I have not been great at keeping you all updated. Please forgive me! Things are definitely better since the Terrible Nausea has passed… my Beautiful & Honest cousin, Dana, (retired hospice nurse) told me on a visit that she wasn’t try to scare me, but that not eating nor drinking anything is exactly how her hospice patients died.😢 and then that same week my team told me if I didn’t/couldn’t start eating & drinking, they would have to put a tube in my nose to get nutrients/calories in. 😳 it was after those (2) wake up calls that Megan (my sweet niece) brought me some anti nausea gummies & let me tell any doubters, this was a Game Changer!! After about 15 minutes, the smells of food were not causing me to retch, and I started drinking water! Thank you Jesus!
Fast forward a few weeks, and I have put on weight, and am getting stronger everyday! (Some days are still better than others) 😌
Last Monday Dr D informed that I will be admitted on Sept 21 for the next transplant. I will go through radiation this time, (4 days, 2X’s per day) after admittance, as this will be my last opportunity for transplant… (we will be throwing everything at it, or in his words, “going for the gusto”) this will kill any kind of aggressive “host cells” of mine, so that the donor cells are accepted. It will suppress my immune system and that’s ok, because this time it WILL WORK, it WILL ENGRAFT & I WILL BE on my way back to complete Health & Vitality! I claim this in the Mighty name of Jesus!!! 🙌🏼🙌🏼🙌🏼 Dr D also stated that there may be some abnormal cells still hanging around after transplant & I will need to take those immunosuppressants (which were the Worst!!)
So… after we were told that the first attempt failed, I was sick as a dog!🤢 could barely get off the couch, and only did that for bathroom breaks or to escape to our bedroom from the food smells when my family ate. (Mostly caused by the immunosuppressants) 👎🏼
This new donor is a 9/10 match, & of course, the team is keeping an eye out for a 10/10 match that may show up between now & 9/21/24!! But if not, he feels very good about the 9/10 match.
Dr D also explained that after transplant this may take 2 years to get rid of my disease (Myelofibrosis) completely, calling it a “malignancy cancer”…
Presently, I am determined to making everyday count, putting on some weight & getting stronger in anticipation of #2!🙌🏼🙌🏼🙌🏼 I have been getting weekly blood transfusions, and would kindly request prayers for strength & improved oxygenated blood. (Which will help in my breathing & energy levels) 🥰 I can do ALL things through Christ who gives me strength! Philippians 4:13 🙏🏼❤️🙏🏼
My family has been Amazing & continues to support me, and have the patience of Job when it comes to my “lists” of things to get accomplished for Xanders Graduation Celebration (which will be in our home) 👨🎓 So Proud of him & his strong finish this past year! And Giuseppe (along with sweet Megan) who has held down the fort/crushed it, with our Realestate Biz! I am eternally Grateful & Thankful! Also to YOU, our Friends & Family who have CHOSEN to work with us and support us & our Family Biz!! We Love You & Appreciate you!!🥰 Last, but certainly not least, My heart just swells when I think of everything my “God given” Husband has done for me over the course of these past Several months! Never heard him complain, even once… 😇 Thank you Baby!❤️
To EVERYONE who has supported our Family through meals, Gift cards for food, gifts, thoughtful notes, surprise stuff left on our front porch, THANK YOU!! You may never know on this side of Heaven just how Big of an impact you made in our lives. The Positive effect in our Physical, Emotional & Spiritual wellbeing! 🥰 We LOVE you & not sure how I would’ve made it this far without YOU! 😌 Btw, (I am still working on Thank you cards, 5 per day is the goal!) 😉
Blessings from our Fam to yours!
Patti 🙏🏼🌟🙏🏼
