This post is so overdue! I kept forgetting until I had so much to update on that my procrastinitus kicked in and I’ve been putting it off. I do apologize for the delay and I’m going to try to manage to remember everything.
Since my last update I ended up developing several largely swollen lymph nodes in my neck. I went to a spine specialist who said they could definitely come from the whiplash. They did an ultrasound but it ended up being scheduled after the lymph nodes had gone back down. Anyways, the spine specialist referred me for physical therapy to help with the whiplash.
I had my 4-week chiropractic re-evaluation and I have to continue going three times a week for another 4 weeks because even though I’ve had quite a bit of improvement, my neck is still too tight to adjust it at all.
The physical therapist is doing light massage and traction with my neck which seems to really be helping. She’s also doing exercises to help strengthen the muscles that aid the neck muscles. However, I’m not sure if I will continue the exercises due to another problem...
Speaking about the other problem...
I went to my second therapy session on Thursday and Friday morning I woke up with extreme pain wrapping around from my G tube around my rib cage to my back. I was hoping Friday’s chiropractic adjustment would fix it but it didn’t and by last night it became very clear that it’s my G tube that is hurting and started oozing blood. It could be a coincidence and my G tube stoma (hole for tube) is starting to break down or it could be that some of the exercises injured it. I’m going on 2 years since having my G tube re-sited (removed the tube and had a whole new site made) and it’s possible that the stoma is starting to ulcerate and break down causing my G tube to need surgically moved. Only time will tell. I’m in extreme, nearly debilitating pain from my G tube around my left rib cage and it affected my sleep last night. I’m giving it until Monday and if it doesn’t improve, I plan to contact my GI about it. It’s possible that it’s just an injury that’ll heal, it’s just it is the identical feeling of last time when my stoma was going bad. If I end up needing surgery I’ll most likely have to wait a while. I’ve been enduring symptoms of anemia and needing a transfusion for months and I may be in an indescribable amount of pain for an undetermined amount of time with this tube all due to covid restrictions. Trust me, I’m in favor of caution and restrictions to slow the virus spread...I just think there should be room for exceptions for those with diseases like mine who HAVE to have a family member with them. There are treatments I NEED but have no access to because they won’t budge at all to allow me what I need. Yeah...off my soapbox for now...maybe! ;) I would greatly appreciate your prayers that someone in charge will budge and make an exception for me! He’s a God of the impossible, right? Pray big and leave the rest to Him!
On a happier note, my J tube seems to finally be calming down. It still hurts some but I’m actually getting breaks from the pain and discomfort! I’m very glad especially since my G tube has decided to act up!
I was supposed to get a couple more of my teeth temporarily fix last Tuesday, but unfortunately my dentist ended up not being in the office so they rescheduled me for the 28th at 7:00am which means we’ll have to leave the house at 5:30am! That’s gonna be a long day!
Soooo....I don’t like getting involved with controversial subjects but I just have to get this off of my chest.... masks. Please, people, stop constantly complaining about having to wear a mask! I’m sorry...I KNOW they are NOT comfy - I totally understand! You can live and wear a mask! Due to MCAS and everyone’s love for fragrances/chemicals/etc I have worn a mask anytime I am out for the past 8-10 years at least and I’m still alive despite chronic illness! If masks are the worst thing that happens to you in life, that is something to be thankful for! So, hang in there...you’ll make it! ;) (Please, no argumentative comments because stress can make me very physically ill.)
Taking Life as it Comes.... Allison