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Aleks & Danielle. My brother's wedding. 7/29/07.
Welcome to Danielle's Patient Web Page. It has been provided to keep people updated on her condition.
I have been diagnosed with the following diseases/disorders. Some of my medical conditions are still a mystery. It is believed that much of this may be due to a mitochondrial disorder. If you'd like information of any of these conditions, please e-mail me!
Chronic Pain, Autoimmune Disease, Autonomic Dysfunction, Hypotension, Small Fibre Neuropathy, Raynaud's Disease, Antiphospholipid Syndrome, Hashimoto's Thyroiditis, Chronic Epstein-Barr Virus (CAEBV), Essential Tremor, Major Depressive Disorder (Unipolar Depression), Panic Disorder. I also have 2 L-Spine Herniated discs(w/ spinal encroachment), 1 bulging disc.
I was born with Congenital Esotropia and Sensory Integration Dysfunction (SID or DSI). I still battle daily with SID.
*Did you know that Clinical Depression is a real medical illness?*
Information on Stigma
Please read this before you leave!
CB Family & Friends
...Sometimes He lets it rain
He Lets the fierce winds blow
Sometimes it takes a storm it lead a heart where it can grow
He can move mountains of grief and oceans of pain
But sometimes He lets it rain...
Thank you to all of my angels who visit! Big Hugs to my other ill buddies! You inspire me!
Journal
Tuesday, January 22, 2008 3:17 PM CST Hi Dear Friends.
Iha been a very long time, and I do apologize for not at least quickly updating you. A lot has happened over past several months.... well, about a year now, good and bad.
Just a quick update and then I promise to write a real entry and check in with everyone ASAP!
- my brother got married in July and I caught the bouquet! yay me (pics to come)
- Javert turned 5!!
- My mother is feeling alright and is in no immediate danger....we're just waiting to start predisone.
- My 86 y/o grandmother was just released from hosp/rehab for pneumonia, but is doing much better. She'll be staying with us for a few weeks.
- I've been having SEVERE fits of vomitting, itchiness and "overheating" sensation. I have some other weird symptoms and I'd love your input, so I'll be sure to post details. I'm DESPERATE, especially because...
- i go back to school in a few short days!!
- the best news or me personally, is that I met the man of my dreams and I couldn't be happier. I love my Keith!
All of you have been in my prayers during my absence. You're never far from my mind and heart. Love to you all!
Blessings,
Danielle
Read Journal History
Hospital Information: Patient Room: PMA23 - HOME NOW! North Shore Long Island Jewish
http://www.northshorelij.com/
New Hyde Park/Great Neck, NY
(718) or (516) 470-7000
Links: http://www.rarediseases.org National Organization for Rare Disorders
http://www.metanoia.org/suicide/whattodo.htm Are you or someone you know suicidal? Get Help!
http://www.mentalhealth.samhsa.gov/publications/allpubs/OEL99-0004/default.asp About Stigma - I ask that all of my visitors to please read this. :) Thanks!
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