Patti’s Story

Site created on October 23, 2023

So… my story, is actually Our story. ❤️ The story of my family 👨‍👩‍👦‍👦 and how we got to be where we are today. There is a post in here from October 25th giving many details, “my backstory”, so I won’t bore you with repeating the same thing here. Let me just tell you that I am fighting a fight, that I am sure to win, because God is on my side! 🙏🏼Whatever the outcome, it will be a Win 🌟 because God will see that He brings Good from any bad that the enemy plots against me. 🥰 This I know to be Fact!  He has shown me Mercy & Grace all of my Life. 💖 My Biggest Prayer is to be used as His Salt & Light here on Earth while I still possess the Gift of Life🌟💖🌟 

Newest Update

Journal entry by Patricia Accardi-Baum

Good evening Family & Friends! Just a quick update to catch you up- yes, I was very weak & River (my pup) made me accidently send,  I am at Cancer care clinic presently (4/26 @ 5pm) getting blood, fluids, & Magnesium. Had an appt with Dr D today, it has been confirmed (speculated last week) that the transplant failed, it did not engraft into my bone marrow.😢 Per my Team, this has only happened a handful of times in the last 20 years.  Dr D stated that it’s mostly likely due to my previous disease, Myelofibrosis, because of the damage it’s done to my bone marrow.

I had a very down week, last week, waiting on this news and very sick with all of the side effects from the MANY drugs they’ve had me on. (The immuno suppresants, etc…)😔 I cried last Wednesday, and felt very defeated. That would be why you haven’t heard from me… & i felt guilty about not having “enough” faith. Well this past week has found me on my knees many days/nights, and God has given me Peace in this storm. Even after the failure of the transplant was confirmed, today, I don’t feel “defeated”, nor did I cry.  So many of you who knew I was going to be seen today have prayed over me- I know that’s where my strength came from!🥰 
Thank you All!!

So next steps… quitting most of All the meds I’ve been on!👏🏼👏🏼👏🏼 Getting my catheter removed, (keeping port for now) and giving my body a rest, & an opportunity to get me strong again! We will be doing this again, & I am HOPEFUL that 2nd time will be successful!! Dr D says at least 3 mths, (I’m hoping for 4-6mths!!) 😌 He also has 2 “non-related” donors that are both 9/10 matches (a primary & a back up) still praying for a 10/10. I just really want to feel “normal” again. To have strength, & energy, & no nausea!!!! ( I cannot be in the same part of our Home when my family eats hot food)🤢 this morning, I just recently regained my thirst- literally had to force myself to drink anything previously. So that’s a HUGE Praise Report!  I would ask my prayer warriors for my appetite to return, for strength & overall “feeling good” to return!! 

I’ll have more to share later, but until
Then, THANK YOU ALL for your continued support, thru Prayers, Meals, “babysitting”, house cleaning, calls/texts, beautiful cards & gifts!!! We Love you ALL, & my entire Family is very Grateful for YOU!!

Blessings, 
Patti & Family
XOXOXO🥰
 
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