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Happy New Year Wish
My Happy New Year wish for you
Is for your best year yet,
A year where life is peaceful,
And what you want, you get.
A year in which you cherish
The past year’s memories,
And live your life each new day
Full of bright expectancies.
I wish for you a holiday
With happiness galore;
And when it’s done, I wish you
Happy New Year, and many more.
www.caringbridge.org/visit/matthewcech
lisa <tlcech@charter.net>
Plattsburgh, NY - Monday, December 31, 2007 2:25 PM CST
Bennett Family,,We just stopped by to say hi and to wishing you a Happy New Year.
God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, December 30, 2007 11:59 AM CST
MERRY CHRISTMAS!
Love,
Kelly Butland & Family (Lenzie's Mommy)
Kelly Butland <butlandr@bellsouth.net>
Deatsville, AL United States - Tuesday, December 25, 2007 11:21 PM CST
Hi Bennett Family!
I love the new pictures. So sorry about John’s cousin. May GOD help you go through this sudden lose. Amen.
Abeerah, Khansa & Zahra
Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Tuesday, December 25, 2007 10:39 PM CST
Alicia, I love the poem on your page. It expresses so accurately the way I feel about my husband. I wanted to stop by and let you know that your family continues to be in my prayers.
Jennifer, a Texas prayer bear <texasprayerbear@yahoo.com>
Bridgeport, Texas - Tuesday, December 25, 2007 10:16 PM CST
WISHING YOU ALL A MERRY CHRISTMAS...
Love,
Lily, Olivia and Dennis
Lily Langbein <sweetlilygrace@earthlink.net>
New York, NY - Tuesday, December 25, 2007 10:15 PM CST
Merry Christmas!!!! I was going to send you a cool comment with pictures and glitter, but I can't figure out how to use this computer, so normal text will have to do. Love you all and miss you!!!!
Merry Christmas sweet Tommy....
alyssa <sabiemc@aol.com>
- Tuesday, December 25, 2007 8:30 PM CST
Wishing you well this season and throughout the New Year!
Kisses from Hershey,
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Tuesday, December 25, 2007 8:01 PM CST
Warm wishes for health, peace, and love,
Annie
Annie <penguini1982@yahoo.com>
Rochester, MA - Tuesday, December 25, 2007 3:27 PM CST
MERRY CHRISTMAS!!!!!!!!!!!
www.caringbridge.org/visit/hannahtheriot
kristen theriot <kristheriot@cox.net>
- Tuesday, December 25, 2007 3:26 PM CST
Alicia, I haven't been here for a long while but doesn't mean you and your family aren't thought about often.
John, Sorry to hear about your loss (your cousin Ellen). I don't think I met her the times i came to the cemetary and church but she surely was a support to you and your family.
I see from the logs that you and Alyssa are still connected. I was pleased to have met her at Tommy's funeral. Always special to meet folks in person and put any real person together with pictures and notes in a journal such as this one. Our eldest daughter has adopted 3 children and has 2 more who are foster kids for now but we all hope will be adopted this coming year. We are fortunate that they were able to make the trip from Kansas to our house this Christmas. Love and faith holds families together and your family (Alicia, mother, janine, and John) could not have any more love for each other and faith. May your lives be as filled as possible this Holiday Season and into the New Year. Your friend Stan.
Stan Jones <imajones@calweb.com>
Rancho Cordova, CA USA - Tuesday, December 25, 2007 3:32 AM CST
Glitter Merry Christmas Graphics
Hugs,
The Offenbackers
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, Ca USA - Monday, December 24, 2007 2:48 PM CST
Merry Christmas fro mLaura and Will xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, December 24, 2007 11:35 AM CST
Wish you all a Toadily Blessed Christmas!!! (Love the frogs, LOL!) Give the kids hugs and kisses from Jesse and I!
Love,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Monday, December 24, 2007 6:59 AM CST
Merry Christmas Bennett Family~~
Wishing you all a Very Merry Christmas and many wishes that the New Year brings you all much happiness~~
Love~~Becky and Emma MPS1
The Hardmans
Hanover, Ontario Canada - Sunday, December 23, 2007 9:19 PM CST
Christmas - Glitter Graphics
Glitter Graphics for Orkut, Myspace, Friendster
We wanted to wish you a very Merry Christmas and a Happy New year!! I love the new pics and I love your poem it made me cry!! I hope Hunter gets to feeling better and Ciarra does not catch it! Many Prayers to you and your family!
The boys sending hugs!
Take care and God bless
Deon, Ricky, and Kenny
www.caringbridge.org/visit/nelsonboys
Deon Nelson <thumpernel@sbcglobal.net>
OK - Sunday, December 23, 2007 7:22 PM CST
HAVE A VERY MERRY CHRISTMAS!
Hugs and Much Love,
Kim, Tom & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Sunday, December 23, 2007 6:01 PM CST
Hi Alicia,
Thank you for visiting Emma's website! Your children's story has touched my heart. I will be keeping your family in my thoughts and prayers! Have a very Merry Christmas!
Hugs from Utah,
Wendy (& Emma, too!) ~ 23-months-old, 6q25.3-qter deletion
www.caringbridge.org/visit/emmanicole
Wendy <d.kubiak@alaska.com>
Syracuse, UT USA - Sunday, December 23, 2007 3:19 PM CST
Just stopping by to wish you all a Merry Christmas
We hope the children feel better soon
All the best
Anne and Sebastien
www.caringbridge.org/visit/sebastiencairns
Anne Cairns <buzz.cairns@sympatico.ca>
markham, Ont Canada - Sunday, December 23, 2007 2:39 PM CST
Love and prayers,
Eva and R odney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, December 23, 2007 7:36 AM CST
Nice pictures, you sexy thang you in that black dress!!!! Love you guys and thanks again for the christmas gift...I LOVE IT!!!! It says Tommy all over it =)
alyssa godmother to www.caringbridge.org/ca/bennettboys <sabiemc@aol.com>
- Sunday, December 23, 2007 0:57 AM CST
Love you sweet family!!
Dawn Van Camp <dawnvc@centurytel.net>
Poplar, WI 54864 - Saturday, December 22, 2007 9:12 PM CST
Love you sweet family!!
Dawn Van Camp <dawnvc@centurytel.net>
Poplar, WI 54864 - Saturday, December 22, 2007 9:12 PM CST
These are my children, Wyatt and Cody:
Dawn Van Camp <dawnvc@centurytel.net>
Poplar, WI USA - Saturday, December 22, 2007 9:08 PM CST
Merry Christmas!!
Thank you for signing my mother's guest book!! May God Bless you and your family!! I love your caringbridge site!! WOW!!!!
Love, Dawn www.caringbridge.org/visit/evelynlundeen
Dawn Van Camp <dawnvc@centurytel.net>
Poplar, WI USA - Saturday, December 22, 2007 8:56 PM CST
Sending our Christmas wishes to you and your family
Jo Hannah, Rebecca and Rachel
England UK
- Saturday, December 22, 2007 10:46 AM CST
Alicia,
I was so glad you had time to reply about the quilts for Ciara and Hunter. I'll have more info to you tomorrow. My best to all of you.
Jackie Bennett
www.lovequilts.org
Jackie Bennett <gramjackie@hotmail.com>
La Porte, TX USA - Wednesday, December 19, 2007 10:26 PM CST
Hey Sweetie I miss you! Please know you are in my thoughts and prayers this holiday season and every day. May you be blessed in the New Year!
Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson
Tami <TLSlawson@aol.com>
- Wednesday, December 19, 2007 5:48 PM CST
Hi Alicia ~
I'm so sorry to hear about your mom! What a freak accident! How is she doing? Is she healing a little bit. Hope the kids are feeling good and not getting any winter "bugs". I'll keep your mom in my prayers.
Pat, Sal, Mishael and Isaiah Bingham- Isaiah’s Journey <pat.bingham@charter.net>
Whitmore Lake, MI - Sunday, December 16, 2007 4:26 PM CST
Praying for you all.
Jennifer, a Texas prayer bear <texasprayerbear@yahoo.com or sassy_girl913@yahoo.com>
Bridgeport, Texas - Friday, December 14, 2007 10:55 PM CST
Dear God, Alicia! I'm so sorry about your mother's injuries! Absolutely, she is in my prayers, as your family always has been.
Kiss lil Topknot and Autumn Boy for me. You take care of yourself. I suppose the real test is how much your friends and neighbors will love you through this. And they will, they will.
Hugsabunch,
Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA 91601 - Friday, December 14, 2007 7:28 PM CST
We're praying for your family, including your Mom. As always, your courage is inspiring.
Matt, Cari, Jessie (MPS-III) and Dylan <maufman@yahoo.com>
Boston, MA - Friday, December 14, 2007 7:42 AM CST
Alicia
Phone me. I can not find your number in my caller Id and I know that you called a little while ago. Call me tonight up to probably 2 am. my time or tomorrow. I really want to talk to you.
Michelle
MICHELLE FITZPATRICK <LFISCHER@ZOOMINTERNET.NET>
medina, oh - Thursday, December 13, 2007 11:31 PM CST
Oh my gosh your poor mom! I will be praying for her to
make a full recovery from this tragic accident. How sad you
can't be there to see her everyday, but I'm sure she understands.
I'm glad the kids are feeling better.
Claudia <pollyesther123@yahoo.com>
Mi - Thursday, December 13, 2007 6:00 AM CST
Alicia, I've been following your family's journey with this devastating disease. I emailed you on 12/5 concerning gifts for Ciara and Hunter from www.lovequilts.org. If you didn't receive my email, please write to me at gramjackie@hotmail.com. Hoping to hear from you soon.
Jackie Bennett <gramjackie@hotmail.com>
La Porte, TX USA - Monday, December 10, 2007 11:13 PM CST
Wishing you a Merry Christmas and A Happy New Year.Keeping you in my thoughts and in my prayer's always.
Brenda MY LOVING DAD'S SITE <brenda@shaw.ca>
Edmonton,Alberta/Canada, - Monday, December 10, 2007 11:45 AM CST
Ciara & Hunter,Wishing you a wonderful week and hoping you feel better soon.
God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, December 9, 2007 10:27 AM CST
Dear Ciara,
I pray that you get better soon sweetie!
Di
Australia - Saturday, December 8, 2007 4:44 PM CST
C is for the Christ child, born upon this day
H is for the Hope he gives upon his way
R is for the Risen savior who loves me so much
I is for the Infinite gift of his loving touch
S is for the Sin he lay his life down for
T is for the Trust of my heart's open door
M is for the Master, the ruler of my life
A is for the Altar, where I may lay my strife
S is for the Serenity that he gives to me
Praying for blessed Christmas wishes & the hopeful prayers for a Happy & Healthy New Year to you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.
The Prayer Bears
Barb
- Saturday, December 8, 2007 8:41 AM CST
I LOVE your page...it is so funny!!!! The border is so cute. I had a talk with Tommy last night...hopefully the kids will get better soon...
alyssa godmother to www.caringbridge.org/ca/bennettboys <sabiemc@aol.com>
- Thursday, December 6, 2007 4:15 PM CST
border=0>Lady Twilight <dtwilight@thesitefights.com>
- Thursday, December 6, 2007 0:16 AM CST
Alicia, just stopping by to let you know I'm thinking of you
Lots of love, Louise & Georgia
xxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Sunday, December 2, 2007 2:19 PM CST
Alicia....I just wanted to let you know I was thinking about all of you today. I know Tommy is up there with all the MPS Angels having a wonderful time.
Many Hugs,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Sunday, November 25, 2007 7:57 PM CST
Hopefully Tommy sends you many signs of love today and the rest of the week!! (((LOVE))) to you all!
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Sunday, November 25, 2007 6:29 PM CST
Hey Sweetie,
Thinking about you today and everyday! I'm sorry I did not get to spend time with you at the run. I really miss you guys!
Love and Big Hugs,
Tami ( www.caringbridge.com/ca/slawson ) <tlslawson@aol.com>
- Sunday, November 25, 2007 5:50 PM CST
You family is in my thoughts. Good luck and keep fighting!
Stephanie
Philadelphia, - Sunday, November 25, 2007 5:19 PM CST
Thinking of you all. You are in our hearts forever.
Tommy, Harmen sends you his love!
Hugs,
Harmen, Hanna Jan and Jacomien
Haren, The Netherlands - Sunday, November 25, 2007 4:39 PM CST
I enjoyed helping Lyssa make the video, it was a tribute to the love that she and Tommy shared. His giggle filled her life with joy and beauty, it is a gift that Tommy gave many as his spirit was so very big for such a small boy.
Karla Boreiko <lilywh@aol.com>
Durham, NC USA - Sunday, November 25, 2007 4:08 PM CST
Hey little man...it is now Nov. 25th here on the east coast. It is so hard to believe it has been 4 years since you left us. The ache is still so very deep. I miss you so so much. Please know you are so so very loved and you will never EVER be forgotten. Please keep watching over your brother and sister...you are doing such a good job of keeping them well. You always were the best caretaker! I know you will, but stay with your mommy today...she needs you more than ever. I love you Tommy....more than words can say. Thank you for the gifts you gave me. The lessons you taught me made me a better person and will stay with me always. Hopefully I will see you in my dreams soon. Miss you and love you.....
alyssa...godmother to three beautiful angels.... <sabiemc@aol.com>
- Saturday, November 24, 2007 11:28 PM CST
Hi, Tommy.
You're finishing up your first four years in Heaven. It probably seems like only a few minutes to you, with all the wonderful things to do where there will never be any pain or sadness.
This year Thanksgiving was the earliest it can ever be. That probably sounds strange by now, where every day is filled with thanksgiving in the presence of Jesus.
I know you are proud of Ciara and Hunter. We are praying for them.
www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Saturday, November 24, 2007 11:09 AM CST
Happy Thanks Giving Alicia, Ciara and Hunter
Hope that you have a lovely holiday what ever you guys are doing.
Great that Ciara is so lively now - Jasmin is like this too now! How wonderful hey,
Lots of Love to you
Ria & Jasmin xxxx
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Friday, November 23, 2007 6:16 AM CST
Happy Thanksgiving from the south YALL!!!! Miss ya
alyssa <sabiemc@aol.com>
- Thursday, November 22, 2007 11:12 PM CST
Happy Thanksgiving to your family from ours
Anne and Sebastien
Anne Cairns <buzz.cairns@sympatico.ca>
Markham, Ont Canada - Thursday, November 22, 2007 12:44 AM CST
love Laura and Will xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, November 22, 2007 12:24 AM CST
Praying you have a safe, and wonderful Thanksgiving.
Love Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
- Wednesday, November 21, 2007 7:56 PM CST
Happy Thanksgiving!
caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Tuesday, November 20, 2007 7:21 PM CST
Hey Licia, so good to hear the kids are doing well. I am so proud of them and love ya so much. When I start having a pity party I just think of you and your family and what a good strong caring mom you are and it truly inspires me.
Hugs and HUgs to the kids!!!
Carolyn
Fayetteville, GA USA - Sunday, November 18, 2007 7:39 AM CST
[Caption.iT - Picture Captions]
Visit Bethany <chellie_37806@yahoo.com>
- Saturday, November 17, 2007 1:45 AM CST
I love reading entries like this one. It makes me so happy to hear Ciara doing so so well. The only other thing I could ask for is to be there to see it myself! =)Too bad im not there I could cut Hunter's hair myself, maybe a little moohawk action! Anyway....if you can try and take a video on your phone of Ciara moving for me! Talk to you hopefully later...we have been playing phone tag all day. Love you guys
alyssa aka SUPER GODMOTHER to the most awesome kids!!!! <sabiemc@aol.com>
- Friday, November 16, 2007 9:22 PM CST
Hi Alicia and family,
I don't get a chance to visit the Caringbridge sites as much as I would like to --but I was thinkng of you and decided to stop by. It's great to hear that Ciara and Hunter are doing well and bravely trying new things!!! I know this time of the year is especially hard for you -who can ever forget Tommy whose cute antics are etched in our memories.
I hope you, John and the family have a Happy Thanksgiving.
Pat, Sal, Mishael and Isaiah - Isaiah’s Journey <pat.bingham@charter.net>
Whitmore Lake, MI - Friday, November 16, 2007 7:47 PM CST
I will praise the name of God with song; I will magnify him with thanksgiving. Psalm 69:30
Praying for a Blessed Thanksgiving for you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.
The Prayer Bears
Barb
- Friday, November 16, 2007 8:45 AM CST
UPDATE UPDATE UPDATE!!!! oh and NEW PICTURES NEW PICTURES NEW PICTURES....but no pressure =)
alyssa aka SUPER GODMOTHER <sabiemc@aol.com>
- Wednesday, November 14, 2007 9:22 PM CST
Good luck in The Site Fights! Hugs and Sprinkles Fairy Alma
Fairy Alma <fairyalma@gmail.com>
DRealm of the Fairies, TSF - Monday, November 12, 2007 9:18 PM CST
~GOD BLESS YOU~
Amy Kemp- MPS II Mom <amyjeankemp@yahoo.com>
Pulaski, VA USA - Monday, November 12, 2007 12:34 AM CST
Hello Alicia and kids!! Wow the kids look great and I always love the pictures!!! Hope you had a wonderful time at the MPS run and at Disneyland! Give the kids a hug for us!!!
Love you!!!
The Longston Family - Cold in Green Bay
Andrea Longston (www.caringbridge.org/visit/rachel) <andrea.longston@gmail.com>
Green Bay, wi usa - Thursday, November 8, 2007 1:21 PM CST
bennetts family from tarheel glass, you all are a great looking family,my heart is with all of you. this is very sad my wife and i just had a little boy seven months ago. his name is dawson chase mcfalls. this story just turns my whole life around.charish the moments you have with them and may god be with you all. children are miracles, and god does miracles for his children to. god bless, and stay strong they are in very good hands god, and duke hospital. sincerely TARHEEL GLASS AND MCFALLS FAMILY. GARLAND,TIFFANY,DAWSON CHASE MCFALLS. ALL OF YOU ARE IN OUR BLESSINGS.
GARLAND MCFALLS
DURHAM, NC - Thursday, November 8, 2007 8:34 AM CST
Hey....missing my wonderful family and most of all missing my Tominator....Love you all!
alyssa aka SUPER GODMOTHER <sabiemc@aol.com>
- Thursday, November 8, 2007 0:02 AM CST
Hey Alicia. I'm glad the kids are doing well and had such fun on Halloween. I pray for your family always, and I'll be back again to check on you all.
Jennifer, a Texas prayer bear <Texasprayerbear@yahoo.com or sassy_girl913@yahoo.com>
Bridgeport, Texas - Tuesday, November 6, 2007 8:02 PM CST
Thinking of you all! Love & "Kangaroo hugs & kisses" from Karen
www.caringbridge.org/visit/karenmelissa
- Monday, November 5, 2007 4:21 PM CST
The kids look great in their Halloween costumes! I'm glad to hear you had a good week. Hope you have a great week this week too!
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Monday, November 5, 2007 12:04 AM CST
The pictures look graet :)
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Sudbury, Ontario - Friday, November 2, 2007 7:32 PM CDT
Love the new pics! The kids look so so cute!!!!
alyssa aka SUPER GODMOTHER <sabiemc@aol.com>
- Thursday, November 1, 2007 9:10 PM CDT
Good luck in The Site Fights!!
Fairy Alma <fairyalma@gmail.com>
- Wednesday, October 31, 2007 9:02 AM CDT
alicia & kids,Just stopping by to say hi and wishing you a wonderful week.The Disney trip sounded like a lot of fun.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, October 31, 2007 8:34 AM CDT
♥ and hugs
Eva and Rodney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Wednesday, October 31, 2007 6:05 AM CDT
HAPPY HALLOWEEN! HOPE YOU GUYS HAVE LOTS OF FUN :)
HUGS,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, ca - Tuesday, October 30, 2007 11:16 PM CDT
HAPPY HALLOWEEN!!!!!!!!
STACEY AND LUCAS
HTTP://WWW.CARINGBRIDGE.ORG/VISIT/HOPEFORLUCAS
- Tuesday, October 30, 2007 10:08 PM CDT
HAVE A HAPPY & SAFE ONE!
Barb
Life is like a gift . . ."Cease to inquire what the future has in store, and take as a gift whatever the day brings forth."
-- Horace
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Barb
- Tuesday, October 30, 2007 5:28 PM CDT
I could just fall in love with each and every one of those kids! Thanks so much Alicia, I can't get over how big Hunter and Ciara are getting. I'm glad you had a good time in the O.C.
Thinking of you and John and Lil Topknot and Autumn Boy always....and always.
Hugsabunch,
Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA USA - Monday, October 29, 2007 12:58 AM CDT
alyssa <sabiemc@aol.com>
- Monday, October 29, 2007 0:07 AM CDT
Thanks for taking so many good pictures! I'm so sorry I couldn't come out there for the walk and visit with all of you! Hopefully we will see you this spring!!
Hugs and Love,
Patty and Jesse
PattyT
Balto, MD USA - Friday, October 26, 2007 5:46 AM CDT
It was great seeing you guys on Sunday! Thank you so much for bring by Scotty's things..I really appreciated it.
Talk to you soon.
Hugs,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, ca - Wednesday, October 24, 2007 5:47 PM CDT
Just wanted to let you all know I am thinking of you.
Tina & Angel Lance
- Wednesday, October 24, 2007 1:19 PM CDT
Pika Pika!
My Pokemon partner and I
came by with our electric Fairy Dust
to wish you luck in your fight
Remember to stay spirited
in everything that you do!
Fairy Pikachu <pikachu157@hotmail.com>
- Tuesday, October 23, 2007 10:06 PM CDT
Hi hope you had a great time at the walk /run! thinkin of you all as always Laura and Will xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, October 22, 2007 9:46 AM CDT
Glad that Ciara and Hunter are both happy and doing well, and praying for the trend to continue.
Jennifer, a Texas prayer bear <texasprayerbear@yahoo.com or sassy_girl913@yahoo.com>
Bridgeport, Texas - Saturday, October 20, 2007 10:50 PM CDT
Checking in to say Hi and see how the kiddo's are doing . Sending my prayers ....
Eli & Fletcher
Michele
- Saturday, October 20, 2007 11:37 AM CDT
I hope you are having a GREAT time at Disney and that you will have a great time at the walk. I so so wish I was there...=( Makes me sad. Maybe one year it will work out. Take lots of pictures for me! And of course...call me (even though I usually call you first everyday). Anyway....have a super time, you guys deserve it!
alyssa aka SUPER GODMOTHER <sabiemc@aol.com>
- Thursday, October 18, 2007 10:45 PM CDT
We just dropped by to check you today.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Thursday, October 18, 2007 1:19 AM CDT
Hi guys,
Just stopping by to say I love the colour of your new chairs. I have a wheelchair that's in the works now so we'll see how long it takes.
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Sudbury, Ontario - Friday, October 12, 2007 1:30 PM CDT
border=0>Lady Twilight <dtwilightNOSPAM@thesitefights.com>
- Thursday, October 11, 2007 9:57 AM CDT
Stopping by to say hi & let you know you are in my thoughts. Love Karen
www.caringbridge.org/visit/karenmelissa
- Wednesday, October 10, 2007 5:56 PM CDT
Hi Guys
Just checking in to see how you were doing...I was hoping to see you at the BioMarin walk..we missed you guys. Give Hunter & Ciara hugs and kisses for us. Talk to you soon.
Love,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Wednesday, October 10, 2007 10:51 AM CDT
Praying for you all, John, Hunter, Ciara and Alicia.
Jennifer, a Texas prayer bear <texasprayerbear@yahoo.com or sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, October 7, 2007 11:59 PM CDT
Alicia I checked in the Just4you at Dees and went to your website for your family. I had no idea that you were raising children with these problems and my heart goes out to you and your family. You are certaintly an angel for all you must go through. I will add you to my prayer list and God Bless
Lillian
Orlando, Fl USA - Sunday, October 7, 2007 3:24 PM CDT
Hi ho...man, Lil Topknot and Autumn Boy have GROWN!
They look really good. I mean those kids look GREAT...and knowing what you've put into their care is a testament to you and John's love and courage. I've known about your family going on six years now.
I think that your pride is tremendous and well earned. I love you for it.
And respect you more than I can say.
Please know that I think about you all the time.
Hugsabunch!
Love, Regan
Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA USA - Friday, October 5, 2007 1:50 PM CDT
Oh man...and I thought it was hard getting the old wheelchairs to fold and lift....LOL....I better start lifting weights now before I move back!!!!
alyssa <sabiemc@aol.com>
- Thursday, October 4, 2007 9:09 PM CDT
Hi Alicia,
What great news that the new wheelchairs are in. I fully agree with you that Ciara's need some adjusting. I love the swing away laterals (under arm supports) on Hunter's chair and he didn't need them nearly as much as Ciara, so I'm suprised they didn't give them to her. She also needs her head rest recessed a bit to encourage her head to stay back. You'll probably find that she may need to be "reclined" quite a bit more than Hunter since she is so inclined to pull forward and gravity will help keep her back. They have grown sooo much it's truly amazing to see how grown up they look now. I love the colors, nice choices Mom! LOL
As always in my thoughts and prayers,
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Thursday, October 4, 2007 4:00 PM CDT
Hi Guys,
Just stopping in to say HI
Hope you feel better soon Ciara
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Sudbury, On Canada - Wednesday, October 3, 2007 7:48 PM CDT
Your courage continues to be an inspiration to us. You are always in our prayers.
Matt, Cari, Jessie (MPS-III) and Dylan
Boston, MA - Tuesday, October 2, 2007 9:49 AM CDT
hugs and sprinkles from fairy alma!
Fairy Alma
DRealm of The Fairies, The Site Fights - Monday, October 1, 2007 11:19 PM CDT
Hi guys,
Thought I would stop by to check for an update. I am sorry to hear Ciara had a seizure. It's weird that she was with it during it. Sometimes seizures can be weird. Lol. Anyway, I am doing okay. I have received a bit of bad news regarding my health but other than that I'm alright. Hope you have a great week!
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Monday, October 1, 2007 12:17 AM CDT
Praying that Ciara gets better soon...She has to because when I left we had an agreement....no hospital stays until I come back!!!!
alyssa <sabiemc@aol.com>
- Monday, October 1, 2007 10:34 AM CDT
Wishing you a very Happy Birthday!
WE HOPE TOMMY ENJOYED HIS 8TH HEAVENLY BIRTHDAY!
WE HOPE HE EAT ALL THE CKAE AND ICE CREAM HIS LITTLE SOUL COULD DEVOUR! WE ALSO HOPE HE GOT HIT LITTLE GROOVE ONE!!
HAPPY HEAVELEY BELATED BIRTHDAY TOMMY!
LOVE,
NATER & MEGHAN!
NATE GAPA www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
Lyndonville, NY ***USA*** - Sunday, September 30, 2007 4:30 PM CDT
Hi Alicia - My favorite memory of Tommy was when we were waiting the the "Fish Tank Room" and he would bring me a book to read. Then when he got tired of that he would bring me one book at a time until I had a pile of books. He thought it was great fun to move the books from one place to another. Sorry I haven't had time to check in on you guys lately. Alex was dx with a secondary cancer this summer and we've been busy dealing with that. We think of you guys often. Oh, Alex says his favorite memory of Tommy and Hunter is when they would run in opposite directons down the hallway and you didn't know who to chase first :-) Hugs,
Jill and Alex www.caringbridge.com/ca/alexschwab <jillschwab99@hotmail.com>
Manhattan Beach, CA USA - Wednesday, September 26, 2007 10:33 PM CDT
Just stopping by to say hi
Hope all is well
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Sudbury, Ontario Canada - Wednesday, September 26, 2007 8:30 PM CDT
DBright Fairy Hermione <xanth_rocs@yahoo.com>
DRealm of the Fairies, - Monday, September 24, 2007 2:51 AM CDT
Happy Birthday Tommy.
I met him couple of times in the duke's hallways or in Ellen's room for just a short moments but his smilling pictures left it in my heart for ever. He was a very sweet little boy with lot of energy. He gave many HIGH FIVE to me each time we did bang in to each other on our visit to Duke.
Tommy, I hope you are watching over your Mommy who miss you terribly.
Tayyaba, Abeerah, Khansa & Zahra
NJ <tayyaba@helourgirls.com>
- Friday, September 21, 2007 10:26 PM CDT
Happy Birthday TommyBennett kids,Just stopping by to say hi and to wish you a Happy Fall!
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Thursday, September 20, 2007 3:59 PM CDT
Wow, it doesn't seem like it could be almost four years that Tommy has been gone. I only knew him through the website, but what I remember most is how hard he kept fighting and the strength with which he fought.
Happy Birthday T.
Claudia
- Wednesday, September 19, 2007 8:24 PM CDT
Alicia, just want you to know that I'm thinking of you & sending loads of love & Hugs xxxxxxx Louise & Georgia
Louise Lewis (mum to Georgia)
chepstow, uk - Wednesday, September 19, 2007 3:34 PM CDT
Happy Birthday Tommy. What a difficult day for you Alicia. I can't believe it's been 4 years either! What I remember about Tommy, of course only having the pleasure of meeting him through this site. . . is his tenacious personality. No matter what circumstances were thrown his way, he just kept on keeping on. He never seemed "sad" or down about anything. That also says a great, great deal about his parents. You and John have been outstanding parents in the darkest of days and the happiest of times. Your kid's will to persevere despite it all is testimony to your love.
In my thoughts and prayers,
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
Liverpool, ny - Wednesday, September 19, 2007 9:45 AM CDT
Happy Birthday Tommy. I wish that I could have met that wonderful little boy. Thank you for sharing your wonderful memories with us.
Hugs and prayers
Trisha Offenbacker
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, Ca USA - Wednesday, September 19, 2007 0:17 AM CDT
I never had the pleasure of meeting you or your family, but I check your site reguraly. I remember Tommy for his smile and bright eyes. Even through his sickness his eyes still were bright.(The love he felt from his family)Alicia, I want you to no what a special mom you are.
May God Bless you, your children and family. Your are truly a very special mom.
Terry
- Tuesday, September 18, 2007 10:35 PM CDT
When I think of Tommy, I picture him in heaven playing the drums for Grandma...
Aunt Julia
Elk Grove, - Tuesday, September 18, 2007 9:49 PM CDT
I have thousands of memories with Tommy. And they are all my favorites! Two things that I do miss the most is...first of all his adorable frog face, and second. Whenever I would sit on the couch Tommy would climb up on the coffee table in front of me and jump into my lap and give me a HUGE hug jump off and then climb up and do it all over again. Always ending in a huge hug and a huge smile. Tommy....you know you are always in my heart and will forever be my hero. I love you so so very much! Happy Birthday sweet angel...
alyssa <sabiemc@aol.com>
- Tuesday, September 18, 2007 9:03 PM CDT
Happy heavenly birthday, Tommy*
~laurie
Wakefield, MA - Tuesday, September 18, 2007 7:42 PM CDT
And we remember a sweet little boy, playing with his ball at the dayclinic, who was an example to all of us. He (and his family!) told us about hope, joy of living and courage. We will never forget!
Love to you all from us all,
Harmen, Hanna, Jan and Jacomien
The Netherlands - Tuesday, September 18, 2007 5:10 PM CDT
I remember a brown-eyed little boy much loved by his family and his extended cyberspace friends. I was so awed by how many hits he had to his web site. Well wishers from all over the world sent greetings when his body had taken enough abuse from his illness and his spirit began the long journey to heaven. I will remember how he was a pioneer for stem cell research ... how he showed adults that courage does indeed come in SMALL packages. I never see a rainbow that I'm not reminded how much he is missed by his parents ...and how much his mom yearns to hold him.
I will remember him ... a tiny adventurer who blazed a trail for others to follow.
Judy
Petaluma, ca USA - Tuesday, September 18, 2007 4:47 PM CDT
hi, i saw that you had been by to see jarin's site and wanted to stop and see yours. it is a beautiful site. my brother gary had mps2 or hunter syndrome and his bday was on sept. 13th. i am sure that they are up in heaven helping eachother celebrate their bdays. i am looking forward to getting to know you and your family better and i would love to get to know tommy through stories of your fav. memories.
hugs,
krista mom to jarin 6 months old mps2 and malissa 4 years old
krista <jkburkett@mchsi.com>
fort riley , kansas usa - Tuesday, September 18, 2007 3:39 PM CDT
Happy Birthday, Tommy, to the best birthday present I ever got. No one will ever top it. I miss you buddy, but your Mom and Dad won't ever let us forget you.
Aunt Kathy
Sacramento, CA - Tuesday, September 18, 2007 2:48 PM CDT
You know I never got to 'meet' Tommy but I hope you know that we did 'know 'him through your wonderful descriptions and love for him that shines through all you do! Many many Happy Returns to our angel boy! Much love and Hugs Laura and Will xxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, September 18, 2007 1:50 PM CDT
Hi Alicia,
Unfortunately, I have not known you long enough to have any memory of Tommy. I wish I did. I do wish him a very happy birthday in heaven. He is a very special angel.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Tuesday, September 18, 2007 1:11 PM CDT
Happy Birthday Tommy! I remember most how you along with your whole family taught me how deep and fearless our love can be.
Robert Gunn <robg@surewest.net>
Elk Grove, CA - Tuesday, September 18, 2007 10:32 AM CDT
Wow that double seat wheelchair souds/looks great. You have said that it is so hard to have to push two different ones, this looks like it would make things at least a little easier. No hurt in checking it out.
I am sory that Tommy is not here, celebrating his birthday with his loving famiy. It is JUST NOT RIGHT.
DMM <dmm@yahoo.com>
- Monday, September 17, 2007 10:08 PM CDT
I was reading another site and randomly came across a double seat wheelchair. It will hold up to 110 lbs, has plenty of add-ons (laterals, etc) for support, looks really nice, and is made by a good manufactuer. The style is called "Kimba Twin Tandem" by Otto Boch. I'm sure getting it would be a huge ordeal, but it also might help?
Random OT
OH - Monday, September 17, 2007 9:41 PM CDT
Just wanted to see how u r doing and say hi. Hope the kids got to go to Disney...
Have a great day!
Our website
Sjon (dad to Kariem)
The Netherlands - Monday, September 17, 2007 8:43 AM CDT
DBright Fairy Hermione <xanth_rocs@yahoo.com>
DRealm of the Fairies, - Monday, September 17, 2007 1:51 AM CDT
You are in our prayers as you painfully but fondly celebrate the remembrance of Tommy's birth and precious life with you this side of Heaven. May our Lord's and Tommy's presence be made known to you in a very, very special way.
Yolanda, Mom to Anna <weloveanna@earthlink.net>
Alt Spgs, FL USA - Sunday, September 16, 2007 9:09 PM CDT
Happy Birthday ^^Tommy^^...I know this is early, but I will be in Boston on your birthday and probably won't have internet access. I will still try and send you up a balloon though. I can't believe you would have been 8 years old this year! Party it up in heaven...eat lots of cake, play in the jumping cage and know you are so so very loved and missed here. I love you and miss you baby....
alyssa <sabiemc@aol.com>
- Friday, September 14, 2007 8:19 PM CDT
MySpace Comments / Glitter Graphics
I don't know if you remember me from the MPS/ML forum,but i just wanted to say hi and see how you guys are doin.
Alicia Leonard <mpsmom622@yahoo.com>
Apopka, Fl - Tuesday, September 11, 2007 10:52 PM CDT
Hoping all will be better soon!
Nate sends nemo love!
Nate www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
- Sunday, September 9, 2007 12:28 AM CDT
Hoping all will be better soon!
Nate sends nemo love!
Nate www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
- Sunday, September 9, 2007 12:28 AM CDT
Hoping all will be better soon!
Nate sends nemo love!
Nate www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
- Sunday, September 9, 2007 12:28 AM CDT
Hi Alicia.
Your post just got me crying. How hard it must be on you dealing with two very sick children and on top you have to fight for every little thing. Kaiser is really giving you hard time. May GOD help you in your hrad times and give you strength to deal with Kaiser. Praying hard for you. Sending lots of love your way.
I hope you be able to go to the MPS run and walk and have good time.
Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Sunday, September 9, 2007 4:21 AM CDT
If there was a line for a "fair life" trust me i'd be the first in line - but no one ever said life was fair.....
Can't someone in your husbands HR dept help you through some of the difficulties with the ins?
Also, due Ciarra and Hunter get SSDI? Maybe some of their monthly monies could be allocated for their extra medical needs???
Hopefully these ideas help you out a it....
DMM <dmm@yahoo.com>
- Saturday, September 8, 2007 9:12 PM CDT
Sending cyber hugs to you Alicia
XXXX Ria & Jazzy XXXX
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Saturday, September 8, 2007 1:19 PM CDT
Alicia, I'm so sorry that you're having a tough time right now, wish I could be there to help you & just give you a big hug! Life is so difficult for you, why can't Kaiser see that the simple things would make such a huge difference to you! Do you have anyone who could help fight this for you? I hope you get something sorted. Huge hugs & kisses to you & the kids xxxxxxx Louise & Georgia
Louise Lewis (mum to Georgia)
chepstow, uk - Saturday, September 8, 2007 11:49 AM CDT
I just came by for the first time and read your site, my heart goes out to you and your family !!! You came by my daughters site and signed her guestbook wishing her a happy birthday the other day, www.caringbridge.org/visit/samanthamills
Thank you for that, it always makes her day to read things people write .
We will keep you in our prayers, I know what the financial situation is like, we deal with it all the time also and never recieve help from any agency because we "gross" to much money, but as much as it takes to stay afloat with a sick child it is so hard, they are worth it though. So I know how you feel. I wish it were different for families like us who deal with so much but we all have it coming when we get to Heaven. God Bless you and keep your head up high and I am thinking of you and praying !!!
Angela Mills <jamills2379@aol.com>
Eaton Rapids, MI - Friday, September 7, 2007 6:53 PM CDT
I'm so sorry Alicia. You (and the kids) have been through so much. I don't know why it seems like things are so easy for some people and for others everything has to be a fight. I wish Kaiser wanted to HELP you instead of make your life more difficult. I wish I could help!
Thinking of you and praying for the kids.
Cari Cornish <cjcornish@yahoo.com>
Boston, MA - Wednesday, September 5, 2007 4:25 PM CDT
Pika Pika!
|
Fairy Pikachu <pikachu157@hotmail.com>
- Monday, September 3, 2007 7:27 PM CDT
Alicia,What a pain I'm so sorry you have had to go through so much trouble with Kaiser.Ciara and Hunter,Just stopping by to say hi and hope you're having a great day!
God bless,love and hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Monday, September 3, 2007 1:42 PM CDT
Hey! Hey!
A Cherub Forest Enchanted Angel Spirit here,
to let you know your friends are near.
We want to see your spirit shine,
so I'm sharing some of mine.
With friends and spirit you'll go far,
and you'll be shinning like a star.
The best of luck in your fights!
Enchanted Spirit Angel <REMOVE4NOSPAMesangel@thesitefights.com>
- Sunday, September 2, 2007 10:21 PM CDT
This may be a stupid question, but can you get an O2 holder for at least one wheelchair? (If you could get them on both it would be even better; you could use Hunter's as "storage"). Could your doctor recommend the pulse flow thing that requires a portable concentrator but can handily be turned off?
Those are probably obvious questions, just thinking.
Ohio OT
- Sunday, September 2, 2007 10:14 PM CDT
glitter-graphics.com
Thinkning of you and hoping you have a GREAT week!
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Sunday, September 2, 2007 7:10 PM CDT
I am so sorry that you had a bad day. I hope that you have a wonderful weekend and get good news come this next week about Ciara's oxygen. As always in our thoughts and prayers.
Hugs,
Trisha Offenbacker
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, CA USA - Sunday, September 2, 2007 1:02 AM CDT
Alicia,
Maybe that rainbow was sign you needed because Tommy knew it was going to be a tough day! Maybe it wante dot encourage you first thing int eh morning inspite of the rest of the day! I'm so glad that Kathleen helped you to the car and the other angel helper at the pharmacy helped with Hunter while the get the capsule fixed! Just maybe Tommy sent her there for his brother!
Hugs and love,
Patty and Jesse
PattyT <wordinedge@aol.com>
Baltio, MD USA - Saturday, September 1, 2007 6:04 AM CDT
I am so sorry that you keep having to deal with such stupid people and annoying and difficult situations! I can't even imagine how frustrating that must be. I'm glad the kids are feeling ok though, and I will keep up the prayers for all of you!
Erika Lazo <erikaloves2sing@hotmail.com>
Rancho Cucamonga, CA - Friday, August 31, 2007 8:12 PM CDT
Alicia, it was good to see you on our site. I worry about you all the time! Please, call me anytime. I will be happy to talk with you. I have three kids on the waiver and I have already looked into CA version of it and they do have one that the kids would definately qualify for. Just give me a call! Talk to you soon!
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Friday, August 31, 2007 6:59 PM CDT
Praying for you and the kids! I hope you get these issues resolved.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Friday, August 31, 2007 6:32 PM CDT
Hi Alicia,
Just a little note to let you know that we are thinking of you all. Love and hugs!
Harmen, Hanna, Jan and Jacomien
THe Netherlands, - Thursday, August 30, 2007 3:32 PM CDT
Hi Alicia,
I can't imagine how hard it is with the TWO wheelchairs. I would LOVE for you to call me. I am positive that Ciara and Hunter are both entitled to several other services that are provided by the state regardless of the PARENTAL income! This would help you out soooooo much so you don't have to rely upon Kaiser (usless @#$#$) for everything. These other programs would also provide nursing services for both kids so you can have either time to yourself, OR you can have assistance when you take the kids out and such.
Renee
315-457-8382 or 315-751-5214
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Thursday, August 30, 2007 11:03 AM CDT
Hi Family~* I know you are a mom who fights for your precious kids and it shows by every single entry. You hang in there and maybe God will intervene, I mean he WILL and those people will understand your plight. Maybe they should come and see what a day is like for you and then they'd understand. Stay strong and know we are praying for you and your hubby n the kids.~* Lin, Jim n Kiddo's~*Jimmy JoeLin <jimmyk1@bellsouth.net>
Boca Raton, Fl. USofA - Thursday, August 30, 2007 8:07 AM CDT
Dear Bennett Family,
First of all, I'm so happy to read that Ciara and Hunter seem to be doing good right now. Always wonder about it when you haven't posted for awhile.
I'm so sorry about Alyssa having to go back to NC. Since you posted the first message, I've been checking everyday hoping there'd be news that she could stay. It seems so unfair that, after she finally was able to go out there, she had to leave so soon.
Extra prayers will be said to keep your children healthy and, also, that time goes quickly while Alyssa is gone.
Take care. God Bless All of You.
A Charlevoix Follower
- Wednesday, August 29, 2007 6:03 PM CDT
Hey...so this is my last guestbook entry in California, for the next 9 months anyway!!!! You know how I feel about this, so I don't need to preach it again. Anyway..just wanted to give a big thank you for the help today. I gotta go turn in my internet now....booooooooo!!!! I am going to crazy!!!! Love you all, talk to you later
alyssa <sabiemc@aol.com>
roseville, ca usa - Tuesday, August 28, 2007 7:05 PM CDT
Alicia,
I wish I was closer to help find Allysa the help she needs. I've been praying for her to find all that she needs to be able to stay in CA. I know how important a strong support system is and she has been there through thick and thin.
I hope all is well with Ciara and Hunter (and You and John as well LOL).
Take Care and God Bless,
Renee
www.caringbridge.com/ny/my2angels <Rcurk@aol.com>
- Tuesday, August 28, 2007 1:47 PM CDT
Alica,
I tried calling what I think was your phone # tonight. Call anytime in the next few days.
Michelle
MICHELLE FITZPATRICK <LFISCHER@ZOOMINTERNET.NET>
medina, oh USA - Monday, August 27, 2007 11:15 PM CDT
I was stopping by to say hi hope that they continue to get better. Ricky and Kenny sending hugs your way!!!!!
Take care
Deon Ricky and Kenny
www.caringbridge.org/visit/nelsonboys
Deon Nelson <thumpernel@sbcglobal.net>
Lawton, OK USA - Monday, August 27, 2007 9:19 PM CDT
AHHHH...this sucks so bad. 3 more days and I have to leave. And tomorrow I have to say goodbye to Ciara and Hunter and you Alicia!!!! I will warn you I won't be able to not cry...I am so nervous about leaving....I am praying Ciara escapes all the germs this winter. I just feel so horrible about leaving. From the minute I leave, I will start the countdown to when I come back. See you tomorrow...
alyssa <sabiemc@aol.com>
roseville, ca usa - Sunday, August 26, 2007 1:02 AM CDT
Hi Alicia,
That's great news about Ciara off oxygen I've been thinking about her.
Good luck with everyting
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Sudbury, ON Canada - Saturday, August 25, 2007 6:00 PM CDT
Hi Alicia
Glad to read that Ciara is off oxygen! Brilliant news!
I'm sure you'll make the right decision about the childrens schooling.
Take Care, much love
Ria & Jazzy www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Thursday, August 23, 2007 1:04 PM CDT
Well, we tried. This sucks. As you know Alicia we are both horribly bad at getting emotional in person, so im doing it on here! It breaks my heart to leave. I tried for so long to get out here and now that I have things fell apart in my life and I have to go back. And even though it is temporary it still sucks beyond belief. I pray every single night that your babies stay healthy while I am gone. Literally everytime I think of leaving you guys I break down in tears. I hate to leave with Ciara having the year she did...keep her strong! Perhaps what tears me up the most is being so far from where Tom is laid to rest. When I visit him I feel a closeness to him that makes my heart feel like he is right there with me. Its very peaceful. I feel like I am failing him in a way. I promised Tommy to help you through this and help his brother and sister and now I have to leave. I hate that I won't be here for this years birthdays, anniversary's and holidays knowing they are limited. I will do anything for you guys... You all mean everything to me. You are my family and I love you all so much!!! Please always know you are the most important people in my life and if I could have one wish it would be to make your kids healthy. Hug my godkids for me everynight while I am gone. I have to stop typing before I soak the keyboard and get electracuted. Just remember...I will be back....I promise....
alyssa <sabiemc@aol.com>
roseville, ca usa - Thursday, August 23, 2007 3:55 AM CDT
hi guys
i am so glad that the kids are doing good.so sorry about the house but just keep praying and everything will work out i am sure of it.just hang in there and hugs for us kathy mom to angel katilynn
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, August 21, 2007 10:28 PM CDT
So good to hear the kids are doing well...hallelujah! My love to each of you,
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, August 21, 2007 5:46 PM CDT
I am glad that the kids are doing good. I always worry when I dont see anything in the new in the journal and then I remember that no news is probably good news. I can totally understand your housing sitation when we moved to this area I freaked out too. The housing prices are insane. That is why I am so thankful that we got base housing. Good luck. Remember that I am not that far from you now so if you need anything just let me know.
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, CA - Tuesday, August 21, 2007 0:10 AM CDT
Bennett kids,Just stopping by to give you cyber hugs.
God bless,Love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Friday, August 17, 2007 0:39 AM CDT
border=0>Lady Twilight <dtwilightNOSPAM@thesitefights.com>
- Tuesday, August 14, 2007 11:50 PM CDT
I hope Ciara gets all the guck out of her lungs. I am always thinking of you and praying for you. Love you all!!
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com>
Minnesota United States - Tuesday, August 7, 2007 12:36 AM CDT
Praying that Ciara's pneumonia continues to resolve, and that you all have enough money to take the trip to visit your dad and the other MPSS III family.
Jennifer, a Texas prayer bear <texasprayerbear@yahoo.com or sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, August 5, 2007 11:03 PM CDT
I am so glad to hear that Ciara is feeling better. As for Hunter's g-tube, it's nice to know it's there, but even better to know you don't need it right now. I hope it's cooler where you are, because we're just sticking inside right now to stay free from the heat.
You know you're always in my thoughts and prayers!
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
Liverpool, ny - Saturday, August 4, 2007 1:46 PM CDT
Hi Alicia
Not been around for a while so had to update on you and the children. Great to read that Hunters eating so well - good to have the tube to fall back on though hey. Hope Ciara's chest clears fully soon.
Love to you all
Ria & Jazzy XX
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Saturday, August 4, 2007 7:36 AM CDT
 | ES Alma Violeta here, to bring you joy, and bring you cheer, to fortify the Forest spirit to Shout it out so all can hear it! Come, join me in my quest, it really is a small request, and sharing spirit makes you smile, which makes my job so worth the while! Spirited Sprinkles from ES Alma Violeta |
ES Alma Violeta
DRealm of DSpirit, TSF Cherub Forest - Thursday, August 2, 2007 2:57 PM CDT
Heavenly Father, Physician of our souls and. bodies, who have sent Your only begotten Son and our Lord Jesus Christ to heal every sickness and infirmity, visit and heal us. Lord, please put Your Healing Hands on this body and heal. Lord, You have taught us Your word to pray for Each other that we may be healed. Please grant the gift of complete health. Please be with Doctors and guide them so that they can find the problem and pray that it be a very minor problem and quickly cured. Amen.
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.
The Prayer Bears
Barb
- Wednesday, August 1, 2007 3:43 PM CDT
So hope Ciara is feeling a bit better today? and you don't need to be admitted -many hugs Laura and Will xx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, August 1, 2007 2:08 AM CDT
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Tuesday, July 31, 2007 9:29 PM CDT
Good luck in the Site Fights!!!!!!!!!
Fairy Dewkiss <fairydewkiss@yahoo.com>
Salem, Or USA - Tuesday, July 31, 2007 5:17 PM CDT
I hope that things are getting better. I think of your family everyday and keep you in our prayers. I hope that Ciara get better soon. Now that we live so close I hope to be able to meet with and your wonderful children. I think Kassi will wnjoy that too. I hope all is well.
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, Ca USA - Monday, July 30, 2007 11:56 AM CDT
The Bennett family continues to be in my thoughts and prayers.
Jennifer, a Texas prayer bear <sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, July 29, 2007 8:08 PM CDT
Sending Ciara many Get Well Hugs! Hope you get better
soon.
Love,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Saturday, July 28, 2007 12:08 AM CDT
Get Better soon Ciara !
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, ON Canada - Saturday, July 28, 2007 11:35 AM CDT
Hi Alicia and John ~
Just checking in to see how Ciara is doing. Sure hope she is doing better and better. We're praying for you.
Pat, Sal, Mishael and Isaiah - Isaiah’s Journey <pat.bingham@charter.net>
Swartz Creek, mi - Friday, July 27, 2007 10:13 PM CDT
Spirit Belldandy here
To see your spirit and give a cheer!
Sharing spirit is what I like to do
So I've come to share some with you!
So good luck and fight with all your might
You'll go far with such a spirited site!
And don't forget to SHOUT IT OUT!
For that's what TSF Spirit is all about!
Spirit Belldandy
- Thursday, July 26, 2007 9:59 AM CDT
Praying for Ciara's pneumonia to clear up ASAP !!! You do not need a deja vu !
Eli & Fletcher
Michele
- Wednesday, July 25, 2007 6:25 PM CDT
We're thinking of you all!! Prayers for little Ciara are going strong.
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Wednesday, July 25, 2007 12:33 AM CDT
Hey Ciara,
Hope you are feeling better!
With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW
Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, July 25, 2007 3:57 AM CDT
Hi, I know 2 children like yours, they are such wondeful children, good luck to you. I too believe in angels.
Dawn Fenton <dfenton713@yahoo.com>
Monroe twp, nj 08816 - Tuesday, July 24, 2007 9:54 AM CDT
Good luck in the site fights. Hope all the children are better soon.
Fairy Dewkiss <fairydewkiss@yahoo.com>
Salem , Or USA - Tuesday, July 24, 2007 9:26 AM CDT
Praying that Ciara gets that gunk out of her lungs quick!
alyssa <sabiemc@aol.com>
roseville, ca usa - Monday, July 23, 2007 5:01 PM CDT
Poor Ciara. I hope this clears up without any problem. I'm glad Hunter is doing well following his surgery! Sending you guys hugs and well wishes!
Cari Cornish <cjcornish@yahoo.com>
Boston, MA - Monday, July 23, 2007 2:01 PM CDT
Just wanted to stop in and say Hi! (and please put on the parking brake, LOL!) I'm glad the kids are doing pretty good presently! That in itself is a blessing!
Love and hugs,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, July 21, 2007 10:38 AM CDT
Dear Bennett Family,
Hope things are going good with the children and that you parents are holding up ok. I just can't imagine the stress you must have worrying about them. God Bless You All.
A Charlevoix Follower
Charlevoix, MI - Saturday, July 21, 2007 10:17 AM CDT
Just dropping in to say "HI"
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Friday, July 20, 2007 8:08 PM CDT
just wanted to come by and hope all is wellwe are thinking of you guys hugs kathy
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, July 17, 2007 9:18 AM CDT
Hi Alicia.
Thinking of you today. I hope Hunter is starting to feel better now. And taking his feeding through G-tube fine. I can not believe how much you have to go through with your insurance. May GOD help you through each day. You are a great MOM. Always keeping your family in my thoughts and prayers.
Tayyaba Abeerah, Khansa & Zahra
NJ <tayyaba@helourgirls.com>
- Monday, July 16, 2007 6:10 PM CDT
Glad you got what you wanted at Kaiser, even though it was necessary for you to fight for what you needed. I'm praying that you all are at home and that Hunter's feeding tube is working well and his recovery is going smoothly.
Jennifer, a Texas prayer bear <sassy_girl913@yahoo.com>
Bridgeport, Texas - Monday, July 16, 2007 12:38 AM CDT
Hi Alicia,
Just stopping by to check on the kids, hope you guys have a great weekend.
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, ON Canada - Saturday, July 14, 2007 8:45 AM CDT
Oh my, a lot has happened since I checked on you last! I am so sorry for not checking sooner! I am glad Hunter is now home and that he is getting some much needed sleep. Poor guy must be exhausted. I am sorry you have had such a hard time with Kaiser. They need to accomodate you better than that! Hope you have a great weekend.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Friday, July 13, 2007 10:50 PM CDT
Lord, look upon us with the eyes of Your mercy, may Your healing hand rest upon us, may Your life-giving powers flow into every cell of our bodies and into the depths of our souls, cleansing, purifying, restoring us to wholeness and strength for service in Your Kingdom. O God, who is the only source of health and healing, the spirit of calm and central peace of this universe, grant unto us such a consciousness of Your indwelling and surrounding presence, that we may be able to receive from You health and strength and peace, through Jesus Christ our Lord. AMEN
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.
Where there is great love there are always miracles.--Willa Cather
The Prayer Bears
Barb
- Friday, July 13, 2007 4:02 PM CDT
Glad Hunter is home. I hope all of you can get some well deserved rest. Have a wonderful weekend. :)
Linda Friedlander <lindabf19@comcast.net>
Tallahassee, FL - Friday, July 13, 2007 3:45 PM CDT
wELCOME HOME HUNTER!!!
Meghan & Nater www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
- Friday, July 13, 2007 8:26 AM CDT
Alicia, I am so glad to hear that Hunter's surgery is done and over with and all went well...That is what has to be done with Payton, the fiberoptic scope...I will say a prayer in hopes that Hunter will recover fast and that his tube feedings will go smoothly!!!
Love, Payton and Shannon
Shannon Cherpes Mom to Payton MPSll and Alexis, Cheyenne, and Hunter www.caringbridge.org/visit/paypay <cookie_sc2000@netzero.net>
Ionia, Mi U.S. - Thursday, July 12, 2007 4:04 PM CDT
Alicia, so glad that Hunter finally managed to get some much deserved sleep! I hope that you're all home now & settled & Hunter has a speedy recovery. Sending loads of love to you all, Louise & Georgia xxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Thursday, July 12, 2007 3:54 AM CDT
We hope everyone and everything will be better soon!
Hang in there Hunter!
We made you guys and girls some cool banners to help you feel better and put on your site if you want!!:
Ciara's: http://img214.imageshack.us/img214/1209/princessciaradn2.png
Hunter's: http://img214.imageshack.us/img214/8731/hunterfuntq2.png
Tommy & alyssa's: http://img214.imageshack.us/img214/5215/aandtqm1.png
hope this helps!
~Meghan & Nater
Nate & Meghan Gapa www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
- Wednesday, July 11, 2007 9:09 PM CDT
I am relieved that Hunter's surgery is over and that all went well for him (other than intubation). However, I am sad to hear that the folks at the hospital acted like horse butts, to put it bluntly. You would think that they know who they are messing with by now. Hell hath no fury like a mother protecting her babies! And that is just how it should be. You are a hero!!
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Wednesday, July 11, 2007 2:42 PM CDT
Alicia,I'm so sorry to hear that they are being so difficult and non accomadating.Prayers heading your way.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, July 11, 2007 1:43 AM CDT
I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him. Then you will overflow with confident hope through the power of the Holy Spirit. (Romans 15:13)
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Barb
- Tuesday, July 10, 2007 12:52 AM CDT
Saying extra prayers for Hunter today.
Hugs,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Tuesday, July 10, 2007 8:12 AM CDT
Alicia,
I am so sorry that that stupid hospital gives you sooo much trouble. I really wish you would call me because both kids are entitled to benefits in CA that would allow to use other facilities. E-mail me anytime if you have a chance and I'll give you the information. I want things to be so much easier for you all!!
In my thoughts and prayers,
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
liverpool, ny - Tuesday, July 10, 2007 6:53 AM CDT
Praying for Hunter today!!!! And of course for you Alicia. Im sure he will do great! And...as for the other situation...raise hell!!! Call me as soon as he is out. Love you Hunter and sorry I could not be in town to be there...
alyssa <sabiemc@aol..com>
roseville, ca usa - Tuesday, July 10, 2007 2:28 AM CDT
Thinking of you all
Lots of Love
Ria & Jazzy
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Friday, July 6, 2007 2:15 AM CDT
Praying that Hunter's surgery goes well on Tuesday, and that you all can have a private room.
Jennifer, a Texas prayer bear <sassy_girl913@yahoo.com>
Bridgeport, Texas - Thursday, July 5, 2007 8:19 PM CDT
wow , just reading about your recent ordeal was mind boggling and frustrating and I wasn't even there ! Good for you educating the so called "professionals." Keeping you all in my thoughts and prayers .
Eli & Fletcher
Michele
- Thursday, July 5, 2007 6:48 PM CDT
Just stopping by to say 'Hi'! Will be thinking of you & Hunter next week & praying that all goes well for his surgery! Sending loads of love,Louise & Georgia xxxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Thursday, July 5, 2007 5:30 PM CDT
^^Tommy^^, I have not written to you in here for a while...and tonight I felt the tug on my heart to do so. You probably already know this, but you are so greatly missed. Your hugs, your brown eyes, your smell...everything about you!!!! Your goofy laugh that would light up anyone's heart. Such a beautiful boy you were. I know you are up in heaven watching over Ciara and Hunter as they struggle with this horrible disease. And I know you are hugging your mom whenever she feels overwhelmed or cries for you. Its just so very hard not to have you here. There is always this empty physical space....where you should be. Whenever we go out...I wonder what you would be doing. If you would still run behind me and push me and run away laughing. I wonder if you would still hold my hand and scream whenever your mom and I would drag you into a clothing store! I think about how we could take fun trips and I could have my "tommy" time and kidnap you for the day! I wonder what you would look like and if you would finally be talking. To this day I see things in the store and think of how I want to buy it for you....but you are in heaven now. I know you know this little buddy, but you are SO SO loved and are always in my thoughts and you have a huge place in my heart!!!! I LOVE YOU AND MISS YOU TOM!
alyssa <sabiemc@aol.com>
roseville, ca usa - Monday, July 2, 2007 0:44 AM CDT
Hey..hope that the car wash went well. I wish i could have gone, but i was too busy NOT selling cars =) Anyway give me a call later
alyssa <sabiemc@aol.com>
roseville, ca usa - Sunday, July 1, 2007 5:07 PM CDT
Praying that the fire gets under control soon and that everybody can return home safely .
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Saturday, June 30, 2007 8:20 PM CDT
Hello Bennetts,
Hope all is well and John is safe
Have a great 4th of July we have Canada day tomorrow.
Well I should go get the rest of my stuff together I leave for camp tomorrow morning.
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, ON Canada - Saturday, June 30, 2007 6:37 PM CDT
Have a great 4th of July!
Hugs,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, ca - Saturday, June 30, 2007 11:36 AM CDT
Bennett Family,We hope you all have a wonderful 4th and a great summer.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Friday, June 29, 2007 10:13 AM CDT
Bennet family,
It is very nice of you to sign the guest book of Vidya ( MPS III). I sincerely hope Ciara and Hunter are making good progress. Sorry to hear about Tommy. It must have been devastating . I can really understand the difficulty in managing three children with MPS.
Vidya, my daughter is 12 years now, diagnosed MPS III 4 years ago. She is non verbal, but very mobile and extremely hyper. She started getting seizures from last May. The attack is very regular, once in 7 days and when it occurs, it repeats a 2nd time. We started with Trileptal, changed many drugs and finally settled with Tarleva and now balance the dosage with side effects and frequency of attack.
I am thinking of giving her genistein rich soy isoflavone as many parents have reported postive results.
MPS is still unknown to most people in India including doctors. It is such a rare disorder that only some specialist genetic scientists are working on it. The information that we have gathered are all through the internet.
I once again wish Ciara and Hunter the very best and pray that they lead as normal a like as one would wish. My God give you the courage, patience and good health to take care of the children
Rgds
Kasturi Rangan
Kasturi Rangan <kasturi_sys@satyam.net.in>
Bangalore, India - Thursday, June 28, 2007 12:19 AM CDT
Glitter Graphics
Hey John, Alicia, Ciara, Hunter & angel Tommy!
We hope all is going to get better soon!
Hang in there!
Were praying for you!
~Meghan & Nater~
Meghan & Nater www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
Lyndonvillle, NY ***USA*** - Wednesday, June 27, 2007 12:06 AM CDT
Good luck in The Site Fights!!!
Fairy Alma <pixelita@gmail.com>
DRealm of DFairies, TSF TSF - Monday, June 25, 2007 9:42 PM CDT
Please give Ciara and Hunter big hugs and kisses from us and I hope/pray the car wash goes great!
Hugs,
Misty (mom to Seth, MPS II)
MIsty <coreyvannostrand@netscape.net>
Lawrence, ks USA - Monday, June 25, 2007 2:49 PM CDT
praying , praying , praying
Eli & Fletcher
Michele
- Saturday, June 23, 2007 5:18 AM CDT
Ciara I hope you are feeling better and have cooled off a bit.
Hang in there kiddo
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, ON Canada - Friday, June 22, 2007 8:34 PM CDT
Hi guys,
I'm glad both Ciara and Hunter are doing so well good lucky with your surgery in July I'll be thinking of you while I'm at camp.
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, ON Canada - Wednesday, June 20, 2007 9:20 PM CDT
Praying that the appointments go well.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Tuesday, June 19, 2007 11:39 PM CDT
Thanks for signing Mamie's guestbook.
I hope Tommy likes balloons, because we released a lot of them for her birthday, and she loves to share with other children.
I'm praying for your whole family - for healing and strength.
www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Tuesday, June 19, 2007 10:11 PM CDT
DBright Fairy Hermione <xanth_rocs@yahoo.com>
Hacienda Heights, CA DRealm of Fairies - Tuesday, June 19, 2007 4:24 AM CDT
hi alicia
so so glad ciara is feeling better, i think of you all often.
julia
julia hedges <juliahedges@btinternet.com>
- Monday, June 18, 2007 8:51 AM CDT
It was wonderful to read how well Ciara has been doing and improving. I'm so glad she has come around. Much love and thoughts to you all...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Sunday, June 17, 2007 8:46 PM CDT
Happy Fathers Day John!!! Hope you got a big one!
alyssa <sabiemc@aol.com>
roseville, ca usa - Sunday, June 17, 2007 3:51 PM CDT
Bennett Family,HAPPY FATHER"S DAY!We just stopped by to say hi and hope you and your family are having a terrific summer!
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, June 17, 2007 2:45 PM CDT
Kim & Scotty
<cottons@earthlink.net>Modesto, CA - Sunday, June 17, 2007 2:09 PM CDT
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Sunday, June 17, 2007 10:44 AM CDT
I'm glad to hear Ciarra is doing a tad better . But Hunter's got me worried . They need to get him in ASAP for that feeding tube . I pray for no more scary choking incidents in the meantime . You are an amazing Mom .
Eli & Fletcher
Michele
- Saturday, June 16, 2007 11:05 AM CDT
We’re stopping by to see how things are going! Letting you know we think of you and pray for you! Take care and God bless you!
Love, Samantha, Ashton, & Tristen :)
www.caringbridge.org/visit/tristenwilliam
Samantha Lemoine <szuther@hotmail.com>
Hillsboro, ND USA - Friday, June 15, 2007 9:42 PM CDT
Hi Alicia
I hope that you are having a good week and that Hunter has not given you any more scares. The 20th is Wednesday so I will be praying that his tube surgery goes well.
leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, sc - Friday, June 15, 2007 9:30 PM CDT
Blessed Father's Day
For Fatherly Guidance
Lord God, author of all wisdom,
Teach me how to do my work as a father according to your will.
Enlighten my mind that I may understand what to tell my children when it is necessary to give them direction or advice.
Give me good judgment to understand true spiritual values and to guide my family in your ways.
The world makes little of your wisdom and is not instructed in your ways, and close contact with the world makes it easy to become dulled to the things of solid spiritual worth.
Be my guide at all times, that I may be a true father and husband, sensitive always to the divine wisdom that only you can impart.
God, by the light of the Holy Spirit you instruct the hearts of your faithful.
Grant that I may be truly wise and ever enjoy his consolation, through Christ our Lord. Amen.
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Where there is great love there are always miracles.--Willa Cather
The Prayer Bears
Barb
- Friday, June 15, 2007 7:10 PM CDT
I hope things are going a little better for you all. I hope the kids are doing better and I hope that you found a new place to live. We will be moving to California in about two weeks. We are getting excited. We continue to keep you in our thoughts and prayers and hopefully we can meet soon.
Trisha
www.caringbridge.com/visit/Kasandra
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID USA - Thursday, June 14, 2007 11:02 PM CDT
Ciara,We just wanted to say a quick hello and hope you're having a wonderful summer.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Thursday, June 14, 2007 1:57 PM CDT
I am sorry I have not written in a long time. I am sorry the kids are not doing well. I will keep them both in my prayers.
Tina & Angel Lance <lancejrmommy@comcast.net>
- Thursday, June 14, 2007 11:17 AM CDT
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Wednesday, June 13, 2007 11:21 PM CDT
Can you feel it?
It's the ~SPIRIT~
So, give us a CHEER!
~this way...over here~
With Sprinkles of Spirit
and Fairy dust, our days
have turned to gold.
Wings will flutter and
whispers heard, for the
stories to be told.
A tale some say
tho' everyday
it is here...
felt, but not seen.
The Spirit grows
and especially so
with -SPIRITED- life
and friendship seed.
Good Luck to you and
have a wonderful week!
Wishing to you lots of Spirit!
Spirit ((Hugs))
Spirit WindDelos <spiritwinddelos@yahoo.com>
- Wednesday, June 13, 2007 10:25 PM CDT
Hello, I just found your site, you are a very strong person and your children are lucky to have you. Hope all goes well with your family. My daughter's name is Alicia, great name, she had a bone marrow transplant for MDS on 1/13/07. Enjoy every day, it's more precious than even we realize. God Bless.
Nicole Garen <cola_1988@yahoo.com>
St Ignace, MI USA - Wednesday, June 13, 2007 11:56 AM CDT
Alicia, thinking of you. Great to hear that Ciara is improving. Hope you can get things sorted for Hunter & many, many prayers for you too! Louise & Georgia xxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Wednesday, June 13, 2007 11:17 AM CDT
Sending prayers and love.*
~Laurie (mom to Angel Gregory* and Angel Peter*)
Wakefield, MA - Tuesday, June 12, 2007 6:04 PM CDT
Glad to read that thing are going a little better!
Sending you love and hugs,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Tuesday, June 12, 2007 4:16 AM CDT
good luck in The Site Fights!!
Fairy Alma <fairyalma@gmail.com>
DRealm of The Fairies, TSF The Site Fights - Tuesday, June 12, 2007 0:32 AM CDT
Hi there Bennett Family so sorry that I have not been by in awhile. We have been so busy. You are always in my thoughts. Joseph and I are sending you big hugs
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, June 11, 2007 11:28 PM CDT
Love, courage, prayers, the medical support you need...did I say love...?
Always and always thinking of you.
Hugsabunch,
Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA USA - Monday, June 11, 2007 2:40 PM CDT
Hunter and Ciara are in my prayers.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, June 10, 2007 10:17 PM CDT
Hi Alicia,
I hope you can get the ball rolling for Hunter's feeding tube. It does sound really scary both for you and poor Hunter.
I'm glad Ciara is doing a bit better, I'll be thinking of you guys all the way from Ontario Canada.
Thinking of you guys
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, ON Canada - Sunday, June 10, 2007 10:25 AM CDT
hi guys
just wanted to come by and check on you i hope the kids get to feeling better soon.i know that feeling when katilynn use to get choked it would scare me to death.i send you lots of love,prayers and hugs kathy mom to angel katilynn
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky USA - Saturday, June 9, 2007 2:45 PM CDT
I am glad that Ciara is having and better time and is talking to you. You needed that. I hope Hunter will be getting help soon and will be feeling better and giving you less scares. It is wonderful that you and John have such nice support from your town. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, June 9, 2007 6:44 AM CDT
I love you and continue to lift you in prayer while my heart continues to break for the road you have to travel. Know that you don't stand alone. Of course I don't know how you feel--not by a LONG SHOT. But, I do know that I'm right here by your side. Let me know if I can do anything besides pray. I haven't hugged you in quite a while so I'm saving them up til the next time I see you. Blessings.
Khalita Duke Peds BMT Aplastic Anemia <khalita@yahoo.com>
Lexington, NC - Friday, June 8, 2007 8:51 AM CDT
MPS SUCKS!!!!!!
alyssa <sabiemc@aol.com>
roseville, ca usa - Friday, June 8, 2007 0:00 AM CDT
I'm praying for you and the children. Peace*
~laurie (Mom to Angel Peter* and Angel Gregory*) <lauriemcs@aol.com>
Wakefield, MA - Thursday, June 7, 2007 8:52 PM CDT
Oh my gosh.....never a break for ya'll!! Hoping things have calmed down a bit and both children are on their way to better days.
DMM
- Thursday, June 7, 2007 8:41 PM CDT
oh...dear...I'm so sorry about Lil Topknot and Autumn Boy.
Sounds like Hunter was having an allergic reaction, considering the rash and all.
We hardly appreciate breathing until it becomes laborous. And for it to happen to little ones, terrifying.
I share the feelings, hopes and prayers of all the other visitors and friends here.
You are much loved and prayed for in your time of so much need.
Hugsabunch!
Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA USA - Thursday, June 7, 2007 1:55 PM CDT
Oh Alicia I'm so sorry to read about Hunters episode - gosh can't life give you a break!?!?!
Praying for you and your family
Ria & Jasmin www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Thursday, June 7, 2007 4:45 AM CDT
Heavenly Father, Physician of our souls and. bodies, who have sent Your only begotten Son and our Lord Jesus Christ to heal every sickness and infirmity, visit and heal us. Lord, please put Your Healing Hands on this body and heal. Lord, You have taught us Your word to pray for Each other that we may be healed. Please grant the gift of complete health. Please be with Doctors and guide them so that they can find the problem and pray that it be a very minor problem and quickly cured. Amen.
Praying for you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Wednesday, June 6, 2007 3:54 PM CDT
Hello,
Just stopping by to check on Ciara I'm gald she is improving.
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Wednesday, June 6, 2007 12:26 AM CDT
I am glad to hear that Ciara is doing better and pray that she will improve with each day. My prayers will continue to be with your family and all MPS families . Hugs from SC !! Kathy
Kathy Blackwelder <jkmm@comporium.net>
Rock Hill , SC - Tuesday, June 5, 2007 1:51 PM CDT
Pika Pika!
|
Fairy Pikachu <pikachu157@hotmail.com>
- Monday, June 4, 2007 10:30 PM CDT
Bennett Family,Just stopping by to say hello.I'm glad to hear Ciara is out of the hospital.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Monday, June 4, 2007 6:19 PM CDT
I am so glad to hear that Ciara is holding her own. I hope that you will have plenty of time to find a new home. I am so sorry that you have to even think of that right now. Big hugs you all.
Leslie Jurado <ijf@comporium.net>
Rock Hill, SC - Saturday, June 2, 2007 9:29 PM CDT
Good to hear that you're finally home, but so sorry to hear about Ciara. Talk about stress in trying to find a house too. Boy life is never calm is it? Thinking of you all and praying for Ciara and in finding a new home.
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Saturday, June 2, 2007 9:10 AM CDT
Gee...talk about pressure! =)
alyssa <sabiemc@aol..com>
roseville, ca usa - Saturday, June 2, 2007 0:42 AM CDT
Praying that tonight does not go like the other two.... Know that I am only an hour away, ok 45 minutes if I drive fast! I hate so so so much that you guys have to go through this...that we all have to go through this. I hate this stupid disease. I hate that Ciara has to suffer so much. If you need a break and want to get out you know I will take over nursing duties...im well qualified!
alyssa <sabiemc@aol.com>
roseville, ca usa - Friday, June 1, 2007 7:53 PM CDT
I have been gone on business and my goodness, things sure have moved along. I am so thankful to hear that Ciara is home and with the pulseox machine she needed. Alicia: YOU ROCK. You are such a stong advocate for Hunter and Ciara both. What a fantastic letter you wrote to the hospital "administrator". I hope that the cc's catch the attention of those in higher places and all guilty parties dealt with appropriatly. (A few even should be fired!)
Anyway, prayers will continue for your family, especially Ciara, who desrves some much deserved rest and comfort.
Prayer Warrior
- Thursday, May 31, 2007 3:46 PM CDT
WELCOME HOME CIARA!
Yipppeee!
Praying for you always.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Thursday, May 31, 2007 12:16 AM CDT
God bless Ciara and the rest of your family. I can't imagine the stress that all of you have been under. Hopefully, things will be under control soon and Ciara can rest comfortably. She has been thru so much.
Thank you for sharing and keeping us updated on her progress.
A Charlevoix Follower
Charlevoix, MI - Thursday, May 31, 2007 10:51 AM CDT
Welcome Home Ciara let's hope you can stay there, you'll get over this bump hang in there kiddo.
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Thursday, May 31, 2007 8:09 AM CDT
Yeah!!!!!!!!!!!!
Congrats to you for both Ciara coming home and for the machine that you needed. I will try to get ahold of you this evening or tomorrow.
Love Ya
Michelle
MICHELLE FITZPATRICK <LFISCHER@ZOOMINTERNET.NET>
medina, oh - Wednesday, May 30, 2007 9:12 PM CDT
Praying for you all,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Wednesday, May 30, 2007 3:21 PM CDT
just stop by to let you know that we are praying she well get well soon give her lots of hugs and kisses from the preston family
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky USA - Wednesday, May 30, 2007 12:08 AM CDT
Hello,my name is Marie and I live in Australia with my husband Colin.We are both Christians and want you to know that if we could help out with money we would but hubby is on a disabilty pension but there is one thing we can do and will do and that is pray for your family and also that you get a loving caring doctor as well as nurses.GOD bless you all, Marie
Mrs Marie Jones <first_time_nanna@msn.com>
Heathcote, Vic australia - Tuesday, May 29, 2007 8:54 PM CDT
Do they treat everyone this way or just you??? I can't believe a hospital can be run that way...well if you call that running a hospital. Don't spend one extra second more on them than you need to. I know you have got to get this straightened out but you don't want to waist time away from your babies. Jerks! Good luck. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Tuesday, May 29, 2007 10:13 AM CDT
DBright Fairy Hermione <xanth_rocs@yahoo.com>
Hacienda Heights, CA United States - Tuesday, May 29, 2007 5:28 AM CDT
Hey! Hey!
A Cherub Forest Enchanted Angel Spirit here,
to let you know your friends are near.
We want to see your spirit shine,
so I'm sharing some of mine.
With friends and spirit you'll go far,
and you'll be shinning like a star.
The best of luck in your fights!
Enchanted Spirit Angel <REMOVE4NOSPAMesangel@thesitefights.com>
- Monday, May 28, 2007 7:51 PM CDT
Alicia, Me thinks...if you can't have a pulse ox machine, then I guess 24 hr nursing care at home should suffice. I don't know why you don't have some now. Adrienne
Adrienne <asaunders@newbedford.k12.ma.us>
- Monday, May 28, 2007 6:05 PM CDT
My prayers are with you all. What a loveley website too.
thanks for allowing me to visit. I will be back often.
hugs & smiles........Robin from Ocean Mist Signature Group
Robin <cuteaunt46@msn.com>
Collins, OH USA - Monday, May 28, 2007 8:37 AM CDT
I'm not from Cali. so I do not know what "KAISER" is, but an guessing its the family insurance company? While all insurances these days SUCK, this certain situation seems to be way out of control. Is there an address where we can bombard the person saying no with letters or emails telling them that what they are doing to this family is about as cruel as cruel gets? This family needs to be HOME TOGETHER, not seperated because of beurocratic (sp) garbage.
My best to you all and praying w/o ceasin that Ciara is better.
Prayer Warrior
- Monday, May 28, 2007 6:09 AM CDT
Bennett Family,
Praying that no updates means that Ciara is home and all of you are very busy spending time together. You are truly one amazing family. I no it's hard to fight for medical equipment but don't give up.
terri
- Sunday, May 27, 2007 8:27 PM CDT
Many prayers for Ciara (and Alicia)
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Sunday, May 27, 2007 8:07 PM CDT
Praying for Ciara!
Love, Alex and MaryBeth
MaryBeth <attnymb@aol.com>
- Sunday, May 27, 2007 5:30 AM CDT
Alicia -
We continue to think of you and to pray for Ciara.
I hope that my emails have been some help to you with regard to the pseudomonas & oxygen etc.
Sending love too from my Mother and Jasmins carer Juliana who ask after Ciara daily.
Always here,
Ria, Dave & Jasmin XX
Ria & Jasmin www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
Glos, England - Sunday, May 27, 2007 4:21 AM CDT
I am praying for Ciara and hope she gets to come home soon.
Kathy H.
T.O., CA - Saturday, May 26, 2007 3:23 PM CDT
We have used the Nonin Onyx 9500 pulse oximeter and it works fine. It costs only $240, I know still a big chunk but better. I don't know if there's a reason that you would have to have the other model, but for spot checks this one really does well. It sounds like Ciara is okay at night, so most of the time you would need to check her would be during the day and you could put it on and take it off. My daughter had a problem with aspirating her own secretions and having her sats drop, and eventually we started her on Reglan. Some of her issue was due to reflux and she was aspirating stomach contents. It also didn't happen at night, just when she was awake. These episodes are much less frequent now on the Reglan. She's also started Lyrica for muscle twitching and jerking with good results. It's only mildly sedating.
I know you get so much well-intentioned "advice" and none of us really know what the situation is, but I had to pass this along. I hope Ciara can get home soon.
Best wishes,
Alison Kirk
Alison Kirk <kirkplace@comcast.net>
Nashville, TN United States - Saturday, May 26, 2007 7:23 AM CDT
Good morning Alicia
So sorry to hear Ciara is still not feeling good
We are thinking of you
Anne and Sebastien
Anne Cairns <buzz.cairns@sympatico.ca>
Markham, Ont Canada - Saturday, May 26, 2007 5:37 AM CDT
Hey Alicia~ My name is Autumn While from Georgia. I'm not sure if you remember me or not. My husband use to be on the Ione City Fire Dept. We did a fund-raiser for you guys here @ Eastanollee Fire Dept. in Georgia. You guys have been on my heart and I finally found out how to get in touch with you. I'm sorry that I have not kept in touch but I have had a rough time since March 2004. Things went wacky on me and we'll I won't go into detail but if you want you can read my story @ http://www.ourchurch.com/member/n/nursery-miracle/
Anyways just wanted to say Hey and to let you know that I am and will be praying for you guys.
Jesus~ BE GLORIFIED IN THE BENNETT'S LIFE!
***********************************************************
"The prayer of faith will save the sick, and the Lord will raise him up." -James 5:15 (NKLV)
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"I shall not die, but live, and declare the works of the LORD." - Psalm 118:17
(the word declare means to 'CELEBRATE')This scricture was given to my mom by the Lord on the day that I had the brain hemorrhage. (read my story at the link above, you may have to copy & paste it to access it)
***********************************************************
"Come into my chambers, where NO HARM can touch you, where My touch is tender, where My words bring healing." says the Lord.
Bring healing Holy Spirit, bring your gentle wind that would breath life and resoration into Ciara's body! Come Sweet Wind of God, COME!!!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Remember it is in your weakness that God's strength can shine through!
Blessings~
Autumn ~ A.K.A.- 'Miracle Girl'
AUTUMN WHILE <miracle04girl@yahoo.com>
EASTANOLLEE , GA USA - Friday, May 25, 2007 4:13 PM CDT
Oh thank God for finally finding a medical "professional" who actually has a heart!!! I hope he/she is able to get you everything you need to make Cirra's transition to home safe for her and easy on you and John.
Praying ~ PRAYING for Ciraa's full recovery.
Prayer Warrior
- Friday, May 25, 2007 2:24 PM CDT
Hi Alicia,
I sent you a couple of e-mails from RCURK@aol.com with important information you could really use! Please check them out if you get a chance before getting discharged from the hospital. I know how tired you must be, but the info can help you get help at home that you deserve and Ciara is entiteled to! Or you can just call me 315-457-8382 and I would be happy to talk with you.
In my thoughts and prayers!
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Friday, May 25, 2007 10:04 AM CDT
Hi there Alicia,
I did some checking and found a nice finger pulseox machine for only $199 instead of the other, more expensive one. Maybe this info will help you obtain a machine more easily.
SALE PRICE $199.00
Medair AB a Nonin Medical company, is offering the rugged and reliable OxyCheck finger pulse oximeter.
Medair OxyCheck Finger Pulse Oximeter Works the First Time, Every Time
• Fast and accurate SpO2and Pulse Rate readings
• Clear, crisp, easy-to-read LCD display
• Adjusts from pediatric to large adult finger sizes
• Cleared FDA requirements for accuracy
Medair OxyCheck Includes:
• Lanyard Cord
• 2 'AAA' Batteries
• Manual
• 2 year warranty
Someone Who Cares
Praying for your family, - Thursday, May 24, 2007 5:03 PM CDT
Hi Everyone
Just to let you know that Ciara is in our thoughts and we hope she's feeling a lot better really soon
Lots of Love
The Broadleys
www.caringbridge.org/visit/lewisbroadley
Gordon Broadley <gordon_broadley@hotmail.com>
Falkirk, Scotland - Wednesday, May 23, 2007 4:22 PM CDT
Hi Ciara, John, Alicia, and Hunter,
Sorry to hear that Ciara is still keeping all of you on your toes! I am always reminded of my best friend when I see her pictures. She is soo beautiful. Tomorrow I take the test for my nurse's aide class. It will be really nice to get that test out of the way, one less thing I have to worry about. I will be in prayer for Ciara.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Wednesday, May 23, 2007 1:29 PM CDT
Dear John and Alicia, We are continuing to pray for Ciara's health, God's peace for you both, and understanding and compassion of the doctors. I hope Dr. K has some words of wisdom for you. E-mail me if you need anything. Since Krysta is still on isolation, we have alot of time on our hands and would love to do something productive with our time.
Shelley Hartsuyker <hugseveryday@hotmail.com>
jackson, CA - Wednesday, May 23, 2007 0:01 AM CDT
My apologies for not visiting in "ages"...I actually do think of y'all every week. I was sorry to learn that Ciara is very sick and hospital-bound. I know you are tired and scared (all of you) but never lose HOPE. It may seem bad, it may seem even worse about Traching, but nothing is as bad as the alternative...I love having Lindsey here with me everyday even though it's not the way I wish it was. Please know I am praying that Ciara will pull through this and be back home smiling again. Much love to each of you...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, May 22, 2007 7:13 PM CDT
Praying for Ciara.
Liz Hindson <lizcon@yahoo.com>
SC - Tuesday, May 22, 2007 5:18 PM CDT
Alicia, John, or Alyssa
Please call me at 330-241-5590 with an update. I am so sorry that I did not get your message until right now. It will drive me nuts not to know what is going on. Please call anytime day or night.
Michelle
MICHELLE FITZPATRICK <LFISCHER@ZOOMINTERNET.NET>
Medina, oh usa - Tuesday, May 22, 2007 2:46 PM CDT
For sweet Ciara:
O God who art the only source of health and healing, the spirit of calm and the central peace of this universe, may your healing hand rest upon thy servant, may your life-giving power flow into every cell of her body and into the depths of her soul, cleansing, purifying, restoring to wholeness and strength for service in your Kingdom.
Amen
We remember the soldiers who fought for our country.
Thank you to our troops & their families! Happy & Safe Memorial Day to ALL!
Praying for you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon with new pics of our Relay and our miracle girl.
The Prayer Bears
Prayer Bear Barb
- Tuesday, May 22, 2007 1:08 PM CDT
Good luck in The Site Fights!
Fairy Alma <fairyalma@gmail.com>
DRealm of the Fairies, TSF The Site Fights - Tuesday, May 22, 2007 7:35 AM CDT
I can not even imagine what you are going through. We pray everyday for Ciara. She is such a beautiful girl. We check her website about 3x a day waiting for an update. We keep hoping that we will read that she is doing okay now. We will continue to keep her in our thoughts and prayers.
Lots of Hugs,
Trisha Offenbacker ( Kassi's mom)
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID usa - Tuesday, May 22, 2007 0:24 AM CDT
Praying that the Holy Spirit permeates every inch of Ciara's hospital room, bringing each of you comfort, peace, assurance, rest, and the knowledge of God's unconditional love.
Sharon
Portola, CA USA - Monday, May 21, 2007 11:54 PM CDT
Alicia & John,
My thoughts and prayers are with you. When my mom was in a coma, a wise women in the waiting room told me, to Just listen to what the Drs have to say. Dont accept it. You only accept something once its happened, because then u are accepting the will of God. Ciara can beat this! Keep praying. There is nothing in the world that is like the power of prayer.
Thoughts and prayers are with you from people whom u have never met, but whose lives have been touched and changed by your families strength and your beautiful children....
Take care of yourselves...
Yasmeen
NJ - Monday, May 21, 2007 10:11 PM CDT
Ciarra,
We're sending you strong prayers and hugs and kisses across the miles. We pray for you to get better!!!
Many, many prayers,
Cynthia, Frank & Frankie (MPS III A)
Cynthia DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Monday, May 21, 2007 1:08 PM CDT
Praying for you Ciarra.... praying for strength for you to recover and strength for your family to be with you. Thinking of you...
Mommy Koren to Bryce "Hold on to HOPE, and BELIEVE"
www.caringbridge.org/visit/fightforbryce
k adams
webster , ma usa - Monday, May 21, 2007 12:57 AM CDT
You don't know us but we know of you through Frankie and Jessie and the folks at Duke, where our daughter Kate had a cord blood transplant almost two years ago. I read just today about how ill Ciara is, and wanted to say that I am thinking of her and praying for her. I hope that she can fight this off and get back home.
With all of our good wishes,
the Kirk family (Alison, Doug, Caroline, and Kate)
caringbridge.org/visit/katekirk
Alison Kirk <kirkplace@comcast.net>
Nashville, TN United States - Monday, May 21, 2007 12:05 AM CDT
Alicia and John,
My prayers are with you. It must be a godsend to have Alyssa there with you. I hope that Ciara is feeling better soon. Praying fervently.
Mary <miniteasets@mail2world.com>
Worth, IL USA - Monday, May 21, 2007 10:16 AM CDT
My prayers are with you Ciara and Alicia and your family. I am hugging you right now,I love you guys.
Tina -Alericos mom <alericosmom@comcast.net>
- Monday, May 21, 2007 10:07 AM CDT
Dearest Alicia and family
Our thoughts are with you during these very hard moments.
Be strong!
Love and hugs,
The Koumpouras Family.
Marianna <ermiskub@yahoo.gr>
Lamia, Greece - Monday, May 21, 2007 7:26 AM CDT
Praying, Praying, Praying.
Love Tina,Padraic,Amy + Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Monday, May 21, 2007 1:26 AM CDT
Dear Alicia & John.
Keeping you in my prayers every minute. My heart hurt so much thinking of your pain. Praying hard for Ciara to get well. I hope Drs. can come up with some good news. Hang in there guys and keep your faith strong. Sending many ((((HUGS)))) your way and
for the princess.Tayyaba, Beg Girls
NJ <MPS_stinks@yahoo.com>
- Monday, May 21, 2007 0:20 AM CDT
More hugs and prayers from Ontario, Canada. Feel better soon!
Kathie & Sarah <kathie12@sympatico.ca>
Canada - Sunday, May 20, 2007 10:25 PM CDT
Ciara,
you are an inspiration and a gift to all those whose lives you've touched. Fight baby! My thoughts and prayers are with you and your family.
Stephanie Moore <patrick.moore@insightbb.com>
Simpsonville, KY - Sunday, May 20, 2007 10:07 PM CDT
Thinking of you, praying for you, sending you our love.
The Montgomery's
Stacey, Lew, Mariah, Chelsey, Hailee and Lucas
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@aim.com>
- Sunday, May 20, 2007 7:19 PM CDT
Dearest Ciara,
Our thoughts are with you, get well!
Love,love and love
Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl>
Haren, The Netherlands - Sunday, May 20, 2007 6:27 PM CDT
Oh Alica and John you don't deserve this treatment. I hope Dr. K can rattle some cages or smack some brains together or threaten to sue them or something to get Ciara the medical care she deserves!!! I am thinking of you so often and I hope she will start feeling better soon. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Sunday, May 20, 2007 4:29 PM CDT
Alicia, praying so hard for sweet Ciara to pull through this, she's a little fighter. Sending loads of love to you & John xxxxxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Sunday, May 20, 2007 4:02 PM CDT
I am storming the heavens for Chiara and your family. God bless*
~laurie
Wakefield, MA - Sunday, May 20, 2007 2:32 PM CDT
Praying very hard for Ciara that she will be completely healed and for the entire Bennett family. God bless you all.
Linda Friedlander <lindabf19@comcast.net>
Tallahassee, FL - Sunday, May 20, 2007 2:23 PM CDT
Alicia & John
Please know that we are saying many prayers for all of you. It was so good to see Ciara's pretty little face at the hospital the other day. Please let me know if there is anything I can do for you.
Hugs,
Kim & Scotty
<cottons@earthlink.net>Modesto, ca - Sunday, May 20, 2007 11:37 AM CDT
Alicia and John,
I am so saddened to hear of Ciara's struggles. What a very difficult time for you as parents as well. I've been there with one of mine and I was like you, lets try and not be so quick to just give up. My heart hurts for the whole family as this has to be hard on Hunter as well going from person to person as you care for Ciara. Please know that you are all in our thoughts and prayers.
Take Care and God Bless,
Renee
www.caringbridge. com/ny/my2angels <rcurk@aol.com>
liverpool, ny - Sunday, May 20, 2007 9:37 AM CDT
Ciara,
Hang in there kiddo your such a strong kid.
Hugs from ontario
AshleeXXXOOO
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Sunday, May 20, 2007 9:16 AM CDT
Ciara you are so sweet.Hope you get to filling better soon.
We love you a bunch.
Shaun,Dan,Heather,Zach <zplane@charter.net>
KlamathFalls, Or US - Sunday, May 20, 2007 8:52 AM CDT
Ciara,
Praying you keep getting better and better. I am worried about you and hope you get out of the hospital soon. Keep fighting, stay strong and keep getting healthy!
Love and hugs to you all,
Sami
PS: I hope you two are getting enough rest John and Alicia! No doubt Alyssa has probably been an angel.
Sami <samlloydmiller@gmail.com>
Minnesota United States - Saturday, May 19, 2007 9:17 PM CDT
Sweet Ciara, my heart is heavy as I pray that you pull through this and get back home. Alicia and John I know you are exhausted.I pray that God will continue to provide you with His strength. Much Love to you all.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Saturday, May 19, 2007 9:08 PM CDT
Dear Alicia,
We're so sorry to hear about Ciara's condition. Our prayers are for her and your family. We hope she'll feel better very, very soon. This is a very difficult time for all of you. Our thoughts and prayers are with you. Hang in there.
Love,
Ad, Linda, Anthea, Stijn, Lucas and Julian van der Wielen
Linda, Ad, Anthea, Stijn, Lucas and Julian van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Saturday, May 19, 2007 5:32 PM CDT
OXOXOX
for Lil Topknot and you all!
Praying every day....
Hugsabunch always
Regan DuCasse <MDU24@msn.com>
N. Hollywood, CA USA - Saturday, May 19, 2007 4:22 PM CDT
Praying hard in SC!!
Kathy <jkmm@comporium,.net>
Rock Hill, SC - Saturday, May 19, 2007 3:24 PM CDT
Feel better Ciara!
Big hugs and prayers coming your way
hugs,
Heather, mom to Brianna dx ALL , www.caringbridge.com/ny/mylittlesunshine, daughter to Pete, dx CLL. SCT 8/3/06 www.caringbridge.org/visit/petek
Syracuse, NY USA - Saturday, May 19, 2007 8:41 AM CDT
Hi Ciara,
Just stopped by to say Hi hope you have a good weekend and are able to bust out of club med soon.
Hugs all the way from Ontario Canada
AshleeXXXOOO
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Saturday, May 19, 2007 8:28 AM CDT
Alicia I am so sorry your daughter is having a hard time right now. My heart goes out to you and your family. I will keep her in my prayers. Stay strong, I know its not easy. All my love to you and your family at this trying time. God Bless you all.
Dawn
West Warren, MA USA - Friday, May 18, 2007 9:54 PM CDT
Praying for Ciara and your family!!
Debi ( CB Mommy)
Debi W.
Chesapeake, Va - Friday, May 18, 2007 8:49 PM CDT
Hugs,
Rebecca & Nathan MPSII
Rebecca Bivens
- Friday, May 18, 2007 7:26 PM CDT
Sending all our love and prayers for Ciara. God bless and keep you and your beautiful family with His peace and strength. May you know His presence so strongly. May His comfort surround you and may you know that He is holding ALL of you in His mighty hands. Keeping you in our prayers. Much love in Jesus from Lou and Georgia's friends in Chepstow. UK
Alex, Laura & Isaac Brooking xxxxxxxxxxxxxxxxxxxx
Laura Brooking <ljbrooking@aol.com>
Chepstow, Mons. UK - Friday, May 18, 2007 2:30 PM CDT
I am thinking about you all and praying that Ciara continues to fight! I hope she is feeling better and able to come home soon!
Cari Cornish <cjcornish@yahoo.com>
- Friday, May 18, 2007 8:43 AM CDT
Please kiss Lil Topknot for me...
Thinking of you all with love.
Hugsabunch...
Regan DuCasse <MDU24@msn.com>
N. Hollywood, CA USA - Thursday, May 17, 2007 9:06 PM CDT
Alicia,
I'm praying harder than ever that Ciara will start to feel better soon. If there is anything else I can do please let me know.
Mary <miniteasets@mail2world.com>
Worth, IL USA - Thursday, May 17, 2007 2:53 PM CDT
Hi all,
I am so sorry to hear that Ciara hasn't been doing the best. I will be praying for her in the days to come. She is such a trooper and I hope that the pneumonia goes away really soon!
Love and hugs to little Ciara,
Sami
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Thursday, May 17, 2007 2:02 PM CDT
Alicia,
I am praying very hard for Ciara that she continues to do better.
I know she is a couragous, and strong little girl for being able to go through so much.
I am keeping your entire family in my prayers.
God's Blessings to all of you
Sharon Sneed <sneedette@sbcglobal.net>
Cleveland, OH USA - Thursday, May 17, 2007 9:23 AM CDT
hey barb what is going on
peggy stevens
spring valley, il 61362 - Thursday, May 17, 2007 8:23 AM CDT
Sending all our love and more to you. Keep fighting little princess, we will be praying for you all day every day.
Take care little one and loads of love to your family.
Lots of love & Kisses
Michelle Aidie Aaron Ryan & Liam
www.caringbridge.org/visit/aaroncraig
Michelle Craig <Craigboys@blueyonder.co.uk>
BIRMINGHAM, UK - Thursday, May 17, 2007 7:12 AM CDT
Ciara...praying so hard for you little princess. You are so tough and you are doing such a good job on trying to cough all that gunk up. Keep fighting sweetheart. We all love you so very much. Know that Tom is by your side holding your hand...as im sure you feel it. I hate so badly that you have to go through this. I hate this stupid disease. Its so unfair, such a lovely child having to suffer so much. ITS NOT FAIR!!!! I will see you and your mom tomorrow. Hang tough tonight!!
alyssa <sabiemc@aol.com>
roseville, ca usa - Thursday, May 17, 2007 4:25 AM CDT
border=0>Lady Twilight
- Wednesday, May 16, 2007 9:33 PM CDT
Praying very hard that Ciara recovers quickly. God bless her and the entire Bennett family.
Linda Friedlander <lindabf19@comcast.net>
Tallahassee, FL - Wednesday, May 16, 2007 6:10 PM CDT
Alicia, just want you to know I'm praying so hard for sweet Ciara to get well soon, thinking about you all the time, loads of love to you & John too, stay strong xxxxx
Louise xxxx
Louise Lewis (mum to Georgia) <lou_loo@hotmail.com>
chepstow, uk - Wednesday, May 16, 2007 3:26 PM CDT
Alicia ,
I'll be praying for your family give Hunter and especialy Ciara a hug from me.
I'll be thinking of you guys and will check in here everyday.
LOve
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Wednesday, May 16, 2007 1:49 PM CDT
Many, many prayers!!
Paulina and Andrew
Paulina and Andrew Jump MPS III B <caljump@msn.com >
Sparta, Ky USA - Wednesday, May 16, 2007 8:15 AM CDT
Alicia,
I'm so sorry to hear that Ciara is having such a hard time. I will definitely keep you all in my prayers.
Mary <miniteasets@mail2world.com>
Worth, IL USA - Wednesday, May 16, 2007 8:07 AM CDT
Dear Bennett Family~~
We are sending up lots of extra prayers for Ciara with the hopes that the new meds start working and her breathing gets easier!!
Keeping you all in our thoughts and prayers at this difficult time!!
Hugs~Becky and Emma
www.caringbridge.org/canada/prettygirl
The Hardmans
Hanover, Ontairo Canada - Wednesday, May 16, 2007 6:50 AM CDT
Dearest Alicia,
I am praying so very, very hard for you and your beautiful little Ciara.
You are in my thoughts every minute.
With so much love to you,
Ria
Ria & Jasmin MPS111A, www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
UK - Wednesday, May 16, 2007 5:57 AM CDT
Hi,
I am a friend of Julia, Mark and family. We meet regularly as part of a family group bible study. It is suppose to be a small group but with 20 including the kids- I don't think small discribes our wonderful group.
Julia asks for prayers for you much loved family members and she sends e-mails leading us to your website. Thank you for sharing your strenght, struggle and walk of faith. You are in my prayers.
I don't understand why some famiies seem to be given such difficult life experiences such as my dear friend JoAnn whose husband is suffering from his 3rd round of cancer over the past 12 years and this round he has been seriously ill and in pain/discomfort for the past two years. I don't understand this type of long term trial.
What I do know is that God is there with you through it all and somehow in his miraculous way your journey of faith is glorifying him as others watch your love and commitment to God and your family. Thank you for your faithfulness and the steadfast example you set - even on the most difficult of days.
Your children are beautiful!
Sincerely, Margie Erwin
Margie Erwin
Elk Gfove , CA US - Wednesday, May 16, 2007 0:32 AM CDT
Happy MPS Day!!!
I am glad Ciara is doing better.
Tina -Alericos mom <alericosmom@comcast.net>
- Tuesday, May 15, 2007 9:05 PM CDT
Thinking of your beautiful children today. Have a great day today with Ciara and Hunter and we sure miss little angel Tommy today and always.
Tayyaba, Abeerah, Khansa & Zahra BegNJ <mps_stinks@yahoo.com>
- Tuesday, May 15, 2007 4:44 PM CDT
Happy MPS Day Bennetts....so glad that Ciara is feeling much better.
Love,
The Morrissey's
Chris Morrissey <crookiemorsi@yahoo.com www.caringbridge.org/il/cademateo>
Kewanee, Il USA - Tuesday, May 15, 2007 4:11 PM CDT
Hi Alicia,
Glad to read that Ciara is doing so much better and that you had such wonderful days together!
Love,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Tuesday, May 15, 2007 4:03 PM CDT
Alicia, so, so glad to hear that Ciara is doing well & that she enjoyed her birthday, wonderful news! Thinking of you all the time, big hugs to Ciara & Hunter xxxxx
Louise & Georgia xxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Tuesday, May 15, 2007 3:48 PM CDT
JUST WANTED TO COME BY AND CHECK ON YOU GUYS GLAD THAT THINGS ARE GOING BETTER.GIVE THE KIDS A HUG AND KISS FROM ME.HUGS KATHY MOM TO ANGEL KATILYNN
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, May 15, 2007 11:44 AM CDT
I don't know how many other people got the notice from Tayyaba Beg...but it was a clip of a short documentary by Jonathan Formica called "Courage". The subject was Sharon Browne and her two children, also MP3 children.
The Beg's little lovelies, yours and the other children you have featured here Alicia...really make me miss my job. And how much fun it was to entertain the special needs kids.
Having the ability to make them smile, move more...or do something they hadn't done or hadn't done in a long time.
I'm so glad Lil Topknot is better. I've been worried and hopeful at the same time.
I dunno. I look at these little folks and think of all the people working so hard to cure this disorder.
And then...I just can't help it. A glance at those soaring, magnificent eyebrows that seem typical of MP3 kids. It makes their eyes and expressions so doe like...and who can't help but fall in love?
A day set aside for awareness, for integration, for help...is always a day that's important for everyone. Not just MP3 families.
If a cure is ever found, the legacies of the parents, generous with their courage, gave this legacy with love.
Rock the day!
Hugsabunch!
Regan DuCasse <MDU24@msn.com>
N. Hollywood, c USA - Tuesday, May 15, 2007 11:23 AM CDT
Paulina and Andrew
Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Tuesday, May 15, 2007 7:37 AM CDT
Hi Alicia,
Thinking of you and praying for Ciara to be well.
Such a difficult time for you, thinking of you so much.
Lots of Love
Ria & Jasmin
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England, UK - Tuesday, May 15, 2007 6:26 AM CDT
I hope you had a wonderful Mother's Day. You sure deserve it!!! Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Monday, May 14, 2007 8:14 AM CDT
Alicia,
Stopped by to say Happy Mother Day. Christine, Annabelle
christine Barrietua <cbarrietua@yahoo.com / www.caringbridge/id/annabellegreen>
boise, ID USA - Sunday, May 13, 2007 9:34 PM CDT
HAPPY MOTHERS DAY! Your kids have a wonderful mom. I hope you have a blessed day!
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID USA - Sunday, May 13, 2007 9:31 PM CDT
Happy Mother's Day Alicia!!!
Your children are blessed with an amazing mommy!!!
I hope you have a wonderful day.
Leslie Jurado <lesliejurado@rhtc.net>
- Sunday, May 13, 2007 7:49 PM CDT
HAPPY MOTHER'S DAY!!!!
Hugsabunch!
Love, Regan
Regan DuCasse <MDU24@msn.com>
N. Hollywood, CA USA - Sunday, May 13, 2007 2:14 PM CDT
Hi Alicia.
Thinking of you today and
Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Sunday, May 13, 2007 9:52 AM CDT
I am so sorry Ciara has taken such a turn . You are faced with decisions no parent should have to make . Despite all the medical issues at hand , you are still an awesome Mom and deserve to have a Happy Mother's Day . (((HUGS)))
Eli & Fletcher
Michele
- Sunday, May 13, 2007 8:56 AM CDT
Happy Mother's Day! Thinking of you today and wishing you all the best. May today be filled with much love, joy, peace and happiness.
All my love,
(mom to Kaylee in Heaven & Cassie)
Stacey Krause
- Sunday, May 13, 2007 4:31 AM CDT
Love, Hugs, Prayers and Kisses.....
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Sunday, May 13, 2007 2:16 AM CDT
Hugs,
Kim & Scotty
<cottons@earthlink.net>Modesto, ca - Sunday, May 13, 2007 0:54 AM CDT
Happy Mother's Day!
Our website
Sjon dad to Kariem
The Netherlands - Sunday, May 13, 2007 0:14 AM CDT
Alicia..
As always, you are in our prayers...
Eva and Rodney~The Prayer Bears~ <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Saturday, May 12, 2007 8:28 PM CDT
Alicia,
Happy Mother's Day. There are no words to express my deepest sadness at your latest update. Ciara and Hunter are in my prayers constantly and I had so hoped that this medicine would help. I will continue to pray that this is in fact just a "bump" in the road and Ciara will once again bounce back to the smiley little girl you once knew.
You're an amazing mother in amazingly difficult circumstances.
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
liverpool, ny - Saturday, May 12, 2007 2:18 PM CDT
Hey Alicia...I saw this on another caringbridge site and it made me think of you.....
Some Mothers Get Babies With Something More
by Lori Borgman
My friend is expecting her first child. People keep asking what she wants.
She smiles demurely, shakes her head and gives the answer mothers have given throughout the pages of time. She says it doesn't matter whether it's a boy or a girl. She just wants it to have ten fingers and ten toes.
Of course, that's what she says. That's what mothers have always said.
Mothers lie.
Truth be told, every mother wants a whole lot more. Every mother wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin.
Every mother wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly.
Every mother wants a baby that will roll over, sit up and take those first steps right on schedule (according to the baby development chart on page 57, column two). Every mother wants a baby that can see, hear, run, jump and fire neurons by the billions. She wants a kid that can smack the ball
out of the park and do toe points that are the envy of the entire ballet class.
Call it greed if you want, but we mothers want what we want.
Some mothers get babies with something more. Some mothers get babies with conditions they can't pronounce, a spine that didn't fuse, a missing chromosome or a palette that didn't close.
Most of those mothers can remember the time, the place, the shoes they were wearing and the color of the walls in the small, suffocating room where the doctor uttered the words that took their breath away. It felt like recess in the fourth grade when you didn't see the kick ball coming and it knocked the wind clean out of you.
Some mothers leave the hospital with a healthy bundle, then, months, even years later, take him in for a routine visit, or schedule her for a well check, and crash head first into a brick wall as they bear the brunt of devastating news. It can't be possible! That doesn't run in our family. Can this really be happening in our lifetime?
I am a woman who watches the Olympics for the sheer thrill of seeing finely sculpted bodies. It's not a lust thing; it's a wondrous thing. The athletes appear as specimens without flaw - rippling muscles with nary an ounce of flab or fat, virtual powerhouses of strength with lungs and limbs working in perfect harmony. Then the athlete walks over to
a tote bag, rustles through the contents and pulls out an inhaler.
As I've told my own kids, be it on the way to physical therapy after a third knee surgery, or on a trip home from an echo cardiogram, there's no such thing as a perfect body.
Everybody will bear something at some time or another. Maybe the affliction will be apparent to curious eyes, or maybe it will be unseen, quietly treated with trips to the doctor, medication or surgery.
The health problems our children have experienced have been minimal and manageable, so I watch with keen interest and great admiration the mothers of children with serious disabilities, and wonder how they do it.
Frankly, sometimes you mothers scare me. How you lift that child in and out of a wheelchair 20 times a day. How you monitor tests, track medications, regulate diet and serve as the gatekeeper to a hundred specialists yammering in your ear. I wonder how you endure the cliches and the platitudes, well-intentioned souls explaining how God is at work when
you've occasionally questioned if God is on strike. I even wonder how you endure schmaltzy pieces like this one -- saluting you, painting you as hero and saint, when you know you're ordinary.
You snap, you bark, you bite. You didn't volunteer for this. You didn't jump up and down in the motherhood line yelling, "Choose me, God! Choose me! I've got what it takes."
You're a woman who doesn't have time to step back and put things in perspective, so, please, let me do it for you.
From where I sit, you're way ahead of the pack. You've developed the strength of a draft horse while holding onto the delicacy of a daffodil.
You have a heart that melts like chocolate in a glove box in July, carefully counter-balanced against the stubbornness of an Ozark mule.
You can be warm and tender one minute, and when circumstances require, intense and aggressive the next.
You are the mother, advocate and protector of a
child with a disability.
You're a neighbor, a friend, a stranger I pass at
the mall.
You're the woman I sit next to at church, my cousin and my sister-in-law.
You're a woman who wanted ten fingers and ten toes, and got
something more.
You're a wonder.
alyssa <sabiemc@aol.com>
roseville, ca usa - Saturday, May 12, 2007 0:57 AM CDT
Hi Alicia
I am just now reading your site for the first time this week. I am so sorry that Ciara is having such a difficult time with breathing and managing her secretions. I am praying. I wish I could do more but the truth is that is the most powerful thing there is anyway. Much love to you on this Mother's Day weekend.
Leslie Jurado <Lesliejurado@rhtc.net>
- Friday, May 11, 2007 9:51 PM CDT
Alicia, thinking of you & praying that Ciara gets over this soon xxxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Thursday, May 10, 2007 4:29 PM CDT
Alicia,
I am always thinking of you guys and praying for you. Please know that I am praying Ciara is okay. Give her lots of hugs for me!
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Thursday, May 10, 2007 1:30 PM CDT
Alicia,
I'll be saying a special prayer tonight for Ciara please know I think of you guys everyday and visit your site as often as I can.
You're a great mom hang in there Alicia
Give Ciara hugs for me ok
Thinking of you guys always
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Wednesday, May 9, 2007 9:16 PM CDT
Can you feel it?
It's the ~SPIRIT~
So, give us a CHEER!
~this way...over here~
With Sprinkles of Spirit
and Fairy dust, our days
have turned to gold.
Wings will flutter and
whispers heard, for the
stories to be told.
A tale some say
tho' everyday
it is here...
felt, but not seen.
The Spirit grows
and especially so
with -SPIRITED- life
and friendship seed.
Good Luck to you and
have a wonderful week!
Spirit WindDelos <spiritwinddelos@yahoo.com>
- Wednesday, May 9, 2007 7:47 PM CDT
Alicia
We are praying hard that Ciara starts feeling better soon. Please call me day or night if you need to talk.
Hugs,
Kim & Scotty
<cottons@earthlink.net>Modesto, ca - Wednesday, May 9, 2007 7:00 PM CDT
Bless your hearts...
Amy K
Sterling Hts , MI - Wednesday, May 9, 2007 6:58 PM CDT
Dear Alicia,
Mother's Day is just around the corner ... and you have proven to be an exceptional mom. Don't dispair ... you have been blessed many times over with a smile, a hug, a giggle or a chocolate kiss. YOU are just tired ... worn out.. and worried. John is your anchor ...and you know what the future holds for your children. I think about you often .. pray that you find the strength to move forward and meet the challenges presented to you each day. Everyone leaves this life ... but it's what you do to embrace and strive to make each day count that really matters.
YOU and John are STRONG ...that's a given ... I have no doubt you both will rise to the challenges ahead ... and I will be wishing you peace and contentment knowing you have given it your all.
Chin up ... put that sparkle in your eyes ..step forward and enjoy the time that is left ... you have a bithday to plan for! Happy Mother's Day !!! The sun will be shinning.
Judy
petaluma, ca usa - Wednesday, May 9, 2007 4:55 PM CDT
Dear Alicia,
We sent you all our love and wish and hope Ciara will overcome this all!
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Wednesday, May 9, 2007 2:35 PM CDT
[b]Hi Alicia,
I've been following your story for many, many years now and I am praying so hard for Ciara. She's proven to be a fighter over and over again!![/b]
Danielle <dfdelacruz@excite.com>
Simi Valley, CA USA - Wednesday, May 9, 2007 12:17 AM CDT
I wanted you to know my family is praying for your beautiful daughter. We hope the new medicines will help her feel better!!!
Clark's <angel_clark@bellsouth.net>
York , SC US - Wednesday, May 9, 2007 11:18 AM CDT
I sent you all my love, many hugs and courage in this difficult times. I lost my husband and only daughter at the age of 6 from a rare genetic cancer.If you need to cry do what ever makes you feel better only you know how it feels. read the book Beloved visitors by Cherie Sutherland ( true stories from parents who lost their children)It helped me a lot to understand that is a blessing to still see, smell and feel our children after death. They never leave us they are our little angels. Kisses to your children God bless you !!
Caroline
Sydney, NSW Australia - Wednesday, May 9, 2007 7:38 AM CDT
Many many hugs for you Alicia!! You know I will be praying for sweet Ciara and that the new meds help do the trick for her!!
Love and prayers,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Wednesday, May 9, 2007 5:45 AM CDT
Praying for you all, especially Ciara! I've been following your site since Tommy's treatment but haven't signed often. You are all always in my thoughts and prayers!
~Jennifer~ <jenifer66@aol.com >
Bremerton, Wa - Tuesday, May 8, 2007 11:05 PM CDT
Praying that things get better and the drugs help her breathe better. Love you guys...im always here if you need ANYTHING
alyssa <sabiemc@aol.com >
roseville, ca usa - Tuesday, May 8, 2007 10:45 PM CDT
Feel better soon. We all here thinking and praying for you.
Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Tuesday, May 8, 2007 7:45 PM CDT
Alicia,
I hope you found some answers at the doctors today. You have your hands full. My prayers are with you all.
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Tuesday, May 8, 2007 4:04 PM CDT
Happy Birthday Ciara, I hope you enjoy your day. The petting zoo and all the fun sounds great.
Hugs, Shelley Hartsuyker
(P.S. Alicia, I don't know if you were able to swing by Safeway on saturday or not. We ended up in ER and me with no phone or phone numbers...Very sorry if you came by and we weren't there.
Shelley Hartsuyker (Carepage: KrystaDremel) <hugseveryday@hotmail.com>
Jackson, CA - Monday, May 7, 2007 9:51 PM CDT
Praying that you have a very special Happy Birthday and feeling better today~
Jan aka Mimi to Makayla (in Heaven) & Hailey
www.caringbridge.org/visit/makaylachavers
www.caringbridge.org/visit/haileychavers
Jan ~A Prayer Bear ~ <jannyjo@cox.net>
- Monday, May 7, 2007 9:44 PM CDT
I know your ^Tommy^ is watching over you and wishes you a "Happy Mother's Day".
“Love...It bears all things, believes all things,
hopes all things, endures all things.”
(1 Corinthians 13:7)
A Mother's love is something
that no on can explain,
It is made of deep devotion
and of sacrifice and pain,
It is endless and unselfish
and enduring come what may
For nothing can destroy it
or take that love away . . .
It is patient and forgiving
when all others are forsaking,
And it never fails or falters
even though the heart is breaking . . .
It believes beyond believing
when the world around condemns,
And it glows with all the beauty
of the rarest, brightest gems . . .
It is far beyond defining,
it defies all explanation,
And it still remains a secret
like the mysteries of creation . . .
A many splendoured miracle
man cannot understand
And another wondrous evidence
of God's tender guiding hand.
~Helen Steiner Rice~
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Monday, May 7, 2007 6:35 PM CDT
Quilts of Love stopping by to say HAPPY BIRTHDAY Ciara!!
Hope you are feeling better today.
Sending lots of Love and Prayers
Quilts of Love ^Angel^ Trista ^i^
Trista Long <Chris-Trista@att.net>
Fairmont, Wv USA - Monday, May 7, 2007 4:37 PM CDT
Happy Birthday Ciara !
Hope you are feeling good today
hugs form Ontario Canada
AshleeXXX
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge , Ontario Canada - Monday, May 7, 2007 2:25 PM CDT
Happy Birthday Ciara...I pray to god that you are doing better today...you are such a tough cookie! I love your pictures from when you were a baby! SO SO CUTE!!!! Of course you still are! I hope I get to see you today. Love you
alyssa <sabiemc@aol.com>
roseville, ca usa - Monday, May 7, 2007 1:02 PM CDT
Happy Birthday Ciara! I hope you have a wonderful, special day!
Seeing the adorable pictures of Ciara as a little one just brings tears to my eyes. It is so painful when you are faced with how much this disease just steals from all of us! My heart is with you!
Cari Cornish <cjcornish@yahoo.com>
Boston, MA - Monday, May 7, 2007 11:21 AM CDT
Happy Birthday my beautiful neice! You really are sunshine in our lives and we love you soooo much!
Aunt Julia
Elk Grove, CA - Monday, May 7, 2007 11:04 AM CDT
HAPPY BIRTHDAY!
Happy Birthday!!
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Monday, May 7, 2007 9:41 AM CDT
Happy Birthday Ciara!!! I hope you have a wonderful day. I hope your mommy and daddy get to see your bright eyes lots today and I hope you have no pain. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Monday, May 7, 2007 8:05 AM CDT
Hope Ciara is having an easier time this morning
Kathie <kathie12@sympatico.ca>
Ontario Canada - Monday, May 7, 2007 7:33 AM CDT
I pray you saty alert and laughing for mommy today on your birthday! Happy 11th Sweetie!!
Love and hugs,
Patty and Jesse MPS III
PattyT <wordinedge@aol.com>
Balto, MD USA - Monday, May 7, 2007 5:20 AM CDT
Happy Birthday Ciara!!
Love to you all,
Harmen Hanna Jan and Jacomien
Haren, the Netherlands - Monday, May 7, 2007 3:57 AM CDT
Happy birthday Ciara.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Monday, May 7, 2007 3:37 AM CDT
Hey! Hey!
A Cherub Forest Enchanted Angel Spirit here,
to let you know your friends are near.
We want to see your spirit shine,
so I'm sharing some of mine.
With friends and spirit you'll go far,
and you'll be shinning like a star.
The best of luck in your fights!
Enchanted Spirit Angel <REMOVE4NOSPAMesangel@thesitefights.com>
- Monday, May 7, 2007 0:08 AM CDT
Since it is officially Monday(12:30am), atleast here on the East Coast, let me be the first to say HAPPY BIRHDAY CIARRA! Sending much love to you precious baby girl.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Sunday, May 6, 2007 11:33 PM CDT
Just missed your birthday Ciara
Hope you had a great one
Lots of love
Anne and Sebastien
Anne Cairns <buzz.cairns@sympatico.ca>
Markham, ont Canada - Sunday, May 6, 2007 2:16 PM CDT
We just dropped by to check on you today.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Sunday, May 6, 2007 10:29 AM CDT
HI ALICIA, PRAYING FOR YOU ALL..SO SORRY CIANA IS SLEEPING SO MUCH,HOPEFULLY IT WON'T TAKE THAT LONG FOR THE MEDS TO JUST CALM HER ENOUGH AND NOT KEEP HER KNOCKED OUT..I KNOW HOW YOU FEEL..PRAYING SHE GETS BACK TO HER OLD SELF SOON...XOXOXO
THERESE, SARA & DANIELLE'S MOM FORUM FRIEND <TRID2B4@SBCGLOBAL.NET>
IL USA - Sunday, May 6, 2007 1:21 AM CDT
Hello Alicia,
Your family has been through so much yet your faith remains as strong as ever. I'm so sorry for your journey but joyful for your faith.
I hope you don't mind, but I noticed that you lost a journal entry. I'm assuming that no matter where you are updating from that a word processing program (Word, WordPerfect, etc.) is available. You don't have to lose journal entries--just type your entire journal entry in the word processing program and you can cut and paste it right into the textbox where CaringBridge journals are updated. Hope you don't mind--I see this a lot and always want to share this tip. I do all of my updating from a boilerplate Word document and it saves me a lot of time.
Blessings for you and your family.
The Paquette's: Monica, John, Aubrey, Saint Gabrielle, and Noah
Monica Paquette <mj.paquette@att.net>
Minneapolis, MN - Saturday, May 5, 2007 9:55 AM CDT
Alicia
Your update has broken our hearts and we are relieved that Ciara is feeling better. Be strong Alicia! Our hearts and thoughts are always with you.
Kisses,
Marianna.
The Koumpouras Family <ermiskub@yahoo.gr>
Lamia, Greece - Friday, May 4, 2007 5:45 PM CDT
Dear Alicia, I'm so, so relieved to hear that the new meds are working for Ciara. What a traumatic time for all of you, will be praying that Ciara stays well & pain free. Sending you loads of love xxxxxxx Louise
Louise Lewis (mum to Georgia)
chepstow, uk - Friday, May 4, 2007 2:43 PM CDT
Hi All~* Just watched the video of Ciara, my heart aches. I hope the new meds work. She is too precious and sweet to go thru this........my son Jimmy has Damage from a brain tumor and he bopps his fists together.... we just tried seraquill(sp?) but it gave him insomnia. Cured the hand bopping, but we didnt sleep because he was up. But we are trying a new drug soon. He bopps his knuckles so hard they are bruised and bleed sometimes. My heart is with you sending warm hugs your way..... Much love, Your Florida friends.~* Lin, JIm, Angel Lori, Mike, Amy n JImmy-Joe~*Jimmy Joe
Lin <jimmyk1@bellsouth.net>
Boca Raton, Fl. USofA - Friday, May 4, 2007 9:56 AM CDT
Hi Alicia,
Just pooped by to see how Ciara was doing, That's great that she had a good day at school and that the jerking has stopped thanks to the new med.
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Friday, May 4, 2007 8:22 AM CDT
I am so glad that Ciara has gotten some relief and I hope her poor legs will heal up fast! It must be such a relief to you to have something that works. Hang in there. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, May 4, 2007 7:45 AM CDT
Reading your update and watching the video broke our hearts...
Stay strong, all of you,
Love
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Thursday, May 3, 2007 4:37 PM CDT
oh...my dears. I want to cry. I really do for Lil Topknot. I'm so worried about you all, and I feel really helpless.
If anything, I suppose I know what this feels like. My lupus has made me have seizures too. They are scary, exhausting, I can't imagine the effect on a little one. Or you and John. Especially because of their frequency, and the potency of meds to control them.
I'm so glad your beautiful children have you there for them and that you have people who understand and can share all this with you.
I have nothing but love for you. I just wish I could do more than hope and pray.
Please know, that it means a lot to know what's going on and it's good to see the other messages here of love, and support, prayers, understanding, experience and compassion.
Your love for your family, through all this, and the love you have for others...makes you angels among us Alicia. I know it's hard, but it's God's work you are doing by sharing your life and family with all of us. It is a generous thing you do.
These are all the thoughts I have to offer.
Hugsabunch!
Regan DuCasse <MDU24@msn.com>
N. Hollywood, CA USA - Thursday, May 3, 2007 2:40 PM CDT
Dear Ciara, I am glad you had a peaceful night, long overdue by the sounds of it! What an awful time you and your family must be having, stay strong and keep up that fighting spirit!! our thoughts are with you Kellie & Neil (jasmins auntie and uncle)
Kellie Bond <neil@bond22.fsworld.co.uk>
UK - Thursday, May 3, 2007 9:31 AM CDT
The video and picture of Ciara broke my heart I'll be praying hard for you guys hope she gets well soon.
Big hugs for Ciara from Ontario Canada
AshleeXXX
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Thursday, May 3, 2007 7:43 AM CDT
Great to hear Ciara had a good night. YAY!
The video of Ciara just broke my heart. I wish there was something that can be done so she wouldn't be going through what she is. Just know that prayers are being said for your precious children and for the entire Bennett family.
Linda Friedlander <lindabf19@comcast.net>
Tallahassee, FL - Thursday, May 3, 2007 5:04 AM CDT
Dear Alicia.
May GOD be with you and help you in your pains. Amen
Reading your journal just put me in tears. The picture and video of Ciara is just heartbreaking. Poor Ciara.
I hope this IRS think sort it out soon. I am thinking of you and praying hard for you.
Sending some ((((HUGS)))) your way.
Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Thursday, May 3, 2007 3:25 AM CDT
I simply could not write anything down here about the picture because it broke my heart....I called you instead with my shocked reaction. That poor sweetheart....the picture is just heartbreaking...absolutely heartbreaking. I pray to god that these new medicines work. Hang tough Ciara...we gotta party it up for your birthday!
alyssa <sabiemc@aol.com>
roseville, ca usa - Wednesday, May 2, 2007 10:45 PM CDT
A wonderful journal,my prayers go out to you and those precious children,Georgie AKA as Foxylady in the United kingdom,but I have lived in California,(Riverside)and I wish I were there to help you in any way I could.
Georgie Ward
Chester, UK - Wednesday, May 2, 2007 12:32 AM CDT
Dear Bennett Family what beautiful children you have but how sad what is happening to them at the moment. I hope things are improving both with the children and with your financial problems, you certainly do not deserve the hassle of coping with fighting for what is rightfully yours. Our thoughts are with you all. Love from Jasmin's Nana and Grandad.
Jean and Mike Heap <mjcresswell@talktalk .net>
Carmel, Flintshire North Wales - Wednesday, May 2, 2007 10:54 AM CDT
(((((((Alicia)))))))
My heart goes out to you.I will be praying for your family.It is so hard to see your child like this and not know what is going on with them. :(
Tina -Alericos mom <alericosmom@comcast.net>
- Wednesday, May 2, 2007 9:29 AM CDT
Alicia- it breaks my heart to hear and see how rough things have become for you. It is just not right that you have to fight for help. There are so many people who have things handed to them when they could be out working and helping themselves and then families like yours struggle to stay afloat. There is something seriously wrong with our government. I will keep you in my thoughts and prayers as you continue this journey.
Beth <beanieb@earthlink.net>
Mansfield, OH USA - Wednesday, May 2, 2007 9:03 AM CDT
Dear Alicia,
The picture of Ciara is heartbreaking. I wish there was something I could do to help you. I will continue to keep you all in my prayers.
Mary <miniteasets@mail2world.com>
Worth, IL USA - Wednesday, May 2, 2007 8:28 AM CDT
I am so sorry to hear about Ciara's latest trials. I hope that you find answers and Ciara starts to feel much better very soon!
Much love~
Stacey & Teagan Pevler <stacmer14@yahoo.com>
Abilene, TX - Wednesday, May 2, 2007 7:53 AM CDT
Dearest Alicia,
I'm so sorry to read about poor Ciara, and see her shocking photo and video clip. I'm heartbroken with you.
I'm thinking of you, huge positive thoughts, and praying for repair, a painfree time and remedy for darling Ciara,
With very much love
Ria & Jasmin www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
UK - Wednesday, May 2, 2007 3:31 AM CDT
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Tuesday, May 1, 2007 7:04 PM CDT
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Tuesday, May 1, 2007 7:04 PM CDT
Many many get well hugs for sweet Ciara. I'm sorry that she and all of you are having to go through this.
Lots of Love,
Kim & Scotty
<cottons@earthlink.net>Modesto, ca - Tuesday, May 1, 2007 5:06 PM CDT
I am so sorry to hear that Ciara has been having such a hard time lately. That picture of her is just heartbreaking. I pray the seizures stop and you figure out what is going on soon! You are such a strong person and I admire you so much for all that you do for your children. If you ever need to vent e-mail me.
Love and hugs,
Sami
Philippians 4:13
Sami www.caringbridge.org/visit/sami <samlloydmiller@gmail.com>
Minnesota United States - Tuesday, May 1, 2007 1:51 PM CDT
Hello, I wanted to let you know a possibility for help with your legal problem. If you already tried this, I apologize, but if not, I think it is worth a try. There is a free legal assistance center for Amador County. A person named Tabitha runs it. They have an in person legal clinic on Wednesdays, but you have to make an appointment today if you want to see them tomorrow. It is part of Northern California Legal Services, which provides free legal services. The number is (209) 754-1443. I got that number from the Motherlode office of Legal Services which is the actual office that serves Amador County - they send someone down there on Wednesdays. The main number there is (530) 823-7560. These folks are funded by the state and from donations, so please let me know if they won't help you. They solicit donations on the premise that they help people, specifically in situations such as yours (Social Security/SSI problems) and they have attorneys that are experts in that area volunteering their time. Nancy
N. Wong
- Tuesday, May 1, 2007 1:36 PM CDT
Dear Bennett Family,
I am so sorry that things are rough for you now. Many prayers are being sent your way. I hope you don't mind, but I put you on a prayer request board so you'll have lots of prayers being sent your way. The address is: http://members.boardhost.com/tracysolomon/index.html?1178033772. This board is hosted by another CaringBridge member's mother, Tracy, so any time you need prayers you can go there and let us know. Here is the link to Tracy's daughter's site: (http://www.caringbridge.org/fl/katia_leukemiapage/).
Hope today is a little brighter for you.
Linda Friedlander <LindaBF19@comcast.net>
Tallahassee, FL - Tuesday, May 1, 2007 10:40 AM CDT
Dear Alicia,
I am so sorry that you and Ciara are having such a tough time. I wish I knew how to get you some help. How are you supposed to have time to deal with the IRS when you have a child who is tearing up her body?? Do you think anyone at the IRS leads a real life??? I hope you can find an answer to her suffering and get some relief. I am thinking of you. Love Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Tuesday, May 1, 2007 10:35 AM CDT
Dear Alicia,
I am so sorry that you are going through such a difficult time. I don't know what to say other than I know it is tough and we have often had to rely on credit cards to pay medical expenses until we got things straight. Please know that we are thinking of you and hoping things get better this week. I hoep you can straighten out the IRS!
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ 07860 - Tuesday, May 1, 2007 7:52 AM CDT
DBright Fairy Hermione <xanth_rocs@yahoo.com>
Hacienda Heights, California DRealm of Fairies - Tuesday, May 1, 2007 6:01 AM CDT
Hey Guys
Just stopping by to say "Hi" and see how you all were doing. I'm so happy that your getting the therapy for Hunter and now Ciara. I need to talk to you about your Therapist and see if she has some ideas for me about CCS.
Talk to you soon.
Hugs,
Kim & Scotty
<cottons@earthlink.net>Modesto, ca - Sunday, April 29, 2007 4:12 PM CDT
Can you feel it?
It's the ~SPIRIT~
So, give us a CHEER!
~this way...over here~
With Sprinkles of Spirit
and Fairy dust, our days
have turned to gold.
Wings will flutter and
whispers heard, for the
stories to be told.
A tale some say
tho' everyday
it is here...
felt, but not seen.
The Spirit grows
and especially so
with -SPIRITED- life
and friendship seed.
Good Luck to you and
have a wonderful week!
Spirit WindDelos <spiritwinddelos@yahoo.com>
- Thursday, April 26, 2007 8:50 PM CDT
what a pleasure to read the bennet journal and see the updates on the angels,and to hear of the way the therapy is going etc.May God bless and watch over all of your family...will be back to visit again soon.
donnalee <donnaleefighter@yahoo.com>
bellows falls, VT. USA - Monday, April 23, 2007 7:43 PM CDT
border=0>Fairy Twilight
- Monday, April 23, 2007 0:29 AM CDT
Sending love hugs & smiles your way! Please check out http://au.groups.yahoo.com/group/messages4smiles/ Love Karen www.caringbridge.org/visit/karenmelissa
karen
- Sunday, April 22, 2007 7:42 PM CDT
Alicia,
Love those pictures of the kids. I'm glad you all had fun on your trip and got to experience some sun! Please send it our way! Hugs and kisses to the kids
Andrea Longston <andrea.longston@gmail.com>
Green Bay, wi - Monday, April 16, 2007 4:21 PM CDT
Like Harry Potter
I am flying high
Reaching for the stars
In the sky
With Friends like
Ron and Hermione
that's the best ever can be...
And just like Mine
I hope your Spirits were lifted
Just like Ron's and Hermione's
In Having a Friend Like Harry
Don't Forget To
SHOUT IT OUT!
DBright Fairy Hermione <xanth_rocs@yahoo.com>
Hacienda Heights, California DRealm of Fairies - Monday, April 16, 2007 3:09 PM CDT
Hi Alicia,
HAPPY BIRTHDAY!!!!
Sorry this is so late. I have been really busy. I am glad your vacation went well and that things are going well for you and the kids. Hope you had a wonderful birthday!
Love and hugs,
Sami
www.caringbridge.org/visit/sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Monday, April 16, 2007 1:27 PM CDT
Happy Birthday Alicia!!
LOVE and HUGS!!
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Sunday, April 15, 2007 5:24 PM CDT
Just coming by to check on everyone! Happy Birthday Alicia!
Hope you all are having a beautiful day with lots of smiles!
Karen and Tabby <karenpuddn@comcast.net>
- Sunday, April 15, 2007 11:31 AM CDT
Hi Everyone. Checking in to say hello and wanted you to know we are thinking about you all. Hugs from Florida. Jimmy here watching Peter Pan for the 3rd time yesterday. TTYS. Lin N Kiddo's~*Jimmy Joe Lin <jimmyk1@bellsouth.net>
Boca Raton, Fl. USofA - Sunday, April 15, 2007 10:14 AM CDT
Stopped by for updates and to let you know~we are still thinking and praying for you! God Bless! Natalie
www.caringbridge.org/visit/matthewfranson
St Paul, MN - Sunday, April 15, 2007 2:03 AM CDT
Hey! Hey!
A Cherub Forest Enchanted Angel Spirit here,
to let you know your friends are near.
We want to see your spirit shine,
so I'm sharing some of mine.
With friends and spirit you'll go far,
and you'll be shinning like a star.
The best of luck in your fights!
Enchanted Spirit Angel <REMOVE4NOSPAMesangel@thesitefights.com>
http://www.thesitefights.com/spiritof/, DRealm of DSpirit - Saturday, April 14, 2007 7:38 PM CDT
Happy Birthday Alicia. I hope you had a wonderful day!!! I am glad you guys got away on vacation. What a dippy hotel. It seems like it would have been easier on them to have had you stay in one room also. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, April 14, 2007 7:02 AM CDT
Happy Birthday Alicia! Sorry that it is a day late. I hope you had a great day.
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID usa - Thursday, April 12, 2007 11:47 PM CDT
Hello there,I just found your site.What a wonderful group of kids.I hope everyone is doing fine. We will keep all of you in are prayers.I'am new to cb,my name is Kristen.Remember God is with all of us.With him by our side and the power of prayer,we will be in good hands.I will stop by later.Come visit my site I would enjoy that. God Bless You
Kristen and Joyce(my mom)
Hugs and Prayers
Kristen Thompson
caringbridge.org
Kristen Thompson <the-one-and-only-me1@yahoo.com>
Ashville, Pa USA - Thursday, April 12, 2007 5:59 PM CDT
Thanks for signing my guestbook. I hope you are lassoing lots of happiness. Christamae Zimpel
- Wednesday, April 11, 2007 6:33 PM CDT
Happy Birthday Alicia :)
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Wednesday, April 11, 2007 2:27 PM CDT
Hugs and oodles of prayers!
Love
Mike and Mary Slade and families <Mar-e@rogers.com>
Guelph, Ontario, Canada - Wednesday, April 11, 2007 9:59 AM CDT
border=0>Fairy Twilight
- Tuesday, April 10, 2007 9:00 AM CDT
Hi Bennett family,
Looks like you had a great time, loved the pictures from your trip.
Hugs from Ontario Canada,
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Monday, April 9, 2007 5:47 PM CDT
Hi all. I am so happy to hear all the wonderful news. I am still doing great. I am in the 10th grade this year. Mommy is doing good too. She is moving us to Winston salem. It is better jobs there for her. I am a little scared but I can do it lol. Oh yeah I pray that you all have a blessed year. You are truly one of God's most precious gifts. I will continue to stay strong and believe we all have a great purpose in this world. I love you all and hope to hear from you really soon. Please if anyone knows how can ya please email us how to access my journal so we can update it. It wont let us do it with our pass word now and that really upsets my mom. Love you J.D.
J.D. and Mom <nclilli@aol.com>
Greenvile, n.c. usa - Monday, April 9, 2007 2:33 PM CDT
Praying for you.
David Melton <DMelton321@yahoo.com>
- Monday, April 9, 2007 1:39 PM CDT
Thanks for the Easter posting on Madi's web site. Sounds like you have been busy and having fun. I know what you mean about having mixed emotions about visiting certain places...we went to Knott's Berry Farm last week during Mikey's spring break. It was the first time we've been back there since we took Madi only 4 days before she passed away. Fortunately, it wasn't crowded so we were able to stay busy riding all the stuff Mikey wanted to go on...some of them over and over again. He's tall enough now to go on all of the adult rides, so we didn't even hit Camp Snoopy at all...I think that helped. That's where we spent almost the entire day when we took Madi. Mike and I both got a little teary a couple of times, but all in all, it was a great day.
Glad to hear you were able to get to the beach and the acquarium...sounds like lots of fun. (Sorry about the bird poop though...that sucks!)
We think of you often but just don't sign in frequently. Know your family is still in our prayers.
Love and hugs,
Marian, Mike and Mikey
Princess Madi's Family
www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org>
Riverside, CA - Monday, April 9, 2007 11:13 AM CDT
I hope your Easter, 2007 was a good one.
Please enjoy the little bit of SOEW Sunshine that I am leaving for you.
with love from 
Click above on both tags
God's love 'n blessings always,
Owner & Leader of SOEW
Proud Member of OWC, PB, and others
Visit Harley and Barrett anytime.
Angel Jen <angel.jen@mymacs.org>
Nashville Area, TN USA - Monday, April 9, 2007 4:49 AM CDT
Happy Easter to the Bennett Gang! Hope the Easter Bunny was good to you all, you deserve it!
In my thoughts and prayers,
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Sunday, April 8, 2007 9:59 PM CDT
Wishing you a Happy Easter!! Lots of love, thoughts and prayers.
www.caringbridge.org/visit/babycale
christina farris <farrischristina@yahoo.com>
Independence, KS Montgomery - Sunday, April 8, 2007 6:43 PM CDT
Wow you're trip to Monterey was BUSY! You'll have to give me the name of that hotel so I can make sure never to stay there. What a hassle that had to of been. Bubba Gumps is my favorite place ever! Well there is that Crepe place there in Monterey also that is very good :)
Hope you are now having a nice relaxing Easter.
Easter hugs for all of you.
Love,
Kim & ScottyMPS II
<cottons@earthlink.net>Modesto, CA - Sunday, April 8, 2007 6:07 PM CDT
Happy Easter to my favorite people in the world!!!!
And to ^^Tommy^^...hope your having a beautiful Easter up in heaven, I will try to come by to day with some lovely Easter lily's.
Love you guys!!!!
alyssa <sabiemc@aol.com>
Roseville, CA usa - Sunday, April 8, 2007 2:45 PM CDT
I hope that many blessings
find you this Easter,
reminding you of His
beautiful miracle
of everlasting life and hope,
and wrapping you securely
in the warmth of his love.
Wishing you a
beautiful and blessed
Easter!
www.caringbridge.org/visit/lakenroy
Love~ Claire, Jason, Amber, Kylie & ^Laken^
Claire Roy <caffemocha29@aol.com>
Kernersville, NC US - Sunday, April 8, 2007 2:08 PM CDT
HAPPY EASTER BENNETT FAMILY
Just hopping by to wish you all a Very Happy Easter! We hope the Easter bunny spoiled you all!!
Hope you have a super day!!
Emma is sending lots of Easter hugs your way!!
Love-Becky and Emma
www.caringbridge.org/canada/prettygirl
The Hardmans <bbjhardman@sympatico.ca>
Hanover, Ontario Canada - Sunday, April 8, 2007 1:47 PM CDT
Happy Happy Easter!!! From Katelyn and Neva... God Bless You...
www.caringbridge.org/visit/katelyncraft
Neva Craft <d.craft@centurytel.net>
DeQuincy, LA United States - Sunday, April 8, 2007 1:38 PM CDT
HAPPY EASTER TO THE BENNET FAMILY!!!!!
Hoping all have a super fun day......
www.caringbridge.org/visit/lenziebutland
From Lenzie's Family.......
Sue Jeffries & Kelly Butland <sjeffries25@cox.net>
FL.& AL., - Sunday, April 8, 2007 9:14 AM CDT
Praying you have a very blessed Easter weekend!
Jan aka Mimi to Makayla (in heaven) & Hailey
www.caringbridge.org/visit/makaylachavers and www.caringbridge.org/visit/haileychavers
Jan C. ~ A Virginia Prayer Bear (www.freewebs.com/prayerbears) <jannyjo@cox.net>
- Sunday, April 8, 2007 8:40 AM CDT
May the risen Lord
be with you always,
bestowing the gift of peace
and his Holy Spirit.
And may Mary,
the Mother of the Lord,
obtain for you
from Jesus, her Son,
lively faith, steadfast hope,
and abundant love.
May you feel God's blessings on this Easter Day!
Happy Easter!
www.caringbridge.org/visit/matthewfranson
- Saturday, April 7, 2007 10:53 PM CDT
Hope you had a wonderful vacation!
Have a Blessed Easter!
Love,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, April 7, 2007 8:04 PM CDT
Jo Hannah Rebecca and Rachel
England UK
- Saturday, April 7, 2007 6:54 PM CDT
I just wanted you all to know that I am thinking of you. HAPPY EASTER!!!
Tina -Alericos mom <alericosmom@comcast.net>
- Saturday, April 7, 2007 5:32 PM CDT
Hello Alicia
Just stopping by to wish you all a Happy Easter
I am sorry to hear Hunter was sick for his birthday
Hope he feel better already
All the best
Anne and Sebastien
Anne Cairns
Markham, Ont Canada - Saturday, April 7, 2007 4:35 PM CDT
love Laura and Will xxxLaura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Saturday, April 7, 2007 1:39 PM CDT
Hugs, Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, April 6, 2007 6:30 PM CDT
Just stopping By to check on your wonderful little ones. I hope that they are bolth doing well and feeling better. I was reading your updates last week about hunter and his leg braces. The doctors at UNC told us that Kassi needed them too in November. But the insurance and the airforce told us to wait for our new duty station. You really enlightend me by sharing Hunters story.I had them give us the refferals needed. Kassi got fitted for her braces to day. She picked the color purple for them.She also started PT this week too. Good luck w/ Hunters PT. We hope that you & your family have a Happy Easter!
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID USA - Thursday, April 5, 2007 11:40 PM CDT
Hi Alicia,
Geez the nerve of some people, those people from that birthday place sounded like they didn't have a clue about anything. I'm glad that the theraphy session wet great I undersand the way you feel when Dr's say your kids don't need something I get that too sometimes.
Well have a great rest of the week
Ashlee
PS My birthday is also on April 11th :) I'm going to be twenty.
www.caringbrige.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Wednesday, April 4, 2007 8:05 PM CDT
I'm not even going to begin to try to make excuses for why I haven't signed in so long. You are one of the families I think about and lift up in prayer almost daily if not daily/several times a day. Please know that I haven't forgotten you--quite the opposite actually. I'm just bad at signing in to everyone's guestbook often enough. Know that you are loved and prayed for. Blessings and love to you.
Khalita Duke Peds BMT Aplastic Anemia <khalita@yahoo.com>
Lexington, NC - Wednesday, April 4, 2007 7:03 AM CDT
praying you have a happy easter.
Love melissa and hailee
Hailee
melissa <angels4hailee@nc.rr.com>
westend, nc usa - Tuesday, April 3, 2007 7:01 PM CDT
Good luck in The Site Fights!
Fairy Alma <pixelita@gmail.com>
DRealm of the Fairies, TSF - Monday, April 2, 2007 9:30 PM CDT
Sorry to hear that the little guy wasn't really up to a party the day of his birthday. I hope he gets better really soon. He is such a sweet boy. Praying for you.
Love and hugs,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Monday, April 2, 2007 1:28 PM CDT
Easter greetings Hunter & Ciara,
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, April 1, 2007 10:34 PM CDT
Dear Alicia.
I am so sorry ot read all about little Hunters Birthday party.The picture of him taking his treatment is so sad.Don't ever feel bad about canceling a party if you need to. I hope by now he is better. Please know I am thinking of you and wishing you a Happy Blessed Easter. I hope it is a healthy one to for your an the kids. I hope no one is sick..
Love Rosemarie and Chase
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Sunday, April 1, 2007 7:48 AM CDT
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, March 31, 2007 10:20 PM CDT
Good Morning Sweetie,
Oh I love your new PT too! God bless this woman! I hope she gets you everything you need! I miss you guys! I hope you guys can visit for the run this year! Give the babies kisses from me!
Love and Hugs,
Tami <tlslawson@aol.com>
- Friday, March 30, 2007 9:19 AM CDT
Hey, Happy (belated) Birthday to handsome Autumn Boy!
I was thinking about you all and wondering how AB and Lil Topknot were doing.
Exceptionally well, of course, because of their exceptional parents!
Love is everything.
Hey take care and...
Hugsabunch!
Regan DuCasse <MDU24@msn.com>
N. Hollywood, CA USA - Thursday, March 29, 2007 11:41 AM CDT
WHOOOHOOOO I can't wait for Monterey either!!!!!
alyssa <sabiemc@aol.com>
roseville, ca usa - Wednesday, March 28, 2007 11:52 PM CDT
We just dropped by to check on you today.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, March 28, 2007 1:56 AM CDT
Happy Birthday Hunter!!!
I sure hope you get to feeling better soon honey.
Keeping you and your sissy in my prayers.
Brenda Haggett, Mucolipidosis II/III mom <Jhrufus@aol.com or www.caringbridge .org/vist/zachie>
Syracuse, NY USA - Tuesday, March 27, 2007 9:45 PM CDT
Happy Birthday, Hunter! Thank you for stopping by my website to wish me a happy birthday. - Zachary
ALICIA, although this is the first time I am on your site, and the first time you signed Zachary's guest book, I spent a little bit of time reading about your family and wanted to tell you, YOU ARE SUCH AN INSPIRATION and a TRUE HERO!!! Best wishes for a good week.
Emma Maddon
www.caringbridge.com/visit/zacharymaddon
Emma Maddon <emaddon@aol.com>
New York City, NY USA - Tuesday, March 27, 2007 9:44 PM CDT
Happy Belated Birthday ! 9 years old , huh ? Pretty soon you'll be eligible for senior citizen discounts :-)
Keeping you close in thoughts and prayers daily .(((HUGS)))
Eli & Fletcher
Michele
- Tuesday, March 27, 2007 5:36 PM CDT
Hunter, I heard you had a birthday yesterday. Hope you had a wonderful time. Lots of love and prayers.
Diane, Quilts of Love
Diane Roche <d.crochet@yahoo.com>
Bronx, NY USA - Monday, March 26, 2007 10:59 AM CDT
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Monday, March 26, 2007 1:18 AM CDT
HAPPY BIRTHDAY, HUNTER!!
I hope you are feeling better!
Love and hugs,
Eva and Rodney~The Prayer Bears~ <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, March 25, 2007 10:19 PM CDT
HAPPY BIRTHDAY HUNTER! HOPE YOU HAD A GREAT PARTY. Sorry we weren't able to make it but Scotty did end up having a sinus infection. We'll get together soon so we can give you your present or we will mail it to you. We'd rather meet you at the Chocolate factory.
Hugs & Much Love!
Kim & Scotty
<cottons@earthlink.net>Modesto, CA - Sunday, March 25, 2007 8:30 PM CDT
Quilts of Love stopping by to say HAPPY BIRTHDAY HUNTER!!
Hope you are feeling better.
Sending lots of Love and Prayers to you and your sister Ciara.
Quilts of Love ^Angel^ Trista ^i^
Trista Long <Chris-Trista@att.net>
Fairmont, Wv 26554 - Sunday, March 25, 2007 4:52 PM CDT
Hope you are having a wonderful birthday HUNTER! And ate lots of cake & frosting, YUMMY!
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Sunday, March 25, 2007 4:45 PM CDT
Happy Birthday to you Hunter
Hope you add a wonderfull day
Anne ,Alex and Sebastien Cairns
anne Cairns
MARKHAM, ont canada - Sunday, March 25, 2007 7:59 AM CDT
Happy Birthday!!
Karla, Bennett and Markos <karlakk@aol.com>
Las Vegas, nv usa - Sunday, March 25, 2007 2:34 AM CDT
Happy Birthday Hunter!!!! I hope that you are feeling better for your birthday. Your party was fun! I hope you liked the gifts I got you. Love you guy!
alyssa <sabiemc@aol.com>
Roseville, Ca us - Sunday, March 25, 2007 0:18 AM CDT
HAPPY BIRTHDAY, HUNTER!
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Saturday, March 24, 2007 8:15 PM CDT
Hunter, I hope your Birthday is a wonderful one filled with lots of Chocolate! Eat some for me too!!
Love and hugs,
Patty and Jesse MPS III A
Patty T <wordinedge@aol.com>
Balto, MD USA - Saturday, March 24, 2007 3:47 PM CDT
Dear Hunter!
Happy birthday to you! We hope you will have a wonderful birthday (out of the hospital and without pneumonia!)
Love and hugs to you, your brave sister and your sweet mum and dad!
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Saturday, March 24, 2007 3:16 PM CDT
I am SO incredibly sorry I have not signed in for so long. I think about you guys almost every day and certainly lift you up in prayer when I do. I don't want you to think I've forgotten you. This has been one crazy year. Know that I love you and promise to try and do a better job signing in to let you know that. Are you coming to the walk? Keep in touch ok?
KhalitaDuke Peds BMT Aplastic Anemia <khalita@yahoo.com>
Lexington, NC - Friday, March 23, 2007 8:05 AM CDT
">
Just stopping by to say Hi! from Little foot and Ty!!!
Ty and Kim Downham <momtoty@yahoo.com>
Houston, - Thursday, March 22, 2007 1:10 AM CDT
Bennett,Just stopping by to say hi and to let you know we are thinking of you.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, March 21, 2007 10:10 PM CDT
Jelly beans & Jesus
Have you heard the story of the jelly beans?
Little jelly beans
Tell a story true.
A tale of our Father's love
That's just for me and you.
GREEN is for the new spring grass.
YELLOW is for the sun above.
BROWN is for the soft earth where
People sat hearing of HIS love.
PURPLE'S for the robe he wore
RED is for that precious wine.
BLACK is for the sins He washed
From your soul and mine.
BLUE'S for the sadness of
HIS friends and family,
and is for the glory of the Day
HE rose for you and me.
Now that you've heard the story
You know what each color means.
The story of our Father's love
As told by jelly beans.
So when you see jelly beans on this Easter season,
stop and remember,
Jesus is the reason!
"For God so loved the world, He gave His One and Only Son that whosoever believeth in Him should not perish, but have everlasting life."
John 3:16
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Wednesday, March 21, 2007 4:32 PM CDT
Stopping by to see how things are going! Letting you know we think of you and pray for you! Take care and God bless you!
Love, Samantha, Ashton, & Tristen :)
www.caringbridge.org/visit/tristenwilliam
Samantha Lemoine <szuther@hotmail.com>
Hillsboro, ND USA - Wednesday, March 21, 2007 1:26 PM CDT
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Tuesday, March 20, 2007 8:20 PM CDT
thanks Alica for sending Anniblee immages and messages all the thime, old faithful. We are trying to hang in there. I can't immage what you dear with every day. You a a true hero. Yea. yOU TRULEY ARE. Christine, Annabelle grandmother. take care and we love you, tell, Alyssia hi and we are headed for Duke for the 3 year testing for Annabelle. I am afraid for what thaey are going to say.
Christine WWW>caringbridge/id/annabellegreen.org
christine barrietua <cbarrietua@yahoo.com>
boise, id ada - Tuesday, March 20, 2007 0:32 AM CDT
Hi Guys
I just wanted to stop by and say it was great seeing you last Saturday. Great idea having lunch! We'll have to do it again soon. Still not sure what's happening this weekend but we will try to make Hunter's party.
Hugs,
Kim & Scotty
MPS II <cottons@earthlink.net>Modesto, CA - Monday, March 19, 2007 9:52 PM CDT
HI ALICIA
CALL ME WHEN YOU CAN. GIVE ME YOUR EMAIL ADDRESS AND I WILL SEND YOU PHOTOS OF THE BABY.
MICHELLE
MICHELLE FITZPATRICK <LFISCHER@ZOOMINTERNET.NET>
MEDINA, OH - Monday, March 19, 2007 5:57 PM CDT
It's Mothering Sunday in the UK - sending special wishes to a special Mummy XXX
Ria & Jasmin <Riaheap@aol.com>
UK - Sunday, March 18, 2007 12:35 AM CDT
Hey Guys,
I stopped by for updates and to wish you Happy St. Patrick's Day! God Bless! Natalie
www.caringbridge.org/visit/matthewfranson
St Paul, MN - Sunday, March 18, 2007 0:59 AM CDT
HELLO BENNETT FAMILY!!! SORRY WE HAVE NOT BEEN BY IN WHILE. HUGS TO ALL!!
STACEY AND LUCAS
http://www.caringbridge.org/visit/hopeforlucas
- Saturday, March 17, 2007 11:53 PM CDT
Happy St.Patrick's Day!
Love,
Tosha and Sydney
TOSHA VANHOOK <HURLERMOM101@hOTMAIL.COM>
- Saturday, March 17, 2007 7:57 PM CDT
Glad to read everybody is feeling better! Good luck with your classes...
levenmethunter.web-log.nl
Sjon (dad to Kariem, MPS II)
The Netherlands - Saturday, March 17, 2007 1:24 AM CDT
Hi! Just stopping in to see how everyone is doing. Hope everyone is well. Sorry that Ciara got so sick. Hopefully onto better days. We Think of you guys often. ~*Happy St. Patty's Day*~. We all need a little luck o the Irish...Someone told me its tradition if we dont wear green on St. Patty's day we'll get PINCHED?? Hmmmmmm lol. Dont ever rememebr that one, do You?? Love Ya, Lin n Kiddo's from Florida. http://www.caringbridge.org/fl/jimmyjoe/ Lin <jimmyk1@bellsouth.net>
Boca Raton, Fl. USofA - Wednesday, March 14, 2007 6:58 AM CDT
I'm glad to hear you all are feeling much better. I wish you the best of luck in your medical transcription classes.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Wednesday, March 14, 2007 5:33 AM CDT
good luck in the site fights!
Fairy Alma <fairyalma@gmail.com>
DRealm of the Fairies, TSF - Monday, March 12, 2007 8:22 PM CDT
hey guys
just wanted to stop by and check on you guys.glad your feeling better.hopfully warm weather will be here to stay soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, March 11, 2007 10:12 PM CDT
Hey...cute picture of you and blue! =)
alyssa <sabiemc@aol.com>
roseville, ca usa - Saturday, March 10, 2007 11:23 PM CST
Sitting in the parking lot as Christian takes his SAT's and borrowing his computer so I can tell my special friends Hello. This is short because I want to say hello to as many people as I can while I have the computer. It has been so hard not to be able to sigh guestbooks; however, I am so Thankful I can read the sites!
Please know I check on you so often and ask God to bless you every day! Thank you so much for your visits to Lisa's site. Praying everyone is feeling MUCH better!
Love and Blessings,
Judy and Lisa
Judy
- Saturday, March 10, 2007 10:25 AM CST
Alicia,
So sorry to hear that everyone is under the weather :O( I hope by next week everyone will be back to their old self. I know how hard it is when mommy gets sick, so many prayers that you'll be feeling better really soon!
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Friday, March 9, 2007 8:05 PM CST
Hey!
Sorry I haven't been by in awhile....we have been busier than ever!
Tabby loves to put her fingers in her mouth too-I keep getting told it is behavioral.
Hope you all are getting some warm weather!
Karen and Tabitha <karenpuddn@comcast.net>
- Friday, March 9, 2007 5:28 PM CST
Hi Bennett Family, its been quite sometime since I signed and figured it was time to say howdy again. Hoping all are doing well.
www.caringbridge.org/visit/lenziebutland
Love, Lenzie's Nana Sue
Sue Jeffries <sjeffries25@cox.net>
Crestview, FL. U.S. - Thursday, March 8, 2007 10:49 AM CST
Hey Alicia: I was thinking about you and the kids and Tommy today...figured I would drop by and let you know that you were on my mind. I am often reminded of funny little Tommy-isms...I remeber how much Cody adored him and I think about our time in NC...I wish things could have turned out differently...but alas all things happen for a reason...least that's what they say (who are they anyway?) I am grateful that they no longer suffer...I find great peace and comfort in that where Cody is concerned. I pray that Ciara geta well soon and I pray that you are back up to speed again soon too...
In Love & Prayer...Eleasha <eleasha@cox.net>
www.caringbridge.org/va/cody, - Wednesday, March 7, 2007 9:39 PM CST
Just checking on Ciara and mommy.
Hugs,
Misty
Misty <coreyvannostrand@netscape.net>
lawrence, ks USA - Wednesday, March 7, 2007 8:31 PM CST
Just wondering how all of you were doing? Haven't seen you around much :(
Hugs,
Kim & Scotty
<cottons@earthlink.net>Modesto, CA - Wednesday, March 7, 2007 11:42 AM CST
Are thougths and prayers are w/you and your family. We hope that Ciara is doing better. We hope that all of you are doing better. It has been a horrible season for illness. Get better soon!
Trisha Offenbacker
www.caringbridg.com/visit/Kasandra
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home , Id - Tuesday, March 6, 2007 10:12 PM CST
I have been visiting your site pretty regularly for a while now but I don't know if I have ever signed here. I wanted to let you know that I come by and you're all in my thoughts and prayers and also that I happen to be taking an online sociology class and our textbook is Understanding Social Problems. This week's reading included a story about Tommy and his transplant and I was astonished to realize that I knew the family in the story! It's quite a small world, I guess, at least with the internet there to make it smaller. It prompted me to come and let you know that I visit and will continue to visit and hopefully to sign here more often to let you know I've been here.
Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Monday, March 5, 2007 5:09 PM CST
Feel better soon Ciara,
Hugs from Ontario Canada
Love
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Monday, March 5, 2007 12:51 AM CST
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Monday, March 5, 2007 0:42 AM CST
Just stopping by to let you know Ciara is in my prayers as well as the rest of your family.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Sunday, March 4, 2007 11:09 PM CST
I hope Ciara is feeling better by now! We are thinking of you all always -Take good care Hugs Laura and Will xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, March 4, 2007 2:35 PM CST
Hope Ciara is feeling better soon! Thanks for stopping by Colton's site and visiting us too! We will be including you and your family in our prayers! Check back in on you guys soon!
www.caringbridge.org/visit/coltoncombs
Dana Combs
Tahlequah, OK USA - Sunday, March 4, 2007 7:16 AM CST
I feel your pain Alicia! I haven't tried hard enough to contact other parents of children with Sanfilippo, it's been too pinful for me to talk about it. My eyes are welling up now as I type this. How in the world do you do it?, people ask me. How in the world do YOU do it, having three children with Sanfilippo Syndrome, one that has passed? I want to talk with you more, via MySpace. I have questions I want to ask, and things I'd like to share with you.
Jodie Key <jodiegkey@yahoo.com>
Thomson, GA US - Saturday, March 3, 2007 10:48 AM CST
Get Well Soon Ciara
Lots of Love from
Ria & Jasmin XXX
Ria & Jazzy May www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
Glos, UK - Friday, March 2, 2007 6:01 AM CST
~*~Sprinkles~*~ To You!!!
and good luck in the Fights
from Lady PeaseBlossom
Let me be an angel
To soothe a worried soul.
Let me be an angel
To help one reach their goal.
Let me be an angel
To set a spirit free.
Let this be the time, Lord,
Your glory I will see.
~Marilyn McNeil de Latour~
Lady PeaseBlossom <peaseblossom@thesitefights.com>
TSF : ) - Wednesday, February 28, 2007 9:13 PM CST
As the saying goes, "When it rains it pours". I hope that you and Ciara get well quickly and that Hunter will not get sick. You are all in my thoughts and prayers.
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Wednesday, February 28, 2007 7:02 PM CST
Hi Ciara
We hope you feel better real soon.
Love you lots,
Kim & Scotty
<cottons@earthlink.net>Modesto, CA - Wednesday, February 28, 2007 1:12 PM CST
Hi Alicia!
I am gald it caught early. I hope this medication make her feel all better soon.
for Ciara.Keeping you and kids in my prayers.
Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Wednesday, February 28, 2007 8:50 AM CST
So glad you caught it early and were able to bring her home to sleep in her own comfy atmosphere!! Praying she kicks this fully and it doesn't linger on.
Hugs and love,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Wednesday, February 28, 2007 5:52 AM CST
Hi there.... I hope that you will start feeling better real soon. Hopefully those meds will be the right ones and it will work real quick. Have a blessed week.
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, February 27, 2007 9:14 PM CST
No more getting sick!!!! Hope you ALL feel better soon
alyssa <sabiemc@aol.com>
roseville, ca usa - Tuesday, February 27, 2007 7:29 PM CST
Poor baby Ciarra biting your finger like that and now pneumonia. i hope those antibiotics fight it off quickly. Hugs and Kisses.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Tuesday, February 27, 2007 5:41 PM CST
I hope Ciara is on the mend very soon and that Hunter doesn't get sick.
Hugs, Kris and Kraiggy
Kris Klenke <kris@mpssociety.org *** www.caringbridge.org/il/kraig>
Worden, IL - Tuesday, February 27, 2007 11:08 AM CST
Hi Alicia,
I hope you and Ciara start to feel better soon :)
Thinking of you guys
Hugs from Ontario canada
Ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Tuesday, February 27, 2007 9:21 AM CST
May the road rise up
to meet you
may the wind be
always at your back
May the sun shine warm
on your face
And the rain fall soft
upon your fields
And until we meet again,
May God hold you
in the palm of his hand.
—an old Irish Blessing
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Barb
- Monday, February 26, 2007 12:44 AM CST
Alicia,
Just checking in on you and the kids. I am glad to read that Hunter and Ciara are doing well at present. Ciara's seizures have really worried me- I hope and pray she does not have any more of those scary seizures!
Love,
Kim Ty and Caroline
Kim Downham <momtoty@yahoo.com>
Houston, - Sunday, February 25, 2007 0:51 AM CST
Hi Alicia,
Thank you for your lovely kind message of love and pray on Jasmins site whilst she was so terribly ill. She is doing so well now, a true miracle.
Good to read that Ciara and Hunter are doing well - that's so great.
Much love to you all
Ria & Jasmin
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
UK - Saturday, February 24, 2007 11:48 AM CST
Hello Alicia,
I just wanted to say hello and to let you know that you and your family are in my prayers. My neice has Sanfillipo as well so could you please pray for her, her name is Chloe Key.
Teresa <tkpritchett@dhr.state.ga.us>
Gibson, Ga US - Friday, February 23, 2007 7:30 AM CST
Alicia,
Your daily courage is an inspiration to us. Your family (and especially your precious children) are always in our prayers.
Matt, Cari, Jessie (MPS-III) and Dylan
Boston, MA - Thursday, February 22, 2007 8:56 AM CST
Hi Alicia
I am happy to hear that things have been uneventful in the Bennett house lately. I pray that it keeps up. You need to be a boring family for a while to make up for all the chaos you have had to endure over the last few years. Thanks for always signing Izzy's guestbook. i still hope to meet you in person soon. We will not be at this conference. Big hugs to the kiddos.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Wednesday, February 21, 2007 9:10 PM CST
Hi Alicia, so good to hear that Ciara & Hunter are doing well, hope his tummy gets back to normal soon. Sounds like they really enjoyed the party, loads of love & hugs xxxxx
Louise Lewis (mum to Georgia)
c, uk - Wednesday, February 21, 2007 4:00 PM CST
Glad that the children have been doing well. Praying for you always.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Wednesday, February 21, 2007 3:04 PM CST
Hi,
Hope all is going well for you all this month. And the kids are enjoying going to school. It's been snowing here so much we are getting cabin fever, and Nathan doesn't like the snow at all! I'm ready to move to sunny CA! :o)
Hugs,
Rebecca & Nathan
Rebecca Bivens
- Monday, February 19, 2007 8:58 PM CST
I just wanted to stop by and say "Hi". I hope you are having a great week.
Tina <alericosmom@comcast.net>
Bosque Farms, nm united States - Monday, February 19, 2007 2:16 PM CST
Hi Alicia,
Thanks for thinking about me, but then again your family is on my mind as well. Yesterday in church our prayers were for your family and especially for Tommy. But also for all our other friends in the US. You're all so far away, but it feels so close, the way we all write to each other. I really love the lay-out of your website. Your children look so pretty. We'll talk soon. Friday we take our kids to Disneyland in Paris and we'll make sure that Lucas has the time of his life! And of course our other sweethearts too! Hugs and love from Linda
www.lucasvanderwielen.nl
Linda van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Monday, February 19, 2007 2:08 PM CST
To Bennett Family.
Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Wednesday, February 14, 2007 10:26 PM CST
To all of the Bennett family....
HAPPY VALENTINES DAY!
www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Wednesday, February 14, 2007 4:11 PM CST
HAPPY VALENTINE'S DAY TO YOU ALL!
Lots of love,
Harmen <jacomienwichers@planet.nl>
Haren, The Netherlands - Wednesday, February 14, 2007 2:37 PM CST
HAPPY VALENTINE'S DAY BENNETT FAMILY~~
Just wanted to stop by and wish you all a Very Happy Valentine's Day~~
Emma is sending lots of Valentine Hugs and kisses your way!!
Love~~Becky and Emma Hardman
www.caringbridge.org/canada/prettygirl
Becky and Emma <bbjhardman@sympatico.ca>
Hanover, Ontario Canada - Wednesday, February 14, 2007 11:17 AM CST
Happy Valentines Day! love Laura and Will xLaura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, February 14, 2007 9:53 AM CST
Happy Valentine's Day!
caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Tuesday, February 13, 2007 10:17 PM CST
Hugs and love,
Patty and Jesse MPS III
PattyT <wordinedge@aol.com>
Balto, MD USA - Tuesday, February 13, 2007 6:59 PM CST
I never sign anymore but I read! I'm sorry Sweetie... I'm a very bad friend!! But I Love you!! Happy V-day!
Tami <TLSlawson@aol.com www.caringbridge.com/ca/slawson>
- Tuesday, February 13, 2007 6:15 PM CST
Glad to hear that the kids are doing well. Have a great day!
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Tuesday, February 13, 2007 1:53 PM CST
“Love...It bears all things, believes all things,
hopes all things, endures all things.”
(1 Corinthians 13:7)
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Prayer Bear Barb
- Tuesday, February 13, 2007 1:44 PM CST
Love and hugs,
Eva and Rodney~The Prayer Bears~ <KWfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Tuesday, February 13, 2007 6:14 AM CST
Bennett kids,HAPPY VALENTINE'S DAY!
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Monday, February 12, 2007 8:54 PM CST
Just stopping by to say
to you,
Love Viks
viks <viks@postpals.co.uk>
- Monday, February 12, 2007 12:11 AM CST
Just stopping by to say
to you,
Love Viks
viks <viks@postpals.co.uk>
- Monday, February 12, 2007 12:11 AM CST
YEAH..you have my favorite pic on your front page! Sorry didn't get to see you this weekend, but probably a good thing seeing as I woke up sick today. Don't want to get those babies sick! I will talk to you later!
alyssa <sabiemc@aol.com>
roseville, ca usa - Sunday, February 11, 2007 8:33 PM CST
Hope you have a Happy Valentine's Day!
Hugs,
Kim & Scotty
<cottons@earthlink.net>Modesto, CA - Sunday, February 11, 2007 7:41 AM CST
I feel bad that I haven't been by your page in awhile.Lots going on here.But that does not mean that I don't think of you for I always do.I do stop by your page to see and read the updates just haven't had time to sign your guestbook.
**~
BRENDA~**MY LOVING DAD'S SITE WITH A NEW YEAR ANOTHER ANGEL <brurka@shaw.ca>****Edmonton~Alberta~Canada****, - Saturday, February 10, 2007 9:49 PM CST
Stopping by to say Hi and let you know we are always keeping you guys in our thoughts and prayers!
Hugs, Sammy Nichols & Family
www.caringbridge.org/va/princesssammy
Desiree (Sammy's Mommy)
Gordonsville, VA USA - Thursday, February 8, 2007 1:53 PM CST
A sprinkle here and a sprinkle there Fairy Twilight's sprinkling spirit everywhere Just a reminder to all who fight, To shout out a cheer with all your might! Foresters I know you're there Come on and SHOUT IT OUT!! to show you care! Very best wishes are sent along too you As you fight your way to the Dome For no one is quite as spirited As those who call The Cherub Forest their home !
Fairy Twilight <dtwilightNOSPAM@thesitefights.com>
- Tuesday, February 6, 2007 0:12 AM CST
Just letting you know we are thinking and praying for you. Take care and God bless!
Love, Lemoine Family :)
www.caringbridge.org/visit/tristenwilliam
Samantha Lemoine <szuther@hotmail.com>
Hillsboro, ND USA - Monday, February 5, 2007 10:26 PM CST
Hi Alicia, sorry to hear about Ciara's seizures, love the new photos! Ciara & Hunter look really well, lots of love to you all xxxxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Sunday, February 4, 2007 2:47 PM CST
Good morning all,
I just want to let you know, I am now cheering those Colts along with hubby!! Have fun watching the Super Bowl!! Tell John I am still looking for a not too worn out horse shoe to send him (painted blue that is).
Love and prayers to yuo and the kids!!
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Sunday, February 4, 2007 9:44 AM CST
hey Alicia i'm unable to help out with Hunters braces but I'm praying for you like always!!
Sammie <Tinkerbell103311@AOL.com>
La Verne, CA USA - Saturday, February 3, 2007 11:28 PM CST
praying no more seizures... Hailee and i dont like them.....
love the superbowl page.....
Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
westend, nc usa - Saturday, February 3, 2007 6:22 PM CST
Hi Darlings...wow...I get so worried about Ciara when you talk about the frequency of her seizures. I get them too, but not that often.
Your kids are beautiful. You're amazing, even though I can only imagine how tough it is for you. I think that the best thing is to be among other people who understand your struggles because they have it too.
Or to have people around, like those who post messages here, who love and care about your family because it's the right thing to do.
And you need us.
Nothing wrong with that, it's what makes us all stronger and recognize our better selves in each other.
Lil Top Knot and handsome Autumn Boy are ALWAYS in my thoughts and prayers.
Hugsabunch!
Regan DuCasse <MDU24@msn.com>
N. Hollywood, CA USA - Saturday, February 3, 2007 2:15 PM CST
Hi Alicia
What a gorgeous picture of your kids at the top of the page! I am praying that all is going well and that Ciara and Hunter are doing a little better!
Love Geraldine
www.caringbridge.org/visit/connorv
Geraldine Vanderveen <vanderveenger@hotmail.com>
Calgary, AB Canada - Friday, February 2, 2007 3:52 PM CST
Wow! 5 to 6 seizures is a lot for that little Ciara. I hope she is doing much better today. I'm in keyboarding right now and it's a free day so I have some time to check on my CB buddies! I hope Ciara stays seizure free.
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Minnesota United States - Friday, February 2, 2007 1:43 PM CST
I'm glad the kids are doing better! I can't believe you are having trouble getting insurance to pay for Hunter's braces! I know these little braces cost way too much!! Poor Hunter!
I am thinking about you and hoping the rest of the winter is uneventful!
Cari Cornish (Jessica's mom) <cjcornish@yahoo.com>
Boston, MA - Friday, February 2, 2007 8:21 AM CST
Just stopping by to let you know your family is in my prayers. Hope it is warmer there than it is here. Have a wonderful weekend.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Bridgeport, Texas - Friday, February 2, 2007 2:36 AM CST
I just found out about your story. I live in Minnesota, and please know that you and your family are in my prayers. It's nice to know that we have such a miraclious angel up in heaven to watch over us all.
Sarah
St. Cloud, MN - Wednesday, January 31, 2007 4:31 PM CST
Hope your getting your right arm nice and strong for when we go bowling tomorrow and I kick your booty! Now watch me eat my words!
alyssa <sabiemc@aol.com>
roseville, ca usa - Tuesday, January 30, 2007 12:58 AM CST
Good luck in The Site Fights this week!
Fairy Alma <fairyalma@gmail.com>
DRealm of The Fairies, TSF The Site Fights - Monday, January 29, 2007 8:29 PM CST
Just checking in to see what is new. Glad to hear Ciara and Hunter are feeling better. I loved looking at the pictures.
Sharon and Andrew Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Sunday, January 28, 2007 5:19 PM CST
Hello Bennett family!!
No I'm not Ty, or from the "Home Make over team" Wish I was for you all! Anyway, the kids look great in the new pics. I'm glad everyone is starting to feel well again! Hopefully they will remain that way!
Love and hugs,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, January 27, 2007 6:12 PM CST
Love the new pictures!
Thinking of you,
Lisa Tatem - caringbridge.org/va/tatem <mptatem@juno.com>
YORKTOWN, VA - Friday, January 26, 2007 11:31 AM CST
Hello Alicia, thanks for stopping by our site so often... I always read about you and wonder how this world can be such with people like you in it... I follow you colsely and send you all the best. I admire every second of your strenght and determination. Hope to see you soon again
Marcella <pizzagnam@hotmail.com>
- Wednesday, January 24, 2007 2:11 PM CST
Hey! Where have you been? You haven't updated for a long time and I miss the Bennetts! Thinking of you and your sweet little kids and hope everything is ok over there in Ione.
Charlotte <charlotteellen@mail2mom.com>
Auburn, Ca - Tuesday, January 23, 2007 6:19 PM CST
As always Praying for you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Barb
- Tuesday, January 23, 2007 5:28 PM CST
I have been to your site many times, but never left anything. One of the caring bridge children baby donovan earned his angel wings today (before I got to sign in his guestbook) and I promised myself I wouldn't wait any longer to sign others. So, here I am!! I just wanted you to know that your family is always in my thoughts and prayers.
Allison Burger <Nadeva913@aol.com >
Easton, CT - Sunday, January 21, 2007 11:58 PM CST
Thinking of you!
www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Sunday, January 21, 2007 4:36 PM CST
Alicia I'm keeping Your Family in my prayers, You are a exceptional Mother. I admire your strength. Huggs n Kisses Michelle~Glimmer
Michelle~Glimmer <glimmerrr@msn.com>
San Jose, ca usa - Thursday, January 18, 2007 10:25 AM CST
Glad everyones a bit better! its been pretty much the same over here!
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, January 17, 2007 1:23 PM CST
Louise Lewis (mum to Georgia)
chepstow, uk - Tuesday, January 16, 2007 7:29 AM CST
Hey, Alicia! So sorry to hear the kids have been sick, but glad to know they seem to be doing better. Just wanted to say hello and let you know we are thinking of you guys! Thanks for your notes in our guestbook! As you know, it's always great to know someone has thought of you and taken the time to leave a note! :) Have a good week!
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Monday, January 15, 2007 11:49 PM CST
Hi Everyone!! Glad to hear the kids are feeling better. Its no fun being sick. Jimmy had strep and is on the mend. Gosh, just cant get a break this winter. See, we even get sick down here in Oh so sunny Florida. lol. But, you all have a good day and enjoy each other. Much love, Your friends, Lin, Jim, Angel Lori, Mike, Amy n Jimmy-Joe~*Jimmy JoeLin <jimmyk1@bellsouth.net>
Boca Raton, Fl. USofA - Sunday, January 14, 2007 8:08 AM CST
Hi Alicia
I am so happy that the kids are feeling better. I hope that you get over your cold soon. Have a good weekend!
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, January 13, 2007 9:28 AM CST
Stopping by to check on your kids.....so glad to hear they are doing better and back in school.
Wishing you strength and health in this new year,
Lisa Tatem & family - caringbridge.org/va/tatem
YORKTOWN, VA - Friday, January 12, 2007 12:25 AM CST
You all have been heavy on my heart and mind lately . Praying for you always !
Eli & Fletcher
Michele
W-S, NC - Thursday, January 11, 2007 6:33 AM CST
Hi guys this is Spiderman Andrew right now we are Duke getting our chemo for our unrelated stem cell transplant. It was really great to hear from you. We really loved your website it was very cool. Talk to you soon.
Andrew (MPS II, 2 years old) & Janeen Eisler
www.caringbridge.org/visit/andrew1
Janeen Eisler <Jstarr1031@yahoo.com>
Nanuet, NY 10954 - Wednesday, January 10, 2007 9:13 PM CST
HAD TO STOP BY AND LET YOU KNOW THAT I'M THINKING OF YOU.
LOVE BRENDAMY LOVING ANGELS FOREVER FOR THERE HAVE BEEN TO MANY <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Wednesday, January 10, 2007 8:12 PM CST
Like Harry Potter
I am flying high
Reaching for the stars
In the sky
With Friends like
Ron and Hermione
that's the best ever can be...
And just like Mine
I hope your Spirits were lifted
Just like Ron's and Hermione's
In Having a Friend Like Harry
Don't Forget To
SHOUT IT OUT!
DBright Fairy Hermione <xanth_rocs@yahoo.com>
California - Wednesday, January 10, 2007 2:14 AM CST
So sorry to hear about Ciara, praying she doesn't have anymore seizure, and that Hunter stays well. When it rains it pours. Winter always is hard on these lil ones.
Thinking of you :o)
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Tuesday, January 9, 2007 9:24 PM CST
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Tuesday, January 9, 2007 7:51 PM CST
Hey...ok so here is the plan. You pick the day....Shaun and I will drive out there and go bowling with you...WE PAY!!!!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Tuesday, January 9, 2007 1:54 AM CST
Hi Alicia
I am so sorry that Ciara is having seizures. It sounds like the one Sunday night was pretty scary. I hope that Hunter is feeling better and that everyone will be as healthy as possible for 2007. Are you completely recovered from the Bell's Palsy? Maybe the weather will improve in your area so you can all get out of the house without getting sick. Hugs and kisses to all of you.
Leslie Jurado <lesliejurado@rhtc.net>
- Monday, January 8, 2007 10:08 PM CST
Bennett Family,Just stopping by to wish you all a wonderful New Year!I'm so sorry to hear about the seizure I hate those .Hope everyone's feeling better soon.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, January 7, 2007 11:57 AM CST
Praying that both Hunter and Ciara start to feel better . Hugs and prayers from S.C.
Kathy <jkmm@cetlink.net>
Rock Hill, SC - Sunday, January 7, 2007 8:41 AM CST
Alicia, thinking of you & sending loads of love & a huge hug. Will be praying for Hunter to get well soon xxx
Louise Lewis (mum to Georgia)
c, uk - Saturday, January 6, 2007 4:47 PM CST
Sending Hunter hugs feel better soon buddy
Hugs
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, ontario Canada - Saturday, January 6, 2007 1:32 PM CST
Poor Hunter, sending lots of hugs better to him and of course to poor Mummy who needs a massive cuddle right now.
Love, thoughts and prayers
Ria & Jasmin
www.caringbridge.org/hi/jasminmay
Ria <riaheap@aol.com>
UK - Saturday, January 6, 2007 7:02 AM CST
Hope Hunter feels better soon!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, January 5, 2007 9:14 PM CST
I hope both Hunter and Ciara feel better soon!
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Friday, January 5, 2007 7:54 PM CST
So so so so happy that you guys got to go home. Hunter...buddy...get better quick! Your mommy needs a break!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Friday, January 5, 2007 5:56 PM CST
Prayers for a great 2007! I hope Hunter does not need to be admitted
Kathie <kathie12@sympatico.ca>
Can - Friday, January 5, 2007 2:38 PM CST
Wishing your family a wonderful medically uneventful 2007!
Always keeping your family in our thoughts and prayers! :)
Hugs, Sammy Nichols & Family
www.caringbridge.org/va/princesssammy
Desiree (Sammy's Mommy)
Gordonsville, VA USA - Friday, January 5, 2007 8:44 AM CST
Sending prayers your way. We will check back later to see how things are going. Hope Hunter is ok. Love, Lin N Family~*Jimmy Joe
Lin <jimmyk1@bellsouth.net>
Boca Raton, Fl. USofA - Friday, January 5, 2007 8:07 AM CST
Sending you love and hugs! Praying for you to have a very happy, blessed and healthy New Year with many miracles,,, In Jesus' Name!!
Love & Prayers,
Michelle & Bethany
Bethany's Site
- Friday, January 5, 2007 0:00 AM CST
I hope you get better
Tayra <tireply@comcast.net>
Virginia, Va - Thursday, January 4, 2007 7:11 PM CST
Many many wishes for the New Year!
We think of you always and we are thrilled to read your updates.
Love and kisses,
Marianna.
The Koumpouras Family <ermiskub@yahoo.gr>
Lamia, Greece - Wednesday, January 3, 2007 10:16 AM CST
Happy New Year Bennett Family!!
Love,
Sheila and Shelby MPS III
www.caringbridge.com/tx/shelby
Sheila <sjgeorge1013@cox.net>
Edmond, oK usa - Tuesday, January 2, 2007 11:06 PM CST
Wishing you the best in the New Year. Hope the kids are doing well, and I guess they are ready to go back to school.
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens <krbivens@bellsouth.net>
- Tuesday, January 2, 2007 9:27 PM CST
Hoping you had a Merry Christmas and will have a Happy New Year!
Thinking of You,
The Tatems - caringbridge.org/va/tatem
YORKTOWN, VA - Tuesday, January 2, 2007 9:15 PM CST
Best wishes for a wonderful
Love Joseph
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, January 2, 2007 7:29 PM CST
HAPPY NEW YEAR BENNETT FAMILY!!! OUR WISH FOR YOU IS THAT 2007 IS FULL OF BLESSINGS, GOOD HEALTH, AND JOY!!
STACEY AND LUCAS MPSIII~B
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Tuesday, January 2, 2007 3:54 PM CST
Happy New Year!!! May 2007 bring you and your family much joy, peace, health and prosperity!!!
Sending all my love to you,
Stacey Krause (mom to Kaylee in Heaven)
- Tuesday, January 2, 2007 1:04 AM CST
Have a Great New Year
Maria Tuckett <maria.tuckett@jetblue.com>
Layton, UT US - Tuesday, January 2, 2007 0:41 AM CST
Wishing for you and your family all the best and lots of happiness, peace, health and joy this new year.
3 MPS GIRLS
Tayyaba beg <mps_stinks@yahoo.com>
NJ - Tuesday, January 2, 2007 0:03 AM CST
Happy New Year!
~Tabitha's Page~
Karen and Tabitha <karenpuddn@comcast.net>
- Monday, January 1, 2007 8:03 PM CST
We're praying that 2007 will be a year of blessings for your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Monday, January 1, 2007 7:41 PM CST
Glad to hear you got plenty of rest and your New Year is starting off good!!
Hugs and love,
Patty and Jesse MPS IIIA
Patty Taormio <wordinedge@aol.com>
Balto, MD USA - Monday, January 1, 2007 7:39 PM CST
Happy new year Ciara and Hunter
Ashlee
wwww.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North bay, Canada - Monday, January 1, 2007 7:21 PM CST
Stopping in to say hello and to wish you all a fantastic new year!!
I had lost all of my links, due to a crash of my system, but am slowly working my way back. I know when I get them all back, I'll have a lot of reading to do, to get caught up!
I hope you had fun at your New Year's get together last night!
Sending love and prayers,
Eva and Rodney <KWfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Monday, January 1, 2007 6:13 PM CST
HAPPY NEW YEAR !!!
Love Janine
www.caringbridge.org/visit/kalliegirl
janine mcguire <janinemcguire@cox.net>
harahn, la - Monday, January 1, 2007 2:38 PM CST
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scptt, AR USA - Monday, January 1, 2007 2:01 PM CST
the website looks
so good...
wanted to wish
everyone a Happy
New Year...
sending you lots of love
craig, lauren, and helen
CRAIG
helen <trula1@comcast.net>
- Monday, January 1, 2007 9:54 AM CST
Glad you and Ciara are feeling better Alicia. Just wanted to stop by and wish you a new year filled with much love and many blessings. Take care.
Jennifer from the prayer bears <sasssy_girl913@yahoo.com>
Texas - Monday, January 1, 2007 6:17 AM CST
Happy New Year, Bennett Family! Hi Alicia, I hope you guys have had a wonderful day! I think of you often! I hope 2007 brings health and happiness! All my best, Cari
Cari Cornish <cjcornish@yahoo.com>
- Sunday, December 31, 2006 8:00 PM CST
Been WAY too long since I've seen/talked to you. I hoppe things are as well as they could be expected. Blessings and love to you. Please know you remain in my prayers.
KhalitaDuke Peds BMT Aplastic Anemia <khalita@yahoo.com>
Lexington, NC - Sunday, December 31, 2006 7:34 PM CST
HAPPY NEW YEAR~~
Just stopping by to wish you all a Very Happy New Years!! May 2007 bring you all much happiness, love and most of all good health!!
Emma is sending you lots of New Years hugs and kisses!!
Love~~
Becky and Emma
Hanover, Ontario Canada - Sunday, December 31, 2006 5:58 PM CST
Hi all!! Wishing you a happy new year! Thank you for always coming to Jimmy's web site and leaving awesome messages. Love, Your Florida friends. Lin, Jim, Angel Lori,Mike,Amy n Jimmy-Joe.~*
Lin <jimmyk1@bellsouth.net>
Boca Raton, Fl. UsofA - Sunday, December 31, 2006 4:17 PM CST
Dear Alicia, Ciara, Hunter and John,
Thinking of you especially today. We wish you all happines and health in 2007!
Love and hugs!
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Sunday, December 31, 2006 1:00 PM CST
Happy New Year Bennett Family!!!!!
www.caringbridge.org/visit/lenziebutland
Love, Lenzie's Nana Sue
Sue Jeffries <sjeffries25@cox.net>
Crestview, FL. U>S> - Sunday, December 31, 2006 11:09 AM CST
HAPPY NEW YEAR ALICIA
Wishing you a positive and peaceful 2007, that is filled with many special magical moments.
Thank you for your Christmas Card with photo of the children - lovely. Glad to hear that Ciara is so much better.
With love, Ria & Jasmin XXX
www.caringbridge.org/hi/jasminmay
Ria <riaheap@col.com>
UK - Sunday, December 31, 2006 7:47 AM CST
Wishing your family a Happy (and healthy) New Year! Thank you for inspiring so many MPS families to be the best that we can be!
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Saturday, December 30, 2006 5:40 PM CST
I'm glad to hear Ciara & Hunter are doing great! I hope you all have a wondeful New Years.
Many Hugs,
Kim & Scotty
MPS II <cottons@earthlink.net>Modesto, CA - Saturday, December 30, 2006 3:38 PM CST
Alicia, thank you so much for the christmas card, a beautiful photo of Ciara & Hunter! Just want to wish you all a very happy & peaceful new year, lots of love xxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Friday, December 29, 2006 3:30 PM CST
Stopping by to let ya know that we are thinking of you during the holidays. We pray that you had a merry christmas and that you will have a blessed new year and pray that ciara continues to get better. God bless.
Sandra Kilpatrick <kilpatrickfamily@earthlink.net caringbridge.org/fl/joshuakilpatrick>
Leesburg , FL - Thursday, December 28, 2006 8:56 AM CST
Hi Alicia, glad to hear Ciara is doing better. Hope you have a restful New Years. God Bless.
RICK ESPINO <rickespino@charter.net>
Hollister, Ca USA - Wednesday, December 27, 2006 10:12 PM CST
Belated greetings hope you had a good one
Jo Hannah, Rebecca and Rachel
Jo
England, UK - Wednesday, December 27, 2006 6:01 AM CST
So glad to hear Ciara is doing better!!!!!!! I hope you had a wonderful Christmas!
Love,
Kim Downham <momtoty@yahoo.com>
Houston, TX - Wednesday, December 27, 2006 1:13 AM CST
Dear Bennett Family.
May love, peace and Happiness knock on your door this holiday season and always.
3 MPS GIRLS
tayyaba beg <tayyaba@helpourgirls.com>
NJ - Wednesday, December 27, 2006 0:22 AM CST
Hi Alicia and John, I don't know if you recall me (I am Alyssa's friend) and I have been following the kids for years, and have Tommy in my thoughts this thanksgiving and christmas. I have been sick this year too, nowhere near as bad as the kids! But I was in the hospital with a kidney infection.... I met an MS patient there and we became friends, so I have a whole new respect for your kids and your lives. Please take care this holiday season (and let Alyssa know I am looking for her!!:)
Love, Alex
Alex Millholland <alexandramillholland@yahoo.com>
Durham, NC USA - Tuesday, December 26, 2006 8:53 PM CST
Found your web site from another one I visit. I am so glad that I have found your children, I will lifting them up to the Lord for comfort and healing from this terrible disease they have. My little granddaughter suffers from Krabbe Disease, a genetic disease that usually takes our children before age 2. I know the heartbreak of watching these little ones suffer as they do. God bless you and your children. Sending my prayers to each one of them tonight.
www.caringbridge.org/visit/katelyncraft
Neva Craft <d.craft@centurytel.net>
DeQuincy, LA United States - Tuesday, December 26, 2006 8:34 PM CST
So glad to hear that Ciara is doing better, I was worried you might be spending Christmas in the hospital. Hope you all had a great day yesterday.
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Tuesday, December 26, 2006 7:33 PM CST
Happy Holidays to you,
We appreciate your consistent visits to our guestbook. Praying for good health and happy memories at your place.
luv Kelly and Kirkland xoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Tuesday, December 26, 2006 12:15 AM CST
Hope you had a Merry Christmas Hugs Laura and Will xxxxLaura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, December 26, 2006 11:31 AM CST
Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA United States - Monday, December 25, 2006 11:04 PM CST
to: JOHN, ALICIA, CIARA, HUNTER ANGEL TOMMY & s'MORE!
Christmas Myspace Graphics
Christmas Myspace Graphics
MERRY X-MAS!
~NATER
Nater Gapa www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
Lyndonville, NY ***USA!*** - Monday, December 25, 2006 7:49 PM CST
to: JOHN, ALICIA, CIARA, HUNTER ANGEL TOMMY & s'MORE!
Christmas Myspace Graphics
Christmas Myspace Graphics
MERRY X-MAS!
~NATER
Nater Gapa www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com>
Lyndonville, NY ***USA!*** - Monday, December 25, 2006 7:48 PM CST
Merry Christmas Ciara , Hunter, John and Alicia
and happy new year
Love
Ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, On Canada - Monday, December 25, 2006 10:45 AM CST
THINKING OF YOU .HAVE A HAPPY AND HEALTHY HOLIDAY AND A WONDERFUL NEW YEAR......
DENISE AND STEVEN
Steven's website
Long Island, NY - Sunday, December 24, 2006 3:17 PM CST
Happy Holidays from my family to yours, praying you have a wonderful holiday
hailee
melissa <angels4hailee@nc.rr.com>
westend, nc usa - Sunday, December 24, 2006 1:37 PM CST
Alicia, John, Ciara & Hunter
We hope you have a MERRY CHRISTMAS!
Hugs & Much Love,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Sunday, December 24, 2006 10:53 AM CST
Happy Christmas & Happy New Year
Praying that Ciara is getting better.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, Uk - Sunday, December 24, 2006 5:59 AM CST
Merry Christmas to you and your family!!
Love always,
Anita, Jason, Austin, and ^Adriana^
www.caringbridge.org/visit/littleangel
Anita <lpn_06@yahoo.com>
- Sunday, December 24, 2006 4:39 AM CST
LOVE BRENDAMY CHRISTMAS ANGEL <brurka@shaw.ca>
Edmonton,Alberta/Canada, - Sunday, December 24, 2006 3:40 AM CST
MERRY CHRISTMAS
Love From Our Home To Your's
God Bless you
Love,
Kris and Family
Danny
Kris <ccougarfan@aol.com>
- Saturday, December 23, 2006 10:37 PM CST
Stopping by to wish you a Very Merry Christmas and all the best in the New Year!!!
Trish & Rhys Boyd, www.caringbridge.org/visit/rhysboyd
Trish Boyd <boyd.trish@gmail.com>
Kendal, On Canada - Saturday, December 23, 2006 6:33 PM CST
Hello everyone,
We just want to wish you a very happy Christmas and a very good and stabil 2007. We're glad to hear Ciara's feeling a little better. Lots of love from the Van der Wielen family in Amsterdam.
http://www.lucasvanderwielen.nl
Linda van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Saturday, December 23, 2006 4:33 PM CST
Dear Bennett family,
I hope you all have a great Christmas and a very healthy new year. Sorry I haven’t popped in for a while life has been too busy; it’s nice to have a little bit of time now to relax.
Thanks for your support over the last year it’s really appreciated by me and my family.
Take care,
Martyn
www.caringbridge.org/visit/martyncoyne
Martyn Coyne <m.coyne3@ntlworld.com>
Folkestone, Kent England (UK) - Saturday, December 23, 2006 3:15 PM CST
MERRY CHRISTMAS!
LOVE,
TOSHA AND SYDNEY MPS 1
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYNIKOLEVANHOOK
LATOSHA VANHOOK <HURLERMOM101@hOTMAIL.COM>
- Saturday, December 23, 2006 2:28 PM CST
I hope Ciara is feeling better, I'm glad she's home! I hope you guys have a great Christmas and new year!
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Saturday, December 23, 2006 11:47 AM CST
Hi Alicia - It sounds like you guys aren't having a fun time at the moment either. Glad Ciaria is home and hope her appointment today went well. Have a wonderful Christmas and a Happy 2007!!! Hugs from down south.
Jill and Alex www.caringbridge.com/ca/alexschwab <jillschwab99@hotmail.com>
Manhattan Beach, CA United States - Friday, December 22, 2006 9:14 PM CST
Hi guys,
I'm so sorry to hear that Ciara has been ill. I know it's been a long time since I've visited and I apologize for that. I have a new online journal so if you want to keep up with how I am please e-mail me and I will give you the link. I hope you're having a great Christmas and I hope Ciara continues on the road to recovery!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, December 22, 2006 7:40 PM CST
Hello Bennett Family, Stopping by to wish all happy holidays. Hoping all are well.
From our Family to Yours, Special Wishes for a Joyful Christmas filled with Bright Blessings of Magical Dreams, Tender Love and Heart Warming Memories....
MERRY CHRISTMAS!!!
&
Happy New Year!!!
www.caringbridge.org/visit/lenziebutland
Love, Lenzie's Nana Sue and Family
Sue Jeffires <sjeffries@cox.net>
Crestview, FL. U.S. - Friday, December 22, 2006 3:18 PM CST
Dear Mr. Hallmark,
I am writing to you from heaven, and though it must appear,
A rather strange idea, I see everything from here,
I just popped in to visit, your stores to find a card,
A card of love for my parents, as this day for them is hard,
There must be some mistake I thought, every card you can imagine,
except I could not find a card, from a child that lives in heaven,
they are still a parent too, no matter where I reside,
I had to leave, they understand, but oh the tears they cried,
I thought that if I wrote to you, that you would come to know,
that though I live in heaven now, I still love my parents so,
they talk with me, and dreams with me, we still share laughter too,
memories are our way of speaking now, would you see what you can do?
my parents carry me in their heart, their tears they hide from sight,
they plants flowers in my garden, there my living memory dwells,
they writes to other grieving parents, trying to ease there pain as well,
so you see Mr. Hallmark, though I no longer live on earth,
I must find a way, to remind her of her wondrous worth,
they need to be honored, and be remembered too,
just as the children of the earth will do,
thank you Mr. Hallmark, I know you will do your best,
find a way to tell them, how much they mean to me,
until I can do it for myself, when she joins me in eternity.
I know Christmas must be so hard for you although I can't comprehend how difficult it must be.
All my love,
Viks
viks <viks@postpals.co.uk>
- Friday, December 22, 2006 7:43 AM CST
I am so glad that Ciarra is home and I pray that she continues to improve. I know that this would be the best Christmas present for all of you.
Leslie Jurado <lesliejurado@rhtc.net>
- Thursday, December 21, 2006 9:03 PM CST
Welcome home Ciara !
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ontario Canada - Thursday, December 21, 2006 3:06 PM CST
I'm so pleased your home now and pray Ciara continues to recover so you can all enjoy Christmas together! Hugs and love Laura xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, December 21, 2006 1:16 PM CST
Hi Alicia,
I'm so sorry to hear that Ciara has been so terribly porly and in hospital. Double pneumonia - poor little thing, it's hard enough for them with just one lung infected. Praying that she continues her path of recovery.
Lots of love and strength to you and your family
Ria and Princess Jasmin XXX
PS - Jasmin is much better now her lung inflamation has calmed with the steriods and anti-biotics and she's smiling again x
Ria & Jasmin www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Thursday, December 21, 2006 3:35 AM CST
Hi Ciara & Alicia
I wanted you to know that we are thinking about you and praying for Ciara's speedy recovery so you can come home! Sending you lots of hugs.
Love,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Wednesday, December 20, 2006 9:01 PM CST
Hi Alicia
Just stopped by to check on Ciara. I have been praying for her recovery.
Kathie <kathie12@sympatico.ca>
- Wednesday, December 20, 2006 7:48 PM CST
Hi Alicia,
Just stopped by to check on the kids I hope Ciara gets better soon you guys arre in my thoughts
Big hugs for Ciara and Hunter
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, ontario Canada - Wednesday, December 20, 2006 2:49 PM CST
Bennett kids,Wishing you and your family a very Merry Christmas.Remember Jesus is the reason for the season.
God bless,Love & hugs,Linn,Daniel & Ariel We hope Ciara starts feeling better soon.The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, December 20, 2006 11:17 AM CST
Sending lots of prayers your way. Hope Ciara is doing better today and you can get home in time for Christmas.
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Wednesday, December 20, 2006 9:06 AM CST
Alicia, I'm so sorry to hear that Ciara is in hospital, will be praying that she gets well soon, so you can go home. Sending loads of love, stay strong xxxx
Louise Lewis (mum to Georgia)
c, uk - Tuesday, December 19, 2006 4:16 PM CST
I am so sorry about Lil Topknot!
You are and always will be in my prayers. I hope she's better and becomes herself again.
Hugsabunch!!!
Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA USA - Tuesday, December 19, 2006 2:24 PM CST
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, December 19, 2006 12:54 AM CST
I am so sorry you have been having such a tough time with Ciara. It sounds like you are really on top of it and hopefully she will be able to stay out of the hospital. When I was reading about all that traipsing back and forth, I just kept thinking "couldn't somebody help her?" Couldn't someone see that you could have used a hand? I hope that we are all more thoughtful than that. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com>
Boonsboro, md USA - Tuesday, December 19, 2006 12:03 AM CST
Poor Ciara! I hope she feels better soon and doesn't have to stay in the hospital! Sending our prayers and good thoughts!
Cari Cornish <cjcornish@yahoo.com>
- Tuesday, December 19, 2006 8:10 AM CST
Alicia, always thinking of you, Ciara & Hunter. Praying that Ciara is well again, what a horrible worrying time for you all. Sending loads of love & prayers. xxxx
Louise Lewis (mum to Georgia)
C, uk - Monday, December 18, 2006 4:04 PM CST
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, December 17, 2006 2:57 PM CST
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Sunday, December 17, 2006 10:26 AM CST
love the picture. so sorry we havent been by in forever, just did a really long distance stressful move trying to get back into the swing of things.
hailee
wishing you a merry xmas,f rom my family to yours
melissa <angels4hailee@nc.rr.com>
west end, nc usa - Saturday, December 16, 2006 7:46 PM CST
Hi Alisha sorry I haven't been in touch it is still hard for me to keep up with everyone I met at Duke I am alot better than I have been thanks to my loving husband that has helped me deal with my pain and anger. Please know you are always in my prayers.
christy patrick <christypatrick@carolina.rr.com>
rockingham, nc usa - Saturday, December 16, 2006 7:13 PM CST
Merry Christmas and a very happy New Year 2007
We are off to the Czech Republic on monday for our Christmas holidays so we won't be able to visit you for a while but we will be back ;-)
Love from Jessie and Stana
www.caringbridge.org/visit/jessicamagnus
Stana Magnusova <londonstana@hotmail.com>
London, UK - Friday, December 15, 2006 1:45 PM CST
Wanted to let you know that we are thinking of all of you this holiday. You are always in our prayers!
Stacey and Lucas MPSIII~B
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Friday, December 15, 2006 9:21 AM CST
Ciara is always in my prayers, as well as you, John and Hunter. I'm so sorry I haven't been by the page until now. Please know I am praying for you always even if I don't sign the guestbook.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Texas - Thursday, December 14, 2006 10:12 PM CST
Hi Alica,
I'm so sorry to read all you've been through with Ciara...
I'm just so happy she is finally doing BETTER!
I just don't know how you do it?
Hope you get to start enjoying the holidays,
Love,
Susan & Jordan
Jordan <Susan2956@yahoo.com>
Baton Rouge, - Thursday, December 14, 2006 7:29 PM CST
Merry Christmas from me to you! Love, Jen from the Cherub Forest   |
Jen
- Thursday, December 14, 2006 11:56 AM CST
Hi Alicia,
I'm praying that Ciara is better now, what a torrid time you've had with her seizures this week, poor baby.
Sending you lots of hugs and thoughts
Ria & Princess Jasmin XXXXXXXXX
Ria & Jasmin <riaheap@aol.com>
UK - Thursday, December 14, 2006 4:34 AM CST
Poor Ciara. I am parying hard for her to get better soon and no more seizors.
Oh Alicia. This is really painful. No parents should see their children suffering.
Sending lots of hugs your way.
3 MPS GIRLS
Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Thursday, December 14, 2006 2:06 AM CST
Alicia please call me if there is anything I can do for you. You sound like you really need some help so just let me know what I can do and I will be there. Keeping you all in my thoughts and prayers.
Love,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Tuesday, December 12, 2006 11:31 PM CST
Hey...you already know this because I just called you a bit ago, but you know I can get to your house in 40 minutes if you need help!!!! I hope that Ciara has a good night. Call Me!!!! You know I will kick your butt if you don't!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Tuesday, December 12, 2006 10:52 PM CST
Hi Alicia,
I just stopped by to check n the kids that's too abd that Ciara is sick poor thing and those seizures don't help matters either.
I'm thinking of you guys I'll check back in a few days
Hugs for Ciara and Hunter
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ontario Canada - Tuesday, December 12, 2006 9:40 PM CST
Hi Alica. This is Megan, I worked in Ciara and Hunter's class and took care of Christina. I live here in Ione. If you need anything just send an email and I can give you my number. I hope Ciara doesn't end up in the hospital. Get better Ciara!
Megan <desmond_megan@hotmail.com>
- Tuesday, December 12, 2006 9:09 PM CST
~*~Spirited sprinkles to you~*~
Good luck to you in the Gates!!!
Lady PeaseBlossom <peaseblossom@thesitefights.com>
- Tuesday, December 12, 2006 6:54 PM CST
border=0>Fairy Twilight
- Tuesday, December 12, 2006 5:41 PM CST
Ok you for real need to update so everyone can see my awesome picture of Mrs. Brawny cutting down trees with her big saw!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Tuesday, December 12, 2006 1:17 PM CST
Just stopping in to say Hello! I hope your not working too hard and making time for holiday decorating at home and shopping too!
Hugs,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Monday, December 11, 2006 6:49 PM CST
Courtesy of MsTags.com
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, December 11, 2006 12:44 AM CST
Hello! This is Marsha, I just found where you have sign my son's website Tylerboo, he had hurler's mps1 but I have great news to share with you> Tyler's little brother has arrived and growing like a weed he'll be 2 months old Dec. 26 2006 and he was tested for mps and he passed he doesn't have any form of it and I'm blessed with a healthy baby boy Tony and I named Tucker so I've updated Tylerboo's page so feel free to keep me posted on how your family is doing. I hope you & yours from mine Merry Christmas and Have a very safe & Happy Neaw YEAR!!!!!!!!!!!!
marsha jones <clodstall@yahoo.com>
coats, n.c. harnett - Sunday, December 10, 2006 2:56 PM CST
Hello! This is Marsha, I just found where you have sign my son's website Tylerboo, he had hurler's mps1 but I have great news to share with you> Tyler's little brother has arrived and growing like a weed he'll be 2 months old Dec. 26 2006 and he was tested for mps and he passed he doesn't have any form of it and I'm blessed with a healthy baby boy Tony and I named Tucker so I've updated Tylerboo's page so feel free to keep me posted on how your family is doing. I hope you & yours from mine Merry Christmas and Have a very safe & Happy Neaw YEAR!!!!!!!!!!!!
marsha jones <clodstall@yahoo.com>
coats, n.c. harnett - Sunday, December 10, 2006 2:54 PM CST
Just stopping by to let you know I am praying for your family always. Please update when you get a chance to let everyone know how you all are doing.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Texas - Sunday, December 10, 2006 7:43 AM CST
Hi Alica,
Thanks for the quick update, I'm so glad to read you guys are all alright!
Look forward to your next update!
Love,
Susan
Jordan <Susan2956@yahoo.com>
Baton Rouge, LA - Saturday, December 9, 2006 5:21 PM CST
Thinking of you and your family as you continue to fight
the fight on behalf of your children and others with Sanfilippo Syndrome. Having a child with special needs
gives one such empathy for others with similar circumstances. May God bless you and keep you.
Liann Key Kaighin
Marsh Harbour, Abaco, Bahamas - Thursday, December 7, 2006 10:52 PM CST
Hi Alicia,
first, thank-you so much for writing in Connor's journal! It is so great to feel like I am not alone! Your story is quite amazing. Please know that I will pray for you and for your family as well!
Geraldine
www.caringbridge.org/visit/connorv
Geraldine Vanderveen <vanderveenger@hotmail.com>
Calgary, AB Canada - Thursday, December 7, 2006 7:03 PM CST
Thanks for today guys!!!!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Thursday, December 7, 2006 5:38 PM CST
Hi Alicia,
Hope all is well, been waiting on your update! Just wanted to say hi and let you know I was thinking of you.
With hope,
Susan
Jordan <Susan2956@yahoo.com>
Baton Rouge, LA - Wednesday, December 6, 2006 5:20 PM CST
 | Cool Slideshows |
Just coming by to check on you all. Hope your December is not too cold! I bet you're getting ready for a big Chirstmas, huh? I bet you guys really have fun!
Just wanted you to know you've been in my thoughts!
Karen & Tabby
Karen West <karenpuddn@comcast.net>
- Tuesday, December 5, 2006 7:23 PM CST
border=0>Fairy Twilight <dtwilightNOSPAM@thesitefights.com>
- Monday, December 4, 2006 11:52 PM CST
I just wanted you to all know that I have thought of you every day since the 25th, but have been out of town. Tommy continues to make me laugh when I see his pictures and he is definately watching over his wonderful big sister and brother. My thoughts are with you all.
Renee
www.caringbridge.com/ny/my2angels <rcurk@aol.com>
- Thursday, November 30, 2006 9:02 AM CST
Thinking of you all and hoping that comfort has found it's way to you through these past few years. Words can't even begin to explain the depth of love that a parent has for a child. My heart goes out to you. Years, months and days.
Stacey & Teagan Pevler <stacmer14@yahoo.com>
Abilene, TX www.caringbridge.org/visit/teaganpaige - Wednesday, November 29, 2006 8:20 PM CST
Alicia,
I just checked in on you and thinking of you and the family. The poem just made my cry, and know that Tommy is watching over you.
May you have comfort from above.
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Wednesday, November 29, 2006 8:36 AM CST
Good luck in The Site Fights!!
Fairy Alma
http://www.thesitefights.com/fairies, TSF DRealm of The Fairies - Wednesday, November 29, 2006 0:22 AM CST
"This is what I want from now on:
a slower pace, a more centered existence,
and the feelings of perfect happiness
to be found in the moments I come home to myself."
~Linda Weltner~
Thank you for your Cherub Forest Spirit!
Shout It Out
~*~Sprinkles~*~ To You!!! from Lady PeaseBlossom
Lady PeaseBlossom <peaseblossom@thesitefights.com>
Jamestown, ND TSF : ) - Tuesday, November 28, 2006 7:57 PM CST
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, - Tuesday, November 28, 2006 5:41 PM CST
Thinking of you today.
Love Vanessa <Yanksgirlv@aol.com>
Cary, NC - Monday, November 27, 2006 4:31 PM CST
Hi Alicia and John - Just thinking of you guys today. Hope you had a good turkey day. Alyssa's poem is beautiful. Hugs,
Jill and Alex www.caringbridge.com/ca/alexschwab <jillschwab99@hotmail.com>
Manhattan Beach, CA United States - Monday, November 27, 2006 10:50 AM CST
Alicia. Thinking of you today. I can imagine how you must be going through. You made a beautiful pictures of Tommy. Alyssa's poem really bring tears in my eyes.
I remember the day we met Tommy, What a cute little boy he was.
We miss you Tommy!!!
Sending lots of love and hugs to Bennett family.
3 MPS GIRLS
Tayyaba Beg <Tayyaba@helpourgirls.com>
NJ - Monday, November 27, 2006 9:30 AM CST
Alicia, Praying for you and John during this difficult weekend. Tommy is a beautiful angel.
Shelley Hartsuyker <hugseveryday@hotmail.com>
jackson, CA - Monday, November 27, 2006 8:35 AM CST
Sending each of you prayers, as you miss Tommy even greater this weekend. My heart aches for each who loved this sweet little guy but my heart also knows he is still with all of you in so many ways each and every day!
I hope you know you'll remain in our family's prayers,
The Haggett's, John, Brenda & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, NY usa - Sunday, November 26, 2006 9:06 PM CST
Like Harry Potter
I am flying high
Reaching for the stars
In the sky
With Friends like
Ron and Hermione
that's the best ever can be...
And just like Mine
I hope your Spirits were lifted
Just like Ron's and Hermione's
In Having a Friend Like Harry
Don't Forget To
SHOUT IT OUT!
DBright Fairy Hermione <xanth_rocs@yahoo.com>
California - Sunday, November 26, 2006 5:24 PM CST
Alicia,
What a beautiful tribute to Tommy :) I wish I had the skills like that so I can turn pictures of Mom in beautiful works of art. Tomoorw it wll be a year since Mom has been in heaven
Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, On Canada - Sunday, November 26, 2006 5:17 PM CST
Alicia, what beautiful pictures of Tommy, a wonderful tribute. The poem written by Alyssa was so touching, my thoughts are with you all right now.
Louise Lewis (mum to Georgia)
Chepstow, uk - Sunday, November 26, 2006 2:50 PM CST
Alicia & John,
I just wanted to wish you both peace during the anniversary of Tommy's death. Much love to both of you.
Amy and Owen
http://www.savesweetpea.com
Amy Donaldson <kiwicaleb4@yahoo.com>
Rutland, VT USA - Sunday, November 26, 2006 11:06 AM CST
Alicia -your tribute to Tommy is so beautiful and we love the poem too Alyssa-Thinking of you all Hugs Laura,Lily and Willxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, November 26, 2006 6:19 AM CST
Alicia,
My tears won't stop falling after reading your words and seeing your photographs remembering Tommy, and Alyssas poem totally touching. A beautiful tribute to a beautiful Angel.
My heart is with you right now
Ria & Princess Jasmin
Ria, www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
ENGLAND - Sunday, November 26, 2006 4:57 AM CST
What a loving tribute to your son.
Just wanted to stop by and let you know we were thinking of you!
God Bless!
Love,
Michelle
Bethany's Site
Knoxville, TN , - Sunday, November 26, 2006 1:45 AM CST
Alicia & John
I know this is a very difficult day for you both and I just wanted you to know that Tom & I were thinking about you.
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Saturday, November 25, 2006 11:24 PM CST
Hi Alica,
I'm so glad I came by tonight, your tribute to Tommy was just BEAUTIFUL! He was so precious, and I can't imagine how difficult this journey has been for you.
Please know I'm praying for your beautiful family. Keep holding on to your hope always,
Susan & Jordan
Jordan <Susan2956@yahoo.com>
Baton Rouge, LA - Saturday, November 25, 2006 9:42 PM CST
Thinking of you and Tommy today. you did such a great job on Tommy's webpage. And Alyssa's poem is a loving tribute !
Many prayers for God's comfort and strength for you and John, today and always, because I know that it doesn't get easier.
Love,
Kim Downham <momtoty@yahoo.com>
Houston, TX - Saturday, November 25, 2006 7:55 PM CST
My life on earth has ended
But I am always there
Sitting right within your heart
With love I'll always share
Thoughts are with you daily
While flying up above
Within the blue of heaven
I'm sending all my love
Above the glorious rainbow
In colors soft and warm
Reaching from God's Heaven
No longer in life's storm
We'll always be together
Each day in life you'll know
I am right beside
Where gentle breezes flow.
Thinking of you and John today!!
Hugs and love,
Patty and Jesse MPS III
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, November 25, 2006 7:45 PM CST
Thinking of Tommy on his Angel Day.
Kathie Stephens <kathie12@sympatico.ca>
Canada - Saturday, November 25, 2006 5:33 PM CST
We are thinking of all of you in a very special way today. Our hearts and prayers continue to go out to you and your family. Your faith and strength is amazing. God Bless all of you.
Traci and Squeek Bosch
www.caringbridge.org/mi/danielbosch
Traci Bosch <boschtraci@yahoo.com>
- Saturday, November 25, 2006 4:12 PM CST
Hey Sweetie,
Thinking about you today and everyday!! Slap Alyssa for me! She made me cry so hard this morning! Wonderful poem!! (((big hugs)))
Love and Hugs,
Tami <tlslawson@aol.com>
- Saturday, November 25, 2006 12:33 AM CST
Alicia you and your family are in my prayers today. I am sure sweet Tommy is watching over and sending big hugs (and pinches) for his mommy.
Alyssa that poem was beautiful!! You have such a wonderful way with words.
With lot's of love,
Misty
Administrator for lsdsonline.com
(a support forum for families affected by Lysosomal stprage disorders)
Misty <coreyvannostrand@netscape.net>
KS USA - Saturday, November 25, 2006 8:14 AM CST
Our thoughts and prayers are with your family today and always.
Paulina and Andrew
Paulina Jump <caljump@msn.com >
Sparta, KY USA - Saturday, November 25, 2006 6:00 AM CST
of course I had to put a snoopy comment in the guestbook for Tommy. Alicia...I know it is hard for us to sometimes talk about it, but you know I am always here for you guys. I love you all so so much!!!! I would do anything for you all. I pray that we both get some Tommy visit tomorrow while we are out honoring his memory.
^^Tommy^^...what can I say buddy other than I love you and miss you to pieces...see you again someday tominator
alyssa <sabiemc@aol.com>
sacramento, ca usa - Saturday, November 25, 2006 2:52 AM CST
Sending our love and prayers.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Saturday, November 25, 2006 1:27 AM CST
Hope you had a wonderful Thanksgiving.
Sending love and prayers to you!!!
Take Care,
Love,
Michelle (Bethany's Mom)
Bethany's Site
Knoxville, TN , - Friday, November 24, 2006 11:11 PM CST
Hi Alicia, Ciara, John and Hunter,
Thanks for siging my guestbook I hope you guys had a great Thanksgiving we had ours over a month ago.
Yeah for Caira's new bath chair that must be so exciting
Have a great weekend
Love Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Friday, November 24, 2006 3:08 PM CST
Dear Alicia, John, Ciara and Hunter!
At our home in the Netherlands it is almost 10 PM. Still two hours to go before it is Saturday November 25th. Three years ago, and still as if everything happened yesterday. Be assured that Tommy is in our hearts forever and that no single day passes without our thoughts going back to him.
Love and hugs, especially from Harmen, but also from the rest of the bunch!
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Friday, November 24, 2006 3:03 PM CST
HAPPY THANKSGIVING TO YOU AND YOUR FAMILY. YOUR PAGE LOOKS GREAT AS ALWAYS. I WILL BE AT THE ACADEMY DEC. 5-7TH FOR A CLASS. GREAT NEWS ON THE PUPPPY!!!
RICK ESPINO <rickespino@charter.net>
Hollister, CA USA - Friday, November 24, 2006 1:20 AM CST
Dropping by to say hello, sorry we’ve not signed the guest book lately, we’ve been so busy since Hannah has her guest appearance on TV here in the UK
Sending love and hugs your way
Jo Hannah, Rebecca and Rachel
Jo <yarnall@blueyonder.co.uk>
England, UK - Thursday, November 23, 2006 6:35 PM CST
HAPPY THANKSGIVING!!!
I am so happy to hear that Ciara is finally getting her chair.
Leslie Jurado <lesliejurado@rhtc.net>
- Thursday, November 23, 2006 5:07 PM CST
Happy Thanksgiving!!! So happy to hear of the newest addition to your family. A puppy can bring so much contagious joy and giggles to all those around.
Hope & Prayers-
Shannon Rieg...Cooper's MOM
Shannon Rieg <shannon.rieg@hotmail.com>
- Thursday, November 23, 2006 3:22 PM CST
Hello,
Found your site through another one and wanted to drop in and say hello and I will be praying for your children. I know the feeling of having a child that is very ill. God Bless Your Family. Happy Thanksgiving.
www.caringbridge.org/visit/katelyncraft
Neva (Katelyn's Nanny)
Neva Craft <d.craft@centurytel.net>
DeQuincy, LA 70633 - Thursday, November 23, 2006 6:53 AM CST
happy thanksgiving from the preston familykathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, November 23, 2006 6:50 AM CST
Happy Thanksgiving! Hope you all enjoy this day! Thoughts and prayers are with you!
Love, Lemoine Family :)
www.caringbridge.org/visit/tristenwilliam
Samantha Zuther <szuther@hotmail.com>
Hillsboro, ND USA - Wednesday, November 22, 2006 10:33 PM CST
see ya tomorrow!!!!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Wednesday, November 22, 2006 10:15 PM CST
Love Joseph
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, November 22, 2006 7:47 PM CST
Hi,
Just wanted you to know that I am thinking of you. I'll never forget the night Tommy died. I wish I could have done more for you when we were at Duke. Hope ya'll have a great Thanksgiving.
Camilla Haigler (Angel Alex's mom) <camilla.haigler@timken.com>
Gray Court, SC - Wednesday, November 22, 2006 7:23 PM CST
Hello!
Just popping in today to say hello! Your site looks AMAZING! I think you do the cutest stuff with your cb page! You have quite a talent! I just love the Thanksgiving background! It is adorable!
I so happy you all have a new puppy! It sounds like a great new addition to your family!
Im sorry to hear Hunter had a few rough days! I sure hope he is feeling better real soon!
Have a wonderful Thanksgiving Holiday!
Hugs and Best wishes!
April & Logan <Aprilmolle@tampabay.rr.com>
Port Richey, FL USA - Wednesday, November 22, 2006 7:07 PM CST
Peace, healing, and love to you and your family.
Annie <penguini1982@yahoo.com>
Rochester, MA United States - Wednesday, November 22, 2006 6:09 PM CST
God Bless You and your Family!
MamaT <stikitembo@hotmail.com>
mcminnville, or usa - Wednesday, November 22, 2006 12:28 AM CST
I HOPE YOU HAVE A WONDERFUL THANKSGIVING SURROUNDED WITH FAMILY AND LOTS OF YUMMY FOOD!
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Tuesday, November 21, 2006 9:02 PM CST
Just stopping by to say Hello.. hehehe like we never talk!!
Have a wonderful Tbanksgiving Holiday! Many Blessings your way!
Hugs and love,
Patty and Jesse MPS III
PattyT <wordinedge@aol.com>
Balto, MD USA - Tuesday, November 21, 2006 8:54 AM CST
Hello Guys!
Stopped by to wish you a Happy Thanksgiving! God Bless!
www.caringbridge.org/visit/matthewfranson
MN - Tuesday, November 21, 2006 1:23 AM CST
Hope you guys have a wonderful Thanksgiving!
Hugs,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Monday, November 20, 2006 6:30 PM CST
Wishing your family a wonderful "Thanksgiving" filled with lots of family, friends, love, and good food!!! :)
We are always keeping you guys in our thoughts and prayers.
Hugs, Sammy Nichols & Family
www.caringbridge.org/va/princesssammy
Desiree (Sammy's Mommy)
Gordonsville, VA USA - Monday, November 20, 2006 9:56 AM CST
Hey...just wanted to say hi! I love your new doggie...he is TOO CUTE!!!! (even if I did have to clean up his pee pee) =) See you on Thanksgiving!!!!
ps- Ben told me he hates sweet potato pie too...looks like I will get to eat it all by myself!
alyssa <sabiemc@aol.com>
sacramento, ca usa - Monday, November 20, 2006 2:59 AM CST
Keeping Ciara and Hunter in my prayers always ...
Eli & Fletcher
Michele
W-S, NC - Sunday, November 19, 2006 6:11 PM CST
| Cool Slideshows |
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Sunday, November 19, 2006 5:20 PM CST
Hey there Alicia. I just wanted to stop by and let you know that I still pray for and think about your family even when i don't sign the guestbook. I'm praying that something works out so that you are able to afford to go to school and get your medical transcription certificate. I'm praying that the kids continue to do well and be happy. Take care and I'll be back again to check on you all.
Jennifer from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Bridgeport for the moment, Texas - Sunday, November 19, 2006 0:12 AM CST
Hello!
Just wanted to stop in and say hello! I am so sorry to hear about your blood pressure and how because of it you werent feeling well! I am so happy to read your doctor gave you a prescription and that you are feeling much better!
I hope that you are enjoying the weekend! Have a wonderful Thanksgiving!
Hugs and best wishes
April & Logan <Aprilmolle@tampabay.rr.com>
Port Richey, Fl USA - Saturday, November 18, 2006 7:12 PM CST
Always thinking of you.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA
, - Saturday, November 18, 2006 0:28 AM CST
Hello, I don't know if you rememeber me I talked to you a couple months ago. Iam Kassi's mom. She was diagnosed w/ mpsIIIA. I love the pictures. You have such beautiful kids. I hope everything works out financially for you. Just wanted to say HI!Call or email me any time.
Trisha Offenbacker <jpoffe56@msn.com>
Mountain Home, ID USA - Thursday, November 16, 2006 8:21 PM CST
Hey guys,
Just wanted to say "I love the new pup".. he looks like a sweetie!! Have fun this weekend teaching him some new tricks!
Love,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Thursday, November 16, 2006 6:52 PM CST
Hello,
Thanks very much for your message in Lucas his guestbook. I'm very impressed how you found everything in Dutch! We're already working on the translation into English. I saw your website on the day we heard the diagnose of Lucas. It must have been the first website we were reading, and it is very impressive! You must miss Tommy very much and we think about your children very often. I am very curious how your network is regarding the daycare of your children. Do you ever get some peace and quit? Because you need it! We look forward to have more contact in the near future.
Love,
Linda van der Wielen-Olman
Linda van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Thursday, November 16, 2006 5:05 AM CST
Congrats on your new family member!!!! How cute!!!! I can't wait to meet him on Thanksgiving.
alyssa <sabiemc@aol.com>
sacramento, ca usa - Wednesday, November 15, 2006 2:00 PM CST
HI Alicia,
Just stopping by to check in on you and the kids. WOW you have been busy. Thank you so much for always brightening up our guestbooks with you warm wishes and sweet sentiments. YOu are a breath of fresh air!You are special.
Thaks for sharing this site with all of us also as it is beautiful!
Love and prayers,
Rosemarie
Rosemarie <rveliz@nac.net>
Newton, NJ USA - Wednesday, November 15, 2006 8:02 AM CST
Hey guys!
I'm glad to hear that you all are doing ok!
With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW
Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, November 15, 2006 1:19 AM CST
I'm glad Hunter and Ciara are doing well! You're new family member is pretty darn cute!
Hugs,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Tuesday, November 14, 2006 9:43 PM CST
Hi, Alicia! I just wanted to drop by and let you know I was thinking of you guys today. Sorry Hunter had such a hard time w/ his shot. Luke is not a big fan of needles (or doctor's offices for that matter!). Glad you've gotten your BP under control. Hopefully that will help you feel better and pull you back up to 100%. Heaven knows w/ kids like our we have to be 100% the majority of the time! Hang in there! We're thinking of ya!
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.com/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Monday, November 13, 2006 4:20 PM CST
Hi guys,
So sorry it's been such a long time since I've been around. Sounds like you've had a busy fall so far! I've been ill quite a bit and am very tired right now because I think it's time to start a new sleeping med so I started that last night when I went to bed, which was at 11:30! WAY past my bedtime! I need to do a lot of resting, but not during the day, so I need to fill the day with activities so I don't get bored and sleep. That seems to be my worst time, when I am just BORED! Alicia, I'm sorry you're having some medical issues right now. It's so difficult to deal with that, I know how it is, and then when you have people to take care of it's even worse! Make sure to take some time for yourself! Hunter, you are such a little monster! Lol No, not really, just a cute little boy who tends to be naughty sometimes. Right? Ciara, you need to quit those seizures! Scary stuff!
Sending you lots of love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, November 13, 2006 1:51 PM CST
LADY YUNA <ladyyuna@thesitefights.com>
DREALM OF THE FAIRIES, DREALM OF THE FAIRIES DREALM OF THE FAIRIES - Monday, November 13, 2006 12:50 AM CST
Hi There!
Thanks for visiting NatieBug's site and leaving the link to your sweet children's site. I was reading up on Ciara, Hunter, and Tommy's story. To have one child with many special needs is definitely a challenge-but to have had multiple kiddos requiring so much care at the same time must be absolutely exhausting. I really admire you and the way your family lives life to the fullest! It is truly evident in their photos! It looks like they keep you VERY VERY busy. We'll check in again soon!
Melissa , Chris, Gillian, & Nathan Spiceland <rxdawg97@bellsouth.net>
Macon, GA United States - Sunday, November 12, 2006 8:35 PM CST
HI Alicia and family ~ Just poppin' in to say hello and see how things are in your neck of the woods. I'm glad to hear that despite the seizures and the difficulties during the flu shots the kids seem to be doing rather well and I know when they are happy so are you!!
I'm also thankful that there are those blood pressure machines for us to use in stores! Glad you caught that your blood pressure was high and got that taken care of.
Have a great weekend and take care of yourself!
Pat, Sal, Mishael and Isaiah - Isaiah’s Journey <pat.bingham@comcast.net>
Swartz Creek, MI - Saturday, November 11, 2006 1:58 PM CST
Thank you for your sacrifices for our freedoms. Freedom is NOT free!
I will praise the name of God with song; I will magnify him with thanksgiving. Psalm 69:30
May you & yours have a blessed Thanksgiving!
God Bless America,
Barb, John, Shawn, Shannon & Colleen
www.caringbridge.org/page/shannon
Barb
- Friday, November 10, 2006 7:01 PM CST
Hello,I came across your website and I think it's amazing.Your family shows great strength and inspiration.Your children are remarkable.We too have an angel in heaven Jessica who had neuroblastoma.Thinking of you all.
Visit our beautiful angel Jessica ***
Amy - Evans Family <jess_n_jays_mum@hotmail.com>
Waroona, WA Australia - Friday, November 10, 2006 5:58 PM CST
Remembering Our Solider's Past & Present
Today and always keeping you in my prayers!
God Bless you,
Kris
Danny <ccougarfan@aol.com>
- Friday, November 10, 2006 10:31 AM CST
Hi Alica,
Just stopping by to say and check up on you guys. If I read your journal right, I'd like to wish you a belated "Happy Anniversary"!!!
I'm glad things have been slow for you, really you need any break you can get!
I'll look forward to your pictures.
With hope,
Susan & Jordan
Jordan <Susan2956@yahoo.com>
God is good, all of the time...................................., - Thursday, November 9, 2006 7:11 PM CST
Hello Alicia,
Hope everyone is doing well in your family. Just stopping by to say hello and have a great week!
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Thursday, November 9, 2006 6:46 PM CST
Hi Bennetts,
Just stopping in to wish you all a very nice weekend!!
Love and hugs,
Eva and Rodney <KWfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Thursday, November 9, 2006 10:21 AM CST
I found your page While visiting others sites and was just amazed at what i was reading. I had one child with a form of leukemia and that has broken my heart as she passed away on 16th november last year. I cannot imagine what you go through every day and you must be a very strong woman.
God bless you and your family and I will keep you in my prayers.
Michelle Angel Ebonys Mummy
Visit Ebonys Page
Michelle kelly <nedshell@dodo.com.au>
p, w a - Thursday, November 9, 2006 3:35 AM CST
Ok...i have to say it...UPDATE, even though I talk to you everyday...i know everyone out in the caringbridge worlds wants an update! =) peace out
alyssa <sabiemc@aol.com>
sacramento, ca usa - Thursday, November 9, 2006 1:52 AM CST
Hey Alicia~
Thanks for signing Makayla's guestbook. You are so sweet! You always seem to find the time to drop by and say hi or leave words of encouragement when it is needed (like now!)
We can't thank you enough for all your prayers!
God bless~
Jan aka Mimi to Hailey and Makayla Chavers
www.caringbridge.org/visit/haileychavers
www.caringbridge.org/visit/makaylachavers
Jan Chapdelaine <jannyjo@cox.net>
Virginia Beach, va USA - Wednesday, November 8, 2006 5:35 PM CST
You never forget to sign Payton's website do you?.....lol
I need to be on the ball...Just popped in to say hi and check on the 2 little ones.....Little late, but Happy Halloween.....so I don't forget.....I hope you guys have a Great Thanksgiving..I am thankful to have someone that cares as much as you do in my life.
Shannon Cherpes-mom to Payton-MPSll www.caringbridge.org/visit/paypay Alexis,Cheyenne and Hunter <cookie_sc2000@netzero.net>
Ionia, Mi United States - Wednesday, November 8, 2006 1:15 PM CST
Hey! Thank you Alicia,John,Ciara,Hunter,& Angel Tommy.
For Sighning the guestbook and saying Happy birthday with the bear.
That is so cute.
Again thanks.
Love Jacy Box (FA-A)
Jacy Box <bby2011angel@aol.com>
Sedgwick, kansas united states - Wednesday, November 8, 2006 12:50 AM CST
I did it!! Thanks Alicia for my photobucket and instructions, you're wonderful XXXX
Ria <Riaheap@aol.com>
UK - Wednesday, November 8, 2006 6:56 AM CST
Ria <riaheap@aol.com>
UK - Wednesday, November 8, 2006 6:51 AM CST
~*~Sprinkles~*~ To You!!!
"Precious few are they who delight in doing good,
who cultivate a pure spirit,
and who keep an open heart.
Though these modest heroes often go unsung,
when we do learn of their selfless deeds
we're inspired to be of good character,
to look for the good in everybody,
and to nurture it in ourselves."
~Lin Sexton~
Thank you for your Cherub Forest Spirit
and don't forget to Shout It Out!
Lady PeaseBlossom <peaseblossom@thesitefights.com>
Jamestown, ND - Tuesday, November 7, 2006 8:43 PM CST
May God Bless you all and keep you in his care.
Kim
Valley City, OH - Tuesday, November 7, 2006 3:03 PM CST
Hey Alicia
Glad everything is going well and you're feeling better. We still need to do lunch. Thanks for helping me get those pictures on Scotty's website.
Hugs,
Kim & Scotty MPS II
<cottons@earthlink.net>Modesto, CA - Tuesday, November 7, 2006 8:42 AM CST
Alicia
Call me ASAP.
Michelle
michelle fitzpatrick <mfitzpatrick@zoominternet.net>
medina, oh - Monday, November 6, 2006 9:30 AM CST
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Praying for you, 
www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
>
<cottons@earthlink.net>
Jimmy loves his hot tub too. It helps relax his muscles. Its a God send isnt it?? :) The kids look so happy in the tub. My hub is the one who goes in with Jimmy. I stand by with the towels. lol. Well, you all enjoy your hot tub!!Many blessings and much love, Love, Lin, Jim, Angel Lori, Mike, Amy and Jimmy-Joe~* 
<cottons@earthlink.net>
<cottons@earthlink.net>
Just wanted to stop by and say hi, i love the video you have added to the site. Lots of love Beth
Alecia, Hi! How are you all doing this week. Thinking of you a lot and wishing you all peaceful happy days. I watched Tommy's slide show/video clip. How beautiful. Words cannot say how beautifully it was done and what a beautiful angel Tommy is. I just celebrated my daughter Lori's birthday on Nov. 29th. She wouldve been 27!! She passed away in 1981 of a brain tumor. She was 2 and 1/2. I can imagine her (Lori) and Tommy soaring the clouds. Those visions of her keep me "ok". May God give you peace today and everyday. Love you all. Your friends in Florida.~* Lin, Jim, Angel Lori, Mike, Amy & Jimmy-Joe~* 
