Hannah Louise Yarnall Welcome to Hannah's webpage. Hannah was born on 5th July 2002 with Down's syndrome and a heart defect. She went on to have open heart surgery at 9weeks.
We created this site as we wanted to portray that having a child with Down's syndrome was a positive thing and having a life full of hope and joy instead of feeling that when the first diagnosis is given that their world crashes in around them.
We hope that by coming here that people will appreciate the true value of their children even though the path we walk is not always easy we hope that you will share with us the high's and lows of Hannah's journey which we have been chosen to take.
Life is a celebration you can leave comments on this link
click here to see Hannah's very first steps as she walks to Cathy her home school teacher
Click here to see a little video clip of Hannah in her special K-walker
click here to see Hannah's first unaided steps
click hereto see Hannah's first Makaton sign ( for more )
click here to see Hannah saying Boo, this was videod on 8th Jan 2006, it is very cute
Mark ran the London Marathon on Sunday 17th April 2005 click here to see Marks Marathon page to see how much he raised
We also have a Down's syndrome Support group called PROUD ( Parents, Relatives & Others Understanding Down's ) which we set up August 2004 click here to have a browse at the support group website
We are pleased to be able to announce that we now have got our 2009 charity Down's syndrome calendar available for sale with all money going to our support group, which will go towards our speech and language surgery which is helping the children with their development
It is available to US and UK people
click here for the calendar website where you can purchase online in the US and UK Please support this worthwhile cause
click here to sign our guestbook
If you get chance please check out some of our friends webpages
Austins Webpage
Kennedy's webpage
Courtney's webpage
Kylee's webpage became an angel on 18th August 2005
Janna's webpage
RachelJoy's webpage
Johns webpage John has DS and Leukemia
Reese's webpage became an angel 26th August 2005
Samantha's webpage
Katie Rose's webpage Katie Rose is Samantha's cousin who has Leukemia
We hope you enjoy travelling on this special journey of Hannah's life with us.
A big Thank You to all the parents who have kindly given me their permission to allow us to use the photos of their children in Hannah's journal. Your children have played and continue to play a very important part in Hannah's special walk of life
Journal
Tuesday, March 22, 2011 Phew, its been over a year since I last came here to update
What a year it has been
Hannah has now been diagnosed with Cerebral Palsy ( we have found out she was starved of oxygen at birth )
and on top of that she has now been diagnosed with Juvenile Rheumatoid/Idiopathy Arthritis ( JIA for short )
So lets get started........
Hannah seen here with her other 2 sisters ( Hannah is on the bike ) has to undergo chemotherapy drugs treatment for 2 years so that she is classed as being in "remission" of the arthritis
she will have to have 2 years of no flare ups otherwise its back to day one ( so it could be longer than 2 years )
she will be having weekly injections and then bloods taken every month to check on her liver and kidney functions and also her white blood cells counts and platelets counts so that she is monitored closely as the chemo drugs will suppress her immune system but its the only way to stop the inflammation between the joints
Hannah has steroid injections to start with and they were an instant fix, she went from walking like an old woman to literally running about in one day
they were great!!
So although we have alot of hospital visits ahead, i'll try and keep you updated as to what happens next
and try not to bore you too much with this bit
take care everyone for now
Jo ( Hannah's mommmy )
Read Journal History
Hospital Information: Childrens Hospital Next appointment March 2011
Links: http://www2.caringbridge.org/fl/katia_leukemiapage/ Katia's webpage http://www2.caringbridge.org/ca/daverurka/ Brenda's webpage in memory of her dad She created all the special affects on Hannah's page, thanks Brenda http://www.aldridgeparishchurch.org Our local church website
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