Thanks for visiting our guestbook!This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.If you do not see your entry after adding - please click on reload/refresh
- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. Ha-that's only six months of wear....Linae had an outfit she wore for her 1 year AND 2 year pictures. ROFL! Good thing cuz we paid close to FULL price at Gymboree for it-too cute with "Fish" sign {teary, sniffly} Have a Great week and cooler temps! Short wait for "Final answer is.....?" Wow is THAT weird to write. Hugs to girls! Kelly-Ann <kalars69@yahoo.com> - Wednesday, August 2, 2006 11:51 PM CDT Hi Emma & family! I could relate so much to what you wrote in one of your recent journal entries. I remember the first time I wrote in Lily's journal about some of her not-so- nice neurological/behavioral/sensory issues. I didn't want to make it "official" I guess, but at the same time, those things are just part of who Lily is. I can sympathize with what you are going through. I think that Madi and Natalie need to "talk" sometime. I think that they would have a lot to say to each other about their sisters. They are both so patient with their sisters, despite how hard it can be sometimes. It seems like Lily and Emma have much in common. Lily needs to have a sleep study done, as well. I'm not looking forward to it. Please keep us informed on how it goes. I hope that it isn't too traumatic for her or you. I'm glad to hear that you are all feeling better! I hope y'all have a great week! Hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Wednesday, August 2, 2006 10:22 PM CDT Wow, Emma has grown! My granddaughter Emmi has just made it into the 20th percentile for weight for the first time in her life, after so long when she wasn't even on the charts, so I know how great it is to celebrate growth. I hope you get some sleep tonight. Linda Irving, TX - Wednesday, August 2, 2006 9:01 PM CDT Hello! Wow- you have some busy days ahead. Happy to hear Josh can join in on the fun and I hope you all have a blast doing the back to school shopping! I know the IFSP is no fun- I always cringe when it is time for those but I know it must be done. Wishing the best for a smooth process! Hope Miss Emma can get her sleep study scheduled really soon too! And 28 lbs is absolutely amazing! Miss Morgan is 21 lbs exactly and they are the same age!!! I am really proud of Emma for catching up! Have a great rest of the week. I am pacing the floors with you ;) Love, Leslie Leslie D. Reynolds <leslie@miracleformorgan.org> Atlanta, ga - Wednesday, August 2, 2006 9:47 AM CDT 28lbs WOW way to go. What is your secret? Joseph is still only at 22lbs. You are getting to be such a big girl. We love all the videos that Mommy puts on your site. Joseph has a yucky cold now and he has to use his breathing machine every four hours. His big brother Zachary broke his Wrist so today we go and get the hard cast and get it set { OUCH } We think of you often and pray for you all the time. Oh how I wish that we lived closer. You have a good week and I will check in on you again real soon. Elizabeth <michael_shipley@bellsouth.net> - Wednesday, August 2, 2006 7:37 AM CDT Hello Everyone- So glad to read that everyone is feeling better and that cold is out the door YEAH!!! WOW 28 pounds!!! You go Emma!!! That is so great, keep on gaining sweet girl, you are doing fantastic!!! Its hard to believe that Madi is starting school already. Where did the summer go? Nathan also starts kindergarten in a few weeks, I am already experiencing the butterflies YIKES!!! And finally that is great news to read that Emma is talking more and more, she will catch up in no time, she is one *little tough* and she will get there in no time. I finally had a moment to check out he newest video and OMG is Emma so cute!!! She can really shake it mom LOL!!! Hope you all have a great week and enjoy the family time before school starts and we once again have to *adjust our schedules* ah the life of being a mommy LOL!!!! Have a great day and take care all of you!!!! Tracy <tlgladfelter@comcast.net> - Tuesday, August 1, 2006 10:58 AM CDT HI Miss Emma- Sorry to read that you are not feeling well. Hoping that you are on the road to recovery ASAP!!! Sorry I have not been here in awhile, but we had a NASTY virus and we basically had to wipe out the computer and start over. Hopefully we wont be experiencing any more problems...ah technology!!!!! Anyways praying as always for you all, hope the results come in soon!!! Sending you all only the best thoughts and well wishes. Take care sweet girl!!! Tracy <tlgladfelter@comcast.net> - Friday, July 28, 2006 3:23 PM CDT I hope Miss Emma is feeling better! Wow- what a GREAT dancer!!!! Emma- you are awesome!!! Wishing you all a great weekend!!! Love, Leslie & family Leslie D. Reynolds <leslie@miracleformorgan.org> Atlanta, ga - Friday, July 28, 2006 12:44 AM CDT Sorry to read that you have ALL been sick - that's certainly no fun!!! I also was moved by your journal entry, Lauren. I know that it was not easy for you to write about Emma's behavioral changes, but it is definitely not anything that would change our love and admiration for her and your family! She is a perfect doll, and no matter what happens, she is exactly how God intended her to be. I know that it must be hard to deal with some days, and I don't have any experience with such matters, so I can't give you any advice. But maybe some of her doctors might have some suggestions about possible medications or therapies. Hopefully, as she grows and can communicate better - things will improve. Your doing a great job with both of your girls, Lauren! They are truly a blessing, and you are a wonderful mother to them! You are all in our thoughts and prayers! Hope you have a great weekend! Taylor sends her love!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Thursday, July 27, 2006 7:52 PM CDT OK! So Emma's been busy growing up-practicing those Speech skills! Lauren, your Mom-sucess does come through, what a delight Emma is, if anything the everyday pictures of normal activties just reinforce. You'll have answers soon enough. sigh. {Big Hugs} you can have your heat back now...by the way. Kelly-Ann <kalars69@yahoo.com> - Thursday, July 27, 2006 5:47 PM CDT OMG Lauren...you so could have been writing that behaviour update on my Nicholas. He has taken to having all out screaming fits anywhere and everywhere, aggressive with the dogs/cats and the baby, has ben pulling skin off his lips to the point of drawing a lot of blood and will bite himself hard enough to leave marks when in trouble, he has taken very recently to running off as soon as he is put down, and there is just no rhyme or reason to these fits at all...one min fine, the next min screaming, and then whenever he feels like it, it is over and he is on to the next thing. My heart was in my throat when I read it as I SO understand EVERYTHING you wrote. I also feel your stress of waiting for results...we are there too as you know. I am so sorry time is dragging so much for you to hear something back. Glad that everyone is getting over the bug and has already had it...maybe you are almost illness free now! Hope it stays that way. Good luck getting ready for the "big day"!! Good luck also with the pool if you decide to get it. The boys LOVE theirs!! I definitely want to see pics! Take care...thinking of you all... www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Wednesday, July 26, 2006 11:23 PM CDT I'm sorry to hear about the illnesses. I hope you're soon all on the mend. I hope that some of the other moms out there can help with tips and encouragement on the behavioral changes. You know we all think that Emma is terrific, so knowing this about her won't seem as if you're complaining and certainly won't change our view of her. We've had many instances in our family when strong-willed children or grands prompted stares and sometimes comments from bystanders--who hasn't--but it's tough to handle and especially tough when it's an on-going and life-changing thing. I hope you know that many of those people staring at you might be people like me, wondering if I should go over to give that mom a pat on the arm or a friendly smile or if I should just be quiet and mind my own business, all the while remembering times when we dealt with something similar in public. Some of the seeming censure might be something as simple as that. Sometimes when I turn to look at a screaming child in public, I'm just turning to see if the mom or dad could use some help or has things well in hand. Linda Irving, TX - Wednesday, July 26, 2006 10:37 PM CDT Hi Friends. I know the waiting is torture. We waited 6 months for our 2 muscle biopsy results. I am sorry to hear of the behaviour challenges. Nothing is ever easy with these little ones. People just don't understand. Alison - Andrew' smom www.caringbridge.com/canada/andrewsjourney <boettcher6@shaw.ca> BC Canada - Wednesday, July 26, 2006 10:11 PM CDT We just thought we would pop by and check on you today, and let you know we are thinking about you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, July 26, 2006 0:49 AM CDT Hi Emma! I'm glad that you're having such a great summer! We keep you and your family in our prayers always. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Tuesday, July 25, 2006 3:52 PM CDT Hey Emma and Lauren!!! I'm glad that Emma is doing so good!!! We are always checking in on you guys! Hope that you stay COOL and update again when you can!!! Love and Prayers Always!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Tuesday, July 25, 2006 12:25 AM CDT I hope Emma is doing well these days and managing to stay cool in this relentless heat we're having. Linda Irving, TX - Sunday, July 23, 2006 7:12 AM CDT HI Miss Emma- Just thought I would pop in to see how things were going. Glad to read things are contuining to go great for you all. Hope you are staying cool. It is so HOT here in Chicago, it's even hard to breathe when outside!!! Kiddies are acting like caged animals b/c I dont want them outside for very long, ah well life carries on. Anyways hope things continue to only get better and better for you all. Results should be arriving soon I suspect, hang in there mom, I'm sure you are on pins and needles. Have a great rest of the week. I will continue to check in as always. Hugs to you all. Tracy <tlgladfelter@comcast.net> - Wednesday, July 19, 2006 12:57 AM CDT Hello Princess Emma we just wanted to come by and give you big hugs and kisses. you have a wonderful week. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, July 18, 2006 12:30 AM CDT Emma, You are always in my thoughts and prayers. Prayers and bearhugs Love, Marci The Prayer Bears http://www.freewebs.com/prayerbears Marci Connell <mac093@bellsouth.net> Valdosta, GA USA - Tuesday, July 18, 2006 8:50 AM CDT Hey Emma! So you wanna be a pirate huh? You're gonna be a cute one! With love, Joanne and the Dream Team ~Simply Joanne~ ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW Joanne <joanne173@gmail.com> Singapore, Singapore - Tuesday, July 18, 2006 3:34 AM CDT Hi All, I just wanted to stop by and say HI! I hope you are having a good week. Even though I know Emma and Sky are so similar, it still catches me by surprise sometimes when you write something about Emma and Sky has just recently done something similar. Our two little peas! :o) I can't wait to see what the biopsy results say. I know Sky's Drs. are waiting as well. It is so strange to be so close to a diagnosis, but yet seem so far away. Big "UGS" to Emma from Sky. Tracy (Skylar's Mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Friday, July 14, 2006 12:34 AM CDT I'm so glad that Emma has been well lately. Therapies are enough to keep in a busy schedule, aren't they, without all the visits to the doctor and the worries those bring about? I hope those test results bring news of something that is treatable. Linda Irving, TX - Thursday, July 13, 2006 7:07 AM CDT Howdy! Lauren- I need to write you back- sorry I haven't gotten to that today. I wanted to say hi to our TX friends. I was thinking about y'all today- wishing you would move to Atlanta. I would love it. Lauren- I think we might get into some trouble- haha! I still crack up at the cups- love them!!! So Madi has less than a month left before school- is she excited? Carter keeps telling me he is ready- but he has until Sept 5! But I am ready- except for those early mornings. I hope you all are having a good week. I know you are anxious as you wait and wait. So sorry you must spend your summer this way!!! Talk with you soon! The Reynolds' Gang Leslie D. Reynolds <leslie@miracleformorgan.org> Atlanta, GA - Wednesday, July 12, 2006 4:09 PM CDT HI Miss Emma Just thought I would pop in to see how things are going. Hope you are having a great week. You all continue to be in my daily thoughts and prayers. Hope all is well!!! Take care sweet girl!!! Tracy <tlgladfelter@comcast.net> - Tuesday, July 11, 2006 9:26 PM CDT Emma, hi..stopping in to say Hi and you are in my prayers..I love the new pics..Prayers and Bearhugs Love, Marci The Prayer Bears http://www.freewebs.com/prayerbears Marci Connell <mac093@bellsouth.net> Valdosta, GA Us - Tuesday, July 11, 2006 6:17 PM CDT Hi Emma, I hope you had a great weekend! I love the cup on the hands, very silly! We are keeping you and your family in our prayers! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Sunday, July 9, 2006 7:47 PM CDT Yay on the jumping! WTG Emma! I remember what a big deal that was for Nicholas, so good for you, sweetie! I love the cups, too. How sweet and silly you are! I am glad you had a good time with them! Nathan has his surgery rescheduled for Tues morning, so I thought I would let you know. Hopefully we can do it this time. I will update the site afterwards. Take care and hugs from us! www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Saturday, July 8, 2006 11:44 PM CDT What a beautiful little girl and she's making SO much progress. I hope for her that she can have as fun filled childhood as possible going to school, making friends etc. Even if she always requires supplementary feeds and a some educational help she is on her way to a bright future. Laura Edmonton, AB Canada - Saturday, July 8, 2006 6:56 PM CDT Hello Miss Emma!! Just thought I would pop in to see how things are going? Hope all is well and that you had a wonderful 4th of July celebration. I just love the slide show with your cups, isn't it amazing on the hundreds of dollars we spend on toys and kids are completely satasified with regular household things? I swear give my kids a empty box and they play with it until it falls apart, pots and pans are another hit in our house, oh the music the kids play, I make sure I have plenty of Advil on hand when they dig those out LOL!! Anyways as long as she was having fun is the only thing that counts right???? Anyways hope all is well in your neck of the woods!! Take care sweet girl Tracy <tlgladfelter@comcast.net> - Thursday, July 6, 2006 1:02 PM CDT Hi Emma Hannah the birthday girl has just dropped in to say Hi Those cup pictures were just hilarious, probably cos they reminded us so much of Rebecca she did that with socks on her hands!!! and threw a hissy fit when we tried to get them off too. thanks for sharing those pics and making our day Jo Hannah, Rebecca and Rachel Jo <yarnall@blueyonder.co.uk> England, UK - Wednesday, July 5, 2006 7:10 PM CDT Hi Sweet Emma!!! I just wanted to let you know I'm still coming around daily to see how you are doing and say a little prayer for my cutie friend!!! Love in Jesus, Dorine McNary Williston, ND - Wednesday, July 5, 2006 1:41 PM CDT Hey Emma! Those cups are too cute! Looks like chicken little ones! lol... You're adorable. With love, Joanne and the Dream Team ~Simply Joanne~ ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW Joanne <joanne173@gmail.com> Singapore, Singapore - Wednesday, July 5, 2006 3:36 AM CDT Ok- too funny with the cups! Crack me up!!! Hey- whatever it takes to make our little girls happy, right? Hope your 4th was great. Great to hear Madi and Mommy had some time. I didn't know the grandparents were Honey and Pops- some of our friends are Honey and Pops too but they spell honey like Hunny. Chat with you soon. Hang in there- I know you are going NUTS waiting on the results. I know I thought about it daily and my opinions on what the results would be changed every 5 minutes. Love, Leslie & Family Leslie Reynolds <rey7@bellsouth.net> atlanta, ga - Wednesday, July 5, 2006 0:03 AM CDT HEY LAUREN AND EMMA! I hope that you all had a great 4th of July!!! I love the cups! That's hilarious!!! I'm so glad to hear that Emma is doing well. She is such a cutie-patootie!!! Have you heard anything from Atlanta yet? Leslie said you got a small report from them shortly after you got back home, but I told her that probably wasn't the final results. We got a small summary of the tests that he would be running and his overall consensus of Taylor's medical records and examination, soon after we got back from Atlanta, too, but the final report was 40-pages long, with pictures of her biopsy slides and everything!!! Believe me, you will know when you get it! I definitely know how hard it is to wait! We got our results exactly 12 weeks after Taylor's biopsy! Now I am stalking the mailman again, for the results of her mitochondrial DNA sequencing that they did to see if she inherited the disease through her maternal DNA (me! - I could have this disease, too!). We are in the 2nd month of the 3 month wait!!! So I can relate!!! Well, I better go for now! I hope you all have a wonderful week!!! TAY-TAY SENDS EMMA BIG HUGS AND KISSES!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Tuesday, July 4, 2006 11:28 PM CDT We are thinking of you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Tuesday, July 4, 2006 11:24 PM CDT I love those cups ! She's such a ham :) Her personality just beams through the pictures and videos . Thanks for giving us a glimpse of this princess . Eli & Fletcher Michele W-S, NC - Tuesday, July 4, 2006 10:03 PM CDT We love you all!!!!! www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Monday, July 3, 2006 10:37 PM CDT Gotta love those *cups*. Hey whatever makes them happy right mom LOL!!! I love looking at the slide show, Emma is sure getting big and is looking more and more like her big sister everyday!!!. Hope all is well and Madi had a fantastic game yesterday!! GO MADI!!!! Hope you all have a great 4th of July and more importantly a safe one!!! Take care, hope all is well, sending tons of *hugs* your way!!! Tracy <tlgladfelter@comcast.net> - Monday, July 3, 2006 1:20 PM CDT Oh, wow, Emma is definitely two now, isn't she! I remember the trauma my oldest daughter exhibited when she was two and I poured her juice into the wrong color glass or cut her sandwich into the wrong shape! Congratulations, Emma, on developing just as a two-year-old is supposed to develop. Linda Irving, TX - Sunday, July 2, 2006 8:48 PM CDT Hello Texans! ha! I hope you all are having a nice weekend and ready for the 4th. The pictures are SO cute! I love the face paint designs- tell Madi her dolphin is awesome! Did she even want to wash her face?! Congrats to Emma on her jumping- way to go! Sounds like you all have been busy but got some good info. Yes, yes- I know! I need a beach trip but for the MOMS! How fun would that be?! One day!!! Have a great weekend. Keep me posted on any ATL stuff- I know you will. Leslie & Family Leslie Reynolds <rey7@bellsouth.net> atlanta, ga - Saturday, July 1, 2006 5:53 PM CDT Hi Emma! Congrats on the jumping!! That's a big accomplishment! I'm glad that you are feeling better now and that your speech is progressing well. I hope that Madi has lots of fun at her first soccer game. Have a great 4th of July holiday! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Friday, June 30, 2006 11:14 PM CDT YAAAY! Great news on the jumping! You are growing up so fast! Have a great 4th! ~Tabitha's Page~ Karen & Tabby <karenpuddn@comcast.net> - Friday, June 30, 2006 4:09 PM CDT Hi Emma, Great job on the jumping!!!!!!!! You are sooooooo awesome! We are really proud of you. Keep up all that great work! Kari has jumped a few times, but she is still working on it. I am having gome icky surgery tomorrow and I will not be by for a bit (I think). I just wanted you to know that you all will be in my thoughts and prayers. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Thursday, June 29, 2006 7:52 PM CDT WAY TO GO EMMA!!!! That is such great news!! Keep on jumping sweet girl!!! Glad to hear that her boo-boo on her tummy is almost gone, another piece of great news!!! And congrats to Madi on her first soccer game- WAY TO GO!!! Love the new pictures from the mall, the face paintings were great, thanks for sharing. I am glad to read that you all got a lot of information, that is always a bonus. Hoping things continue to go well at your end. You all, as always continue to be in my daily thoughts and prayers and I as always send you good thoughts and well wishes. WAY TO GO AGAIN MISS EMMA-WHAT A BIG GIRL YOU ARE!!!! Tracy <tlgladfelter@comcast.net> - Thursday, June 29, 2006 11:15 AM CDT Hi Emma! Yay for jumping!!! With love, Joanne and the Dream Team ~Simply Joanne~ ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW Joanne <joanne173@gmail.com> Singapore, Singapore - Thursday, June 29, 2006 3:51 AM CDT YIPPEE!!! I'm so proud of you, Emma. I'm so glad that you were able to get a network of resources. Tell Miss Madison we wish her luck in her first soccer game. MIss you. I love the newest pictures. Love, CArla carla <cooch67@comcast.net> - Wednesday, June 28, 2006 8:23 PM CDT Yeah! Jumping! It's great that Emma's making progress with her speech, too. I hope Madi has fun with her new team sport, too. Linda Irving, TX - Wednesday, June 28, 2006 7:33 PM CDT It sounds like Emma is turning into quite the little jabberbox. I agree, they just have so much to say and just can't seem to get it out. Patrick doesn't speak words, but he says it all with his eyes. Good luck with soccer Madi, I hope you have lots of fun! Take care, Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Wednesday, June 28, 2006 10:35 AM CDT Hi there Markham Family..... We are just coming by to say hello. We loved your last entry that you left in Joseph's book. Give those girls big hugs from us here in Florida www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, June 27, 2006 9:44 PM CDT Hi there Markham Family..... We are just coming by to say hello. We loved your last entry that you left in Joseph's book. Give those girls big hugs from us here in Florida www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, June 27, 2006 9:44 PM CDT Hi Emma, Just stopping by to remind you and your family that with determination & a smile anthing can be achieved, so KEEP SMILING! Love Karen www.caringbridge.org/visit/mouse05 karen - Monday, June 26, 2006 5:46 PM CDT Hi Emma, We LOVED the loaded wagon pictures! What a sweet and generous thing to do. You are all very thoughful folks! I hope you had a great weekend. We went to a special day for kids with special needs or life threatening issues at an amusement park on Friday. It was so fun. Free admission for ALL 7 of us. It was just for military families. Kari got to meet DORA!!!!!!!!! I hope things are going great for sweet Emma! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Sunday, June 25, 2006 9:21 PM CDT Hi Emma! I'm glad that your tummy is getting better! I know your family is glad to have you getting back to normal. We just signed Lily's older sister, Natalie, up for soccer too! We also wanted her to have something special just for her. I hope that Madi enjoys soccer and that you enjoy cheering for her! Have a great weekend! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Saturday, June 24, 2006 10:22 AM CDT Thinking of you all. Wishing you a great weekend. Hope the infection is clearing up and things are going well. Take care Tracy <tlgladfelter@comcast.net> - Saturday, June 24, 2006 10:06 AM CDT hey girls, thanks for being so great about signing alyssa's guestbook. I love to get those from you and blue. LOL I am glad that your infection is gone. Your website is so interactive, lauren you got to teach me how to do all that fun jazz. LOL Take care guys, I promise I'll check in more often. :) Shannon & Alyssa 4 RS www.caringbridge.org/ks/alyssadarrah shannon <shaystoiber@sbcglobal.net > leawood , KS usa - Friday, June 23, 2006 11:15 PM CDT Hey There Markham FAmily, I just wanted to leave you note that I was thinking of you today. I hope Emma's infection clears up very soon.The pictures are very cute. HAve a blessed weekend. Love, Theresa Pope www.caringbridge.org/ca/rhyanpope Theresa Pope <mtpope@sbcglobal.net> Clovis, CA - Friday, June 23, 2006 12:16 AM CDT Hi Miss Emma- Thrilled to read that your tummy is getting better that is such great news!!!! Hope it clears itself up real fast and does not come back!!! Way to go Madi for joining the soccer team, I am sure you are going to have a blast. Cant wait to see pictures of your first game. Be sure to score lots of goals with that pink soccer ball!!! Hope all is well and things continue to only get better everyday. Saying prayers for your family as always. Hugs to you all. Have a great day!! Tracy <tlgladfelter@comcast.net> - Friday, June 23, 2006 10:49 AM CDT Thanks for sharing the pictures from the hospital. Emma sure looks proud as she should be. It was a great idea and we were so happy to support it. I miss you and the girls - we had so much fun together. Sorry to hear about the staph infection - we hope it gets cleared up in no time. Great news about therapy though!! Miss you !! Love you! Aunt Teenie, Uncle Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Wednesday, June 21, 2006 5:30 PM CDT HI MISS EMMA!!!! Poor sweet girl, I sure hope and pray that the staph infection goes away very quickly...saying extra extra prayers for you sweet girl!!! WOW!!! I cant believe you got SO MANY goodies for the hospital. That is so awesome!!! The look on Emma's face is just priceless. It looks like she had an absolute blast. The new slide show is really great, I just love to see that smiling face. I of course was crying tears of happiness reading on how well her therpies are going. I am so proud of Emma, she is definately showing *them* what in deed a *Little Tough* she really is. WAY TO GO EMMA!!!! Always thinking of you guys and always sending good thoughts and well wishes your way. Thanks so much for sharing the pictures of the hospital trip, and count me in next year for another donation!!!! Take care sweet Emma and get better soon!!! Hugs to you all!!! Tracy Gladfelter <tlgladfelter@comcast.net> - Wednesday, June 21, 2006 9:56 AM CDT Dear Emma, I pray that infection goes away soon and doesn't come back!!! Your journal entry was so fun to read, it is such a blessing to see how you and your family were able to give to the hospital!! God has great plans for you!! Love and prayers, Dorine McNary Williston, ND - Wednesday, June 21, 2006 7:07 AM CDT Congratulations on all the good work you did for the hospital. I hope Emma's infection is soon cleared. Linda Irving, TX - Wednesday, June 21, 2006 6:33 AM CDT I LOVE the pictures and the slide show! Cute font too- ;) Looks like a GREAT success! I am so proud of all you did- I know the hospital loves everything. Way to go Emma- no more PT! Yeah! Sorry to hear about the infection- ugh! Have a great Wednesday- climb on into the fridge and stay cool! Leslie & Family Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, June 20, 2006 11:18 PM CDT Just coming by to say hello. Give those beautiful girls kisses from us. I will check in again real soon for an update. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, June 20, 2006 8:05 AM CDT I hope all is well. Linda Irving, TX - Monday, June 19, 2006 1:29 PM CDT Just wanted to let you all know that I am thinking about you. Hope everything is going well. We are baking in the heat and humidity here in Chicago-YUCK!! I can handle the heat its the humidity that stinks!!! Anyways just wanted you all to know that I was/am thinking about you. Have a great day Take care everyone Tracy <tlgladfelter@comcast.net> - Monday, June 19, 2006 9:44 AM CDT Just popping by to say hello - glad all is well, and happy to hear that everyone is doing well! xoxoxo jess <jessicav@gmail.com> - Sunday, June 18, 2006 10:20 PM CDT Hey Miss Emma-I had so much fun w/you, your mommy and big sis (daddy too). I told Michael and Joseph all about the fun I had in Dallas. Glad the endo went well. Hope we can get you to drink/eat more. Keep smiling, happy girl. Love, Aunt CArla carla <cooch67@comcast.net> - Saturday, June 17, 2006 7:54 PM CDT The weekend sounds like a lot of fun, it's always great to get to escape once in awhile at least for a little bit. Something I probably need to do more often. We always go into appts hoping for easy/treatable answers but usually hear the same kinds of things. Something's wrong but we're not sure what. I hope they can find something to make Emma hungry and want to eat more. Will's right back to where he was before will only eat noodles and nothing else, so we are going to have to talk with his drs again. Hope you have a wonderfull weekend and that it doesn't get too hot. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, Co USA - Saturday, June 17, 2006 7:59 AM CDT Glad things went well with the scope and therapy! YEAH! Thx for the message and the info/ I will definitely look into that. Take care and have a great weekend! www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Friday, June 16, 2006 2:07 PM CDT I hope you have a great weekend. Linda Irving, TX - Friday, June 16, 2006 7:42 AM CDT Hi Emma, Do you have lots of sunshine to play in? We live in Oregon. Today was sunny, but only after 4 days of clouds and rain! I will continue to pray for you and your family. Stephanie and RachelJoy <mom2rj@comcast.net> - Thursday, June 15, 2006 11:34 PM CDT Just wanted to pop in to let you know that I am thinking about you all and I hope you had a great day. Keeping you all in my daily thoughts and prayers. Take care sweet Emma!!!! Tracy <tlgladfelter@comcast.net> - Wednesday, June 14, 2006 6:30 PM CDT Hi Emma! I'm glad that they didn't find any infections, but I sure pray that you'll be able to eat better really soon! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Wednesday, June 14, 2006 2:26 AM CDT Just dropping by to say hello! Hope you are having a great week! Tabby sends you lots of hugs! ~Tabitha's Page~ Karen & Tabby <karenpuddn@comcast.net> - Tuesday, June 13, 2006 9:10 PM CDT I'm so glad that you had that weekend with your siblings, and that your mother did so well with her cath. It's always great to see a therapy session go so well with your little one, too, isn't it? I am sorry that Emma's test did not turn up the easily treatable solution, but instead just bring up more questions. I know you must be even more anxious for that diagnosis. How I hope and pray that diagnosis delivers the easily treatable solution! Linda Irving, TX - Tuesday, June 13, 2006 5:56 AM CDT Just checking in...busy few weeks ahead so send a broacast when results are in. Prayers for your Mom. Dang if Emma and Linae aren't on similar paths again - her articulation is gone to {who know's where} losta babble few clear words...seems familiar as when she was first learning. Ok Closing the novel I wrote....:-) Kelly-Ann <kalars69@yahoo.com> - Monday, June 12, 2006 11:43 PM CDT Hi Everyone!!! Sure hope Emma picks up with her eating and drinking, I know it must be frustrating but she will in *Emma time*. So thrilled you had a wonderful weekend with your sisters, I am sure a long over do *hang out session*, glad you were able to get away and enjoy yourself. Also thrilled to read that Miss Emma is turning into a social butterfly, that is so great!!! Glad to read that her therpies are going so well of course too!!! You all continue to be in my daily thoughts and prayers and I am sending you the best thoughts and well wishes. Hope you have a blast when it comes time to bring all the goodies to the hospital, I am so thankful I was able to help!!! Hope all is well Take care everyone So glad to hear that your moms proceedure went smoothly, praying that the change in meds helps with the chest pains and she will no longer need to make adjustments or have any more proceedures!!! Tracy <tlgladfelter@comcast.net> - Monday, June 12, 2006 7:50 PM CDT Wow, you all have been busy! We are keeping you all in our thoughts and prayers. Hope you are having a great weekend! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Sunday, June 11, 2006 10:50 AM CDT Hi Miss Emma Just stopping by to wish you a great and fun filled weekend. Hope all is well. Take care!!! Tracy <tlgladfelter@comcast.net> - Saturday, June 10, 2006 6:51 PM CDT Just coming by to say that we love you all!!!!!! www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, June 7, 2006 10:50 PM CDT RachelJoy continues her recovery here at home. Each day, she bounces back a little bit more. I am praying that your family is also enjoying a blessed week. Stephanie and RachelJoy <mom2rj@comcast.net> - Wednesday, June 7, 2006 6:29 PM CDT HI everyone- Wow what a bunch of great news!!! I am so happy to read this, you all definately deserve to hear positive things, praying that the trend continues for a long long time!!! Just thought I would pop in to say *hello* and let you all know that I am thinking about you. Hope you are having a great day!!! Tracy <tlgladfelter@comcast.net> - Wednesday, June 7, 2006 4:33 PM CDT Hi Emma, Another batch of great news!!!!!!!! Please know that we are praying for you an your entire family. We LOVE you! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Wednesday, June 7, 2006 4:05 PM CDT HI! Here is a big shout out to Texas- :) I'm so happy to read all the GREAT news! I love reading great reports. Way to go Emma on your goals and yeah for Madison's "no big deal" news! Carter just loves watching the Curious George video and I like watching the musician- ;) We are so happy for you all. Can't wait to see you again. Love, Leslie & Family Leslie Reynolds <rey7@bellsouth.net> atlanta, ga - Wednesday, June 7, 2006 10:31 AM CDT Congratulations on Emma's progress and Madi's results! I hope your mother's test turns out just as well. Linda Irving, TX - Wednesday, June 7, 2006 6:37 AM CDT Emma we are so proud of you!!!!!! I am so sorry that we have not been around alot much lately. We have been so busy with Dr appointments and Joseph's seizures I have had no free time. You are always close to my heart and I promise to come by more often. You have a wonderful week and I will check in again real soon. You give Madi kisses from us and let her know that she to is in my prayers. Have a wonderful week. Elizabeth <michael_shipley@bellsouth.net> - Tuesday, June 6, 2006 2:34 PM CDT WAY TO GO EMMA!!!!!! I am so excited for you mom, how great is that!!! I too am so proud of her!! Before you know it she will be talking up a storm...such GREAT NEWS!!!! Hope all is well by you, we are finally getting some warm weather so the kids have been enjoying the outdoors!!! I hope Madi's appointment goes well, I to think about her and keep her in my thoughts and prayers. Sending you all only the best thougths and well wishes. WAY TO GO EMMA!!!!!!!!!!! Tracy <tlgladfelter@comcast.net> - Monday, June 5, 2006 4:55 PM CDT YAY EMMA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! That is just so awesome! I love to watch the videos. If Emma had curly hair, she and Kari could be twins!!! They really do look alike. 2 cute little girls. Kari FINALLY starts speech on Wednesday. I am so excited. The only word that she says is nooooooooooooooooooooooo. Have fun with your sisters. We love you!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Monday, June 5, 2006 3:31 PM CDT Congratulations on Emma's success during speech therapy today! Linda Irving, TX - Monday, June 5, 2006 2:59 PM CDT Wow, you certainly have every reason to feel as if you're running on vegetable oil with your batteries all depleted. I hope you were able to accomplish some of those fun activities today and more tomorrow as you go forward with your plan to enjoy this weekend. My thoughts and prayers are with all of you, including Madi as you seek answers for her, too. Linda Irving, TX - Saturday, June 3, 2006 10:18 PM CDT Hi Emma and family! I'm glad that your trip to Atlanta went so well. I hope that y'all get some answers soon. I understand the confusing feelings that you're going through while waiting for her dx. I hope that Emma gets over her cold very soon. Have a GREAT weekend! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Friday, June 2, 2006 10:46 AM CDT Thinking of you today. I am so glad to hear the the trip went pretty well... God Bless Ann "Angel Eli's Mommy" <akurtz1974@msn.com> Brighton, co usa - Friday, June 2, 2006 10:34 AM CDT Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Friday, June 2, 2006 10:07 AM CDT HI Miss Emma- First of all welcome home!!! So glad you are all home safe and sound. The new pictures of Emma during her Atlanta trip are so incrediably cute, and from the sounds of it, she did wonderfully, which just rocks!!!! As for the waiting game...well I hope time goes by quickly, sometime it does and well sometimes a day feels like a week, hang in there, the time will come before you know it!!! Sorry to hear that Emma is not feeling well. Praying that it is nothing serious and that she is feeling better lickedy split!!! Also praying for your mom. I am sorry to hear that she did not get good news. Hope all is well at your end, things here are pretty much the same. Nathan is out of school, and is bored out of his mind...definately looking into some summer activities for him. Emma is good, going through those terrible two's *WHAT FUN*. Sending you all only the best thoughts and well wishes. Take care sweet girl Tracy <tlgladfelter@comcast.net> - Wednesday, May 31, 2006 9:15 PM CDT Lauren, Ok- first let me say- the pictures are SO cute! I guess I am kind of partial b/c the sunflower and Blues' ears are so cute- ;) Emma is a ham! I love seeing all of her pictures!!! I will get some snaps of Morgan with her pink poodle and Carter with his dinosaur- a BIG hit! I'm so sorry to hear about your mom- whew- y'all are really going through a TON! I'm so sorry. I will pray for strength and patience. I remember doing the same thing with the biopsy- thinking, oh, it's been one week, now two, etc... for me, it really went much quicker than I thought. I know- I remember just wanting an answer. I must say, I like having an answer though it really is a bad one! But you know, you just take it day by day and go on. If you ever want to talk or vent or whatever- I'm here! Next time you are in Atlanta- maybe we can go grab Mexican? You might not want that being from TX and all- but maybe?! Tell your family hello from us! Love, Leslie & Family Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, May 30, 2006 9:59 PM CDT Ha Emma Just dropped in to say hi sweetie take care luv Fiona and Jordan fiona <hunterbrittnee@hotmail.com> brisbane, qld aust - Tuesday, May 30, 2006 9:13 PM CDT I'm sorry to hear about your mom and hope she gets good news when she has her further tests. You must be feeling overwhelmed and that long wait for Emma's results can't be helping. It can't be fun to be twiddling your thumbs, waiting for results. It's great that Emma managed the trip and the various insults to her senses with such aplomb, though. From your descriptions of her and especially from her photos, I get the sense of such a delightful young child, and I hope she's soon over that cold and back to her delightful self. Linda Irving, TX - Tuesday, May 30, 2006 8:35 PM CDT Hi Markhams! I hope y'all are having a great, hot weekend in TX! I was just online to update our site and wanted to come by and say hello. I hope you are getting some rest and Emma is feeling better! How is her incision healing? Buford says hi- LOL! Talk with you soon! Love, Leslie Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Sunday, May 28, 2006 10:49 PM CDT Hi Sweetie!! I hope you are feeling better. And that your family has a wonderful Memorial Day!! My love and prayers are with you, Dorine McNary Williston, ND - Sunday, May 28, 2006 8:46 PM CDT I bet Emma is glad to be home, and I hope all of your are enjoying this Memorial weekend. Linda Irving, TX - Sunday, May 28, 2006 4:21 PM CDT We are thinking about you guys. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Sunday, May 28, 2006 12:06 AM CDT Hi Emma, I found your website in Kari's guestbook and stoped by to read your story. You are an inspiration to me. I'll come back soon. karen www.caringbridge.org/visit/mouse05 Australia - Sunday, May 28, 2006 0:01 AM CDT The Prayer Bears Hailee glad you all made it home safe and sound melissa <angels4hailee@cox.net> cavecreek, az usa - Saturday, May 27, 2006 10:08 PM CDT Hi Emma! It's been awhile since we have been by to see you! Boy, you sure have grown alot! Tabby sends you hugs and a great weekend! ~Tabitha's Page~ Karen & Tabby <karenpuddn@comcast.net> - Saturday, May 27, 2006 2:31 PM CDT Hello, I hope you are having a happy and relaxing Memorial Day weekend! Lysosomal Storage Disorder Forum Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, May 27, 2006 10:44 AM CDT Alex is just stopping by to say that we are praying for you! Hope you have a great Memorial Day Weekend! Love, The Prayer Bears Website MaryBeth <attnymb@aol.com> - Saturday, May 27, 2006 7:51 AM CDT Hey Emma and Lauren! Just wanted to say "Hi"! I've been thinking about you guys all week and have been checking your updates everyday. I'm so glad that Emma's Biopsy went well, and that you liked Dr. Shoffner - I told you that you would!!! :0) I hope your hotel stay was okay. You know you're always afraid when you recommend something to someone else that they won't have the same experience that you did! I'm glad that you are back home now, and I pray that Emma's URI gets better soon! I hope your family has a wonderful Memorial Day Weekend! Get some rest and enjoy each moment!!! Taylor sends Emma her love!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Saturday, May 27, 2006 0:39 AM CDT Boy, I think we are going to be needing to email you soon! Looks like we may be heading down the same dx path as you are right now. We went to the neuro today and it is all in the boys' site. I am glad the trip and the biopsy went well. I hope it yields some helpful information for you one way or the other. Take care and rest up. I will be looking forward to reading more about the trip and seeing that little sweetie in the pics! Hugs... www3,caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Friday, May 26, 2006 11:29 PM CDT Hey Lauren! I'm so happy you made it home! I know you will all sleep great tonight! Nothing like a nice shower at home and then sleeping in your own bed! I'm sure Madison was so excited to see you all! Get some rest- we will talk soon. Morgan sends Emma a kiss for her booboo! Leslie Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Friday, May 26, 2006 7:52 PM CDT Hi, I am so glad everything went well and you will be heading back home today. You are always in my thoughts and prayers. Now, we just need to pray that an answer comes out of all of this. Great big ((((UGS)))) from Skylar and myself. God Bless, Tracy (Skylar's mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Friday, May 26, 2006 9:51 AM CDT {{Wiping tears}} Not sure why I'm crying-ALL great news for Miss Emma; plane ride, Dr. Shoffner, information so far recieved, hospital (except scare with O2) and Boo-boo is done! Atlast to have hope for some real answers. Send tissues. Kelly-Ann <kalars69@yahoo.com> - Thursday, May 25, 2006 11:07 PM CDT So glad to hear the tests are done with! I know Emma will be happy to go home and see Madi. We've been thinking of all of you. This Dr sounds like he'll have some answers to help our sweet Emma. Get some rest and we'll talk over the weekend. Miss you! Love,Carla carla <cooch67@comcast.net> - Thursday, May 25, 2006 10:42 PM CDT Lauren- I'm glad you got my message today- sorry I couldn't come over there! I knew CHOA and you would not want me in post-op with two sick kids. I'm happy Emma didn't have to be admitted and you are going HOME! Yeah! I know you can't wait to squeeze and hug Madison! I hope Emma is feeling better in the morning too. I know you now wait for the results- for me, it actually went really quickly. It was 10 weeks exactly. The office called us a few weeks after the biopsy to set up the appointment for May. So I would guess you will be back here in late July or early August- perfect! Just in time for prime heat time! ha! Call me this weekend. Again- sorry I couldn't bring the kids over there. I think Morgan has an UTI... we will see. Loved meeting you both! Lauren- I hope you read that book soon. Love, Leslie & Morgan: Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Thursday, May 25, 2006 10:24 PM CDT Emma I am so happy that you finally got those tests done with. Honey we love you and think about you all the time. I hope that the Doc's can give your mommy and Daddy some answers that they have been looking for. Keep an eye on the mail. Joseph and I finally got your Bday card out. We love all of you have a wonderful weekend. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, May 25, 2006 9:34 PM CDT HI Miss Emma- I am so glad to read that the testing is OVER and that you did so well!!! You are such the trooper "Little Tough". Hoping that you all get much needed rest and that you all have a safe flight home tomorrow. Hope the cough and congestion goes away fast too. I have thought about so you much today, and I kept asking God to keep watch over you!!! Hope you all have a peaceful night and are able to relax before the trip home tomorrow. Take care sweet girl, I am so proud of you!!!! Tracy <tlgladfelter@comcast.net> - Thursday, May 25, 2006 6:10 PM CDT Hi Emma, You will most definately be in our thoughts and prayers today! You are so tough!!! Glad you had a super party! We LOVE you!!!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Thursday, May 25, 2006 8:21 AM CDT Hi Emma, You will most definately be in our thoughts and prayers today! You are so tough!!! Glad you had a super party! We LOVE you!!!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Thursday, May 25, 2006 8:21 AM CDT I just wanted to stop in and wish ya'll good luck with the biopsy tomorrow. I'm sure things will go fine :) I guess you are as crazy about American Idol and the Texas Longhorns as we are :)When Meaghan was about 2 she would hold up her hands,in the Longhorn sign and say "Cook em horns" It was adorable ! Anyway,,,e-mail me when you get a chance,,,,are y'all still planning on going to Houston ? We have our appt,on June 12th. Talk to you later. www.caringbridge.org/visit/loganandethansmith Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Mitochondrial myopathy Complex II and IV, Autism,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD,neuromuscular scoliosis and mitochondrial myopathy <berlydawn4kids@yahoo.com> Denton, Tx USA - Thursday, May 25, 2006 2:10 AM CDT I wanted to stop by and say that I was thinking about you and Emma tonight. I hope that Emma does well with the scheduled procedures. Linda Irving, TX - Wednesday, May 24, 2006 10:11 PM CDT Thinking of you all and praying that tomorrow's proceedures go smoothly. You are in my most deepest thoughts and prayers. Stay strong and as sweet as you are Emma!!! Tracy and Emma <tlgladfelter@comcast.net> - Wednesday, May 24, 2006 11:59 AM CDT Thinking of you. Mandy (Angels on Earth) mamatooryan - Wednesday, May 24, 2006 10:49 AM CDT Thinking of you all tonight. Hope everything goes well in Atlanta. Tina & Lance <lancejrmommy@comcast.net> - Tuesday, May 23, 2006 7:30 PM CDT Hi Emma- I know that you have already left for Atlanta, but I just wanted to wish you the very best of luck on your upcoming tests. I have been thinking about you all like crazy and I am praying so very hard that all your questions will be answered. Hope you had a safe flight and I will continue to check in for updates. BEST OF LUCK SWEET GIRL!!!! Tracy and Emma <tlgladfelter@comcast.net> - Tuesday, May 23, 2006 3:23 PM CDT HI, Well, I wanted to wish you the best of luck with your trip. Sky had appts yesterday, and one was with the GI. I told him about Emma and how similar the two of them are, and he is very interested in the results of the biopsy. He also agrees that it is time for Sklar's too. He is very informed about Mito and is now leaning in that direction for Sky also. He also said that some Drs. are going to be wanting our girls' DNA before this is all over (since they are so different from other children, and he has never seen a child like this before, and they would make a good study project). Also, Sky signs "Love you" as well, and says "UHG" for HUG. It gives me chills sometimes thinking how similar they are. You are in my prayers and I look forward to knowing the results. Even if we don't get results from the biopsies, maybe it can point us in a new direction. Big "UHGS" from Sky and myself, Tracy (Skylar's mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Tuesday, May 23, 2006 9:46 AM CDT Good luck on the flight this morning and with all the tests. Linda Irving, TX - Tuesday, May 23, 2006 6:30 AM CDT Wishing you safe (quiet) travels and answers! Be sure to hit The Varsity (for onion rings! I hear hot dogs are good, too), (Chick-Fil-A with sweet tea for me) & Children's Museum-very open interactive for all abilities! Update when you can! Kelly-Ann <kalars69@yahoo.com> - Monday, May 22, 2006 11:40 PM CDT Love and prayers for my precious friends in Christ!!! Dorine McNary Williston, ND - Monday, May 22, 2006 8:13 PM CDT HI Emm Just thought I would pop in on this Monday morning. I thought about you this weekens, as Nathan was at a birthday party. I sure hope you had a great party and got spoiled rotten LOL!! I also wanted to begin my "GOOD LUCK'S" now as you are getting ready to leave for Alanta. I know I have butterflies in my stomach, I can only imagine what your mommy and daddy are feeling. I will be sending you some E cards, hope you enjoy them. Also I wanted to tell your mommy that I love your new video, it of course is so cute and my Emma loves to sit on my lap and watch you be so silly LOL!! Anyways sweet girl, I hope you have a great day and are playing with all your birthday toys. I'm off to give you lots of *HUGS* to take with you to Alanta. Stay as sweet as you already are baby girl. Tracy <tlgladfelter@comcast.net> - Monday, May 22, 2006 9:26 AM CDT Hi Emma & family! I'm so glad that the swallow-study went so well and that things are looking better in that regard. I hope that Madi feels better soon, too! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Sunday, May 21, 2006 10:43 PM CDT That's great news about the swallow study! When my granddaughter Emmi still lived here in the Dallas area, I often wished we could get her and Emma together for the same reason you mentioned--because their skills would be more in line with each other than with other just-turned-two-year-old's. I'm glad that Emma got to pal around with Emmy for a while. I'm also glad that Madison's screens are coming back with such good news so far. I was hospitalized when I was about her age for unexplained fevers, too, and I hope that Madison's results all come back as benign as mine did. Someone brought me one of those little box-shaped purses that were popular way back then, chock full of candy, as a present while I was hospitalized. I've forgotten all the tests they ran, but still remember the candy. Smile. Linda Irving, TX - Sunday, May 21, 2006 10:22 PM CDT Hey Emma and Lauren! I'm so glad that Emma met a new friend - How sweet is that? Thanks for sharing - it really warms your heart!!! I'm so happy for you all about Emma's and Madison's test results! Way to go, Emma, on that swallowing!!! And Madison, I hope they find out why you run those fevers, but at least there is good news so far. I hope you all have a great week, and you know I will be thinking about you and praying for you - as you go to Atlanta! I will talk to you again soon! Give those sweet girls HUGS from Tay-Tay!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Sunday, May 21, 2006 1:07 PM CDT That is such a sweet thing that Emma & Emmy met. That is one for the books. God Bless and I pray for a wonderful weekend for all of you.. Oh and yes Chad and I worked outside to get more sod put in. The funny thing is that I guess our dog is expected to start using the bathroom now that the grass is pretty. Much love Ann "Angel Eli's Mommy" <akurtz1974@msn.com> Brighton, CO USA - Friday, May 19, 2006 10:26 PM CDT YEAH MISS EMMA!!! Great job on your test. I am so proud of you what a big girl you are!!! Glad to hear that everything came out smoothly and no aspiration YEAH!!! Also thrilled to hear that Madi's tests came back clear as well MORE YEAH!!! Anyways hope you have a WONDERFUL birthday party!!!! Sending you tons of hugs and well wishes sweet girl. Tracy <tlgladfelter@comcast.net> - Friday, May 19, 2006 8:56 PM CDT Hi Emma, I'm praying that you and your family will enjoy a great weekend. Stephanie and RachelJoy <mom2rj@comcast.net> - Friday, May 19, 2006 8:35 PM CDT Have a beauutiful weekend! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Friday, May 19, 2006 1:17 PM CDT Emma, I am so proud of you..You did wonderful on your MRI! You are becoming a big girl! Keeping you in my thoughts and prayers. Prayers and Bearhugs Love, Marci The Prayer Bears www.caringbridge.org/visit/bryanandmark www.freewebs.com/prayerbears Marci COnnell <mac093@bellsouth.net> Valdosta, GA US - Friday, May 19, 2006 8:45 AM CDT Good morning Miss Emma- Just wanted to wish you the best of luck today as you have your swallow study today. I hope everything goes smoothly and you of course come out with flying colors. Hope everything else is going well and they get those MRI results back to you ASAP. Sending only the best thoughts and well wishes your way sweet girl. I'll check in later. Tracy <tlgladfelter@comcast.net> - Friday, May 19, 2006 7:10 AM CDT Glad the MRI went smoothly. Hope you get the results soon. Thinking of you guys... www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Thursday, May 18, 2006 11:06 PM CDT What a relief to hear that Emma tolerated her MRI so well. I hope tomorrow's test goes just as well, and that you don't have to wait too long for results. Linda Irving, TX - Thursday, May 18, 2006 10:00 PM CDT Happy Belated Bday Emma. Lauren the videos you have up there are so adorable let me tell you. If i can only see those kids in person they are so cute. I wish you the best of luck with everything with emma. Kristena Kramer <sxykris05@yahoo.com> Sanford, fl us - Thursday, May 18, 2006 9:06 PM CDT Hello Miss Emma- Had to stop by of course to see how your MRI went today. I have been thinking about you all day. I am so thrilled to hear that the test itself went smoothly and now I am contuining to pray that everything comes back clear. You are such a strong little girl, you definately have the most appropriate nick name, it suits you to a "T". I am sending you so many hugs, I know it cant be easy and I am almost positive it not much fun. Stay strong sweet girl and you know I'll be back later to check in to see if the results are posted. Take care of yourself, give mommy lots and lots of hugs and kisses, I am sure she is needed them right now. Take care all of you Tracy <tlgladfelter@comcast.net> - Thursday, May 18, 2006 4:28 PM CDT Sweet Emma- You go! YEAH! I'm so happy you did so great for your MRI! Lauren- I know you are on pins and needles! It is all going to come together and flow smoothly- :). I know you are so ready for Emma's big birthday party. I just had to check in on her today. I will be looking for the MRI results on here too. Love, Leslie Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Thursday, May 18, 2006 2:43 PM CDT PAM STURGILL www.freewebs.com/prayerbears <psturgill@bellsouth.net> - Thursday, May 18, 2006 10:21 AM CDT Wow, you will definitely be in our prayers. Hopefully some of these tests will give you some answers and if not, at least you'll have more to bring to Atlanta. Thinking of you always, Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Wednesday, May 17, 2006 10:32 PM CDT You have had a busy week and much information to digest. My thoughts and prayers are with you with all the many tests to be completed. I hope the results are all happy ones. Your daughters are wonderful, and Emma certainly brings sunshine to all, including those of us reading this website. Linda Irving, TX - Wednesday, May 17, 2006 10:25 PM CDT Hey guys! I wanted to take a minute and tell you how amazing your web site is. I loved all the pictures of the girls. They are so beautiful. * I hope you guys find peace over the few weeks as you travel to Atlanta. We will be saying prayers for all of you. I can't wait for Emmas party this weekend, we will have many more pictures for the web site! Trisha Williams <tlevans25@hotmail.com> Keller, TX 76248 - Wednesday, May 17, 2006 6:40 PM CDT Hi Miss Emma, Miss Madi and Mommy and Daddy- Well I have to agree you have had one busy week so far!! Hoping that things calm down for you, but I know having 2 kids...well it doesn't quite work that way. Way to go EMMA with the growth and weight chart, that is so awesome, keep up the great work. And in my eyes too, Emma is doing wonderfully, she is learning everyday and shows this!!! I am praying that all the upcoming tests go smoothly for Emma. I am sure they are percautionary, I just feel bad that this baby girl has to go through so much. Ah well it is for the best...and only the BEST for Emma!!! I am also praying so very hard that Madi's situation corrects itself so very quick. Mom you sure have your hands full. One day at a time, Mom you can do it. Like I said before God only chooses the best to become moms!!! Cant wait to see the newest pictures. I am so glad Emma loves her new pink car...still thinking about getting Emma one LOL. Sending only the best thoughts and well wishes your way *HUGS* to you all. Take care everyone!!!! Tracy <tlgladfelter@comcast.net> - Wednesday, May 17, 2006 9:05 AM CDT www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, May 16, 2006 9:32 PM CDT Happy Belated Birthday Emma!!! Big Hugs from Caden!! Lauren, Thanks for my nice gifts. You are a wonderful person! Vicki Vicki & Caden Williams <vicki.williams@wallisd.net> San Angelo, TX - Tuesday, May 16, 2006 3:31 PM CDT I hope all goes well for you in Atlanta, it was the best thing we ever did. I hope you get the answers you need. Your in our prayers, God Bless, Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Tuesday, May 16, 2006 11:39 AM CDT Stopping by to say Hello and to let you know that I am thinking of you..Sorry I missed your birthday...So Happy Birthday....Better Late than never..Sending Tons of bear Hugs your way.. The Prayer Bears Website Mary Mabe <mmabe63@yahoo.com> Coeburn, va usa - Monday, May 15, 2006 8:40 PM CDT Hi guys! I'm sorry I haven't signed the GB in a while. I have been checking in, though! My goondess, Miss Emma, I can't believe you are 2! What a big girl! Welcome to toddlerhood! My 2 year old, Kailyn, will tell you that being 2 is a lot of fun! I hope you are all doing well. By the way, loved the video! Too cute! I'll be sure to check back soon. As always you are in my thoughts and prayers. God Bless! Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Monday, May 15, 2006 3:35 PM CDT Alex is just dropping by to say that he hopes you had a Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Monday, May 15, 2006 2:36 PM CDT We love the video!! Joseph and I watched it 3xin a row!! Hope Miss Emma had a wonderful Bday. I can't wait to see all of you in a few weeks! Love Carla Carla <cooch67@comcast.net> - Monday, May 15, 2006 10:32 AM CDT Hi Miss Emma- Hope you are having a great day today and spoiling your mommy on Mother's Day!!! Always thinking of you and sending hugs, best thoughts and well wishes your way. Hope the weather is nice by you and you are outside playing. Unfortunately the weather here in Chicago has been cold and rainy, actually the sun is trying to peak out as I am typing, but it still rather chilly YUCK!!! Anyways have a great day!!!! *HUGS* to you all Take care sweet girl Tracy <tlgladfelter@comcast.net> - Sunday, May 14, 2006 3:52 PM CDT Happy Mother's Day!!! What is a mother A heart that can hear every unspoken need, Wisdom to know when to quietly lead, Hands that reach out, always helping and sharing– A mother is caring! Eyes that reflect every joy that you find, Arms to encircle, but never to bind, A talent for making the most out of living– A mother is giving! A voice that can soothe or inspire or delight, A smile that keeps shining when things don't go right, An angel God sends us from Heaven above– A mother is nothing but caring, giving and love. Hope to see you soon!!! The Gable's <cantrellcat@charter.net> Azle, TX - Sunday, May 14, 2006 10:40 AM CDT Happy Mother's Day and Happy Belated Birthday to Emma. Linda Irving, TX - Sunday, May 14, 2006 10:12 AM CDT LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS. HAPPY BIRTHDAY SWEETY LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~> EDMONTON ,ALBERTA, - Sunday, May 14, 2006 1:10 AM CDT You're 2! WOW! SO much has happened since we connected online. You've gained skills, pounds and friends - all from your effort to stay healthy and explore. Be sure Mom knows she's a big help- in all those gains! Two is ALOT of fun, just ask Linae...loves EVERYONES Birthday (shhh don't tell her tomorrow is really Mother's Day), riding toys, Cootie Bug game inside and BIG worms outside ICK! & being bossy, ummm, independant! LOL Happy Birthday Emma! The Larsons <kalars69@yahoo.com> Richfield, MN USA - Saturday, May 13, 2006 9:59 PM CDT HAPPY HAPPY BIRTHDAY sweet girl! I hope you had a wonderful day!!!! Sending you many hugs and birthday wishes! www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Saturday, May 13, 2006 6:25 PM CDT Happy, Happy Birthday, Sweet Emma!! Love and prayers, Dorine McNary Williston, ND - Friday, May 12, 2006 9:14 PM CDT HAPPY BIRTHDAY, EMMA!!! YOU ARE NOW A BIG 2 YEAR OLD - YEA!!! YOU ARE ONE OF THE CUTEST 2 YEAR OLDS THAT I HAVE EVER SEEN! I LOVE YOUR VIDEOS!!! THEY HAVE MADE ME AND SCOTT SMILE SO MANY TIMES! YOU ARE PRECIOUS AND SO SWEET -YOU MUST GET IT HONEST!!! YOU HAVE WONDERFUL PARENTS AND A GREAT BIG SISTER!!! I HOPE YOU HAVE THE MOST FANTASTIC BIRTHDAY PARTY!!! I KNOW THAT YOU'LL LOVE THE BLUES CLUES THEME AND ALL THE GOODIES! TAYLOR SENDS YOU HER LOVE AND WISHES YOU A VERY HAPPY BIRTHDAY!!! WITH LOVE AND HOPE ALWAYS, SCOTT, SONYA, AND TAYLOR Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Friday, May 12, 2006 4:47 PM CDT Emma.... Happy Birthday to you sweetheart. I hope that you have a magical and wonderful day. We wish that we could be there to help you blow out your candles!!!!!! Have a wonderful day!!!!!! Elizabeth <michael_shipley@bellsouth.net> - Friday, May 12, 2006 3:19 PM CDT Emma, Happy Birthday to you........... It is my daughter Melissa's Birthday today also......what a good day it is!!! Alison - Andrew's mom www.caringbridge.com/canada/andrewsjourney <boettcher6@shaw.ca> BC Canada - Friday, May 12, 2006 2:43 PM CDT Miss Emma- I had to come by your site again and WOW! Lauren- are you a web developer? You are SO talented!!! I love love love the video. The music, the pictures, the movie - all are amazing! Emma is an inspiration to us all! You ARE blessed with two beautiful girls. I wish you all a terrific day today- oh how our lives changed 2 years ago today! How far these girls have come! I can't wait to see pictures of the birthday party next weekend! Morgan's party is tomorrow. Love to your family! See you soon! Love, Leslie Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Friday, May 12, 2006 12:46 AM CDT Happy Birthday to you, Happy Birthday to you, Happy Birthday dear EMMA, Happy birthday to you!!!!!!! I am so happy to wish you Happy Birthday Sweety. Hopefully someday you and Skylar can meet since you truely are "two peas in a pod." Skylar's 2 yr. b-day party in March was Elmo and Cookie Monster, but she also likes Blue. I wish I could give you a great big hug, but I guess a e-mail ((((HUG)))) will have to do. You are always in my prayers and I hope all goes well in Atlanta. It still amazes me how similar you and Sky are. God Bless, Tracy (Skylar's Mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Friday, May 12, 2006 10:00 AM CDT Happy Birthday, Emma!!!!!!!!!!!!!!!! Can't wait for your party!! Samantha and Janice <cantrellcat@charter.net> Azle, TX - Friday, May 12, 2006 8:55 AM CDT HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY SWEET EMMA HAPPY BIRTHDAY TO YOU Have a wonderful 2nd birthday Emma!!! We are all so proud of you and wish you nothing but a lifetime of happiness sweet girl. Thousands of HUGS to you!!! Tracy <tlgladfelter@comcast.net> - Friday, May 12, 2006 8:48 AM CDT Stopping by to say Happy #2 and wishing your mommy a wonderful Mothers Day.. Hugs, Denise and Sydney Denise Pequignot <dpequignot@earthlink.net> S Whitley, in usa - Friday, May 12, 2006 8:42 AM CDT Happy Birthday to you! Happy Birthday to you! Happy Birthday dear EMMA... Happy Birthday to you! Have a great day today Emma! Miss 2 years old! Love, Leslie & Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Friday, May 12, 2006 6:57 AM CDT Hey Guys- I am sitting here with goosebumps and a smile from ear to ear after reading your journal entry!! Way to go Emma!!! I am SO HAPPY for her!! Every milestone is such a huge thing and it is even more special when I read that Emma reached it. I am overjoyed for you all!!! CONGRATULATIONS!!! She is just the sweetest thing. I am so happy to read that the increase in meds are doing its job, I am just praying that the headaches clear up. I suffer from migraines as well and they are not fun =(. I wish you nothing but happiness and a wonderful day today as you enjoy your last offical day as a "baby". Keep up the awesome work Emma, you can do it!!!!! Thanks for sharing this wonderful news. (((HUGS))) to you all!!! Tracy <tlgladfelter@comcast.net> - Thursday, May 11, 2006 7:46 AM CDT I'm so glad that Emma's seizures and headaches appear to be responding to the change in medication. Tricia, Emmi's mom, has migraines and then developed partial focal seizures, so I know how difficult it can be to even puzzle out what's happening sometimes. What's a seizure and what's a variant form of migraine? Congratulations on all the steps forward. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Thursday, May 11, 2006 6:49 AM CDT I finally got caught up-missed your Easter entry, duh! Cool Video of girls! Loved the pink wagon! last...thanks for the reminder of those little things we see everyday are really HUGE! Linae stepped off a curb -unassited, btw. {wipes tears again} ofcourse great news for sz's (ick for migraines) Kelly-Ann <kalars69@yahoo.com> - Wednesday, May 10, 2006 11:50 PM CDT Hi Emma & family! Thanks for checking in on Lily. She is out of the hospital now and doing better. I hope that you're able to get some answers from the doctors in Atlanta. I know how frustrating a dx search can be. I hope that you all have a very Happy Mother's Day! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Wednesday, May 10, 2006 8:17 PM CDT Happy "almost" Birthday!!!! Sydneys was on the 6th, you guys are just a year a part. Arent wonderful girls born in May. Sydney said she wanted me to make a bday donation for the wagon, so will be sending it out thru the www!!! Love, Denise and Sydney Denise PEquignot <dpequignot@earthlink.net> South Whitley, in usa - Wednesday, May 10, 2006 2:02 PM CDT Hi Miss Emma- Just thought I would pop in to see how you are doing today? Hope things are going well for you. You are always in my thoughts and prayers and I wish nothing but the best things for you. I forgot to tell your mommy the other day, but I love your new haircut, you look absolutely beautiful, of course Madi too!!! I wish I could cut my Emma's hair, but since she has a lack of it, nothing much to cut LOL. Hope you are feeling better and the increase of meds are doing its job. Sending only the best thoughts and well wishes your way baby girl. Only a couple more days I can call you that, but I am sure you will always be your mommy and daddy's baby girl =) Have a great day!!! (((HUGS)))) Tracy <tlgladfelter@comcast.net> - Wednesday, May 10, 2006 12:44 AM CDT Hey Emma! Thats such a cool video! Thanks for sharing it! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Wednesday, May 10, 2006 9:10 AM CDT Awesome video and pics! www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Tuesday, May 9, 2006 9:20 PM CDT LOVE the video! It is so nice to really see them in action. I can't wait to visit next month and spend time with them (and you too!) Go Emma Go!! Madi, you are such an excellent dancer - you'll have to teach me those moves! Miss you!! Love you all!!! Aunt Teenie <cdiesso@bellsouth.net> Summerville, SC 29485 - Tuesday, May 9, 2006 9:12 AM CDT LOVE those precious pics! I hope they get to the bottom of things with Emma soon. Hang in there and keep fighting for her! You are doing an awesome job! Hugs to you all... www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Monday, May 8, 2006 6:22 PM CDT Lauren, It is so strange (but comforting) to read your posts. So much of what you write is a duplicate of Skylar. Skylar has also been living on Motrin (she doesn't respond well to Tylenol) for her pain. I am glad to hear the constipation issues seem to be clearing up. You are all in my prayers and I know God has a wonderful plan for our precious little girls. Big (((HUGS))), Tracy (Skylar's Mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Monday, May 8, 2006 10:25 AM CDT I'm sorry that you're fighting through figuring out what's hurting Emma. I hope she feels better this weekend and that the possible seizure activity stops, too. Linda Irving, TX - Friday, May 5, 2006 6:04 PM CDT Hello to our little buddy Emma!!! Caden wanted to show off his cool Nemo shades so you can get some too!!! BIG hugs from Caden to Emma!! Lauren, It just dawned on me that you emailed me some time ago about Atlanta. I am so sorry I haven't gotten back to you. I will do that right after this!! Sendingyou all hugs, love, & prayers~~ Vicki & Caden Vicki Williams <vicki.williams@wallisd.net> San Angelo, TX - Friday, May 5, 2006 4:09 PM CDT Hi Emma- Just wanted you to know that I am thinking about you today, and I am keeping my fingers crossed that your sleep problems fix itself but fast. I am so sorry you had such a hard time at the doctors the other day, but YEAH to the growth!!! I am praying so very hard that Emma is not having seizures and if in fact she is I am praying that they can get under control (please God hear my prayers)!!!!! Anyways continue to keep you all in my thoughts and prayers and only sending the best thoughts and well wishes. Stay sweet baby girl!!! Tracy <tlgladfelter@comcast.net> - Friday, May 5, 2006 2:01 PM CDT Good Morning Miss Emma- Glad to hear that grandma's proceedure went well and she is now home recovering and hopefully getting much needed rest. What a big girl you are!!! I hate needles and cant stand when I have to have blood drawn. Hope everything comes back clear. Congrats to Madi on passing the hearing test, that is such wonderful news. Cant believe somebody is going ot be turning the big 2 in just a few short days. I bet you are getting so excited!! As for the glitter, mom I sure hope you took pictures of that. I too would of been less than thrilled but after some time has passed, I am sure you can find the humor...even though maybe just a little, in the whole thing LOL. Girls will be girls and they wanted to look beautiful for their mommy LOL. Anyways just wanted to wish you all a fantastic day today, hope everyone is outside enjoying the weather, its not too bad here today, warmer yesterday and tomorrow is going to be cold and raining. Stay sweet baby girl. Sending hugs your way. Tracy <tlgladfelter@comcast.net> - Thursday, May 4, 2006 9:15 AM CDT Thank you so much for our new graphic!!!! i am so happy to hear that your mom is ok. I love the videos of Emma. Elizabeth <michael_shipley@bellsouth.net> - Tuesday, May 2, 2006 11:47 PM CDT Emma, how cute are your videos?!?! I love them! That swing sure does look like a lot of fun! You are so precious to take care of Blue- I know she loved the swing ride too :) Maybe we can meet you when you are in Atlanta. Lauren- email me when you can and let me know which neurosurgeon you have. They are ALL excellent :) Love, Leslie & Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, May 2, 2006 4:32 PM CDT OK I know I have already checked in, but I had to once again to see if you (((HUGS))) were up. I love the video of you on the swing. Even though there was no sound, I can sense how much you were laughing, you looked like you were having a blast. So very cute thanks for sharing. Okay I know I have taken up enough of your time, just wanted to let you know that the video's were awesome. Also glad to read that grandma's procedure went smoothly, continuing to pray for her and for all of you. Stay sweet baby girl- Good luck tomorrow Madi!!!! Tracy <tlgladfelter@comcast.net> - Tuesday, May 2, 2006 4:19 PM CDT HI Miss Emma- Just popping in to wish you a wonderful day. Hope you are feeling better and that nasty cold is moving its way out the door. Finally it is warming up here in Chicago, but in the next two days it is supposed to get colder again, ah well the joys of Spring. I wanted to give you lots of (((HUGS)) today but when I went to the hug-o-meter, it is not working, some kind of error. Hope you did not lose all your hugs, well if so I guess we all have or work cut out to get those numbers up where they should be!!!! =). Anyways sweet girl hope you are feeling better and I continue to pray for your grandma that everything goes smoothly on her upcoming proceedure. Stay sweet baby girl Tracy <tlgladfelter@comcast.net> - Tuesday, May 2, 2006 2:47 PM CDT I'm glad that Emma is doing well with the bath time and the speech-related activities, and I hope she's soon feeling better, too. Linda Irving, TX - Tuesday, May 2, 2006 6:44 AM CDT I'm praying that this week will be full of His blessings for your family. Stephanie and RachelJoy <mom2rj@comcast.net> - Monday, May 1, 2006 11:44 PM CDT Hi Emma, just checking up on you. Good job with speech. www.caringbridge.org/oh/skylarbaker nikki, skylar <nd6780@netzero.net> - Monday, May 1, 2006 6:59 PM CDT Emma, I sure hope you start feeling better. Bathtime is so much fun---get squeaky clean! Prayers and bearhugs Love, Marci The Prayer Bears www.caringbridge.org/visit/bryanandmark Marci Connell <mac093@bellsouth.net> Valdosta, gA uSA - Monday, May 1, 2006 2:11 PM CDT Hi Emma- I am sorry to read that you have a cold with a yucky cough, sending prayers that you get well lickedy split!!! Awesome news about bath time. How nice is that mom!!! Keep up the good work!! Also great news about the whole speech/signing thing. My Emma is all about books too right now, we must ready 4-6 times a day. Hope the poopie problem clears itself up soon. Looking forward to seeing the new haircuts, I bet the girls look beautiful. Anyways as always sending only the best thoughts and well wishes your way. You all continue to be in my daily thoughts and prayers. Have a great day sweet girl and get better fast!!! Tracy <tlgladfelter@comcast.net> - Monday, May 1, 2006 10:31 AM CDT Hi Emma, Looks like you have a very busy month coming up. You can count on our prayers with all the procedures you have coming up. You are such a brave girl! Have a great Sunday and remember that we LOVE you!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Sunday, April 30, 2006 4:39 PM CDT We wanted to say HELLO!!!!! Hope you are having a great weekend! Becky and Ashlyn www.caringbridge.org/sd/ashlyn <beckjo70@hotmail.com> Mitchell, Sd - Sunday, April 30, 2006 12:45 AM CDT Hey Emma and Lauren! I'm glad that Emma is feeling better! I know those colds are no fun! I can't believe that she will be 2 soon! There are so many special CB girls turning 2 now. I'm so happy that you decided to go to Atlanta for the biopsy. I think you will be very pleased that you did. I have to say that it all went very smoothly for us and everyone was super nice! The hospital there is great, and you're going to really like Dr. S. He is certainly everything wonderful that we have ever heard about him. The waiting for the results is the only hard part of the whole process, but it will pass quickly. Even though Taylor's prognosis is not a very good one, we are still so glad that we finally KNOW what she has and what has caused all of her problems. We just went back to Atlanta this past week for our follow-up appt with Dr. S. You can read Taylor's site for the details, but it was both good and bad. At least we got more answers, even if some of them were not the ones we wanted to hear. Taylor is more affected by the mitochondrial disease than most children, so her outlook is not as good. But Emma is totally different, and I really believe that you can take comfort and be encouraged by how wonderfully she is progressing and doing things!!! I pray that you will get the best news possible! You will surely be in my thoughts. I know that Vicki gave us some good advice about going to Atlanta, too! She is so sweet! If there is anything else that I can help you with - please feel free to e-mail me! Okay? Hope you all have a wonderful week full of God's Blessings! Taylor sends her love as always!!! With Love and Hope Always, Sonya and Tay-Tay Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Saturday, April 29, 2006 10:01 PM CDT Alex is peeking in to see how you are! Hope you have a great weekend! Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Saturday, April 29, 2006 7:43 AM CDT Hey guys! Just checking in! Have a wonderful weekend! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Friday, April 28, 2006 2:16 PM CDT Good afternoon Miss Emma- You sure do have a lot coming up in the next month, whew!! I am beginning my prayers right now that the testing goes smoothly and without any complications next month!!! I am so glad that your mommy got my check, I wish I could of added a lot more zero's to help with the wagon fund. I am glad to read that you will be able to get a wagon, and a few other things. What a wonderful gift. I am still praying for your grandma, Emma, that things again, go smoothly and without any complications. You all continue to be in my daily thoughts and prayers and as always sending you all only the best thoughts and well wishes. Take care sweet girl Tracy <tlgladfelter@comcast.net> - Friday, April 28, 2006 12:11 AM CDT Congratulations on clearing up Emma's staph infection and on getting all those appointments settled for May. My thoughts and prayers will be with your mom, Lauren. My granddaughter Emmi had her surgery Wednesday for her first cochlear implant. After the initial nausea and discomfort, she's recovering well. Can't wait until three weeks from now, when Emmi starts her progress in the hearing world again. Also, Emmi has made it back on the growth charts--in the third percentile, but still on the charts! A victory. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Friday, April 28, 2006 12:09 AM CDT I think everyone has a case of the sniffles right now, all these weather changes and stuff starting to grow again. It's love hate thing with Spring cause of allergies. I hope the girls aren't too miserable, and that it goes away quickly. We'll keep your Mom in our thoughts, that she come through with flying colors and that no other procedures are needed. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, Co USA - Friday, April 28, 2006 11:21 AM CDT Hi Sweet Emma and Family- Wanted to come by and say hi! Lauren- thanks for your sweet words in our GB. I hope you raise a lot of money for the wagons and DVDs! We love the wagons at our hospital- we load up like we are moving in- ha! Let me know if you hear anything from Dr. S. Love, Leslie- & Morgan, Emma's Birthday twin! Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Thursday, April 27, 2006 5:57 PM CDT Hello Miss Emma- Glad to read that things are going good. Hoping it is just alergies that are causing the sniffles, my kiddies have them too, that is what I am racking it up to be...hopefully!! Finally the weather is getting warmer here so the kids are outside enjoying the fresh air and giving me a chance to get some chores done LOL!!! Glad to hear that your tummy is getting better too, I am sure that is not comfortable..poor baby. Hoping things only get better. I am adding your grandma to my prayer list in hopes that her upcoming proceedure goes smoothly and without any complications!!! Well sweet girl, I should get back to my chores, just thought I would take a break and send you big (((HUGS)))) from Chicago. Sending the best thoughts and well wishes your way sweet girl Tracy <tlgladfelter@comcast.net> - Thursday, April 27, 2006 11:58 AM CDT Hi guys, I am so happy that you are finally able to get to Kari's page! I hope that yucky cold just packs its bag and moves right out! We had such a fun time at Disney World. I want to go again next week!!! Maybe in a few years. Are you getting ready for your birthday? I bet you are excited! You are getting to be such a big girl. And cuter by the day too! Well, I need to pick Kari up from school now. We will be back very soon! We love you!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Thursday, April 27, 2006 11:16 AM CDT Pooh on snotty noses. Austin's had one since October. Hurry up Summer!!! I love Emma shirt...Never Underestimate me...Email me where you got that!! I want one for Austin in BLUE! Cant believe our BABIES will be TWO!!! Time flies. Love From GA Amy and AUSTIN <ambbab@alltel.net> gray, ga usa - Thursday, April 27, 2006 9:03 AM CDT Collin and Regan wanted to row on by to say hi!! OH, Colds are no fun!!! I am sorry that you both have a little something. Tell your mommy to send me your address so I can make you some special b-day hair bows for you to wear on your big day! BIG HUGS, Collin and Regan julie <collinpresley@aol.com> - Wednesday, April 26, 2006 11:31 PM CDT Hi Miss Emma- Yeah!!!! Kick that nasty boo-boo out the door!! I am so happy you are feeling better!!! Hoping that the medicine to make the poops come works fast, I am sure you are so uncomfortable baby girl, hope you feel better with that soon. Also hoping that the thickener does the trick and you are able to drink without the choking, poor baby. Hope everything else is going well for you and you are out enjoying the warm weather, it is freezing here today in Chicago, it only got into the 40's (I thought it was spring?)Anyways sweet girl hope everything else is going perfectly for you, sending hugs your way along with only the best thoughts and well wishes. ps tell your mommy I sent a check today for your fundraiser. Tracy <tlgladfelter@comcast.net> - Tuesday, April 25, 2006 6:15 PM CDT So glad that the infection is clearing. What a relief that must be. Have a wonderful week. Alison - Andrew's mom www.caringbridge.com/canada/andrewsjourney <boettcher6@shaw.ca> BC Canada - Tuesday, April 25, 2006 9:44 AM CDT Hello Miss Emma- So thrilled to read that you are on the road to recovery. I am sorry to hear that you did have a fever last night, but joyed that it is gone this morning. I love the new toy mommy and daddy are going to get you for your birthday, it is way cool. I think I am going to have to get one for my Emma girl too!!! Glad to read things are getting better and I continue to pray things only get better. Melody is one of my best friends and as you know she is dealing with the same kind of thing with Nicholas, it is such a scary thing. Anyways sending only the best thoughts and well wishes your way...off to give Emma more (((HUGS))) =). Have a wonderful day. Tracy <tlgladfelter@comcast.net> - Monday, April 24, 2006 2:18 PM CDT I'm so glad to hear that Emma's infection is doing better and also that Madi doesn't appear to have succumbed yet, either. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Monday, April 24, 2006 6:22 AM CDT Glad to hear Emma's infection is clearing up without a hospital admit. Wish we could have!! Just as an FYI, our whole family is going in to the Infectious Disease dr we saw inpatient tomorrow to be tested for MRSA colonization. Apparently, once you have the infection, you are at a much higher risk for reocurrance. Since the germ is spread through skin contact and we diaper and bathe him and he bathes with his brother, chances are the rest of us are colonized as well. There is simple skin testing that can be done to determine if a person is colonized and a treatment protocol that can be followed to get rid of it. Just thought I would pass that info along to you in case you were interested in checking into the testing for your family as well. I will update the boys' site tomorrow and let everyone know how it goes in case you want to hear more about it. Good luck and I hope she is completely over it really soon. Nicholas finally finished his abx a couple of days ago and his site looks pretty good as well, thank goodness! Take care! www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Sunday, April 23, 2006 11:38 AM CDT Hi Guys I just stopped by to check on Emma, havent been by for a while. My thoughts and prayers are with you little one. take Care. Debbie www.caringbridge.org/ca/taryn Debbie Fogel <ejfdrf@sbcglobal.net> Corona, CA USA - Sunday, April 23, 2006 0:50 AM CDT Hi there Markham family.... So sorry that we have not been around lately. Our computer got a boo boo and we had to have it fixed. We are so greatful to have it back now. Emma I see that you got an infection. I hope that you are feeling better sweet heart. We missed you guys but we are back!!!!! www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, April 22, 2006 1:22 AM CDT Hi Miss Emma- Just thought I would pop in to see how "Little Tough" was doing today? I hope and pray that you are feeling better and that nasty boo-boo is clearing up. You all continue to be in my thoughts and prayers and I am sending only the best thoughts and well wishes your way. Ask your mommy when she gets a chance to please email me, I would like to dontate to help purchase wagons for the hospital. Hope all is well and stay sweet "Little Tough". Tracy Tracy <tlgladfelter@comcast.net> - Friday, April 21, 2006 4:25 PM CDT Hi Miss Emma- I am sorry to hear that you have a staph infection, but I am happy to read that the boo-boo is healing with the antibiotics you are on. Keeping my fingers crossed and continuing to pray that it does the trick and you are back up and running around quick!!! Hang tough "Little Tough" and stay sweet baby girl. Sending only the best thoughts and well wishes your way. Off to give you lots more ((((HUGS))) Sincerely Tracy Gladfelter <tlgladfelter@comcast.net> - Thursday, April 20, 2006 7:57 PM CDT Hi Miss Emma- Yeah way to go!!! I am so happy to read that you are on the road to recovery and that nasty boo-boo is clearing up!!! I've been shouting up to Heaven for your recovery and with everyone else, it seems to be working =) Hope you have a wonderful and happy day. Sending the best thoughts and well wishes. Stay sweet baby girl!!! Sincerely Tracy <tlgladfelter@comcast.net> - Thursday, April 20, 2006 8:10 AM CDT I hope that the antibiotics have begun to make a difference and that Emma feels better today. Linda Irving, TX - Wednesday, April 19, 2006 12:42 AM CDT We are praying that the infection clears up quick!We just popped by to check on you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, April 19, 2006 1:21 AM CDT Congratulations on some good results for Emma, and I hope the results of the culture help you to get that problem resolved, too. Emmi went through a bout with staph infection earlier this year, too, if that's what it turns out to be. Linda Irving, TX - Tuesday, April 18, 2006 10:13 PM CDT Hi there! Thanks so much for wishing me a happy birthday! Emma is such a cutie, and of course I always love meeting other Rita's fans ;). I'm so sorry to hear about the infection and abcess- that can't be very fun for either you or her. She seems like such a fighter, though (25 lbs- wow!) so I know she'll get through this too. I'll be keeping you all in my thoughts, and will check back soon. ~*Sarina*~ <sarinadee@gmail.com> Philadelphia, PA - Tuesday, April 18, 2006 1:28 PM CDT Oh no baby girl....I am so sorry that you have a boo-boo on your leg, I hope you feel better fast...I am sure it is so uncomfortable!!! Yeah, way to go on the weight gain...that is so wonderful...keep it up littel tough!!! I am praying that the results come back with good news and I will continue to pray for her (as always) overall. Hang tough little tough!!! Sending only the best thoughts and well wishes your way. Take care sweet girl!!! Tracy <tlgladfelter@comcast.net> - Tuesday, April 18, 2006 10:47 AM CDT I am SOOOO sorry to hear that Emma is fighting an abcess. Nicholas was inpatient at TCH from Sat-Tues with an MRSA abcess on his gtube site. Those are NOT fun! I can so sympathize with you! Hope she is feeling better soon! Take care and keep us posted! Hugs... www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@ houston.rr.com> - Monday, April 17, 2006 10:55 PM CDT Beautiful pictures!!! Emma and Madi look like two princesses!!! I am so thrilled that Emma had a wonderful Easter, the pictures say a thousand words. Unfortunately it was rainy (downpouring all day) and cold, so our Easter egg hunt was confined to inside...still the kids loved it and did not mind at all. I think it is a wonderful idea that you decided to purchase wagons for the hospital in Emma's name, what a super gift. I am interested in making a donation, I will just need a address where to send the check to. I am a big supporter of those kind of things and when allowed I like to do what I can. Again thank you for sharing your "Little Tough" with the rest of us, she is a remarkable little girl who is teaching me in particular to slow down and take things as they come. Hope all is well, sending only the best thoughts and well wishes your way. Sincerely Tracy <tlgladfelter@comcast.net> - Monday, April 17, 2006 2:12 PM CDT Great pictures! Isn't it strange the way that one day those toddlers are just that and then the next they suddenly look like little girls and boys and not like the babies they just were a day earlier? Both girls are precious. Linda Irving, TX - Monday, April 17, 2006 1:49 PM CDT Happy Easter Emma and Fam!......I love the site, Great Job! Cuz Scott Cuz Scott <sa555@nyu.edu> Elmhurst, NY 11373 - Sunday, April 16, 2006 9:14 PM CDT Happy Easter Emma and Lauren. I will pray that you can get as much info as possible about the Mito, so that Emma can get the best treatment possible. Constance Joy <constancecouch@sbcglobal.net> Arlington, TX - Sunday, April 16, 2006 1:27 AM CDT Hi Miss Emma and Madi too!!! Just thought I would "hop" in to wish you again a very happy Easter. I sure do hope the Easter bunny leaves you lots and lots of treats!!! Hope you are feeling better. Take care sweet girl. Hugs to you all Tracy <tlgladfelter@comcast.net> - Saturday, April 15, 2006 6:06 PM CDT Have a Happy Easter! God bless and *warm hugs* ><>†<>< *Jennifer C* from Angels on Earth <coopsie78@gmail.com> Eugene, OR USA - Saturday, April 15, 2006 5:49 PM CDT My two little bunnies wanted to stop by to wish you a very Happy Easter! We love you tons! BIG HUGS, The Presley family Collin's Page julie <collinpresley@aol.com> - Saturday, April 15, 2006 0:00 AM CDT I hope Emma is feeling better and enjoying her new web page. Linda Irving, TX - Friday, April 14, 2006 9:06 PM CDT Hi MIss Emma-We love your new BLUE's page!Joseph and Michael love listening to the song and watching their very special cousins. We hope everyone is well enough for an Egg Hunt. HOPPY Easter! Love, Aunt Carla <cooch67@comcast.net> - Friday, April 14, 2006 6:55 PM CDT Hi Miss Emma- First of all I sure hope you are feeling better today. I am so sorry you are under the weather. My Emma is fighting something too, she is not a happy camper these last couple of days, I am hoping it is just her 2nd set of molars coming in??? Second of all I LOVE what your mommy did to your CB page. Blue is definately my favorite too, we look forward to it coming on TV (ha,ha). I also wanted to thank your mommy for sending me a email inviting me to check out your new page, like I said it looks awesome!!! Enjoy your last month of offically being a "baby" (they will always be out "baby" right?!?!?!) Toddlerhood is right around the corner and there is SO much to discover and learn. Sending only the best thoughts and well wishes your way baby girl. Feel better soon. Sincerely Tracy Gladfelter <tlgladfelter@comcast.net> - Friday, April 14, 2006 12:43 AM CDT Love all the blue! And love all your pictures too! Just wanted to stop by and say Hi! www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, April 13, 2006 9:39 PM CDT Love the new site! Samantha LOVES the new Blue's Clues theme!!! She just kept signing and saying Blue's Clues over and over. Too cute!!! Now we will have to come more times a day for Samantha to see Emma, she is relly upset that I chnged the page to sign here. Take care! Janice and Samantha <cantrellcat@charter.net> Azle, TX - Thursday, April 13, 2006 9:03 PM CDT Hoping everyone is feeling well for Easter!! Love, Denise and Sydney Denise Pequignot <dpequignot@earthlink.net> S Whitley, in usa - Thursday, April 13, 2006 8:37 AM CDT Hi Emma! We hope that you and your family have a wonderful Easter. You are all in our thoughts and prayers. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Wednesday, April 12, 2006 10:18 PM CDT Keeping you in my thoughts and in my prayer's always. LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~> EDMONTON , - Wednesday, April 12, 2006 4:42 PM CDT Hi Emma! Wow- your webpage is looking awesome! Your mommy has done a super job with it!!! I love the Curious George song and video- I can't wait to share it with Carter tomorrow. That was the first movie he saw in the theater! I hope Emma is doing better from her cold and it isn't her ears. We are going to the pediatrician tomorrow- I think Morgan has an ear ache! Well- May is a big bday month here too! Carter (5/23/02), Morgan (5/12/04) and I (5/25/??) all are MAY bdays! I think it is great to do something else instead of gifts- don't these kids get everything any way?! LOL! I know ours do! I am going to ask people to send to Eli's Angels. Well- just wanted to say hi! I loved reading a message in Morgan's guestbook- glad it is working! Have a great Easter. You have a beautiful family- inside and out! Love, Leslie- mommy to Carter and Morgan Carter in his Easter shades: Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, April 11, 2006 10:13 PM CDT May your Easter be very blessed with His grace and power. Stephanie and RachelJoy <mom2rj@comcast.net> - Tuesday, April 11, 2006 8:13 PM CDT Hi Emma- Hope you are feeling better really quick. I know boogies are yucky!!! My Emma has them too. Good luck at the doctor tomorrow hope everything turn out fine. Sending only the best thoughts and well wishes your way. Take care sweet girl. Sincerely Tracy <tlgladfelter@comcast.net> - Tuesday, April 11, 2006 5:21 PM CDT Wow, you had a lot of information to digest today. I hope it all helps to fine tune Emma's therapy. Linda Irving, TX - Monday, April 10, 2006 10:01 PM CDT Stopping by to say Hello and to let you know that I am thinking of you..Hope you have a Blessed Easter.. The Prayer Bears Website Mary Mabe..... <mmabe63@yahoo.com> Coeburn, va usa - Monday, April 10, 2006 8:37 PM CDT Hannah and Rebecca just wanted to drop by and tell you that they have a new baby Sister Rachel Emily born on 6th April 2006 weighing in at 9lb Jo Hannahand Rebecca Jo <yarnall@blueyonder.co.uk> England, UK - Monday, April 10, 2006 3:25 PM CDT Hi Emma- Just popping in to say hi and hopes that you had a great weekend. It is finally a nice day here in Chicago, so we are out enjoying the weather. Hope all is well by you, gave you a ton more hugs =) Have a great day!!! Tracy <tlgladfelter@comcast.net> - Monday, April 10, 2006 1:24 PM CDT Awesome update! Have a spectacular week! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Monday, April 10, 2006 7:42 AM CDT I hope you had a great weekend. Linda Irving, TX - Sunday, April 9, 2006 9:25 PM CDT I remember pulling Emma's website up for the first time and I'm not even sure what website I found hers from, but she melted my heart. You had the picture of her in her crib with Elmo, and my 7 year old daughter thought she was the cutest thing in the world. I can't believe she is going to be 2, how time flies. God Bless, Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Saturday, April 8, 2006 8:11 PM CDT Good Morning Miss Emma- Just thought I would pop in to wish you a fantastic weekend. Today we are celebrating my Emma's 2nd birthday!!! Pretty soon you will have a party for your 2nd birthday WOW!!! Wishing you all the best and sending hugs your way (I added more hugs to your meter =). Hope all is well. Tracy <tlgladfelter@comcast.net> - Saturday, April 8, 2006 10:02 AM CDT Collin wanted to stop by to show you his new friend the goat!! Hi Emma~ I am sorry that we have not been by in a while. We love you and check in on you often. Thank you for always stopping into check on Collin! We love y'all! BIG HUGS, Julie and Collin julie <collinpresley@aol.com> - Friday, April 7, 2006 0:00 AM CDT We came across your site and wanted to say hello! Becky and Ashlyn <beckjo70@hotmail.com> Mitchell, SD - Thursday, April 6, 2006 9:11 PM CDT Hi Emma- Just wanted to let you know that I gave you a lot of(((HUGS))) today, enough to get you up to 15,000!!!! Hope you are having a great day and outside playing. It is of course cold here again in Chicago, go figure!!! Anyways hugs to you all!!! Sincerely Tracy <tlgladfelter@comcast.net> - Thursday, April 6, 2006 1:02 PM CDT 2 is Great Emma & Lauren...just you wait until jumping and swings, kicking! (latest accomplishements here-HAH for both kids!) Then there's Cootie Bugs fascination... everytime I turn around there's a new "I didn't know you could..." Cute pictures and recap! Those of us joining after the start appreciate early pictures/story! Kelly-Ann <kalars69@yahoo.com> - Thursday, April 6, 2006 0:22 AM CDT Hi Emma! I can really relate to what your mommy said in the latest journal entry. Watching my Lily struggle and also watching her progress, has taught our family so much, too. You and your family are always in our prayers. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Wednesday, April 5, 2006 11:09 PM CDT I loved the pictures scrolling across the bottom of the home page and also the lovely things you had to say about your lovely Emma. My granddaughter Emmi finally has a surgery date set for one cochlear implant late this month, so she'll join the hearing world again soon. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Wednesday, April 5, 2006 6:28 PM CDT Hi Emma- Just thought I would pop in to say hi and hoping you are having a great day!!! My heart is overflowing with happiness after reading your mommy's journal entry!! You have come so far in your two short years and I know you will continue to go so much further as you grow. I wanted to thank your mommy so much for sharing your story with the rest of us. I know that I dont know you all personally, but it has become routine that I check in on Emma. You all should be so very proud of all the accomplishments you have encountered with Emma, she definately has proved and earned her title as "little tough". I continue to wish you all the best and send only the best thoughts your way. Emma is definately an angel on Earth and again I thank you for sharing her story with the rest of us. Hoping things only continue to get better!!! Sincerely Tracy (a mommy to an Emma too =) <tlgladfelter@comcast.net> - Wednesday, April 5, 2006 3:51 PM CDT I am so glad the ABR turned out good, i know how nerve wracking that one can be too. Will does the same thing where it appears he can't hear (more than normal toddler selective hearing) and they think it's a sensory or processing issue, I hope you get some answers. The pictures are gorgeous. Hope the heat doesn't get too bad too early. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, Co USA - Tuesday, April 4, 2006 3:29 PM CDT Hi Emma- Just popping in to see how you are doing and hoping you all had a great weekend. It looks like you did from the pictures your mom posted. Looks like Dad had fun too planting the new tree!!! I was thinking about you so I thought I would say hi and wish you a fantastic day. Hope it is warm on your end, it is cold and raining here in Chicago, a good day to sleep in LOL!!! Hope all is well, sending the best thoughts and hugs your way!!! Sincerely Tracy (a mommy to an Emma too =) <tlgladfelter@comcast.net> - Monday, April 3, 2006 10:35 AM CDT Emma~ great news! So happy to hear everything is 100%! Yeah! I'm happy you are doing so well- the pictures are great. Looks like a fun weekend. We are enjoying this great spring time weather too! We visited the Easter Bunny at the mall on Saturday: Love, Leslie www.caringbridge.org/visit/morganreynolds Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Sunday, April 2, 2006 10:53 AM CDT Just popping in to wish you a sun shiny day! So glad that Emma's tests came back normal. I love all the pictures, and the video too. The girls are just adorable :) Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Saturday, April 1, 2006 7:44 AM CST Hi Emma!!!' Had to pop in again to see how you are doing!! WAY TO GO with the test results, you all have to be so relieved, I am happy for you all. Sounds like the girls are sure enjoying the outdoors, cant wait until we get that warm weather, was OK yesterday, today it was cold (nice Chicago weather). Anyways great news again on the results. My Emma is extreemly cranky too these days, dont know what up?LOL. Hope you all have a great weekend =) Sincerely Tracy (a mommy to an Emma too=) <tlgladfelter@comcast.net> - Friday, March 31, 2006 8:08 PM CST Hi, How precious are those pictures!!!!!!!!!!!!!!!!!!!!! You have the most beautiful girls! I love the video too. So sweet. We are so happy that Emma's test came out so well. What a relief. Sorry that we have not been by much. Kari and I are both sick. Kari is feeling much better, but I still feel bad. 2 weeks now! We love you guys and hope you have a wonderful weekend! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Friday, March 31, 2006 6:26 PM CST Hi From Tennessee! Thank you sooo much for visiting Bekah's page. www.carepages.com/ourangelbekahgrace I appreciate your prayers. God shows me His grace on a daily basis with my sweet angel. Your daughter is BEAUTIFUL!!! I am praying for you also. Kristi Cooley Kristi Cooley <kcooleyrn@aol.com> Cleveland, TN - Friday, March 31, 2006 2:42 PM CST Hi Emma- Just thought I would pop in to see how you are doing today? Hoping you are recoperating well from your surgery and that you are getting much needed and well deserved rest (I am sure LOL). Enjoy the sunshine, we are finally getting a taste of Spring here in Chicago YEAH!!! Hope all is well and take care. Tracy (a mommy to an Emma too=) <tlgladfelter@comcast.net> - Friday, March 31, 2006 9:12 AM CST Stopping by to say Hello.I am so Happy to know that you Passed that Test..God is good all the time...bearhugs.. The Prayer Bears Website Mary Mabe..... <mmabe63@yahoo.com> Coeburn, va usa - Thursday, March 30, 2006 8:47 PM CST Yeah Emma for passing your ABR test!!!!!!!! We love you sweetheart. I will check in on you again real soon. Elizabeth <michael_shipley@bellsouth.net> - Thursday, March 30, 2006 9:18 AM CST Hi Emma!!! Just thought I would pop in to see how you are doing today. Hope you are recovering well. I am so proud of you being such a big girl (I laugh everytime I look at that picture, she looks so darn cute!!!) Hoping things are well by you. Sending warm hugs and good thoughts your way. Sincerely Tracy (a mommy to an Emma too =) <tlgladfelter@comcast.net> - Wednesday, March 29, 2006 6:30 PM CST Hi Emma! That's great that you passed your ABR test! Have a great week!! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Wednesday, March 29, 2006 3:21 PM CST I'm so glad that Emma passed her ABR test! Yeah! Yesterday Emmi was in Dallas, too, getting the final checkups (audiologist, Dr. Peters, psych-neuro) for her cochlear implant--found out yesterday that insurance will clear only one at a time. Although we're so happy this option is available for Emmi, I'm glad that you don't have to deal with it with your Emma. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Wednesday, March 29, 2006 10:24 AM CST Such a happy face, Emma! What great news about hearing. Sticker make Everything better! Sending some your way-gotta find BRAVE ones! Kelly-Ann <kalars69@yahoo.com> Richfield, MN - Tuesday, March 28, 2006 10:24 PM CST WAY TO GO EMMA!!! I have been thinking about you all day and praying that things went smoothly, thank you God for hearing my prayers!!!! I am so happy to hear the hearing test results, that is so awesome. I bet she was sure funny after getting the "goofy juice" (I love it). Hope she is resting comfortably at home and you all get some much needed and well deserved rest. I am so happy that everything went well. Take care sweet girl!!! Sincerely Tracy (a mommy to an Emma too =) <tlgladfelter@comcast.net> - Tuesday, March 28, 2006 5:54 PM CST Thinking of Emma today. Good luck, she's in my thoughts and prayers. Robin Brunet <robinb@neptune.on.ca> Bradford, Ontario Canada - Tuesday, March 28, 2006 3:20 PM CST Thinking of you all today. Hope Emma's procedures go quickly and smoothly and free of any complication. Take care, God bless, and keep us posted!! www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Tuesday, March 28, 2006 2:08 PM CST Just wanted to write a quick note to let you know you are in my prayers. Good luck today. I know how you feel about the Carnitine...whatever is giving Sky her stength and extra weight we will keep. Whether it is the Carintine or not we don't know, but we will keep it going. Looking forward to your next post to let us know everything is just fine with lil Emma. ((((HUGS)))) and God Bless, Tracy (Skylar's mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Tuesday, March 28, 2006 11:14 AM CST Praying for the surgery to go well, and that Emma comes out of the anesthia feeling good. ((Hugs)) Theresa Pope <mtpope@sbcglobal.net> Clovis, CA - Tuesday, March 28, 2006 10:35 AM CST Emma- We are praying for you today! Wishing you a speedy recovery. Much love, Leslie & Family -Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, March 28, 2006 8:50 AM CST Emma!!! GOOD LUCK today sweet girl. I know I signed last night, but I could not let the morning pass without letting you all know I am thinking about her and praying SO hard that surgery goes smoothly this morning and that everything comes out with flying colors!!! Sending warm hugs and only the best thoughts!!! Sincerely Tracy (a mommy to an Emma too =) <tlgladfelter@comcast.net> - Tuesday, March 28, 2006 8:30 AM CST Hi Emma- Hoping you are feeling better!!! Just wanted to wish you luck if surgery is a go for tomorrow. I'll be thinking of you!!! Sending only the best thoughts and well wishes your way. GOOD LUCK!! Sincerely Tracy (a mommy to an Emma too =) <tlgladfelter@comcast.net> - Monday, March 27, 2006 8:43 PM CST Praying for you always Emma. Prayers and Bearhugs Love, Marci The Prayer Bears, SOEW and OWC www.caringbridge.org/visit/bryanandmark Marci Connell <mac093@bellsouth.net> Valdosta, GA USA - Monday, March 27, 2006 6:18 PM CST Dearest Princess Emma... I hope that you are feeling much better now. Joseph and I think of you and your family all the time. I wish that you lived closer to be able to come to Joseph's 2nd b-day party. We are celebrating this Sunday even though it is a week early!!! We love you sweetheart I will check in on you again real soon. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, March 26, 2006 11:11 PM CST Hi Emma- Sure do hope you are feeling better and had a good weekend. Thinking about you and sending only the best thoughts and well wishes. Sincerely Tracy (mommy to a Emma too =) <tlgladfelter@comcast.net> - Sunday, March 26, 2006 7:11 PM CST I hope Emma is better this weekend. Linda Irving, TX - Sunday, March 26, 2006 3:16 PM CST Hope all is well with you guys! We are going to Dallas on Wednesday. Providing everyone is healthy on both sides, maybe we can get these girls together for some play time!!! Enjoy the BEAUTIFUL weather! Janice and Samantha <cantrellcat@charter.net> Azle, TX - Sunday, March 26, 2006 1:40 PM CST Cute picture -sleeping on couch! Hope Emma's feeling better. kelly-Ann <kalars69@yahoo.com> Richfield, mn - Sunday, March 26, 2006 11:47 AM CST Hey There Lauren, thanks so much for checking up on us. The pictures of Emma and family are just too cute. I am still praying that you find out exactly what is going on with little Emma. There is a Dr. Brendan Lee in Texas, I believe at Baylor , who is supposed to be really great. Because of some of his studies, Rhyan will now be on a new treatment. You can e-mail me if you would like more info about him , it is linked thru the NUCDF, on Rhyan's site. God Bless, and have a great weekend!! ((HUGS)) Theresa Pope <mtpope@sbclgobal.net> Clovis , CA - Friday, March 24, 2006 10:29 PM CST Hi! I was checking in on Emma and I'm sorry about the ear infections! I'm happy her surgery could be rescheduled so soon- I know you are ready to get it over with! I bet she will do so well- I'm anxious to hear. We are keeping Emma in our prayers. I love the Easter designs! You do a great job on her page- it is one of my most favorite caring bridge sites. Hoping Emma is better and better each day and you all have a great weekend! Love, Leslie Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Friday, March 24, 2006 9:46 PM CST I am glad to hear you are coming to Houston for genetics. We go on Thurs, so give me an email if you want to hear how it goes...kind of a head's up if you want it. Do you know who you are seeing yet? Sorry to hear Emma has been under the weather...poor sick sweetie. I hope she is on the mend really soon. I hope her tube surgery goes on as scheduled...Nathan spiked a fever a few days before his and we were worried about having to reschedule as well. Saying prayers things only improve from here. Hang in there and thanks so much for the birthday wishes for our sweetie. Time sure does fly! Sending hugs to y'all... www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Friday, March 24, 2006 9:28 PM CST Hi Emma- I thought I would pop in to see how you are doing? Hoping that you are feeling better!!! Have a great weekend. Get lots of rest!!! Tracy Gladfelter <tlgladfelter@comcast.net> - Friday, March 24, 2006 8:26 PM CST Hi Emma, We sure hope you are feeling much better! I love the picture of ypu snuggling on the couch! Too bad you had to feel so yucky though. We hope you are feeling good enough to do something fun this weekend! We love you! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Friday, March 24, 2006 7:40 PM CST Hi Cutie!!! Your pictures are priceless!! My prayers are with you always!! Love in Jesus, Dorine McNary Williston, ND - Friday, March 24, 2006 3:14 PM CST Nothing better than just snuggling when not feeling well. Hope you are getting better lil Emma! Will check in on you Monday. Denise and Sydney www.caringbridge.org/in/sydneylynne Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Friday, March 24, 2006 2:03 PM CST Hi Miss Emma- Boy dont you look cute all snuggles up on the couch. I am sorry to hear that surgery is being held off until Tuesday, but I guess you gotta do what you gotta do. I am praying that she gets better real quick. Glad to hear that her temp is down. Thinking of you all and sending warm thoughts and prayers. Thank you for sharing her story with all of us, I will continue to check in on her to see how she is doing. Have a great and relaxing day. Sincerely Tracy <tlgladfelter@comcast.net> - Thursday, March 23, 2006 7:26 AM CST G'DAY EMMA, it's you Aussie friend Jay. Sorry I have not been around for a while, had a lot of things on. Sorry you have ear infections, you are a tough one so I know you sill bounce back. I send you lots of my strength and courage and lots of big big big big big big KOALA HUGS. (Jay) www.caringbridge.org/visit/Jay JAY'S JOURNEY Melbourne (VERY HOT), Victoria Australia (down under) - Thursday, March 23, 2006 3:21 AM CST I hope Emma is feeling better soon. Thinking of you all. Angela(heather Grace's mom)*Angels on Earth* Mass - Wednesday, March 22, 2006 8:45 PM CST I hope Emma is feeling better. We have a bad virus going around our school system, with high fevers and a cough. There was 158 kids out of school yesterday. Lynette <lveach@hardynet.com> Petersburg, WV usa - Wednesday, March 22, 2006 2:21 PM CST Emma- I pray you are feeling better and are able to still have your surgery on Thursday. You are so precious and your site makes me smile each time I visit it! Love, Leslie Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Wednesday, March 22, 2006 8:14 AM CST Good morning Miss Emma- Just thought I would pop in this morning to wish you a great day. Hope you are feeling better, I said a prayer for you last night. I will be away all morning and afternoon, so I thought I would wish you a great day!!! Hope the doctors appt goes well today. You are all in my thoughts and prayers. Sincerely Tracy Gladfelter (mommy to a Emma too) <tlgladfelter@comcast.net> - Wednesday, March 22, 2006 7:29 AM CST Oh no Emma!!! I am praying extra extra hard this evening that you are feeling better and that nasty fever goes away!!! I know its scary not having any other symptoms. Poor baby girl!! I will check in tomorrow to see how she is doing. Take care sweet girl and get better soon!!! Sincerely Tracy Gladfelter <tlgladfelter@comcast.net> - Tuesday, March 21, 2006 8:54 PM CST Stopping by to say Hello and to let you know you are in my thoughts and Prayers...HOpe you get to feeling much better soon...Bearhugs.. The Prayer Bears Website Mary Mabe <mmabe63@yahoo.com> Coeburn, va usa - Tuesday, March 21, 2006 8:36 PM CST Hi Emma- Just thought I would pop in to see how you are all doing. Praying all is well. Sending the best thoughts and prayers. Sincerely Tracy Gladfelter <tlgladfelter@comcast.net> - Tuesday, March 21, 2006 11:15 AM CST So sorry to hear about the EEG results. I know that is not what you wanted to find out, but then again, it is more answers and pieces to the puzzle. Let me know who you are seeing in Houston and of course let me know if I can help with any doctor info. or Atlanta info. Again, if you find out about the mito soon enough, think about the conference in Atlanta this summer. Sounds like Miss Tough is still just as cute as ever despite everything going on!! Please let me know if there is anything I can do! Sending lots of love, thoughts, & prayers~~ Vicki & Caden Vicki Williams <vicki.williams@wallisd.net> San Angelo, TX - Monday, March 20, 2006 2:53 PM CST Diana <Diana893@gmail.com> Dallas, TX - Monday, March 20, 2006 2:49 PM CST Thinking of Emma today. She is too cute. Tina & Lance <lancejrmommy@comcast.net> - Sunday, March 19, 2006 11:54 AM CST Hi Emma- I hope you are doing good. I thought I would check in to say "HI". Hope you had a fun St. Patrick's Day!!! Hope all is well. Take care and have a great rest of the weekend!!! Tracy <tlgladfelter@comcast.net> - Sunday, March 19, 2006 11:12 AM CST Way to go with the weight and height gain, Emma! Linda Irving, TX - Saturday, March 18, 2006 6:03 AM CST Enjoy this Friendship Flower! ^ Click ^ to send a Friendship Flower and ^ Click ^ Clover for a visit to SOEW's March St. Patty Theme Page God's love 'n SONshine always, Angel Jen SOEW NEW WEBSITE Click to visit Angel Jen <angel.jen@mymacs.org> Nashville, TN USA - Thursday, March 16, 2006 4:22 PM CST Hi Emma! Its so good to hear that you're gaining weight! Sorry to hear that you have to be on another med... but I pray it helps your lots! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Thursday, March 16, 2006 10:01 AM CST We are coming by to send all of you big hugs from all of us here in FL. Good job on the weight gain. I will have to find out what you are feeding her we still cant get Joseph to gain weight. We love all of you. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, March 15, 2006 10:39 PM CST Thinking of you! Shay & Chayce Prayer Bears, Giving Hope, SOEW Chayce's Mission <eeneedscure@yahoo.com > Davison, MI - Wednesday, March 15, 2006 8:06 AM CST Hi everyone- I am so sorry I have not been here in awhile, our computer was down and out for repairs. Thankfully it is now up and running better than ever. I am so sorry to hear about the seizures. I am praying that the new meds she is on does the trick and put an end to them!!! I had to go back and read the journal entries, since its been quite sometime. It sure does sound like you all have been busy. I think its great that Emma is on the "college" diet as you put it, I think it is cute, and hey whatever works right!!! She will get there in "Emma time". The new pictures look so cute, she is sure a heartbreaker, you definately will have your hands full LOL. Anyways glad to hear all the positive things and glad to hear you are "positive" with the things that are not. God just keeps throwing you curve balls and it'a apparent you keep knocking them out of the ball park. Take care everyone. I'll check in more frequently now that the computer is up and running. Tracy Gladfelter <tlgladfelter@comcast.net> - Tuesday, March 14, 2006 4:28 PM CST McKayla had seizures, she has been seizure free for two years now,she would have very odd ones staring and falling it was difficult to figure out.Once they did though the meds made a big difference.Hopefully you guys will see a big difference too.Just swinging by to check on you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Tuesday, March 14, 2006 3:13 PM CST Hi Emma, I'm so sorry to hear about the seizures. We are keeping sweet Emma in our prayers. That is AWESOME news about the Neocate! We love you guys so much! Have a great tonight and a better tomorrow!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Monday, March 13, 2006 7:35 PM CST Great news about the Neocate! I know it's scary to find out about possible seizure activity in your child--know from experience since my daughter Tricia (Emmi's mom) had a similar diagnosis--but finding out is part of the solution. I'll say lots of prayers that you see a big and beneficial difference from the medication and that the epilepsy study can be avoided. Give me a call if I can help with anything here or let us know if you'll need a home base in Houston when you go there since Tricia and her daughters have all moved there. Linda Irving, TX - Monday, March 13, 2006 8:23 AM CST I am so sorry it was not betternews. I was so hoping for it to be no big deal. I am glad, however, that they found out about it and are able to now treat it. Hopefully the med will be all she needs to improve and the need for the admit will not be there. Praying for good results from the med. Take care and hang in there...it is never easy to get news you were not expecting. Praying for peace for you both with this. Take care and God bless! www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Saturday, March 11, 2006 9:45 PM CST Thinking of you :-) Kelly-Ann <kalars69@yahoo.com> - Friday, March 10, 2006 8:23 PM CST That carnitine is a miracle worker, isn't it? As I think I may have mentioned in an email, when Emmi was started on it, her therapist asked what had changed, because she said Emmi changed so rapidly. She said she made months worth of progress in a couple of weeks. I'm so sorry that you have to worry about the EEG. By now, you've probably talked to the neurologist and I hope that the news was not disturbing. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Friday, March 10, 2006 10:56 AM CST I love the picture of Emma at the top of the page today!! So glad the carnitine is helping alot. Will be thinking of you and praying for you while you meet with neurology. Hoping that it is nothing too different from the past. Alison Andrew's mom <boettcher6@shaw.ca> bc canada - Friday, March 10, 2006 9:50 AM CST Sorry it's been so long since we have signed in. I just dont have enough time to check on everyone as often as I used to. But........Great updates! Sounds like Emma is doing great! I am sorry about the EEG. Please let us know what the doctor said when you can! Sending thoughts & prayers to you all~~ Vicki & Caden Vicki Williams <vicki.williams@wallisd.net> San Angelo, TX - Friday, March 10, 2006 8:55 AM CST I am so happy to hear that Emma is doing so good on the new meds. I also love the new pics on her site. I will check in on you again tomorrow to see what goes on at the neuro appt. I will say extra prayers that all goes well. Give Emma big hugs and kisses from all of us. We love all of you and I will be thinking of you all day tomorrow. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, March 9, 2006 9:28 PM CST Hi Emma, Great news AGAIN!!!!!!!! Know that we are praying the the EEG is nothing to worry about. I know that we worry about EVERYTHING though. We love you all. Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Thursday, March 9, 2006 7:39 PM CST What a bunch of good news Emma..you are doing awesome. Its always great to read of all the improvements. Hugs to you! Denise and Sydney Denise Pequignot <dpequignot@earthlink.net> South whitley, in usa - Thursday, March 9, 2006 12:47 AM CST Hey There, so happy to hear about the improvements in Emma!! You go girl. And Lauren you are right about the carnitor, it will loosen the stools. Rhyan's doctors told me it would. Rhyan was able to stop using her miralax too, when she started on Carnitine about 3 years ago. It was Rhyan's doctor here in California that did all the studies on Carnitine and its uses on children with metabolic diseases!! If you want her info just let me know!!! God Bless You all!!! (((HUGS))) Theresa Pope <mtpope@sbcglobal.net> Clovis , CA - Wednesday, March 8, 2006 8:20 PM CST Hi, I just wanted to say I am so glad you are seeing results with the Carnitine. It is a true blessing to see such improvements. One of the side effects of the Carnitine is that it causes loose stool, but for those of us with constipated kids it is another benifit. Sky still has to take Miralax daily, but the Carnitine helps her. Glad things are going well. Take care and ((((HUGS)))), Tracy (Skylar's mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Wednesday, March 8, 2006 10:43 AM CST Hi Emma, Awesome news all around!!! I bet mommy and daddy are soooo proud of you! Good luck with the EEG tomorrow! We love you guys!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Tuesday, March 7, 2006 10:39 PM CST Emma- So wonderful to hear about how GREAT you are doing! Keep up the awesome work! You make your mommy and daddy so happy! We are smiling for you! Love, Leslie and Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, March 7, 2006 10:30 PM CST Wow..I am so Happy to know that you are doing so good....Hang in there..>Bearhugs... The Prayer Bears Website Mary Mabe <mmabe63@yahoo.com> Coeburn, va Usa - Tuesday, March 7, 2006 8:31 PM CST YES! All that you are seeing is possible with Carnitine addition - Miralax, strength & endurance and you might even see hand behaviors disappear! Happy to know that there has been a BIG improvement-despite Eau du Emma. :-) Good luck with EEG and other appts. I'll chekin-when I can....sigh. Kelly-Ann Larson <kwarren@visi.com> Richfield, MN - Tuesday, March 7, 2006 6:40 PM CST I hope this week is a good one. Linda Irving, TX - Tuesday, March 7, 2006 9:44 AM CST Just wanted to stop by and say Hi. It has been awhile. We just went to the dentist too and all went well! Take care! www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Monday, March 6, 2006 9:29 PM CST THE PRAYER BEARS LOVE ALWAYS BRENDAMY LOVING DAD <brurka@shaw.ca> EDMONTON,ALBERTA/CANADA, - Monday, March 6, 2006 9:19 PM CST hey sweet family, seeing these awesome pics made me miss my nieces...oh and their parents of course!! maybe i will bring the kids to FW late this week... i have not yet tried to sell this idea to brad, but i don't think it will be that hard of a sell! xxoo, mindie mindie graves houston, tx - Monday, March 6, 2006 1:59 PM CST Hi Emma and family, Boy, it has been forever, but please know that we think of you all daily. I have been helping poor Alek with his mounds of homework for the last week or so. I think I could pass the 3rd grade again with my eyes closed! I love the cute pictures of Emma chubby rolls. Kari had really fat legs, but now they are just legs. Cute legs though!!! We hope all is well in your home this weekend. We love you lots! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Sunday, March 5, 2006 7:59 PM CST Just stopping by to say that we are praying for you! Emma's pictures are so cute! Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Sunday, March 5, 2006 4:04 PM CST Dearest Princess Emma.... I love the pictures that Mommy put on your site. You and Joseph are both starting to put some weight on those thighs. Yeah for Emma & Joseph!!! Have a great weekend www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, March 4, 2006 11:04 PM CST Hi Emma! I'm so glad that your dentist appt went well. I've been dreading Lily's first visit to the dentist. But, reading about your positive experience has made me less worried about it. I hope you and your family have a great weekend! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Friday, March 3, 2006 11:09 PM CST Hi! Just coming by to check on Emma. Love the pictures- aren't camera phones great?! Wanted to let you know Morgan had her muscle biopsy last week- it is a small incision on her thigh. She had several other things done as well during the surgery and I know she was hurting from that but I really don't think her leg has bothered her at all. She is just kicking away. I know we "sat on the fence" for 10 months and finally decided to go forward with the biopsy. So now we sit and wait for 3 months for the results(sigh). I know you are scheduled with lots of upcoming appointments- we wish you the best. Emma is so precious and I love visiting and reading about her! Love, Leslie & Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Friday, March 3, 2006 7:57 PM CST A Sweetheart..thats what you are..YOu are such a darling....I would love to just have a Big Bear hug from you.... The Prayer Bears Website Mary Mabe <mmabe63@yahoo.com> Coeburn, va Usa - Friday, March 3, 2006 7:54 PM CST Hi Emma and everyone- Saw the posting on Angels on Earth about the update so I thought I would stop by and say "HI". I love the pictures you have of Emma, she is SO cute. She is definately going to be a heartbreaker!!!! So glad to hear that she is getting those chubby thighs, she again looks so cute!!! Way to go at the dentist Emma!!! What a big girl!!! Glad to heat things are going well for Miss Emma, and I promise to check in on her more frequently. PS Send some of that heat up to Chicago, it is FREEZING here!!! Can't wait until spring LOL Tracy Gladfelter <tlgladfelter@comcast.net> IL - Thursday, March 2, 2006 5:11 PM CST Hi Emma! I'm just stopping by to say hi and let you know that I'm thinking of you!! I hope you have a GREAT weekend!! God bless and *warm hugs* p.s. Wish the rolls on MY thighs were that cute!!! :) *Jennifer C* from Angels on Earth <coopsie78@gmail.com> Eugene, OR USA - Thursday, March 2, 2006 2:53 PM CST What a cutie! thinking of you all! Mandy (Angles on Earth) mamatooryan - Thursday, March 2, 2006 2:00 PM CST Samantha comes up to the computher and is pointing and Saying Emma, I was guessing that meant that she wanted to see her pictures. She blew Emma a kiss when she saw her friend. Then she went down the hall calling her. Funny kids we have!!! Can't wait for the weekend!!! Glad the dentist appts went well. Love, Janice and Samantha www.carepages.com (page name--- SamanthaGable) Janice and Samantha <cantrellcat@charter.net> Azle, TX - Thursday, March 2, 2006 12:19 AM CST I love the chubby thighs! Too cute! Hope the ears stay clear!! Have a great weekend! Tammy Wambles <frothy27@yahoo.com> Murphy, TX - Thursday, March 2, 2006 11:40 AM CST Love those thighs! I have to say though, when it's 60 degrees here in Minnesota, we open the windows! My sister and her family are headed in your direction to board a cruise ship, I am so jealous! I'm glad to hear things are going well, God Bless, Bonnie and Patrick www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Thursday, March 2, 2006 6:57 AM CST I couldn't go to a friend's daughter's wedding shower a couple of weekends ago, because I was worried about driving out of town with all the ice in the forecast and now we all have our air conditioners on. It's hard to know how to dress in the morning, isn't it? I hope Emma's new teeth soon come through and that's all the fussiness was about. Linda Irving, TX - Thursday, March 2, 2006 6:42 AM CST Hey Emma! Looking cute in those pictures! lol... Sorry to hear about the ear drops... hope it passes fast! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care, SOEW ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Thursday, March 2, 2006 4:08 AM CST Just swinging on by to say Hi Emma Funny you should mention about the dentist, Hannah's teeth came in all in a wierd order too. I hate the dentist so hope it all goes well for you sorry about the sleepless nights, I just wanted to give you all a big hug and hope you get some better nights sleep sending our love and best wishes Jo Hannahand Rebecca Jo <yarnall@blueyonder.co.uk> England, UK - Wednesday, March 1, 2006 4:12 PM CST Hi All, I loved the pictures, you girls are sooo beautiful. Our thoughts prayers are with you all. Just wanted to stop by and let you know we are thinking of you. Love, Aunt Kathy & Uncle Vinny xoxoxoxo Kathy Monaco <0424kam@bellsouth.net> Lake Mary, FL USA - Wednesday, March 1, 2006 1:51 PM CST Tabby NEVER sleeps at night! Little stinker! Hope you are having a great day! We love all of your pictures! ~TABBY'S PAGE~ Tabby & Karen (mom) <karenpuddn@comcast.net> - Wednesday, March 1, 2006 1:24 PM CST Way to go Emma, keeping Mommy on top of every boo-boo! Ugh for a possible ear infection though. Maybe it's one of those missing teeth instead? Linae been chewing her index fingers- frequently, so maybe there's a theme between them. Kelly-Ann Richfield, MN - Tuesday, February 28, 2006 10:16 PM CST Hi Emma and family, Today Kari got the cutest pink shaggy dog in the mail!!! Thank you all sooooooo much!!!!!! Kari just adores it. She took her nap with it. You are so thoughtful. We really appreciate it. I love the shirt Emma has in her picture. I went to the website and I think they are all so cute. I will be ordering Kari a few. I really think she needs the one that says "just because I can't talk..." That shirt is just perfect for Kari. I hope you are getting some sleep! Kari has been on a not-sleeping gig for a few days too. She falls asleep fine, but is up around 3:00 every morning. Well, thanks again and have a great evening. We love you!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Tuesday, February 28, 2006 3:20 PM CST Hey There , Thanks so much for checking up on us. About the twitching thing with Emma. My daughter would do that too with a metabolic crisis and would have really bad headaches. Rhyan also has the elavated liver enzymes, at one point they were in the 12,000's. And after she has ahd a crisis the enzymes go up for the next week or so. I know it is like putting all the pieces of the puzzle together. It is so hard, I went three years without a diagnoses. I am praying for Emma and your family. The web page looks so cute. God be with you on your journey , stay strong. Our kids our amazing, there's no one I know who could go through what they do, and yet love life and smile through it all. God gave us these special childen so that they could bless our lives, and the lives of others. I will continue to check up with you all!!!! GOd Bless, Theresa Pope (Rhyan and Aubrey's Mom) www.caringbridge.org/ca/rhyanpope Theresa Pope <mtpope@sbcglobal.net> Clovis , CA - Tuesday, February 28, 2006 1:37 AM CST Where did you find that Never underestimate me shirt, Sydney needs one!! Sydney also has been battling breathing problems, going to look into an allergy specialist. Hope things get better for you cutie pie! Denise and Sydney Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Monday, February 27, 2006 1:26 PM CST I hope Emma stays well and can make all her appointments. Linda Irving, TX - Sunday, February 26, 2006 1:01 PM CST Hi Emma and Lauren, Thank you so much for the birthday wishes for Kari! She did have a great day after working so hard during therapy! I hope things are going well at your house and that you all are having a good weekend. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Saturday, February 25, 2006 12:16 AM CST Hi Sweet Bug!! My love and prayers are with you, Dorine McNary Williston, ND - Friday, February 24, 2006 3:00 PM CST Hi Princess Emma.... So sorry sweet heart that we have been slacking on signing guest books. Joseph has been keeping me very busy. So much has been going on in your little life. Joseph has to use his breathing machine alot. He likes the face mask because it is shaped like a fish!!!!! We love you sweet heart and hope that all of your upcoming appointments go smoothly!!! We think of you all the time. You have a good weekend and I will check in again real soon. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, February 23, 2006 10:53 PM CST Thank you for that sweet message. Meant the world to me. Is Miss Emma on breathing treatments with a nebulizer? If not...that is the way to go. You can ward off an asthma attack when she first starts to show signs. Maybe she will grow out of it soon. Rebecca started with this at about Emmas age. She's now 15 and only uses an inhaler when we know she's going to be around an allergen and exercising. That child was on steroid pacs, inhalers, every day decongestants and clairitn...the albuterol. She was a walking medicine cabinet. Now she's breathing great. So here's praying that Emma will blossom on out of this as she gets older. Did I tell you how much I love that picture of her in the pig tales at the top of the page. Gosh she's soooo cute!!! Adn the B/W of the sisters...you need to frame that if you haven't already. Love from GA Amy and AUSTIN <ambbab@alltel.net> gray, ga usa - Thursday, February 23, 2006 9:06 PM CST Praying for you always EMma...I hope you are feeling better..Prayer and Bearhugs Love, Marci The Prayer Bears, SOEW, and OWC www.caringbridge.org/visit/bryanandmark Marci Connel <mac093@bellsouth.net> Valdosta, GA US - Thursday, February 23, 2006 1:49 PM CST Hope the new medicine gets all this junk out of her lungs, and she continues to breath better. DOn't you hate how far out they schedule appointments sometimes, don't they realize we are going crazy waiting for these things. Hope the Carnitor helps, watch out for the fisshy smell though, it can be pretty interesting. Thanks for visiting Will's page, the glitter looks very cool. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, CO United States - Thursday, February 23, 2006 8:59 AM CST Glad the breathing is better. At least with the medicine she will feel better and so will you, Mom! We love seeing all the new pictures! Your girls are so pretty! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Thursday, February 23, 2006 8:40 AM CST Glad you are able to get the ball rolling on the testing. I would keep the appt as well if I were you...you never know! Would love ot meet up if you do decide to come down for the testing. Do I remember you saying you have family where we live outside of Houston? Let me know if I can help you out in any way! Glad to hear everything else is being scheduled and she is feeling better today. thinking of you all... www3.caringbridge.org/tx/nicholasp Melody and the boys <dmnnpohla@houston.rr.com> - Thursday, February 23, 2006 0:39 AM CST Hi guys, I love the pictures of Emma! She is just too cute! I'm glad things are moving in the right direction for Emma! As much as you are nervous about the mito issue, it is good that you have some direction and doctors that are willing to help you out. Please know that we are praying for you guys everyday! We will not be such strangers from now on. We love you all!!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Wednesday, February 22, 2006 4:30 PM CST She is so incredibly cute!!! Alison-Andrew's mom <boettcher6@shaw.ca> BC Canada - Wednesday, February 22, 2006 10:19 AM CST Way to go on the Weight Gain......Bearhugs... The Prayer Bears Website Mary Mabe <mmabe63@yahoo.com> Coeburn, va Usa - Tuesday, February 21, 2006 4:35 PM CST Hi Emma and family! Just checking in to see how you are doing! Great deal on the weight! Morgan and Emma share the same birthday and Morgan is 17 lbs- can you imagine?! Teeny tiny. Glad to hear Emma runs the show- :) Just like a woman should! :) Wishing you all a great rest of the week. Keep me posted on everything. Love, Leslie & Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, February 21, 2006 2:59 PM CST Hi Emma! You and your big sister are cutie pies. Way to go on the weight gain! We'll keep you in our thoughts when you have surgery. Shannon & Kaylee www.caringbridge.org/tx/kayleebug <SayWhoRU@aol.com> Waco, TX - Tuesday, February 21, 2006 11:41 AM CST Hi Emma and family! I hope that the doctor's in Houston can help you find a dx. Are you going to Texas Children's Hospital? That's where we take Lily too see all her specialists. I really like her genetics doctor there. So far, he hasn't been able to dx her, but it's not for lack of trying. He is very kind and willing to listen. He doesn't make the appt's feel rushed. I'm praying for you that you can get some answers soon. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Monday, February 20, 2006 2:21 PM CST Emma and family , Praying that the Dr's can help you nail down a definite diagnosis . being in limbo is not an easy way to live . Stay strong . Emma needs you . Eli & Fletcher Michele Gist W-S, NC - Saturday, February 18, 2006 9:17 PM CST Dearest Emma & Family.... Thank you all for the kind words that you have left in Joseph's guest book. I have to tell you that I ahve had a hard week dealing with all of this. When I am feeling a little down I always come look at sweet Emma's face that always brings a smile to my face. I hope that Madi had a wonderful Birthday. And Lauren I hope that your ear is all better now!!!!! I also pray that you can get into Houston quick and get those questions that you want answered. I will check in on you all again real soon. Have a great weekend!!!! Take care big hugs coming your way from us here in Florida www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, February 18, 2006 8:28 PM CST Hi. I am glad that you are beginning to get a sense of direction in terms of where to go for further testing. Andrew had a whole bunch of mito testing done over the years. I hope that through all of this they are able to find a diagnosis for you. BTW, she is such an incredible sweetie in those photos!!! Thanks for visiting Andrew's site. I'm so glad that you were able to find the sign in info Alison - Andrew's mom <boettcher6@shaw.ca> BC Canada - Saturday, February 18, 2006 11:32 AM CST Hi Emma and Family- I apologize for not visiting in awhile, my kiddies have been keeping me on my toes. I am happy to read about the results of Emma's tests and I am hoping things will continue on the "good news path" for you all. Sending prayers and well wishes to you and your family. Tracy Tracy <tlgladfelter@comcast.net> Round Lake, IL - Saturday, February 18, 2006 11:17 AM CST Wonderful news that the labs were normal, although it does not put you any closer to a dx. We are waiting to see Genetics at TCH late next month for possible metabolic and mito workups. The wait for us has been only since early Dec, so I guess 3.5 mos about? Not too bad as far as TCH new patient wait is concerned. How cool that you are coming here. Email me and maybe we can meet when you are here...I would love to chat with you about the testing, too! Love the new pics...the site looks great! Take care and thx for all the support on the boys' website! We have truely appreciated it! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dmnnpohla@houston.rr.com> - Friday, February 17, 2006 11:26 PM CST RachelJoy and I are praying for your family today. Stephanie and RachelJoy <mom2rj@comcast.net> - Friday, February 17, 2006 7:58 PM CST I hope houston will help you guys get a path on where to go from here. The lady that wrote under me is right on the money for the Mito. stuff. She explained it perfectly. The UMDF is a great organization. We were between Mito and Rett with alyssa, so I have gotten close to a few families who deal with Mito. and did have to learn alot about it- then she was dx with RS. I do have people with a support group for mito here where i live that would have no problem talking/emailing with you. If you want to chat with them just email me. Your family is always in my thoughts and prayers. Hang in there. www.caringbridge.org/ks/alyssadarrah shannon <shaystoiber@sbcglobal.net > leawood , ks s usa - Friday, February 17, 2006 5:06 PM CST Hi Lauren. I had this info about Mito on Morgan's website for a while. I put it on there b/c after we told people we were about to have her tested for it- we received lots of questions about what it is. It's very hard to describe- I know! I thought this does a good job of it- it came from the UMDF website: "Imagine a major city with half its power plants shut down. At best, such conditions would produce a "brown out" with large sections of the city working far below optimum efficiency. Now imagine your body with one-half of its energy producing facilities shut down. The brain would be impaired, vision would be dim, muscles would twitch spastically or would be too weak to allow your body to walk or write, your heart would be weakened, and you would not be able to eat and digest your food. For large numbers of people, especially children, this is precisely the situation in which they find themselves due to defects in the mitochondria, organelles found in every cell of the body which are responsible for the body's energy production. Mitochondrial diseases compromise their lives and can be fatal ..." Many of our friends said this explanation did help. Wishing you all a nice weekend and the best of luck with your geneticist. It took us 3 attempts before Cigna would approve the muscle biopsy! Just keep pushing if you have problems. I know I don't have to tell you that b/c you will continue on- you are awesome! Love, Leslie & Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Friday, February 17, 2006 4:22 PM CST HI Emma, Aunt Barbara helped me find your guestbook,so Nanny is finally able to send a love note to you, Madi, Mommy and Daddy.I'm sorry to hear that all of you have been sick again. I hope that all of you can come to my place in Florida, the beach is waiting for all of you. Nanny will take good care of all of you. Let me know more about Houston, I hope and pray that they will be able to find out what is making you so sick all the time. I LOVE YOU ALL ALWAYS AND 4 EVER,NANNY XXXXXX Nanny <barbaranicastro@adelphia.net> The Beach , Fla - Friday, February 17, 2006 12:44 AM CST Hi Emma, Please know that our thoughts and prayers are with you and your family. We love you! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Thursday, February 16, 2006 10:10 PM CST Hi Emma and family! I love the St. Patrick's theme to your site- your mom does such a great job with it! I'm so sorry for the news that Mito is suspected- it's like being hit by a freight train. Even though we start to expect surprises at our children's appointments - it is still shocking. We live in Atlanta and are in Dr. Schoffner's practice. Morgan had her pre-op visit today before the biopsy and g-tube surgery next week. I was told that people come from all over the country for the muscle biopsy here. If you have any questions- feel free to contact me! Sending you all lots of prayers. Love, Leslie & Morgan Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Thursday, February 16, 2006 6:43 PM CST Thinking of you today and always.....Bearhugs.... The Prayer Bears Website Mary Mabe <mmabe63@yahoo.com> Coeburn, va Usa - Thursday, February 16, 2006 12:54 AM CST Lauren, The Drs put Skylar on Carnitine a few months ago and she seems to be a bit stronger on it. I believe it has helped her, so I hope it does the same for Emma. About a year ago they tested her Carnitine level, and found it was fine, but finally decided to just give it a try. I am so glad they did. I hope all is well with you and your family. I am so glad to know someone else going through such a similar journey. ((((HUGS)))) Tracy (Sylar's Mommy) Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Thursday, February 16, 2006 10:45 AM CST I'll be praying as you all go through this trying time of testing. I'll be praying for strength and wisdom for the doctors and that you find a diagnosis. I'll be praying for continued good health for emma. skye sends a nice snuggly cuddly hug God Bless tamm cline <tamm06@aol.com> - Thursday, February 16, 2006 10:12 AM CST I'm so sorry that you've been sick and that the girls' checkups turned up some worries, too. I'll send lots of prayers and thoughts your way over the coming days. Linda (Emmi's Grammie, www.caringbridge.org/visit/emmi Irving, TX - Wednesday, February 15, 2006 6:21 AM CST LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA/CANADA, - Tuesday, February 14, 2006 10:22 PM CST Happy Valentine's Day, Emma & Madi! Love, Lily and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Tuesday, February 14, 2006 8:39 AM CST The pictures are gorgeous, i especially love the black and white ones. Hope the results come in quickly for you so you can stop worrying. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, CO United States - Monday, February 13, 2006 8:31 PM CST HAPPY BIRTHDAY MISS MADISON!!!! The big # 5!!! We had so much fun in the rainforest with you!!! Janice, Chris, Lance and Samantha <cantrellcat@charter.net> Azle, TX - Sunday, February 12, 2006 11:39 PM CST The pictures are gorgeous as usual! Happy Birthday Madi! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Sunday, February 12, 2006 9:48 AM CST I hope the weekend is going well. My granddaughter, Emmi's older sister, has the same blue dress that Madi is wearing. I bet these two could compare notes about waiting out their sisters' therapy sessions, couldn't they? Linda Irving, TX - Sunday, February 12, 2006 8:57 AM CST Dearest Madi..... As you can see we are sending you many Birthday wishes to such a special little girl. We think of you often. Have a wonderful Birthday and I will come back soon to see pictures. Don't forget to make a wish!!!! Sending lots of bear hugs your way on such a special day!!!! www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, February 12, 2006 0:48 AM CST www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, February 12, 2006 0:43 AM CST www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, February 12, 2006 0:41 AM CST The Prayer Bears Hailee Just stopping by to wish you and your family a happy valentines day.. Have an awesome week. melissa <angels4hailee@Cox.net> cavecreek, az usa - Saturday, February 11, 2006 1:20 PM CST Hi Emma and family! Thanks for the sweet messages you left in Lily's guestbook. It's nice to know that we're not alone in dealing with autistic and sensory issues. I wish we lived closer to each other. It sounds like Lily and Emma would enjoy each other's company. We hope you all have a wonderful weekend! Hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Saturday, February 11, 2006 1:14 PM CST Lauren and Emma, Thanks for checking up on us. Rhyan continues to do well, I forwarded your site to my friend Tracy, who's daughter is also undiagnosed and is going thru exactly what your family is with Emma. I will continue to pray for answers. Your pictures are so precious and I loved the poem, it really hit home for me. Your website is too cute, I'm not that talented when it comes to computers, so Rhyan's is pretty basic!!! Hope you have a blessed weekend. Theresa Pope www.caringbridge.org/ca/rhyanpope Theresa Pope <mtpope@sbcglobal.net> Clovis , CA - Saturday, February 11, 2006 10:33 AM CST I love the photos. I swear...your girls get prettier every day. How is that possible??? Happy Valentine's Day! Love from GA Amy and Austin <ambbab@alltel.net> Gray, GA USA - Saturday, February 11, 2006 8:34 AM CST Hi Emma, thanks for signing my guestbook. My little brother Johnny also loves boxes with packing peanuts! Who wants to play with regular toys with fun stuff like thatto play with?! Mommy said she always worries about me too whether what I'm doing (like falling a lot) is normal for my age or whether it is another indication that something else is going on. Tell your mommy and daddy to hang in there. They have two beautiful happy little girls. P.s. - Tell your big sis that I love princesses too! Jenna Hanover, MD - Saturday, February 11, 2006 6:43 AM CST Thanks for signing our guestbook. Your pictures are beautiful. www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Friday, February 10, 2006 6:27 PM CST oh my goodness they're cuties. i hope all is well. take care Robyn mom to Nicole and angel PJ www.caringbridge.org/visit/nicole RW Petawawa, Ontario (Canada), - Friday, February 10, 2006 1:36 PM CST Hi Lauren, My name is Tracy and I found your daughter's website through Rhyan Pope's page. Theresa wrote me to tell me your dd sounds a lot like mine. I started reading your page and I felt as though I was reading all about my dd's life and our struggles. There are a few differences as my 22 month old dd had a lot of liver problems, but no heart problems. My dd started with the jaundice, but after three hospital phototherapy treatments in her first month we knew there was a problem. My dd is undiagnosed as well, some of her problems are: gastroparesis (delayed gastric emptying) she had a plyloraplasty done, slow motility, g-tube, hypotonic, delayed motor skills (did not sit till 1 year, crawled at 18 months, just started walking at 20 months), speech problems (she now knows about 12 signs and has a vocabulary of about 10 words), cataract, immunity problems (she has had whooping cough, chicken pox and mono all at the same time, RSV, c-diff, roto-virus, yeast infections, and any cold/flu she comes in contact with), enodcrinology problems, etc., etc., etc. She has been tested for multiple genetic, chromosome, mitocondrial, metabolic disorders. All of which have come back normal or non-significant. As I read your page I kept thinking, "that sounds so much like Skylar." And the different feelings you write about I think, "that is how I feel." I would love to talk with you. I am so excited to find another child who finally sounds similar to my dd. You can visit her webpage through Carepages.com You will need to sign on and give yourself a name and password. Don't worry they don't send out any junk mail, it is only to let me know who has visited her site and to let you know with an e-mail as to when I update Sky's page. After signing in type: SkylarMacFiggen (all one word). I look forward to hearing from you. God Bless, Tracy - Skylar's mom Tracy MacFiggen <tred@allbrightcotton.com> Clovis, ca - Thursday, February 9, 2006 4:51 PM CST Hi guys~ Sorry we have not been by in a bit. Collin is hasn't been feeling well and I have been busy with the move!! You are always in our hearts and thoughts!!! OH, I just love the new pictures!! Your girls and Regan would have a blast together!!! TO CUTE!! BIG HUGS, Julie and Collin julie <collinpresley@aol.com> - Thursday, February 9, 2006 3:19 PM CST OMGoodness, how precious are they? What little dolls you have there! Thx for the guestbook entries. I wish things have been a little less chaotic so I would have more time for signing myself. I appreciate the thoughts, though. Thank you. Glad to see Emma looking so happy and well. We are thinking of you all as well, even if we do not sign as often as we would like. www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dmnn@houston.rr.com> - Thursday, February 9, 2006 2:39 PM CST Those pictures are the best,Emma you are a little miracle it is amazing what you are accompishing. You keep on going,McKayla keeps doing things we were told she would never do! Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Thursday, February 9, 2006 1:15 AM CST I'm sorry that the hearing test didn't go as you hoped, and I hope the ABR delivers better news. I'm a grandparent and not a parent, but I remember well how disturbing our Emmi's test was and I'm glad that you were able to determine that Emma was hearing voices. I loved seeing those picturesof Emma playing in the box. She's so cute. Linda Irving, TX - Wednesday, February 8, 2006 10:40 PM CST Dearest princess Emma.... We think and pray for you all the time. I will pray that your upcoming surgery will go smooth. we love you sweetheart www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Monday, February 6, 2006 11:37 PM CST Hey guys! Lance can't wait to go to Madi's party!!!! It is all he has been talking about. I am sure that Samantha will love it, it being a sensory paridise and all. Talk to you soon! Samantha's page-www.carepages.com (pagename--SamanthaGable) Janice and Samantha <cantrellcat@charter.net> Azle, TX - Sunday, February 5, 2006 5:50 PM CST Hi there, Glad to here things are perking up at your house. We hope Emma is doing well. I know how you must feel waiting for those test result. You seem to be handling it better than I was! You Go Girl! We love you guys! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langely AFB, VA - Saturday, February 4, 2006 9:02 PM CST I hope everyone improves enough that the weekend is enjoyable. Linda Irving, TX - Friday, February 3, 2006 9:45 PM CST Hey guys! It seems the sickies are everywhere! I am glad to hear Madi is doing much better now and I hope Emma is feeling better real soon. Great news about her PT also! YAY!!! I hope all is well and I'll be sure to check back soon! Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Thursday, February 2, 2006 6:12 PM CST Emma is such a cutie. I hope everyone is germ free and feeling better. Heather has the tummy bug and it is awful. Thinking of you all. Angela~ www.caringbridge.org/ma/heathergrace - Wednesday, February 1, 2006 12:34 AM CST Those are the most adorable pictures! I love the ponytails! Hope you guys are well! Angel Katelyn's Mom, Debbie < miraclegirl101@hotmail.com > Wheatley, Ontario, - Wednesday, February 1, 2006 0:29 AM CST Aww! I'm totally blind and unable to see the pictures, but I'm sure they're adorable. Praying hat the tummy bug is gone from your home soon and that everyone is feeling and doing well. Jennifer G from the prayer bears and ones who care <charay913@yahoo.com> Bridgeport, Texas - Tuesday, January 31, 2006 12:17 AM CST Dearest Princess Madi we hope that you get to feeling better real soon. We love you. Elizabeth <michael_shipley@bellsouth.net> - Monday, January 30, 2006 11:07 PM CST What a little sweetheart! Sorry big sister is sick. I hope your seperation techniques did the trick. Alison = Andrew's mom <boettcher6@shaw.ca> BC Canada - Monday, January 30, 2006 10:05 AM CST What a great way to end the evening, seeing such cute, cute pictures of Emma!! What a Dolly!! I am certainly praying for protection for Emma's health and that Madi will be feeling fine,too!! Have a Good and Healthy Week!! Love In Jesus, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Monday, January 30, 2006 0:13 AM CST Hi Emma! I'm so glad that your test results came out negative! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Saturday, January 28, 2006 9:24 AM CST I'm glad you got at least part of the results on all of Emma's tests so quickly. Linda Irving, TX - Saturday, January 28, 2006 5:48 AM CST glad things went well with the testing. take care. Robyn mom to Nicole type CDg unknown www.caringbridge.org/visit/nicole RW Petawawa, Ontario (Canada), - Friday, January 27, 2006 8:23 PM CST Hi guys! I'm so sorry it has been so long since we've been by to visit. Things around here are crazy lately! Emma is never far from my thoughts, though. I just have to say that pic of her sitting in her little wagon eating is just the cutest! What a sweet face! I'm so glad her CF tests came back neg. What a relief! I remember when Hayleigh had the test. A huge weight was lifted off my shoulders when it came back neg. I hope the other test results come back soon. I know the waiting is hard. I will definitely be saying lots of prayers. I'll check back again soon. (((HUGS))) Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Friday, January 27, 2006 2:33 PM CST Great news about the CF results. Tina & Lance <lancejrmommy@comcast.net> - Friday, January 27, 2006 2:30 PM CST Good news!! So glad these results were in quickly. At least one test is done and crossed off the list!! Hopefully time will pass just as quickly for these other results. Give Emma lots of hugs and kisses from us. We miss you all! Hi Madi - glad you are feeling better!! Love you lots!!! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Friday, January 27, 2006 7:50 AM CST Woohoo, no CF. I know that one can be kind of scary. I hope the other tests come back in record time and that there are no big surprises. I hope Emma continues to get better and kick all these yucky bugs that she's been fighting. Have a very good day Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, CO United States - Friday, January 27, 2006 6:56 AM CST Dearest Princess Emma & Family such great news!!!! I am so relieved. We love and think about you all the time. Have a wonderful weekend. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, January 26, 2006 11:02 PM CST Yipee! Finally is the only word that fits! Kelly-Ann Larson <kwarren@visi.com> - Thursday, January 26, 2006 7:04 PM CST Glad to hear the tests went well for Emma. Children's hospitals always seem to do such a great job understanding each child for who they are and tailoring the care to them. Aren't they great? Hopefully these test will bring you the answers you are looking for. Sarah <sarahgulsvig@hotmail.com> Brainerd, MN - Thursday, January 26, 2006 4:10 AM CST I'm glad that you don't have to dread putting Emma through those tests any longer, and that they're behind you. Good luck with the time frame for the results. I hope you're not kept waiting too long. Linda Irving, TX - Wednesday, January 25, 2006 10:53 PM CST Hadnt ckd in on you for a few weeks, glad you are feeling better and can restart therapy. Keep up the good work, you are doing sooo good!!! Denise and Sydney Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Wednesday, January 25, 2006 11:42 AM CST I hope that Emma and Madison are soon feeling better. We and my daughter always notice that our granddaughter Emmi temporarily slips back in her skills when she's been sick, and I know that's hard to see. I hope that the ABR gives you great results. As you know, Emmi's did not, but they at least told my daughter why she had regressed in that area and started Emmi on the road to getting her cochlear implants, which should be happening now in the next month or two. She has another appointment that is part of the many steps before the implants next week. It sounds as if Emma has many appointments coming up, too. I'll be thinking about you. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi) Irving, TX - Wednesday, January 25, 2006 6:02 AM CST Emma!!! Sorry you and big sissy have been sick. We have too...sinus infection, strep throat...tummy virus. Whew. It's been a rough winter so far. Hope ya'll get better soon!!! We understand about the speech frustration. Austin only knows a few signs and words...but he makes his wishes known. LOL Keep the Faith. Amy and Austin <ambbab@alltel.net> Gray, Ga USA - Tuesday, January 24, 2006 6:59 PM CST Emma, your website is adorable! I love all of the pictures! You and your sister are just beautiful! René Davis <rd0127@yahoo.com> Trussville, AL United States - Monday, January 23, 2006 6:00 PM CST Hey Emma and Family! I'm soooo sorry that I haven't signed your guestbook in so long! I will try to do better this year though! I want you to know that I check-in on you daily, and that you are always in my thoughts and prayers! I love visiting your sight - I love the pictures -- both Emma and her sister are adorable! I also relate so much to you and your husband's daily concerns and feelings, especially about finding a diagnosis! We were kind of in the same place as you are for the first 2 years of Taylor's life. Our genetics doctor had ran every test feasible and finally (Thank Goodness!) sent us to have a fresh muscle biopsy done in Atlanta, GA, and we now KNOW that Taylor has Mitochondrial Encephalomyopathy. There is no cure and limited treatments with vitamin supplements, but I have to say there is some peace in just knowing what she has, and how best to take care of her. (Have they ever mentioned possibly doing a muscle biopsy on Emma? I'm sure they will rule out everything else first, since it is an invasive procedure - but if you don't get any other answers, it might be worth a try.) Emma is so precious, and you are such wonderful parents! I hope that you are able to find out soon what she has, so that you, too, can have that peace of mind and learn more about her disorder and what she needs to be the happiest and healthiest Little Emma that she can be!!! I also hope and pray that their colds get better soon! Taylor sends Emma big hugs and kisses!!! (Please let me know if you ever decide to go to a password - I would hate it if I couldn't check-in on you girls!) With Love and Hope Always, Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) Sonya and Taylor Murray <bamagirl01@comcast.net> Smyrna, TN - Monday, January 23, 2006 5:32 PM CST Emma~ It's Heather, Dillon's mom. I am glad to hear that you are feeling a little better. I hope soon that you are back to 100 %. We think about you all the time. Feel better. Heather and Dillon Heather <stsauver3mn@aol.com> Victoria, MN USA - Monday, January 23, 2006 12:07 AM CST Glad to hear Emma's cough is better and she'll be back into OT/PT this week! You'll both enjoy getting back into your schedule. Hope the BIG sis is feeling better. I love the countdown tickers. Miss and love you lots. Love, Aunt Carla, Uncle Scott and the BOYS carla <cooch67@comcast.net> - Monday, January 23, 2006 10:02 AM CST Hope Emma continues to get stronger and healthier this week. I'm sure it will be good to get back into therapy once again. We are hoping Madi is feeling better soon too. Can't wait to hear all about her birthday party!Miss you all - sending lots of hugs and kisses!!! xoxoxoxo Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Monday, January 23, 2006 7:56 AM CST Hi-- This is the second time I am signing your guest book. Just wanted to share with you that my son (who has autism, seizure disorder and other issues) didn't talk very much when he was that age either. And although he is still significantly delayed, his speech has improved and it has gotten much easier for us to communicate(he is now 6). Hang in there--it WILL get better. Sincerely, Sonja (Angel Tommy's friend) Sonja Nunan <Nunan5@msn.com> Brick, NJ USA - Monday, January 23, 2006 7:40 AM CST Hi all, I could have written that update. I feel so bad that our girls are having such a hard time with the speech thing. With Kari turning 3 next month, I thought she would have some speech by now. With her cerebral palsy, she has trouble with some of the signs. I hope that some day she will speak. That is my forever prayer!!! I hope everyone is feeling better soon. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Monday, January 23, 2006 0:00 AM CST The Prayer Bears Hailee praying that you feel better.. m <angels4hailee@Cox.net> cavecreek, az usa - Saturday, January 21, 2006 6:43 PM CST Glad your felling better Emma, keep up the good work! Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Friday, January 20, 2006 4:58 PM CST I hope Emma continues to improve. Linda Irving, TX - Friday, January 20, 2006 5:44 AM CST Dearest Princess Emma... We are thinking about you. Hope all is going well. You have a wonderful weekend.. I will check in on you again real soon. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, January 19, 2006 10:09 PM CST Hi Emma! I'm glad that you're starting to feel a bit better. I hope you're all better very soon!! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Thursday, January 19, 2006 8:39 PM CST Sorry to hear you are not feeling so well Emma! Hope you are on the road to recovery soon! Sarah <sarahgulsvig@hotmail.com> Baxter, MN - Wednesday, January 18, 2006 7:34 PM CST I had a tough writing assignment and didn't get to check Emma's page, only to find out that Emma had been so sick. My prayers and thoughts will certainly be added to those of the others. I'm glad Emma is home and you're thinking about therapy again. Linda, Emmi's Grammie (www.caringbridge.org/visit/emmi Irving, TX - Tuesday, January 17, 2006 10:31 PM CST Sky just got over rotavirus too! It's so yucky! I hope Emma feels better soon. Nikki, Mikaela, and Skylar B www.caringbridge.org/oh/skylarbaker <nd6780@peoplepc.com> Toledo, oh usa - Tuesday, January 17, 2006 8:35 PM CST So glad to hear she is starting to feel better. RSV can be nasty. Rotovirus can be nasty. Poor her for getting them both at the same time. Hope she continues to recover. Alison - Andrews mom <boettcher6@shaw.ca> BC Canada - Tuesday, January 17, 2006 9:44 AM CST I hope that Miss Emma is feeling back to her perky little self really soon! Thinking of you guys! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Monday, January 16, 2006 8:32 PM CST Hoping Emma feels better soon. Angela~www.caringbridge.org/ma/heathergrace <alisonheathersmama@gmail.com> - Monday, January 16, 2006 1:11 PM CST Dearest Princess Emma & Family... We are praying that Emma gets to feeling better real soon. You know that I think of you often. Please let me know if you need anyhting. Sending big hugs your way. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, January 15, 2006 11:24 PM CST Hey Emma! PRaying for you to be all better soon and for those meds to WORK! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Sunday, January 15, 2006 10:42 AM CST Hi Sweetie!!! I am praying with many others that you keep getting better and better each day. Have a Good Weekend!! Love in Jesus, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Sunday, January 15, 2006 0:17 AM CST Great news! Enjoy your weekend, as planned!! Jane Devon, England - Friday, January 13, 2006 3:30 PM CST Great entry dad. Sense of humor always helps everyone Emma and her Big Sis are in our prayers always. GOD BLESS Y'ALL. Constance Couch <constancecouch@sbcglobal.net> Arlington, TX - Friday, January 13, 2006 3:22 AM CST Thinking of you guys. Anne from Angel Support (http://p105.ezboard.com/bangelsupport) <angelsupport@lycos.co.uk> UK, England - Friday, January 13, 2006 3:21 AM CST Dearest Princess Emma & Family.... we are praying that all works out and that Emma can go home soon. We are sending all of you big hugs. Lauren please let me know if you need anything. Elizabeth <michael_shipley@bellsouth.net> - Thursday, January 12, 2006 11:31 PM CST LOVE ALWAYS BRENDA MY LOVING DAD FOREVER MY CHRISTMAS ANGEL <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Thursday, January 12, 2006 11:28 PM CST Oh no! I am so sorry to hear sweet Emma is in the hospital! I sure hope that she turns the corner soon and can come back home where she belongs. Praying for all of you! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, January 12, 2006 11:16 PM CST Praying for sweet Emma tonight. HUGs, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Thursday, January 12, 2006 8:53 PM CST We are so sorry to see that precious Emma is in the hospital. All sorts of prayers and well wishes are coming your way. I hope she feels much better soon! hugs, Connie and Madeleine www.caringbridge.org/tx/madeleine <cgoldtx@aol.com> Mansfield, TX - Thursday, January 12, 2006 3:15 PM CST What a great entry, Josh! Prayers for speedy healing and rest! Kelly-Ann & Linae (23 months, possible RettSyndrome) Kelly-Ann <kwarren@visi.com> Richfield, MN USA - Thursday, January 12, 2006 12:52 AM CST Praying Emma feels better fast. Poor Girl. Angela -Heather's site - Thursday, January 12, 2006 11:19 AM CST Dearest Princess Emma & family.... please know that we are praying extra hard for Emma right now. We said extra prayers at the dinner table tonight. We love all of you. Please let us know if there is anything we can do for you all. Give Emma big hugs from joseph. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, January 11, 2006 11:22 PM CST Praying for you to get well soon! Bonnie Luskey www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Wednesday, January 11, 2006 9:30 PM CST Prayers for sweet Emma. We hope that she is feeling better tonight. She sure is a tough little girl. I love the new look to her page. Kari loves to look at the pictures of Pooh. Much love, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Wednesday, January 11, 2006 6:31 PM CST My love and prayers are with you!! Dorine McNary <dkmcnary@yahoo.com> Wiliston, ND - Wednesday, January 11, 2006 2:41 PM CST I hope Emma feels better soon. Sending lots of hugs and prayers her way. Deb -- Brennan's Mom from Infantreflux.org Deborah Coleman <deborah.coleman@wpafb.af.mil> Kettering, Ohio USA - Wednesday, January 11, 2006 11:58 AM CST I hope Emma is feeling better. I always hate to see my own kids sick and having to be stuck with needles. This just breaks my heart. Lynette Veach <lveach@hardynet.com> Petersburg, WV usa - Wednesday, January 11, 2006 9:48 AM CST Emma, you have been in my prayers since Monday, when I heard that you had a stomach virus. I am glad you are getting better. Constance Couch <constancecouch@sbcglobal.net> Arlington, TX Tarrant - Wednesday, January 11, 2006 7:14 AM CST Just wanted to pop in and say hi. I am sorry that Emma is in the hospital right now with that dreaded rotavirus. Katelyn caught that once in 2004 and she was soooo sick from it. I sure feel for her and the rest of the family coz it sure does take its toll on everyone. Maybe you will get to go home soon, I'll keep my finger crossed! Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Wednesday, January 11, 2006 0:41 AM CST Thinking of you guys today and tryign to make my rounds in CB land. It's been so long and I haven't done a very good job of signing guestbooks lately. I am sorry! I am also so sorry that Emma's been sick. I have heard the roto is sooo terrible. I know how you feel about the weight issues. Caden had the stomach virus just before Christmas....all week long, so I am sure he's lost too. The nutritionist will see tomorrow. She'll gain it back when she's back to herself again! Keep your head up! I know how hard it gets sometimes, but stay strong. Sendng lots of thoughts, prayers, & (((HUGS)))~~ Vicki & Caden Vicki Williams <vicki.williams@wallisd.net> San Angelo, TX - Tuesday, January 10, 2006 4:03 PM CST I so hope Emma perks up soon! We will continue to prayer for her and your family. Also, just wanted to send you a Happy Birthday Wish! Take care and well wishes your way! Tammy Wambles <frothy27@yahoo.com> Murphy, TX - Tuesday, January 10, 2006 12:42 AM CST I'm so sorry that Emma is feeling so bad. Emmi was sick for almost a month, too, and toward the end did nothing but sit or lie limply in our arms and cry weakly all the time, her face so sunken due to the lost weight that she looked like a starving child. We were so worried, too, but this time, Emmi bounced back very quickly as soon as she was well, so perhaps the doctor's reassurances about Emma are right on target. I think Emmi got sick about a week before Emma, because I remember writing in Emma's journal that I hope she didn't get the illness that was going around, and this last week, Emmi has been back to her normal (and now naughty toddler--yeah!) state. I wish you lots of normal toddler behavior soon, as I know that getting-into-things and temper-tantrum behavior is wonderful in the eyes of a mom with a fragile child. Linda, Emmi's Grammie (www.caringbridge.org/visit/Emmi) Irving, TX - Tuesday, January 10, 2006 6:48 AM CST Happy Birthday Lauren!!!!!! I hope that Emma gets to feeling better real soon. Love to you all Elizabeth <michael_shipley@bellsouth.net> - Monday, January 9, 2006 7:39 PM CST Emma sweetie you are in our prayers,,! hope you are feeling better real soon.. Sherry and Amanda <dsbcma@telus.net> Campbell River, Canada - Monday, January 9, 2006 12:04 AM CST G'day little EMMA, just dropping in to see you. Sorry you have a rotten tummy bug (yuk) I hope I can cheer you up a litle with my visit of strenght-courage-determination-hope and inspiration to you from me Keep that BIG SMILE ON THE DILE and have lots of fun. Big KOALA HUG TO YOU FROM ME (JAY) www.caringbridge.org/visit/Jay JAY'S JOURNEY Melbourne (VERY HOT), Vic Australia (down under) - Sunday, January 8, 2006 11:27 PM CST Dearest Princess Emma I am so sorry that you are feeling so yucky. I hope that you get well real soon. We are sending over big hugs. www.caringbidge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, January 8, 2006 11:23 PM CST Hi Cutie!! I'm sorry you have been sick. I will certainly say some extra prayers tonite, that you will be better and that the Dr will know what to do to help you. Love in Jesus, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Sunday, January 8, 2006 9:48 PM CST Hi Emma! Just checking in on you! Hope that your sleep will improve! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Saturday, January 7, 2006 10:46 AM CST Sounds like you had a nice holiday season! Glad to hear that you are getting close to finding some answers for Emma! Sarah <sarahgulsvig@hotmail.com> Brainerd, MN - Friday, January 6, 2006 8:07 PM CST I hope you get some answers for Emma. My older daughter had a sweat test done for CF, it isnt bad at all. :) Angela -Heather's site - Friday, January 6, 2006 12:53 AM CST Dearest Princess Emma.... I am so happy that you had such a wonderful holiday. I think that Joseph misses all the lights to. I bet your mom is happy that they are going to start running the tests on you. Emma we pray for you everyday and light candles everytime we go to church. You are always in my thoughts. So happy that I get to share in your life. Take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, January 5, 2006 11:35 PM CST So glad that the logistics for the Retts tests etc. are finalized. At least you will know they are in the works now. Take Care' Alison Andrew's mom <boettcher6@shaw.ca> BC Canada - Thursday, January 5, 2006 5:00 PM CST I hope you get some sleep soon.I have been there and back a few times myself.Emma is cute as ever!!! Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Thursday, January 5, 2006 2:26 AM CST I know you'll be happy to get the date for that Rett test finally set. Linda Irving, TX - Wednesday, January 4, 2006 10:13 PM CST Hi Emma I am glad that you are feeling a little better, bummer about the sleep thing. I hope that things go well when she gets blood drawn ( I will pray that she doesn't have either one of those.) and when you meet with the specialist. Madi, you are going to be 5??...You are getting so BIG! I am so glad that you love your sister so, I hope that Dillon is as good of a Big brother as you are sister. :) Love, Heather ( mom to Dillon, Will and Robert Heather <stsauver3mn@aol.com> Victoria, MN USA - Wednesday, January 4, 2006 9:58 PM CST Hi Emma and Mommy. It has been awhile since we last visted and saw your beautiful face.. I am glad that you had a good Christmas and I hope you are feeling better..Can you tell mommy that we would love to have your passward to your page when it goes there.. Happy New Year to you all and we are keeping you in our prayers.. Sherry and Amanda <dsbcma@telus.net> Campbell River, Canada - Tuesday, January 3, 2006 8:51 PM CST Love the pix!! I'm sure they are enjoying their visit with Nanny. Hope you are getting some Mommy time!! Praying that 2006 will be the year for some answers for Miss Emma! Miss ya, love ya lots!!! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Tuesday, January 3, 2006 2:43 PM CST That wagon sure does look pretty cool and comfy. I'm glad it brought both of the girls such Joy. Will was the same way with presents last year, he just didn't get it, this year he was a shredding machine. I hope they can figure out how to get all these tests run for you in a timely way, it's bad enough waiting for results let alone having to wait for permission to run the test. Happy New Year Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, CO United States - Tuesday, January 3, 2006 8:16 AM CST Happy New Year! I hope that this year is filled with happiness! We are thinking about you guys and praying for you always. Heather mom to Dillon, Will and Robert www.caringbridge.com/mn/dillon Heather <stsauver3mn@aol.com> Victoria, MN USA - Tuesday, January 3, 2006 6:55 AM CST Hi Emma and family, I sure hope you start feeling better real quick! I emailed you, I would love to be able to continue checking in on Emma! Take care, Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Monday, January 2, 2006 10:36 PM CST Happy New Year! I hope Emma is feeling better by now. Linda Irving, TX - Monday, January 2, 2006 8:28 PM CST So glad you had a good christmas, love the eating in the wagon. Skylar's sister LOVES the Cheetah Girls, I was looking just last week for concert tickets, but they're not coming close to us. I'm sure Maddie enjoyed it. It is nice to get away sometimes. www.caringbridge.org/oh/skylarbaker Nikki, Mikaela, and Skylar B <nd6780@peoplepc.com> Toledo, oh usa - Monday, January 2, 2006 4:55 PM CST Hi Emma thinking of you always from DOWN UNDER AUSTRALIA we are friends of Lily s Sammy-Joe and family http://www.caringbridge.org/ok/sammyjoe hope you feel better real soon Maria and family Happy New Year Maria Liistro <sammyjo2@bigpond.com.au> Melbourne Craigieburn , Vic Australia - Monday, January 2, 2006 3:57 AM CST Happy New Year, Emma and family! I hope that Emma feels much better soon. We think of your family often. Hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Sunday, January 1, 2006 10:48 PM CST Happy New Year sweetie luv Fiona and Jordan fiona <hunterbrittnee@hotmail.com> brisi, qld aust - Sunday, January 1, 2006 5:11 PM CST Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Sunday, January 1, 2006 3:05 AM CST So glad you had a great Christmas! That wagon is too cool! Diana <Diana893@gmail.com> Dallas, TX - Saturday, December 31, 2005 1:53 PM CST We need to do a dance to make all these icky germs go away! So glad your mom made it in safely, do we get to come for "Thanksgiving"? HEHEHE Hope to see you soon! Janice and Samantha www.carepages.com (page name--- SamanthaGable) <cantrellcat@charter.net> Azle, TX - Friday, December 30, 2005 8:13 AM CST Ugh! I hope Emma is feeling better really soon! We have had some crud down here, too and it is not fun! I hope that the testing gets sorted out really soon as well. Glad you had such a good holiday and I hope your visit goes well. LOVE the pics...they are such dolls! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Friday, December 30, 2005 3:03 AM CST G'day EMMA, big KOALA hug to you and your family. I hope you have a wonderful NEW YEAR. Your friend down under (JAY) www.caringbridge.org/visit/Jay JAY'S JOURNEY Melbourne (VERY HOT), Vic Australia (down under) - Friday, December 30, 2005 1:14 AM CST Happy and Blessed New Year to my 2 Special CB Friends,Emma nd Madi!! Love and prayers to you, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Thursday, December 29, 2005 11:51 PM CST Hello Princess Emma & Madi... I love all the pictures that mommy put on the site. Your new wagon looks like so much fun maybe Joseph and I should come there so we can go for a ride in the wagon. I am so happy to hear that you all had such a wonderful Christmas. Joseph had a great Christmas too. Now he is really sick and we can not get him better. Please say extra prayers that he feels well soon. I hope that you all have a wonderful New Year and I will be praying that you have a great year to come. Take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, December 29, 2005 11:08 PM CST Hi! checking in on Emma to see how she is. The girls are adorable in their Christmas wagon! Sounds like it was a hit for sure. Wishing you all a fabulous 2006! Leslie & Morgan Leslie Reynolds Atlanta, GA - Thursday, December 29, 2005 10:00 PM CST The girls are so cute. My name is Laura, I am an education student who plans to teach special education. I enjoy reading the stories of children with special needs. I have been following Emma's story for the past two months I wish the best for you and your children. Laura Gilmour <Sparkieskink@hotmail.com> Edmonton, AB Canada - Thursday, December 29, 2005 2:26 PM CST The photos are lovely. Hope that everything gets straightened out with home health and for the testing. We are awaiting approval for some testing at the Mayo clinic right now also. It is hard waiting for beaurocracy!! Alison - Andrew's mom <boettcher6@shaw.ca> BC Canada - Thursday, December 29, 2005 10:38 AM CST I just stopped by to check in on Emma. Your new pictures are adorable, you have such beautiful girls! It's great to see Emma eating the pancake ... someday that old tube will come out and she will eat eat eat!! Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net> Florida, - Thursday, December 29, 2005 9:01 AM CST Best wishes to you and your family in 2006! Stay positive and hopefully you will get the answers you so need on Emma's diagnosis. We will keep her in our prayers! Tammy Wambles <frothy27@yahoo.com> Murphy, TX - Wednesday, December 28, 2005 10:30 PM CST Tina & Lance <lancejrmommy@comcast.net> - Wednesday, December 28, 2005 8:17 PM CST Stopping by to see if Santa brought you girls lots of new toys. I hope you had a great Christmas and have a Happy and Healthy New Year! Angela~ www.caringbridge.org/ma/heathergrace <alisonheathersmama@gmail.com> Natick, Ma - Wednesday, December 28, 2005 6:04 PM CST Hi Emma and Madi!!! We hope you all had a terrific Christmas! Have a wonderful 2006 Markham family! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Tuesday, December 27, 2005 12:43 AM CST Your girls are soooo cute. I know that Christmas was super fun this year. Merry Christmas and Happy New Year! Love from GA! Amy and Austin <ambbab@alltel.net> Gray, ga usa - Tuesday, December 27, 2005 7:22 AM CST I'm praying that you are all feeling much better today. May 2006 be a year of God's richest blessings for your family. Stephanie and RachelJoy <mom2rj@comcast.net> - Monday, December 26, 2005 7:31 PM CST MY CHRISTMAS ANGEL LOVE ALWAYS BRENDA <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, December 25, 2005 3:58 PM CST MERRY CHRISTMAS!!!! Melody and the boys <dandmpohla@consolidated.net> - Saturday, December 24, 2005 9:39 PM CST Track Santa! Diana <Diana893@gmail.com> Dallas, TX - Saturday, December 24, 2005 2:36 PM CST Merry Christmas Emma & Madi! I hope you have the merriest Christmas ever! God bless and *warm hugs* ><>†<>< *Jennifer C* from Angels on Earth <coopsie78@gmail.com> Eugene, OR USA - Saturday, December 24, 2005 10:17 AM CST Just wanted to wish you and your family a happy holiday. Kristena <sxykris05@yahoo.com> Lake Mary, FL us - Saturday, December 24, 2005 9:01 AM CST HI Emma I hope that you feel better...Being sick isn't any fun. Happy Holidays and I hope that you have fun opening presents. Heather Dillon Heather <stsauver3mn@aol.com> Victoria, MN USA - Friday, December 23, 2005 10:25 PM CST Chayce's Mission <eeneedscure@yahoo.com > Davison, MI - Friday, December 23, 2005 11:58 AM CST My wish for Christmas is that you and your family, get feeling better. My home has been filled with germs too, wish I could just open the windows and let them out, but here in Indiana its cold!! Many Blessings to you! Denise and Sydney www.caringbridge.org/in/sydneylynne Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Friday, December 23, 2005 11:09 AM CST Merry Christmas! Thanks for all of your care and support! Hopefully everyone will be well soon! Talk to you soon. Our girls need to get together, I think that Samantha wants someone who understands her...HEHEHE. Janice and Samantha www.carepages.com (page name--- SamanthaGable) <cantrellcat@charter.net> Azle, TX - Friday, December 23, 2005 7:43 AM CST I really do hope that everyone is feeling better before the week end. Merry Christmas a Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Friday, December 23, 2005 1:03 AM CST Ugh!! Germs be gone!!! I hope everyone is better by Christmas! Nathan has the sniffles again here and I thonk he passed it along to me, thanks a lot! I am glad the GI appt went so well! One less thing to worry about! Take care, God bless, and have a very Merry Christmas! Thinking of you all! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Friday, December 23, 2005 0:54 AM CST Merry, Merry Christmas to my Special Friend, Emma, and Madi and your Mommy and Daddy!! May God richly bless you!!! My love and prayers, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Thursday, December 22, 2005 11:44 PM CST Hi Emma and family! I'm sorry that Emma's sick. I hope she's feeling much better for Christmas! Have a very Merry Christmas! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Thursday, December 22, 2005 7:32 PM CST Just wanted to wish you a happy holiday. Have a good one. Love ya Kristena <sxykris05@yahoo.com> lake mary, fl us - Thursday, December 22, 2005 4:36 PM CST I completely understand the concern about having a very exposed life on the web. We recently password protected Andrew's site. I hope the girls stay ok and their colds stay as only colds! Alison - Andrew's mom <boettcher6@shaw.ca> BC Canada - Thursday, December 22, 2005 3:30 PM CST WE just wanted to stop by to wish you A VERY wonderful CHRISTmas!!! You are Always in our hearts and prayers!! BIG HUGS, Collin And Regan julie <collinpresley@aol.com> ca usa - Thursday, December 22, 2005 11:48 AM CST Dearest Princess Emma & Family.... We are just so greatful that we have had the opportunity to share your Daughters life with you. Though we have never had the chance to meet I feel as we have known each other for years. I look forwarding to sharing each of our childrens lives with one another. You are a blessing we are going to be very busy the rest of the week but wanted to come by and wish you all a Very Merry Christmas!!!!! We will be thinking of Emma & Madi on christmas I hope that Santa brings you both everything you asked for!!! MERRY CHRISTMAS www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, December 21, 2005 11:15 PM CST Just checking in-love the new look. I hope the girls will be feeling better for Xmas. I just found out that alyssa will be getting a mic-key button( the same as emma) I am nervous but I know that this is the best for her and her health. Check on you later on. WWW.caringbridge.org/ks/alyssadarrah shannon and alyssa shannon Stoiber <shaystoiber@sbcglobal.net > Leawood , ks usa - Wednesday, December 21, 2005 10:33 PM CST HO HO HO! I hope you girls are feeling better because the man in the red suit is on is way to bring you lots of Christmas joy. We love your Smilin'Christmas card. We miss you and wish you a joyous holiday. All our love, Carla,Scott, Joseph and Michael carla cucci <cooch67@comcast.net> new egypt, - Wednesday, December 21, 2005 10:17 AM CST Hoping the cold leaves before Christmas and am hoping that all the testing falls into place for you. Have a wonderful and memorable Christmas. Alison - Andrew's mom <boettcher6@shaw.ca> BC Canada - Wednesday, December 21, 2005 10:00 AM CST I'm so sorry to hear that Madi is sick and that Emma is congested, too. Tricia just can't get Emmi well, either. I hope your girls are recovered in time to enjoy Christmas. Linda, Emmi's Grammie (tx/emmipaige) Irving, TX - Tuesday, December 20, 2005 6:01 PM CST Hi there Emma,we are dropping in now as we are going to be really busy in the week up to christmas just to wish you a merry christmas and a happy new year Take care Jo Hannah and Rebecca Jo <yarnall@blueyonder.co.uk> England, UK - Tuesday, December 20, 2005 2:20 PM CST Hi Lauren, Josh, Madison & Emma, We want to wish you all a very Merry Christmas & a Healthy & Happy New Year. We hope 2006 will bring good news for precious Emma. Our prayers & thoughts are with you this holiday season. Love, Aunt Kathy, Uncle Vinny & family Kathy Monaco <kam0424@bellsouth.net> Lake Mary, FL USA - Tuesday, December 20, 2005 1:34 PM CST Hi Emma and family! I'm sorry you're having trouble with the insurance company and Neocate. I know how frustrating that is when the ins. company won't believe the doctors. That is so ridiculous! I hope you can get some help with that soon. I hope Madi feels better soon, too. We hope you all have a very Merry Christmas! Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Monday, December 19, 2005 9:08 AM CST Sorry to hear you are still having problems with insurance. It is so much added stress! I hope they decide to cover the testing for you. Have you tried submitting a Dr letter of neccessity for the tests? That is what worked for us after a long battle. I hope you all have a great Christmas! Cant wait to see the pics after. :) Angela -Heather's site <alisonheathersmama@gmail.com> Natick, Ma - Monday, December 19, 2005 8:52 AM CST Emma and family-- I feel for you as I read your updates. Savannah is now 6 and we have the answers......but that wasn't the case when Vann was Emma's age. I first knew (only mother's intuition...none else agreed with me) that something was wrong at 12 months. It wasn't until she was nearly two before anyone else would help me figure it out. The pics of you and Madi are beautiful. You look soooo much like my niece Abygail. Thank you for checking in on us...it has been a very difficult year here too. Have a very Merry Christmas with your family. Much love from our family to yours. www.caringbridge.org/va/savannahsmile Frances, Chris, Cameron, Savannah and Levi The Nichols Family <Dragonbluedreams@AOL.com> Remington, VA USA - Monday, December 19, 2005 7:15 AM CST Dearest Princess Emma & Madi... we pray that you both get to felling better real soon!!!!! I hope that you have the best christmas ever. I bet that Santa Claus will bring the both of you wonderful things. We think of your family often and pray for all of you on a daily basis. Merry Christmas Girls!!!!! Lauren, I hope that you can get all that stuff figured out with the insurance company. They can be such a drag!!!!! I have a funny story for you ... Last night at dinner we had a few friends over and as always before we begin to eat we say our prayers... as you know we pray for you and your family every night at the dinner table well as we said our usual prayer.... Dear god thank you for the food that is on our table and all the love that surrounds us and please watch over Joseph and all of our caring bridge friends please also take a moment to look in on the Markams and give them strength to fight the medical world and please make sure that Emma has sweet dreams tonight amen!!!! {some nights it changes but that is our usual prayer} after we said our prayer the friends that we had over have a 6 year old little girl who then asked "who is Emma" Believe it or not my 5 year old Caitlin jumped up and said come here I will show you and brought her right to the computer to show her Emma's caring bridge site I was amazed that my 5 year old knew right where to go since I have you page bookmarked!!!! You have such a great impact on our family and I want to thank you for that. I think that Emma is an amazing little girl that will always bring sunshine into your life. Have a very Merry Christmas!!!!! And a stress free New Year. Take care Elizabeth <michael_shipley@bellsouth.net> - Monday, December 19, 2005 0:42 AM CST Oh by the way, I cant wait to get that picture taken with Lily. We will have to do that next time! Janice <cantrellcat@charter.net> Azle, TX - Sunday, December 18, 2005 3:11 PM CST I really enjoyed the Christmas shopping yesterday, it was just what the doctor ordered! Heres to quick test results, and in your case just getting the test done. Hopefully we will both have answers soon. Get that Madi girl well so we can all exchange gifts! Janice and Samantha www.carepages.com (page name-- SamanthaGable) <cantrellcat@hotmail.com> Azle, TX - Sunday, December 18, 2005 3:09 PM CST Diana <Diana893@gmail.com> Dallas, TX - Sunday, December 18, 2005 12:20 AM CST G'day little EMMA and family. Such a cutie. I don't have what you do I have Neuroblastoma (cancer), but I love to visit all sick kids and send them a big KOALA hug from way down under. I wish you all a great Christmas and hope all your wishes come true - I send strength - courage - determination - hope and inspiration to you and for you to BELIEVE IN YOUR DREAMS. www.caringbridge.org/visit/Jay (JAY) Melbourne, Vic (AUSTRALIA) - Sunday, December 18, 2005 0:58 AM CST Just checking on Emma. Your story with all the tests are so like Taryns tests. I remember going through ALL the exact same tests and looking them all up...Angelmans, Retts, Smith-magenis etc. and wondering what on earth she had??? It is so time consuming and exhausting. I remember doctors saying I may never get a diagnosis, but we kept on looking and low and behold after 3 yrs or so of testing we finially have an answer. Not one we wanted to hear...but an answer. A sigh of relief...I guess. I know how hard it is to wait and wait and put our sweet little kids through this..it is heartbreaking. Thoughts and prayers are with you all. Have a Happy Holiday season. Debbie www.caringbridge.org/ca/taryn Debbie Fogel <ejfdrf@sbcglobal.net> Corona, CA USA - Saturday, December 17, 2005 11:08 PM CST We love the pictures of Madi and Emma!! You can tell they were both enjoying themselves. Madi always did have the star power so she fits right in on stage! :-) Emma looks exactly like you Lauren in the "up to trouble" shot! Great to see her walking around. We miss you, love you. Sending lots of hugs and kisses!!!! Aunt Cristene, Uncle Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Saturday, December 17, 2005 4:18 PM CST Stopping by to say hi. I hope you are having a good weekend. I also hope you get the test results soon! Angela~ www.caringbridge.org/ma/heathergrace Natick, Ma - Saturday, December 17, 2005 2:01 PM CST I came in through Caden's CB site and wanted to see you Emma. I hopeyou have a wonderful Christmas. You are invited to take part in our website at Heartbeats For Mito. Send me a pic, your birthdate and the suspected diagnosis and I'll do the rest. Best Wishes Ann Eide (www.heartbeatsformito.org) <HFMito@cableone.net> - Friday, December 16, 2005 11:23 AM CST Thanks for the wonderful entry in Sydney's guestbook. WE ARE so blessed to have special ones in our lives. I so believe it!!!! May you all have a wonderful Christmas and many blessings in 2006! Denise and Sydney www.caringbridge.org/in/sydneylynne Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Friday, December 16, 2005 8:20 AM CST Wow, it sounds as if Emma is getting this toddling around thing down pat now. Congratulations! I'm glad Madi had such fun at her party, too. Linda, Emmi's Grammie (www.caringbridge.org/tx/emmipaige) Irving, TX - Friday, December 16, 2005 6:42 AM CST Digger and hailee are dropping in to say Hi. loved the pictures, and im copying the poem....thanks for sharing ...hailee melissa <angels4hailee@Cox.net> caveCreek, az usa - Thursday, December 15, 2005 9:37 PM CST It's hard to get back normal results sometimes, but at least it takes one thing off of the list to keep looking for answers. Glad Emma is feeling better and that her ears are clearing. Will started out not ticklish too and after some OT started to be very ticklish said it was all part of the sensory stuff and was a good sign. The giggles are very good for everyones souls too. Enjoy Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, CO United States - Thursday, December 15, 2005 11:21 AM CST I LOVE that poem! It is so true! It warms my heart to read about all the great things Emma is doing! Sending lots of hugs, prayers, and love to you all! Vicki & Caden Vicki Williams <vicki.williams@wallisd.net> San Angelo, TX - Thursday, December 15, 2005 9:25 AM CST Hello, My name is Julianne I am eight. I found your page from Josephs page. Emma is sooooo cute!!!!!! I hope she gets better soon!! I will add her to my prayer list!!! I was reading the journal and at the end I saw : her tubes are in" I had to get tubes when I was little too but then they got stuck so they got it out and but new ones in. If you would like you can visit my page at www.caringbridge.org/visit/julianne hope you visit!!!!!!! Julianne <julzabul@aim.com> Weymouth, ma usa - Thursday, December 15, 2005 8:24 AM CST Madi, I am so proud of you! You were really enjoying yourself at your school party...and you are a great big sister to Emma. We are decorating our tree this weekend so maybe you can come over to help. Big hugs to Emma! Aunt Denise <denise@juldengroup.com> Flower Mound, TX USA - Thursday, December 15, 2005 3:15 AM CST Great news about the ear tubes! I am glad to hear she is ont he mend and there is no need for more tubes! Glad Madison ad such a good program the other night. She looks like she was really enjoying it! Glad to hear also that Emma is reducing her PT....great news! I hope Nathan gets there one day. We are adding sessions right now, but he is making good progress. Hope the results from her test come in quickly. Waiting so stinks! Take care and thx for the poem. It is a great reminder! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Wednesday, December 14, 2005 5:03 PM CST Great news! We just popped by to wish you guys Happy Holidays! Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, December 14, 2005 11:18 AM CST Hello Princess Emma just coming by to tell you that Joseph sends you big hugs!!!! Lauren thank you so much for the email that was very nice of you. I pray that you find answers soon to what is going on with Emma. I put a little thing on the bottom of Joseph's page so I know that you have tons of prayers going out for you all. take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, December 14, 2005 0:19 AM CST Just wanted to stop by and say hello. I check in on Emma from time to time. My friend (Angel Tommy's mom told me about CB). I have a son with autism and seizure disorder--so I somewhat understand what you are going through. Just know that you have some new people praying for little Emma. Have a wonderful holiday. Sincerely, Sonja Sonja Nunan <Nunan5@msn.com> Brick, NJ U - Tuesday, December 13, 2005 11:26 AM CST Hope the ear infections and respiratory stuff clear up real fast! Have a terrific week! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Tuesday, December 13, 2005 9:26 AM CST Hi Emma, Boy, I sure know haow your mommy feels. I hate it when you are waiting for test results and you can't help but think they have what they are testing for. Then you feel bad when it comes back negative. You just want a Dx. Please know that you and your family are in our thoughts and prayers. One quick question... Where did you learn all the Christmas signs to teach Emma? I have been looking and I can not seem to find any to teach Kari!!! We love you guys soooo! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Monday, December 12, 2005 7:55 PM CST Just checking in to see how you're doing! Hope you feel better soon. Nikki and Skylar <nd6780@peoplepc.com> Toledo, oh us - Monday, December 12, 2005 6:10 PM CST HI Emma and family, just wanted to say hi since it has been so long. Hope all is well. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Monday, December 12, 2005 2:18 PM CST ~TABBY'S PAGE~ Tabby & Karen(mom) <karenpuddn@comcast.net> - Monday, December 12, 2005 10:24 AM CST Well, I can certainly understand themixed feelings. I am so happy you finally heard SOMETHING though. I think the waiting is almost harder then getting the results sometimes. I hope the next round of testing goes more quickly than this one did. Hopefully you will know something really soon and be able to move on with treatment once you do. Sending hugs... www3.caringbridge.org/tx/nicholas/ Melody and the boys <dandmpohla@consolidated.net> - Sunday, December 11, 2005 10:21 PM CST I can completely relate to the mixed feelings when you get back "normal" test results.....we are dealing with the same thing right now. You continue to be in my thoughts and prayers......Emma is so lucky to have such wonderful parents. Cori and Kira (http://www.babababies.com/view/view.cfm?SiteID=11755) <corivk@charter.net> Madison, , WI USA - Sunday, December 11, 2005 6:36 PM CST Mixed feelings definitely...I know you wanted to finally have an answer. At least the holidays will hopefully make this next round of testing go a little faster for you. We are sorry to hear she is sick. Hopefully she is feeling better soon. We miss you!! Love to everyone!! Aunt Cristene, Uncle Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Sunday, December 11, 2005 10:19 AM CST I know full well what those mixed feeling are like.......Hope the cold gets better and she is in fine form for Santa!!! Email me for the password to Andrew's page. Alison - Andrew's mom <boettcher6@shaw.ca> Vancouver, BC Canada - Sunday, December 11, 2005 9:59 AM CST Although I'm only the grandparent of a Caringbridge child and not the parent, I recognize that mixture of feelings when you get a negative diagnosis. You always wonder whether there's something you should be doing to help protect your child from further harm, if only you knew the diagnosis. You always wonder if there's a worse diagnosis out there waiting. However, I agree with you that your Emma is amazing and will set her own standards for what she will do, no matter what the diagnosis. She's already had such amazing moments, such as when she signed "baby" that time and was so cute. I'm sorry to hear that she's sick now. My granddaughter Emmi has been, too, shedding way too much of that hard-fought-for weight, and I was hoping that Emma was missing whatever is going around our area. Linda, Emmi's Grammie (www.caringbridge.org/tx/emmipaige) Irving, TX - Sunday, December 11, 2005 5:51 AM CST I HAD A BLAST TRIMMING THE TREE!!! I hope that you have a wonderful holiday season!! I know it is hard to wait. Collin was 3 when they dx him!! You are in our hearts and prayers BIG HUGS, Julie and Collin julie <collinpresley@aol.com> ca usa - Sunday, December 11, 2005 0:09 AM CST Hi Sweetie!! My love and prayers are with you!! Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Saturday, December 10, 2005 11:48 PM CST Tina & Lance <lancejrmommy@comcast.net> - Friday, December 9, 2005 10:16 PM CST Being a grandparent myself, I loved that picture of Grandpa with his Texas grandchildren. Even before you mentioned the differences in Emma this year, I was noticing from the new pictures how much of a toddler she is now and not a baby. Our granddaughter Jill is going stir crazy, too, like Madi, especially since Emmi has been so sick that my daughter's attention has had to be focused on her. These stomach viruses aren't fun for anyone, but especially with a child with a suspected but as yet undetermined metabolic illness. Emmi has had one trip to Children's in Dallas already when her glucose levels were low. It's hard to see all that hard-won weight gain slip so easily away, too. I hope your Emma stays clear of this virus going around now. Her geneticist sounds like a great person, by the way! Linda, Emmi's Grammie (www.caringbridge.org/tx/emmipaige) Irving, TX - Friday, December 9, 2005 6:41 AM CST Dearest Princess Emma & family.... I check your page at least once an hour waiting for the results to come in. I am so greatful that our paths crossed. Caring bridge is such a wonderful place to go and see so many brave little kids that are going through so much. I have made many friends on this site and for that I am greatful. Emma is a very special girl that I just adore. It is so funny that you can grow so attached to a child that you have never met but only get to see pictures of. I know that the waiting game for test results can be so nerve wracking just waiting really stinks. Please know that we pray for Emma everyday at our dinner table and we light candles for her all the time. My daughter Caitlin loves to come to your site she loves the song that you have on there. Please know that I am always here for you. Thank you so much for being such a great person in our lives. Madison.... I wish you the best Christmas ever. I am sure that you are getting really excited as the days pass and christmas is getting closer. You are a wonderful big sister and I bet that Santa Claus is so proud of you. Will check back again real soon!!!! Take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, December 8, 2005 10:30 PM CST I love the new pictures! We are so proud of Emma's latest achievement - walking!!! Hope you do hear something this week. Sorry Madi didn't get to play in the snow. We miss you!! love you!!! Aunt Cristene, Uncle Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Thursday, December 8, 2005 2:53 PM CST Oh Emma, loved the new pictures, like Ive said before she just gets cuter every time. I know its hard waiting for diagnosis, but hope someday soon you will find the answer. We truly our blessed to have these "special" kiddo's in our lives! Merry Christmas, Denise & Sydney(DS)2yr www.caringbridge.org/in/sydneylynne Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Thursday, December 8, 2005 10:26 AM CST We do hope you get the answers you need from the doc. How awesome it is he emails you! The pics are awesome (as usual) and that definitely looks like one very happy Grandpa! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Thursday, December 8, 2005 6:51 AM CST Hi, I'm crossing my fingers and praying that you get some good news on this latest round of tests. Glad to hear that Emma is doing well, graduating from PT and working hard. Here is some snow for you Emma! Shelly, Jenna's mom, http://www.caringbridge.org/ma/jennamarcella <smarcella65@yahoo.com> Hanover, MD - Wednesday, December 7, 2005 5:10 PM CST I just had to leave a message for you! I've been coming to sweet Emma's website for a long time and checking in on her...I don't even remember for sure how I made my way to it. I just wanted you to know that I'm sending lots of prayer and PATIENCE thoughts your way. We going through a lot of tests and waiting for my little Kira right now and have been for about 20 months now....still no answers. She and Emma have soooo many things in common!! I know what it's like to be waiting for tests and wondering what the waiting means...good news, not so good news, etc!! I'm thinking of you all and believe me, I cheer Miss Emma on EVERYDAY!! I got tears in my eyes when I read that she is walking again...I can't wait until I see my Kira do that!! GO EMMA GO!!! Cori (http://www.babababies.com/view/view.cfm?SiteID=11755) <corivk@charter.net> Madison, WI USA - Wednesday, December 7, 2005 3:25 PM CST Hi Emma, Boy I bet you all are going crazy! I hope you get those results back SOON! Congrats on the graduation!!!!!!! You are one amazing girl Emma! Keep up the great work! I hope you guys get some snow and not just icky ice. We are supposed to get some snow here on Friday! I hope so! Well, have a good day and we will be checking in very soon to see if you get the results. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Wednesday, December 7, 2005 2:09 PM CST Hope you get good results back soon. Keeping your family in my thoughts and prayers... Desiree Nichols (Sammy's Mommy) www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com> - Wednesday, December 7, 2005 1:28 PM CST I was just checking for...update! Yeah on PT goals and GI follow-up is a normal visit timeframe. Nothing like normal to boost up morale. Now if those answers would come....you guys are at top of prayer list. Kelly-Ann & Linae - Tuesday, December 6, 2005 11:43 PM CST I am so glad to hear (read) that you are doing so well. A jar and a half of baby food...Good Job. I hope that your appointment goes well tomorrow, I will be thinking about you. Emma, you have gotten so big. I am glad to hear that you are liking the walking thing. I hope that things continue to go well for you and that your mom gets that results of your test soon. I also pray that the tests come back negative. :) Heather mn/dillon Heather <stsauver3mn@aol.com> Victoria, MN 55386 - Tuesday, December 6, 2005 9:33 PM CST I know it's been like forever since I've visited you. I have just been so busy. But I think of you always. LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Tuesday, December 6, 2005 7:52 PM CST I love --Love--love Emma's Christmas photos...Are her eyes GREEN??? In that top photo they look deep green. Yay on the walking. Austin's trying to catch up!!!! Love from GA Amy and AUSTIN <ambbab@alltel.net> Gray , GA USA - Tuesday, December 6, 2005 4:08 PM CST Hello! My name is Julianne Iam eight. I hope Emma is feelign well! I will start to pray for her! If you would like you can visit my page at www.caringbridge.org/visit/julianne Julianne <julzabul@aim.com> Weymouth, ma usa - Tuesday, December 6, 2005 6:55 AM CST Glad to hear you are doing good walking, signing and eating!Maybe you can come teach Heather how to eat for me! I hope your cold is gone fast and you feel better. Angela -Heather - Monday, December 5, 2005 10:23 PM CST Just checking in to see if you have results yet. Alison Andrew's mom www.caringbridge.com/canada/andrewsjourney BC Canada - Monday, December 5, 2005 3:15 PM CST Congratulations on the walking, Emma! Linda Irving, TX - Sunday, December 4, 2005 2:08 PM CST Hopefully the answer will be back soon. Praying for you, love you guys. Everyone needs to get well so we can let the girls play again soon. Talk with you very soon (tonight I am sure =) Janice and Samantha www.carepages.com Page Name-- SamanthaGable <cantrellcat@charter.net> Azle, TX - Friday, December 2, 2005 4:29 PM CST What a cutie pie!!! I love the picture of her with Elmo:) I will be reading up on her more when I return home, should've brought my laptop, it's crazy, four people to one computer/ Kristi, Media Donation Manager, www.elisangels.org <Patzman.2@wright.edu OR kristimarie2007@aol.com> - Friday, December 2, 2005 11:06 AM CST Hi Big Girl!! It is so exciting to hear you are walking and being a toddler in too many ways!! I hope Mommy and Daddy get those results soon!! My love and prayers are with you!! Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Friday, December 2, 2005 8:58 AM CST Hello PRINCESS EMMA I know all abouth the waiting.... It is no fun... We think of you often and visit your site at least once a day. We pray that you all have a wonderful holiday month. take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Thursday, December 1, 2005 10:31 PM CST UGH! Gotta HATE waiting on results! I sure hope you find out something soon. Sending hugs and patience.... www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, December 1, 2005 10:26 PM CST Hey Emma Lou....I'm hoping no news is good news sweetie. I know it must be hard for Mommy and Daddy to wait, but I've got my fingers and toes crossed. I'm so proud of your walking, great work! Aunt Denise, Uncle Julio, Jacqueline and Tomas <denise@juldengroup.com> Flower Mound, TX 75028 - Thursday, December 1, 2005 7:05 PM CST That is great news that Emma is walking!! How exciting. Enjoy your break in appointments. Thinking of you all. Angela ~Angels on Earth *- -HEATHER GRACE <alisonheathersmama@gmail.com> - Thursday, December 1, 2005 8:25 AM CST Emmi had her intake evaluation for Callier and the Coppell school district today, and for some reason that made me think of Emma. I hope she's doing well and that you're enjoying the holiday preparations or at least having time to make some! Linda, Emmi's Grammie (tx/emmipaige) Irving, TX - Wednesday, November 30, 2005 3:35 PM CST YAY Emma!! Sounds like she is ding so well!! Her dr appt sounds great, too!! Keep it up sweet girl!! I so know what you mean about a dx...it helps to have a name to call it and to know what treatment protocol if any you need to be following. It stinks whan you are just treating something blindly and hoping it will work. Good luck with the wait...it is never easy. I hope it comes back with useful information, whatever the result. Keep us posted! Thinking of you guys.... www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Saturday, November 26, 2005 10:50 AM CST Congrats on Emma's weight gain, we will pray for a diagnoses for her. Have a great holiday season. Sincerely, Theresa Pope www.caringbridge.org/ca/rhyanpope Theresa Pope <mtpope@sbcglobal.net> Clovis , CA - Friday, November 25, 2005 5:23 PM CST Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Thursday, November 24, 2005 11:29 PM CST I hope you're having a great Thanksgiving! Congratulations on all the advances Emma has made. Linda, Emmi's Grammie (tx/emmipaige) Irving, TX - Thursday, November 24, 2005 6:37 AM CST Dearest Princess Emma & Family.... I hope that you all have a wonderful Holiday. I will have to get with you real soon on how you are teaching Emma all those signs I am having a really hard time with Joseph. I will be thinking of you all and praying that you find the answers that you need!!! I know that the waiting game is so difficult. Have faith www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, November 23, 2005 11:50 PM CST Hope you and your family have a wonderful day! Hugs! Diana <dianasinger06@yahoo.com > Dallas, TX - Wednesday, November 23, 2005 11:25 PM CST It sounds like Emma is getting so big! We check in often, but our computer hasnt been letting me into your guestbook! Hope you all have a good Thanksgiving. Angela -HEATHER GRACE a - Wednesday, November 23, 2005 7:01 PM CST Hi Emma thanks for dropping in on us its great to hear about the signing, Hannah is learning some new signs but we haven't tried any christmas ones yet, we will have to work on it. Hannah had her check up this week and she weighs 27lb and is 3 years so I wouldn't worry too much about the weight it sounds like Emma is doing just great. Terrific news about those steps, soon she'll be walking around before you know it take care sending you our warmest wishes Jo Hannah and Rebecca Jo <yarnall@blueyonder.co.uk> England, UK - Wednesday, November 23, 2005 4:20 PM CST Hi Emma! Glad that you're off the antibiotics! Praying for those test results. With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Tuesday, November 22, 2005 10:10 AM CST Dearest Princess Emma..... I was just dropping by to say hello. I hope you had a great weekend. Joseph and I are sending you and your big sister Madi many big hugs!!!!! We will be back later in the week. Take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Monday, November 21, 2005 0:03 AM CST Glad things are looking good for Miss Emma. Just wanted to let you know we are thinking of you all! Hope you have a great holiday! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Sunday, November 20, 2005 11:16 PM CST Glad that it looks like the procedure was a success and that the antibiotics can be stopped for now. It always a relief when things work the way they are supposed to. Hope the garage sale was a big success. Have a great Turkey Day. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@elpasotel.net> Rush, CO United States - Sunday, November 20, 2005 7:24 PM CST I'm glad to hear that Emma can come off the antibiotic and that she's taking isolated steps again. Linda Irving, TX - Saturday, November 19, 2005 10:25 PM CST Great news about Emma liking the orthotics. Linae took 4 months to become walking independant for 6' distances - so keep giving Emma opportunities! Patience is required! Linae has started the "screaming meanies" with a vengance- screams, cries, shouts NO!, hits and is generally unpleasant to be around. Of course prefers Mom with this Rett stage. Why couldn't I get the seizures later and Dad get the SM's now? SO I really appreciate the good news! Kelly-Ann Larson <kwarren@visi.com> Richfield, MN USA - Saturday, November 19, 2005 9:38 PM CST Hi Emma and family! Sorry I haven't signed the guestbook lately. Things have been pretty busy at our house. I know that this probably won't help much, but I just wanted to say that it took Lily a while (almost 6 months) from her first step to walking without assistance. She was 35 months before we could say she was officially walking. She would take 1-2 steps and then nothing for awhile. Then she would take 5-6 steps and then refuse to walk for up to a week. It was so frustrating. We would get our hopes up and then nothing. She would seem so weak sometimes and then a week later, she would walk down a long hallway. We would get our hopes up again, and then she would regress again. We couldn't figure it out. Several parents told us this was normal for children who have special needs, but we just kept thinking that something else was going on. She used a reverse walker for many months and that helped her a lot with balance. Her SMOs have helped too. Anyway, I hope that Emma is just taking her time, like Lily did, and that eventually she will be walking all over the place. She and your entire family will be in our prayers. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Saturday, November 19, 2005 9:27 PM CST I had so much fun today, I just love watching our girls grow up together. See ya tommarrow. Janice and Samantha www.carepages.com page name--- SamanthaGable <cantrellcat@charter.net> Azle, TX - Friday, November 18, 2005 7:19 PM CST May your Thanksgiving be very blessed. Stephanie and RachelJoy <mom2rj@comcast.net> - Thursday, November 17, 2005 10:39 PM CST I just wanted to pop in and say hi. Sorry I haven't been by the page as often lately, I am hoping to get more time soon to get back on the computer. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Thursday, November 17, 2005 2:48 AM CST I hope the appointment went well today. Linda, Emmi's Grammie (tx/emmipaige) Irving, TX - Tuesday, November 15, 2005 6:05 PM CST Just popped to see how you guys were, good luck with your appointments next week. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Tuesday, November 15, 2005 11:52 AM CST I'm glad Emma got her AFO's (or SMO's, LOL) and new Magic Shoes! I can't believe she's 18 months old. She is getting so big. Hurray! :) Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@comcast.net> Florida, - Monday, November 14, 2005 3:38 PM CST Hello Princess Emma I hope all is going well. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Monday, November 14, 2005 0:08 AM CST Congratulations! You have nurtured a fierce and independent spirit in your Emma, one that will make matters a bit difficult now but will be just what we all want to see in our young women. It's harder to gently guide that spirit into situation-appropriate behaviors than it is to just squash it, but you sound as if you're up to the job! Congratulations on all Emma's new words. She's going great. Is it possible that her new balance issues and weaknesses are related to her illness? When Emmi is sick, she often seems to suffer neurological symptoms, too, that so far, thankfully, have resolved when she's fully well again. According to Emmi's therapists, that's not uncommon if there's a metabolic component to whatever's underlying other symptoms. I know it's scary, and I hope it resolves soon. Linda, Emmi's Grammie (www.caringbridge.org/tx/emmipaige) Irving, TX - Friday, November 11, 2005 10:36 PM CST LOVE ALWAYS BRENDA <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Friday, November 11, 2005 5:29 PM CST Havent ckd in on you for a while so here I am. You are doing a great job signing, Sydney is trying to catch up with you. Keep up the good work cutie! Denise & Sydney Denise Pequignot <dpequignot@earthlink.net> South Whitley, IN usa - Friday, November 11, 2005 12:33 AM CST I hope the girls are both feeling totally better. I hope Emma starts taking those steps for you. I know how the set backs can be so concerning. I bet she sounds adorable trying to talk. Heather says "muh" for more too..lol. Maybe they would understand each other? :O) Angela- -HEATHER GRACE <alisonheathersmama@gmail.com> - Friday, November 11, 2005 8:02 AM CST Glad to hear she was over her bug quickly. I so know that look...Nicholas threw up for the first time with a tummy bug this past summer and it is so horrible to hear and see. Glad she only had it once. I hope the walking is a phase and that the therapies are not so hard for her. Nathan is the same way right now and cries most of the way through. Glad to hear her speech/signing is going so well, though! Keep up the good work, Emma! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Friday, November 11, 2005 0:17 AM CST I stumbled upon your site via a few other sites, and just wanted to send thoughts and prayers your way! Janet White Griebel <jlwslp@bellsouth.net> Marietta, GA USA - Thursday, November 10, 2005 11:06 AM CST I hope Emma and Madi haven't caught the cold/stomach thing that's been going around our area. Emmi has it and illnesses like that always push Emmi's glucose levels out of whack. Even though they can't figure out what's wrong with her, those kinds of things convince them there's something metabolic underlying everything. I hope your Emma is regaining some strength and balance. Linda, Emmi's Grammie (www.caringbridge.org/tx/emmipaige) Irving, TX - Wednesday, November 9, 2005 10:17 PM CST Praying for beautiful little Emma,just wanted to come by and check on you guys. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, November 9, 2005 11:18 AM CST Dear Sweet Emma: Our prayers go your way for both you and your family. We hope that you are soon walking again and back to your ole self. Thanks for being so sweet to our grndson, Caden,and checking in on him from time to time. Hope you two can see each other soon. Be better soon!!!! Pat and Don Lee, Cadens Mamaw and Papaw Pat Lee <donlee@web-access.net> Coleman, Texas USA - Tuesday, November 8, 2005 1:19 AM CST Dear Sweet Emma: Our prayers go your way for both you and your family. We hope that you are soon walking again and back to your ole self. Thanks for being so sweet to our grndson, Caden,and checking in on him from time to time. Hope you two can see each other soon. Be better soon!!!! Pat and Don Lee, Cadens Mamaw and Papaw Pat Lee <donlee@web-access.net> Coleman, Texas USA - Tuesday, November 8, 2005 1:19 AM CST Hi Emma, I hope that you are doing much better and are trying to walk some more! We are keeping you in our thoughts and prayers always. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Monday, November 7, 2005 3:12 PM CST I hope Emma's better after the weekend! Sending MANY prayers your way~~ Vicki & Caden Williams <vicki.williams@wallisd.net> San Angelo, TX - Monday, November 7, 2005 12:02 AM CST Princess Emma we think and pray for you all the time. I hope you get back to walking again real soon. Every couple of steps count. Please say extra prayers that Joseph's surgery goes well on Thursday!!!! We are sending big hugs your way www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, November 6, 2005 1:31 AM CST I hope this weekend brings some reassuring steps forward (both literally and figuratively). Emma has been doing so great, with those attempts at new words and her steps. I've loved reading about her progress. Maybe this step backward is just a normal thing, although when our children or grandchildren have other health issues, we always blame setbacks on those issues. My oldest daughter began taking a few steps and then figured out that she sometimes fell. She stopped all efforts to walk and spent a couple of weeks just standing and sitting. I guess when she finally got her balance under control again, she began efforts to walk again. Although that doesn't sound like what you're describing, I hope it is something as simple as that. My granddaughter Emmi was measured for her helmet today, and we're hoping that she has a few less knocks on her head due to her hypotonia and balance issues. Linda, Emmi's Grammie (www.caringbridge.org/tx/emmipaige) Irving, TX - Friday, November 4, 2005 6:54 PM CST Hi Emma, you little cutie patootie!! Ok, let's make a deal between you and me. If I pray to Heaven as hard as I can, will you get up and get those little feet walking again? Is it a deal?? Hee-hee! I'll be checking on you!! Have a fun weekend, give your Mommy a (((HUG))) Love, Ann and Matthew www.caringbridge.org/mn/matt Ann <mommytomatt@aol.com> Fridley, MN USA - Friday, November 4, 2005 2:08 PM CST Prayers for you, sweet Emma...and also some for mommy and daddy. Hope you are up and walking those steps again very soon! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, November 3, 2005 10:07 PM CST Praying for sweet Emma! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Thursday, November 3, 2005 9:37 PM CST Hi Sweet Emma!! I pray you will get all rested up and feel well. I am praying and praying for wisdom for Mommy and Daddy and doctors to know what is going on with your health. Lots of love in Jesus, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Thursday, November 3, 2005 8:53 PM CST I am so sorry that you are seeing possibly changes. Any time that happens it is very scary and you wait with baited breath for a sign that all is ok. I know, I've been there many times. Our thoughts and prayers will continue to be with you. Alison - Andrew's mom www.caringbridge.com/canada/andrewsjourney Vancouver, BC Canada - Thursday, November 3, 2005 8:24 PM CST GREAT TALKING EMMA! YOU & YOUR BIG SIS LOOKED ADORABLE FOR HALLOWEEN. LOVE YOU! carla cucci <cooch67@comcast.net> - Thursday, November 3, 2005 5:52 PM CST The pictures are so awesome!!!! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Thursday, November 3, 2005 2:02 PM CST Hi Emma! I think you look so cute in your costume! Looks like you had a ton of fun! :) With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears Website~ Ones Who Care ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Thursday, November 3, 2005 10:35 AM CST Hi Emma, I hope that today is a grat day for you! You were the cutest flower I have ever seen! Kari has a Casper the ghost vibrator to wake up her mouth. At first she HATED it, but now she does not mind it. Just go slowly!!!!!!!!! Kari also gnawed on a tootie roll wrapped in organza fabric. That really seemed to help her chew better. I don't think she is getting the oral motor work that she needs at school, so I will be calling her doctor to see if we can get her some other therapy outside of school. She is still not making any sounds other than dada. Well, she likes to her herself yell!!!!!!!!!!!!!! We are keeping you in our thoughts and prayers. Have a great day!! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Wednesday, November 2, 2005 8:50 AM CST Great news on the new sounds. Can't wait until Emmi has cochlear implants and can start catching up to Emma! (Why is there always so much red tape?) That elephant tool sounds great and so does Emma's progress. Great going, everyone! Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Tuesday, November 1, 2005 3:30 PM CST I love that flower!!! I want a kiss. Good news on the taste testing successes. Austin is regressing in the food department...sigh...it's always something. He wont eat fruit but he'll eat yogurt with fruit in it...He wont eat ice cream...but he likes milk shakes. ???? He won't eat candy but he loves birthday cake...He'll eat one thing for a while then he acts like you are poisoning him the next day when you offer it. Life is fun. We keep the OT and ST hopping. Glad you had a great time with both your little angel girls. Austin slept through our Fall Festival...he was a holstein calf. Love from GA, Amy and Austin <ambbab@alltel.net> Gray, Ga USA - Tuesday, November 1, 2005 12:53 AM CST LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Monday, October 31, 2005 11:27 PM CST Happy Halloween Emma! Hope you have fun today. Rebecca-www.cringbridge.org/visit/johnnywyatt <ladykissendyl@comcast.net> - Monday, October 31, 2005 9:14 AM CST Emma is such a doll!!! I loved looking at her website. I hate to see that she is going through such a rough time. I will pray for her that God bestow a miracle upon her. We are dealing with some very similiary issues with my son Aidan. We cannot get a diagnosis for him nor can we find a doctor that we are satisfied with. I would love to hear more about what you have went through and talk with you. It helps to have someone to vent to on those bad days. Feel free to please email me!!! Courtney Murrell <kiesr2001@hotmail.com> Rogersville, TN United States - Monday, October 31, 2005 8:52 AM CST Hi to another Texan! I'm so glad I stumbled upon your page! Emma sounds like such a sweetheart and is absolutely adorable. You mentioned Baylor so I think we may be really close! I wish you the best of luck with finding a diagnosis- I can very much relate to the frustration of not knowing, but not in the magnitude as you are dealing with. Well I’m thinking of you and your family now and always- hope you have a great day and I'll check back again soon! Diana <dianasinger06@yahoo.com> Dallas, TX - Monday, October 31, 2005 0:21 AM CST Glad to hear Emma is making so many gains right now. It's great. Sorry to hear about the possibility of no diagnosis, that's the boat we are in as well and i know how frustrating and scary it can be. Hope you have a Great Halloween. Sarah Johnson mom to Will (www.caringbridge.org/co/williamrein) <momme@pcisys.net> Rush, CO United States - Sunday, October 30, 2005 7:17 PM CST Hello Princess Emma.... Have a safe and wonderful Halloween!!1 Madi... I think that Emma is so lucky to have such a wonderful big sister. You keep up the good work I'm sure that you are a Princess to. I will call you Princess Madi!!!! I hope that you have a great Halloween and know that we think of you often as well. I hope that your feeling ok I know that at times mommy says you are having belly problems I pray for your family every day. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, October 29, 2005 10:58 PM CDT Maybe Emma IS rubbing off on Samantha. She stood on her own for almost a full minute today. Thanks for all of your care and concern for our family. I don't know what i would do without friends like you guys!!! Happy Halloween!!!! Janice and Samantha www.carepages.com (page name--SamanthaGable) <cantrellcat@charter.com> Azle, TX - Saturday, October 29, 2005 5:07 PM CDT You are such a Cutie, Emma!! Your Big Sis is, too!!! Have a fun weekend. I'm thankful to hear your doctor is so good to you and your family!!! Love and hugs and prayers, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Saturday, October 29, 2005 9:52 AM CDT That sounds like such a wonderful doctor, you are very fortunate. I wish you all the best trying to find out the diagnosis. Sounds like Emma is doing so good too, great news. Have a great halloween week end. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Friday, October 28, 2005 9:27 PM CDT Oh sooo haoppy to hear of a comapssionate medical person! Willing to work with you - until YOU don't want to. Makes the unknown a little less scary-knowing you have company.Hugs to Emma and Madi!. Kelly-Ann and Linae (one week down 7 to go!) Kelly-Ann - Friday, October 28, 2005 4:33 PM CDT Sometimes I think that your Emma and my granddaughter Emmi sound so similar that we ought to take them to same geneticist, since we live so close, and say, split up the tests between them! Yet, there are some differences. I'm glad that your Emma hasn't suffered Emmi's hearing loss, and Emmi no longer does the hand-wringing that we were seeing for a while, too. As of right now, it doesn't look as if Emmi will have a diagnosis, and I know it's hard on my daughter. I hope you find an answer for Emma, and one that isn't too scary. Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Friday, October 28, 2005 4:02 PM CDT I will pray that you are able to find a dx. Don't feel alone.There are many kid without a dx. This can be more emotionally hard on the parents. If you ever need to talk,email me. Rebecca- www.caringbridge.org/visit/johnnywyatt <LadyKissendyl@comcast.net> - Friday, October 28, 2005 9:13 AM CDT Hugs, sweetie! I am really sorry you had such a difficult appt. It is really hard to want answers so you can help your child and feel like you are running into a brick wall everywhere you turn. It sounds like this dr is commited to helping you figure it out...I am so glad! I will be praying for answers for you. I hope that the new meds and thickening help her. Nicholas takes Nasonex and it has hlped him noticably with congestion and sinus infections. I hope also that Madi continues to feel better. Take care and hang in there...you are doing an awesone job advocating for her! Sending hugs and strength! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, October 27, 2005 11:46 PM CDT I was stopping by to say hello and see how everyone was doing. The girls look so great!!! I can't believe Emma's walking!! Thanks for always checking in on Caden! I have been so terrible about having time to sign in lately! Sorry! I hope you all have a GREAT, HAPPY HALLOWEEN!!!! Hugs & Prayers, Vicki & Caden Vicki <vicki.williams@wallisd.net> San Angleo, TX - Thursday, October 27, 2005 3:16 PM CDT It sounds like Emma is doing awesome! Yay on taking steps and standing! I hope Madi feels better soon and you get some answers as to what is bothering her. I was laughing at you saying Brr to weather in the 50's. Here I would love 50 in the fall! :O) It was 34 yesterday and that is nasty cold!! Angela~ www.caringbridge.org/ma/heathergrace <alisonheathersmama@gmail.com> - Thursday, October 27, 2005 1:20 PM CDT The pictues of the girls are great, they are so beautiful. I hope Emma gets good news soon, she is such a brave little girl. Hopefully Madison just had a virus. Give the girls hugs and kisses from us. You all are always in our thoughts and prayers. Love, Aunt Kathy & Uncle Vinny Kathy Monaco <0424kam@bellsouth.net> Lake Mary, FL USA - Wednesday, October 26, 2005 1:27 PM CDT Wow. Lots of information to digest, right? I'm glad Emma demonstrated her new standing ability for the therapist. Our Emmi usually tries to keep those new skills a secret from the therapist. Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Tuesday, October 25, 2005 7:16 PM CDT Doing my weekly ck in on you lil Miss Emma, sounds like you are doing some amazing things, keep it going. To me sounds like the ups are outweighing the downs. Hip Hip Hooray! Denise and her lil cheerleading Sydney www.caringbridge.org/in/sydneylynne Denise Pequignot <dpequignot@earthlink.net> South Whitley, in usa - Tuesday, October 25, 2005 9:47 AM CDT Yay, Emma! Glad to hear she is progressing! She is awesome! I hope the drs can figure out something soon so you can have a better idea of how to go foward with things. It always stinks not knowing and having this big question mark hanging over your head. Thinking of you all and hope you are enjoying this cooler weather! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, October 25, 2005 0:51 AM CDT Hi Emma, You are doing just AWESOME!!!!!!!!!!! Keep up the great work! Emma and Kari have soooooo much in common. I'm not sure when we will be doing more testing for her, but I know in my heart that she has some other issues going on than just cerebral palsy. Her doctors think there are some issues, but have tested her for so many things that just come back negative. We are in a waiting pattern now. Well, Kari is crying for me so I need to run. Have a great week and we will be back soon. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Monday, October 24, 2005 1:01 PM CDT Well, for my two cents that don't count...I think if it is definitely something Emma is trying to say, that DOES count! Yay!!! GO EMMA!!!! And yay for Dad being home! Have a great week! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Monday, October 24, 2005 11:37 AM CDT HAPPY DAY! WEEK! Great talking Emma! Start mimicking Mom's sounds to really make her crazy! Great news all around! Kelly-Ann and (sleeping Linae) Kelly-Ann Larson <kwarren@visi.com> Richfield, MN USA - Monday, October 24, 2005 0:08 AM CDT Hello PRINCESS Emma ..... I can tell my your mommys update that you are getting smarter everyday. I bet your big sister helps so much. You are so lucky to have such a wonderful family. I think you should come and give Joseph lessons in signing. We think of you often and we pray for you and you family all the time. Take care www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, October 23, 2005 0:27 AM CDT Yeah for that "ba-ba"! Today Tricia and I took Emmi to the bookstore and plunked her down next to the picture books, as it happened next to a girl who was one day older than Emmi. This little girl was chattering away, as Emmi's big sister had done at that age, too, as you said Madi had done. She was so much bigger than Emmi, too, and walked. And we were trying to find a book that might appeal to Emmi, now that we know that she's deaf and that the beautiful language in some won't be as important for now as the pictures will be. Moments like that are hard, aren't they, when you see the differences? And yet, this little girl reached over, saying "mine" to take away Emmi's book, and Emmi narrowed her eyes and jerked her book away and then engaged in a little you-invade-my-turf-and-I'll-invade-yours kind of behavior and you realize that her mind is working in there just as well as the other little girl's. It sure sounds as if your Emma's is, too! Way to go, Emma! Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Saturday, October 22, 2005 9:31 PM CDT Sorry we havent ck'd in on you lately, you guys are so good cking on Sydney, but as you know life has been hectic. What a BIG girl you are Emma, taking steps and pushing the scales over 20lbs. Congratulations, may the good news keep coming! God Bless!! Denise & Sydney Denise Pequignot <dpequignot@earthlink.net> South Whitley, IN USA - Friday, October 21, 2005 9:18 AM CDT Way to go Emma I am so proud of you, wow sounds like you are on a roll Miss Emma, I can't wait to hear what mommy has to tell us on Monday, over the weekend you may even start running. By the way thanks for stopping by to see Jesse and for all the prayers. Still praying for you big girl. Shannon Mommy to www.caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Friday, October 21, 2005 8:05 AM CDT WTG Emma! Sounds like the weight is packing on all around! I am glad to hear she is doing so well! I hope that they can find a reason for her weakness. Nathan has had some side-preference and weakness and they ahave not discovered why yet. We are hoping it is one of those random things that will recover with time. He seems to be doing better, so we are hopeful. Good luck with the testing. I hope it yields helpful information. Keep us posted! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Friday, October 21, 2005 1:58 AM CDT Great job Emma, on the weight gain. My youngest wasn't even on the charts until a few months ago and she's three. We too are at the 3 % . About the srtroke thing. It is so funny you mentioned that. The doctors thought the same thing about my friend's little girl who also has a metabolic disorder, but it turned out that her disorder is just a little worse then what they thought, because her disorder can affect her muscles. She just had to get on more of her therapy medication and her strength returned. If you have any questions , you know that you can always e-mail me. Theresa and Rhyan Theresa Pope www.caringbridge.org/ca/rhyanpope <mtpope@sbcglobal.net> Clovis , ca - Thursday, October 20, 2005 10:18 PM CDT I just signed, but I wanted to add a special thanks to the person writing the guestbook entry on SWAN, Syndromes without a Name. This week, the geneticist told my daughter that her daughter was likely going to be one of those children for whom there wasn't a diagnosis and the time had come to stop the testing. The presumption is that it's something metabolic, but it's not fitting the known categories. I'm going to send her the link to the site. Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Thursday, October 20, 2005 3:57 PM CDT I am so happy to read of Emma's new accomplishments, and also that the appointment with the new OT went well, too. I bet while Emma is taking those steps, you're doing some walking, too--walking on air! Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Thursday, October 20, 2005 3:51 PM CDT WAY TO GO EMMA!! We are so proud of you and your hard work! You are such an amazing baby girl! We miss you. Love, Aunt Carla, Uncle Scott and your Boy Cousins Joseph and Baby Michael carla cucci <cooch67@comcast.net> New egypt, - Wednesday, October 19, 2005 8:59 PM CDT Yay!!! Go Emma! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Wednesday, October 19, 2005 1:16 PM CDT Way to go Miss Emma... WOW I am proud of you! May many more blessings come your way! Shannon Mommy to www.caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Wednesday, October 19, 2005 11:06 AM CDT So very cool Emma! I wanted to share information on a website I found called Swan (syndromes without a name). http://www.undiagnosed-usa.org/ Check it out. Rebecca <LadyKissendyl@comcast.net> - Wednesday, October 19, 2005 9:33 AM CDT I'M SO PROUD OF YOU, EMMA!!! YOU GO, GIRL!!! I KNOW YOUR MOMMY AND DADDY ARE SMILING FROM EAR TO EAR! I JUST THOUGHT I WOULD CHECK ON YOU TONIGHT, AND I AM SO GLAD THAT I DID! WHAT WONDERFUL NEWS!!! I KNOW A LOT OF PRAYERS HAVE BEEN ANSWERED--GOD IS SO GOOD!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Tuesday, October 18, 2005 11:56 PM CDT Way to go, Emma!!!! We're so proud of you! I will never forget the day Lily took her first steps. She kept us guessing for awhile, but 5 months after those first steps--she's walking like a champ. I hope your SMOs help you as much as Lily's SMOs help her. You are an amazing little girl! I know your mom and dad will be chasing you around your house very soon. We always keep you in our thoughts and prayers. Lots and lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Tuesday, October 18, 2005 8:37 PM CDT woo hoo well done on the walking Emma we are so proud of you, we are jumping up and down for joy and I bet your mommy is crying tears of joy. What a clever little girl you are Jo Hannah and Rebecca Jo <yarnall@blueyonder.co.uk> England, UK - Tuesday, October 18, 2005 5:11 PM CDT Woohoo!! Congratulations on the big event....2 steps will surely lead to 3, then 4........... Alison Andrew's mom http://www.caringbridge.com/canada/andrewsjourney - Tuesday, October 18, 2005 4:53 PM CDT Hurrah steps! God Bless you and know we send our hugs and prayers from Gale & Andrea. www.caringbridge.org/nc/andrea <janma27537@yahoo.com> Jacksonville, NC USA - Tuesday, October 18, 2005 3:47 PM CDT Okay. Let me get this straight...Emma is climbing on tables...maybe you need to cut BACK on PT..LOL. Not there yet at our house. Austin is taking some baby steps with assistance and pulling up. But those AFOs will do wonders if you can keep them on her legs. Everyone I know who has used them have been very happy with the results. As for ST...no child talks in speech. Our therapist calls it the dancing frog...from looney tunes. You know the man has this performing frog..sings, dances, talks...he takes it to a hollywood agent and the frog sits there and says 'ribbit.' So it is in speech...all day long the baby is chattering, signing, communicating...you go to Speech and they look around the room and blow raspberries. Gotta love em. Austin was popping bubbles in PT the other day and said Bubbles 3 times. Haven't heard the word since. Sigh...one day You and I will be hoping Austin and Emma will QUIT chattering. May that day come quickly!!! Keep the Faith Amy and Austin <ambbab@alltel.net> Gray, GA USA - Tuesday, October 18, 2005 7:48 AM CDT Hi guys You sound busy,busy,I am glad things are going so well though!I just popped into check on the little cutie! Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Monday, October 17, 2005 10:50 PM CDT Don't they learn to flirt early! Loved the story of Emma flirting with the teenagers and older men. Good luck with the new AFO's tomorrow. I don't know where you're going for those or when, but Tricia will be bringing Emmi to Dr. Waber's office in the Genetics and Metabolism department at Children's tomorrow morning, if you're over that way. Now that Emmi has had the progressive hearing loss, the ENT has given Tricia a whole new list of possible disorders to be investigated. Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Monday, October 17, 2005 9:39 PM CDT hi emma hope you are doing great. enjoyed looking at your pictures your so adoreable. my name is cheyanne i'm 14 years old with retts syndrome maybe we can keep in touch I'll send a picture of me cheyanne munoz <purplebakersfield@yahoo.com> - Monday, October 17, 2005 7:16 PM CDT Hi Emma I sure hope you are having a good day! Shannon Mommy to www.caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Monday, October 17, 2005 11:07 AM CDT Hi Emma, I hope this is a great day for you!!! Tell youf sister thank you for signing Kari's guestbook. Kari just loved it. We think of you and pray for you daily. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Monday, October 17, 2005 9:23 AM CDT Hi Emma- I wanted to say hi. I haven't visited your site lately- we bought a new PC and I lost all my "favorites" so I'm adding you again tonight! Love, Leslie Reynolds www.caringbridge.org/visit/morganreynolds Leslie Reynolds Atlanta, GA - Sunday, October 16, 2005 11:47 PM CDT Hi Princess Emma just dropping by to say hello. We are sending big hugs your way. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, October 16, 2005 10:11 PM CDT Hi there! Tabby is having some adenoid issues too. I think her's are causing her to have sleep apnea. I hope Emma feels better soon! ~Tabby’s Page~ Karen & Tabby <karen_wst@yahoo.com> - Sunday, October 16, 2005 1:20 PM CDT I accidentally signed my own granddaughter's site (tx/emmipaige) with the post I'd mean to add to Emma's and had to ask my daughter to delete it! I must be working too many hours. Good luck with the appointments, and I hope that Emma is soon over the congestion. Emmi has a number of appointments coming up soon, too, including another visit with the geneticist at Children's on Tuesday, for a new round of tests after Emmi's progressive hearing loss was discovered. Fortunately, this appointment was already scheduled before the hearing tests, or I'm sure the wait would have been longer. We need more metabolic specialists here in Texas, don't we? Linda, Grammie to Emmi (tx/emmipaige) Irving, TX - Saturday, October 15, 2005 9:38 PM CDT Glad you have some good news today. Hope the metabolic dr will have some answers for you. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Friday, October 14, 2005 10:21 PM CDT Hello Emma and Madi, thanks for signing Rhyan's website. I hope you find what you need to with the metabolic specialist. It's often easy to tell that kids are "metabolic" but what exact disorder it is , isn't always so easy. So we will pary that you get concrete answers. If you have any questions about our disorder feel free to e-mail me. Your girls are beautiful!!! Theresa Pope (www.caringbridge.org/ca/rhyanpope) <mtpope@sbcglobal.net> Clovis , ca - Friday, October 14, 2005 7:52 PM CDT Skye and I are just stopping by to say HI. We will be keeping you close in thought and prayer. Skye sends a nice snuggly cuddly hug. God Bless! Tamm cline <Tamm06@aol.com http://www3.caringbridge.org/oh/skyecoleycole/> warren, oh - Friday, October 14, 2005 6:25 PM CDT HEllo My name is JUlianne Iam eight. Emma is SO cute! I hope she feels better! Iwill start praying for her! If you want you can visit my page at www.caringbridge.org/visit/julianne hope you visit! Julianne <julzabul@aim.com> Weymouth, ma usa - Friday, October 14, 2005 2:27 PM CDT Hey Emma!!! It is a good update! We are happy the gagging isn't a bigger issue! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Friday, October 14, 2005 7:01 AM CDT We have been told the same thing about the "perfect" fundo. I guess Nicholas has this as he has only thrown up once...when he had a tummy bug a couple of mos ago. Nicholas is on a rx nasal spray (Nasonex) per his ENT and it basically saved him from the tons of sinus infections he was having. Hope they can rx something for her that works as well. Good luck with that and the metabolic testing. www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Friday, October 14, 2005 1:48 AM CDT Praise God for the good news. What a trooper you are, Emma, to be feeling so well today!! Lots of Love, Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Thursday, October 13, 2005 9:08 PM CDT Love your website and the pictures. My Sky has a lot of sinus/mucous problems too, it's never fun. Will check on you often. www.caringbridge.org/oh/skylarbaker Love, Nikki, Mikaela, Skylar RS <nd6780@peoplepc.com> toledo, oh usa - Thursday, October 13, 2005 8:59 PM CDT Hope your feeling better Miss Emma! Shannon Mommy to www.caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Thursday, October 13, 2005 3:07 PM CDT Thinking of Emma today. Tina & Lance <lancejrmommy@comcast.net> - Thursday, October 13, 2005 1:40 PM CDT Hi Emma! I'm so sorry to hear about what happened! I hope you are feeling all better now! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~The Prayer Bears~ Ones Who Care ~Simply Joanne~ Joanne <joanne173@gmail.com> Singapore, Singapore - Thursday, October 13, 2005 10:42 AM CDT Wow! What a day! Glad they caught and treated the VUR. Sorry about her button! Was that the first time it has come out? I remember my utter shock the first time Nicholas came out and I had never changed it before. Talk about panic! I am glad it was at the hospital and they got it back in quickly! Sounds like the weekend plans are just what you need after today. Enjoy! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, October 13, 2005 0:10 AM CDT Hi Princess Emma I am so sorry that you had a rough day. I hope that your recovery goes well and fast. We think of you often. Every time we visit your sight it puts a smile on my face you are a beautiful little girl and you have such great loving parents. We pray for you all the time. You have a great weekend and I will check back soon for the new pics. Take care. www.caringbridge.org/fl/joseph Elizabeth & Joseph <michael_shipley@bellsouth.net> - Wednesday, October 12, 2005 10:32 PM CDT ALWAYS IN MY THOUGHTS AND PRAYERS LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Wednesday, October 12, 2005 10:23 PM CDT Hi Emma and family! Sorry I haven't posted in a bit. Thanks for the sweet message that you left in Lily's guestbook. I'm sorry that Emma hasn't been feeling well lately. I hope that the antibiotics help her feel much better. I also hope that she feels well enough to go to the Fair and have lots of fun! We always keep Emma and your family in our prayers. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Wednesday, October 12, 2005 8:58 PM CDT Thoughts and prayers for you all as you head to Cook Children's with your beautiful Emma. You're probably on your way there as I type and I can visualize the drive well, as my granddaughter Emmi has spent lots of time there, too. Linda, Grammie to Emmi of tx/emmipaige Irving, TX - Wednesday, October 12, 2005 6:24 AM CDT good news from yesterday, hoping today goes well and certainly tomorrow too. i'm so proud of you guys, how you are taking this all in and staying so positive. you are great role models for your daughters. we'll have fun for halloween... denise <denise@juldengroup.com> flower moun, tx 75028 - Tuesday, October 11, 2005 10:35 AM CDT Oh the new pictures are beautiful! Hope all the procedures are smooth! We think of you often! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Tuesday, October 11, 2005 8:24 AM CDT Hi Emma, It has been a good bit since we have been here, but please do not think that we don't think of you!!! Kari had the MECP2 test and it came back negative. Thank God. I hpe the same is true for you! I hope you all get to have a nice relaxing day. I need to get Kari into the doc. She has a strange rash all over??????? HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Tuesday, October 11, 2005 7:41 AM CDT HEY EMMA AND LAUREN! So sorry, that I haven't signed your guestbook in a while, but don't think that I haven't been keeping up with you! I check on you girls almost everyday! Sounds like this will be a very busy week for you--I hope that it all goes well! Taylor had her muscle/skin biopsies done at the end of August, and we are still waiting for the results. They think she probably has a Mitochondrial disorder, but they are also testing her for metabolic disorders, neurotransmitter diseases, AND RETT'S SYNDROME. The only way that I have ever heard of Rett's was from your website! Thanks for the info and link! I know that you and I both will feel better when our daughters have a diagnosis! At least, then, we can research it and make better informed decisions about their care. And there is always HOPE for a treatment or cure someday!!! It sounds like Emma is doing really well in so many areas--gaining weight, signing, physical activity, and developmentally!!! That is so great! Glad you got good news on the fundo! We have had our own battles lately with that also. Taylor's is still intact, but she still gags, retches, and about once or twice a week throws up a little bit. She is on Prilosec twice a day and Zantac once a day, so at least it's not burning her throat with too much stomach acid. Sometimes, if we substitute a bolus or two with Pedialyte, she recovers quickly. I'm like you -- I guess it is something we might have to live with, unless it gets worse, or she starts throwing up a lot more, aspirating, or losing calories and/or medicine. I am thankful that she is not like that everyday-ALL DAY! Well, your girls are so sweet! I love coming to your site-you just can't help but smile when you see those happy little girls!!! Let me know if I can help you in anyway! Have a great day, and know that we are in our prayers!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Tuesday, October 11, 2005 1:11 AM CDT Lauren, what a beautiful webpage.... the pictures are great, the girls are so cute! So glad to hear the fundo is still working... hope things get better for you guys, and you get some answers soon! ~ Tracy Tracy ALvarez <annabie@cableone.net> Burley, ID USA - Monday, October 10, 2005 11:11 PM CDT So glad to hear the good news about the fundo! Yeah! Linda, Grammie to Emmi (tx/emmipaige) Valley Ranch, TX - Monday, October 10, 2005 6:37 PM CDT We just wanted to stop by and let you know that you are always in our hearts and prayers! BIG HUGS, Julie and Collin julie <collinpresley@aol.com> ca usa - Monday, October 10, 2005 2:29 PM CDT Beautiful pictures! I'm so sorry that Emma is still having difficulties. Linda Irving, TX - Monday, October 10, 2005 5:29 AM CDT Hi Princess Emma just dropping by to send you big hugs. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, October 9, 2005 10:37 PM CDT HI! Kelly-Ann Larson <kwarren@visi.com> - Saturday, October 8, 2005 10:55 PM CDT Hey guys, Michael is viewing this with me today and is wavivg to his cousins pictures! We're hoping this spitting up is just a virus. Give Emma a big hug from us. Love & Miss you, CARLA carla cucci <cooch67@comcast.net> New egypt, - Saturday, October 8, 2005 12:26 AM CDT I know that Baylor also has a metabolic clinic, too, but it's my understanding that they're focusing on fatty-acid chain disorders, and our Emmi (tx/emmipaige) was referred to Children's instead because of her particular symptoms. I may be mistaken, however. I frequently am! Emmi had been seeing a great geneticist who dealt with metabolic disorders in Austin, but she retired. Other than those, Emmi's doctors have mentioned someone in Galveston and someone in Little Rock. It's not fun to contemplate going so far for those of us from the Dallas area, is it, if something prevents you from seeing Waber here in Dallas or perhaps the doctors at Baylor's metabolic clinic, if their specialties fit. We'll be interested in finding out what you learn. Emmi will be at Childrens on the 18th. Linda Irving, TX - Saturday, October 8, 2005 7:38 AM CDT I hope you can get into the metabolic dr quickly. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Thursday, October 6, 2005 11:46 PM CDT I am glad to hear they are ready to go forward with some new options for dx. It always stinks when you have no idea what you are dealing with as that makes it so much harder to treat it and know you are doing the best you can for them. We are on that same journey with both our kiddos and the waiting and testing stinks! HUGE HUGS and hope you are able to get something more definitive soon! BTW - Nicholas has only ever vomited past his wrap just the one time he had a tummy bug, so I am hoping that is all it is for Miss Emma as well. Hope she is feeling back to her normal perky self on no time! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, October 6, 2005 11:27 PM CDT HI LAUREN ,MY HEART AND LOVE ARE WITH YOU /EMMA AND THE REST OF THE FAMILY ALWAYS ,KEEP THE FAITH GOD WILL HELP /LOVE ALWAYS YOUR GODFATHER JACK DONENFELD <jackiebeans@optonline.net> ABERDEEN, N.J. USA - Thursday, October 6, 2005 8:45 PM CDT ha beautiful girl just dropped by to say hi take care luv fiona and jordan fiona <hunterbrittnee@hotmail.com> bris, qld aust - Thursday, October 6, 2005 5:54 PM CDT I was so happy to read that Emma is feeling better and that physical therapy went well. And I applaud that "ggg" (go) sound, too! Way to go, Emma! Emmi (tx/emmipaige), I think, was probably at the same facility for physical and other therapy as Emma for a while, before her insurance cut back her PT and OT. Thanks for signing Emmi's guestbook. Unfortunately, her hearing test did not go well today, although we don't know whether to be sad that she has a profound hearing loss or glad that it's not the neurological processing error that the neurologist thought it might be. Pretty tough when you can't decide what you want, isn't it, but I know you've been there, too, with Emma going through so many of the same testing procedures as Emmi. Linda, Emmi's Grammie Irving, TX - Thursday, October 6, 2005 12:52 AM CDT Emma, I sure am glad to hear you are feeling some better, I hope you have a wonderful day today. Thanks for stopping by Jesse's page and signing the book so we knew you were there. May GOD Bless! Shannon Fox Mommy to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Thursday, October 6, 2005 8:01 AM CDT Hey Emma, I found you through Nate's website. You are a precious little girl. Your birthday is the same as my son Ryan's except he was born in 2003. I will check back on you and pray for you. Amy Breedlove (www.caringbridge.org/tn/ryanbreedlove) <Breedlj@hotmail.com> Knoxville, Tn USA - Thursday, October 6, 2005 6:59 AM CDT As you probably already know, we're dealing with the throwing up through the mouth too. Patrick's Nissen was done laproscopically, so our GI told us even though the upper GI showed it was still intact, they may need to redo it by cutting him. He is throwing up at least a couple of times a week. I know how your feeling, it is just such a bummer! We'll keep you in our prayers and thanks for signing Patrick's guestbook, sorry I've been MIA for a while. I still check in, but I just don't always have time to wait for the guestbook to come up. Take care and God Bless, Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Wednesday, October 5, 2005 10:31 PM CDT hello Just found your website today you sure are a cutie i will be back to see you real soon hugs savannah <mud_lover2002@yahoo.com> bakersville, NC usa - Wednesday, October 5, 2005 5:23 PM CDT Hi Emma and family!! Love the cute story about picking up her sis!! Emma knows sisters are the best! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Wednesday, October 5, 2005 2:19 PM CDT I am glad things are looking better today! Nicholas has been able to vomit on occasion since his fundo and some of them have been because he has had food/thicker liquids caught on top of the wrap and retched it up, thus bringing some other stomach contents up with it. The rest were from a tummy bug. Hope one of those is all that it was for her and things are fine otherwise. Good luck with the AFO's as well. Hugs! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, October 4, 2005 11:22 PM CDT Ugh! This must have been the day for not-so-great medical news! I am really sorry you are having sone setbacks with her weight. I hope that the spitting up is nothing and her fundo is intact and functioning. Hope all the bloodwork will come back soon and you have some good information from them. Keep us posted. Sending hugs your way! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Monday, October 3, 2005 11:14 PM CDT Hi Guys! Hope to see you this week! Maybe all of our children will cooperate. HEHEHE... Janice and Samantha www.carepages.com (page name) SamanthaGable <cantrellcat@charter.net> Azle, TX - Monday, October 3, 2005 8:23 PM CDT How cute your girls will be as a flower and a butterfly! :) It sounds like Emma is doing amazing. Crawling stairs .. WOW! :) It's incredible the ease that a g-tube brings to you, even though it seems so overwhelming at first. Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net> Southern California, - Monday, October 3, 2005 10:55 AM CDT Crawling stairs? What difference of a few calories! Linae was also going to be a flower - until we put the hat/hood on her. Now she'll be a Pink Princess (Or Rett Angel). Grant's costume = Zebra (Madagascar, Racing Stripes,etc.) Wonder where he got the idea? Thanks for all the good news and enjoy the nice weather! www.caringbridge.com/visit/linaeandgrant Kelly-Ann Larson <kwarren@visi.com> - Sunday, October 2, 2005 10:50 PM CDT Hi princess Emma... Just dropping by to say hello. I hope you are having a wonderful weekend. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, October 1, 2005 11:25 PM CDT Hi Sweet Emma!! I have been following your CB page for a couple of months but don't think I've ever signed your guestbook. You are such a dolly. It is great to hear all of the new things you are learning and doing!! My thoughts and prayers are with you and your family!! Dorine McNary <dkmcnary@yahoo.com> Williston, ND - Friday, September 30, 2005 10:09 AM CDT Praying that the results come back wonderful. Sounds like you all had a pretty good day yesterday thats wonderful, may you have many many more to come. Shannon Fox Mommy to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Friday, September 30, 2005 8:15 AM CDT Glad to read how well things are going for everyone, especially Emma! Hope those entries keep coming! www3.caringbrige.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, September 29, 2005 11:54 PM CDT Wow! Real words? Consonants, even? Emma is doing great. Our Emmi is saying only "mmmm" and vowels. Good going, Emma! Linda Irving, TX - Thursday, September 29, 2005 6:50 PM CDT So glad to hear that things are going so well! Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Thursday, September 29, 2005 11:25 AM CDT Hi Princess Emma we are so happy to read such a good update. You keep gaining that weight. We love to come by and visit you site. Your mommy always seems to be so positive and that is so great. You have a wonderful week and we will be back soon. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, September 28, 2005 0:15 AM CDT I am so happy for Emma, she has come such a long way since I first found your webpage. Gaining weight, drinking, and now standing.................that is wonderful news. I can only imagine the excitement you are all feeling right now! Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Tuesday, September 27, 2005 10:40 PM CDT Hi Emma! Your pictures are too cute! Congrats on the good news! With love, Joanne and the Dream Team ~Bridge of Dreams ~ ~Simply Joanne~ Joanne <joanne173@gmail.com> - Tuesday, September 27, 2005 11:23 AM CDT Absolutely wonderful news! We are so happy to hear all the progress Miss Emma is making. You'll be chasing her around the house before you know it. Better get bells on those fancy sneakers! :-) Miss you lots! Sending you hugs and kisses.... Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Tuesday, September 27, 2005 9:27 AM CDT Great news on Emma's weight gain and the new developments. She's really zipping forward with signing and vocalizing, isn't she? Linda Irving, TX - Tuesday, September 27, 2005 2:00 AM CDT Hurray for 19 pounds, and standing! Emma you are getting to be a great big girl. :) I was wondering if you've tried steroid cream on Emma's granulation tissue? It helps Emily's immensly. Also aloe vera gel helps hers. :) Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net> Southern California, - Monday, September 26, 2005 6:43 PM CDT Hi Emma!! You are getting to be such a big girl!! I remember when Lily started to stand all by herself. It was so exciting!! I am so proud of you, Emma!! Praying for you always! ~Laurie, The Prayer Bears, and Lilys aunt~ - Sunday, September 25, 2005 7:29 PM CDT COLLIN IS SENDING YOU CYBER KISSES!!! You are always in our hearts and prayers!! BIG HUGS, Julie and Collin julie <collinpresley@aol.com> ca usa - Sunday, September 25, 2005 3:05 PM CDT Hi Angel face. Joseph and i are dropping by to say hello. We will check in on you again real soon. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, September 24, 2005 2:35 PM CDT Great news!! So happy to hear that Emma is doing so good. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Friday, September 23, 2005 1:02 AM CDT Just stopped in to see how you were doing Miss Emma! I hope you all have a wonderful weekend!! Shannon Fox Mom to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Thursday, September 22, 2005 1:49 PM CDT So glad that things are going well Just popped by to say hi! Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, September 21, 2005 1:09 AM CDT Hi Joseph wanted me to tell Emma that he loves bubbles to. He knows when I take them out he gets so excited. I am so happy to heard that Emma is doing so well. We still can not get Joseph to do any signs. I am starting to get real nervous about that. He just turned 17 months old and there is no way to communicate with him. We think of Emma often I love to visit your site and see her she is so BEAUTIFUL. Take care and we will check back real soon. Elizabeth <michael_shipley@bellsouth.net> - Tuesday, September 20, 2005 11:29 AM CDT Wow, Emma is doing awesome! I am so glad to read it. I wish Emily liked PT even half as much as Emma does. I hope you guys have a great week! Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net> Southern California, - Tuesday, September 20, 2005 10:57 AM CDT Love Always My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Tuesday, September 20, 2005 9:33 AM CDT Just checking in Emma and family! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Tuesday, September 20, 2005 8:21 AM CDT YAY! Sounds like Emma is making GREAT progress! Hope it keeps going! Take care! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, September 20, 2005 0:34 AM CDT I am so happy to hear how good Emma is doing! Our girls seem to just continue amazing us all, dont they? :) hugs, Angela *angels on earth* -HEATHER GRACE - Monday, September 19, 2005 9:21 AM CDT Holy cow!!! Miss Emma is really talking. Awesome amount of signs. Mama -- catch up!!! lol, I have a feeling you are going to be chasing this child verbally and physically in no time. Yay for happy meals. Austin will knock you down for a french fry. His favorite food. Oh, he likes slim jims too. His OT and ST think it is great therapy. IDK. I can't get past all the additives in that beef jerky. Thanks for your encouraging words. It is so uplifting to hear it from a MOM who knows what the slightest improvement means to a parent of a special angel. Love from GA Amy and AUSTIN <ambbab@alltel.net> Gray, GA USA - Monday, September 19, 2005 7:19 AM CDT Hello Emma, I came across your site from another one that I visit, and you sound just like my little girls who happen to have a metabolic disorder and they can't metabolize any proteins very well. My daughter Rhyan also has had a nissen-fundo and a mickey g-tube. We are diagnosed and it helps with our treatment. Visit our site at www.caringbridge.org/ca/rhyanpope maybe we have some information on our site that might help. God Bless, Theresa Pope Theresa Pope (Rhyan and Aubrey's Mom) <mtpope@sbcglobal.net> Fresno , CA - Saturday, September 17, 2005 2:38 PM CDT Sounds liek Miss Emma is doing AWESOME!!! Way to go!!! Good luck with the EEG. Sending lots of hugs & prayers~~ Vicki & Caden Williams Vicki <vicki.williams@wallisd.net> San Angelo, TX - Friday, September 16, 2005 10:14 PM CDT That all sounds fabulous! Keep going Emma! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Friday, September 16, 2005 6:46 AM CDT Congrats on your weight gain, Sydney is getting behind on her signs, we love showing people the different signs!!!So we need to catch up with you:) Keep up the good work! Denise & Sydney www.caringbridge.org/in/sydneylynne Denise PEquignot <dpequignot@earthlink.net> South Whitley, in usa - Thursday, September 15, 2005 4:47 PM CDT Congratulations on all the progress for Emma. Great going, Emma! A couple of weeks ago, I was in the puzzle shop (forgot the name) in Grapevine. By the cash register, they had some "We Sign" videos: colors, animals and numbers. I bought the animals one for our Emmi, and it's songs such as "Where, Oh Where Has My Little Dog Gone," all sung and accompanied by sings. It's great, teaching each needed sign in a lively way before the song is sung. (It's great for us adults trying to learn the signs, too.) Anyway, they were on sale for something like $5.00, I think, with only a few left. I thought I'd tell you about it in case you get to Grapevine. Our Emmi thinks all such videos are interactive, and points to all the hands making the signs and does some made-up signs of her own. Now, if she'd only start signing again, outside of those times! Linda Irving, TX - Thursday, September 15, 2005 1:23 PM CDT What an awesome update!!!! Great news!!!! Mandy (Angels on Earth) mamatooryan - Thursday, September 15, 2005 10:25 AM CDT Hi! We are so glad to hear Emma is gaining and making progress in therapy. Finally some good news!! I'm sure it's very frustrating still not knowing exactly what you are dealing with but that will come in time. Thankfully she is reacting to the therapy and will probably be walking shortly - UH OH!! :-) Sending lots of love, hugs and kisses!! We miss you!! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Wednesday, September 14, 2005 7:34 AM CDT Hi, I just stopped in to wish you a great week. Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada, - Tuesday, September 13, 2005 7:44 PM CDT Just dropping in to say hello. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, September 13, 2005 1:49 PM CDT Wow, what a good update! Lots going on in all directions! I'm so glad the girls are both doing well, Emma getting stronger and Madi in school...awesome! We have a lot of hurricane relief stuff going on also! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Monday, September 12, 2005 8:53 PM CDT Hi Emma~ SENDING YOU LOTS OF KISSES!! BIG HUGS, Collin and Regan julie <collinpresley@aol.com> ca usa - Monday, September 12, 2005 6:50 PM CDT Hi Emma!! Wow! Climbing everywhere huh? Bet your mom won't be able to catch you soon! ~Simply Joanne~ With love, Joanne and the Dream Team ~Bridge of Dreams ~ Joanne <joanne173@gmail.com> - Monday, September 12, 2005 0:08 AM CDT Just stopping by to say hi and to let you know I am thinking about you and praying for you too! Love&Hugs, Jessica We Care 4 Kids Jessica <wecare4_kids@yahoo.com> - Sunday, September 11, 2005 11:26 PM CDT Hi Sunshine just dropping by to say hello. I hope you had a waonderful weekend. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, September 11, 2005 10:27 PM CDT Great to hear about Emma's weight! As the grammie of a child (tx/emmipaige) whose weight is off the chart, still, I know what a victory that is. Emmi started climbing a while ago, too, and celebrates climbing on something by doing her little head tilted back, swaying thing, promptly pitching herself off the bench or chair or table onto which she's climbed. We've had a few rushed trips to the doctor's office to see if stitches are needed. With her balance and tone issues, the doctors have prescribed a helmet, but insurance wouldn't pay for it. Sigh. Guess they'd rather pay for the stitches, etc. Wonder how many emergency-room visits it takes to pay for that helmet? Truthfully, though, although Emmi lacks an instinctive sense of where she is in space and when she's falling (doesn't blink, etc.), she does seem to be learning that certain actions result in certain unpleasant consequences, and she is teaching herself to sit down when she's unsteady. So, there's hope out there in case you get frantic with the first few weeks of Emma's climbing. And, yes, we celebrate every naughty little thing that our Emmi does, including the age-appropriate tantums she's been throwing lately, at almost 18 months. So nice to have her completely on tract with something and so hard to maintain discipline when you're just so darned thrilled to see her pitching a fit because she isn't being allowed to pry the letters off her mother's keyboard! Linda, Emmi's Grammie Valley Ranch, TX - Sunday, September 11, 2005 10:24 PM CDT Great eating Emma! All the news is wonderful- nice to be distracted by regular life issues, huh? I sent a video to ClubRett, so take a look when you get a chance. Our fav SLP said Sign is great bridge to talking; that's exactly how Linae uses it- as a bridge. Keep signing! www.caringbridge.com/visit/linaeandgrant Kelly-ann Larson <kwarren@visi.com> Richfield, MN - Saturday, September 10, 2005 0:25 AM CDT A busy and informative week. Super news on Em's weight...Glad Madi's enjoying school. Very proud of you both for handling the day to day stuff so well. Also proud of Josh's accomplishments- all good things guys! Denise <denise@juldengroup.com> Flower Mound, TX USA - Friday, September 9, 2005 9:58 PM CDT Wow, Im so glad to hear Emma is doing good. I am amazed she is already climbing! Now she needs to come help Heather learn. :) Our ST works on signs and Heather is using them and we see a lot less tears, so I highly recommend it! Angela -HEATHER GRACE <alisonheathersmama@gmail.com> natick, ma - Friday, September 9, 2005 3:38 PM CDT just wanted to drop by.... sending you lots of love craig, Lauren, and Helen CRAIGGY helen <trula1@comcast.net> - Friday, September 9, 2005 10:43 AM CDT www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, September 7, 2005 10:42 PM CDT Hi sweetie! Just stopping by to check on you. I hope you are doing well. You are always in our thoughts and prayers! Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Wednesday, September 7, 2005 6:15 PM CDT Hi Emma~ We just wanted to stop by and say hi!! We are always thinking of you!!! We love you tons and you are always in our hearts and prayers!! It looks like your mommy like Ikea as much as our mommy!!LOl BIG HUGS, Collin and Regan julie <collinpresley@aol.com> ca usa - Wednesday, September 7, 2005 4:06 PM CDT OOoohhhh what good pictures!!! Glad the shoes are helping and the 'yes and no' communication is awesome, too! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Wednesday, September 7, 2005 3:13 PM CDT Love the pics, Sydney loves music too, maybe Emma and her could start a band. I still say Sydney will be the first special needs cheerleader in our town:) Have fun in your new shoes! Denise and Sydney www.caringbridge.org/in/sydneylynne Denise Pequignot <dpequignot@earthlink.net> South Whitley, IN usa - Wednesday, September 7, 2005 11:45 AM CDT Cute Pics! Patrick is into the Doodlebops too, strange show, but he loves it! We are also working on the Eskimo kisses. I got him to shake his head once to do it back, but haven't seen it again. Maybe someday if Emma and Patrick meet, they can give Eskimo kisses, although he'd be robbing the cradle:) Have a great Labor Day weekend! Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Sunday, September 4, 2005 11:14 AM CDT Hi cutie! Wow, what a big girl you are nodding and shaking your head! Way to go sweetie! Love the pics. You are just so adorable! I hope your appointments go well next week. We'll be saying lots of prayers. (((HUGS))) to you all and I'll check back soon! Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Saturday, September 3, 2005 7:25 PM CDT Hi guys~ We just wanted to stop by and wish you a wonderful weekend!! We hope that you get to have LOTS of Monkey fun!! what a cutie!! I love all of the new pictures!! BIG HUGS, Julie, Jason, Collin, and Regan julie <collinpresley@aol.com> ca usa - Saturday, September 3, 2005 3:16 PM CDT We just stopped by to say HI!!! We love Emma's page, she is just darling. We are gathering formula, diapers and supplies for the Gulf states as well. Evacuees are pouring into GA too including our little town. Everyone wants to help. Such devestation is uncomprehendible. Hope all goes well with your appointments next week. Take care and come visit us... Love from GA :-} Amy and Austin <ambbab@alltel.net> Gray, Ga USA - Saturday, September 3, 2005 3:15 PM CDT Love Joseph www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Saturday, September 3, 2005 11:04 AM CDT I noticed that some hospitalized children from New Orleans are being evacuated to Cook Children's. I know my granddaughter Emmi (tx/emmipaige) has spent some time there, but I think you come with Emma to Dallas, right? I've been trying to think of what I might do to help those whose children are hospitalized in those hospitals, but haven't come up with a good plan yet. I'm so sorry that Emma's last appointment was so painful. Hope your appointment next week goes well. Linda <gcpiazza@aol.com> Valley Ranch, TX - Saturday, September 3, 2005 9:07 AM CDT HEY LAUREN AND EMMA! Taylor and I just wanted to say "Hi" and thank you for visiting us on our website! We appreciate your encouragement and prayers so much! I know that the development tests are tough to hear sometimes. Taylor is about 22 mos. old and only scores between 2-6 mos. in most areas, but like you said, she is our beautiful, sweet daughter, and we are happy for ANY progress that she makes at all. Taylor has never had much problem with granulation tissue, except at the very beginning. Do you keep a 2X2 split gauze underneath her button at all times? You probably do-but if not, that might help. I hope you get good news and some answers at your neurologist appointment. WAITING is one of the toughest things we deal with - isn't it? Just wanted to let you know that you're in my thoughts and prayers! I hope your family has a WONDERFUL WEEKEND!!! With Love and Hope Always, Sonya and Taylor Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Friday, September 2, 2005 1:07 PM CDT Oh .. how I hate those evaluations! I know Emily is delayed, same as you know Emma is delayed .. but hearing it and seeing it on paper, is different. Like you, Emily is just Emily - until I see a child her age or younger and realize what she should be doing. I wish we lived closer to each other, it would do good to come have coffee and let the kids meet each other!! Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Friday, September 2, 2005 10:44 AM CDT We think of you often!!!!! Elizabeth <michael_shipley@bellsouth.net> Deltona, fl - Thursday, September 1, 2005 10:35 PM CDT Thinking of Emma today. Tina & Lance <lancejrmommy@comcast.net> - Thursday, September 1, 2005 5:24 PM CDT She is progressing and that is wonderful! And like you said, she did not shrink! :) I do hope they get the mic-key fixed and then you will be on your way! We are thinking of you! And have a fun day with Madi! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Thursday, September 1, 2005 8:20 AM CDT Wow...this post amazed me at how much Emma and Nicholas are alike! The good news is, once Nicholas had the surg and his nutritional status was better and he felt better for the first time, he actually grew from 28 in where he had been for 6+ mos and his development, which had hit an all time low just before surg, skyrocketed and he was ganing ground at lightning speed! We also got him into Hippotherapy (horse riding therapy) and it has done WONDERS for his trunk tone. It might be something you could look into for Emma. The oral defensiveness also slowly improved as well. I hope and pray all this will hold true for Emma, too. Good luck and hang in there. She will amaze you with her improvement in no time! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, September 1, 2005 0:09 AM CDT Hi guys! Just wanted to come by and check on you again. We'll be saying lots of prayers for tomorrow's appointment. We hope it's the last procedure she'll have to have for a while. We'll check back soon to hear how it went. Give her hugs from us. Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Wednesday, August 31, 2005 11:12 PM CDT Emma you are such a cutee! We are praying for you for tomorrows appointment. Thoughts are with you baby girl! Take Care Debbie www.caringbridge.org/ca/taryn Debbie Fogel <ejfdrf@sbcglobal.net> Corona, CA USA - Wednesday, August 31, 2005 10:03 PM CDT I know how difficult those evaluations can be. You go into them so proud of all the advances that have been so hard won, and then you have to hear evaluations that weren't where you hoped they would be. But Emma is making progress and that's important! And not a person in the world could look at those photos and not realize what a delightful child she is. We're not supposed to care about how our children or grandchildren look, but she's such a cutie in appearance and personality that you know that's going to help draw positive vibes her direction. People are going to respond to her positively. Linda <gcpiazza@aol.com> Valley Ranch, TX - Wednesday, August 31, 2005 6:34 AM CDT I've been reading and keeping up with Samantha Gable and seen your website posted on her site. We'll keep both these precious babies in our prayers. Such a sweet looking angel you have there! I pray things will be better for Emma. She is a doll. Sharon <sjasso61@charter.net> Fort Worth, TX USA - Tuesday, August 30, 2005 9:27 PM CDT Hi.... We haven't been by in awhile, but we always pray for you. Hope you have a great week! ~Tabby’s Page~ Love, tabby <karen_wst@yahoo.com> - Tuesday, August 30, 2005 7:34 PM CDT Stopping by to let you know I was checking in. I hope the neuro can figure out what is going on with Miss Emma and her seizures. We also dis ab toning with Heather and it worked great. Our Pt does some of the ab stretches on a big ball and Heather loves those. :) Angela *angels on earth* -HEATHER GRACE <alisonheathersmama@gmail.com> natick, ma - Tuesday, August 30, 2005 7:04 PM CDT Hey girls!!! I am sorry it's been so long since I have been by, but I don't hardly feel like I've had time to breath since school has started. I love all the great news about Emma!! Attitude....it must be this age because Caden has developed quite an attitude also! It makes me laugh! Then he laughs at me when I try to scold him for something! I am also glad to hear such wnderful news about Samantha! Please know that you all are in our thoughts and prayers, always! I can't wait to hear from you! Hugs & love~~ Vicki & Caden Vicki & Caden Williams <vicki.williams@wallisd.net> San Angelo, - Tuesday, August 30, 2005 3:49 PM CDT Hi Emma and Madi!!! So glad things are improving! It's so fun to watch all the kids grow and develop! We love graham crackers here, too! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Tuesday, August 30, 2005 1:53 PM CDT I am SO glad to hear she is taking off with her development since the surgery! Nicholas hit an all time low as far as how many mos he was behind developmentally just before his surgery and once it was over and he actually felt good, his development just blossomed and he really made up for lost time. I hope it will be the same for Emma! Good luck with the feeds and the retching...that has to be one of the worst things to see your child doing. Keep up the good work with the oral feeds, Emma! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, August 30, 2005 0:11 AM CDT What a nice, calm update! I am glad to hear that Emma is doing good. The retching that comes with a fundo/g-tube is not pleasant but it's usually better than what was dealt with before. I hope that the graham cracker helps Emma's tummy, and that she is gaining good weight! Emily has the same purple Smoochable outfit as Emma, and the same purple Bumbo seat! :) Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Monday, August 29, 2005 3:25 PM CDT Hi Emma You are so so so so so cute I can't wait to let Jesse see you picture! He will say oh girl mommy, girl oh! Hope things start looking up for you guys soon! Shannon Fox Mom to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com> Green Mtn., NC USA - Monday, August 29, 2005 3:04 PM CDT Hi Emma! I love your new pictures!!! You're incredibly cute!! ~Simply Joanne~ With love, Joanne and the Dream Team ~Bridge of Dreams ~ Joanne <joanne173@gmail.com> - Monday, August 29, 2005 10:33 AM CDT Hi Lauren(Josh too)! LOL at Emma's new found energy and lack of interest in sleeping! Keep those calories coming! Kelly-Ann and Linae Kelly-Ann Larson - Sunday, August 28, 2005 10:14 PM CDT Emma we love all the new pictures of you. You are such a cutie. Thank you so much for visiting Joseph's guest book and thanks in advance for the literature that you are going to give me on deletion 22. Give Emma lots of hugs from Joseph!!! www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, August 28, 2005 8:33 PM CDT So glad to hear you had a good week. We love the new pictures - her hair is growing fast! She is so adorable. Give our love to Madi! Miss you lots!!! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Sunday, August 28, 2005 7:27 PM CDT emma, it's good to see you again. thanks for stopping by my page. my mommy reminds me to say you in my prayers every night before i go to sleep that you feel better soon. Love, Jenna Jenna Marcella <dcmarc@comcast.net> Hanover, MD 21076 - Sunday, August 28, 2005 5:57 PM CDT Hi Emma! I found you through Lance's website, you sure are a cutie pie! So sorry to hear about your tummy troubles. My little boy, Matt, had a lot of tummy aches, too. You're a strong, brave little girl! Love, Ann and Matt www.caringbridge.org/mn/matt Ann (Matt's mom) <mommytomatt@aol.com> Fridley, MN USA - Sunday, August 28, 2005 1:33 PM CDT Hi Emma! I'm so sorry about your tummy troubles sweetie. I hope everything gets straightned out soon and you feel better. I love the new pics! You are just too cute for words! I just want you to know that I think of you often and you are always in my prayers. Big (((HUGS))) to you and your wonderful family sweetie. We'll check back soon. Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Sunday, August 28, 2005 1:16 PM CDT I'm so happy to hear that emma is doing great. She is so adorable i wish i lived closer so i could play with them and stuff. Maybe someday we will meet. Glad all is well. Wanted to come say how cute she was and to say hi and that im thinking of her.. Love ya Kristena <sxykris05@yahoo.com> - Friday, August 26, 2005 10:22 PM CDT Hi Emma! I'm very happy to hear that you're doing much better! I'll be praying that things continue to improve. Lots of hugs, Amy and family www.caringbridge.org/tx/lily Amy Hasson <amyh96@hotmail.com> TX USA - Friday, August 26, 2005 2:31 PM CDT IT SOUNDS LIKE EMMA IS DOING BETTER THANK GOD ,HOPE THE REST OF THE FAMILY IS GOOD ,MY LUV 2U ALL JACK DONENFELD <JACKIEBEANS@OPTONLINE.NET> ABERDEEN, NJ USA - Thursday, August 25, 2005 8:48 PM CDT Glad she is enjoying food again!! Way to go Emma!! Keep it up!! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, August 23, 2005 9:30 PM CDT Hi Emma and family I am so happy to hear that you are doing so well. I will check up on you again real soon. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Tuesday, August 23, 2005 8:45 AM CDT Yeah,,,,,on the up and up and up! Way to go Emma, I am so very happy to hear you are doing so well, keep up the good work! Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com> Ontario, Canada - Tuesday, August 23, 2005 0:21 AM CDT Hi Emma, It has been a while, but please know that you are always in our hearts and our prayers. We love you! HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Monday, August 22, 2005 10:42 PM CDT It's good to be introduced to Emma's website on a day with wonderful news! Your girls are beautiful! May the good news continue. Hillari (Angels on Earth) Glasgow, Scotland - Monday, August 22, 2005 3:00 PM CDT I'm glad to hear things are on the up and up for Ms. Emma. Shannon & Ethan (www.caringbridge.org/tx/ethantf) <jseford@centurytel.net> Corinth, TX USA - Monday, August 22, 2005 8:51 AM CDT Oh it's so great to hear good news! I'm so glad Emma is doing better! Give her lots of hugs from us! You're all in my prayers always! Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Sunday, August 21, 2005 11:02 PM CDT So glad to hear that Emma is doing so much better! Smooches Lauren http://givekindness.diaryland.com Lauren <dlucas2385@wowway.com> Plymouth, MI - Sunday, August 21, 2005 7:41 PM CDT It sounds like Emma's doing so much better; I hope she continues to do well. I'm glad that she's making progress with eating; I'm sure the special utensils and therapy are going to really help her out. I hope Emma continues to put on the weight--every little bit helps! Denise Ward <deniward@shaw.ca> Winnipeg, Canada - Sunday, August 21, 2005 4:25 PM CDT Yay on the good news! Im so happy you had a good appointment and no more PICC line. :) Keep up the good work, Emma! Angela ~Angels on Earth *- -HEATHER GRACE <alisonheathersmama@gmail.com> natick, ma - Sunday, August 21, 2005 3:15 PM CDT SOUNDS LIKE YOU GOT A LOT OF GOOD NEWS THIS WEEK!!! THAT’S SO WONDERFUL!!! WAY TO GO, EMMA!!! WE HOPE THINGS KEEP GETTING BETTER AND BETTER!!! HAVE A GREAT WEEK!!! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Saturday, August 20, 2005 11:36 PM CDT WOW! Way to go Emma - May your ounces turn to pounds! Eat...Eat...Eat! Banner week around CaringBridge! Everyone I've checked has had some good news this week! And what better than to top it all of than IKEA opening! Ours is 3 miles away! Kelly-Ann - Saturday, August 20, 2005 9:27 PM CDT I had so much fun last night, thanks for getting me out of the house! Gotta love those Converse on Madi and I just love Emmas hair. Janice and Samantha www.carepages.com page name---SamanthaGable <cantrellcat@charter.net> Azle, TX - Saturday, August 20, 2005 2:33 PM CDT Love the photos!! You have beautiful girls!!!! Continued prayers for Emma! Melissa (Angels On Earth) <melnjess2002@yahoo.com> Colorado Springs, CO USA - Friday, August 19, 2005 2:12 PM CDT Great photos, beautiful girls! Robin Brunet <robinb@neptune.on.ca> Bradfoard, Ontario Canada - Friday, August 19, 2005 2:06 PM CDT The girls are getting cuter by the week! I love the new pictures. Hope you all have a good weekend. Angela ~Angels on Earth *- -HEATHER GRACE natick, ma - Friday, August 19, 2005 1:41 PM CDT Coolest sneakers ever Madi! So many colors they match everything! Great choice! Cute pictures! Thanks for the sharing those two Bright Spots! Linae and Grant have a page now...www.caringbridge.com/visit/linaeandgrant Kelly-Ann - Friday, August 19, 2005 10:59 AM CDT Wow I haven't signed Emma's book for such a while! So here I am :) The girls are so beautiful!!! I like those pictures! Hope the PICC line is out soon! Have a nice weekend! Renee <dr.renfb@animail.net> Canada - Friday, August 19, 2005 10:20 AM CDT LOVE the new pics! They are precious!! How do you get pics to post like that in the post? I have not figured that one out yet! Take care and fingers crossed that the PICC line is out really soon! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.org> - Thursday, August 18, 2005 9:37 PM CDT BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Thursday, August 18, 2005 7:55 PM CDT Love the pictures!!! The girls are positively gorgeous!!! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Thursday, August 18, 2005 5:11 PM CDT Just stopping in to say hi. Cute pictures. Tina & Lance <lancejrmommy@comcast.net> - Thursday, August 18, 2005 2:32 PM CDT The girls are beautiful!I just came by to check on you guys. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Thursday, August 18, 2005 11:41 AM CDT HOW ADORABLE!!! BOTH OF YOUR GIRLS ARE SO BEAUTIFUL!!! They seem to have equally precious personalities, too! I know they keep you smiling everyday - "angels" will do that to you! I hate that Emma has had so much trouble with her PIC line. Taylor had one of those once for about a week. They can be very scary, if they get infected, so I hope she gets hers out soon! I'm sure you both will be glad to tell it "Bye-Bye"! I noticed that you had a link for EP magazine on your site. Did you see the Five Part Series on Enteral (G-tube) Feeding? They have some great info on there about positioning, nutrition, daily care, venting, oral motor issues, and oral feeding--from some of the top specialists. We have had over a year of experience with our g-tube and fundo, but I still learned a lot from it. I thought it would be great for those who have a new g-tube! Our feeding therapist and Tennessee Infant Parent Advisor are going to print it out and give it to their other families that have g-tubes. Thanks for reminding me of that site-it really does have a lot of good info on it. I'll be praying for HAPPY MEALS for Miss Emma, very soon!!!!! I hope everything goes well! HAVE A BLESSED DAY! Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna, TN - Thursday, August 18, 2005 0:53 AM CDT Dear dear Emma~one of these days in the near future you'll get that happy meal. Hope you have a better couple of nights. I'll catch up with your mommy tomorrow. Good night and sweet dreams. Love, aunt carla carla cucci <cooch67@comcast.net> New egypt, nj - Wednesday, August 17, 2005 7:49 PM CDT Hi Emma! I'm sorry you're going through so much! Will be praying for you! ~Simply Joanne~ With love, Joanne and the Dream Team ~Bridge of Dreams ~ Joanne <joanne173@gmail.com> - Wednesday, August 17, 2005 12:10 AM CDT Oh my Emma, the things you have to go through........ I hope the nurses start taking it easy on you. Angel Katelyn's mom, Debbie <miraclegirlsmom@hotmail.com> Ontario, Canada - Wednesday, August 17, 2005 0:32 AM CDT I'm sharing this with a lot of people today! I can't remember if I emailed you with this but thought I would post it in the guestbook too for others to read. Thank you for visiting Morgan's site! Some Mothers Get Babies With Something More written by: Lori Borgman Columnist and Speaker My friend is expecting her first child. People keep asking what she wants. She smiles demurely, shakes her head and gives the answer mothers have given throughout the pages of time. She says it doesn't matter whether it's a boy or a girl. She just wants it to have ten fingers and ten toes. Of course, that's what she says. That's what mothers have always said. Mothers lie. Truth be told, every mother wants a whole lot more. Every mother wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin. Every mother wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly. Every mother wants a baby that will roll over, sit up and take those first steps right on schedule (according to the baby development chart on page 57, column two). Every mother wants a baby that can see, hear, run, jump and fire neurons by the billions. She wants a kid that can smack the ball out of the park and do toe points that are the envy of the entire ballet class. Call it greed if you want, but we mothers want what we want. Some mothers get babies with something more. Some mothers get babies with conditions they can't pronounce, a spine that didn't fuse, a missing chromosome or a palette that didn't close. Most of those mothers can remember the time, the place, the shoes they were wearing and the color of the walls in the small, suffocating room where the doctor uttered the words that took their breath away. It felt like recess in the fourth grade when you didn't see the kick ball coming and it knocked the wind clean out of you. Some mothers leave the hospital with a healthy bundle, then, months, even years later, take him in for a routine visit, or schedule her for a well check, and crash head first into a brick wall as they bear the brunt of devastating news. It can't be possible! That doesn't run in our family. Can this really be happening in our lifetime? I am a woman who watches the Olympics for the sheer thrill of seeing finely sculpted bodies. It's not a lust thing; it's a wondrous thing. The athletes appear as specimens without flaw - rippling muscles with nary an ounce of flab or fat, virtual powerhouses of strength with lungs and limbs working in perfect harmony. Then the athlete walks over to a tote bag, rustles through the contents and pulls out an inhaler. As I've told my own kids, be it on the way to physical therapy after a third knee surgery, or on a trip home from an echo cardiogram, there's no such thing as a perfect body. Every body will bear something at some time or another. Maybe the affliction will be apparent to curious eyes, or maybe it will be unseen, quietly treated with trips to the doctor, medication or surgery. The health problems our children have experienced have been minimal and manageable, so I watch with keen interest and great admiration the mothers of children with serious disabilities, and wonder how they do it. Frankly, sometimes you mothers scare me. How you lift that child in and out of a wheelchair 20 times a day. How you monitor tests, track medications, regulate diet and serve as the gatekeeper to a hundred specialists yammering in your ear. I wonder how you endure the clichés and the platitudes, well-intentioned souls explaining how God is at work when you've occasionally questioned if God is on strike. I even wonder how you endure schmaltzy pieces like this one -- saluting you, painting you as hero and saint, when you know you're ordinary. You snap, you bark, you bite. You didn't volunteer for this, you didn't jump up and down in the motherhood line yelling, "Choose me, God! Choose me! I've got what it takes." You're a woman who doesn't have time to step back and put things in perspective, so, please, let me do it for you. From where I sit, you're way ahead of the pack. You've developed the strength of a draft horse while holding onto the delicacy of a daffodil. You have a heart that melts like chocolate in a glove box in July, carefully counter-balanced against the stubbornness of an Ozark mule. You can be warm and tender one minute, and when circumstances require, intense and aggressive the next. You are the mother, advocate and protector of a child with a disability. You're a neighbor, a friend, a stranger I pass at the mall. You're the woman I sit next to at church, my cousin and my sister-in-law. You're a woman who wanted ten fingers and ten toes, and got something more. You're a wonder. Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Tuesday, August 16, 2005 6:48 PM CDT Oh poor sweetheart. I'm so sorry Emma had such a rough time. We are thinking of her and saying lots of prayers for her. Please give her a hug from us. Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Tuesday, August 16, 2005 3:32 PM CDT Oh poor Emma .. I can't believe the stitches got pulled out. Emily can definately relate, when she had a PICC line in her neck in May one of the stitches got pulled out. It was horrible and bled a lot. :( Poor baby girls we have! I hope that after the labs on Thursday, they agree to remove the annoying PICC line. Emma wants her arm back! I also hope the video study goes well and Emma gets her happy meal this weekend. :) Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Tuesday, August 16, 2005 2:46 PM CDT Oh Emma, that had to hurt!!! Stitches aren't fun anyway, but then they get pulled out, too?!?! You are one tough ccookie! Hey, when are we having those cheeseburgers??? Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Tuesday, August 16, 2005 2:18 PM CDT Hi sweet Emma, I saw that you signed my site, I will check on you all the time now - you are soooooo cute. You're just a little younger than me. I'm gonna have to keep checking on you. I hope you feel better today - let's talk thru our angels to each other and they will combine and make us feel better I bet. Lots of hugs, 17month TRENTON (and Trenton's mom and family) xo www.trentonsjourney.com ginger kindred (www.caringbridge.org/ga/trentonsjourney <2kindred@bellsouth.net> dunwoody, ga usa - Tuesday, August 16, 2005 9:03 AM CDT Do you ever get a break?? Our poor Emma! Hopefully after these tests Friday you will be able to remove the PICC for good so that will be one less thing to worry about! We are praying for Happy Meals, or at least a fry! I told the kids if Emma can get one, they can too so let us know! :-) Hope she had a better night last night and you were all able to get some rest. We love you!! Sending lots of hugs and kisses!!! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Tuesday, August 16, 2005 6:56 AM CDT Sorry Emma had a rough day today! I hope the line can be pulled really soon! Good luck on the upcoming testing. I hope you can get some useful info from them. Thinking of you all and hoping for french fries!! www3.caringbridhe.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, August 16, 2005 0:30 AM CDT Hi! I saw Emma's link on Taylor Murray's caring bridge site so I had to come a visit! I'm so happy I did visit- Emma is adorable AND she has the exact same birthday as my daughter Morgan! Your girls are just beautiful and I know they warm your heart- how could smiles like that not! Prayers for healing. Love, Leslie- Carter and Morgan's mommy visit us at: www.caringbridge.org/visit/morganreynolds Leslie Reynolds <rey7@bellsouth.net> Atlanta, GA - Monday, August 15, 2005 9:10 PM CDT HEY LAUREN AND EMMA! This if my first time visiting your site-I think I got it from Tabby or Caden's page! What beautiful daughters you have! I have been reading your journal entries all morning - you write long updates like I do! My daughter, Taylor, has had a lot of the same feeding issues - she was once on neocate, she has a g-tube and a fundo, and still has some reflux problems. Emma seems like she is doing so good developmentally -- It's so great that she can smile, sign, sit, and crawl, etc. She is so adorable!!! I know that you are very proud of her. I can tell by your entries that you are wonderful parents! I was especially touched and could relate to how you said Emma has changed you, personally! When you have a special child-- your view of the world, fellow human beings, and your priorities has been changed forever - and for the good, I believe! I like to think that is the wonderful purpose for our sweet little girl's lives - to touch and change the hearts and minds of others! It is something, how much impact a precious angel can have on so many people! Taylor's website is www.caringbridge.org/visit/tay-tay. We will keep you and your family in our prayers! I hope you receive more answers from the doctors soon, and that her medical problems will get better! Wishing you a GREAT DAY and WEEK!!! Scott, Sonya, and Taylor Murray Sonya Murray, Mommy of Taylor (www.caringbridge.org/visit/tay-tay) <bamagirl01@comcast.net> Smyrna , TN - Monday, August 15, 2005 4:54 PM CDT Hey Lauren and Emma! I am SO glad to hear that your little friend is doing good. I replied to you on P2P about the poop stuff .. can you believe we sit and type about poop? LOL Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Monday, August 15, 2005 3:26 PM CDT Hi Lauren I know you check here soo... my 2c on the Rett thing. Linae (18months) stopped doing her hand slapping almost all summer - while she was really making gains in walking! But now that she's stable walking - guess what's returned... the random slapping and weaving fingers. Don't let Drs. dissuade you - just because you think it's disappeared - Emma's been busy trying to keep healthy. Check ClubRett for our update! Kelly-Ann and Linae in MN Kelly-Ann Larson <kwarren@visi.com> - Sunday, August 14, 2005 4:23 PM CDT Just wanted to let you know I have been thinking about Emma. I am sorry she is having are hard time. I am praying for you all. Shauna <gilliland97@sbcglobal.net> OK - Sunday, August 14, 2005 2:22 PM CDT Hi Emma, I have not been here in a while, but I never stop thinging of you and praying for you. Have a super weekend. HUGS, Lisa and Kari Kari's Page <Lisa@iamtheshoe.com> Langley AFB, VA - Saturday, August 13, 2005 3:43 PM CDT Emma is so cute. I just love checking in on her. Im glad the appt went good. I hope you are able to get answers to what is causing all of this. That was the most frustrating part for us too, the not knowing. Angela~Angels On Earth~ www.caringbridge.org/ma/heathergrace natick, ma - Friday, August 12, 2005 8:44 PM CDT happy spoiled kid of the week Emma.. you are such a cutie... hailee destiny melissa <angels4hailee@aol.com> cavecreek, az usa - Friday, August 12, 2005 2:04 PM CDT I'm so glad to hear Emma is doing so well, what a bonus that she can eat Happy Meals, what kid doesn't like those!!! Keep up the good work Emma! Take care and God Bless, Bonnie www.caringbridge.org/mn/patrickluskey <bonniel@starband.net> Belle Plaine, MN USA - Friday, August 12, 2005 12:54 AM CDT Yaaaa Emma, eat eat eat!!! I want to have a happy meal cheeseburger, too, unfortuantely, I dont need to eat more. :) But I tell ya, if you get to eat one, I'll eat one with you in spirit! Have a great weekend Emma and family! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Friday, August 12, 2005 11:56 AM CDT It sounds again like Emma's doing great! The granulation tissue will be a pain in the butt, I hate the stuff. Silver nitrate works but it's such a pain. You can get creams to help with it also, if you search on P2P site you will find more information. Much less painful than silver nitrate. :) I like the new look of your website. I wish I had some time, I would love to redo Emily's! Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Friday, August 12, 2005 11:21 AM CDT We love the new look to the home page. It's so nice to see Emma's smiling face greeting us! Glad the appointments went well, finally some uneventful visits. We just hope she'll be able to enjoy some happy meals soon!Give the girls big hugs & kisses from us. We miss you lots! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> summerville, sc USA - Friday, August 12, 2005 8:29 AM CDT I'm so glad Emma's Dr. appointments went well! Emma, you are such a doll! And you are so cute with Elmo! I love Elmo too! You all will remain in my thoughts and prayers! Hugs, Kelly ~*~Angels On Earth~*~ Port Orange, FL - Thursday, August 11, 2005 7:00 PM CDT I hope Emma is feeling much better soon. Poor little thing! those breathing treatments scare Miss Heather too.Even after a year of them. :) Sounds like you all have some busy days ahead. keep us updated on Emma. Angela~Angels On Earth~ www.caringbridge.org/ma/heathergrace natick, ma - Thursday, August 11, 2005 10:46 AM CDT It is so good to hear that little Emma is doing well. I hope you all have a fantastic weekend. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Wednesday, August 10, 2005 10:22 PM CDT glad to hear that Emma is doing ok , I have been praying hard and thinking of you alot lately , please give a great big hug to Emma from all of us in Australia thinking of you and praying for you all the way from the land downunder Sammy Joe and family the Liistro Family <sammyjo2@bigpond.com.au> Craigieburn ,Melbourne, vic Australia - Wednesday, August 10, 2005 7:26 AM CDT I'm glad to hear that Emma is doing better! The last thing you need is the stress of g-tube infections or anything. I'm glad to hear she did okay with the PICC line dressing change. I have to change the dressing on Emily's broviac every Monday and she screams the entire time I'm doing it. She hates the betadine and alcohol on her, and she just wails. It's so sad but it keeps her healthy. I hope that Emma's appointments go well this week, you sound as busy as me! LOL Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Tuesday, August 9, 2005 11:27 PM CDT I know what you mean about busy! Each of the boys sees 3 therapists and their social calendar seems more busy than mine these days! I hope you get the formula sorted out soon. We use Peptamen Jr and that is like $8/ 8 oz can. We are in the wrong business...they are making a killing on those! I love the page update. The boys' page looks so boring and bland next to everyone else's. I an trying to figure out the music and how to upload a different background. Take care and thx for signing the boys' guestbook. We appreciate it! If I remember correctly, you have relatives where we live. Look us up the next time you are in town visiting! We would love to meet you! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, August 9, 2005 11:26 PM CDT Hi Emma! You are a very cute little girl! We'll be back to check on you again! ~Tabby’s Page~ Tabby & Mom <karenpuddn@comcast.net> - Tuesday, August 9, 2005 6:13 PM CDT Glad things went smoothly for the PICC line and she is comfortable enough with it to leave it alone! We had the same thing happen with our new ins and the formula and our GI wrote a letter of med necessity and it worked. We were prepared to fight though as this was non-negotiable and totally unacceptable. We should compare notes on ins and home health care sometime! We now use a company based out of Waco. Anyways...I hope that she is over htis bug and the croup really soon and feeling back to her perky self again. Thinking of you all... www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Monday, August 8, 2005 11:31 PM CDT Miss Emma and Miss Madi, We hope you had a wonderful weekend! Emma, get that croupy cough to go away! Have a great day! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Monday, August 8, 2005 2:06 PM CDT Hope Emma is soon over her congestion. Isn't dealing with the insurance company fun? Right now, they're refusing our granddaughter's Emmi's helmet, although it's deemed absolutely necessary since she's insisting on pulling up and launching herself forward without an ability to balance. She doesn't even protect herself when falling since she lacks the ability to realize she's falling. Doesn't even blink. ECI won't even leave the walker with her since she's so unstable, but Emmi doesn't believe she is, so she keeps trying. I guess the insurance company would rather pay over and over for trips like last week's to the doctor to see if she needed stitches after a fall. Or perhaps we should strap her down? Smile. Just try it. Our low-tone granddaughter is more than willing to fight for what she wants and what she wants right now is to pull up! Good luck with your latest fight. Fortunately, Emmi has a wonderful doctor's office staff fighting the insurance company for her all the way, so she may get that helmet after all. I hope Emma's Neocate is soon approved, too. Linda Valley Ranch, TX - Monday, August 8, 2005 8:00 AM CDT We hope you enjoyed your weekend and hopefully it was uneventful. We are praying that after this "bug" little Emma can start recovering without any other complications. I can't believe the ins company! Isn't it great for them to make that determination! Hope you get through to them and they change their minds. Miss you all - love, hugs and kisses to everyone!! Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Monday, August 8, 2005 7:26 AM CDT Glad to hear the PICC line went in well. I can remember Katelyn had one in an odd spot and we had such a hard time holding her etc, positioning can make a world of difference. I hope you are all doing well. ANGELS ON EARTH Angel Katelyn's mom, Debbie <miraclegirlsmom@hotmail.com> Ontario Canada - Monday, August 8, 2005 0:27 AM CDT I'm praying for Emma and your family. Does she ever get a break??!! I just read through you entire journal, and it seems like it's always something...At least sweet Emma just keeps going and going and going. I admire the way your family incorporates Emma's medical issues into your daily life... May your weekend give you many reasons to smile. Stephanie & RachelJoy <mom2rj@comcast.net> - Saturday, August 6, 2005 0:35 AM CDT Just wanted you to know that Emma is in our prayers!! Naomi *Angels on Earth* Plano, TX USA - Friday, August 5, 2005 9:13 PM CDT Hugs and Kisses from NJ for our tough cookie, Emma. We are hopeful that this infection will be the last of her complications. She deserves a break from Dr and hospital visits! We are thinking of you guys all the time and wish we weren't so far away. Love to you guys, Madi and especially Baby Emma. XOXO Carla carla cucci <cooch67@comcast.net> - Friday, August 5, 2005 8:14 PM CDT I pray that they where able to but in the picc line and that Emma body gets rid of what ever it is fighting reall soon.. Poor baby.. SHe is in my thoughts and prayers.. Sherry & Amanda <dsbcma@telus.net> Campbell River, Canada - Friday, August 5, 2005 5:27 PM CDT Miss Emma, We are definitely thinking of you today! We will send extra good thoughts and wishes your way. Get to feeling better soon! We are sending hugs, too! Travis and Brenda <fsgsmom@gmail.com> Niceville, FL - Friday, August 5, 2005 10:23 AM CDT I hope Emma's procedure goes well and those antibiotics are gearing up to knock out this infection. Linda Valley Ranch, TX - Friday, August 5, 2005 6:22 AM CDT I really hope that thngs go well for Emma tommorrow,and I hope she is smiling and feeling better soon.Sending huge hugs your way. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Friday, August 5, 2005 1:25 AM CDT I can't believe I missed SO much while we were out of town. I am so sorry that I haven't been here to support you guys a little more. Well, now I am sending LOTS of extra prayers to you all and to Samantha's family. Please let me know if I can do anything. I will let you know when we are heading back up your way. I pray that Emma is feeling better. I hope Madi LOVES school!!! Hugs & prayers~~ Vicki & Caden Williams <vicki.williams@netxv.net> San Angelo, TX - Friday, August 5, 2005 0:48 AM CDT Hi all We just wanted to let you all know that we will say extra prayers tonight that everything goes well. We send Emma great big hugs. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Friday, August 5, 2005 0:05 AM CDT Thinking of you tomorrow for the PICC line placement. Hope everything goes smoothly and you are in and out this time! Hope she is feeling beter soon and the abx knock this bug out this time. Keep us posted! www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Thursday, August 4, 2005 10:37 PM CDT I am praying for your little friend Samantha. What a scary thing they are going through. Sweet Emma, I hope that you and momma are getting used to that g-tube of yours. I wish you lived closer to us, I would love to meet you! Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Wednesday, August 3, 2005 4:56 PM CDT Hi guys! I'm sorry I haven't been by in a while. Things have been very busy here lately. Wow have I missed a lot! I'm so sorry you weren't doing well sweet Emma. We never stop thinking of you and you are always in our prayers. We will being saying lots of extra prayers for your little friend too. Please let us know how she is doing. Hayleigh sends you big (((HUGS))) Kris, Jordan, Hayleigh and Kailyn <kippy_loo@cox.net> Anthem, AZ - Wednesday, August 3, 2005 4:45 PM CDT That is scary, your firends and there little gilr are in my thoughts and prayers.. Hopeing that Emma is doing well.. Hugs Sherry & Amanda <dsbcma@telus.net> Campbell River, Canada - Wednesday, August 3, 2005 10:48 AM CDT Oh, how scary! I hope that they get answers really soon and can move forward with treatment ASAP. I will be thinking of them.... www3.caringbridge.org/tx/nicholasp/ Melody and the boys <dandmpohla@consolidated.net> - Tuesday, August 2, 2005 9:33 PM CDT Just stopping in to say hi. Your friend's are all in my prayers. Tina & Lance <lancejrmommy@comcast.net> - Tuesday, August 2, 2005 7:49 PM CDT My prayers and thoughts go out to your good friends, too, and I hope your girls are doing well. Emmi ended up at Cook Children's this morning, after having contracted a light case of chicken pox from her immunization. Tricia couldn't keep her glucose levels high enough and was afraid she was decompensating, as was her pediatrician. However, as soon as they got there, Emmi decided she better perk up. She hasn't been signing for several weeks for some reason, and she was signing every word she knew, waving to the paramedics outside her cubicle, giggling, and acting as if her grandfather hadn't had to shake her all the way from Dallas, making sure she wasn't comatose as she was slumped over in her carseat. All ended well. Linda <gcpiazza@aol.com> Valley Ranch, TX - Tuesday, August 2, 2005 7:22 PM CDT Thank you so much for your entry. We love you guys for all of your support and friendship. For any that want to see little Samantha, our website is http://www.babiesonline.com/babies/s/samanthalauren/ Janice, Chris, Lance and Samantha Gable <cantrellcat@charter.net> Azle, TX - Tuesday, August 2, 2005 5:47 PM CDT Yes, this will be her first visit to houston. I will let u know how it was. It should be a great experience. Hope emma feels better soon too. I have been on overload lately. Any suggestions, appreciate greatly. Take care. www.caringbridge.org/ks/alyssadarrah shannon stoiber <shaystoiber@sbcglobal.net> leawood , ks usa - Tuesday, August 2, 2005 5:11 PM CDT Let's just hope this new week will be a much better one then last! Boy oh boy!!! When it rains it falls huh? We hope these fevers go away and you will be able to go a week without this excitement. We were looking over the vacation pix again and we smiled and laughed - we all had such a great time. We miss you!! Lots of HUGS, KISSES, and LOVE to all of you. Cristene, Marc, Megan and Nicholas <cdiesso@bellsouth.net> Summerville, SC USA - Monday, August 1, 2005 9:09 PM CDT Hope Emma's fever is down and that Madi's cough is gone, too. I'm glad to know that your experience with the hospital staff was so good, too. Linda Valley Ranch, TX - Monday, August 1, 2005 9:00 PM CDT Dear Lauren & Josh, We've all been praying for Emma and are so happy she's home.She's so beautiful and "one tough girl".She takes after her mama.Give our love to her & Madison. Josh, hope you're feeling better too.Lots of hugs and kisses. Aunt Barbara & Family <barbaranicastro@adelphia.net> Deerfield Beach, florida - Monday, August 1, 2005 10:15 AM CDT Hi Lauren & Josh, We're so happy to hear that Emma is home. You have been through quite an ordeal. Our prayers are with you every day. Give kisses to Madi & Emma. Love you very much. Aunt Diane, Uncle Gary & family xoxoxo Diane Hancock <diane191@yahoo.com> Centereach, NY USA - Monday, August 1, 2005 9:30 AM CDT I meant Lauren not Laurie- sorry, I can't type or think today- take care. Shirley and Kaila <kksmom@twcny.rr.com> Syracuse, NY usa - Sunday, July 31, 2005 7:02 PM CDT Hi Emma! Laurie I sent you an e-mail today to see how things were going- I'm sorry to hear about the surgery and everything that has been going on but I am glad that you are home. Emma is soooo beautiful she has the sweetest face- I love all of your new pics. Take care and write soon http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=kailamaclaury Shirley and Kaila <kksmom@twcny.rr.com> Liverpool, NY USA - Sunday, July 31, 2005 7:00 PM CDT Hi Emma we are just dropping by to tell you that Joseph is sending you lots of hugs. www.caringbridge.org/fl/joseph Elizabeth <michael_shipley@bellsouth.net> - Sunday, July 31, 2005 3:54 PM CDT YAY! I am so happy to hear that Emma is home and doing so well! I agree ... after seeing your child in the PICU, there is nothing that can phase you about a g-tube. :) She's doing great and so are you. I am just thrilled to read this update. :) Sara and |