Charlotte continues to grow and develop every day. She’s now over 9 lbs, loves to play, and is starting to coo. Unfortunately, we haven’t been able to make much progress on her respiratory support. She is still requiring high flow oxygen at a level that makes it unsafe for her to eat by mouth. We are hoping to try to wean her again tomorrow and will see how she does. Her lung disease makes her very sensitive to these changes and the only official treatment is growth.  We are hopeful that this wean will be well tolerated. The plan is to make one wean per week until she is on a small amount of oxygen off the wall. Then we need to practice oral feedings again.

It has been a long journey and we can’t wait to take her home when she is safe and ready.