http://www2.caringbridge.org/ga/connie <cti25635@charter.net>
flowerybranch, ga usa - Sunday, January 16, 2005 10:34 PM CST
Hi Miss D.
So sorry we haven't signed in for awhile, between the holidays and general busy-ness, things have been crazy!
I am sorry to hear about the stomach flu ick. That is the worst. I hope it goes away quickly.
Haley sends hugs and kisses!!!!

Cheryl, and Haley <Bandcvincent@aol.com>
- Sunday, January 16, 2005 8:46 PM CST
Hello!
Sorry that I don't always sign in, but I do check your web page all the time, Just want to let you know that you are in our prayers and thoughts.
Sending lots of prayers your way.++++++++++++++++++++++
Love LaKota and her mom Debbie.
God be with you.
~*~LaKota~*~

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Saturday, January 15, 2005 10:48 PM CST
Dierdre, what a great New Years Eve update --- I hope January is off to a wonderful start so far for you, and that 2005 brings you lots and lots of what you hope for. (I'd say, brings you *everything * that you hope for, but then, really, wouldn't every year after that be a little anticlimatic if you already had EVERYTHING?!?!??!) :)
Take care,

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Friday, January 14, 2005 9:48 PM CST
Just came across your site and wanted to stop in to say hi.
Tina & ~Lance~ <lneonkia@comcast.net>
- Thursday, January 13, 2005 8:35 PM CST
Deirdre..
Thank you for visiting Ashleys site. I hope you find a year ahead of you that finds a way to make your life pain free. You have got to be one strong woman to deal with college, and graduate with honors while dealing with RA. I hope that if Ashley is still dealing with JRA when she gets older that she can be as strong as you seem to be. Best wishes,
Emilie Mom to Ashley 5 Polyarticular JRA

Emilie Skidmore <h.skidmore@worldnet.att.net>
Granville, NY USA - Thursday, January 13, 2005 8:01 PM CST

~ Happiness is something that is never far away
It's as close as the things we do and say.
So start out the day with a smile on your face,
And make this world a happier place.~
By...~Anonymous~
IF YOU'RE HAPPY, CLICK HERE

God bless you,
angel jen
Care Mail Group Website and KIDS and TEENS/TWEENS and Sites #1 and #2
Angel Jen's niece, Harley & friend, Barrett GIRLS and finally meet ANGEL JEN

angel jen < caremailnews@yahoo.com>
Burns, TN America - Thursday, January 13, 2005 11:43 AM CST
Hey - just stopping by to tell you that your guest book entries on Alyssa's page always make me smile. You keep up your faith. What a beautiful "talk" with God.

Erika (Alyssa's God Loving Mommy) Sweet~Sweet Alyssa
Gunter AFB, AL USA - Thursday, January 13, 2005 10:23 AM CST
Ooooo...
Hey!! No fair!!! Didn't tell us it was your birthday! *sulk* lol... well, happy belated birthday!

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Monday, January 10, 2005 3:12 AM CST
Hey Deirdre,
So I take it from Sara's entry below that it was your birthday last week???? Well...HAPPY BELATED BIRTHDAY!!!! I hope it was a good one :) Please update, we miss ya!!! Take care...

~*~*Girlie's Page*~*~

Love & prayers,
XOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Saturday, January 8, 2005 4:38 AM CST
Hi, Just wanted to wish you a Happy New year filled with love, laughter, and family... and hopefully medically uneventful!
Sammy Nichols & Family
www.caringbridge.com/va/princesssammy

Desiree Nichols <rickysammyhannah@aol.com>
Gordonsville, VA USA - Thursday, January 6, 2005 10:46 PM CST
Hey D!!
I have resurfaced from my hobbit hole (though it was very comfy and difficult to leave) & now have to catch up on all my holiday wishes. So, um, happy Thanksgiving, merry Christmas, Happy New Year, and happy birthday!!!! I didn't know your birthday was January 3, because awesomely enough mine is January 6! (though one year earlier) Awesomeness reigns!! (yes, I just had my pain meds a little bit ago, so I'm happy.) Anyway, I'm glad to be back & visiting my friends....so let's hear what you did for your big day!!

Love
Sara :)
Sara's CB Page

PS The blackish kitty in the picture? Our cat looks like him! Ours is KC or Casey, depending on who spells it, and he's curled up right now at the foot of my bed. He sends greetings to his sort-of twin and best wishes for a lazy 2005!

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, January 5, 2005 3:36 PM CST
Hi Deirdre!
I always wanted to ask you what Boston Uni is like cos when I graduate from college, I wanna go to law sch there! lol... But... sounds like a crazy crazy place to me! :) Anyway... that was an awfully nice thing to share! And its funny. When we all have a chronic illness, although we may not have the same thing or symptoms, we kinda understand and are able to see through the other person's life into the struggles and trials that we ourselves know so well and there's that special bond thats kinda hard to explain. lol...

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Wednesday, January 5, 2005 9:24 AM CST
Hi Deirdre... just stopping by real quick (ack, I know, the grammar...) to say Happy New Year!!

You are always in our thoughts and prayers.

Katie, Hayley, Hunter and Taylor <dugan2b@yahoo.com>
Franklin, MA - Tuesday, January 4, 2005 7:29 PM CST
I sent you an e-mail today with an attachment of a drawing my daughter Rachael did. She called it "Learning to Fly."
Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Monday, January 3, 2005 10:20 PM CST
HAPPY NEW YEAR'S '05!
Rooting for you from California! (Where it is raining and a "cold 52degrees!)
GO DEIRDRE!!
XXOO, Marey and Cali Ali

Marey, Ali's mom <kteachermom@hotmail.com>
- Friday, December 31, 2004 9:00 PM CST
Hey Deirdre!
I'm glad that you got some quality family time! lol... My family thinks mornings start at 8am too!!! I can never get up that early! lol


~Joanne’s Corner~
Joanne’s Corner
Care Mail!


Joanne <joanne_173@hotmail.com>
- Wednesday, December 29, 2004 9:01 AM CST
Hey Deirdre,
Well done on surviving such a crazy semester. I know exactly what it feels like...and having graduated for just over a year now...I don't know whether I miss it or am just glad that I'm outta there- no more finals, no more studying, no more stress. Hehe. I do miss being at university though...definitely some of the best years of my life. Well, I hope things start to slow for you and that you take the time to relax...hope you and your family had a blessed and beautiful Christmas :)

MERRY CHRISTMAS & HAPPY NEW YEAR!!!!

~*~*Girlie's Page*~*~

Love & Prayers,
XOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Sunday, December 26, 2004 9:49 PM CST

Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, December 24, 2004 11:21 PM CST
Hi Deirdre! Miss Camryn and I wanted to pop in to wish you a VERY Merry Christmas!
Thank you so much for always checking in on us and for all of your thoughts and messages!
Gobs Of Hugs From...

Alicia and Cammie (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Friday, December 24, 2004 10:33 PM CST
Merry Chistmas and An happy New Year, I really hope 2005 will be a good year for you,
You are such a brave lady, You are an inspiration for me

Jolyane <vague_2000@hotmail.com>
Montreal, Canada - Wednesday, December 22, 2004 8:20 PM CST
Hi Deirdre,

Congrats on surviving and thriving through your semester and finishing your papers. That always feels sooo good. I hope you have a fun and blessed holiday and pray that you and I both can get a vacation from our joints (even for a day!!!!!!) You ask Santa, and I'll ask Chanukah Harry, k? ;-) Maybe they'll collaborate and help us out???

Anyway, have a nice break, merry xmas and happy new year!

Shalom,
Adena

Adena Shoshan <adenashoshan@msn.com>
Boulder, CO USA - Wednesday, December 22, 2004 2:25 AM CST
Wishing you a very Merry Christmas... and a Happy New Year!!! You are in my thoughts and prayers!!! I hope this weekend is full of family, good food, lots of presents, and tons of love and laughter for you!!!
Sammy Nichols & Family

Desiree Nichols www.caringbridge.com/va/princesssammy <rickysammyhannah@aol.com>
Gordonsville , VA USA - Tuesday, December 21, 2004 1:59 PM CST
Hey Deirdre!
Man... you gotta teach me how you do it! I hurt so bad all over that it drives me nuts!!! Impart some of your coping skills to me for Christmas ok? *grin* Anyway... glad that its finally holidays!!!

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Tuesday, December 21, 2004 10:22 AM CST
Thinking of you, praying for and with you.
Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Saturday, December 18, 2004 2:37 AM CST
Congratulations, kiddo!!! You sounded soooo excited on the phone last night that all your coursework was turned in you were ready to crawl into your chair and chill...and then your St. Nick parcel arrived!!! Enjoy the flannel sheets and warm sweater with matching hat...it was too cute to pass up. Thanks for having all your CaringBridge buddies pray for me the past several weeks. We survived the past year...the anniversary of your grandmother's death...and, life goes on! I am so proud of what you have accomplished and even prouder still to call you 'my pretty precious sweetheart'. Ho! Ho! Ho! The holidays are coming and Deirdre's coming home!!!
Mom <Leanyjoan@goltzland.com>
Jersey City, NJ USA - Wednesday, December 15, 2004 11:24 AM CST
Congratulations on surviving your first semester in Boston! Seems not so long ago you were fretting over your decision to leave DC, and all things familiar. Amazing how easily you can adjust to new situations! Enjoy the winding down, cleaning up, and in case I'm not back before the holidays, a very Merry Christmas, and all the happiness the New Year can hold to you and your family.
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON canada - Tuesday, December 14, 2004 3:15 PM CST
Hi Deirdre, I really like the music on your page! I've heard the "it's-in-your-head" thingy quite often from the docs. Actually, many of my friends with a chronic illness were told that too at some point. But who are they tell us that? They don't know perfectly how the immune system works, they should remember that :-P Anyway, hang in there girl! You are your mom are in my thoughts,

Renee

www.caringbridge.org/canada/renee <dr.renfb@animail.net>
Canada - Monday, December 13, 2004 2:27 PM CST
Hey Deirdre!
Praying for your mum. Christmas is around the corner! Excited? lol... I know I am.

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Sunday, December 12, 2004 8:26 AM CST
Deirdre,

I'm not entirely sure how to start this as I haven't actually spoken to you in quite some time and you probably had no idea that I try to keep up on your life. Something in me feels inexplicably connected to you, and so at the risk of exposing myself as an internet stalker, I shall continue.

I find your passion and determination incredibly inspiring. Having grown up with a sick and depressed mother my entire life, I had never experienced any reaction to chronic illness other than "i'm sick, i'm never going get better, this gives me the right to be cranky all the time and expect other people to wait on me." I say this not as a judgement of my mother but simply a statement of what has been.

Living with you freshman year at GW gave me an entirely different perspective on both chronic illness and life in general. Though I'll admit I was completely afraid of you first semester, the thoughtfulness you showed in writing me a card when I was thinking of transferring back home to NJ, and the strength you exhibited when you got so sick from the moldy fridge and finally opened up to us about what was going on with you really impressed me. Simply seeing another way to react to sickness, realizing that complaining really isn't conducive to anything, was an entirely new life experience for me.

Why am I telling you all of this? I'm not sure.

Except to say that I want to thank you for living such an inspiring example. I want to thank you for putting up with all my freshman year craziness despite all you were going through personally. I want to tell you that I admire you more than most people I know, and have never really been able to express that to you.

So although we've never been friends more than perhaps a roommate relationship would entail, I kind of just wanted to let you know that you've been an important, if distant, part of my life and growth in the past few years, and that I sincerely care for your welfare and happiness.

Stay strong, and accept my love and positive thoughts heading your way across the northeast corridor.

Love,
Ali

Alison Trapp <alitrapp@gwu.edu>
Washington, DC United States - Sunday, December 12, 2004 1:14 AM CST
Hey Dierdre,

I hope that last Tuesday brought your family more smiles than tears thinking of your grandmother. I can appreciate what your mom has been going through, as our family is heading into our first Christmas without my mom. It just doesn't feel right.

I'm working on updating Julianna's Pink Wall of Fame, so get ready for it, Miss Inductee! Thank you for wearing her bracelet and continuing to keep Julianna in your thoughts, we sure do appreciate it.

Now get back to those papers!

Terry Josephson, Julianna Banana's dad <tjosephson@shaw.ca>
Winnipeg, Canada - Friday, December 10, 2004 11:49 PM CST
Deirdre~Thank you so much for keeping up with Miss Camryn and me...even when I go into hiding.
I am so sorry that you are having to put up with all of this mess from your doctor. I have faith that you will get things in order and you will find someone that you are comfortable with and someone that will help you.
I will keep you in my thoughts...and also your family during this rough time they are going through.

Many Hugs...

Alicia and Cammie (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Wednesday, December 8, 2004 1:37 PM CST
Hi Deirdre--I haven't been out here in awhile and last night when I talked to your Mom I thought it was time. Doctors can be soooooo annoying. I truly believe you need a different doctor. Good luck with all of that. Stay strong and know that we are praying for you. I love you.
Janet
De Pere, WI - Tuesday, December 7, 2004 12:19 AM CST
You go girl! Never give up - and always trust yourself...keep the faith. Perseverance is not your enemy, and there are times that being headstrong and opinionated (who am I kidding - that's just another word for 'right') comes in handy. Hang in there - we love you.
Lisa <lblume2@yahoo.com>
Marietta, GA USA - Monday, December 6, 2004 10:51 PM CST
I'm so sorry you're having such a rough time. I know what it's like to not be believed, to have people tell you you look good so you should FEEL good, to have people not believe me, to be told that it's all in my head and I'm really fine. It's rough and it sucks and it would be so great to not have to deal with it anymore. Know that there ARE people who understand and who will believe you and who will be there to listen if you need to talk. I'm here if you need to vent or just talk.
<penguini1982@yahoo.com>
Rochester, MA - Sunday, December 5, 2004 6:21 PM CST
HI Deidre- I stumbled onto your site from a posting you had on Bailee Dunnigans. I actually write to you because I am a child life specialist for a childrens hospital in NYC. If you need any advice or guidance or anything at all please email me and hang in there. All my best
Alison Heffer <aheffer160@aol.com>
New York, NY USA - Sunday, December 5, 2004 6:16 PM CST
Hi Deirdre, sorry you had such a rough day... of all the insensitive things people have said to us about Hunter's cancer, at least they've never suggested it's all in our heads!! What the heck.....??????!!!!! Hey maybe they think Methotrexate is a FUN DRUG to take?! (Let 'em try it!)

Big (((HUGS))) and I hope that today is better.

Katie, Hayley and Hunter <dugan2b@yahoo.com>
Franklin, MA - Saturday, December 4, 2004 10:08 AM CST
Hey gal...
I'm sorry that you're feeling kinda lousy and down. I get that way too sometimes. Think I kinda understand what you're feeling cos I get that kinda crap from my doctors a lot. Anyway, who are they to say its in your head when they're not experiencing it themselves?? Just try to hang in there ok? And hey, if you need anything, I'm always here. :) Yahoo, msn, aim... got it all! *wink*

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Saturday, December 4, 2004 9:12 AM CST
Sweet Miss D,
I am so sorry you are having a bad day, a down day. They are inevitable though with the hard road you have to travel. I am even more sorry your doctor treated you with such insensitivity today. I hope this is the exception, rather than the rule, or it may be time for a new doctor.

This is NOT in your head, it is in your immune system, and specifically, your joints.
I wish you didn't have to go through this, but it has made you so much of WHO you are. And WHO you are, is someone pretty great. Someone who takes the time to care for lots of sick kids even when you are busy, and tired, and young yourself.
Keep your chin up sweetheart..you matter to us..we care about you :)
((((HUGS)))

Haley , Cheryl (mom) and family <bandcvincent@aol.com>
- Friday, December 3, 2004 9:44 PM CST
Hey Deirdre!
Wow... that was a long entry! lol... I don't think I could ever do one like that! Bet you can't wait till sch's out. Mine has ended already! I'm so so glad that the hols are here cos it means more time to rest! lol

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Friday, December 3, 2004 10:33 AM CST
Hi Deirdre ~

I read the entire journal entry and peeked at the new pics!

You're amazing.

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Thursday, December 2, 2004 9:15 PM CST
Hey Dierdre!!
Just checking in...hope you had a fab Thanksgiving and stuffed yourself silly. Thanks for always taking the time and dropping in to say hi :) Take care and I'll be back soon!

*~*~Girlie's Page*~*~

Love,
XOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Wednesday, December 1, 2004 2:11 PM CST
Happy Thanksgiving Miss D. (A few days late). I love the music you chose, maybe someday you can teach me how to do that to Haley' site...music and pictures, the two things I have soooo much trouble with.
Your cats look right at home :)

Cheryl and Haley <bandcvincent@aol.com>
- Wednesday, December 1, 2004 8:47 AM CST
Thanks for posting pictures of your two cats...it encourages me to make public the photos of the 2 cats I've adopted since my Rachael's death...one of the cats is 14 year + Siamese, the other is a Persian, barely out of his terrible twos...what a housefull of attitude cats!

Rachael's cat is the 'queenly' Ragdoll, NEKO, mix with this bunch a 14 year old springer spaniel and a 4 year old Cokatiel 'Marcus', and you can imagine the animal dander that is raised daily...all their noise fill the void, so that is good...

Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Tuesday, November 30, 2004 9:33 PM CST
Thanks for signing Lance's guestbook!
Tina www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Tuesday, November 30, 2004 4:45 PM CST
Hi Deirdre. Thought I'd come say hello and introduce myself. I'm Adena from Colorado - I have RA too....and recently finished grad school in counseling pysch. Best wishes on your paper :-)...when all else fails...pray for the paper fairies to come finish it ;-) It works almost as well as denial!!! I hope you had a great Thanksgiving. Come visit my little corner of cyberspace if you have a chance.
Take Care,
Adena
www2.caringbridge.org/co/adena

Adena <adenashoshan@msn.com>
Boulder, CO USA - Thursday, November 25, 2004 10:57 PM CST
Hi: Just found your website through the caringbridge group. I have a 3 yr old daughter with acute lymphoblastic leukemia. We wanted to introduce ourselves... and hope you had a great "Thanksgiving" filled with lots of love, family, and good food!
Sammy Nichols & Family

Desiree Nichols www.caringbridge.com/va/princesssammy <rickysammyhannah@aol.com>
Gordonsville, VA USA - Thursday, November 25, 2004 10:25 PM CST
Best wishes for a Happy Thanksgiving!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Wednesday, November 24, 2004 8:34 PM CST


Love

Viks

viks <viks@postpals.co.uk>
- Wednesday, November 24, 2004 10:54 AM CST
Hi Deirdre!
Glad that the paper got done! I have days like that too. I'm struggling to sit for my exams. lol... its so hard when you don't feel good. :( Anyway, hope you have a great thanksgiving!

Joanne’s Corner
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Care Mail!

Joanne <joanne_173@hotmail.com>
- Tuesday, November 23, 2004 4:43 AM CST

<penguini1982@yahoo.com>
Rochester, MA - Monday, November 22, 2004 3:50 PM CST
I know what you mean about the fear, although it is Haley that is so ill, it quite obviously impacts our family tremendously. I rarely let myself travel the "what if" road, I just can't.

I am glad you are getting some well deserved time off from paper writing :) I remember in college, I much preferred taking exams, than writing papers!!

Cheryl and <bandcvincent@aol.com>
- Sunday, November 21, 2004 9:43 PM CST
Just wanted to let you know you will be in my prayers.
tina www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Saturday, November 20, 2004 7:26 PM CST
Hi!
Thanks so much for signing my guestbook! :) I totally know what you mean about the scared bit. I'm a big fraidy cat. Scared of everything! Anyway, hope that you're doing good!

Joanne’s Corner
~Joanne’s Corner~
Joanne’s Corner
Care Mail!

Joanne <joanne_173@hotmail.com>
- Wednesday, November 17, 2004 9:39 AM CST
Hello, Miss D!

I realized that I haven't written you now in quite a while, and decided that I needed to drop you a note. Everything, yes, *everything* you wrote about fear is right on the money. And I say that from my perspective, not Sara's. I, too, have a muscle condition that still is undiagnosed, to this day, that has sent me to the ER periodically over the past 11 years, with severe chest pain only to be told that "it's *NOT* your heart." (Thank you, Lord!) But it doesn't lessen the pain any or make it go away. And I, too, have learned that if I give in to it (the fear and then the pain), it only makes it worse. Rather quickly, too, I might add. And, yes, there is still a "little girl" in this 50yo body that crouches in the corner somewhere, wanting more than anything for this monster to go away. Consider yourself "hugged" (carefully and gently) and may it help to know that I remember you in my prayers.

And, yes, I *was* the one who asked for your favorite color. I'm working on it! :-)

Hugs from down South where it's turned cold tonight,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@bellsouth.net>
Decatur, GA USA - Sunday, November 14, 2004 6:03 PM CST
Deirdre you entry was great, I just reconize myself in every word about being scare of the disease, being scare of the future, and also the part about staying strong, you just reflect a reality that it's sometimes hard to understand for people who don't live with the disease. I Think I'll tell my friends to come over your page just to read and understand why sometimes it just overwhelming. You are great,
Good luck with your chemo, i've been off treatment (ok only for a break) since to week and I just don't want to go in the chemo-train, but life is life and arthritis is arthritis, so no choice.
take care and enjoy your paper breake (mine is already over!!)

Jolyane <vague_2000@hotmail.com>
montreal, Canada - Saturday, November 13, 2004 4:10 PM CST
Hi Deirdre and thanks for stopping by Hunter's site! :)

Your journaling on being scared reminded me of a quote:

Courage is doing what you're afraid to do. There can be no courage unless you're scared.
Edward Vernon Rickenbacker


I'm not sure how old the kids are that you teach, but we recently discovered that the bear-sized LiveStrong bracelets at Build-A-Bear are perfect for little kids!! Even Hayley and Hunter (who are 4 and 2 years old) can wear LiveStrong bands just like their mom and dad now. :)

Keep up the great work with the kids... we'll check back in very soon. Hope you enjoyed your fall in Boston... looks like it's O-V-E-R alreaday... ugh!! :P

P.S. I drink Diet Pepsi in the morning too... can't stand coffee!!

Katie, Hayley and Hunter <dugan2b@yahoo.com>
Franklin, MA - Friday, November 12, 2004 9:29 PM CST
Hey D,
Okay, first of all, you are very cool. Second, have I been leaving the back door to my brain open again? Cos everything you wrote about fear has been hanging around in my head at some point. It's like deja vu...if only I could remember what that is...

I know I've said this before, but I think you should hear it often: I really admire you for the courage and, yeah, bullheadedness you show. I'm so proud of you for the way you're sticking to your goals and not letting anything, even a miserable vile villain like RA, get in your way. You really inspire me, and I mean that.

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Friday, November 12, 2004 8:09 PM CST
WE MISS YOU D!!!!! I miss you!!!!!!!!!! Ran into Prof Woodruff a few days ago, it was great to see her. I think we both really enjoyed her class and she was a very sincere person. We talked for a second about you too.

Hope school is going well. I am sorry I haven't kept in touch lately...
Peace In Him, Adam

Adam Drexler <adrexler@gwu.edu>
Washington , DC USA - Wednesday, November 10, 2004 9:57 PM CST
Hihi!
Oh wow... I'm so glad that you're getting a break! lol... thats so so good! But you sure sound like you've been busy! lol... Glad that your joints are acting ok. Take care!
~Joanne's Page~
Care Mail!

Joanne <joanne_173@hotmail.com>
- Monday, November 8, 2004 11:56 PM CST
Glad to hear paper season has ended, and with any luck, your headaches with it! Sounds like you had a great weekend, and are feeling pretty darn good, so all in all, a very happy entry to find tonight!! Here's hoping for many more like it for a long time to come!!
P.S. - I don't lick the curtains (worrying about Jadine in Pflugerville), but I do have a cat that does lick the carpet from time to time. Go figure!

Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Monday, November 8, 2004 11:09 PM CST
I lick curtains.

(A more in-depth and appropriate guest book entry to follow)

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Monday, November 8, 2004 10:04 PM CST
So sorry for your yukky tummy troubles beautiful gal. I 'member these yukkies from my chemo days. It just is NOT fun, and one of my clearest words since surgery became BOWL.See I still did not walk and runnin' was out of the question, so the bowl I was talkin bout was not in a bathroom, it came from the kitchen. Mom and Dad sure moved swiftly those times when I said BOWL. I apologize for not visitin' more often these days, but the ole gal is feelin sorta poorly, havin the surgery Monday morning and says she will take some time to recover, cuz she isn't a youngster any more. I can't EVEN 'magine her ever being a youngster but she assures me she once was. So till she gets herself up and strong again I may sorta disapear, but I shall return often when she gets better. My prayers will continue to include you and I want ya to remember ta LAUGH!
Cam the Ham, The Boss and ivy <ivyjivy@yahoo.com>
lynnwood, w usa - Friday, November 5, 2004 11:54 PM CST
hello deirdre
i'm really sad to hear that you are not doing good, I do understand how arthritis can suck especially when at this time of the years with the bad weather (I think the weather is almost the same in Boston as in Montreal)
hope you'll soon find a treatment that will help you feel good for thanksgiving, christmas and the next year
take care

Jolyane <vague_2000@hotmail.com>
Montreal, Canada - Wednesday, November 3, 2004 7:04 PM CST
Deirdre~I am so sorry that you are not feeling well. I will keep hoping and wishing and saying an extra prayer that you have been having a better day today!!!
I'll be back to check on you soon. I'm not hiding out in my hole this week...well, not so far at least.
Many Hugs from...

Alicia and Cam-O-Rama (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Tuesday, November 2, 2004 9:57 AM CST
Man, I just want to read that you're feeling good. It's so hard to do school work with a headache, nevermind all the other stuff you're experiencing (dizziness, nausea, etc.) I'm trying to think up something uplifting or mildly humorous to say to make you smile, but I'm just feeling bad that you feel bad. I know! I'll send you some Halloween candy! It was really slow here last night, trick-or-treater-wise, so I have two gigantic bowls of treats left over. Sigh. You probably don't really want my left-over candy. I guess I'll just have to eat it myself. If you think I can't, you're wrong. Now I'm just babbling. I hope you make it through this next paper okay. I'll be sending you some feel-better vibes, 'kay?

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Monday, November 1, 2004 9:57 PM CST
Hey D,
So I guess I shouldn't mention green eggs and ham, then? I'm anti-pork anyway, regardless of "the other white meat" status. I hope the nausea & throwing up has gone away or at least decreased some...how are you going to enjoy all the clearance Halloween candy??? Serious stuff, man. Anyway, I just wanted to say hey and come out of my hobbit hole where I've been hiding, and definitely say thanks for the cheer-up messages you left for me - they really helped a lot, just to know somebody else understands what I'm talking about. :) Thanks, my friend!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, November 1, 2004 7:02 PM CST
Hmmm....
Dizziness, nauseous and headaches. Sounds like an inner ear problem my sister had last year, and one that often time bothered my mom. Docs said it was brought on by infections and was treated by antibiotics...took about 6 weeks to cure...not much to look forward to. Sorry. Hope your problems are easier solved. Take care. I check in every once in awhile, but seldom post.
I too love the decorations!

Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Monday, November 1, 2004 4:34 PM CST
Hey Deirdre!
I love your decorations! lol... cool! Haha... anyway... glad you got that paper done. I'm having trouble with my project work and my group mates aren't very forgiving. *gulp*
~Joanne's Page~
Care Mail!

Joanne <joanne_173@hotmail.com>
- Monday, November 1, 2004 7:37 AM CST
Hi Deirdre!! I miss you! Congrats on BU!! Wonderful place to go to grad school! It's kind of ironic, but I am looking at the musicology program there for next year, so we might go to the same school! That hasn't happened since eighth grade! Good luck, and Happy Halloween or All Hallow's Eve, for us Catholics....
Elizabeth Yackley <sweetylizzy@aol.com>
Greensboro, NC - Saturday, October 30, 2004 5:00 PM CDT
Hi Deirdre! I'm just stopping by to say hi and let you know that I'm thinking of you! Have a Happy Halloween! God bless and *warm hugs* ><>†<><



Lighting Children’s Lives
Caged Kids

*Jennifer C* from Lighting Children’s Lives & Caged Kids <jenniferc@ilovetocolor.com>
Eugene, OR USA - Saturday, October 30, 2004 1:46 PM CDT
hello deirdre. I hope that your way on the chemo train will be ok (as ok it could be to have chemo) We talk via email a couple of weeks ago about remicade and now I have my own caringbridge page. So hope you'll come by when your headaches will go away. Maybe you could try B12 vitamins. Neurologist gave me this while I was having migraine and this help me a lot. It's just vitamins so no toxic drugs.
best wishes

Jolyane www2.caringbrige.org/canada/jo_crohnpage <vague_2000@hotmail.com>
- Wednesday, October 27, 2004 11:57 AM CDT
Hi Deirdre,
Sorry to hear about the chemo :( But I really hope that you'll start feeling all better really soon! Hang in there!
~Joanne's Page~
Care Mail!

Joanne <joanne_173@hotmail.com>
- Wednesday, October 27, 2004 10:24 AM CDT
Hey Dierdre.... Hang in there girl. Caroline and I are praying for you and hoping that you can feel great really soon!


Alia and Caroline (www.caringbridge.org/mn/caroline) <ajpranke@juno.com>
Eagan, MN 55122 - Monday, October 25, 2004 12:42 AM CDT
So sorry to hear about the headaches. They can be really horrible. Did you stop the Remicade? I may have missed something...but if so, what now?
I am praying hard your body stops attacking its sweet self soon!!
And rooting for the sox, just for you. :)

Haley , Cheryl (mom) and family <bandcvincent@aol.com>
- Monday, October 25, 2004 11:43 AM CDT
Hello, Miss D!

I haven't signed in lately, but that doesn't mean I haven't been praying or checking on you. Sorry to hear about the headaches. Bummer big time. Sara knows very well whereof you speak. Be sure and try out her idea about the B12. It seems to have helped.

And can you tell me what your favorite color is? If you give me an idea, you just might find a surprise in your mailbox sometime soon, hmmmm? :-)

Hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@bellsouth.net>
Decatur, GA USA - Sunday, October 24, 2004 8:32 PM CDT
Hi Deirdre,
Thanks for letting me know you've been stopping by my site. Sorry to hear you're having such a bad headache (or headaches). Over the years, headaches have been one of my most constant problems, sometimes making me spend a whole week or more in bed. I hope you find something to help it! Sometimes laying low for a while is necessary. At least we have those great SOX to root for this weekend.

<penguini1982@yahoo.com>
Rochester, MA - Saturday, October 23, 2004 3:50 PM CDT
Hey D,

Thanks for signing Mikey's guestbook and we are hoping the Sox take it to the end !!! Love reading your webpage and your sense of humor we all must have when dealing with Docs, nurses, hospitals and waiting for tests results. Hang in there :>)

Mel, Jackie, Rachel, and Michael Hardy <JMHardy@aol.com>
Ellington, CT - Saturday, October 23, 2004 9:56 AM CDT
With the good, you gotta take the bad I guess. Glad to read about a wonderful family weekend - sounds like just what the doctor ordered. And a great way to recharge a bit before "paper season". But now headaches??? Man oh man Deirdre, I just don't know how you do it. Lots of rest and TLC is ordered for the weekend. I wish I could offer some other words of advice, but sadly, I have none. Relax as much as you can, enjoy some baseball, and try not to worry about the paper you have to write. Take care!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Saturday, October 23, 2004 8:39 AM CDT
Hey D,
From my extensive headache knowledge database, I have a suggestion that might actually help: vitamin B12 complex. I have no idea how it works, other than a B12 deficiency can aggravate headaches, so I take 2 every day & my headaches have dropped off drastically. Compared to having 2 migraines a week, it's like...um, not having 2 migraines a week. (I don't feel especially bright at this hour.) I was thinking about you when the Sox won the AL, thinking how cool it must be right now in Boston, with everyone crazy over the pennant. Here's hoping they go all the way! It would just be karmic justice (not that I'm really sure what that IS, but anyway). I'm hoping you're having a better weekend w/ less pain and fluid (we can be the Pillsbury Dough Twins, cos I know where you're coming from), and that things are just SMACKELICIOUS!!!

Love and smacky kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Saturday, October 23, 2004 0:23 AM CDT
Deirdre, I am so happy that you got the music to work! (It helps that I love that Enya song, too!) I don't know about you, but when I conquer something technical like that, I feel like I could run a marathon!!! Or, more realistically, I just feel really, really happy and accomplished while I sit on the sofa and eat a big bag of cookies. (who am I kidding, running a marathon? Ha!)

Hope you have a great weekend and you're able to kick that headache, take care,
Kristie

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Friday, October 22, 2004 11:52 PM CDT
I am so pleased to have come across your site! Reading your entries envokes thoughts of my Rachael. She'd be 21 in just a couple of weeks. I know she'd have loved your outlook on life and your quest for knowledge. i will be back again...you're comments give me joy, and joy has been sorely lacking in my life since my Rachael died.
Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Friday, October 22, 2004 6:33 PM CDT
I love you site!
Thanks so much for stopping by Will's site. We are very excited about LTN tonight. So far we are the number one team in donations!
Lots of Love,

Kayla - www.willpowerfund.org <willpowerfund@yahoo.com>
Charlotte, NC USA - Friday, October 22, 2004 3:48 PM CDT
HI!!!!

Just stopping by to check in with ya.. Hope all is well and school is going good for you!! Thanks so much for taking the time to sign Nicks page. He loves hearing that hes got messages!!! Have a great Halloween!!!

Helen and Nicholas. www.caringbridge.org/mn/nicholasb <hburger64@hotmail.com>
Ham Lake, MN USA - Friday, October 22, 2004 3:43 PM CDT
Hi Deirdre! :)

I just wanted to see how you were doing! I hope everything is well for you and that you are having good days! :) Take care!
Neil :)

Neil Marchand
Oxford, England - Friday, October 22, 2004 1:54 PM CDT
Hi Deirdre! I was amused by your observations of Boston. When I moved to Texas, it freaked me out how strangers made eye-contact and said 'hi' and 'how are you?' and meant it. I am originally from a city that is waaaay - - - let's say, 'reserved', and people there would never talk to a stranger; it would seem an invasion of their privacy or something. I'm getting used to it here now, though (after 14 years, I guess I should be), and the friendliness no longer freaks me out. I even say, "y'all." (Sigh). Not sure what this guestbook entry has to do with anything, but there it is.

I hope you have a great Friday and weekend!


Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Thursday, October 21, 2004 10:04 PM CDT
Re: the Red Sox

And let that be a lesson to us all.... miracles do happen.

Brian Schousek <schousek@yahoo.com>
Houlton, WI 54082 - Wednesday, October 20, 2004 11:01 PM CDT
I am trying hard not to be envious about all the cool sights you are living so near by! I love Boston. And I love the Boston Red Sox too! :) How about that game last night?!
Glad you are feeling better..praying it continues.

Cheryl (Haley's mom) <bandcvincent@aol.com>
- Wednesday, October 20, 2004 8:45 AM CDT
Hey,
Glad you're doing a little better. Hey, how did you get the music with singing on your site? I only know how to get MIDI files up on mine. Just curious.

Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, October 15, 2004 9:55 AM CDT
Glad to hear your body is treating the rest of you a little better these days!! Bout time, ain't it?
Sounds like you had a wonderful "mom" weekend. Bet that did you a lot of good too. Keep it up, but remember to get lots of rest, and be good to yourself.

Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Thursday, October 14, 2004 11:28 AM CDT
Okay, I am SO jealous!! I heart IKEA and there's not one here (even though they're supposed to be building one but apparently all construction has been halted in order to cut down trees and build large sound barriers on OVERCROWDED ROADS, but I'm not bitter! No, not me!). Put up pictures of the chair!!! Man. I just can't get over it. Oh, yeah, the Paul Revere stuff - um, that's cool too. But IKEA!!!!!!!

Okay, I'll stop being silly now. ;) For a minute anyway. KEEP THE ROCK ALIVE!!!!

Love and smoochy kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, October 11, 2004 8:47 PM CDT
Hi Deirdre!

Just getting to know you. I'm Nessa from Richmond, VA. I guess I am a "cousin" of yours because I also see a rheumatologist for an auto immune disorder called fibromyalgia, or as he put it, arthritis of the muscles. Most of the time I feel like it's an effort to breathe because I am so tired and I hurt. I am an old lady of 50 with 3 kids (27, 19 and almost 18) with a wonderful hubby who has RA and is on Methotrexate which has done wonderfully for him.

Your site today made me smile and I even read your brother's site. Your parents are fortunate to have such wonderful kids. Thanks for taking the time to maintain a site with all you have going on.

Nessa <dachsielvr@aol.com>
Richmond, VA - Monday, October 11, 2004 2:54 PM CDT
Just a short hello from me,



Viks

viks <viks@postpals.co.uk>
- Monday, October 11, 2004 6:01 AM CDT
LOVE the picture of the Old North Church!!! I'm soooo glad we were able to spend time checking out the sights along with getting that dresser assembled...that was feat in itself. And we didn't get too lost traveling around Boston!!! Love ya bunches...
Mom <Leanyjoan@goltzland.com>
Jersey City, NJ USA - Sunday, October 10, 2004 10:05 PM CDT
Oh my pretty Deidre! I am so impressed with your journal entries. I feel like I almost visited Paul Revere too. I am prayin' ya start feelin' really great soon. And if I was a bit older I could be the prince charmin' for ya. Stay away from germies, the ole gal says it will be hard ta do when ya work at Headstart. She did that for seven years, afore she had ta retire cuz of heart trouble. Those little kids leave germie hand prints everwhere. Carry lots of germie wipes. Winkin' atcha! ;)
Cam the Ham, The Boss and ivy <ivyjivy@yahoo.com>
lynnnwood, w usa - Sunday, October 10, 2004 0:12 AM CDT
Just surfing, thought I'd check up on you. Hope things are much much better!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Friday, October 8, 2004 9:54 PM CDT
You dear sweet girl--what I wouldn't do to take away the pain for you. You are right--IT IS NOT FAIR. I am sending lots of prayers and love your way. Hang in there.
Janet <mcalaway@new.rr.com>
- Friday, October 8, 2004 1:49 PM CDT
Dear dear squishable Deidre,
From my own sort of parallel reality, I know what you mean. I don't know what our magic cure is or will be, but I am confident that we will find it! (and if not, we'll always have Jack Daniels) As far as fairness goes...in the largest scheme of things, the sort of scheme that philosophers and obnoxious college kids talk about it, yeah, fairness doesn't exist. But we live on a slightly more pedestrian plane (DANG, I sound smart tonight) and NO IT'S NOT FAIR! And furthermore you've earned your right to say that through countless methotrexate doses and days forcing yourself to go to class and putting three times the effort into your life as anyone else. You've earned the right to snuggle up with a comfy blanket, a glossy cheese movie, and some mashed potatoes. You've earned the right to cut yourself some slack.

I hope and pray that you're feeling better this week, that things are going more smoothly and your body is being more cooperative. I'll be praying for you, D!!

Love and smoochy kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Thursday, October 7, 2004 8:04 PM CDT
HUGS HUGS HUGS HUGS HUGS coming at you from Windsor! You're right - it isn't fair, and if anyone has a right to say it, it's you. The fact that you don't say it more often is the amazing part. Don't expect yourself to be bright and sunny all the time D, there's some song out there about the flowers needing a little rain, ya know? ( I've most likely butchered that quote into oblivion, but you get the point, I hope).
Glad you got to spend some family time. Sometimes that's the best medicine of all. Hope to read your feeling better soon. Until then, my thoughts and prayers and hopes and all the cyber hugs you need are going out to you!

Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Wednesday, October 6, 2004 0:02 AM CDT
Hi Deirdre -- I'm so sorry to hear that you've been feeling crummy (for lack of a more sophisticated word) both physically and mentally. Give yourself lots of slack -- think about all you are trying to accomplish now! You're doing great, and will be "swimming" again soon.

I know how to get music on the sites. I will e-mail you a tutorial right now. Let me know if you don't get it.
Take care!!!

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Tuesday, October 5, 2004 10:30 AM CDT
Hey,
Sorry you're having such pain and trouble lately. Your entry sounds like it could be coming out of my head (well, except for the exact circumstances). Your feeling of treading water (I love that analogy) is exactly how I've felt for the past few weeks. And I just want it to stop, I just want to get through it, but I can't see the end in sight anywhere nearby. I'll be thinking of you and hoping things get better soon.

I do know how to get MIDI music (without words, not great quality but you can find good ones if you search around) up on a site. If you're interested in this, e-mail me.

Annie <penguini1982@yahoo.com>
Rochester, MA - Monday, October 4, 2004 11:42 AM CDT
Hi!
I'm sorry that you're feeling so down... and although I don't have the same problems as you, I guess I can understand what you mean. I have days when I just can't smile and pretend that everything is fine and great. And hey... its ok to feel that way sometimes. I hope you have people you can talk to when you feel that way. Or you can always drop me an email. :) Thinking of you!
~Joanne's Page~

Joanne <joanne_173@hotmail.com>
- Monday, October 4, 2004 10:30 AM CDT
How are you feeling, girlie? I'm worried about you! I'm hoping you're feeling all better, and that you haven't posted a journal entry recently because you're out doing fun stuff.

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Sunday, October 3, 2004 8:36 PM CDT
Coming by to check on you. I am hoping the last week or so has you feeling better. :)
Hugs!!

Haley , Cheryl (mom) and family <bandcvincent@aol.com>
- Sunday, October 3, 2004 2:22 PM CDT
Hi! I'm Renee, and it's my first time on your page. I think it's a great one :) I just wanted to say hello!

Renee

www.caringbridge.org/canada/renee <dr.renfb@animail.net>
Canada - Saturday, October 2, 2004 9:38 PM CDT
Just popping in to see how things are going. Hope all is well!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Saturday, October 2, 2004 9:05 AM CDT
Hi Deirdre... just wanted to say WELCOME to Boston!! I hope you are feeling better tonight, you've had quite a rough introduction to our wonderful hospitals here.

I had to laugh at your top ten list and how everyone knows the Sox schedule... I used to live in the Fenway and had every one of their home games circled on my calendar so I could race home from work and get a parking spot on the street before all the Sox fans showed up and stole the Resident Parking spots! :)


Katie, Hayley and Hunter <dugan2b@yahoo.com>
Franklin, MA - Thursday, September 30, 2004 8:41 PM CDT
Hey there Deirdre ... I always wondered how you pronounce this name :-). In Russian it's impossible :-).
Thanks for signing our guestbook and I'm glad we have mutual friends :-).
Stay cool

Leo & Lenka <goomba4ever@km.ru>
Irkutsk, Russia - Wednesday, September 29, 2004 8:08 PM CDT
Hope today is a better day for you!
Haley loves the pics of your bedroom..it looks awesome!
Hugs!!

Cheryl and Haley <bandcvincent@aol.com>
- Wednesday, September 29, 2004 10:20 AM CDT
Hey hon! It really stinks to hear you're feeling so awful :( I love your room, it's awsome :) Here's hoping to some relief for you soon! Heather and I will keep you in our prayers. Miss ya. Lots of love :)
Carly Beveridge
High Point, NC - Tuesday, September 28, 2004 9:14 PM CDT
Wow! Special mention in your journal!! Wasn't expecting that. (High five back at ya Jadine in Pflugerville *U*)!
I'm sorry to hear that this cyst is still hanging around and causing you so much trouble. On the plus side, sounds like you've got a pretty capable ER staff to help you out. But all those drugs girl??? Just reading about them made me woozy!! ( Mind you, one demorol knocks me into napland for 4 or 5 hours, so it's not really that big a stretch). Glad to know one of them finally gave you some relief, 'cause I think you were at the higher end of the pain management scale. Hope you're getting some rest and feeling better real soon!

Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Tuesday, September 28, 2004 3:27 PM CDT
Hi!
I'm sorry that you're in so much pain. :( It sucks so bad! I wish these doctors would understand the meaning of pain and give proper pain relief when people need it! Anyway, nice pictures! I love your room! :)
~Joanne's Page~

Joanne <joanne_173@hotmail.com>
- Tuesday, September 28, 2004 9:57 AM CDT
Oh, Miss D, how I wish I could just scoot up to Boston and hug your neck, or fix some "real" hot chocolate, or put some cushy pillows under and around that sore body of yours!

Ovarian cysts and Dilaudid! Omigosh, what an *AWFUL* combination! Thankfully, I've not had both at the same time. But I well remember an ER visit of my own due to an ovarian cyst that literally drove me to my knees, doubled over with pain. I don't think childbirth was *that* bad. At least, you had breaks between pains and a baby at the end. :-p

And Dilaudid? Oh, please! That's what the ER gave me last April for my costochondritis that was then diagnosed as Tietze's Syndrome. It was great for the pain, but, boy, did I *NOT* want it again. Made all the wall cabinets in the room spin like a rolodex file. YUCK!

Consider yourself hugged {{{{{{{{{{{Deirdre}}}}}}}}} and I hope it helps a little to know that this CB mom *is* checking on you and praying for you even when I don't have time to sign in the guestbook!

Much love and prayers from the *really* squishy South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Tuesday, September 28, 2004 9:27 AM CDT
You poor girl. You are always in my prayers. The hospital is no fun, that's for sure. And you have seen more of it than you should have to. Hang in there. I loved your pictures. Your room looks great. Love,
Janet <mcalaway@new.rr.com>
- Monday, September 27, 2004 10:16 AM CDT
Oh Deirdre! I am so sorry that you are having to go through all of this and I just want to come and steal you and put you on the couch with Camryn and take care of both of you!!! Grab your fuzzy slippers, teddy bear and blanket and I'll have Cam make room!
I hope that you have your pain under control and that you are resting this weekend.
Sending you MANY MANY MANY hugs!!!
AND...I LOVE all of your new pictures!

Alicia and Cammie (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Sunday, September 26, 2004 6:07 AM CDT
Hey Deirdre!!! Great website, I was wondering how you were doing but didn't know how to call. I'm glad to see that you are surrounded by friends and that your family is so close.

Let's hear it for Marquetters turned East Coasters!!! My family just moved back to NJ! Plus Mike Dunsmoor is at Berkley! I will have to come up and see you guys on a break!

It's wonderful to hear that you are plugging through day by day and still have that crazy sense of humor I knew in high school...wow that was a long time ago...sometimes I think back and ask myself
"Did I really go to BAND CAMP?!"
...anyway, I just wanted to drop a note letting you know that my thoughts are with you and that I hope we can keep in touch.

Take care D!!!

Shelli Decker <deckerma@muohio.edu>
Middletown, NJ USA - Saturday, September 25, 2004 6:23 PM CDT
Wow! You have been having a rough road lately. Haley and I will be stepping up our prayers for you!!
I don't know how you do it! I am such a huge wimp, I would be hiding under my covers crying...or begging for surgery!
But you keep on going..you remind me of my daughter. :)
Major-ly tough!!!
Hang in there, I hope all goes well with the new doc, and you get some relief soon.
Love and Hugs,
Cheryl and Haley

http://www.caringbridge.org/ga/haley <bandcvincent@aol.com>
- Saturday, September 25, 2004 8:21 AM CDT
Hi Deirdre,
Whew!
I finally got caught up... I didn't realize I had been away so long. I am so sorry you are having to deal with the pain. (Not just the physical sensation pain, but the emotional annoyance--as in pain in the butt-pain of medical staff whose bedside manners are comparable to a brillo pad). You are in our prayers, and I know you are going to get through this!! I love the pictures and I love the quotations.

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Friday, September 24, 2004 9:33 PM CDT
Hi Deirdre,
Thanks for coming over to my site and signing my guestbook. I actually found your site a while ago (not sure whose site it was through, you probably know how easy it is to lose track of that) but hadn't written you a message yet. Yes, RA and Lyme have a lot in common. Many Lyme patients are misdiagnosed as having RA and the first cluster of cases in Lyme, CT that brought the attention to it were kids that were misdiagnosed as having Juvenile Rheumatoid Arthritis. Lyme can cause a lot of joint problems but it can also cause a lot of other symptoms, too, and basically affect every system of your body. If you want to learn more about it, Lymenet is a good place so get some basic info.

I used to live in Jamaica Plain and was going to school at Wheelock College in Boston but I'm on a medical leave of absence now so I'm living back at home in Rochester, MA, which is near Cape Cod. But, my Lyme doctor is in Newton, so it's cool that's where you live. Maybe the next time I'm up there for an appointment we could meet up or something. Hopefully I'll be eating better by then. I hope you get the cysts under control. And good luck on the laundry!

Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, September 24, 2004 9:24 PM CDT
I love the pictures of your room...can't wait to actually see it! Wish our room looked that good...still too many moving boxes! Hang in there, baby girl...we're pulling for you. Tiger is manning your bed here to help with the healing process. I FINALLY found their nail clippers today...she was not a happy camper over that one! Here's praying to a good night's sleep...love you bunches...Mom ((( )))
Darlene Goltz <Leanyjoan@goltzland.com>
Jersey City, NJ USA - Thursday, September 23, 2004 7:30 PM CDT
Hey Deirdre,
It just completely sucks to hear you're still in so much pain. I'm seriously praying you get some peace away from pain..even for just a little while (forever would be great too!). Anyways, you're a champ...still manage to have fun while in pain. Glad to know the ER treated you well. Take care and keep that chin of yours up! Thinking of you :) And sending loads of love your way..

~*~*Girlie's Page*~*~

Love & prayers,
XOXOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Thursday, September 23, 2004 5:56 PM CDT
Funny how you reach a point where you can appreciate a good ER staff, isn't it? Wishing you all the best.
Brian Schousek <schousek@yahoo.com>
Houlton, WI 54082 - Wednesday, September 22, 2004 10:13 PM CDT
praying, praying, praying....thinking of you, sending warm thoughts, smiles and lots of hugs ((( ))) your way. WE LOVE YOU!! Kelsey loves your old desk....and she is taking good care of the big ball factory! :-) Rest and heal, sweet girl!
Lisa, Dave, Amanda, Kelsey and Morgan <lblume2@yahoo.com>
Marietta, GA USA - Wednesday, September 22, 2004 10:12 PM CDT
High-five to Tracy-in-Windsor from Jadine-in-Pflugerville!!!!

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Wednesday, September 22, 2004 1:21 PM CDT
Take care of yourself, and for pete's sake (not sure who pete is, but anyway) listen to the ER and GO BACK if it gets any worse!! Those ovarian cyst thingys are NOT fun, and very painful, and girl, you've got enough on your plate for a while! Get some rest, and I hope the pain leaves you soon.
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Wednesday, September 22, 2004 11:48 AM CDT
Deirdre ~

Well, geez. (Jeez?) Listen here, Missy... a 'blood-filled ovarian cyst' is nothing to sneeze at (but why anyone would want to, I have no idea). Don't down-play it too much; these things hurt like the dickens and can get surprisingly problematic. I'm glad they're keeping their eye(s) on you, and command you (Ha! That does't work around here either) to go straight to the ER if things increase in badness, 'kay? 'Kay. I speaketh out of love, not bossiness (Well, with maybe just the *slightest hint* of bossiness). Send me your homework; I'll do it for you. But only until you feel better. So for both of our sakes, get better soon!


Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Tuesday, September 21, 2004 9:22 PM CDT
Hey! I was just in Boston! Well, I landed there. Went to visit my grandma who stays in west springfield. *grin* Guess what? I'm trying to go to grad sch in boston. I wanna take law. So I'm keeping my fingers crossed! lol...
Joanne <joanne_173@hotmail.com; www.caringbridge.org/asia/joanneho>
- Monday, September 20, 2004 10:35 PM CDT
I love Boston, I think the longer you are there the more you will love it too. Sounds like you need to find a regular doc though...one you can call on the phone and not have to go through walk ins or ER's. Some of them even have Sat. clinics.
I really hope and pray you feel better soon. I got the tiniest taste of what you guys live through, and you are TOUGH.
Hugs, and have a blast in DC.

Cheryl and Haley <bandcvincent@aol.com>
- Friday, September 17, 2004 7:13 AM CDT
Hi Deirdre,
Boston sounds amazing! I've heard that it's like the walkingest city in America, plus it's the home of dreamy Spenser (if you see him & Hawk, please catch them and lock them up for me, I'll be up in a jiff). Are you going to get A/C, though? Because that would drive me insane (or INSANER) not having it, though it does cool down sooner up there, doesn't it? So maybe in a few weeks you won't even miss it. I am looking forward to hearing more Boston updates (living vicariously through you) - maybe you could go boating & catch an adorable preppy to amuse yourself with for the semester!! I hear there's a lot of them up there (though they TALK FUNNY, hmm....) ;)

Love and smoochy kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Thursday, September 16, 2004 7:56 PM CDT
Just calling in to say;




Love Viks

viks <viks@postpals.co.uk>
- Thursday, September 16, 2004 11:18 AM CDT
Hey Deirdre,
Man I am sooo jealous that you get to live in Boston! I have always wished to live there. My whole family is from back east.. Millis Mass to be exact, I've been to Boston many times and totally fell in love with the city. Unfortunately its cheaper to go to school in california (cause I'm a resident) and with all that I pay in medical bills.. I'll be lucky if I even get to go to a university. So I am mighty mighty jealous.. I use to have a really cute Boston t-shirt that I wore all the time.. LoL yeah i wore it so much it basically fell apart. Anywho I am so proud that a fellow arthritis warrior is doing such amazing and wonderful things. I can totally understand what you mean about kids with hair looking weird.. After working with kids with cancer and growing up around kids who were sick healthy kids just take on a weird look.. LoL Anyway you are always in my prayers.. Just remember that!!

Lots of Love

~*~Lisa~*~
Belmont, CA USA - Monday, September 13, 2004 0:16 AM CDT
Hel-lo, Miss D!

Glad to hear that everything is settling down at BU now. And glad to hear your move went so well, considering climbing those stairs with all your *stuff*! :-)

Take care of yourself and remember three words working in a childcare center ---->Purell Hand Sanitizer.

Seriously, years ago, the first year I taught school on the elementary leve, I was out for a total of three (3) weeks due to strep throat ( a new experience for me at the time) and Swine Flu. I had never been that sick before or since. My doctor told me that he sees that all the time with first-time teachers. They're exposed to so many new viruses that they're just a sitting duck for illness. So, please, please, Miss D, take good care of yourself.

Prayers here from Georgia,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Sunday, September 12, 2004 10:57 PM CDT
Hi pretty gal! Please 'member ta smile, cuz when ya smile no one notices ya don't have any hair. It works for me! And with your beautiful face it will work for you too. Did I ever tell ya that you have a face for hats. Some people look so silly wearin' a hat but some others just are made ta wear them, and you my lovely lady become a *hottie* with the hat. Prayers for you as you embark on yet another phase of your life.
Cam the Ham, The Boss and ivy <ivyjivy@yahoo.com>
lynnwoodq, wa usa - Saturday, September 11, 2004 4:51 PM CDT
Just checking in to see how things are going in Boston. Hope you are doing great!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Thursday, September 9, 2004 11:20 AM CDT
Hair... What hair? I have been lacking hair for years. I've learned that if you get a huge belly, no one remembers that you lack hair. They just remember you for being "Large"! Sorry to hear about the road God has you traveling. I'm sure HE has a plan for you and those you touch along the way. Love and positive thoughts from Ballwin.
Kevin Coppin <kevin@composingroom.com>
Ballwin, MO USA - Thursday, September 9, 2004 9:46 AM CDT
Hey, what a great week it sounds like you had with your family! I have to admit, though, that I don't know what a floating fish candle-thingy is. Oh well, as long as you guys were having fun, that's all that matters!

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Tuesday, September 7, 2004 9:56 PM CDT
You look beautiful. And as to new beginnings...I'll lift my glass to that.

Thinking of you as you begin this new chapter!

Cheryl and Haley <bandcvincent@aol.com>
- Tuesday, September 7, 2004 8:35 PM CDT
Deirdre,
I had no idea about all that had been going on in your life. Beth sent me the link, and now I'm up to date. Keep smiling, and no one will notice the hair or lack thereof. Send some Hellos to your parents for me.

LET'S GO MARQUETTE!!!!!

Vicki Coppin <coppin@maryville.edu>
Ballwin, MO USA - Tuesday, September 7, 2004 8:16 AM CDT
Hi D!
Love the pictures! It looks like y'all had an awesome time, and the house looks like such a peaceful place, a very relaxing atmosphere. Well, except for the whole arson thing (which I thought was pretty funny, apart from getting arrested, etc.). Your new look is awesome - Bex and the Goober were both in definite awe of it. ;) Highly cool. Hope you're feeling good and that the preparations for Boston are going well - excitingness!!

Love and smoochy kisses,
Sara :)
Sara's CB Page


Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Saturday, September 4, 2004 9:13 PM CDT
I love that "Baldie" quote!!! I'm definitely using it for an upcoming entry on the side effects of chemotherapy.

Sounds like a great holiday. Great pictures too!

Frances and Lucas <hammonds@wincom.net>
Amherstburg, - Saturday, September 4, 2004 2:34 PM CDT
Oh my gosh D, you look just as great with no hair as I do. I guess beauty comes from the basic structure not the adornments(hair, eyebrows, eyelashes,) The week retreat you had sounds like some goooooood medicine. I will be 'memberin you as ya settle in Bawston, and will come back ta hear all 'bout your experiences in this famous place. Prayers my beauty! ;)
Cam the Ham, The Boss and ivy <ivyjivy@yahoo.com>
lynnwood, wa usa - Friday, September 3, 2004 4:17 PM CDT
Yet another amazing adventure. It sounds like a wonderful vacation. You are so brave to publish pictures of your bald head and you look beautiful. Good luck in Boston. I'm praying for you. Love,
Aunt Janet <mcalaway@new.rr.com>
- Friday, September 3, 2004 9:39 AM CDT
Nice do!

Good luck on your adventures in Boston.

Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Monday, August 30, 2004 8:59 PM CDT
Hey Deirdre! Sounds like a wonderful week for all of you. BRAVO!! Good luck to you on your first days in Boston.
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Monday, August 30, 2004 11:42 AM CDT
Hi Deirdre - welcome back! I have been anxiously awaiting an update and it was WELL worth the wait!! What wonderful pictures, what wonderful memories, and what an eloquent description you give of it all. I am so proud to be related to you and so proud of YOU for your positive attitude in spite of all sorts of adversity. I'm so glad you and your family had so much fun this week. Heaven knows you needed it. I am looking forward to seeing your mom and dad this weekend....take care of yourself and know that you are always in my heart and in my prayers....Boston is one of the cities I love best so I can't wait to hear what you find in your exploration! And you DO have a great shaped head!!! Nice work - talk to you soon. Love,
Lisa <lblume2@yahoo.com>
Marietta, GA USA - Monday, August 30, 2004 9:28 AM CDT
So where ya from? Boston ya say? Well now I hear they had a grand ole party there one time, somethin' bout throwin tea in the sea. Well not exactly my idea of a party but what ever they were thinkin, I guess it was the thing ta do at the time. So rich in history that place seems. I just know you are gonna have a swell time makin it your home for as long as ya choose. Prayers for everything ta work out fine and for your health matters to all mesh together like peanut butter and jelly. Now that is a proven combination. Kid tested and Mom approved. Can't leave here without tellin ya how pretty ya are! ;)
Cam the Ham, The Boss and ivy <ivyjivy@yahoo.com>
lynnwood, wa usa - Monday, August 30, 2004 1:15 AM CDT
Wow!
I had to go back to bed after reading your schedule, it completely exhausted me!
You want to hear something funny? I have been having terrible joint pain lately in my small joints and I finally went to a doctor. He is highly suspicious for RA or SLE. I laughed so hard I about fell off the table.
Anyway, I left with lots of pain killers, and the promise to come back in a week for my lab results. Like I have time for this!!
The upside is, Haley is excited that she may have someone she can "relate" to right under her own roof.
Life is strange.

Cheryl and Haley <bandcvincent@aol.com>
- Sunday, August 29, 2004 8:56 AM CDT
Hi D!
Guess you must still be lolling around the lake, basking the warm glow of nothing to do...ah, how I love it...hope you're enjoying your time off and watching tons of movies and sleeping late, etc. (because, you know, that's what I do pretty much, um, all the time, and I find it very rewarding, hee hee). I started back to class last Tuesday, so tonight I'm treating myself to visiting all the caringbridge crew while spending the night with my grandmother the Cuteness. It's very luxurious. ;) Tell the fam I said hey!! (and watch them scatter in fear of berserk Sara!!)

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Saturday, August 28, 2004 0:17 AM CDT
Hi girlie! I was going to come here to whine about wanting another update, but there already was one! I know, I know, it had only been 3 days in between updates, and blah, blah, blah, you're busy.

I hope you're having a great time, but I have to warn you (if it's not too late) about tubing/water skiing. One of my most embarrassing moments was losing my bathing suit bottoms during a spectacular (so I'm told) wipe-out during my first attempt at that. My friend's brothers (who I didn't even really know) were driving the boat (driving?), and they had to scoop up my bottoms and throw them to me. I hope you have better luck!

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Monday, August 23, 2004 10:20 PM CDT
Deirdre...I am SURE that you are going to be living it up and enjoying all of that play time!!! It sounds GREAT!!!!
I've read back and see that you have had so many decisions to make and that is a lot for someone to have to deal with...in addition to health concerns...I can only imagine. BUT...you seem so strong...even when there are times that you don't feel it...and, you have many people around you pulling for you! I know that I am adding my wishes for only the VERY best for you!!!!
I hope that you are feeling well and that this weekend has been WONDERFUL for you!!!
Many Hugs to you...

Alicia and Cammie (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Saturday, August 21, 2004 9:17 PM CDT
Hi D,
hope things are going swell and that you're having a SUPAH-fly weekend full of nice things like pizza and sleeping and droolworthy Olympic swimmers!!! (can you tell I've had pain meds, bwahahahaha!!!!)

Love and smoochy kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Friday, August 20, 2004 7:36 PM CDT
Deirdre, you will do great! Whether you decide to stay in Boston, go to Columbia .... shoot, I'd say Timbuktu is fair game! You have a wonderful spirit and great attitude and I have no doubt Boston will be a sucess, no matter how long you stay, and everything after Boston will be a success as well. Or, to put it a little more bluntly: I admire your pluck, girl! Best of luck to you!

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Wednesday, August 18, 2004 9:12 PM CDT
hey,hey sweet D, I'll be glad ta visit you even if ya move ta Boston. I will not forget ta stop in and learn all about it from you. You are so good at bringing things alive when ya write bout them, so I am anxious to explore Boston with ya. I will gladly learn of your new friends and the old ones too cuz you can't get away from them just by movin' ta Boston. Prayers for you my beauty, things will be super for you and you have all of us supportin' ya in your guestbook.

Cam the Ham, The Boss and ivy <ivyjivy@yahoo.com>
lynnnwood, wa usa - Wednesday, August 18, 2004 1:17 AM CDT
Deirdre - I am with Sara 100%!!!!!! Maybe even 150%!!!! There is no harm in doing NOTHING for a while....give yourself a break. Just a thought, just a seed, planted by Sara, and I second it. Love,
Lisa <lblume2@yahoo.com>
Marietta, GA USA - Tuesday, August 17, 2004 8:36 PM CDT
Hey D,
The heaviness of it all. How do you think the thoughts that are in my head? Sometimes it seems so impossible to get from where I am now to where I want to be, and my own frailty too overwhelming. All this to say, I understand...

You know, you said you could do anything for 3.5 months. Could you do...NOTHING? Like, stay in Washington for another few months and do nothing but rest? I mean, I do nothing ALL THE TIME and I find it highly satisfying. Seriously. You could try it. ;)

Love and smoochy kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, August 16, 2004 11:40 PM CDT
Miss D,
your mama and daddy must be *SO* proud of their girl. I sit here, smiling and weeping at the same time, reading your entry. I sensed there must have been some struggle going on, but had no idea of how bad it was.

Every parent reaches a time in their child's life that they must stand back and watch while that child struggles to establish him/herself as an adult in the real world. For a healthy relationship, as the parent, you must allow that child to work things out for himself. (Forget gender accuracy, please, to faciliate things along. Otherwise, I'll be here struggling with all this until who knows when.)

With a child who has chronic, possibly life-threatening, health issues, it becomes very difficult, if almost impossible, at times to relinquish this child to his own devices. You, Miss D, have done *magnificently* on your own. But (and I say that gently) never be afraid to ask for help or accept it if offered. Besides, it makes Mom and Dad feel good to be needed. :-) And there's always other folks here on Caring Bridge that will do anything they can to help you out, too! ('dcha get that hint?) ;-)

(No, I don't actually know somebody in Boston, but I'll *FIND* somebody! I just know that there are too many other CB people out there who will know somebody in Boston for you to hook up with.) (CB-ers, y'all speak up now!)

Know that we continue to lift you up in our prayers.

Hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Monday, August 16, 2004 9:42 AM CDT
Hey Deirdre,
Thanks for your birthday wish :) 23 feels great! Anyway I just wanted to tell you that you have an incredibly way with words...you describe your emotions so precisely that I feel like I know for just one second what it's like to be in your shoes. Thanks for sharing so much with us.. as a fellow CB journal-er (if that's even a word!!), I know it can be hard to share parts of your life (the downs especially) with hundreds of people. You do a great job and know that we're all here for you... hope you have a great week and good luck with apartment hunting!

~*~*Girlie's Page*~*~

Love & prayers,
XOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Monday, August 16, 2004 3:36 AM CDT
Thanks for the encouragment that you wrote in Will's guestbook. You are an amazing young women! My thoughts and prayers are with you always.

Will Power,

Kayla - www.willpowerfund.org <willpowerfund@yahoo.com>
Charlotte, NC USA - Sunday, August 15, 2004 5:58 PM CDT
What an entry! You are the bravest, most determined girl I know! I can't imagine making the decisions you made as I sit here in good health, let alone making them while dealing with all the stuff you are. But, new beginnings are such a gift. And knowing that you have a Plan B if Plan A isn't so hot is such a bonus!
I know you must be heartbroken at leaving DC, but remember, there ARE some friends you get to take with you - the ones here on CB, who live in your computer. I'm out here pulling for you, and hoping Boston is a great place for you to be!

Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Sunday, August 15, 2004 9:20 AM CDT
Oh Deirdre....bless your sweet heart....so much pain (both physically and emotionally) for such a young woman. I am glad that through it all you found some peace and solace and the strength to move forward and make those hard decisions. My heart goes out to you - always. Hang in there!
Lisa <lblume2@yahoo.com>
Marietta, GA USA - Saturday, August 14, 2004 8:53 PM CDT
Hello, i was watching a couple of new records being set at the Olympics today, so thought i would look up some slightly stranger ones instead of some jokes.

Here's a couple;

Most spoons balanced on the face
Tim Johnston (USA) (b. 1 January 1992), was able to balance on his face (one on each ear, two on each cheek, three on his chin, two on his lips, one on his nose and three on his forehead) and balance them for 30 seconds at on May 28, 2004.


British pub landlord Garry Turner clipped 153 ordinary wooden clothes pegs on his face at the WH Smith bookshop in York, Yorkshire, UK, on September 28, 2002







Love Viks From Post Pals and Bears Who Care




viks <viks@postpals.co.uk>
- Saturday, August 14, 2004 7:48 PM CDT
Checking in, Miss D, and getting worried about not seeing any updates.

Hope to "see" you *REAL* soon on your webpage.

Hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Friday, August 13, 2004 11:32 PM CDT
Oh Deirdre--I am so sorry you are going through yet another rough time. You are always on my mind and unless I go to your website I am never aware of just how much you go through. You are truly amazing. Keep up the positive attitude. I love you.
Aunt Janet <mcalaway@new.rr.com>
- Friday, August 13, 2004 11:06 AM CDT
Oh Deirdre, I am so sorry that you were feeling so horribly. I do hope that today is a good day for you...that you are feeling well and that you are in no pain.

MANY MANY Hugs from...

Alicia and Miss Camryn (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Thursday, August 12, 2004 9:24 AM CDT
Just checking back again from the Banana's page. Sorry to hear you had such a lousy weekend! Sending my wishes for a much much better week!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Tuesday, August 10, 2004 11:34 AM CDT
Hi D,
oh, I wish I were there so I could do something for you. On the other hand sometimes it's easier to deal with this by yourself, because it's so much work just to make your body move. Human interaction can be out of the question. Well, I hope that you're feeling better by now, that all the nasty chemo has worked its way out of your system and recovery is happening. {{{{{{{{{Deirdre}}}}}}}}}

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA US - Monday, August 9, 2004 11:32 AM CDT
Hang in there neighbor! (Kansas/Missouri) I am sorry to hear that you're feeling not-so-well.....and I hope and pray that your pain ceases sooner rather than later. You just keep on moving forward....putting one foot in front of the other.....and know that this Kansas girl is thinking and praying of/for you.
Natalie & Joleigh <cayennevoncajun@hotmail.com>
Tonganoxie, KS USA - Monday, August 9, 2004 9:01 AM CDT
Hey Deirdre,
Sorry to hear you're feeling just plain awful. I hope everything picks up and you're back to your normal, 100 percent self. I'm keeping you in my prayers and sending lots of "feel good" vibes your way!!

~*~*Girlie's Page*~*~

Love always,
XOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Monday, August 9, 2004 6:30 AM CDT
Oh, Miss D, I *WISH* I could come up there and at least give you a hug, ever so gently. What you described sounds exactly what Sara went through every time she had Cytoxan. Finally, the next to last time, they gave her some Zofran. Get that dingbat doctor to prescribe some. It was amazing the difference it made. And if you need someone to go on the warpath, remember, I'm a mom on the edge (kinda like Donkey in Shrek). Ready and willing to kick some .......! Well, you know what I mean! :-p

Hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Sunday, August 8, 2004 9:42 PM CDT
What a way to spend a Friday night. Do you have the Zofran prescribed? Sounds like you need it. I think sometimes you young adults fall through the medical cracks.
Between you and Sara, my maternal urges have me wanting to scream at some doctor for you!!
I wish I was closer, I would bring you chicken soup or something. :)
Hugs!!!

Cheryl, Haley's mom <bandcvincent@aol.com>
- Sunday, August 8, 2004 6:54 PM CDT
Bless your heart! I have had you on my mind and in my prayers and now even more so......Zofran became Kelsey's newest "friend" this week......hope you feel better soon! CALL if you need anything or if you just want to talk. We love you!
Lisa, Dave, Amanda, Kelsey and Morgan
Marietta, GA USA - Sunday, August 8, 2004 1:13 AM CDT
OMG, girl, what a horrible night!!!! I sure hope you get warmed up and feeling better. I'll web-surf tonight and see if I can find a remedial-shot-administering class for you to take in your area :( Lots of positive vibes coming your way!


Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Saturday, August 7, 2004 9:13 PM CDT
Hey Deidre, thanks
for checking on Craig.

Hope your feeling good.
have a super good weekend

thanks for all the prayers
for Craig.

sending you lots of love

craig, lauren, and helen

CRAIGGY

helen <trula1@comcast.net>
- Saturday, August 7, 2004 1:45 PM CDT
Oh Lord,
Hear me
Help me
Hold me
Heal me

Pamela Woodruff <woodruff@gwu.edu>
Takoma Park, MD USA - Friday, August 6, 2004 7:50 PM CDT
Hey Deidre.
ANTI NAUSIA PILLS ARE YOUR FRIENDS?! YOU GOT IT!!! My best friend just spent the night, so we danced and bugged the my brother and his friends all night! Well, at least till 11.
Well, I've gotta go take some pills!
Peace
www.caringbridge.org/ga/haley

Haley <lilheyangeltn@aol.com>
Kingsport, TN USA - Thursday, August 5, 2004 9:26 PM CDT
So D did I tell ya how good ya look in that pic on the front page. The hat is great. Glad ya got to spend some time with family, that is so very important. Wish I could help ya find the right apt to make a new home but I am really sorta committed ta some radiation therapy at the time and 'asides Boston is so far away from Washington. But I can say I hope ya find the perfect one and settle in soon so ya can take care of yourself.
Cam the Ham and ivy <ivyjivy@yahoo.com>
lynnwood, wa usa - Thursday, August 5, 2004 3:29 PM CDT
Hey, Deirdre, sounds like your trip to Indiana was a great one! I *would* love to see the photos, but won't hold my breath, ha! Sorry to hear you are feeling punky lately. Your updates are always so positive and upbeat and BUSY that sometimes it's good for you to remind the rest of us that you need our prayers and positive thoughts as well! Take care!

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Wednesday, August 4, 2004 8:16 PM CDT
Thanks for stopping by Bailee's page, this caringbridge family is one big family, we all learn so much from each other, it is a wonderful tool. Take Care.
Robin and Bailee <www.caringingbridge.org/fl/bailee michaelbailee@aol.com>
Tarpon Srpings, FL - Wednesday, August 4, 2004 5:25 PM CDT
Hi Deirdre - I found your link through Julianna Banana's Monster Link Page. I LOVE the list of things you have learned. Lists like yours make all us "healthy" people stop and remember how lucky we are and how quickly it can all change. You have a great outlook Deirdre - never lose sight of that!
Tracy M BWC <tmangin@sympatico.ca>
Windsor, ON Canada - Tuesday, August 3, 2004 11:36 AM CDT


WavingDeirdreWaving

Hi there!

It's wonderful to meet you. Thank you for taking the time to sign Samantha's guestbook. We always love meeting new friends through CaringBridge.

So you'll be moving to Mass soon, huh? Cool! Just so you know, we're only 45 minutes from Boston so don't be afraid to call on us should you need anything at all. We're more than happy to help when/if we can.

I will definitely be back to check-up on you again soon. Please feel free to stop by Samantha's site again whenever you get the chance.

Sending lots and lots of BIG hugs and MUCH love your way!!!




Mrs. Shannon & Miss Samantha Therese <humphity@gmail.com>
#24 - Tuesday, August 3, 2004 9:15 AM CDT
Hey D,
Ha ha!! Black trash bags...that sounds so familiar. Stuff seems to have the reproduction rate of rabbits. You leave a notebook and two magazines together and the next day, it's a pile with socks, CD cases and walmart bags. What's up with that??

Awww, thanks for the props on your page. It really helps for me to know someone (YOU!) who understands how frustrating it is to be in this body that doesn't work the way I want it to, and how it's possible for me to stay in bed for 12 hours and get up feeling exhausted. Plus, you like Shrek. How awesome is that?!?

Love and smoochy kisses,
Sara :)
Sara's CB Page

PS Are you gonna eat that roasted swamp rat?

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, August 2, 2004 9:21 PM CDT
Hey Deirdre,
Thought I'd come by with some hot pink to brighten up your guestbook! I've been meaning to come by and drop you a line for ages now but somehow I just keep getting distracted! Sorry!! Wow, I read the first couple of paragraphs of your journal and thought I was reading about myself... you know, the whole watching chick flicks (I am sooo hanging out for The Notebook to finally premiere in Australia!), can't wait for Princess Diaries 2...KNITTING!! I also just learnt how to knit! It is seriously the coolest skill to pick up right now... it's the new black and I'm not kidding. I actually finished my very first scarf about a month ago...I'm so proud of it :) A little wonky on the sides but it resembles a scarf and that's all that matters!! Anyways, I hope you're feeling good and you have more of your good days... I'll be saying some extra prayers for you... take care!

~*~*Girlie's Page*~*~

Love,
XOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Monday, August 2, 2004 8:26 AM CDT
Hi Deirdre,
Thank you so much for your supportive messages on our site! :o)
We'll keep you in our prayers that your medicine starts producing some noticeable results.
Hey, between my penchant for hitting things and your sense of direction, we should go on a nice long road trip together!
:o)

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Sunday, August 1, 2004 11:12 PM CDT
Just checking in on you. Sorry about the achiness, you are right about you all being too young for all this stuff! Sometimes I feel like Haley's whole childhood has been stolen. But we just try to love her more. I wish I was closer, I would drown you in hugs. :)
Stay strong.

Cheryl and Haley <bandcvincent@aol.com>
- Sunday, August 1, 2004 2:15 PM CDT
COUNT YOUR BLESSINGS
IMA
- Saturday, July 31, 2004 9:20 PM CDT
Hey, Miss D!

I know I haven't written in a while, but I *have* been checking on you regularly!

I love your tale of adventure coming home. Reminds me of our adventure in your special city, D.C., in the summer of '88. We had driven up to Long Island, NY in our full-size van to see a doctor for Sara's brother, Tim, only to immediately head back south and away from those crazy people who drive in the NYC area. (apologies to you folks!) (Yes, we *did* drive into New York City in the days before Mapquest and lived to tell about it and, of course, now Atlanta drivers are *much* worse than those we encountered 16 years ago!)

We had spent a few days in Washington enjoying the sights and had planned our last day to start back home and just stop somewhere along the interstate to spend the night, wherever our fancy struck. *ONLY* to get stuck in a *MAMMOTH* rush-hour traffic ham on the beltway D.C. in 98+ heat. In a van with no air and a rapidly overheating engine. And three kids aged 10, 8, and 6 who were also rapidly overheating and complaining and, well, you get the picture. We managed to get off the next exit, don't ask me where it was, I don't remember, and sat in a nearby motel parking lot for an hour to let the car cool and use their facilities. <;-0 When we started back up, just down the block we spotted a US HWY 29 sign. HWY 29??!! Hey, we knew that at home, 800 miles away, that turned into Lawrenceville Highway, only 9 miles from home. So, off we went, with no idea where the road went, only that eventually it came within 9 miles of home. And we *did* make it home, although it wasn't until the next day! so, Miss D, believe it or not, you will probably remember this adventure with some fondness in years to come. :-)

And I'm praying that those nasty, nasty mouth sores will go away ASAP and you'll be feeling fine and dandy *real* soon!

Hugs from down south,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Thursday, July 29, 2004 0:13 AM CDT
Hey there kiddo...life is certainly an adventure, isn't it??? We WILL make it to Indianapolis this weekend to see Derek perform...remember, I will be driving...and I do know my rights from my lefts!!! :) Keep up the spirit...love you bunches...even in the middle of the night when you don't have a clue where you are!!! Love, Mom
Mom <Leanyjoan@sbcglobal.net>
Chesterfield, MO USA - Wednesday, July 28, 2004 10:57 PM CDT
Hi there,
Sounds like you have had a rough July! I hope things start getting better soon.
Sounds like at least the school stuff is working itself out. Boston is such a cool city....I am really excited for you.
We are in Atlanta this week finishing up the "listing" process for Haley's transplant. She is a bundle of nerves, but I suppose that is normal.
Hugs to you!!

Cheryl and Haley <bandcvincent@aol.com>
- Tuesday, July 27, 2004 9:08 PM CDT
Hi Deidre,

I scrolled down my Guestbook and I saw your link, and I realized, I haven't visited in a while. So here I am, sounds like your having a nice summer. I am too, So many things to do, so little time. Alrighty, well, thought I'd just come by and say "hey". See ya!

Adam Hays http://www.caringbridge.org/md/adam <SportsSO456@aol.com>
Frederick, MD - Tuesday, July 27, 2004 2:09 PM CDT
Hi D!!
Okay, ma'am, first of all it's just wrong to tell stories about mistaken passes when people are insomniac and on the edge (I'M A DONKEY ON THE EDGE, I TELL YOU!!!). However I enjoyed the story of you licking your lips & tongue very much...so much that I think the neighbors may have phoned the police about the maniac next door. Again. Hmm. It sounds like your BU plans are coming together pretty well! I'm glad it's going well and not causing you great harassment like Columbia..grrrr...Anyway, I hope you start to feel better soon and that your bod adjusts to the med changes. Sometimes I get so frustrated with my body because it just doesn't WORK right, you know? But I guess we have to forgive ourselves and realize that the physical part of us is just as bewildered as the mental & emotional parts. :)

Love and smoochy kisses,
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Tuesday, July 27, 2004 2:51 AM CDT
Hi D! Just stopping in to say thanks. Alyssa (even though she's only 16mos old) really appreciates all the support you are giving!! Thanks again and we'll stop by later!

Erika - Alyssa's Mama

www.caringbridge.org/al/sweetalyssa <tonysfreaka@hotmail.com>
Prattville, Al USA - Monday, July 26, 2004 11:09 AM CDT
Hey Deidre, found your
link from Julianna.

have a good upcoming week.

sending you lots of love

craig, lauren, and helen

CRAIGGY

helen <trula1@comcast.net>
- Sunday, July 25, 2004 2:10 PM CDT
My dear-
Count your blessings. Then count them again.
best of luck in graduate school

IMA
San Antonio, TX - Saturday, July 24, 2004 1:10 PM CDT
Deirdre,
What a sunny disposition you have!! In spite of all the pain and crappiness that you feel, you have such a positive attitude. It's nice to read.

Frances and Lucas <hammonds@wincom.net>
Amherstburg, - Friday, July 23, 2004 9:24 PM CDT
Hi Deirdre - I happened to run across your website (through someone elses) and decided to peek in.....wow, you are one amazing person! The outlook you have on life and your "never give up" attitude is a true inspiration. Your family and friends must be so proud of you and your accomplishments. I wish you a great weekend!
Julie Kjorsvik <kjorsvik@elltel.net>
Ellensburg, WA - Friday, July 23, 2004 3:08 PM CDT
Hey Deirdre,

I think you spelled it wrong, it isn't "medical science", it's "medival science" (did I spell that wrong?)...they could put a man on the moon waaay back when I was a baby, but they can't find ways to give us escape and comfort from the pains of our ailments?? Something is very wrong with that.

I don't think your wings don't need the workout, there are precious few people with your strength.

Take care,

Terry Josephson, Julianna Banana's dad <tjosephson@shaw.ca>
Winnipeg, Canada - Friday, July 23, 2004 0:40 AM CDT
Hello Deirdre!!
My name is Dillion and my mom and I found your website through link clicking in other Friends guestbooks.. I wanted to come by and say hello, and let you know that we will keep you in our prayers.. Here's hoping that you have a great day, an wonderful tomorrow, and an awesome weekend.. Sending lots of love and hugs your way.. All the way from the SUNNY and WAY TOO HOT state of Oklahoma..

Kimbra and Dillion BOOGIE Craig <okbabygirl20@yahoo.com>
Muskogee, OK - Thursday, July 22, 2004 2:27 PM CDT
Hey D, that is really a great picture on the front page now. I like you in that hat, but then I think you are a hottie any way. Sendin' ya a wink ;) and a big cyber hug((((D))))) and wishin you a good week end. Prayin for you ta get feelin better.

Cam the Ham, The Boss

cameron and ivy <ivyjivy@yahoo.com>
lynnwood, wa usa - Thursday, July 22, 2004 1:11 PM CDT
HI Deirdre,

Just stopping by to check up on ya.. sorry to hear you are still feeling crummy. I'm sure its all the med changes. Hopefully you will bounce back and be feeling GREAT the next time I get to catch up. Gentle hugs coming your way

Helen and Nicholas. www.caringbridge.org/mn/nicholasb <hburger64@hotmail.com>
Ham Lake, MN USA - Thursday, July 22, 2004 11:42 AM CDT


Just wanted to bring you some sweet wishes,

and Happy thoughts for your weekend,



and let you know that you are in our thoughts and prayers!!!!

sending you lots of love, and BIG ((( HUGS )))



~ Boogie's Website ~
Boogie's Caring Bridge Page



Kimbra and Dillion (Boogie) Craig <okbabygirl20@yahoo.com>
- Thursday, July 22, 2004 10:50 AM CDT
Thanks so much for checking in on my son Will. We are very excited about LTN - it's our first year!
Your site is awesome! I will certainly be checking in on you!

WILL POWER

Kayla - willpowerfund.org <willpowerfund@yahoo.com>
Charlotte, NC USA - Wednesday, July 21, 2004 10:12 PM CDT
Hi There!!!

I'm Sean, Patrick's Uncle and just read your email to him. It never ceases to amaze me how the news media would have you believe that the world is made up of all these bad people only to find out that actually it is made up of wonderful people such as yourself. Thank you for your wonderful letter to Patrick and please know that you are now on my prayer list.

We come from South Louisiana where the food is good, the weather is hot, and people are very spiritual.

Thank you from our family to yours and please know that your illness is now being prayed for by hundreds of people on our end.

Peace be with you and your family,

and I am sure that DC rocks, I hope I can visit there one day soon and who knows maybe my wife and I can look you up when we visit.

God Bless You and your Family and Friends,

Sean

Sean <smolony@esgbr.com>
Baton Rouge, - Wednesday, July 21, 2004 6:50 PM CDT
Hi D,
I understand about trying to talk to doctors - sometimes it feels like it's just a waste of breath because they've already made up their minds about what's best. And the ER? Ugh, I just think about sitting there for hours on cracked vinyl seats while waiting for the ER staff to pronounce me perfectly fine & give me some Obecalp (placebo backwards...that's what I learned from watching E.R.). It seems like it would save so much trouble to just deal with the pain or nausea or whatever. I know. There should be like a patient service that offers advocates for patients who would call up the doctor on the patient's behalf & just bawl 'em out until the doc did something useful. Hmm. I may have my next Big Idea right there. ;) Heh. Hope you're feeling better!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Tuesday, July 20, 2004 4:33 PM CDT
Brian was here
Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Tuesday, July 20, 2004 0:06 AM CDT
Found your page through another friends page.
Hang in there! Keep the faith!
Good luck in the future!

Regina Bell <ou1247@cox.net>
Norman, OK - Sunday, July 18, 2004 9:20 PM CDT
Hi Deidre.
I took Remicade once. (didn't work so well for me.) I like your new pic.
Visit my special friends website! www.caringbridge.org/fl/aiden
Peace.
www.caringbridge.org/ga/haley

Haley <lilheyangeltn@aol.com>
Kingsport, TN USA - Sunday, July 18, 2004 5:41 PM CDT
Deirdre: I would never have guessed you had been through so much after finally meeting you last weekend. You seem so upbeat the entire weekend. Your are going to make a great therapist/psychologist. I will check-in on you from time to time.
Jeff Jewell <vetrepjeff@sbcglobal.net>
Vacaville , CA USA - Sunday, July 18, 2004 2:56 PM CDT
Dear Deirdre,
I'm sorry I have this entry 3 times. I didn't think it was being transferred to your page, so I kept on trying.
Sorry for the false expectations about lots of entries. If I knew how to erase the other two copies , I would.

Grandpa Banana
bdn, mb ca - Sunday, July 18, 2004 2:13 AM CDT
Dear Deirdre,
You don't know me,but I've noticed your name a number of times on Julianna Banana's website. I'm her Grandpa.I would like to say how impressed I am with your willingness to try to make someone brighter and happier with no other motive than just your good character. Thanks for being so thoughtful ! A chinese proverb says you can't get something for nothing. You can't give something for nothing either. People who find good things to say about others will find others saying good things about them. Since you are a college student, perhaps you would like a few other quotations too.
How about these:

Everybody wants to right the world; nobody wants to help his neighbor....Henry Miller

Challenges make you discover things about yourself that you never really knew. They're what makes the instrument stretch - what makes you go beyond the norm...Cicely Tyson

A good way to judge people is by observing how they treat
those who can do them absolutely no good. Does this apply to your doctors or nurses ?

People's minds are changed through observation, not argument.

The secret of good communication is positive affirmation. It's not what you can't or won't do that interests people, but what you CAN or WILL do.

Discussion is an exchange of knowledge; argument an exchange of ignorance.

We are not primarily put on this earth to see through one another, but to see one another through. ...Peter De Vries

Change is inevitable, except from a vending machine.

Yes, I quoted all of these from a book called More of the Best of Bits and Pieces and did it for your thinking pleasure, not because you need any advice from me, except for the one about niceness clinging to you. Thanks for being so supportive of Julianna, Nicholas, Terry and Mary.
I like the stuff you are made of.

Grandpa Banana <brianjosephson@westman.wave.ca>
Brandon, Manitoba Canada - Sunday, July 18, 2004 2:06 AM CDT
Hey, Deirdre -- so sorry to hear you are feeling crummy! Your comment about the plastic v. porcelin gods made me laugh! I hope you start to feel a little better and can enjoy some of your weekend. I'll be thinking of you in the meantime,


Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Saturday, July 17, 2004 10:48 PM CDT
You are an amazing person! Thanks for signing Alyssa's web page - we will keep you in our prayers! Remember to keep God in your heart and you will get all that you ask for! We should pray, believing God will answer. Mark 11:24

In God's eternal love-
Tony, Erika and Alyssa

www.caringbridge.org/al/sweetalyssa <tonysfreaka@hotmail.com>
Prattville, Al USA - Saturday, July 17, 2004 8:33 PM CDT
Hey!
Hope the Remicade went smoothly. When Haley had those treatments, the worst of it was the boredom. I hope you have lots of company to cheer you up. Wish we were closer..but we are not, so I am sending you a cyber ((((HUG))).

Cheryl and Haley <Bandcvincent@aol.com>
- Saturday, July 17, 2004 8:43 AM CDT
The party sounds WONDERFUL! I can only imagine how much fun it was for you all.
I hope that you are able to have a nice weekend and that you are feeling well.

Thank you so much for stopping to check on little Miss Cammie!!

Alicia and Cammie (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Thursday, July 15, 2004 3:45 PM CDT
Hi Deirdre--those pictures are great. I have been thinking about you. It was great to spend time with you and your family. Sorry to hear you are not feeling well again. I love you.
Janet
- Thursday, July 15, 2004 12:23 AM CDT
Hi D,
Sounds like you had a great time in MO! Tee hee about your dad's party! When my aunt turned 50, SOMEONE in our family paid to have plastic gravestones put all over her front yard. Funny part is that it's in a sort of uptight neighborhood, so I can only imagine what all the neighbors were thinking. Hee.

Hope you feel better!!

Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, July 14, 2004 4:40 PM CDT
Hi Deirdre, Your dad's party sounded fun...and I like your list on your home page. My daughter is 17 w/ALL and takes some of the same meds you do- and we spend a lot of time waiting in ER and clinic, etc. She has also had her share of teachers who care and then those who don't so it was interesting reading your posts. Take care and I will check back often to see how you are doing. Until then I will be rooting for you from California- go Dierdre!
XXOO, Marey
http://caringbridge.org/ca/ali

Marey, Ali's mom <kteachermom@hotmail.com>
San Carlos, CA - Tuesday, July 13, 2004 10:54 PM CDT
Stopping by to let you know that your in our thoughts and prayers.
Sending lots of prayers your way. +++++++++++++++++++++++++
Love LaKota and her mom,Debbie
God be with you!!!!!!!!!!
~*~ LaKota~*~



http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, July 13, 2004 10:18 PM CDT
Thinking of you and all of our caringbridge friends on a late Saturday night. It still boggles my mind the nastiness that RA can put forth. I caught an ad for a drug for RA on TV the other day that listed as a possible *side effect* the disease that my wife is afflicted with. I still haven't done the research I should on what you are going through and hope... for selfish reasons... that I never have to learn about it firsthand.

Take care of youself and grow.

Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Saturday, July 10, 2004 11:48 PM CDT
Holy brown cows!!! Boston! That is awesomeness!! (though I hear they have something called Snow in the winter, not quite sure what that is) I think you are truly amazing with your perseverance & dedication to education (woohoo, I can rhyme!). It gives me hope that I can stick this out too...school isn't forever, right? Right?? Uh, D?!?!? AAAAAAGGGHHHHHHH!!!!!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Saturday, July 10, 2004 8:50 PM CDT
Just checking on you. I hope today is a good day!
Hugs!!

Cheryl and Haley <bandcvincent@aol.com>
- Friday, July 9, 2004 11:35 AM CDT
Hi Deirdre,
Thank you so much for your visits to our site. I'm afraid I am terribly behind.
Once again you had me nodding with empathy with your post. You are brave and courageous beyond words, and I hope you write a book about your experience some day!!
I also love the quote at the bottom of your page. I may have to borrow it also for my page. You always manage to speak what I'm thinking!!
I hope you have more energy, especially as you prepare to see your family!!

lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Wednesday, July 7, 2004 6:29 PM CDT
Hey D!!
I'm digging my way out of my hole in the earth (guess I missed the memo about my turning into a hobbit for the past two weeks)...I so understand what you're saying. Everytime I make a long to-do list, the next day is always crappy beyond belief. I try to make plans, only to get up with a brain-maiming earache or stiff knees, etc. (but then sometimes even if I don't make a to-do list, I feel bad anyway, will we ever win?). So, my dear friend, just wanted to let you know I understand, and will be praying for you. :)

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, July 7, 2004 3:14 PM CDT
Hi Deidre! Thanks for signing my guestbook. I'm so glad to hear you've had energy! I think anti nasea meds are DEFFINATLY your friends!
Peace Out

Haley <lilheyangeltn@aol.com>
Kingsport, TN USA - Tuesday, July 6, 2004 8:03 PM CDT
Stopping by to let you know that your in our thoughts and prayers.
Sending lots of prayers your way. +++++++++++++++++++++++++
Love LaKota and her mom,Debbie
God be with you!!!!!!!!!!
~*~ LaKota~*~
DOG (DEPEND ON GOD)




http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, July 5, 2004 6:30 PM CDT
Oppss... It's Deirdre!!!


Margaret www.caringbridge.com/canada/margaret <mltse@shaw.ca>
Vancouver, BC Canada - Sunday, July 4, 2004 0:03 AM CDT
Hello Dendra,

I understand about the rollercoaster we fall in. Some days I feel incredibly well and most days I look it too. Then there are those days that I just can't help, but think something might be wrong or just might be feeling ill.

It helps me just to take little steps in life. Enjoy everyday as they are. Doing the things that I want to today rather then wiating for the tomororw. School and work can wait for me.

And keep smiling, it is contageous:)

Margaret www.caringbridge.com/canada/margaret <mltse@shaw.ca>
Vancouver, BC Canada - Sunday, July 4, 2004 0:01 AM CDT
Now I know these are not the same as actual bangin' up fireworks but I just bet you get ta see some of those too if you are feelin up to it and my pretty Ms D I am a hopin' you are still having some good days. Did I mention you are a really pretty gal? Yep! Winkin atcha ;) with a big grin on my face
Cam the Ham, THE BOSS

cameron <ivyjivy@yahoo.com>
lynnwood, wa usa - Saturday, July 3, 2004 5:25 AM CDT
Hi Deirdre!
So glad you are feeling great...good days are GREAT and we'll take it anytime!! I SO know what you mean about good days and bad days and everything...I think I go through a similar thing as you...I mean, obviously we have different circumstances, like you have this ugly monster to fight, whereas I'm grieving the loss of my mother...so we both do get good and bad days...and you're right, we just have to let the good days be here and make the most of it!!! It is possibly one of the only ways to survive the bad..which is to know that we will have good days and on those good days, we'll just LIVE and make the most of the good... I hope you have more good days than bad in the future.. and to me, I don't know you all that well yet, but I know that even when you have a bad day... you'll be OKAY. You just have that strength in you and you have the right attitude.. so that definitely helps. Happy 4th of July!!!

~*~*Girlie's Page*~*~

Love,
XOXOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Friday, July 2, 2004 7:21 PM CDT
My favorite picture of my wife that I have ever seen (bar none: I just looked again at the previous winner, our wedding portrait on the wall) is of her without any hair a few months back. The smile in adversity shown in that picture is exactly why I love her so much.

Think of it this way: There are wonderful wigs out there and you can blend in when you want to. Or you could rob a bank and nobody would recognize you. Or, if you feel so inclined on a random day, you can just go out bald and either explain yourself or enjoy the questioning looks from those watching.

I draw courage from your entries.

Have a good holiday weekend.

Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Friday, July 2, 2004 6:58 PM CDT
Deidrie,

I was so happy to check in today and see that you had a good day and were able to ENJOY it!!!!... Sometimes a little bit of "normalcy" is the best medicine. Good for you!!!

Helen and Nicholas. www.caringbridge.org/mn/nicholasb <hburger64@hotmail.com>
Ham Lake, MN USA - Friday, July 2, 2004 3:07 PM CDT
Deirdre, hi! I'm so glad to read of your good day today! I don't understand all the Catholic stuff (hey, when you're raised a Protestant, Catholocism is too complicated to understand, ha!) but am so happy to hear your friend's sermon was refreshing to you. I hope the annointing of the sick works wonders!

Thanks for all the encouraging notes in Kendrie's CB guestbook. I hope you have a wonderful 4th of July holiday and a great trip home!

Take care,

Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Wednesday, June 30, 2004 5:01 PM CDT
Hi Deirdre...Thank you so much for stopping by and signing Cammie's book!!!

I am so sorry that you were having such pain, AND all of the nasty effects of the chemo. We know those days all too well. I hope that you've continued to feel MUCH better and that you were able to have a nice weekend.

Alicia and Cammie (www.caringbridge.org/in/cammiespage) <alicia41570@hotmail.com>
Kentland, IN - Wednesday, June 30, 2004 7:50 AM CDT
Deirdre- I've only had the time to scan your entries since you left an entry on my wife's site but it is obvious you have great strength and great support as well. Best wishes to you and thanks for visiting us.
Brian Schousek <schousek@yahoo.com>
Houlton, WI USA - Monday, June 28, 2004 10:09 PM CDT
Hey wat's up!! I finally decided to sign the gbook!! I'm not the typical/average person as you should know from Thurston...so I don't really want to tell you what everyone else will..u kno the typical stuff..get well..I know how it feels (even though I don't)...you will survive..and asking you millions of questions or feeling sorry for you bc you should know that I wish the best for you neways..so we are going to act like u are gettin the full 8 hours of sleep..U R WALKING w/o crutches..your HIPS feel GREAT!! enough for u to take a jog to the monument..(J/k u kno i have to have some humor lol)...so what I will tell you is if you are ever in NY ( I should be a spokesperson for this dam state lol) come thru so we can chill...so I won't be in this horrible district much longer bc summer school is almost over thank goodness...orgo is the worse class and that's all ima say about that...neways...hope u survive the rest of the CI's and the wack CD (no one compares to Sara)..good luck with grad school..keep in touch...1 of BK's Fynest....
Klarisse <klarisse@gwu.edu>
Brooklyn, NY U.S. - Monday, June 28, 2004 9:49 PM CDT
HI Deirdre,

This is Nicholas' mom, Helen. I just wanted to stop by and thank you for signing Nicks guestbook. He does enjoy seeing that poeple are thinking of him.I really need to update his site more often :O)) Im a bit lacking in that dept. I also wanted to let you know how couragous you are. I have sat and read though every entry in your journal and cannot believe everything that you have/are enduring. You are a VERY strong young woman, who I know will beat this. We both wish you all the best and will continue reading along, looking forward to the day that the medications finally control your JRA and you are pain and symptom free~

Helen and Nicholas. www.caringbridge.org/mn/nicholasb <hburger64@hotmail.com>
Ham Lake,, mn USA - Monday, June 28, 2004 8:52 PM CDT
Oh, Deirdre, how DID I miss TWO entries!!! What a busy weekend I have had - and you as well! I have been praying hard for Becky's dad and am so happy to hear their good news. Not so happy to hear you are still feeling so crummy....but I hope you do go out and celebrate Julie's birthday. HEAVEN KNOWS you BOTH deserve a good celebration!!!! I will keep checking in on you and thinking of you and I am so looking forward to seeing you in two weeks!! HANG in there, sweetie. We love you!
Lisa, Dave, Amanda, Kelsey and Morgan
Marietta, GA USA - Sunday, June 27, 2004 9:05 PM CDT
In the 1960s when I was your age there were many undergroung comic books. A character in one of them was Mr. Natural. He was an elderly man with long white hair, beard and nightshirt. He always was always walking with a firm stride and his one phrase was, "keep on truckin' "
Pamela Woodruff <woodruff@gwu.edu>
Washington, DC USA - Sunday, June 27, 2004 5:52 PM CDT
Hi Deirdre,
Thank you so much for coming to our site!
I love your page, espcecially the list! I also love the quote about faith and will use it on my next entry, if you don't mind. I am sorry you're in pain, and I hope you find a way to lessen it. My family will be rooting for you!!!

Noah's Mom Noah's Page <clowns@myhometown.net>
n st paul, mn - Saturday, June 26, 2004 10:21 PM CDT
Deirdre,
I got here through Julianna's site, and I must say, I'm glad that I found you. Where do you find all the suitable quotes? I'm trying to compile some for my son's site. In case you want to check him out, I'll leave a link.

Frances and Lucas <hammonds@wincom.net>
Amherstburg, near Windsor, near Detroit, Ontario Canada - Saturday, June 26, 2004 4:00 PM CDT
Hey D, I just do not like checkin in with one of my hotties and readin they are hurtin a lot. I know you have been here 'afore and it will happen again but go easy on yourself my pretty gal and use those meds when ya really need'em. I am finally all done with my pain meds, and it took some very slow weening to where my nerves would not make me shake and shuddar with out'em, but I made it. Pain is the same for everyone, and it does not matter what causes it and so when ya are hurtin take it! This four year ole BOSS says "just take it". An listen to Sara's Mom the zofran is great. Stops my gaggin like right now! Sendin a cyber hug(((((D)))))) and winkin atcha ;)
Cam the Ham, THE BOSS
Cameron and ivy <ivyjivy@yahoo.com>
lynnwood, wa usa - Friday, June 25, 2004 11:01 PM CDT
{{{{{{{{{Deirdre}}}}}}}}}

That's a *BIG* hug from me to you, hoping to make you feel a "little" less nauseous. I have one word for the nausea: Zofran. Call that stinky doctor and tell him/her that you want some. That was the one med that helped Sara with her chemo. We found out about it on her fifth dose. I won't tell you how many times she could have used it and didn't have it, or had to try something else the drs thought would help. *NOT*!!

One other thought..... Darvocet makes Sara and I both puke our guts up. Could that possibly also contribute to the chemo this time? Just a thought. Anyway, this mom of Sara is praying that the nausea/vomiting/yucky feelings will soon subside and the wonderful/bouncy/feel-good days will return.

Love and hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Monday, June 21, 2004 9:10 PM CDT

To all the Dad's in your life
Cam the Ham and family

ivy <ivyjivy@yahoo.com>
lynnwood, wa usa - Sunday, June 20, 2004 3:04 PM CDT
Hi Deirdre--it's me the 'infrequent' visitor. I thought you would have seen some of the Reagan stuff. You are right it was history. Kim & Scott even watched it on TV. I am glad you are having some better luck dealing with your pain. I love the pictures. Take care. I love you.
Janet
- Friday, June 18, 2004 11:14 AM CDT
I was #5003! Is that close enough?? Do I win the prize?? (a red salmon!!!)

Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, June 16, 2004 9:07 PM CDT
I THOUGHT that was you in the crowd on CNN!

Deidre I'm very happy to read that you seem to be winning the pain game, that is wonderful news. You don't deserve to have to live through pain, so I hope this leads to living pain free.

Luv,

Julianna banana <tjosephson@shaw.ca>
Winnipeg, Canada - Wednesday, June 16, 2004 1:59 PM CDT
Hey D!
I was thinking about you last Wednesday when NBC was broadcasting from Washington, & I actually did think at some point, 'hmm, I wonder if Deirdre is on the streets watching this in person?' It was an amazing event, & I bet it was probably even more impressive in person.

Oh, the ups & downs, why are there so many more downs than ups? I completely understand - I remember a Sheryl Crow song that goes "I've been living off of coffee & nicotine," only for me it's "I've been living off of granola bars & Vicodeeeeeeeen" (if you say it that way it still sort of rhymes). I keep waiting, waiting for a magic pill. Oh, sigh. Anyway, hope you're having MASSIVE FUN at your Grown-Up Person's job!!!!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, June 14, 2004 9:07 PM CDT
Yep, gal you are a super person. I visited your brothers page and I am glad he started his own. I had ta stop by and tell you how nice you are and pretty too. Sendin you a big cyber hug(((((D))))) and prayin the meds work miracles for you to take away the owies. ;)

Cam the Ham,THE BOSS <ivyjivy@yahoo.com>
lynnwood, wa usa - Monday, June 14, 2004 0:32 AM CDT
Wanted to say hi and I'm glad that you are having a pretty good week. I'll keep you in my thoughts and prayers.

Trista Long <Chris-Trista@att.net>
Fairmont, wv usa - Saturday, June 12, 2004 1:14 AM CDT
Hi Deirdre,

I'm really glad to hear you are having a good week. It's amazing what you have had to adapt to [no, not your parents :)] and how you have learned to appreciate life's little pleasures as you constantly battle your health issues. I hope the new meds continue to help. Glad to hear everyone will be back on the east coast and closer to you. Take care, Don

Don Murphy <dmurphy@scientech.com>
Frederick, MD - Friday, June 11, 2004 12:21 AM CDT
Hi Deirdre,

I check your site daily and enjoy your updates. I'm glad to hear you are feeling better. You deserve it! You have accomplished so much with so many road blocks along the way. I don't even know you but can't help but feel so proud (can just imagine your family!!!). As a fellow catholic, I am inspired by your strong faith as it only seems to get stronger inspite of all of your hardship. I will continue to check on you and pray for you daily!!!

Kelly <kandrade75@yahoo.com>
St. Petersburg, FL USA - Friday, June 11, 2004 8:35 AM CDT
YAY for good days, less pain and here's hoping and praying for stomach miracles!!!! I've had some anti-inflammatory drug fun myself these days - so taking zantac like crazy. Your mom says I need the "little purple pill" - ha!! I like to say "I feel your pain" in sympathy, not reality!!! Truly, I'm so glad to hear that things are going well for you and that the meds are working. I thought about you during Reagan's procession and wondered if you were out there....glad to see the pics. Thanks for updating us and I'm still out here checking on you regularly. I have aspirations of being 5k!!! Take care of yourself - I love you!
Lisa
Marietta, GA USA - Thursday, June 10, 2004 10:33 PM CDT
Hey D,
okay okay, you win, I read up a bit on cicadas & you're right, they are nasty treacherous little buggers. But I hear they make a nice CRUNCHY noise when you mash them! Hooray!! :) Heh.

Hope the quietness on the update front means you're having a GREAT week & waltzing about Washington squashing cicadas!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, June 7, 2004 3:11 PM CDT
What a great picture of you and Derek. Yes, I am just looking now. Work has been crazy. I hope you are feeling better. Love, Janet
Janet <mcalaway@new.rr.com>
- Thursday, June 3, 2004 10:54 AM CDT
I meant to add that I LOVE cicadas! We call 'em June bug down here (and then July flies later on), they're my favorite sound of summer. Of course I read that they can be incredibly deafening in large numbers...hope you've got some earplugs so you can enjoy the sound when you want to. :) Heh.

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, June 2, 2004 4:15 PM CDT
I will forever be known on the World Wide Web as the Mom who makes war on fannies................ My moment of greatness............... (okay, okay, I *know* I'm weird!) :-p

Hope your cocktails *all* kick in soon and you're feeling super-dee-dooper soon! (Can you tell that I saw something today that reminded me of Barney the Dinosaur?!) (Actually it was the most absolute purpley purple car I've *EVER* seen and *I* was *not* on any cocktails, medical or alcoholic, whatsoever!

Hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Wednesday, June 2, 2004 0:48 AM CDT
Hi there D. I can call ya that can't I? I really like ta flirt ya know, and I have some really cute gals on my friends list that are about my age and size, but have ta tell ya between Oscar aka Sara and you I am likin' the older set too. Just wonderin' if ya want ta wait a few years for this guy to grow up, nah I guess that would be askin' a lot, sides I'd have ta ask Sara ta wait too and then if ya did I'd have ta pick and I no like ta have ta pick, I like all the gals. The ole gal wants me ta say somethin' for her. You live in a great place. You are so lucky, even if it is overrun by locust and quackin' ducks. So far I have not been outside to see if the ducks or the locusts were here. I think I can wait! Keep lookin for the humor in life, it is the best way to get through the rubbish! The ole gal found this in another web page and gets a kick outta it, cuz it is somethin' a kid would do, yep it is. Hope it makes a grin come on your face too.

Why Parent's Go Gray

The boss of a big company needed to call one of his employees about an urgent problem with one of the main computers. He dialed the employee's home phone number and was greeted with a child's whispered, "Hello?"

Feeling put out at the inconvenience of having to talk to a youngster the boss asked, "Is your Daddy home?"

"Yes", whispered the small voice.

"May I talk with him?" the man asked.

To the surprise of the boss, the small voice whispered, "No."

Wanting to talk with an adult, the boss asked, "Is your Mommy there?"

"Yes," came the answer.

"May I talk with her?"

Again the small voice whispered, "No."

Knowing that it was not likely that a young child would be left home alone, the boss decided he would just leave a message with the person who should be there watching over the child. "Is there any one there besides you?" the boss asked the child.

"Yes," whispered the child, "A policeman."

Wondering what a cop would be doing at his employee's home, the boss asked "May I speak with the policeman?"

"No, he's busy," whispered the child.

"Busy doing what?" asked the boss.

"Talking to Daddy and Mommy and the Fireman," came the whispered answer.

Growing concerned and even worried as he heard what sounded like a helicopter through the ear piece on the phone the boss asked, "What is that noise?"

"A hello-copper," answered the whispering voice.

"What is going on there?" asked the boss, now alarmed. In an awed whispering voice the child answered, "The searchy team just landed the hello-copper."

Alarmed, concerned, and more than just a little frustrated, the boss then had to ask, "Why are they there?"

Still whispering, the young voice replied along with a muffled giggle...

"They're looking for me!"

Sending hugs and smiles to you today

Cam the Ham, almost & the ole gal <ivyjivy@yahoo.com>
lynnwood, wa usa - Tuesday, June 1, 2004 11:46 PM CDT
Hi D,
LOVE the new homepage pic! Awwww, so sweet! (and what an accomplishment, I think of you a lot when I'm trying to slog through another Boring Book for school) Bwaha to the "pain control cocktail" - I always think of my pills that way, there's my Morning Cocktail, Evening Cocktail, and Nice Little In-Betweens. Hee!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Tuesday, June 1, 2004 9:01 PM CDT
Hey D!!
No, I haven't dropped off the face of the earth (YET, anyway). Hooray for no mouth sores and real toothpaste! This is excitement!! One of the great joys of life is going to the drugstore and spending an hour deciding which toothpaste to buy (mint? cinnamon? herbal blast? whitening? cavity-prevention?)!! Hope your brief hospital stay went splendid and you managed to subvert the system and all that.

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Friday, May 28, 2004 9:16 PM CDT
Oh My a great big S'milestone in your life. You look so great in the graduation garb, and I am happy for you that you completed your goal. I want to follow your web site to see what antics you might be engaging in next and send you prayers and encouragement to be all that you can. I know you are a great source of pride and happiness for all of your family and friends.
Ivy and Cam the Ham, almost <ivyjivy@yahoo.com>
lynnwood, wa usa - Friday, May 28, 2004 3:39 PM CDT
My dearest D,
I just finished a Remicade here at home and so I thought of you... It seems like things are smooth sailing, at least for the moment (you know, be thankful for the good days, they help you get through the bad). I also wanted to tell you how wonderful the graduation photos look. You better believe I will find your brother next year and torture him.. that is, if he is one of my residents :) Anyway, enjoy being an SA, don't hurt any CLLC staff members too badly, and I miss you. See you soon, Chrissy

Chrissy
Hazleton (temporarily), PA - Friday, May 28, 2004 1:42 PM CDT
That was the first I saw of you and your brother in your graduation gear...tears are streaming! How could I possibly have two such great kids? Congratulations...its been a rollar coaster of a month, hasn't it??? Hang on, it isn't over yet!!! See ya in DC in a few weeks. Love you bunches...Mom XXXOOOXXX
Darlene Goltz <Leanyjoan@sbcglobal.net>
St. Louis, MO USA - Thursday, May 27, 2004 10:30 PM CDT
Awwwww.......those are GREAT pics!!! Thanks for putting them on your site, Deirdre. I'm so glad you can find humor, beauty and peace even during some of your roughest times. Those are the qualities that keep me in awe of you and your strength and perseverance. Take care - we are thinking of you and we love you!
Lisa, Dave, Amanda, Kelsey and Morgan
Marietta, GA - Thursday, May 27, 2004 9:49 PM CDT
Hello Dierdre,
I am so glad your mother sent me the link to your site... I have spent the last hour browsing and catching up. The internet is a wonderful tool for helping people stay in touch...
First of all - congratulations! I am very impressed! Your committment and drive are an inspiration. Best of luck as you begin your post-graduate studies.
Second - God bless you. When you lived across the street I was able to keep abreast of your health issues through chatting with your folks - but I had no idea how difficult the battle had become for you. I will have to stop whining now when my joints bother me - living with Sjogren's is nothing compared to what you face each day.
Now that I know of this site, I will check back often to follow your adventures -
Take care of yourself - lots of love and best wishes,
Sue

Sue Murphy <murfamily@adelphia.net>
Frederick, MD USA - Monday, May 24, 2004 7:13 AM CDT
Sounds like you're having a "mahvelous" time! Enjoy it, Deirdre. You've *earned* it in more ways than one.

Smiles and hugs from down South,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Monday, May 24, 2004 1:35 AM CDT
Congratulations on your Graduation! :) I LOVE graduating! Sounds like you've been having a great time :) It's very cool to have a pain mangagement doc for a neighbor! For some reason, my office at the hospital I work for (I'm a Speech Therapist) is in the Pain Management clinic. I get to see all sorts of funky stuff out of the corner of my eye as I walk through there to get to my office. I hope you get some relief!!!! I think there's a joke in here somewhere: you live in one of the most obese cities in the US and have a restaurant called the Elephant Bar, but I'm too tired to think up the joke. Laugh and pretend I said something witty :)

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Sunday, May 23, 2004 9:39 PM CDT
Congrats on graduating! Enjoy the summer! I just wanted to see if anybody knew the username/password to get into Sunny_Survivor's page?? I've been following her story for a while and the suspicious events of the last few days had me puzzled. And then they password it! So anyway...just wanted to know if anybody knew how to get in and read what is going on. Thanks!!
Sheryl
- Sunday, May 23, 2004 8:26 PM CDT
Congratulations on your graduation. i am praying that you can eat "real people" food very soon. I bet you are very sick of mashed potatoes!
caringbridge.org/ga/haley

Cheryl (Haley's mom) <bandcvincent@aol.com>
- Saturday, May 22, 2004 2:16 PM CDT
Way to go Deirdre! Fantastic! Keep up the great work!

Love, Uncle Robert and Dawn

Robert Goltz <bicyclebob@sbcglobal.net>
Rockford, Il america - Wednesday, May 19, 2004 11:07 PM CDT
"Free at last! Free at last! Thank God Almighty, I'm free at last!"

(apologies to MLK!)

Congratulations on earning a well-deserved degree! Those pictures put a big smile on this face! And, no, when Sara has her hysterics upon falling from the stage, I will *not* make war on her fanny. (I'll probably be laughing, too!) (To other readers, please read Sara's note below to make any sense of this!)

(sigh...........to be known on the WWW for "making war on your fanny")

*BIG* hug from down south,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Monday, May 17, 2004 10:41 AM CDT
Awesome picture! Congratulations graduate........you should be very proud.

Sending love, hugs and prayers from CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Monday, May 17, 2004 10:32 AM CDT
Congratulations Graduate!!! I am very proud of you. What a major accomplishment--college in three years along with not feeling so well so often. Good luck with everything. I love you.
Janet <mcalaway@new.rr.com>
- Monday, May 17, 2004 8:32 AM CDT
Congratulations on your graduation!!! Good for you! You look great in your cap and gown. Just wanted to say hi and hope you have a great week.
Sheri and Spencer http://www.caringbridge.org/wi/spencerupdates/ <jjss1@verizon.net>
Marshfield, WI USA - Monday, May 17, 2004 3:12 AM CDT
Aw, look at you in your cap & gown!! Too awesome! Hope you had a totally awesome weekend celebrating with the family!!!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Sunday, May 16, 2004 9:14 PM CDT
WOO HOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!!!CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!I have been thinking about you all day - those are awesome pics, thanks so much for posting them. I am SO proud of you......I have been telling everyone who will listen to me that my wonderful, beautiful, intelligent, talented niece is graduating today. (I don't think they are quite as impressed as I am but what do THEY know??). We are so happy for you - enjoy all the celebrations! We love you!
Lisa, Dave, Amanda, Kelsey and Morgan
Marietta, GA USA - Sunday, May 16, 2004 7:08 PM CDT
Hey Deirdre,

Congradulation on graduation. Seems like we were in High School just yesterday. I am so proud of you! Hopefully I wont be too far behind you. I hope things continue to get brighter, I can not think of someone who deserves it more than you! My parents send you a congradulations as well! Hope to see you soon, God Bless!

Matt Markillie <mwmav8r01@aol.com>
Manchester, NH USA - Sunday, May 16, 2004 11:54 AM CDT
Deirdre, This is my first time to your page and I loved reading your update,etc. You're a real cutie. Congratulations on graduation. That's a wonderful accomplishment. Best wishes to you and I'll be checking on you soon. Love and Angel Hugs, Louise


\




Louise <AngelHaps@aol.com>
Colo. Spgs., CO - Sunday, May 16, 2004 0:07 AM CDT
Hey D!
I'm glad that meth-day wasn't quite as bad as anticipated - hopefully the place has cooled off by now so you can get plenty of rest before the BIG WALK ACROSS THE STAGE tomorrow! (oohs and aahs here) Secretly I'm convinced that when I do THE WALK I'm going to fall off the stage and will then commence a fit of hysterics, at which point my mother will march up from the audience and - you guessed it - make war on my fanny. :) Hehehe!

CONGRATULATIONS!!!!!!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Friday, May 14, 2004 9:35 PM CDT
Why am I *not* surprised to find that you've been an RA? :-)

Sara's oldest brother was an RA as well and he, too, cared very much for his residents. Still does after graduating two years ago, and still stays in touch.

And, hey, Deirdre, one of our fondest, deepest desires has been to be in Boston over the Fourth of July to enjoy the concert by the Boston Pops in the shell by the river and watch the fireworks over the water in person and listen to the howitzers go off in the 1812 Overture. Maybe, if you're there, we could tag up,hmmm?

You go, girl, and enjoy every minute of graduation. Bear with your mom and dad through the tears. It's so *neat* to see your child achieve that milestone, yet bittersweet as well. I well understand your mom's note. Been there and hope to again sometime soon. {....big cheesy grin for Sara!....}

And I'll be praying about the methotrexate. (grrrrrrr for nasty, necessary stuff) And, no, Sara's pain meds haven't kicked in yet.

Have a *WONDERFUL* graduation, Deirdre!

Hugs from down south,

Merri Williams, mom to Sara Sara's CB page <Mamamerri@msn.com>
Decatur, GA USA - Wednesday, May 12, 2004 10:20 PM CDT
Deirdre, this is the first time I have ever been to your website and I wanted to tell you how much I love the list at the top of the site --- especially numbers 11 and 16! The "not studying" and "binge drinking" comments made me laugh out loud!!

Best of luck to you during graduation and all the craziness it entails. What an exciting time! (can you tell I am a middle-aged, jealous old lady?? Ha!)
Best wishes,


Kristie (ALL List) Kendrie's Page <kristieokc@cox.net>
Byron (Robins AFB), GA - Wednesday, May 12, 2004 10:12 PM CDT
Hey there kiddo...one more day before we (Daddy and I) head to DC for your BIG graduation...so...how many tissue boxes should we bring? This is definitely going to be your big day and I am soooooo proud of you. As Mahfouz wrote..."In a blink of an eye, life passes you by"...and it seems that it has just been an instant since they placed my pretty precious sweetheart in my hands and now look...she is graduating from college. You go, girl. I love you bunches...Mom XXXOOOXXX
Darlene Goltz <Leanyjoan@sbcglobal.net>
Chesterfield, MO 63005 - Wednesday, May 12, 2004 7:54 PM CDT
Hey Darling!
I'm so proud of you for graduating!!! I still have one more year before my walk, but all the same, I'm excited for you. I'm glad that you are taking good care of yourself and that you are surrounded by so many loving people.

Christine Johnston
St. Mary's City, MD USA - Tuesday, May 11, 2004 4:01 PM CDT
Hi Deirdre - I just read your Mother's Day poem........it's beautiful. I bet your mom loved that! 7 days 'til graduation, that's awesome. You should be very proud.

As always, sending love, hugs and prayers from CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Tuesday, May 11, 2004 8:38 AM CDT
Deirdre~ Yippee! about being finished with the exams, and being on the way to graduation! That's the BEST! Enjoy every minute before starting grad. school (which was *much* easier than undergrad, I thought). Congratulations! :)
Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Monday, May 10, 2004 10:28 PM CDT
WooooOOOOooooOOOOoooo!!! I am doing the Dance of Graduation Joy, coupled with a slight limp thanks to the ol' stiff knee. (very amusing, apparently, according to the neighbors) I am so pleased for you - now you can relax. And maybe some of your joint pain will lessen, too, it works that way for me sometimes. I'll be really focused or stressed out, and once I get through the issue at hand, my body seems to heal and relax better. Anyway, may I suggest A PINA COLADA!!!! And a walk in the rain!!!

Love and hugs
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, May 10, 2004 10:20 PM CDT
I handed in my last final today so I can echo the cheer: YAY FOR BEING DONE WITH THE SCHOOL YEAR!!! And for you, with the "undergraduate experience"... I'm glad you're only going to NYC, let me know when you're going up there to visit this summer since I'll be in Manhattan workin' my tail off - and hopefully getting familiar enough with the city to show ya around.
Caitlin <cjm45@georgetown.edu>
Washington, DC USA - Monday, May 10, 2004 9:50 PM CDT
Hey D!!
Hopefully by now you're written your last final with blinding brilliance ("This is the best paper I've ever read!!! A++++++++++++++!!!") and can relax & PAINT THE TOWN RED!!!!!! Or spend a day in bed (which I always find wholly rewarding). Congratulations on all your hard work!!!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Monday, May 10, 2004 2:29 PM CDT
::::::sniff:::::: Keep up the poetry, Deirdre. It was beautiful and touched this mother's heart! Betcha made your mama cry last year, too. And I'm *so* excited to hear that tomorrow's the *final* final! ;-) I'll be praying that you'll be able to cruise right through and stay the course with as little physical discomfort as possible. (easier to concentrate that way!)

Hugs from down south,

Merri Williams, mom to Sara (www.caringbridge.org/ga/sarawilliams) <Mamamerri@msn.com>
Decatur, GA USA - Sunday, May 9, 2004 11:39 PM CDT
Deirdre:

Just stopped by from the Sunny Survivor's site and wanted to say what a blessing your poem was.

I am spending yet another Mother's Day from my mother (she went to live with Jesus in 1998) and it has felt rather odd that for the first time I was not overly melancholy. I read your poem and realized why. As I get older I see her reflection in my own eyes and realize she's still here with me.

How wonderful you are realizing that with your Mother still here on Earth. And how truly wonderful you found your voice to tell her.

Thank you you have made me smile today. God Bless,

Kim Eplett (via Sunny-Survivor) <knadn_eh@msn.com>
O'Fallon, MO USA - Sunday, May 9, 2004 6:38 PM CDT
hey Deirdre,
I'm just checking in to see how things are going. I hope all is well and that the graduation countdown marches on!


Grace-Elizabeth Lynn <grace_elizabeth_lynn@yahoo.com>
Washington, DC - Sunday, May 9, 2004 7:03 AM CDT
Deidre, I just finished reading your entired journal & after many tears & a few chuckles decided to say HI!
I often get on my pc at night & do the whole CB Link-a-thon
thing & that is how I ran across you this morning.
What a remarkable young woman you are! I am sorry to hear that you are not feeling well but will say some extra prayers that each day gets better & better for you!
I got started with CB via a personal friend who has a page! Her name is Michaela (aka Mikki to her b/f Chance who also has a page) & have been "hooked" ever since. I personally can't think of a better way to spend a Friday night than reading CB pages for 6-8 hours--LOL!
Anyway, I WILL be back to check on you.
Below are Mikki's & Chance's links. These 2 are sooo cute!
Have a GREAT weekend sweetie!

~!~HUGSSSSSSS from South Dakota~!~

Mikki: www.caringbridge.org/sd/michaela
Chance: www.caringbridge.org/ga/chance

Jodi Simerly <jlsimerly@yahoo.com>
Watertown, SD - Saturday, May 8, 2004 10:41 AM CDT
Funny how a person can feel deep and abiding love for another person who is two generations away age wise and miles away geography wise and even more peculiar, a person never met! But Deidre, as I sit here, the only word I can use is love, with a large dose of gratitude for your existence. Hang in girl! You'll give great things to this world -- we need spirits like yours.
Tamsen <aichinfo@cox.net>
NE - Friday, May 7, 2004 12:44 AM CDT
Hey Deidre,
I found your site on Kelly's site and had to come by and say hi...it must be so exciting to be graduating soon!! I graduated last August and I just could not wait!! (you can tell just how excited I was if you read my past journals). Anyway I just wanted to say congratulations!

~*~*Girlie's Page*~*~

Love always,
XOXOXOXOXO

Janice <janiceliew1981@yahoo.com>
Melbourne, Australia - Friday, May 7, 2004 7:54 AM CDT
Hi Deirdre.

I'm not exactly sure how I found your site, but I have been following a handful of CB kids, some now angels, for about 2 years. I just finished reading your entire story. You are one strong girl! My dad has RA, but his onset was much later than your's. So far he hasn't had any organ issues. He has had one knee replacement, is procrastinating knee #2, has very little use of his hands, and his elbows are bent at a 45 degree angle. (He still manages to give the best hugs!) So, in some small way, I can imagine what you are going through. Your courage and spirit are so evident. You are an inspiration.

Congratulations on your graduation and best of luck in NYC. If you like NY delis, let me know and I'll point ya in the right direction!

Christi <hamilton.fam@cox.net>
Dove Canyon, CA - Thursday, May 6, 2004 5:14 PM CDT
11 days 'til graduation, how cool is that??!! I have to tell you, you should be proud of yourself w/all that you accomplish and having to deal w/the pain you endure too. You're obviously one strong woman!!! You go girl!

As always, sending love, hugs and prayers from CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Thursday, May 6, 2004 9:22 AM CDT
DEIDRA, STUDY HARD AND GOOD LUCK ON YOUR FINALS, YOU ARE VERY BRAVE TO FEEL THE WAY YOU DO AND YET GO FOR YOUR EDUCATION. YOUR DOING GREAT!!!!!!! KEEP UP THE HARD WORK AND HOPE YOU FEEL BETTER VERY SOON.
LEXY'S NEUROBLASTOMA FIGHT


PAT NEWTON (LEXY'S NANA) <pnewt4@aol.com>
NEDERLAND, TX - Wednesday, May 5, 2004 7:47 PM CDT
Good luck with your genetics final!!! I'm thinking about you.
Love, Lisa
Marietta, GA 30062 - Wednesday, May 5, 2004 1:33 PM CDT
Hi Deirdre - wanted to see how you're doing. Hope you're feeling better!

As always, sending love, hugs and prayers from CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Wednesday, May 5, 2004 8:23 AM CDT
Hi Deirdre - stopped by to say hi and see how you're doing. I haven't checked your site in a couple of days but that doesn't mean you're not in my prayers all the time. It's funny because when I say my prayers for my caringbridge friends, I ask God to help you and my sister Deirdre!! It's like this, Dear Lord, please be w/Mikey, LaKota, Craig, Deirdre, Deirdre, Abbey, Savannah's family and unfortunately, the list goes on. I hope you can find some pain free days real soon. I'll pray for that for you.

Sending love, hugs and prayers from CT. Hang in there!

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Tuesday, May 4, 2004 12:16 AM CDT
Deidre:

Just popped in to say Hi! I love your outlook - so cool!

Prayers your way today,

Kim Eplett <knadn_eh@msn.com>
O'Fallon, MO USA - Tuesday, May 4, 2004 10:08 AM CDT
Hang in, Deidre! And know there are a bunch of folks plugging for you, sending strong and good thoughts your way, even though you haven't the slightest idea who we are. (Well, you can see the name but I mean really know.) This Nebraska Mom thinks of you often, is glad she doesn't have any more finals, and is inspired by your courageous attitude toward pain. Hugs to you!
Tamsen <aichinfo@cox.net>
Elkhorn, NE USA - Monday, May 3, 2004 11:50 PM CDT
Deirdre ~ SUCKS!!! that you're in pain :( But WOOOHOOO! that it's okay with you that I'm now a lurker at your site. Wait, I'm not a lurker if I post sometimes, right? :) Besides, I prefer the term, "skulker." Yeah, it's late and I'm tired. Anyway, I sure hope that tomorrow is a better day, and I wanted to tell you that you're not a whiner AT ALL. You're just tellin' it like it is. So there.

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Monday, May 3, 2004 11:25 PM CDT
Oh, Deirdre, I'm so sorry you're in so much pain. I know there's really not words to describe it, just some basic human instinct to scream and maybe that will release all the hurt. I hope tonight is an easier night and that you will get some rest (or some serious drugs). ;)

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
DECATUR, GA USA - Monday, May 3, 2004 11:20 PM CDT
Deirdre I am really sorry for your pain, and the meds that help ruin your stomach. This I know all too well, difference is I am an ole lady and you are such a young one. I have had gout since my early thirties, but it only showed up on occaision, not all the time like yours does. But I have had to stop taking all the anit-inflamatory pain relievers too since the stomach rebelled a couple of years ago and developed a bleeding ulser, causing me a hospital stay to get a transfusion. It is not good for a heart patient to get low on blood, causes potential for heart attacks. Prayers your pain gets easier and you are able to get through finals without losing your mind from lack of sleep.
Ivy & Cam not feeling much like a BOSS or a Ham these days

ivy and cameron <ivyjivy@yahoo.com>
lynnwood, wa usa - Monday, May 3, 2004 5:23 PM CDT
So, as requested I am signing your guest book. As usual I was behind in reading your journal entries and it sure sounds like it's been a tough week. Know that you are always in my prayers. Good luck with finals. I love you.
Janet <mcalaway@new.rr.com>
- Monday, May 3, 2004 10:53 AM CDT
Its nice to see someone in so much pain but yet goes on in life and tries to overcome. Maybe your an "old Sole" my son was I think from reading your quite a brave young woman. Good luck to you. www.caringbridge.org/va/maxie/
Christy <maxiewithlove@aol.com>
Amelia, VA - Saturday, May 1, 2004 10:42 PM CDT
You can't tell it but I am typing very quietly so as not to disturb your intense finals preparations. And I'm certainly not laughing because I got an extension on my finals, oh no, not me. ;) (so I got an extension because of being sick, but hey! an extension is...well, an extension) Anyway, hope the methotrexate is doing its job & that you start feeling better soon! And of course the best of luck on finals!! I'll be praying for you!

Love
Sara :)
Sara's CB Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Friday, April 30, 2004 2:01 PM CDT
Thank you for leaving a link in Cameron's guestbook so we could visit you page and get to know you. Wishing you great success with the finals and the paper, give it your best shot and you will ace them all. We appreciate your message in Cameron's guestbook and we will keep track of you now that we know how to find you.
Ivy & THE BOSS (Cam the Ham)

ivy and cameron <ivyjivy@yahoo.com>
lynnwood, wa usa - Friday, April 30, 2004 12:58 AM CDT
Deirdre, thank you
so much for checking
on Craig. Hope you
have a great weekend.
sending lots of love

CRAIGGY

craig <trula1@comcast.net>
- Thursday, April 29, 2004 11:25 AM CDT
YAY for completed classes and GOOD days!!! Thrilled to hear that all is going well for you and hope that methotrexate experience was minimal. And I love your quote from Agnes DeMille. :-) Take care of yourself, Deirdre. It's nice to hear how well things are going for you.

Blessings,

Merri Williams, mom to Sara (www.caringbridge.org/ga/sarawilliams) <Mamamerri@msn.com>
Decatur, GA USA - Thursday, April 29, 2004 9:29 AM CDT
Hooray for good days.....and new beginnings!
Aunt Lisa
Marietta, Ga USA - Wednesday, April 28, 2004 11:09 PM CDT
Hey Deirdre!
Thanks for the laughs - I was like, 'hmm, coke, well, she's in DC.' Heh. Hope your mouth sores ease up soon, those are the WORST (especially if you have to keep your mouth open at night while you sleep and then you nearly drown yourself in drool and...am I giving away too many of my secrets here?).

I love that Ginny Owens song. It was the first song I heard on the radio after I was first diagnosed - if she can sing that, then so can I.

Down with PAIN!!!

Sara :)
Sara's CB Page


Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Wednesday, April 28, 2004 6:12 PM CDT
Deirdre ~
I found your site via another Caringbride site (can't even remember how...I got a little link-happy). You don't know me, but let me tell you - I know a lot of trivia...of the *really* trivial kind. But I did not know that stuff about WonderWoman and the polygraph. Good thing I have lots of empty space between my ears; I'll add that little tidbit :)
Have a happy Wednesday, and I hope the stinkin' mouth sores go away soon. Mouth sores are just awful.

Jadine Doyle <jadoyle@cox-internet.com>
Pflugerville, TX USA - Wednesday, April 28, 2004 8:55 AM CDT
Hi Deirdre - Happy "Hump" Day! Hope you get some sleep today and I hope your mouth sores are beginning to heal. Hang in there....brighter days are ahead!
Aunt Lisa
Marietta, Ga USA - Wednesday, April 28, 2004 8:34 AM CDT
Deirdre, I came across your site a few weeks ago (I don't even remember how I came across it now!) Congratulations on your upcoming graduation! I remember the torture of exam time, and I can't imagine feeling like junk in the middle of it all.

Good luck with the final days of classes and I hope you're feeling better :)

Jaime <jaime@inaudiblemelodies.com>
Asheville, NC - Tuesday, April 27, 2004 6:23 PM CDT
I so hear you - there are some men out there that can handle everything that comes with a chronically sick girlfriend/wife, but so far they all seem to be in hiding or else in medical coats and strictly interested in my blood. Hmph. If I find an extra, I'll send him your way. ;)

Sara
Sara's Page

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Tuesday, April 27, 2004 0:29 AM CDT
LoL Methotrexate..A hangover the next morning without the fun party memories behind you.. They should put that on the bottle. You know how they have those Cancer Sucks Club shirts.. I think we totally need to start an Arthritis (or Juvenile Arthritis) sucks club and make shirts.. It would be fun. Glad to hear you are doing better. We're in this fight together.. and you know we will prevail!
Lisa (www.caringbridge.org/ca/lisaspage)
- Saturday, April 24, 2004 3:06 PM CDT
Hey, Deirdre, from down south outside Atlanta-----> 0/

Checking in to see how things went and was glad to hear that your Remicade infusion went so well. Despite the methotrexate, I hope you have a great weekend.


Merri Williams, mom to Sara, www.caringbridge.org/ga/sarawilliams
Decatur, GA USA - Friday, April 23, 2004 6:47 PM CDT
Hi Deirdre, I hope you don't have too rough a weekend. Hang in there and keep that positive attitude. Love, Janet
Janet Calaway
- Friday, April 23, 2004 4:48 PM CDT
HI,
Just dropping in to spread the love and support! You are beautiful and have a wonderful way with words! May the Lord bless you always and grant you peace and serenity!

God Bless You
www.caringbridge.org/ny/josegomez

Dinah and Jose Gomez <djgomez350@msn.com>
Tampa, FL USA - Wednesday, April 21, 2004 10:11 AM CDT
Hey Deirdre,
It's nice to 'meet' you - my mom has been really impressed with your site (& your writing, heh). It's also nice to know that other people with autoimmune diseases are going around being normal and doing normal things. ;)

Sara :)
www.caringbridge.org/ga/sarawilliams

Sara Williams <BethieAUS@msn.com>
Decatur, GA USA - Tuesday, April 20, 2004 8:33 PM CDT
thank you deirdre for rememering
craig's birthday and surgery.
we are home and he is doing good.
we really needed the extra prayer,
love, and support. thank you for
giving so generously.

craig, lauren, and helen

CRAIGGY


craig <trula1@comcast.net>
- Tuesday, April 20, 2004 12:26 AM CDT
Hey Deirdre, we want to wish you a great weekend
sending you lots of love,

craig, lauren, and helen

CRAIGGY

craig <trula1@comcast.net>
- Friday, April 16, 2004 2:39 PM CDT
Congrats on choosing a grad school! I have a friend at Columbia, and my sister is going to college in NYC, and I will be working there this summer and hopefully after I graduate from grad school... so we can and should definitely be able to keep in touch. Glad you're feeling better, too! Let me know when you're feeling up to pizza or other restaurant fare :).
Caitlin MacAlpine <Caitlin1027@hotmail.com>
Washington, DC USA - Wednesday, April 14, 2004 10:06 PM CDT
Hey Deirdre, thank you for coming to Craig's site. I love the picture on front. i hope you have a great week!!!
love, craig, lauren, and helen

CRAIGGY

craig <trula1@comcast.net>
- Monday, April 12, 2004 8:27 AM CDT
Stopping by to say hello from Georgia. Thanks for your nice note to my daughter, Sara Beth, on her webpage. (www.caringbridge.org/ga/sarawilliams) Although it's not so nice that you both are having to struggle so, it *is* nice to know that there are other young women like my daughter doing their absolute best at keeping on keeping on and looking ahead to their future. I hope you had a lovely Easter celebration and will definitely keep you on our prayer list. Good luck next week with your tests and doctor appts!


Merri Williams <Mamamerri@msn.com>
Decat ur, GA USA - Sunday, April 11, 2004 9:38 PM CDT
Hi Deirdre - haven't been here in a couple of days.....been home w/a sick son :( Hopefully he's on his way to feeling better and you are too! As always, you're in my thoughts and prayers.

Hope you have a wonderful Easter and the Easter Bunny is especially good to you this year!

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Friday, April 9, 2004 9:57 AM CDT
Hey! I know we haven't talked in a long time and we've pretty much lost touch, which is horrible considering i'm only an hour and a half away from DC...but I wanted tyou to know that I've been thinking about you and try to at least stay up on how you've been through your profiles. Hopefully we can try to reconnect sometime, even if it is just online to talk. IM me or email me sometime! dariakt. My thoughts and prayers are with you always.
Katie Boehne <fallingswinggirl@hotmail.com>
Shippensburg, PA US - Wednesday, April 7, 2004 11:14 AM CDT
Hey hon! It's been ages since I've talked to you. Sounds like things are pretty rough but you've always been a strong person and you always seem to manage to surround yourself with people who love and care about you :) This website was a good idea it's pretty neat that you can post an on-going journal to let us all know how you are doing and feeling. Good luck w/ the grad school search Heather and I are looking too. The end of the semester is drawing steadily near and it seems we're all feeling just a bit overwhelmed w/ work that's due between now and then, I bet you are no exception to that rule, especially with being sick ;) Well I hope all is well with your family and I will keep them and you in my prayers. Here's to hoping the week brings some brighter news! Love ya hon.
P.S. Heather, Elizabeth, and I were talking about Girl Scouts over spring break and we had to laugh at some of the times we had and the memories we got from them, especially tornado connection :)

Carly Beveridge <Branwen11@yahoo.com>
Frederick, MD, High Point NC - Sunday, April 4, 2004 11:25 PM CDT
Hey there, we are stopping by to wish you
a happy weekend and a happy easter early.

craig, lauren, and helen

CRAIGGY


craig <trula1@comcast.net>
- Sunday, April 4, 2004 3:04 PM CDT
Hi Deirdre - I have been checking back every day hoping to hear that you are getting better. Hooray for the oatmeal! I know it's not much (especially when you like food as much as I do - and I think you do!) but like you said, it is something. I check in on you every night about this time so if you are ever up and in the IM world, feel free to IM me......hang in there, sweet girl. We are all thinking of you - Love, Lisa
Aunt Lisa
Marietta, GA - Saturday, April 3, 2004 10:36 PM CST
Hi Deirdre - checking in to see how you are. I hope the Z pack does the trick. For now, rest is the way to go!

Sending, love, hugs and prayers from CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington , CT - Friday, April 2, 2004 9:23 AM CST
Hey Deirdre!! I miss you and am thinking about you :)
Amanda
Duluth, GA Gwinnett - Friday, April 2, 2004 7:53 AM CST
Hi Deirdre, I found your website in Katia's guestbook and saw you were in DC. My daughter, Leah age 4, is a Children's Hospital patient. She had ALL and had a bone marrow transplant last November. Thanks for volunteering there! Do you also have lupus? My middle daughter, age 19, just recently had mono and hepatitus and may possibly have lupus. She is going to a rheumatologist in a couple of weeks. She is experiencing terrible joint pain. I would love to hear from you. You sound like a courageous young woman who doesn't let her illness stop her. My Leah wants to be an oncology nurse at Children's someday. I believe that she will.Sending a hug and prayers!
www.caringbridge.org/va/leah

Carrie Holdcraft <choldcraft@yahoo.com>
Sterling, Va - Thursday, April 1, 2004 8:37 PM CST
Hey Deirdre,
Just thought I would leave some love to let you know that I was thinking of you. I'm really blessed to have gotten to know you over the years and we have had some great memories (Eagle Eye Cherry was the second concert I ever went to). Keep in touch and you are always in my prayers.

David Shaw <dshaw@udel.edu>
Frederick, MD / Newark, DE - Thursday, April 1, 2004 0:17 AM CST
Hi Deirdre - just stopping by to say hi and see how you are. I hope you're feeling better real soon. We are definetly "cheering you on!" Enjoy those re-runs!

Sending love, hugs and prayers from CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Tuesday, March 30, 2004 8:52 AM CST
Hi Deirdre - I came to your site from my sister Deirdre's.....(www.caringbridge.org/ct/deirdre). Thanks for visiting and signing the guestbook. I read your journal history and am happy to say I found this site as you truly are an inspiration! I have added your site to my favorites and will check on you daily. Hope your feeling better really soon and that the Remicade does the job.

Thinking of you in CT.

Mary Lou Harney <jamesharney@sbcglobal.net>
Ellington, CT - Monday, March 29, 2004 8:42 AM CST
I just wanted to let everyone who's reading Deirdre's guestbook and webpage know - as someone who knows her at GW (and from our Mexico trip!) - she's truly an inspiration to everyone she meets here. It took months before I even knew she was sick - that's how selflessly and quietly she lives with her pain. Here's to a cure and many more years - this is a person I want to get to know so much better!
Caitlin <caitmac@gwu.edu>
Washington, DC USA - Sunday, March 28, 2004 10:40 PM CST
Hey there. It's been a long time. Sounds like you're as motivated and determined as ever. I'm very glad you've been able to do so much. I hope to be able to keep up with your adventures a little more. I'm sure you have a lot of great things ahead of you. Tell your family I say hi. Take care of yourself, I know that's a big job.
David Brandner <dgbrandn@unity.ncsu.edu>
Raleigh, NC - Sunday, March 28, 2004 1:09 PM CST
Hey Deirdre!

Thanks for signing my Guestbook! That stinks that you are not feeling good, I hope you feel better. I also saw how you are going all over the world traveling, that's very cool! Way much more than I've done. I've only gone to Cali and Ireland for things in Special Olympics. Well, talk to you later and feel better.

Adam Hays www.caringbridge.org/md/adam <SportsSO456@aol.com>
Frederick, MD - Saturday, March 27, 2004 9:31 PM CST
Hi Deirdre! hope the search for grad school is going well! You continue to amaze me in how you achieve so much after all you have been through. I love and miss you! Maybe I can visit you this May sometime.
Elizabeth Yackley <sweetylizzy@aol.com>
Greensboro, NC - Saturday, March 27, 2004 3:10 PM CST
Hi! My name is Cheryl and I am always inspired how young adults live with chronic illnesses. My daughter is 10 and needs a liver transplant from autoimmune disease. She also was on Remicade for awhile, unfortunately it didn't work for her pain. She takes steroids and painkillers now. Good luck!
www.caringbridge.org/ga/haley

Cheryl and Haley <bandcvincent@aol.com>
- Saturday, March 27, 2004 10:35 AM CST
Hey Deirdre thank you for signing my guestbook.. I was amazed to find another person on Caring Bridge who is fighting the Arthritis Beast!! I'm glad to hear you got your remicade back.. I'm doing the Enbrel thing. I'm book marking your page so I can check back.. Hoping for a cure for the both of us..
www.caringbridge.org/ca/lisaspage
- Saturday, March 27, 2004 4:50 AM CST
Thanks for the updates today Deirdre - I hope things do continue to improve for you and that you are playing with kites in the cherry blossoms tomorrow, too! I am also sad today that you have to suffer like this and can't be out on the lawn with your peers.....I even told your Dad that I was upset about your suffering and that it is just not fair! How's that for whining? Anyway, I admire your strength and perseverance and positive attitude and sense of humor! Have a good weekend. Love, Lisa
Aunt Lisa <lblume2@yahoo.com>
Marietta, GA USA - Friday, March 26, 2004 2:02 PM CST
Oh Deirdre....I am so sorry for the crummy day you are having and for how awful you feel. I hope that the drugs get there and that they work!! I will be thinking of you on Friday - keep the faith and hang in there!!
Lisa
Marietta, GA USA - Tuesday, March 23, 2004 9:04 PM CST
Deirdre--this is very cool. I don't always know what's going on with you and will enjoy reading your journal entries. I think about you often and your struggles with your health and my heart goes out to you. Congratulations on your summer job. I look forward to hearing where you will be going to grad school. Good luck with everything and keep that positive attitude. Love, Janet
Janet Calaway
De Pere, WI USA - Tuesday, March 16, 2004 9:28 AM CST
To my Pretty Precious Sweetheart: Hey there kiddo...You've been busy setting up your site, haven't you? Great job! Congrats on the RA job for the summer...and good luck with the doctor appointment on Monday. Things on looking up...just keep swimming...Mom
Darlene Goltz <Leanyjoan@sbcglobal.net>
Chesterfield, MO 63005 - Sunday, March 14, 2004 8:31 AM CST
Deirdre - this website rocks!! Caringbridge is how we keep up with Kelsey's pal Will who has Ewings Sarcoma and Wills' buddy Carter who has the same thing.....(www.caringbridge.org/ga/will_hennessy and www.caringbridge.org/ga/cartermartin). I love it and I love you, too! I try to keep up via your 'away' message and this will just add to that. I've already included it as one of my 'favorites'. You are in my thoughts and prayers always - we love you!
Aunt Lisa, Uncle Dave, Amanda, Kelsey and Morgan <lblume2@yahoo.com>
Marietta, GA USA - Thursday, March 11, 2004 5:22 PM CST
Know that I still care about you and hope that a cure will be found.
Michael M. Promis <MPromis@gwu.edu>
- Thursday, March 11, 2004 4:20 PM CST

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