Allison’s Story

Site created on February 3, 2011

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This is my journey as a "fearfully and wonderfully made" girl, living with Mast Cell Activation Syndrome, Ehlers-Danlos Syndrome, Dystonia, and Autonomic Dysfunction. I have allergic type reactions to perfumes, fragrances, lotions, colognes, chemicals, cleaners, food (including the smell), sunshine, extreme heat/cold, altitude change, and much more. I often say I'm "allergic to life"! I have both a G and a J feeding tube to supply my nutrition and drain my stomach and a Hickman line through which I get IV Benadryl pumped continuously into my veins via a CADD pump to keep my severe reactions to a minimum. My life is full of doctor appointments, hospital admissions, procedures, medications, reactions, and pain. Life isn't easy, but I know my Lord is with me each step of the way. I know He has a purpose for this journey and a plan for my life.  I enjoy playing the trumpet, classical & Christmas music, photography, laughing, bright colors, fun socks, and zebra stripes.

"God didn't promise days without pain, laughter without sorrow, or sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way. If God brings you to it, He will bring you through it." {unknown}

Isaiah 26:4 
"Trust ye in the LORD for ever:  for in the LORD JEHOVAH is everlasting strength:"

II Corinthians 12:9
"And he said unto me, My grace is sufficient for thee:  for my strength is made perfect in weakness.  Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
Matthew 11:28
"Come unto me, all ye that labour and are heavy laden, and I will give you rest."
Luke 18:27
"And he said, The things which are impossible with men are possible with God."

Newest Update

Journal entry by Allison Workman

Hi There!
    I'm so sorry for not updating the last few days.  I am still in the hospital, however nearing my goals that have to be met before discharge!  If I'm calculating correctly, today marks day 10 inpatient.  To say I am ready to go home would be an understatement!
My GJ tube was swapped out for just a plain G tube on Saturday and my 6 little laparoscope incisions from J tube surgery are healing up nicely.  I like where they placed this new J tube better than my other J tube because they did it a little lower whereas my previous tube was directly under where my waistband always landed.
The two goals I must reach before discharge are #1. 24hrs without the high powered IV pain medicine and #2. getting my tube feeding to the desired rate.  On my own, I've been pushing the pain med out over 8hrs between doses and today the doctor bumped it to every 12hrs so it'll be there if I need it, but its very spread out because we certainly don't want my body to get hooked on it!  The goal feeding rate is 65ml per hour around the clock and I'm currently at 55ml.  I'm SOOOOOO close!
I'm really hoping to get to go home by Friday....So, I'd appreciate my prayer warriors praying for that goal!  After this long in the hospital, I am REALLY ready to be free and finish recovery at home (and I know Ezra has the very same sentiments as I do!)! :)
Taking Life One Hospital Day (hopefully not too many more!) at a Time...
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