Casey Update

 

Our family just returned from a week long vacation for some much needed family time. We put away any distractions and we just celebrated our family being together and the many blessings we have. Casey would have stayed in the pool all day if I had let him. Feeling grateful does not quite encompass the gratitude we have since this seemed impossible 6 months ago. The boys had the best time and we made many precious family memories. It was an extension of Casey’s birthday since we left the following day. 

 

Casey had his 5th birthday party at a nearby park and he was beaming with excitement to see family and friends. He played and was celebrated and loved by all who came. This year was extra special and every year to follow he will be celebrated for all God has brought him through. He is Mighty Casey. 

 

Casey is excited about elementary school starting in August. He has toured and visited his new school and we know God has placed him at this school for a reason. We feel tremendous support and have had many God winks that he is in the right place. Although I have worries about his return, I know he will thrive. 

 

Vacation was a nice escape from reality. It almost felt as though these last 10 months were a bad nightmare. We are approaching Casey’s next scan and my anxiety has been increasing. I pray daily for Casey’s forever healing and a peace which only God can give. God works in mysterious ways. I was on the phone with a sweet lady whom I had never spoken to before through our medical insurance. After learning Casey’s medical history, she said, “I don’t usually say these things but if you have fear of what is going to happen, it means you are not trusting God.” It was forward but I needed to hear it. God knew I needed to hear it. God has shown us miracle after miracle and we continue to have faith that He has healed our sweet Casey. 

 

I continue to pray for Casey’s hearing to stabilize. He seems to hear well except for when there is background noise. He is excelling academically and his balance and coordination have improved drastically. He is mastering ADLs he had learned to handle independently just prior to diagnosis. We continue to work on his appetite and gradually weaning off his feeding tube. He is eating better meals but still requires encouragement to stay focused. I am proud of him for trying hard and he is at a very healthy weight.

 

It is wonderful to see my boy’s blonde/brown hair come back. It is coming in quickly which is covering most surgical scars. People do not question or ask me about his illness anymore because you cannot tell it was there. God continues to show his healing power and we praise him for it! To God be the glory. 

 

We ask for upcoming prayers for continued clear scans. Faith over fear.