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In loving memory of Reid Dale Miller
Reid was born on December 14, 2001 after a perfect delivery and birth. A few days after we brought him home, I had the mother's intuition that something was wrong. At that time he had a terrible rash and a poor appetite and he seemed so pale to me. I had been crying non-stop all day, but it seemed everyone was reassuring me he was fine. I finally called his doctor's office that night and the pediatricain on call wasn't very helpful, so I ended up taking him to the emergency room. There they discovered his platelet count was very low and we were sent to Vanderbilt Children's Hospital immediately. His platelet counts continued to drop and no one could figure out why. After 3 months of seeing many doctors, running every test known and spending one month intubated in ICU (due to complications from a liver biopsy), we went to the Children's Hospital Of Philadelphia (CHOP)for help and a second opinion. There he was diagnosed with complete bone marrow failure- never seen before. All his blood counts eventually dropped and his marrow was filling up with scar tissue. He went to CHOP for a bone marrow transplant. His transplant was on 4/22/02 and his 4 year old sister, Reagan, was the donor. His 8 year old sister, Riley, was the official hand holder. Reid did great during the transplant. He became a new baby who took off developmentally and had a smile that could melt a room. His new marrow worked beautifully and we were about to be discharged home when he developed a rare heart complication. At this time we still aren't sure what happened but he left us here on earth on May 24th 2002. The website provided us a means to update daily and turned out to be a demonstration of the care and love shown to us by so many. It visually demonstrated and allowed so many to see the power of prayer and to realize that no matter what happens, we always have hope. Journal Wednesday, July 1, 2009 6:53 AM CDT
Hospital Information:
Links: alexslemonade.com alex's lemonade fund foundation home page |
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E-mail Author: dmill3@insightbb.com |
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