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Hannah Louise Yarnall

Welcome to Hannah's webpage. Hannah was born on 5th July 2002 with Down's syndrome and a heart defect. She went on to have open heart surgery at 9weeks.

We created this site as we wanted to portray that having a child with Down's syndrome was a positive thing and having a life full of hope and joy instead of feeling that when the first diagnosis is given that their world crashes in around them.

We hope that by coming here that people will appreciate the true value of their children even though the path we walk is not always easy we hope that you will share with us the high's and lows of Hannah's journey which we have been chosen to take.



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View this video montage created at One True Media
Life is a celebration
you can leave comments on this link



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click here to see Hannah's very first steps as she walks to Cathy her home school teacher

Click here to see a little video clip of Hannah in her special K-walker

click here to see Hannah's first unaided steps

click hereto see Hannah's first Makaton sign ( for more )


click here to see Hannah saying Boo, this was videod on 8th Jan 2006, it is very cute






Mark ran the London Marathon on Sunday 17th April 2005 click here to see Marks Marathon page to see how much he raised


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We also have a Down's syndrome Support group called PROUD ( Parents, Relatives & Others Understanding Down's ) which we set up August 2004 click here to have a browse at the support group website



calendar

We are pleased to be able to announce that we now have got our 2009 charity Down's syndrome calendar available for sale with all money going to our support group, which will go towards our speech and language surgery which is helping the children with their development

It is available to US and UK people

click here for the calendar website where you can purchase online in the US and UK Please support this worthwhile cause





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click here to sign our guestbook



If you get chance please check out some of our friends webpages

Austins Webpage

Kennedy's webpage

Courtney's webpage

Kylee's webpage became an angel on 18th August 2005

Janna's webpage

RachelJoy's webpage

Johns webpage John has DS and Leukemia

Reese's webpage became an angel 26th August 2005

Samantha's webpage

Katie Rose's webpage Katie Rose is Samantha's cousin who has Leukemia





We hope you enjoy travelling on this special journey of Hannah's life with us.

A big Thank You to all the parents who have kindly given me their permission to allow us to use the photos of their children in Hannah's journal. Your children have played and continue to play a very important part in Hannah's special walk of life


Journal

Tuesday, March 22, 2011

Phew, its been over a year since I last came here to update

What a year it has been

Hannah has now been diagnosed with Cerebral Palsy ( we have found out she was starved of oxygen at birth )

and on top of that she has now been diagnosed with Juvenile Rheumatoid/Idiopathy Arthritis ( JIA for short )

So lets get started........
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Hannah seen here with her other 2 sisters ( Hannah is on the bike ) has to undergo chemotherapy drugs treatment for 2 years so that she is classed as being in "remission" of the arthritis

she will have to have 2 years of no flare ups otherwise its back to day one ( so it could be longer than 2 years )

she will be having weekly injections and then bloods taken every month to check on her liver and kidney functions and also her white blood cells counts and platelets counts so that she is monitored closely as the chemo drugs will suppress her immune system but its the only way to stop the inflammation between the joints

Hannah has steroid injections to start with and they were an instant fix, she went from walking like an old woman to literally running about in one day

they were great!!

So although we have alot of hospital visits ahead, i'll try and keep you updated as to what happens next

and try not to bore you too much with this bit

take care everyone for now

Jo ( Hannah's mommmy )

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Hospital Information:

Childrens Hospital
Next appointment March 2011


Links:

http://www2.caringbridge.org/fl/katia_leukemiapage/   Katia's webpage
http://www2.caringbridge.org/ca/daverurka/   Brenda's webpage in memory of her dad She created all the special affects on Hannah's page, thanks Brenda
http://www.aldridgeparishchurch.org   Our local church website


 
 

E-mail Author: jo@proudwalsall.org

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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