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May 12-18

This Week

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Ryan had such a good two weeks after his last phase of treatment had ended. In the start of his next phase of treatment (intermittent maintenance 2) the first Chemo treatment went ok, they had lowered his dose of methotrexate because his blood counts were a little low, normal side effects, tired and motivation down. Ok I’m used to that. Well, the second chemo treatment his counts looked good to they went with the original dose of methotrexate again sleepy, energy level low, not eating but this time he got really restless with his sleeping and even had nightmares. A week after that treatment we noticed mouth sores over that first weekend and by Monday his sores were worse and the bleeding wouldn’t stop on his lips. So I called Childrens and they had us head over to the ER in Melrose, while on the road Children’s called me back and decided it would be best to go down to Minneapolis. Thank goodness I had things packed in my car, just in case. Well we got to the ER and blood work was done, only to find out (which we expected) that his blood counts were very low and thus another admission to the 7th floor. So since last Monday May 6th, Ryan and I have been in the hospital again. Daily blood counts done, platelet transfusions every other day, because his numbers have been going to up and down. They did an scan to check his liver, that was all blood flow. A special blood test was sent to a lab outside the hospital and that was all normal. So the only thing they could think of was that the platelets weren’t going to where they needed to go and were staying in all the fluid he was retaining, so they put him on Lasix to drain the extra fluid from his body. Platelets were Ok yesterday but low and behold went down this morning. We’ll see what the Dr. has planned today. On a good note I did get to have a good Mother’s Day because I was with my courageous son and he had smiles all day being his silly self for his mom, his sores looked a lot better and Bobby had brought me a good meal. 

Dear lord please let this turn around, I so want Ryan to get back home. This may sound like a minor issue but I so want my boy to spend some time with his buddies before the last year of elementary is over. 

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