Good evening Family & Friends! Just a quick update to catch you up- yes, I was very weak & River (my pup) made me accidently send, I am at Cancer care clinic presently (4/26 @ 5pm) getting blood, fluids, & Magnesium. Had an appt with Dr D today, it has been confirmed (speculated last week) that the transplant failed, it did not engraft into my bone marrow.😢 Per my Team, this has only happened a handful of times in the last 20 years. Dr D stated that it’s mostly likely due to my previous disease, Myelofibrosis, because of the damage it’s done to my bone marrow.
I had a very down week, last week, waiting on this news and very sick with all of the side effects from the MANY drugs they’ve had me on. (The immuno suppresants, etc…)😔 I cried last Wednesday, and felt very defeated. That would be why you haven’t heard from me… & i felt guilty about not having “enough” faith. Well this past week has found me on my knees many days/nights, and God has given me Peace in this storm. Even after the failure of the transplant was confirmed, today, I don’t feel “defeated”, nor did I cry. So many of you who knew I was going to be seen today have prayed over me- I know that’s where my strength came from!🥰
Thank you All!!
So next steps… quitting most of All the meds I’ve been on!👏🏼👏🏼👏🏼 Getting my catheter removed, (keeping port for now) and giving my body a rest, & an opportunity to get me strong again! We will be doing this again, & I am HOPEFUL that 2nd time will be successful!! Dr D says at least 3 mths, (I’m hoping for 4-6mths!!) 😌 He also has 2 “non-related” donors that are both 9/10 matches (a primary & a back up) still praying for a 10/10. I just really want to feel “normal” again. To have strength, & energy, & no nausea!!!! ( I cannot be in the same part of our Home when my family eats hot food)🤢 this morning, I just recently regained my thirst- literally had to force myself to drink anything previously. So that’s a HUGE Praise Report! I would ask my prayer warriors for my appetite to return, for strength & overall “feeling good” to return!!
I’ll have more to share later, but until
Then, THANK YOU ALL for your continued support, thru Prayers, Meals, “babysitting”, house cleaning, calls/texts, beautiful cards & gifts!!! We Love you ALL, & my entire Family is very Grateful for YOU!!
Blessings,
Patti & Family
XOXOXO🥰
