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Thanks for visiting our guestbook!(This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.)IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH Click here to sign the guestbook. Click here to go back to the main page. hey, question: since cancer didn't cause maddie's rib to break, what caused it to break? ash <snowleoperd@aol.com> milwaukee, wi 53223 - Friday, December 29, 2006 4:56 PM CST Way to go Maddison! Rejoicing for you all in Canada. I am sure my precious Angel shelby was on double angel duty during this most difficult time for you all. Praying all goes well with the upcoming appointment with the orthopedic surgeon. God Bless and remember, "If you believe, all things are possible." Love Rebecca and Angel Shelby www.caringbridge.org/visit/shelbygagne Rebecca Gagne <rgagne@baminternet.com> St. Thomas, Ontario Canada - Friday, December 29, 2006 3:57 PM CST Doing a little dance for you all!!! WOO HOO!! Cindy Nelson ( Maggie Schumann's mom) www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Friday, December 29, 2006 3:41 PM CST Those are the BEST words I've heard in a long time!!! WAY TO GO MADDY!!!!! We ALL can breathe again!!!! Megan Barrett-Martin <mbarrett@mcgough.com> West St Paul, MN 55118 - Friday, December 29, 2006 12:19 AM CST THANK GOD!!!! Ash milwaukee, wi 53223 - Thursday, December 28, 2006 11:26 PM CST To the Williams family, I hope to God every day that your daughter is not relapsing, I can't even begin to imagine the agony and torment you're going through just waiting and wondering. I'm praying sooo hard! I'm sure God will get you through any situation that's yet to come. Ash Milwaukee, WI 53223 - Wednesday, December 27, 2006 8:40 PM CST Praying for CLEAR scans today!! Megan Barrett-Martin <mbarrett@mcgough.com> West St. Paul, mn - Tuesday, December 26, 2006 10:17 AM CST As we were driving home from seeing my mom tonight, I was praying for positive news on your page today. I am so glad you can celebrate Christmas with your family and know that the docs think this is not a recurrance of the beast we know as Ewing's. My thoughts and prayers will be with you on Tuesday as Maddy goes through more tests. How scary it is to hope that it is only a fractured rib. I hope the New Year brings many blessings for all of you, especially on the employment front for you and Donny. Merry Christmas Cindy Nelson Cindy Nelson ( Maggie Schumann's mom) www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, Wi - Sunday, December 24, 2006 7:47 PM CST Praising God for a Christmas blessing for your family. I am so relieved and of course still praying for CLEAR scans on Tuesday. We will check back in then. Much love this Christmas! Rachel Tift <racheltift@yahoo.com> St. Paul, MN USA - Sunday, December 24, 2006 6:46 PM CST Maddy I am keeping you in my prayers. Have a Merry Christmas and a Happy new Year! With good news! XOXOXO Love and prayers,   Bridge Of Dreams Debbie and the Dream team <debbie@bridgeofdreams.org> VA USA - Sunday, December 24, 2006 4:30 PM CST Still praying with all my might. Megan Barrett-Martin <mbarrett@mcgough.com> West St. Paul, MN - Sunday, December 24, 2006 9:57 AM CST Hi! My name is Rachel and I am Maryah's mom. We live in St.Paul, MN and Maryah has had Ewing's twice. She has made it far and Maddy is making it far and will continue. I know the feeling in your gut and in your heart and my tears won't stop for you. A good friend told me a long time ago during Maryah's treatment that tears are the purest form of prayer so there are many prayers for you this morning in St.Paul. I hate that you have to feel this way, that you have to be scared and hate all the unknowns that are out there for you. I don't know what to say to comfort you because I don't think there is anything. We are here, praying, thinking of you and wishing a beautiful day for you and your family. We will keep you in our prayers daily. Please don't hesitate to contact me if you need to talk or just need to vent...I'm here, I've been through what you are going through and I can at best listen and be a shoulder. Rachel Tift (Maryah's Mom www.caringbridge.org/mn/maryah) <racheltift@yhahoo.com> Saint Paul, MN USA - Sunday, December 24, 2006 9:03 AM CST Praying for you today.... Megan Barrett (Martin) <mbarrett@mcgough.com> West St. Paul, MN - Friday, December 22, 2006 4:59 PM CST Dear Maddie, My name is Maddie too! I am in 3rd grade in Rhinelander, Wi. I am a Brownie, and at our last Troop meeting, we got assigned names from the Hugs and Hope Foundation and I got paired up with you. We made cards and you should be getting one from me shortly. My mom and I read your updates on Caringbridge and wish you and your family a Merry Christmas. We hope your mom's wrist heals soon and we are sorry to learn about your dad's job. Maybe we could become pen pals!! If you have a chance to write back to me, I would love to hear from you. Maddie Barnes Madeline "Maddie" Barnes <btbarnes@newnorth.net> Rhinelander, WI 54501 - Saturday, December 16, 2006 9:06 AM CST Holly, I want to e-mail you personally...but, I don't see your e-mail anywhere...could you please contact me...I would like to speak with you...I've been following Maddie's site for along time, I'm a friend of Maryah/MN (Ewing's survivor!). Please e-mail me if possible... Megan Barrett <mbarrett@mcgough.com> West St. Paul, MN - Thursday, December 14, 2006 8:34 PM CST Sorry to hear about your wrist, hope that it heals quickly. Maddy is just beautiful! Keeping you and your family in my prayers. Deb Dent, MN US - Saturday, November 11, 2006 12:43 AM CST  I just wanted to stop in & say a BIG "hi" to Maddy!! Ihope you have a terrific day!!! Cheri T <faith_in_valley!@yahoo.com> GA - Sunday, October 8, 2006 9:45 PM CDT  sending you LOTS and LOTS of hugs! Keeping you in our thoughts and prayers Michael, Kristina, & Dakota Glidewell> Prayer Bears/ Hugs & Hope Kristina Glidewell <Kristina_1409@hotmail.com> - Wednesday, September 27, 2006 11:59 AM CDT sorry Maddy, I spelled your name wrong below....i was so excited to see clear scans again...I'll never spell it wrong again!! Megan Barrett-Martin West St. Paul, MN - Sunday, September 17, 2006 9:37 PM CDT GREAT NEWS!! CLEAR SCANS!! It doesn't get any better than that. GREAT job in school Maddie! You are a great example for all! Megan Barrett (Martin) West St. Paul, MN 55118 - Thursday, September 14, 2006 10:10 PM CDT Oh Holly and Maddy....the new pictures are so wonderful and the update is even better. Maddy is always going to be a tender hearted girl, and pose tough questions for you. I'm so happy to hear all is well for you all. That doesn't mean you drop out of my thoughts and prayers, though. Have a splendid fall. The trees are just starting to turn here. I can hardly wait to make my daughters crazy when I go "oooh and aaah". Cindy Nelson-Maggie's mom- www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Tuesday, September 12, 2006 11:59 AM CDT Maddison,Just stopping by to say hi and let you know we are thinking of you.  God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com> port orchard, wa usa - Sunday, September 3, 2006 11:30 AM CDT Dear Maddy, it was so nice to see you at kamp kace. I am glad you were there, hope you enjoyed. You look so well now, i remember when we first met in the hospital and you wanted to see someone with a port because you were scared and Marcia decided to have me do it, i'm sure you don't remeber that, but you said you weren't scared anymore after seeing me with mine, you said you wanted to be like me, well, i don't think ur like me, because you are a little wonderwoman and i look up to you. You are growing up to be quite the young lady. God Bless You and Keep You Safe. Love Always: Brittany Wells Brittany Chantelle Wells <brittany.wells@sendit.nodak.edu> Larimore, ND USA - Friday, August 25, 2006 11:09 AM CDT Hi! I can't wait to see all of you guys at camp in a few weeks :) See you soon!! Emily Campbell <eccampbe@cord.edu> Fargo, ND 58104 - Monday, July 24, 2006 11:16 PM CDT Hi Maddy! I'm just stopping by to say hi and let you know that I'm thinking of you!! I hope you have a GREAT weekend! God bless and *warm hugs* ><>†<>< *Jennifer C* from Angels on Earth <coopsie78@gmail.com> Eugene, OR USA - Saturday, July 22, 2006 8:48 PM CDT hello! and my apologies for not checking as often as i used to! i am so happy to hear that maddy is finally get to live a "kid" life but she's soo much more advanced than the other kids that haven't been through what she has..i miss you maddy and donovan!  and this is me when i went back to disney this year! wish u were there :) ziggy chicano <pinayskye@msn.com> Aurora, il USA - Sunday, July 16, 2006 9:20 PM CDT HI MADDY, MY NAME IS MICHELE, AND I JUST WANT TO SAY THAT I LOVE YOUR PICTURE, YOU LOOK LIKE A LITTLE PRINCESS, WITH A WONDER WOMAN TASTE. I AM LOOKING FORWARD TO BEING YOUR PAL, AND I HOPE TO SEE MORE PICTURES OF YOU SOON. MICHELE <michelemigliaccio@yahoo.com> TRENTON, NJ US - Thursday, July 13, 2006 10:10 AM CDT Hi Holly (and Maddy)! Thanks for stopping by and signing in on Maryah's CB site. I appreciate meeting new people that are BEATING up on Ewing's. You have all worked hard and I am thrilled to hear of your recent scan results. Way to go Maddy! You will be on our daily prayer list and in our thoughts. We'll stop by again soon! Rachel and Maryah Tift <racheltift@yahoo.com> St. Paul, MN USA - Monday, July 10, 2006 3:44 PM CDT Hi! I stop by your CB site many times...I've been following your story for about 1 1/2 years. I look forward to your updates and great CLEAR scans!! I have a friends who HAD Ewing's. She has beat cancer's butt twice!! (Maryah/MN) Hope your summer keeps going well! Megan Barrett (Martin) <mbarrett@mcgough.com> West St. Paul, MN - Saturday, July 8, 2006 12:00 AM CDT Hey Maddy, I just wanted to stop by and check in on you and your family. I hope you are having a good day. www.caringbridge.org/nc/ashleyr Ashley Reber <alrhm@dnet.net> Hayesville, NC USA - Wednesday, June 28, 2006 10:52 AM CDT Hello Maddy and family, Was great to see you last week. Maddy you look so beautiful!!! and I love your hair. By the way... I bought a bag for the Relay for Life here in Wahpeton. Your name is on a bag here. I will try to get a picture of it and email it to you guys. Take care and we love you guys!1 Michelle Shereck <michelle.shereck@ndscs.edu> Wahpeton, ND USA - Tuesday, June 20, 2006 1:54 PM CDT Alex is just stopping by to say that we are praying for you! Hope you have a great Memorial Day Weekend! Love,  The Prayer Bears Website MaryBeth <attnymb@aol.com> - Saturday, May 27, 2006 8:16 AM CDT Hello Maddy and family, I am sorry to hear about Maddy's hair problem... we have just started at Prairie and have seen MUCH improvement for our cancer surviver. You can shoot me an email if you want other info. As for the other stuff.... I know that they say God will only give you as much as you can handle... SOMETIMES I don't believe that but I will pray that everything starts falling into place and everything will be ok AND SOON! :) You guys continue to be in our prayers and thoughts. Michelle <michelle.shereck@ndscs.edu> Wahpeton, ND USA - Thursday, May 18, 2006 1:39 PM CDT  Alex is just dropping by to say that he hopes you had a  Love, MaryBeth & Alex The Prayer Bears Website  MaryBeth <attnymb@aol.com> - Monday, May 15, 2006 3:14 PM CDT HELLO MY DEAR FAMILY AND FRIEND, HAPPY MOTHERS DAY AND BIG HUGS TO MADDY AND THE FAMILY!!!!!!!!! WE ARE SO HAPPY FOR MADDY AND HER 2 YEAR SCAN. TELL MADDY I TOO AM LOSING HAIR. STRESS!!! I THINK IT IS ACTUALLY GET A LITTLE THICKER BUT I LOST SO MUCH DURING CHRISTOPHERS JOURNEY THAT I KNOW I WILL NEVER GET IT ALL BACK. CONGRATS TO DONOVAN FOR HIS GRADUATION!! EVERYTHING WILL FALL INTO PLACE. DON'T SELL ANYTHING YET. WE HAVE BEEN HAVING A HECK OF A TIME. SOME UPS AND SOME DOWNS. THAT TOO WILL EVEN ITSELF OUT. WE CERTAINLY MISS CHRISTOPHER EVRY DAY. HIS RAYS ARE SHINING BRIGHTLY IN SO MANY WAYS TO LET US KNOW HE IS HERE. JEFF HAD KNEE SURGERY ON WED. AND HEALING WELL. WE THINK OF YOU ALL SO MUCH AND HOPE YOU FEEL OUR PRAYERS COMING YOUR WAY. KEEP THE FAITH AND KNOW THAT WE LOVE YOU. ALL OUR LOVE AND HUGS, PAM AND FAM Pam Raymer <jdraymer@charter.net> Beloit, wi USA - Sunday, May 14, 2006 2:59 PM CDT HIII!!! How awesome is it that we are already two yaers out. We have been cancer survivors for three years now becuase we were survivors since the day we were diagnosed! When is your relay for life?? I might have to come and check out the cool costumes:) Tell everybody I say "Hi" and give them a big hug!! Talk to you soon Emily Campbell <eccampbe@cord.edu> Fargo, ND 58104 - Monday, May 8, 2006 7:05 PM CDT may god bless you all all our thoughts are with you philip maddison <phildmaddison@yahoo.co.uk> northampton, england - Sunday, May 7, 2006 8:41 AM CDT My thoughts and prayers are with your family. My family was recently dealt the blow from Ewings. Our 15 year old son was diagnosed on April 16th 2006. We are still in shock and getting used to the idea that we have a fight on our hands. Reading your story has given me the courage to push forward and stay strong for my child and the rest of our family. Lori Kelowna, BC Canada - Saturday, May 6, 2006 0:17 AM CDT I am praying for your family. Ruth <blueeyed_female@msn.com> Hinton, Wv US - Tuesday, May 2, 2006 12:11 AM CDT Sorry for your bad ice skating experience. You try to do the right thing... I was looking for other Ewings families on Cancer kids and saw Maddie's story. Our daughter Hannah is 8 and had Ewings on her 9th rib, left side. She had surgery in February to remove the tumor and ribs. She will have her 10th round of chemo in a couple weeks. It's nice to read about survivors, even down days, because Maddie is surviving!! Tell her she is inspiring my daughter. :) Sharon Knudsen www.caringbridge.org/visit/hannahknudsen <knudsen@cox.net> Omaha, NE - Monday, April 24, 2006 4:44 PM CDT Hi from Valladolid (Europe [Spain]) José Mª <j.m.o@care2.com> - Sunday, April 16, 2006 12:13 AM CDT  Keeping you in my thoughts and in my prayer's always. LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~> EDMONTON   , - Thursday, April 13, 2006 9:02 PM CDT
 Just popping in to wish you a sun shiny day! Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Saturday, April 1, 2006 10:31 AM CST  Keeping you in my thoughts and in my prayer's always. LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca ~THE PRAYER BEARS~> EDMONTON , - Tuesday, March 28, 2006 2:07 PM CST
Oh, Holly and family. I am so sorry aobut your latest catastrophe. I hope Donny is feeling better and that Maddison will stop feeling like she has the weight of the world on her shoulders. I will keep all of you in my thoughts and prayers. It seems crappy to try and have a fun time and it backfires on you. I am scared to plan a vacation, because I had one planned and scheduled and tickets bought, the whole thing when Maggie relapsed last spring. I guess we just have to settle on being homebodies. Cindy Cindy Nelson - Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Tuesday, March 21, 2006 4:55 PM CST Hi from Valladolid (Spain)! You know, Spain is in Europe Look how far! José Mª <j.m.o@care2.com> Valladolid, Spain (Europe) - Monday, March 20, 2006 12:46 AM CST Maddison this is Amanda, your mom & I have emailed a few times & I am so glad to hear that you are still CANCER FREE!!!!! MY little girl Alex only has 3 more rounds of chemo to go and she will be done. I want you to stay strong for your mom & family cause that is the only thing that has made me as strong as I am today is to be able to see my little girl being as strong as she is everyday! Amanda Kuyawa <kuyawaa@aafes.com> Arlington, TX USa - Saturday, March 18, 2006 11:15 AM CST Maddy,Happy St.Patty's Day!God bless,love&hugs,Linn,Daniel & Ariel  The Marrero's <gillinn7@msn.com> port orchard, wa. usa - Saturday, March 18, 2006 2:08 AM CST  Thinking of you! Shay & Chayce Prayer Bears, Giving Hope, SOEW Chayce's Mission <eeneedscure@yahoo.com > Davison, MI - Friday, March 10, 2006 9:25 AM CST  Alex and Cookie Monster are stopping by to check on youLove, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Sunday, February 19, 2006 3:38 PM CST Hey Maddison, This is a little late but HAPPY BELATED BIRTHDAY, sweetheart. I'm so glad your party was a blast and everyone had fun! Know that you're in my thoughts and prayers... sending tons of love from Down Under.. ~*~*Girlie's Page*~*~ Love always, XOXOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Friday, February 17, 2006 3:39 AM CST  I know that I'm a day late just want you to know that I'm thinking of you always. LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA/CANADA, - Wednesday, February 15, 2006 3:44 PM CST Maddison,Wishing you a very Happy Valentines Day!God bless,Love&hugs,Linn,Daniel & Ariel  The Marrero's <gillinn7@msn.com> port orchard, wa USA - Friday, February 10, 2006 1:45 AM CST hi williams family, i am so happy to hear maddys birthday went well. sorry for the sinus infection holly. alot of that here too. jeff just finished with it for a week. i am so happy the little girl is out of a coma. keep us posted. love to all of you. pam Pam Raymer <pam raymer @ caringbridge.org/wi/christopher> Beloit, WI USA - Thursday, February 2, 2006 3:27 PM CST   LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Thursday, February 2, 2006 10:30 AM CST What a nice update, apart from your lingering pain issues. Some days I think my aging body is giving out on me, but then a few days later it is all going well. I am very partial to Children's Hospital of Wisconsin in Milwaukee, as that is where Maggie has had all of her treatment. Madison has a great University Hospital and up near the Twin Cities there are great hospitals also. You are such a country girl, and I have always lived in a city. But I know what you mean about never living far from home. I did live in Utah for 10 years, far from my family, but now I am five blocks from the house I grew up in. Maggie is going to the same schools I went to. Maggie has her port removed tomorrow. Another step forward. Maddy and all of your family remain in my thoughts and prayers. Cindy Nelson - Maggie's mom Cindy Nelson - Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Monday, January 30, 2006 7:12 PM CST Woo Hoo 21 months in remission!!! Way to go Maddy!!!! Hope all is going well for all of you!!!! Take care P.S. The tums daily & vitamins did the trick, Jessie hasn't complained about her legs sleeping & hurting in a long time now!!! Thanks again!!! Jackie & Jessie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver dam, wi - Sunday, January 29, 2006 2:11 PM CST  Just stopping by to say that we are praying for you! Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Saturday, January 28, 2006 5:32 PM CST  Alex is swimming by to say hello!So glad that all the news is good news! Have a great week. Love, MaryBeth & Alex The Prayer Bears Website MaryBeth <attnymb@aol.com> - Monday, January 23, 2006 3:37 AM CST Hi Maddy and Holly , I have tried to enter a message a couple of times, but apparently, have been unable. I am so glad that the reports of your recent scans were negative. Sorry that you had all of that emotional trauma. Happy Birthday and hope things continue to be smooth sailing. Cindy Nelson Cindy Nelson - Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Friday, January 20, 2006 10:44 PM CST HAPPY BIRTHDAY DEAR SWEET MADDY! 6 YEARS OLD. PRETTY SOON YOU GET TO DRIVE (HAHA). HOPE YOUR DAY IS WONDERFUL JUST LIKE YOU. WE WILL BE THINKING OF YOU ALL DAY. I AM SURE CHRISTOPHER WILL BE WATCHING YOU WITH ALL THE OTHER ANGELS AND HELPING YOU BLOW OUT ALL YOUR CANDLES. LOTS OF LOVE, THE RAYMERS Pam Raymer <pam raymer @ caringbridge.org/wi/christopher> beloit, WI USA - Wednesday, January 18, 2006 9:53 AM CST I love the new pictures! Continued prayers to you sweet Maddy. You are so special to me! Love..Minda Minda <mewarcken@hotmail.com> mayville, nd usa - Monday, January 16, 2006 9:24 PM CST  HAPPY BIRTHDAY LOVE ALWAYS BRENDA MY LOVING DAD <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, January 15, 2006 8:49 PM CST Have a great birthday this week Maddison!  Roxane St.John, Hugs and Hope VA U.S.A. - Sunday, January 15, 2006 8:49 AM CST Congradulations on being cancer free for 21 months!!! www.caringbridge.org/nc/ashleyr Ashley Reber <alrhm@dnet.net> Hayesville, NC usa - Tuesday, January 10, 2006 2:31 PM CST Hey Maddy and Family! Due to my recent hiatus from the CB world, I have neglected signing any guestbooks. But I am now BACK! :) Not sure if you remember me, but I signed your guestbook a while back and then you signed mine (haha apparently that's how that all works). Anyhow, just wanted to say CONGRATULATIONS!!!!!!!!!!!! 21 CANCER FREE!!! WOOOOOOOO HOOOOOOO!!! I am soooooo happy for you Maddy!!! You deserve the best and this is certainly good news! I will continue to check on you! *hugs* http://www3.caringbridge.org/oh/juli/ Juli Merhaut <crazygal8705@yahoo.com> Canfield, OH USA - Friday, January 6, 2006 2:48 PM CST   Wishing you and those you love a year of good health, happiness, contentment and peace Love, MaryBeth, Scott, Carolee, Spencer & Alex  MaryBeth <attnymb@aol.com> - Saturday, December 31, 2005 8:01 AM CST hello and HAPPY HAPPY NEW YEAR!!!!! WE ARE ALL SO EXCITED FOR YOU AND RELIEVED AS WELL. I HOPE YOUR NEW YEAR IS RELAXING NOW. IT IS JEFF AND MY 6TH ANNIVERSARY ON NEW YEARS EVE/DAY. WE WERE MARRIED AT 12;15am 1999-2000. I AM SO HAPPY FOR YOUR FAMILY. AGAIN, MADDY IS THE STRENGTH OF OUR HEARTS. YOU GO GIRL!!!!! THINKING OF YOU ALL EVERY DAY. MISS YOU. LOTS OF HUGS AND KISSES TO YOU ALL AND A VERY HAPPY AND HEALTHY NEW YEAR. ALL OF OUR LOVE, THE RAYMER FAMILY AND OUR ANGEL CHRISTOPHER Pam Raymer <pam raymer @ caringbridge.org/wi/christopher> beloit, WI USA - Friday, December 30, 2005 7:51 PM CST  MY CHRISTMAS ANGEL LOVE ALWAYS BRENDA <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, December 25, 2005 7:15 PM CST hey hey!! Sorry ive been a bad friend and not been here in a while11 excuses will still be just that excuses..soOo.. i just want to wish you all a very merry christmas and a FANtABULOUS NEW YEAR!! i can't wait to see pictures up from your christmas!! i just want to let maddy and donovan know that i'm still thinking of you guys and wishing you the best! and Holly in the midst of all the christmas cheer and chaos please have time to relax..can't have you on over drive 24/7 :) take care! ziggy <pinayskye@msn.com> aurora, il usa - Friday, December 23, 2005 1:32 PM CST    MaryBeth & Alex MaryBeth <attnymb@aol.com> - Thursday, December 22, 2005 7:17 PM CST Merry Christmas to you all! We are holding you in our thoughts and prayers and keeping our fingers crossed for clear scans. May you enjoy a happy holiday season and all the best in the new year. Love Shelby and family www.caringbridge.org/visit/shelbygagne Rebecca Gagne <rgagne@baminternet.com> St. Thomas, Ontario Canada - Wednesday, December 21, 2005 7:01 AM CST Thinking of you and hoping things go ever so well tomorrow. Cindy Nelson Cindy Nelson - Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Tuesday, December 20, 2005 9:55 AM CST  Love from Kaitlyn <ozi_gal@hotmail.com> Beverley, WA Australia - Tuesday, December 20, 2005 2:01 AM CST   Alex and Holly are riding by to wish you a very MERRY CHRISTMAS! So glad that Maddison is asking the questions and not keeping them bottled inside. We are praying for all of you. MaryBeth & Alex Prayer Bears- Praying for YOU!  MaryBeth <marybethlefevre@aol.com> Williamstown, VT - Sunday, December 18, 2005 6:01 AM CST I was delighted to click on Maddy's page tonight and find an update. It is amazing how our kids can ask a question that floors us, and then go on and live their lives. Even at 12, Maggie can still do that. You and I need to take lessons from them of how to move on in a speedier fashion. Maddy is in my thoughts and prayers as you get ready for your scans. I say "your" because it really is all of you fighting the fight. I just finished shoveling for the third time today, but at 11PM it is quiet and beautiful out. Thinking of you always, Cindy Nelson Cindy Nelson - Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Wednesday, December 14, 2005 11:16 PM CST Carissima sorella, Carissimi Maddy, Donovan & Donny, Vi voglio tanto bene. Tua sorella per sempre. Sabrina <morini@agriflex.it> Italy - Monday, December 12, 2005 6:50 AM CST  I know it's been like forever since I've visited you. I have just been so busy. But I think of you always. LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, December 11, 2005 8:10 PM CST MaryBeth & Alex Prayer Bears- Praying for Maddison! MaryBeth <marybethlefevre@aol.com> - Thursday, November 17, 2005 6:28 PM CST I love reading your entries. I have been making a special effort to live for the future, but find it hard at times. Thanks for the encouragement. Cindy Nelson Cindy Nelson - Maggie's mom www.caringbridge.com/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Monday, November 14, 2005 3:22 PM CST  Alex and his friends are stopping by to say hope you have a great week! Hope you had a fun Halloween! MaryBeth & Alex Prayer Bears MaryBeth <attnymb@aol.com> - Friday, November 4, 2005 6:17 PM CST We went to the Milwaukee Public Museum last week. I went into the butterfly wing and said an extra special prayer for Maddy. Hope you had lots of fun for trick or treat!! Cindy Nelson Cindy Nelson - Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Tuesday, November 1, 2005 1:04 PM CST  LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Monday, October 31, 2005 12:12 AM CST Hello, I am new to Maddy's story. I am very glad to hear about her clear scans! I noticed that you are from ND also, I live in ND also. A mermaid sounds like a wonderful costume idea, I hope you have a great time trick or treating Maddy! Hopefully the weather stays nice like it has been! Lindsey - Sunday, October 30, 2005 2:17 PM CST  MaryBeth & Alex MaryBeth <marybethlefevre@aol.com> - Sunday, October 30, 2005 5:16 AM CST I just wanted to make sure that you were aware that The Prayer Bears site is moving. In order to keep Maddison as a member, please click on the "submit a cub" link, if you have not already submitted her to the new site. The new site has added safety features. The old site is still active (for now) and you can find verification of the change there. Hope everyone is well and has a happy Halloween. MaryBeth & Alex www.caringbridge.com/vt/alex Here is their new site address http://www.freewebs.com/prayerbears/ MaryBeth <marybethlefevre@aol.com> - Saturday, October 29, 2005 6:34 PM CDT  Alex and his scary mummy pumpkin are stopping by to wish you a bootiful week!We "adopted" Maddison from the prayerbears list. We are so happy that her scans went well. We will be praying for her continued good health, and yours too! We will be back to check on you all soon!  MaryBeth & Alex MaryBeth <marybethlefevre@aol.com> Williamstown, VT - Saturday, October 22, 2005 10:18 PM CDT Holly, I have had problems posting recently, but that doesn't mean you all aren't in my thoughts and prayers. I hope Maddy and Donovan are dressing up as something fun for Halloween. Cindy Nelson Cindy Nelson - Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Friday, October 21, 2005 3:24 PM CDT  LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Thursday, October 13, 2005 11:31 AM CDT congrats on clear scans!! YAY!! wow i havent been keepoing up here---soo overwhelmed with two jobs and no life its hard! anyway....hope everyone is doing SWELL!! cant believe Maddy's hair is so long!! and i just chopped mine off :) keep smiling coz ill be smiling for all of you! ziggy <pinayskye@msn.com> Aurora, il usa - Saturday, October 8, 2005 2:47 PM CDT Good morning, Holly! What great news about your sweet, beautiful Maddy. It was such a pleasure meeting you and your friend, Pam. I know Pam R. was to happy to have you with her and Jeff on Tuesday, it was very nice of you to be there. Please tell the other Pam thank you for helping make that possible. I hope you had a good trip home and are catching up on sleep, although with the kids in school now, you're probably busier than ever. I will keep you all in my prayers, right next to Christopher, Pam and Jeff. Cathi Olson Cathi Olson <babeedl601@aol.com> Twin Lakes, WI USA - Thursday, October 6, 2005 7:48 AM CDT What wonderful news on the clear scans! http://www2.caringbridge.org/ma/ericdonovan/ <kathleen.rhodes.donovan@verizon.net> scituate, ma 02066 - Thursday, October 6, 2005 6:43 AM CDT I'm so glad that you were with Pam and Jeff yesterday. We have come to love them very much. My family and I couldn't be there, but we were thinking of them every second of the day. I'm very happy they had you. Maddy is beautiful and I will hold her very close in my prayers. Love, Rose http://roseygirl7.tripod.com prayer_angels Rose <roseygirl1230@yahoo.com> SC - Wednesday, October 5, 2005 8:47 PM CDT Hello Holly, I hope you had a safe journey back home. It was so nice to meet you, and it was so, very thoughtful of you to come all the way to wisconsin for christopher and pam. As you found out she is a really special person. After everthing you have been through it took great strenth for you to be there. Little man christopher is no longer suffering and He has some very bright wings now. I so much enjoyed the pics of maddy she is a beautiful girl. What strength she must have. I will check in again soon, e-mail me anytime ! Thank you, it was my pleasure to have met you. Always SANDY K. sandy colson <cocosnana@yahoo.com> beloit, wi usa - Wednesday, October 5, 2005 3:02 PM CDT Hi Holly! I just wanted you to know that I really enjoyed meeting you today. Thank you so much for being there for Pam & Jeff! They are such wonderful people, so it is no wonder that they attract wonderful people such as yourself. I hope that you got your "SpongeBob" shirt and shorts and got in a good nap before dinner. Have a safe and enjoyable trip home. Love and prayers, Toni Ingle <tingle521@aol.com> Beloit, WI USA - Tuesday, October 4, 2005 4:19 PM CDT I love to click on your page to see Maddy's smiling face. Thinking of you. Cindy Nelson Cindy Nelson - Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Monday, October 3, 2005 12:55 AM CDT Way to go Maddy!!!! I am soo happy for you & your family!! I long for the day to write 18 months cancer free in Jessie's website! Thanks for the helpful hints with the tums & vitamins, we started the tums this morning!! I wonder if I can do the vitamins in pill form vs liquid? Jessie just doesnt take liquid well... I'll have to check into it!!! So very happy to hear you all are doing so wonderful!!! I check up on Maddy often & just love reading your entries!! We'll keep you in our prayers!! As Angel Chris would say "Until they find a cure" ~~Peace~~Love~~Hope~~Believe~~ Jackie & Jessie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver Dam, wi - Monday, October 3, 2005 12:49 AM CDT Hi,my name is amanda and my daughter Alexandra (Alex)who will turn 3 on Nov 1st was diagnosed with ewing sarcoma on June 11th 2005, i was due to deliver my 5th child in 4 weeks when we found out, we were actually at my baby shower when we noticed her breathing funny.a tumor the size of a tennis ball came from her third right rib and collapsed her lung and the fluid pushed her heart to her left side. she has gone through 4 rounds of chemo (68 rounds left) and surgery when they found another tumor on her right lung. They are discussing doing radiation now instead of of waitig till the end of her chemo treatments. She has been so strong through all of this, it's amazing how our gifts from God are stronger than we are, if it was not for her strength and wisdom i don't know where i would be right now.I wish you the best of luck and God Bless you all! Amanda Kuyawa <kuyawaa@aafes.com> Arlington, TX usa - Sunday, October 2, 2005 12:34 AM CDT  Hi Maddie, My name is Rose. I saw your link on Christopher's site. You are in my thoughts and my prayers. Have a nice weekend. Love, Rose http://roseygirl7.tripod.com prayer_angels Rose <roseygirl1230@yahoo.com> SC - Friday, September 30, 2005 6:30 PM CDT HI HOLLY AND MADDY, I AM SO HAPPY FOR YOU! CHECK OUT THAT BIRTHDAY PRESENT! JUST SENDING MY LOVE. KISSES AND HUGS TO THE WHOLE FAMILY. I LOVE THE PICTURE!!! LOVE, PAM pam raymer <pam raymer @ caringbridge.org/wi/christopher> Beloit, WI usa - Friday, September 30, 2005 3:40 AM CDT Woo Hoo!!!!Way to go. I did my happy dance when I read about Maddy's clear scans. Cindy Nelson Cindy Nelson - Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Thursday, September 29, 2005 10:30 AM CDT  Love Always BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Wednesday, September 28, 2005 8:49 PM CDT WAY TO GO!!!!!!!!!!!!!!!!!!!!! What wonderful news for all of you. Hopefully you will be able to breathe a sigh of relief and take some time to celebrate. You are all such an inspiration to us and I can't wait until the day that I hear that Shelby's scans are clear. Sending warm hugs and as always our prayers. Keep the faith, stay strong and God bless. Love Shelby Gagne and family www.caringbridge.org/visit/shelbygagne Rebecca Gagne <rgagne@baminternet.com> St. Thomas, Ontario Canada - Wednesday, September 28, 2005 6:09 PM CDT From the bottom of my heart thank you for the heartfelt sympathy. Today is particularily a bad day for me as I look around my home and see constant reminders of my beloved John. The past 10 days (and 2 yrs) have been an emotional roller-coaster as you are much aware. I looked forward to and dreaded the scan dates for John everytime! My prayers are with your family and Maddy as you go through this tomorrow. John left us much sooner than we all expected. For the past 2 years I have constantly prayed that he not have to suffer in pain from this disease. I guess God answered my prayers when he peacefully took my son. The cancer was spreading to his nerves, bones and muscles and he could have had a miserable death. Instead, he died peacefully, pain free in the presence of his loving family. I thank God for answering part of my prayers. I wanted to keep him until he was 80-old and gray with 20 grandchildren, but it was not meant to be. Give Maddy a hug from me and one from John. He will watch over all of us in our struggles and sad times. God bless your entire family. Denise Murphy <murphys@rrv.net> Cummings, ND USA - Tuesday, September 27, 2005 12:11 AM CDT Glad I checked in on you tonight so I could do my clear scans storming of heaven in earnest for you all this week. There are times when I find myself totally paralzed by the fear I have for my daughter. I just have to look at her to gather strength. She just plugs away and fights to be "normal". I hope that one day you and I will feel our lives are normal again. Please feel free to email me or whatever if you need some extra support. My thoughts and prayers are with you and your family. I love all of the new pictures, I know how much effort goes into them. Maddy looks so healthy and good. Give her a smooch for me. Cindy Nelson - Maggie's mom Cindy Nelson -Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Sunday, September 25, 2005 7:15 PM CDT hey lady, guess i have not had enough of you. a wonderful almost 3 hour conversation and i am still thinking about you. all night actually. i see you have had a few guest from christophers site. i am so glad. cindy seems to be giving you some good advice from wisconsin point of few. i am so sorry you have to be going through this right now. noone has any idea of where you have already been. i did'nt until we talked. it is pretty obvious you are stronger than even you know. your question about, any sense of relief in knowing, is such an important question as a parent in this situation. i am very glad you asked. just keep your focus on what you have today. you always have a plate full. i love you guys so much!! your birthday is a special day. hearing the good news of CLEAR SCANS will make a great gift. anything holly!! anything! just call. please e-mail me your home address. jdraymer@charter.net i want to write so much more but chris just woke up. love to all of you, pam pam raymer <pam raymer @ caringbridge.org/wi/christopher> beloit, wi usa - Saturday, September 24, 2005 5:21 PM CDT We are sending you tons of positive energy as the scan day approaches and pray that they are clear. Please know that our prayers are with you now and always. Love Shelby Gagne and family www.caringbridge.org/visit/shelbygagne Rebecca Gagne <rgagne@baminternet.com> St.Thomas, Ont Canada - Saturday, September 24, 2005 11:25 AM CDT Hello Maddy and family! I found your site through Christopher's. My daughter Shauna was diagnosed with ALL this past May. Sending positive thoughts and good wishes your way. http://www2.caringbridge.org/canada/shaunam Karen, Graham, Shauna & Jenna McLean <karen@camlachiegrainandfeed.com> Watford, Ont Canada - Wednesday, September 21, 2005 9:34 PM CDT Holly, I think it is the curse of the "chemo mom" that we can't make decisions. I get in bed at night, exhausted, and then my mind races. Should I have done this, will I do that, if I had done this would Maggie not have relapsed?? Who knows?? You have no idea (yes you do) how hard I will be doing my clean scan prayers for precious Maddy. I am going to mark it on my calender. I know you had a horrible time with the freeway in WI this summer, but I swear by Children's Hospital of Wisconsin. And the downtown freeway will only be torn up for 2 more years. I have gotten to be a much braver driver over the last 3 years. I am biased about Wisconsin, but I grew up here, my family is here, and I lived away for 12 years. I've been back for 14 years. Have a happy birthday/scan day. Cindy Nelson Cindy Nelson - Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Wednesday, September 21, 2005 8:53 PM CDT Hi, I found Maddison's site through Christopher's, so I thought I would just say hi. I live in Oregon and just wanted to let you know what a great place it is to live! I am only an hr from the ocean and an hr from the mountains! If you don't mind a wet climate, it is a beautiful place to live and raise kids! Maddison is adorable and looks so proud to be a Kindergartner! I have 3 girls and one just started 1st grade this year and is just as proud. I will keep checking in on Maddison and put her on my prayer list. Good luck on your moving decisions. Michele www.caringbridge.org/or/michele Michele Salem, OR USA - Tuesday, September 20, 2005 1:28 AM CDT What a gorgous,sweet face. I came from Christopher's. I hope all your "Birthday's" from now on, are happy ones; with only the best news. Everyone deserves a Happy Birthday. You and Maddy especially.God bless you. Lesa Kurdziel <lkurdziel@charter.net> Beloit, Wi USA - Monday, September 19, 2005 8:04 PM CDT Holly, We will pray big time for clear scans for Maddison. I know exactly what you mean, I am always soo happy with each month that goes by(dont they go by faster now that Maddy is done w/treatment?) I know our months do, I am scared poopless of the 16 month mark, beacuse thats when Maggie relapsed, & she has her tumor in practically the same spot as Jessie... It's enough to drive you crazy...Jessie has been complaining of headaches too... I'm taking her to get her eyes checked.. Well, goodluck in your decisions, I don't envy you leaving Maddys onc Dr.s & the hospital that she is familiar with at all!! I can tell you, & I'm sure that Cindy would agree that CHW in Milwaukee is WONDERFUL.... Know that we will be storming the heavens above for clear scans Jackie & Jessie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver dam, wi - Monday, September 19, 2005 3:19 PM CDT Hi there - I thought I'd drop you a line since it's almost time for us to enter Donovan's page in the calendar...it reminded me to come by. I am busy working away on this year's calendars. Because of the great success of last year's, we have decided to do two this year: one for cancer fighters and one for other kids on caringbridge "the littlest fighters" calendar. If you think you'd be interested in either calendar, let me know and I'll get a voucher sent out to you. HelenH <geordielass999@hotmail.com> THE KICKIN' CANCER'S BUTT STORE!, - Monday, September 19, 2005 1:02 PM CDT hi to my dear friend holly and family. i am so pleased to see maddys wonderful picture on her first day of kindergaden! sooooo cute! she looks like she is ready to handle anything. hope you are all well. sorry to hear about your $ situation. i can certainly relate. not working for 14 months and being used to 2 incomes has been a burden on us as well. if we had to travel back and forth to madison for christopher it would be difficult. although, i would love to be in that situation again rather than where we are. just writing to let you know i am still checking in. happy to see your beautiful smile maddy, and hope you are all well. thinking about you. love to the family. kisses and hugs, pam pam raymer <pam raymer @ caringbridge.org/wi/christopher> Beloit, wi usa - Saturday, September 17, 2005 1:25 AM CDT Hi I found you on Christophers site,just wanted to say that is one of my favourite songs as well:) sharon shields <sharonshields44@hotmail.com> L, England - Thursday, September 15, 2005 4:36 PM CDT Holly, the picture of Maddy on her first day of kindergarten is priceless. Now I am going to have to dig out Maggie's and have it framed. She took her beloved Bunny-Bunny who was lost for 5 long days last week with her on that first day of school. He was much brighter then. I think all of the "baths" in the washing machine have faded him a bit. Hard to believe that was 9 years ago. She was supposed to join her class today, but was admitted last night for UTI. I love your updates. They always bring a smile to my face. Cindy - Maggie's mom Cindy Nelson - Maggie's mom www.caringbridge.org/wi/maggie Milwaukee, WI - Monday, September 12, 2005 1:22 PM CDT Hello Holly and family, your pictures on this web sight are so awesome to see. Maddie is BEAUTIFUL!! Lindsey is going to be 17 in November and has turned into a regular teenager, kind of! She is going to her 1st Homecoming dance this coming weekend. I am sooo excited for her. She is also going to be confirmed on the 25th of September. As well as getting her drivers license this Thursday (as long as she passes the driving part of the test). Lindsey was also in dance and tap. She still enjoys doing some of the tap steps. It also helped with her rhythm, which before the classes was almost non existent. Now she can dance with the best of them. I checked out “Christopher’s” web sight and sent a note. My heart sure goes out to them. Not only for the battle that they have endured, and heart ache so far but that that is yet to come. Was wondering if you were at the Make A Wish Galla this year? We did not receive an invite this year, which is ok as we have been invited many times to things for many years. I wish I had billions to give to them to make even more wishes come true. Hope your life settles down a little, remember to celebrate life as best you can, it is fragile and precious as are our children. God Bless, and hugs. Michelle Shereck <michelle.shereck@ndscs.edu> Wahpeton, ND USA - Monday, September 12, 2005 12:30 AM CDT Hello Holly, Maddie and family. It's just me again signing in from Canada. It sounds like everything is going well. Congratulations on getting your ears pierced Maddie and Donovan, enjoy your day with the tractors. Know that you are all in our thoughts and prayers. Love Rebecca and Shelby Gagne Rebecca Gagne <rgagne@baminternet.com> St. Thomas, Ont Canada - Monday, September 5, 2005 9:13 AM CDT Hi Holly. Hope Maddison's first day of school went well; what a milestone! I can't tell you how happy I was to see your guest book entry. We really do not come across many children as young as Shelby with this form of cancer. I would love to hear from you. Please give me a call if you ever get a chance (519-637-7999). I know how hectic life can be. Take care for now and stay strong! Love Rebecca Rebecca Gagne <rgagne@baminternet.com> St. Thomas , Ont Canada - Tuesday, August 30, 2005 9:24 PM CDT Hello Maddie and family. You are all such an inspiration to me. My 2 year old daughter Shelby, was diagnosed with Ewing Sarcoma (stage 4) in early April of this year. So far, she has completed 7 rounds of chemo (14 total) and 25 days of radiation treatment. So far, so good. Please visit her website as we always like to make new friends. www.caringbridge.org/visit/shelbygagne Looking forward to hearing from you soon. Love Shelby, Rebecca (mom) and Carol (Grammy) Rebecca Gagne <rgagne@baminternet.com> St. Thomas, Ont Canada - Saturday, August 27, 2005 5:52 PM CDT WOOHoo!! First day of kindergarden.. i never spell that right.. anyway.. CONGrATS!! :) how does it feel?!! that smile on your face maddy brings sunshine...to tonite.. haha :) HI cutie Donovan!! How are you? I hope you are ALL doing well!! I miss you both! Keep smiling :) ziggy <pinayskye@msn.com> aurora, Il USA - Thursday, August 25, 2005 9:10 PM CDT  BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, August 21, 2005 10:47 PM CDT Hey Maddison! Just stopping by to say hello! I hope you enjoy the rest of your summer!! ~*~*Girlie's Page*~*~ Lots of Love, XOXOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Sunday, August 21, 2005 8:27 AM CDT  Love Viks       viks <viks@postpals.co.uk> - Friday, August 19, 2005 11:49 PM CDT hi, so how is everyone? still recovering from your trip? how are the little darlings and you handling the heat? i understand it became even worse after we were home. hope all is well with the family. thinking of you so had to drop a note. love and kisses, pam pam raymer <pam raymer @ caringbridge.org/wi/christopher> Beloit, WI usa - Saturday, August 6, 2005 11:07 PM CDT good morning you happy travelers, i thought i would crack up reading your journal. i felt such relief that my husband was not on the road at that time. according to him, he is the only sane driver on the road. we beg to differ after our trip. i would have loved to spend time with you and your family in the dells. that is kind of our summer stomping grounds. there areo many deals you can get. i hope you found a motel that gave you free tickets. we often stay at the motel that gives tickets to the amusement and water park. during the day the kids can swim and in the evening ride go carts and the rides. plus...the advantage of it being right next door. we do not have to go with them now that they are older. we can never go anywhere with just our family. there are always at least 2-3 kids with us(who are like family anyway). you are right....what a beautiful trip on the boat. i grew up in that area and like i said, we go all the time. the most beautiful scenery. you never tire of it. i am sorry to hear of your troubles while driving. i felt that way while we were on our trip as well. the speed limits did not apply. i have to admit that the exiting problems did not happen. kids can be so stupid. i hope all in all that everyone had a great time and it was nice to be together again once the anxioty of the drive wore off. milwaukee has a very nice zoo too and camp snoopy is fun for the kids. for as many times as we have been to mall of america i cannot spend any money. i treasure walmart, the carts, and the prices. jeff gave me $500.00 once at mall of america and he took the kids to camp snoopy. i came back 2 hours later with every penny. trust me....he never did that again. happy to hear you are all fine and thanks for your letter. kisses to your babies and hugs to you, love you, pam pam raymer <pam raymer @ caringbridge.org/wi/christopher> Beloit, WI usa - Thursday, July 28, 2005 8:57 AM CDT  BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Friday, July 22, 2005 1:39 AM CDT Hey Maddison! CONGRATS on your clear scans!!!! What superb news :) Keep up the great job, sweetie... thinking of you! **~~HAPPY FOURTH OF JULY!!!~~** ~*~*Girlie's Page*~*~ Love always, XOXOXOXOXOXOX Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Monday, July 4, 2005 7:09 AM CDT So glad to hear the scans were clear!! What a relief for the entire family! You continue to be in our thoughts and prayers. Renee Myhra - Make-A-Wish <rmyhra@northdakota.wish.org> ND - Wednesday, June 29, 2005 10:33 AM CDT   EDMONTON,ALBERTA CANADA, - Monday, June 27, 2005 9:44 PM CDT Woo Hoo Great news for all of you. When Maggie goes to camp in the summer, all I usually do is work. This year I think I will sleep. How's that for plans. Cindy and Maggie Cindy Nelson-Maggie's mom www.caringbridge.org/wi/maggie Milwaukee, WI - Monday, June 27, 2005 7:26 PM CDT I have already started praying and sending positive energy to you and Maddy for the scan-a-palloza. That is what Maggie calls the big scan days. Hope all goes well. Cindy and Maggie Cindy Nelson-Maggie's mom www.caringbridge.org/wi/maggie Milwaukee, WI - Thursday, June 23, 2005 11:45 AM CDT Thinking and Praying for you always. Sending lots of love your way. EDMONTON,ALBERTA CANADA, - Tuesday, June 21, 2005 4:04 PM CDT hi maddy and family, what a beautiful picture! happy to hear your rain has finally stopped and wishing we could see more than just a few drops. we sure have a yellow yard! i so loved talking with you holly. i am hoping spirits are a little higher. i am thinking of you so often. tomarrow is clinics and we must make another decision on radiation for chris. the tumor board could not decide. his heart problems that he had during transplant are a huge factor. another decision! i wish someone would have a 100% agreement and answer for us on any of this. oh well, whatever it takes to never see that thing again and chris to have a healthy life. maddy looks so cute!! i hope she is able to get out in some decent weather. is your trip to milwaukee still being planned? let me know. i will try to call soon. thanks for all the time on the phone. it is so nice t hear your voice. hoping all is well with you and your family. loving thoughts and prayers, pam pam raymer <pam raymer@caringbridge.org/wi/christopher> beloit, wi usa - Monday, June 20, 2005 11:58 PM CDT Your trip and visit with Grandma sounds wonderful. It is dry as a bone here in Wisconsin. I am watering my flowers as I write this. Maddy looks so cute with her pigtails. My wish for her is that she doesn't remember much about her treatment when she is an adult. Wouldn't that be nice? Cindy and Maggie Cindy Nelson-Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Sunday, June 19, 2005 6:14 PM CDT I just wanted to check in and say hello! www.caringbridge.org/nc/ashleyr Ashley Reber <alrhm@dnet.net> Cullowhee, NC USA - Sunday, June 5, 2005 8:30 PM CDT hi everyone! just checking in and wanting to say hello. maddy looks so pretty in her outfit. i am imagining you are really going crazy with kids and life now. i am so happy to hear all is so well. love to you all. pam pam raymer <pam raymer @ caringbridge.org/wi/christopher> Beloit, wi usa - Friday, June 3, 2005 10:05 PM CDT wow Maddy - your eyes are so pretty! you look good. hope you're feeling well sweetie. did you get registered for kindergarten? I love your TUTU - hope to you see you this summer! minda <rexfiles@gra.midco.net> - Wednesday, June 1, 2005 2:36 PM CDT Hi HI HI!!! It seems that all is going more than very well over in ND despite the bugs, weird weather...etc.. anyway there was a Disney Send Off Meeting i just came from and all the alumnis had to come up and introduce themselves and share something...i told them what i did when i interned there and what i shared was the greatest moment i had and that was sharing an evening and part of the day with Maddy and Donovan...afterwards I had one of the moms come up to me and tell me that she was in tears when I explained that moment! I told her that the picture you sent me and the drawings the kids did and sent to me are hanging on my wall...and they are STILL AND FOREVER!! Well just thought I'd drop in and say hi.!! MISS YOU ALL! Take care!! Ziggy <pinayskye@msn.com> Aurora, IL USA - Tuesday, May 24, 2005 8:12 PM CDT Maddie looks GREAT!!!! I'm SO happy for all of you. What a huge relief to make it past the one-year mark. WOO HOO!!! Can't believe it's been a year already. And you're right about the ballet lessons .... two years ago you would've gladly paid $10,000 for them if you knew your daughter's cancer would be gone and she could enjoy being in it!!!! That's where we're at ... again. Wonderful news, wonderful pictures, wonderful memories!!! God Bless, Jodi Hansen http://www.caringbridge.org/mn/rachelhansen <FlyingCook@aol.com> Lakeville, MN - Saturday, May 21, 2005 8:42 AM CDT Just wanted to let you know that you are all in our thoughts!! Maddy looks so awsome with her beautiful hair! Renee Myhra, Make-A-Wish <rmyhra@northdakota.wish.org> Fargo, ND - Thursday, May 12, 2005 2:03 PM CDT hi holly and maddy, stopped in to say hello and i see...it is still snowing and it is still APRIL!!!!!! hope all is going well and i know you are very busy. we are going home friday so i am pretty excited. and nervous! hope your family enjoys their spring. i am going to keep checking on you guys! love and kisses to you and the family. pam pam raymer <pam raymer@caringbridge.org/wi/christopher> beloit, wi usa - Wednesday, May 11, 2005 10:35 PM CDT Congrats on your 1 yr anniversary!!!! How exciting for all of us!! I cant wait to put that in Jessie's web page!! The pictures are beautiful!!! Take Care Jackie & Jessie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver Dam, wi - Tuesday, May 10, 2005 1:02 PM CDT hi family, just stopping by with a big hug and hello to you all. just checking in and letting you know i am thinking of you. have a great day. love to you, pam pam raymer <pam raymer@caringbridge.org/wi/christopher> beloit, wi usa - Tuesday, May 3, 2005 10:02 PM CDT Oh Holly, the new pictures are so special. It is snowing tonight here....just flurries. Mags has completed her second round of chemo and lost her hair again. But I put fuschia streaks in it before it did. Hoping the recital was fun Cindy and Maggie Cindy Nelson-Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Monday, May 2, 2005 9:14 PM CDT Hey Maddie Mae!!!! Just stopping by the see how you've been. LOVE the knew pictures! You're such a cutie pie in that ballet picture (well, you're just plain adorable all time, but that pic really put a smile on my face). :) Good luck with your big ballet debut!! I know you'll be AMAZING!!! Holly - Thanks so much for stopping by my site and offering those kind words. That was very sweet. Your daughter's story (and I know you are a huge part of it, so that includes you as well) is such an inspiration. Stay strong and I will continue to pray for you and your beautiful family! Love always, Juli http://www3.caringbridge.org/oh/juli/ <crazygal8705@yahoo.com> Canfield, OH USA - Sunday, May 1, 2005 3:46 PM CDT Hello Maddison! I just found your page and I wanted to let you know I came by! We had snow yesterday as well here in Qc, Canada. But today was wonderful! Weird weather! Well, I wish you all the best for the future! Renee <dr.renfb@animail.net> Canada - Saturday, April 30, 2005 6:43 PM CDT Hi Maddy, While we are not strangers to your site (we have you bookmarked as a "favorite"), we just thought we'd just check in on you. This is Kevin Willis's Uncle Rich and Aunt Julie in Pataskala, Ohio. We are so glad to see you're doing well! "Priceless" is an understatement indeed! We pray for you and your family constantly as with the many other hero's, that you stay cancer free! We will keep on lookin' in on ya. Take care, Uncle Richard and Aunt Julie P.S. We loved the pictures! Richard and Julie <desilucy03@netscape.com> Pataskala, oh good'ol USA - Saturday, April 30, 2005 10:35 AM CDT AH!!! Snow.. i know we had a few flakes here in IL bOoo!!.. its been a crazy couple of weeks only because it was like 80 something then 30 something..it messed me up :T..anyway.. I love thosE NEW pictureS YOU PUT uP!! AHh you TWO ARE ADORABLE!! Have fun and BE AWEsomely GREAT on your recital Maddy!! this is a picture of ziggy at chuck e cheeses a month ago. i finally found it so id share it :)  hehe I miss you tWo!!! hi donovan!! still cute i see!! ziggy <pinayskye@msn.com> aurora, il usa - Wednesday, April 27, 2005 5:47 PM CDT hi maddy and family, just stopping in to see what's new and thank you for continuing to include christopher in your web letters and thoughts. big improvements in our baby. including the flu, but oh well. at this point.......why not? seems so long ago that i received that most wonderful phone call and heard your voice. i will never forget it. the first call from someone with a child who had ewing sarcoma and so close to christophers diagnosis. you saved my spirit at the time. now miss maddy is just an inspiration to our goal. could she be more precious? thank you so much for making her life and your families life available to keep us inspired and allow you into our hearts. i will always remember your voice when i was so desperate. i can't wait until the day my summer is busy with running kids again. kiss maddy and donovan for us. love to you all, pam pam raymer <pam raymer@caringbridge.org/wi/christopher> beloit, wi usa - Wednesday, April 20, 2005 6:29 PM CDT CONGRATULATIONS!!!! 1 YEAR CANCER FREE!!! WOOO HOOO!!! That's awesome sweetie!! I am just a "stranger" passing through. I was linked to your page through a friend's, so I thought I'd stop by and let you know I was here. You are such a little cutie and an inspiration to all of us. Keep kicking that cancer in the butt - you're WINNING!!! Know that you are in my thoughts and prayers! Love always, Juli http://www3.caringbridge.org/oh/juli/ <crazygal8705@yahoo.com> Canfield, OH USA - Wednesday, April 20, 2005 9:39 AM CDT hi. wow! congradulations on your year:) we are so happy for you and your family. that darn flu bug. it has been the hardest to get rid of along with lingering colds. it is another beautiful day here and we are enjoying it through christophers window. he is a pretty sick boy right now but being as strong as he always is. thank you for checking on christopher and us. we always keep maddy and your family in our hearts. i am sooo pleased. keep your spirit high and your beautiful light shining. love to you all, pam pam raymer <pam raymerridge@caringbridge.org/wi/christopher> beloit, wi usa - Friday, April 8, 2005 6:06 PM CDT Dear Maddy, We are so glad to hear that you had a good report! We will pray for your continued good health. Enjoy the spring weather and have fun! Kelsey & Karl Christian <kelsey.christian@sendit.nodak.edu> Finley, ND USA - Thursday, March 31, 2005 2:12 PM CST Congratulations on a year of remission!! Every little ache and pain cause the worry machine to go off for the moms of cancer survivors. You all hang in there. Thanks for checking in on Maggie. Cindy Nelson- maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Monday, March 28, 2005 10:35 PM CST YAY!!!! ALL CLEAR!! WOO HOO!!!!!!!!!!!!!!! YAY!!!! Maddy's one healthy smart funny and energetic lil girl!! YAY!!! :)!!!! *does a ziggy dance* ziggy <pinayskye@msn.com> aurora, Il USa - Saturday, March 26, 2005 9:19 AM CST May your Easter be blessed, very blessed. Stephanie & RachelJoy <mom2rj@comcast.net> - Friday, March 25, 2005 8:38 PM CST Hey hey HEy!! YAY donovan turning yet MORE heads his way WOW!! growing up so fast :).. THANKS FoR THE PICTURES GUYS!!ITS BEAUTIFUL!!! i love it a lot!! I hung it on my wall!!  so thank you donovan, maddy and holly for sending it to me!! it means a lot!!! well its almost 1230am here in IL and ive got to get up for work in a couple of hours so its nap time for ziggy!! Donovan can't believe yourgetting older!! you're going to make gurls crazy!!! maddy you should spike your hair :) how cool would that be?! (well not cool to your mom, but hahaha) this is a picture of ziggy when she was crazier and decided to cut her hair short  hahaha love it? anyway sleep is good goodnite!! ziggy <pinayskye@msn.com> aurora, il usa - Thursday, March 24, 2005 0:35 AM CST Hi Mommy & Wonder Woman, Just wanted to let ya know Jessie(4yr old ewing sarcoma l tibia) has had a horrendous cough, my other 2 have had high temps w/nasty coughs & ear infections too, just to try & reassure you a little...I know its not gonna do much, but.. Will say lots of prayers Maddy starts feeling better soon.. Jessie's scans are sch for April, I admit I was happy to get the chest xray done on her to rule out pnuemonia on Monday 'cause the cough is soo bad sounding.. Just wanted you to know I've been thinking of you guys & your in our thoughts & prayers!! Take care, Jackie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver Dam, wi - Wednesday, March 23, 2005 9:23 AM CST Hi Mommy & Wonder Woman, Just wanted to let ya know Jessie(4yr old ewing sarcoma l tibia) has had a horrendous cough, my other 2 have had high temps w/nasty coughs & ear infections too, just to try & reassure you a little...I know its not gonna do much, but.. Will say lots of prayers Maddy starts feeling better soon.. Jessie's scans are sch for April, I admit I was happy to get the chest xray done on her to rule out pnuemonia on Monday 'cause the cough is soo bad sounding.. Just wanted you to know I've been thinking of you guys & your in our thoughts & prayers!! Take care, Jackie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver Dam, wi - Wednesday, March 23, 2005 9:23 AM CST Hi Holly, This is Kevin Willis' Aunt Julie again and I was wondering if you could write to him again if you already have. We heard news on Thursday that Kevin's cancer is spreading rapidly. When they stopped the chemotherapy in December 2004 to do radiaton on his primary tumor in his left pelvic bone, the cancer has just gone everywhere. Kevin can't walk any longer because he has new tumors in his spine, skull, and rib cage. The doctor's have told Lisa and Greg that it is basically just a matter of weeks or months. Please write if you can to Kevin at www3.caringbridge.org/oh/kevin11. There are no words to say to families going through this as you know. You all become an extended family for each other which is wonderful. Any words of support or encouragement from you would be appreciated. If you know of any other families that have gone through this with Ewing's Sarcoma on the Caring Bridge website, would you please pass on Kevin's story to them too? Lisa and Greg need to know that other's understand their pain. Julie Slone <desilucy03@netscape.com> Pataskala, OH USA - Monday, March 21, 2005 5:56 PM CST hello to maddy and family just checking in to see how everyone is. i ams o sorry about your dogs. it is so true about saving a life and having to be part of taking one as well. thank you so much for adding us to your journal and requesting prayers. we are very anxious to be at an end. next tuesday we go for admittance for christophers transplant. all bone scans and ct scans were perfect. no sign of cancer. the only problem we have today is decay in his teeth, which we will go to madison and have checked tomarrow. just to be sure we can start on time. decay from all the sugar in meds and the fact that jeffs family have very soft teeth and problems at a younger age. i am so greatful for maddy. it sounds as though, other than lives normal trials she is doing well. thank you GOD! your husband is only about an hour or less away from beloit when he goes to milwaukee. well, love to all. i have to take chris to clinic for labs. have a great EASTER and know that we think of you all often. pam pam raymer <psraymer@charternet.com> beloit, wi usa - Monday, March 21, 2005 1:24 PM CST Hi there Maddy and family...big hugs and a wave from England. Sorry to hear about your troubles with the dogs. I know Kody's family were heartbroken when their dog Boomer rang away. I hope your runaway returns! HelenH <geordielass999@hotmail.com> IS YOUR FAMILY KICKIN' CANCER'S BUTT?, - Friday, March 18, 2005 7:07 PM CST Hi Maddison and family, my name is Julie Slone and my nephew Kevin Willis was diagnosed with Ewing's Sarcoma in February 2004. I am SO happy to hear that you are all doing well and that Maddison is cancer free! You are so lucky and blessed! I have been monitoring the esbabies.com website for a year and noticed that you had a Caring Bridge website. I was wondering if you would please write to Kevin and his family on his Caring Bridge website. Unfortunately, Kevin has not been able to beat his Ewing's Sarcoma and it continues to spread. His website is http://www3.caringbridge.org/oh/kevin11/. Please write if you can and are willing because we need your support and prayers. I hate this cancer and what it is doing to Kevin and his mother and father. He also has a little sister Emily who is 4 years old. I know you understand more than I can ever because you have lived it as a parent. It is so scary, but I am so happy for your family. I hope our outcome will be the same as yours, but it isn't looking that way. Julie and Richard Slone <desilucy03@netscape.com> Pataskala, OH 43062 - Thursday, March 17, 2005 5:30 PM CST Hi. I came across your webpage through the banner site that my friend Amy's banner was made from. My name is Brittany. I am 15 y/o. I had Ewing's Sarcoma too. I had it in my femur. I was diagnosed when I was 10. I don't remember how much chemo I had, I think 14 or 15 rounds. And I had 6 sugeries total to get rid of it. I just thought I'd stop in and write you a little note. I hope Maddy is feeling better. I hated being sick and in the hospitial all the time. When I was sick, We too had to put our 14 y/o husky to sleep. She was just too old. It was tough, and I know how you all must feel. Losing a pet is very tough. And losing 2 pets so very closely must be even harder. My prayers are with you and your family in your time of need and I hope Maddy will feel better soon. Brittany Rezmerski <GitchieGurl07@yahoo.com> Duluth, MN USA - Tuesday, March 15, 2005 6:05 PM CST I am sorry to hear about all your sadness lately. I had a similar experience after my sister passed away and found that alot of my grief and bellowing had nothing to do with the death of my pet , but really had to do with a lot of pent up grief from many other things that had happened in my life. Unfortunatly "stuff" happens in our lives , but I found that it was a blessing to be able to let go of all the junk I had been carrying around with me and that God found a perfect friend (animal) from my life to take that grief and pain with them when they left this world. I certainly don't pretend to know if this is the case in your life .. but it was just a thought I wanted to share. I will pray for brighter days ahead. Jo - Tuesday, March 15, 2005 12:44 AM CST Hey Maddy & family, So sorry to hear of your dogs :( It is soooo sad when our pets die. I know some people who don't have pets can never understand why we get so sad and emotional when our pets die...but we do. They were such a part of our family!!! I was so depressed for 2 weeks when my dog, Trixie, died nearly 4 years ago. Anyway, just wanted your family to know I'm thinking of you guys... ~*~*Girlie's Page*~*~ Love & Prayers, XOXOXOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Sunday, March 13, 2005 5:28 AM CST imn sorry to hear the loss of your dogs and the other medical attention..:( its all too much for one family to have to go through keep your spirits up! ziggy <pinayskye@msn.com> aurora, il usa - Saturday, March 12, 2005 8:21 AM CST It is wonderful to hear that Maddy is doing well. We do understand your fear of each doctor's appointment. That thought always lingers in the back of your mind no matter how you try to get it out but you just have to hold on to the faith. Britt goes in for her spinal tap tomorrow again and another chemo treatment. Even though it is only once a month now and not every week, the fear is still always in our minds too. She has only seven months left to go and the chemo will be done (after two and a half years of it). Just know that you are in our thoughts and prayers and Maddy has and will continue to kick this. Take care and God Bless all of you!!! David, Diane, & Brittany Wells <doubled@polarcomm.com> Larimore, ND - Wednesday, March 9, 2005 8:36 AM CST Wow I rarely come across the word remission in any of the updates I read. Your journal brought some faith back to me or should I say hope. Maddy is beautiful and thank you for sharing your princess with so many. I pray that you continue to have good results and deal with just the every day complaints. You are an inspiration to many parents out there!! Kelly <kellymann@grandecom.net> Waco, TX - Tuesday, March 8, 2005 11:14 PM CST Hello, Maddy & family! I haven't written to you before, but have been keeping up with your progress through friends...one of them being Lance R. from Finley. You are a brave little girl and I'm so glad to hear that you are feeling well and livin' life! Jesus loves you and he'll take care of you...no matter what! Keep smiling...you're sure a sweetie! Kelsey Christian <kelsey.christian@sendit.nodak.edu> Finley, ND USA - Tuesday, March 8, 2005 1:40 PM CST HI Maddison and family, it has been awhile since I have gotten around to your page, but I am thrilled to see you are doing so well and LOOK GREAT! Love the picture on your main page! Keep it up and have a great, wonderful spring (coming soon)! I share the difficulty with scans every 3 months, but I try to remember, one day at a time, just the same as those difficult treatment days. God bless. Liz Larson and family <lizlarson@cox.net www.joshuasjournal.org> Waterloo, NE US - Sunday, March 6, 2005 8:38 AM CST Hey hey hey!! Wow im glad everything is going great now!! That's soooo awesome!! Yay Donovan turning 7!! yay!!!!! we've experience one of those days this past week..where its sunny and bright no wind a mild 45-ish degree weather..it was perfect..until it started to rain...as long as its not snowing anymore...thats fine with me! its not much of a spring break for everyone if its still snowing..the rain we can handle but not when its around 30degrees.. anyway Hi maddY!! ziggy says hi! how have you been?? im almost done with my school quarter..then its springbreak in two weeks. my friend called me earlier today and she was heading out to Florida, and Oh how i envied her!!! but thats okay i hope to be there soon enough myself and meet GREAT and WONDERFUL cuties like you and your brother, so then i'll have some more fun making memories! Keep your head up high, keep on smiling!! Ziggy <pinayskye@msn.com> aurora, IL UsA - Sunday, March 6, 2005 0:19 AM CST hi to maddy and family, needed to stop in and check on you all. maddy! you look SPECTACULAR!!!!:) your children are so beautiful. i am so happy to hear everything is going well. it does my heart good. keep shining. your spirit is strong. love to all! pam raymer (christophers mom) pam raymer <psraymer@charternet.co> beloit, wi usa - Tuesday, March 1, 2005 11:52 PM CST Hello, my name is holly sullivan and my daughter's name is madison also. madison was diagnosed with leukemia when she was 7 months old. now she is 16 months old. we are still in the hospital all the time but the chemo is working. i seen your website from josh's website. your kids are beautiful and im glad to hear they are doing great. It is amazing what kids go through and they act like its no problem. i hope everything continues to keep getting better. you all are in our prayers and God Bless You All. Madison's webpage is www.caringbridge.org/tn/madison Holly <holly_sullivan21@yahoo.com> Spencer, TN - Sunday, February 27, 2005 11:15 PM CST YAY more pics!! Wow maddy's hairs been growing!! thats good!! and Donovan looking ever so handsome around Christmas time! Happy BirthdAY madDY! i know its late... :(... I LOVE CHUCK E. CHEESES..i was just there tonight :) haha it was a lot of fun!! ziggy <pinayskye@msn.com'> aurora, il usa - Thursday, February 24, 2005 11:27 PM CST To Little Miss and family, Long time no talk. I see through Maddy's pics, she looks better. I hope she feels that way as well. How is everything? To Maddys mom: May God give you the courage and strength as each day goes by. Take Care and God Bless cindy <cindyt14@hotmail.com> - Thursday, February 24, 2005 10:18 PM CST Hope despite everything your soon feeling  Love Viks viks <viks@postpals.co.uk> - Saturday, February 19, 2005 12:43 AM CST  Amber & Kaidrie <utahmomto2@aol.com> SLC, UT - Monday, February 14, 2005 3:08 PM CST oh no!! the pictures didnt show, i was waitin for new pics!! cant wait to see the drawings maddy and donovan made me :) ziggy <pinayskye@msn.com> aurora, il usa - Sunday, February 13, 2005 9:22 PM CST I'm so sorry you are in bed with the "mommy crummies". It always seems to take me 2 days to get back on track for every 1 day that I'm sick. I'll be praying that your recovery is swift and complete. What was the doctor thinking when he wrote that letter??!! Maybe he's glad because he needs to finish paying off his private island in the Carribean. YIKES We will continue to pray for you and your family, and of course, that Maddy stays in remission forever. Stephanie & RachelJoy <mom2rj@comcast.net> - Saturday, February 5, 2005 5:52 PM CST I am so glad to read that Maddie is in remission!! What a cool word,huh, next best thing to "cancer free"!!! I have a 4 1/2 yr old who has just officially been deemed in remission!!!!(ewing sarcoma L tibia stage 2 no mets) I just read your journal entry. Did you ever hit the nail on the head with being done w/treatment... I am soo glad we are done with chemo & radiation, yet there is some kind of comfort knowing that that horrid poison is killing the even more horrid cancer mets running around in our babies bodies. So crazy... I don't think we ever will be normal again.. We just have to face our new normal I guess....I was already a crazy control freak Mom before ewings, now... Yeah you guessed it I'm ready for the looney bin...Well I just wanted to let you know you are so NOT alone in your feelings... I will stop in again to say "Hi" & see how you all are doing!!! Take Care Give "Super Women" a big hug for me!! Jackie <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> Beaver Dam, wi - Saturday, February 5, 2005 3:01 PM CST L hello maddie! you are so very pretty & special! never forget how much you are loved. love, shannon Tumbleweed Foundation <leddedchic@yahoo.com> Pennsylvania - Friday, February 4, 2005 10:41 PM CST Hello, and Happy Birthday Maddy, from my son Christopher and my wife and I. I check in once and a while to see how you are doing and find so much comfort in knowing you are " Kicking Cancer's Butt" My two and half year old Son has a stem cell transplant coming up in March and we hope to be where you are by mid summer. His Ewings sarcoma tumor in his chest was removed almost one year to the date from Maddy's. We can see the light at the end of tunnel but are starting to get really wore down. Stay strong and beautiful Maddy and again Happy Fifth Bithday. www3.caringbridge.org/wi/christopher Love, Jeff Raymer (Dad) Jeff Raymer <jdraymer@charter.net> Beloit, WI USA - Wednesday, February 2, 2005 11:41 PM CST Happy Birthday, Maddison!!! I hope you had WONDERFUL and SPECIAL day, sweetheart :) I'm sending you lots of birthday hugs and kisses.... ~*~*Girlie's Page*~*~ Love always, XOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Friday, January 21, 2005 5:20 AM CST  Sorry I'm a day late but I just discovered your website. I hope you had a VERY Happy Birthday, Maddison!! I'm sending BIG Birthday (((Hugs))) from Michigan. Candy from Hugs & Hope <zacheric02@msn.com www.hugsandhope.com> Livonia , MI XOXOXOXOXOXO - Wednesday, January 19, 2005 8:34 AM CST Hey Maddison! Just wanted to say hi! You're such a cutie! Glad that you're doing ok. Hope your birthday will be great!  ~Joanne’s Corner~  Care Mail! Joanne <joanne_173@hotmail.com> - Sunday, January 16, 2005 9:07 AM CST I talked to Belle for you Maddy and she says hi and she is glad you are doing well and are cancer free!! As for the other situation she wishes you the best and she knows ull do fine!! Hi donovan!! :) ziggy <pinayskye@msn.com> aurora, il usa - Saturday, January 15, 2005 4:42 PM CST So happy for all of you that Maddy is cancer free! I'm sorry that she's going through all of that with her kidneys though. And... as for Penney's getting shopping carts... PLEASE don't even suggest it. LOL... I've worked at Penney's for 2 1/2 years now and it's bad enough when people bring Sears carts through the mall to our store and then allow their children to play "let's see how many elderly women we can run into today" with them (UGH!) haha I can't imagine having carts in there all the time. And yes... those 70% clearance sells are WONDERFUL! God Bless! Rachel K. <Storm844@aol.com> Lexington, ky usa - Friday, January 14, 2005 11:31 PM CST I'm sorry I haven't checked in in awhile--so good to hear about Maddie being cancer free AND a well-behaved child! I'm afraid I have an angry little child on my hands right now and wonder how much will go away once she is off treatment. Sorry about the kidney situation, you sure have a great attitude though! You'll have to sneak a few raisins for yourself another time, since you lost your supply! Take care! Lori, Lyza's mom www.caringbridge.org/canada/lyza Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Tuesday, January 11, 2005 11:07 PM CST YAY she's cancer free!!! WONDERFUL!!! I miss you Maddy and Donovan! ziggy <pinayskye@msn.com> aurora, il USA - Tuesday, January 11, 2005 8:40 PM CST Greetings all! 1st I would like to say that it was sooooo fun to get together with you guys and visit and laugh and share. Was good for the soul! Memories for a lifetime (or as long as the memory works). 2nd I am sure sorry to hear about the new issues with Maddy. I will keep praying that this too will pass and she will be fine. As for the "cancer free brat", you are right she is not one of those. For the most part mine isn't either. Of course my could be teen stuff too. uuggghh! We hope to make it this weekend and have more laughs and good memories. The kids are looking forward to it. Keep the faith! "Believe" and ye shall prevail! See you soon! Michelle <mshereck@ndscs.nodak.edu> Wahpeton, ND USA - Tuesday, January 11, 2005 12:18 AM CST Just want to say "Hi" got your webpage from the childhood cancer calendar 2005. Donovan good job on your picture for the month of October. Maddy I love your dress & head piece you had on in the picture on the calendar. Holly I would love to read your speech that you give Make-A-Wish Gala if you have it on your computer. So glad to read Maddy is doing good. Faith, Hope & Cure. Lou/grandmother to Josh(12)neuroblastoma www.caringbridge.org/page/josh Lou <skiptolou@juno.com> KNOXVILLE, TN USA - Saturday, January 1, 2005 8:54 PM CST Hi Maddy, I hope you and your family had a beautiful & blessed Christmas! MERRY CHRISTMAS & HAPPY NEW YEAR!!!! ~*~*Girlie's Page*~*~ Love & Prayers, XOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Sunday, December 26, 2004 7:40 PM CST Hi Maddy and Holly. I just wanted to let you guys know I still visit Maddy's webpage all the time, and Maddy your never far from my thoughts. You are such a strong little girl. Just wanted to wish you guy's a very Merry Christmas, and a happy healthy New Year. Your always in my thoughts and prayers. P.S. I love the new pic!!! Kaeleigh xo <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Thursday, December 23, 2004 9:10 AM CST  Amber & Kaidrie <utahmomto2@aol.com> SLC, UT - Wednesday, December 22, 2004 1:16 AM CST Have a great Christmas!! www.caringbridge.org/nc/ashleyr Ashley Reber <alrhm@dnet.net> Cullowhee, NC USA - Friday, December 17, 2004 7:55 AM CST http://img.photobucket.com/albums/v503/kidwellk2002/xmasprepare201.gif  [IMG]http://img.photobucket.com/albums/v503/kidwellk2002/xmasprepare201.gif[/IMG] karel (caremail) <kidwellk2002@yahoo.com> annandale, va - Thursday, December 16, 2004 7:57 AM CST Wow..its been so long and i apologize!! Been busy with finals and work..so hi!!!! I miss you guys!! I see your halloween pics are up awww Maddy such a cute princess, and Donovan hehe..shoulda been a prince and instead of taking candy from people u ought to be giving like...lil plastic flowers to cute lil girls... hahhah..JUST an IDEA..why plastic instead of real?? Well..its becoz i believe when i was littler (i know thats not a word but it'll have to do)..when i was littler, i either dreamed it or it really happened but a lil boy (who almost always got ME in trouble) gave me a flower sayin "..it's plastic so it'll last forever..." awww aint that cute?! well i should get back to my finals here i hope to hear from you soon!! ziggy c <pinayskye@msn.com> aurora, il USA - Thursday, December 9, 2004 9:02 AM CST Hey Holly, Madison, Donovan and family! So are you taking in any of the World Junior Hockey Championship games?? I'm so completely jealous! If it wasn't right after Christmas, I probably would have hopped into my car and did the 3 1/2 hour drive to take some of it in. Back in the 1999 World Juniors here in Winnipeg, I supervised the statisticians for all 14 games played at the Winnpeg arena, and for a big hockey fan like myself, it was the BEST! Wishing I was a North Dakotan right now, Terry Josephson, Julianna Banana's dad <tjosephson@shaw.ca> Winnipeg, Canada - Thursday, December 9, 2004 0:47 AM CST Just stopping in to check in on you all. I have to agree with your assessment of the end of treatment. Maggie passed her one year off treatment last month. I can tell you that the experience of all of this has changed all of us . Hope your holidays are wonderful, and that the family stays happy and healthy Cindy Nelson-Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI 53217 - Monday, December 6, 2004 7:07 PM CST Hi Holly & Maddison, Just checking in to see how things are going :) It's great to hear Maddy is doing well and that the doctors think so too...keep up the wonderful job!! I'll be saying some extra prayers for Donny...take care! ~*~*Girlie's Page*~*~  Love & hugs, XOXOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Thursday, December 2, 2004 5:22 AM CST That picture of her on the front page is too cute. I will keep her in my prayers. Tina-www.caringbridge.org/md/lance <lneonkia@comcast.net> - Tuesday, November 30, 2004 12:22 AM CST hello to holly, maddy, and family! just a note to say hello and wish you all the nicest of holiday. sorry i am a little late. hope all went well with maddys surgery. i agree. i hate being by myself when chris has anything done too. i am lucky that jeff comes quit often. i am not going to ramble on, just want you to know how often i think of you guys. this has been an incredable journey for christopher with so much more to go, and i use maddy as my sons living angel every day. there are so many children we can look up to. hope all is going well with everyone. thinking of you soooo often. hope your thanksgiving was the best. my daughter samantha would like me to say hello and that she is thinking of you all as well. love to everyone, pam pam raymer <ps.raymer@aol.com> beloit, wi u.s.a - Saturday, November 27, 2004 0:34 AM CST Happy Thanksgiving Maddison & Donavan! Nater Gapa www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com> Lyndonville!, NEW YORK ***USA*** - Thursday, November 25, 2004 9:36 AM CST Hi Guys!!! I don't know if you remember me, but this is Katie Differding. I moved to the Cities last December and I finally figured out how to see how Maddie is doing - her web page - duh!!! I am so happy that Maddie is Wonder-Woman and kicked cancer's butt! Keep up the good work Maddie. I think of you all often and wish I could see you sometime. I hope to sometime move back to Fargo and work with Dr. K again. Right now I am at Fairview University Children's Hospital in the PICU in Minneapolis. It's going well, but it is not hem/onc in fargo. Well, I was at the coffee shop and got to play on a computer for a while and thought I would say "Hi" Hopefully we will talk to you soon. Email me anytime if you want. Maddie, I miss you so much and think of you often. Take care and I will write again soon. God Bless and my thoughts and prayers are with you all. Katie Differdding <kjdiffer@yahoo.com> - Sunday, November 21, 2004 10:40 AM CST Whew! Haven't been on my computer for awhile so when I read "surgery" it scared me. Glad to hear that it was for a normal "ear tube" surgery as I know lots of kids with those. Sorry you can't eat the things you like right now, but I'm sure mommy can find some good ice cream. You are quite funny Maddie and your specific ways you like things will benefit you some day. God bless all of you and celebrate the holidays in a big way! Alway in our prayers! Liz Larson and family <lizlarson@cox.net www.joshuasjournal.org> Waterloo, NE US - Friday, November 19, 2004 11:43 PM CST Hey Little Miss & Mrs. Williams, I hope you got my card. I was praying for Maddy all week. I hope she's doing better. Even though I may never get to meet Little Miss, she's always in my heart. I went up for prayer for her this morning at church during alter call. With God, all things are possible. I was reading something when I thought of her--Jeremiah 29:11. Hope all is well. Take care. luv cindy :-) cindy <cindyt14@hotmail.com> houston, tx - Sunday, November 14, 2004 9:57 PM CST HUGS HUGS HUGS to georgeous Maddy for the surgery today. You are ALWAYS in my heart from your Sunshine Sabrina hugs to Donovan and to you all Sabrina <morini@agriflex.it> Forlì, FC Italy - Friday, November 12, 2004 11:47 AM CST I am praying for our Maddy.. and for you. I wish I would have read your entry last night, or talked to you.. I would have been with you.. Of course if I left now.. you would be leaving the hospital before I could get there. I love you guys.. Pam <pterfehr@aol.com> Christine, - Friday, November 12, 2004 8:28 AM CST Hi Holly, Let me know when Maddy is having surgery so that i can maybe stop up. Just had my 6 month check up and everything is good! Take care and give Maddy a BIG hug! Love Emily Emily Campbell <emerz5@cableone.net> Fargo, nd usa - Thursday, November 11, 2004 1:01 PM CST Hello Holly, We are continuing to pray for you. The aftermath seems to last longer than the treatment (experience has taught me that) but the hurtles don't seem to be quite as big when in comparison to previous endeavors. You and family have endured a great deal, and look at your success of that. You will be able to over come the obsticles that are here and that come in the future. Concentrate on that, although easier said than done. Good luck with the upcoming surgery. It will be a piece of cake and she will be up and around in no time. As for the hair thing....we too experienced that. To this day Lindsey doesn't like to where a swim suit in front of people and has a hard time even wearing short sleeve shirts. We have always stressed that God makes everyone a little different and that she is just EXTRA special. God knew that she could cope with what ever he gave her. As for the hair and not wanting anyone to touch it. Well you seen how long Lindsey's was. She wouldn't let anyone touch it hardly yet and that was a while ago. After we cut it for "Locks of Love" she has been a little better but that is 7 + years out. Keep the faith mom, she will come thru. Considering the two kids are acting like kids (teasing back and forth) I would say CONGRATULATIONS!! You have some "normalcy", just enojoy the moment. Now for you, you need to find a relaxation activity for you. Even if it is a 10 minute bubble bath. Remember that if you are run down, it is more difficult to be at your best. And you are one of the BEST!! Give hugs to everyone from us and an extra one just for you! Keep us posted as to surgery dates etc and other events as you have time. God's peace! Michelle Shereck - cancer survivor's mom <michelle.shereck@ndscs.nodak.edu> Wahpeton, ND USA - Thursday, November 11, 2004 11:19 AM CST Hi just wanted to let you know I am praying for you and thinking about you.  Jessica'sPlace Jessica <barbiegirljessica@netzero.com> - Wednesday, November 3, 2004 5:43 PM CST I'm stopping by to see what's new, (and goodness, you've been busy!!) We continue to pray for your family. Stephanie & RachelJoy <mom2rj@comcast.net> - Saturday, October 30, 2004 10:45 PM CDT My dear Holly, when I woke up this morning, the first thing that struck me was the date. I obviously had thought about this anniversary before in the last days but today, the actual date, memories flooded back so vividly. I so perfectly remember living this date last year constantly thinking of Maddy undergoing her life saving major surgery, of Donovan so far from you all, so fearing for his sister's life, of You and Donny, having to drop your princess on that operating table. I remember phoning late in the day with my heart racing so very very fast. I remember the huge unspeakable reliefe when we read uncle's journal. I particularly remember so longing to be able to help in any way. I will never forget this date. I therefore wanted to write to you today, to remind you all of how much I love you and cherish you in my heart. Tonight, Anthony and I will open a bottle of sparkling wine in your honour. (...Sorry Donny, I wish I'd sent you some so you could do the same...I will try and make up for it a.s.a.p.). Hugging you all tight. Hugs to your whole extended family as you all remember this anniversary. LOL p.s. Donovan, I love your drawing ! Sabrina <morini@agriflex.it> Forlì, FC Italy - Thursday, October 28, 2004 9:28 AM CDT Attention all Maddy and Donovan fans: the Childhood Cancer Recognition 2005 Calendar, with Donovan's (October) picture in, is now available at This address It is priced at $20.01 because you get to send a coupon to your friends after you've bought it, where if they spend more than $20, they get $5 off....that's the reason for the bizarre price! $5 from the sale of each calendar goes directly towards buying items for caringbridge children. We have actually just sent a poster to Connor out of the money, so it is benefitting the kids close to our hearts! For information on what we have bought so far for the kids, just Email me...I'll be happy to let you know! HelenH <geordielass999@hotmail.com> uk, - Wednesday, October 27, 2004 6:56 AM CDT Hi, I am a caringbridge person too. and I have met so many people through these websites. I am amom of five kids and I have cancer...I've been fighting for five yrs. I like you know too much, the stats, the survivalodds, too much. I try to stay positive for my family. But we all know, espec. those that can read, too many people who succomb to the disease. Or are freed fr om it. I am glad your daughter is doing well. I know it is a tough disease she has. Praise God and live it up. taj brown, austin,tx p.s. it is nice and warm down here....I can't imagine snow..This is our best time of year:) 60's and 80's. though we could stand a bit more rain. We will run around in costumes, maybe flip flops NO coats here....for Halloween. I like you, do love the cozynes of Christmas and after all you've been through, cozy sounds good, doesn't it? God Bless you Taj Brown <txdagwoods@austin.rr.com> CEDAR PARK, tx usa - Monday, October 25, 2004 10:00 PM CDT im sorry to hear about your story! I was just searching along looking for answers to a paper i have to write about bone cancer. Then I came across this page and thought i would check it out. This really makes me look at things diefferently. Jessica Fiorentino <Beautifulbabe424@aol.com> Elkhart, IN United States - Monday, October 25, 2004 8:52 PM CDT Hi guys, I know you are having trouble with your internet. I didn't know if you're having trouble with the E-Mail so i thought I'd drop you a guestbook. I would appreciate it if you could let me know whether you might be able to send Donovan's picture for the calendar by Friday 29th? I am trying to leave it as late as I possibly can for you guys because I know you have had other things to worry about but if yo don't think you can get it to me by then, can you let me know. I'll need to ask another family if I haven't heard from you by about Wednesdaynight. I just hope you get this! I've kept october for you gus if that's ok...it's the last one left! Hope to hear from you soon HelenH <geordielass999@hotmail.com> uk, - Monday, October 25, 2004 6:34 PM CDT Hi Holly, Maddie & Donny ~ sorry I haven't been keeping in touch with you guys. I think about you guys often. we are in Minneapolis, heading to Mayo tomorrow morning for an appt for Jackson. Sorry to hear about your dad Donny. I will keep you guys in my thoughts and would enjoy seeing you guys sometime. I think you should be a princess for Halloween Maddie, because you're just too darn cute to be a witch. Unless your a good witch! minda rexine <mewarcken@hotmail.com> mayville, nd - Sunday, October 24, 2004 8:36 PM CDT ...still holding my breath...where are the new pics ?!?!?! Ok, I'll let you off the hook, boy I'm good to you. So, yes, I know it's Saturday; how come you are reading from me ? Well, the huge emergency job I was taking care of last night, could not all be done yesterday (although I did get home at gone 9 p.m.). So, I had to come back today for another 3 hours to attempt finishing it. The kids are at the airport with Anthony and will have lunch at my parents. Good for them, eh ? I'm stuck here with just paper ! Well, I really hope you can have some relaxing time this week-end and some fun, too. Always in my heart, take care. LOL & HUGS P.S. lefse sounds very good...get a crate over by UPS on time for by birthday, thank you sis, I know I can always count on you. Hugs to your jewels and Donny, too. Sabrina <morini@agriflex.it> Forlì, FC Italy - Saturday, October 23, 2004 7:25 AM CDT Hi all, just to let you know the calendar is almost done. I was thinking, to make it easier for you guys, we still have October free if you'd like to send a halloween drawing as your part of the calendar (I didn't know whether you might have one around the house with it being that time of year!). If you've already done another picture that's cool too though. Sounds like you had fun on the Make a Wish! Love to all HelenH <geordielass999@hotmail.com> uk, IS YOUR FAMILY BUSY KICKIN' CANCER'S BUTT? - Wednesday, October 20, 2004 5:45 PM CDT Hi Maddie and family, sorry I haven't checked in on you lately as our life also seems to be on fast-forward. I am glad to hear that Maddie is enjoying life again and being a kid once more. We keep her in our prayers as we do all the children that "need" to stay in remission and be cancer-free forever. There are just too many children that have to fight this terrible thing called "cancer". Hang in there and we will pray that things settle down a little bit and your health improves, as life is hard enough without the extra aches and pains. God bless. Liz, Jay, Justin, Tanner and Joshua Larson <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Tuesday, October 19, 2004 10:08 PM CDT OH wow--I admire the strenght you have, that you had-have-and will keep having for everyone. I wish I had that strenght itd be put to good use! I know you've been hanging on there and maybe its time for you to get some R&R specially for what you've been through, all of you!! There's really nothing I can do to change much in life, but maybe I can give you something to smile about!  this is me when i was in high school..i thought i looked COOL! what do you think Maddy and Donovan?!?! What shall I be this year do you suppose? ziggy <pinayskye@msn.com> aurora, il usa - Tuesday, October 19, 2004 1:44 PM CDT Oh my, I was holding my breath so tight hoping to see new pics...I need a pile of lefse...(I actually do not know what they are)...any chance to come round for some ? OK, now you can relax, I have not booked a ticket or anything and I am not going to just appear at your door, drooling for some good food...! Lots of hugs to the Witch/Princess and to Spiderman and to Donny. Huge hugs flying your way from (very gloomy) Italy. your dearest sister Sabrina <morini@agriflex.it> Forlì, FC Italy - Tuesday, October 19, 2004 6:12 AM CDT So glad to hear that Maddy is do Great!! So sorry to hear of your lose tho and glad that you had those last hours to be with him..I know that you will charish them forever. Take care and God Bless;today, tomorrow and forever..your friend, Kathy E <ellingsn@polarcomm.com> - Monday, October 18, 2004 4:46 PM CDT Ggood news and bad news this time. SOrry to hear about your family's downs...but very pleased to hear Maddy's recent cancer news. Love to all HelenH <geordielass999@hotmail.com> uk, IS YOUR FAMILY BUSY KICKIN' CANCER'S BUTT? - Thursday, October 14, 2004 5:58 AM CDT Island Princess here to wish you a Happy Halloween. Butterfly Island  Island Princess <mooks@bellsouth.net> - Wednesday, October 13, 2004 11:29 AM CDT Just a short hello from me,  Viks viks <viks@postpals.co.uk> - Wednesday, October 13, 2004 6:24 AM CDT Hi I'm sorry that you had such a rough week, but I'm so glad it had a good ending. :) I'll be praying for you and your family! ~Joanne's Page~ Care Mail! Joanne <joanne_173@hotmail.com> - Tuesday, October 12, 2004 3:45 AM CDT Just stopping by from your Quilts Of Love Family with lots of hugs love and prayers.. blessings always angel chris quilts of love  Chris <angelchris@quiltsoflove.com> Los Angeles, CA USA - Monday, October 11, 2004 6:44 PM CDT Just wanted you to know that you are all in my prayers and those of all of us at Quilts of Love ~  Jean ~ Quilts of Love <jean@quiltsoflove.com> - Monday, October 11, 2004 12:56 AM CDT Donny, Holly, Donovan & Maddy: May the love of God and your precious George be always with you. May he protect and watch over you each and every day! My grandson was diagnoised with neuroblastoma at 18 months! He will be 5 years old in November and is living life to the fullest! He also had a very hard 2 years of treatments, surguries, etc. but now is a very active kindergarten student! With the power of many, many prayers his cancer is also in remission! But let us never take our health for granted and continue with the great prayers for all! With love and blessings from Le Mars, Ia. Audrey W. Audrey Weiler <audweiler@hotmail.com> Le Mars, Ia USA - Sunday, October 10, 2004 7:36 PM CDT dear holly and family, so sorry to hear about grandpa. our prayers and thoughts are with you and the family. we sincerely send our symapathy and hope you will all find strength in knowing GOD is with him and you. thank you again for your timely phone call. i still feel really scared and know that the tumor is too big to remove the entire thing so radiation will be a must. we are all scared. only God can help us after this. i am very happy maddys doing so well. i will always check on your family. God be with you again and still. love to you and yours. pam pam raymer <psraymer@aol.com> beloit, wi rock - Saturday, October 9, 2004 11:56 PM CDT Thank God Maddy is alright, she must be going through so much with the scare she had along with seeing her grandpa the way he was. God gave all parents a special gift and that is strength and the ability to think and do for your children, no matter what we go through at the time. It isn't easy at times but it is SO worth it... Roller coaster ride and ALL. Let us know how Maddy is doing through all of this. We all have been so worried since the email. We will say a prayer for Maddy's grandpa! Timi <tswier@sio.midco.net> SFalls, SD - Saturday, October 9, 2004 8:08 PM CDT Holly and family, I read the updates today, after getting the emails from your friend in Italy. Your family, and especially precious Maddy are always in my thoughts and prayers. Cindy Nelson-Maggie's Mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Friday, October 8, 2004 5:59 PM CDT Greetings Williams Family!! We have been praying for good results after a note from your friend in Italy. Thank goodness for wonderful friends like her. Today I am a bit lighter hearted knowing that little Maddy is ok. I am however worried about you Holly. You have been threw a roller coaster ride that has not been fun. I do remember. I also know that you need to take care of YOU! There are many counting on you and you are so very important in many peoples lives. Please please take time for you. Even 10 minutes in a warm bubble bath is good for the soul of a women. My sincere sympathies on your loss, but rejoice that there is no more pain and suffering and that you have your own ANGEL to help you and watch over you. I will continue to keep you all in my prayers! Your friends, Michelle and family Shereck <michelle.shereck@ndscs.nodak.edu> Wahpeton, ND USA - Thursday, October 7, 2004 12:10 AM CDT Dear Donny, Dear Holly, Darling Donovan and Maddy, sending you our heartfelt sympathy for George's passing yesterday, together with our hugs. Our heart is with you. Sabrina, Anthony, Tom, Missy and grandparents <morini@agriflex.it> Forlì, FC Italy - Thursday, October 7, 2004 3:04 AM CDT My grandpa passed away on October 4th, two days ago. My family went to see my grandfather before he passed away and we had four really great days doing just about the same thing you guys did. I am sorry for your loss. Lots of Love ~*~Lisa~*~ Belmont, CA USA - Thursday, October 7, 2004 0:34 AM CDT -Amen- May George and God smile over you and your family to keep you all safe and going! I hope Maddy feels better! Tell DOnovan i said hi! ziggy <pinayskye@msn.com> aurora, il usa - Wednesday, October 6, 2004 10:36 PM CDT Stopping in to say hi and see how you and your family are doing. Please never forget that you're in my heart & prayers! ((BIG HUGS!!))  Tumbleweed Foundation Shannon A. <leddedchic@yahoo.com> Schuylkill County, PA USA - Wednesday, October 6, 2004 8:04 PM CDT Buongiorno a tutti, although juggling in the last 10 hours with Tom's sudden blast of severe gastroentheritus and all its annexes(...), piles of washing and ironing to do, in-laws landing tonight, a very dirty house to polish in a flash, a huge shopping list to fullfil, a new couple of birds unexpectedly inherited from my sister, a few urgent working dead-lines, I keep thinking about you guys here in sunny Italy. I love you all so very much. Awaiting to hear from you. LOL Sabrina & Co. <morini@agriflex.it> Forlì, FC Italy - Wednesday, October 6, 2004 7:35 AM CDT maddy-donovan-holly-and donny, my thoughts and prayers are to you all, maddy will come out of it ON TOP like she already has and will keep doing! after all she is wonderwoman!! please keep us updated on the situation, for we will all be praying for her health and safety!! I miss you maddy and donovan!! ziggy <pinayskye@msn.com> aurora, il usa - Tuesday, October 5, 2004 10:14 PM CDT Dear Maddie and family, my prayers go out to you, please let us know whats going on asap. GOD IS WITH YOU-Take care, JUlie P. Julie P. <mjparater@aol.com> Lutz, Fl - Tuesday, October 5, 2004 5:15 PM CDT Hello Maddie and Family... you are all in my prayers and thoughts to help guide you through this very difficult day..  GM <gm@quiltsoflove.com> Space Coast, FL - Tuesday, October 5, 2004 3:09 PM CDT Hi Maddy, its a beautiful dress your wearing in the gala pictures, you both look like true stars on stage. Lots of love Viks viks <viks@postpals.co.uk> - Tuesday, October 5, 2004 11:14 AM CDT Praying hard that all tests come back with positive results!!! Lots of love to all of you! I hope kitty is healing well!! lori <nevlor_2000@yahoo.com> baldwin park, ca usa - Tuesday, October 5, 2004 10:29 AM CDT Maddy, Wonder Woman is a wonderful name to describe you, sweetie! I will keep you in my prayers that your scan results are favorable, and that the nasty cancer stays away. I will also keep Sleeping Beauty in my prayers, as our pets are part of our family. Debbie Little (www.caringbridge.org/tn/littlecaleb) <littlecaleb@hotmail.com> Dickson, TN - Tuesday, October 5, 2004 9:48 AM CDT Maddy and Family, Read your email and know that Maddy and family will be in our hearts, thoughts and prayers on this very difficult day. Be strong and keep the Lord close to your heart. May God bless you all... Love and Hugs, Jane (Quilts of Love) Jane <jane@quiltsoflove.com> - Tuesday, October 5, 2004 9:03 AM CDT Just read my email from you. Please know that I'm sending prayers to Maddy and all of you!!! Much love... Terry Snyder (Angel Jalen's "Am-Maw") http://www.caringbridge.org/fl/jalen <vix207@aol.com> Royal Palm Beach, FL - Tuesday, October 5, 2004 8:06 AM CDT Just read the email, Maddy and family we are all praying for you on this hard day. Stay strong and remember she is wonder woman!!!! Timi <tswier@sio.midco.net> Sioux Falls, SD - Tuesday, October 5, 2004 7:54 AM CDT Just read the email that Maddy is going through tests today. Be assured we will send out the trumpet call for prayer for all of you. May the Lord raise you up and hold you close! Pam Hulstrand Portland Lutheran Parish Pam Hulstrand <Pamhul@polarcomm.com> - Tuesday, October 5, 2004 6:08 AM CDT hi holly, i am sorry to just be addressing you at this time.once again i have read your journal after discovering today that christophers surgery will be on the same day as maddisons was. october 28th. the simalarities in these 2 children are incredable. i am so scared yet so excited. christopher is doing so well although he went through the very intense chemo maddison did with hands, feet, armpits, and some of his face burnt and peeling. he is now in for his 5 day and handling that so much better while healing from last. the radiologist came in to talk to me today and i feel horrible. they are dscribing christopher possibly being very deformed after his 6 weeks of radiation. after the surgery.they of course have added all the extra events that could possibly happen. you know. the leukemia, lung cancer, future tumors blah blah blah! we will probably not realize the deformation until he starts to grow, but i think the way it was described to me was, "we will try to minimize the deformation, but it will depend on the extent of the remaining tumor and how much we will need to radiate him" or something on that order. so i noticed maddison ended up not having radiation and wondered if it was the same story to you and she became very very lucky in that part of the protical? i am so frightened right now over all this new information, but i look at christopher and he is just amazing. i realize your life is very crazy right now and please forgive my intrusion, but would you respond to me on christophers web page and tell me as much as you can.(wi./christopher) i am kind of going crazy now with anticipation and worry. not unusual i am sure. my surgeon and dr. have both stated that his tumor is the biggest they have seen in ewings. i told them of maddisons case. i am sorry if i am seeming selfish. very happy for your crazy life back and hope you are all adjusting better. love hearing from sabrina. she is a nut. hope all is well and all my love and prayers to you and yours. love, pam pamraymer <jdraymer@aol.com> beloit, wi rock - Wednesday, September 29, 2004 11:31 PM CDT Hi I'm sorry to hear about Sleeping Beauty. Funny how our pets become part of our family. Praying that she will be all better soon. Sure sounds like a busy time this week for you. ~Joanne's Page~ Joanne <joanne_173@hotmail.com> - Monday, September 27, 2004 11:52 PM CDT Good Morning to you all! So glad to hear the cat is doing well. Sounds like things are pretty hectic! Well, I just wanted to stop and check on you all and say HI! Hope the work thig works out for you - I will pray for a change of shfit for you so you are home more! Love to you all! Mary  <MaryKitchen@Tumbleweedfoundation.org> - Saturday, September 25, 2004 9:33 AM CDT hey! aww im sorry about the cat-they ..animals have a tendency to have a mind of their own sometimes..you know wandering bout in the dangers of whats outside the house.. :(---as for the pictures, donny looks sooooooooo cute in his little outfit and maddy..well maddy is just a little angel! ziggy <pinayskye@Msn.com> aurora, il usa - Friday, September 24, 2004 7:26 AM CDT hi to holly, maddy, and family i am just dropping in to say hello and hoping all is well. i see my daughter (samantha aka sam), put and entry into maddys guestbook. i am glad. you probably have not heard this nearly enough, but she is such a beautiful girl. i am praying that her spirit is shining bright every day for you and your husband and others to enjoy. good luck on going back to work. i am sure after all this time with maddy it is a very difficult ordeal and will take awhile to get used to again. think of you all the time and hope everyone is well. thank you again for taking the time to contact me. i am now going to write to carters parents and family. very sad. christopher is doing well and may be ready for his operation in a few weeks. may god bless all these little soldiers!!!!!!! take care and thinking of you. pam pam raymer <ps raymer@aol.com> beloit, wi rock - Wednesday, September 22, 2004 0:16 AM CDT As you know, Holly, I missed your speech at the Make-A-Wish Gala, as I was attending our national conference. I have talked to dozens of people who attended the event, and wanted to let you know that you did an incredible job of sharing your experience with Make-A-Wish! Everyone raves about this year's awesome speaker and her beautiful/handsome children! Thank you for helping everyone at the event share the power of a wish! Sharon Mitchell Mazaheri President and CEO Make-A-Wish Foundation of North Dakota <smazaheri@northdakota.wish.org> Fargo, ND US - Friday, September 17, 2004 8:59 AM CDT Just calling in to say;  Love Viks viks <viks@postpals.co.uk> - Tuesday, September 14, 2004 4:48 AM CDT I stopped by to see what's new, and to spend some time praying for your family. Your speech is probably over by now. Hope it went wonderfully well. Stephanie & RachelJoy <mom2rj@comcast.net> - Saturday, September 11, 2004 11:39 PM CDT HEy Hey ziggy here!! Hi guys! how are you doing? Hi MADDY!! HI DOnnY!! how's school goin for you Donny? are you having fun? school is fun so i bet your having loads of it! As for your speech tomorrow, you'll be great! I can picture it a lil in my head, your up there a little nervous and all but then you look down on Donny and MAddy and as fussy as they might be they are giving you the biggest smile in the world and you've seen all types of them smiling at you but this moment..it helps you get UN-nervous and you do BEAUTIFULLY (not sure if thats a word but its a word right now), on your speech!! DOnny and Maddy and your husband are there supporting you along with everyone else who came to listen to what you have got to say!! and when all has been said they will applaud and smile!! I'll be smiling too!!! ziggy <pinayskye@Msn.com> aurora, il usa - Thursday, September 9, 2004 9:48 PM CDT I'm so sorry that Donovan is not feeling well...hopefully Maddie's spot is a booboo and not something that she has caught. Good luck on your speech, just think about everyone in the audience in their undies!! Teri Nashville, TN - Monday, September 6, 2004 5:28 PM CDT Hello, my name is Samantha, and I am Christopher's big sister, Pam and Jeff's daughter, and I would just like to say that I hope that BEST for your daughter, she is very beautiful! And also, im very,very proud of you because, trust me when I say this, I know what your going through, I know that it's even harder to do this when ity is your daughter. And now, I know that there is even more hope in my heart because Maddie is doing very well. I'm only 12 years old and every day I think, wow, if we didn't take him to the doctor the day that we did, when I turn 13, he might not have been here, he might not have been here on his birthday. Thank you and I will pray for you and your daughter when I pray for Christopher, because they have the same thing. GOD BLESS! Samantha <Sammysosa752@yahoo.com> Beloit, WI United States - Saturday, September 4, 2004 11:12 PM CDT Iwas reading your daughter's story on the Tumbleweed site, and I loved when you said that you were more and more in love with her each day. what beautiful words!! Keep it up! Shellie <khen608178@aol.com> Pgh, - Tuesday, August 31, 2004 6:39 PM CDT Holly, I'm so happy you had such a wonderful time. GKTW is a truly amazing place. You really can't describe how it leaves you feeling. I have never felt more like a princess than I did on that trip. It sounds like the entire family had a truly magical time - just the goal of MAW and GKTW. As long as you show Maddy the pictures and talk about the trip, she won't forget. I still have the picture of my family standing near the grandfather clock with Mickey and Minnie hanging on my wall, and I went four years ago. Thank you for reminding me what good can come from a truly horrific disease. Every now and then it is important to find the silver lining. Hope the Sesame Street Live show is great! Katie (e-sarc) <KCollupy@stonehill.edu> Braintree, MA USA - Friday, August 27, 2004 1:26 AM CDT  Wow! glad to read that a fun time was had by one and all! love & hugs Angel Toto <angeltoto_qol@yahoo.com> - Thursday, August 26, 2004 11:52 AM CDT HEy ziggy here! Wow exciting time huh? Im glad everything went FABULOUS for you!! I love reading your journal, just so i can check up on maddy and donny makes me miss you guys even more..but thats okay im a big girl..ill always have the picture of donny and me n maddy n belle!! i show it off to anyone really :) because you guys are adorable!! Donny have a good time in kindergarten okay? i would like to hear all about it sometime if you want to share! Keep smiling!! Bye you two! ziggy <pinayskye@Msn.com> aurora, il usa - Wednesday, August 25, 2004 1:48 PM CDT What beautiful children you have. It is funny how god brings people together. I was checking up on a caringbridge friend the other day, Chance. His site breought me to tumbleweed, then from there i clicked on maddy. It was the sencond entry about your trip to GKTW. Funny that I got that sa our daughters wish is to go there, and we will be going in November. Your daughter is beautiful. Iwill keep her in my prayers, I am so glad she has beat this beast. www.caringbridge.org/ny/ashleejean Kristy and family <kakakelly@netzero.net> queensbury, ny - Monday, August 23, 2004 8:47 PM CDT Maddy and DOnny! Hi y'all! How are you guys doing today? I hope you are all doing wonderful! I certainly enjoy all the wonderful memories I helped make when you met up with me at Storytime with Belle! I found Belle and told her how happy Maddy was about Belle signing in your guestbook, I also printed a picture, the one in the email your mom sent me, and she loved the picture, and said you guys were cute and adorable!! Don't worry i blushed for you two and smiled enough!! WEll I'll check back in soon, pssst..hey donny your going to be such a heartbreaker when you grow up your so cuuuuuuute! =) Ziggy <pinayskye@Msn.com> Aurora, IL USA - Saturday, August 21, 2004 11:55 AM CDT Hi Maddy and Family: I love reading the play-by-play on your trip to Disney World. I am sooooo glad we could make your wish come true! Sharon Mitchell Mazaheri, Make-A-Wish Foundation of North Dakota <smazaheri@wish.org> Fargo, ND - Thursday, August 19, 2004 3:13 PM CDT Maddy, You are a true princess! I love your pics from Disney. I am so glad that you had a great time. christine <mandrake30@yahoo.com> collinsville, IL - Tuesday, August 17, 2004 9:27 PM CDT Wow! I'm so happy you all had a nice time! You guys seem like such a wonderful, loving family. Very inspirational. ((big hugs to you!))  Shannon A. Tumbleweed Foundation <leddedchic@yahoo.com> PA USA - Tuesday, August 17, 2004 7:39 PM CDT WOW!!! It sounds like you had such a great time. A big congratulations to all at Make-A-Wish for making your trip such a success! HelenH <geordielass999@hotmail.com> uk, www.caringbridge.org/page/helenhudspith - Monday, August 16, 2004 7:31 AM CDT Now I can't wait to hear about the rest of the trip! GKTW is absolutely amazing, and I can only imagine the impact on small children (I was 14 when we went). Maddy sounds like she was a princess for a week, and you, with your magical bed, sound like a queen. This trip was the celebration you needed and I'm so happy it went so well. I can't wait to find out how the rest went! Katie (e-sarc) <KCollupy@stonehill.edu> Braintree, MA - Sunday, August 15, 2004 10:47 AM CDT Hello, i was watching a couple of new records being set at the Olympics today, so thought i would look up some slightly stranger ones instead of some jokes. Here's a couple; Most spoons balanced on the face Tim Johnston (USA) (b. 1 January 1992), was able to balance on his face (one on each ear, two on each cheek, three on his chin, two on his lips, one on his nose and three on his forehead) and balance them for 30 seconds at on May 28, 2004. British pub landlord Garry Turner clipped 153 ordinary wooden clothes pegs on his face at the WH Smith bookshop in York, Yorkshire, UK, on September 28, 2002  Love Viks From Post Pals and Bears Who Care viks <viks@postpals.co.uk> - Sunday, August 15, 2004 9:49 AM CDT Your daughter is adorable!! What a cutie. :-D Dagger <DaggerAlexandros@aol.com> - Saturday, August 14, 2004 3:32 AM CDT Hi Maddy and Family! Found you through the Tumbleweed feature this month! Sounds like you had a wonderful trip at Disney. I hope you enjoy the little package I sent! Love and hugs Kim Pigue (Tumbleweed and Hugs and Hope Friend) <kce1613 @aol.com> Madison, TN - Thursday, August 12, 2004 3:15 PM CDT Hi Maddy~ I'm so glad to hear you had a wonderful time at Disney...your pics look like you are the happiest little princess:):) I saw that Belle signed your guestbook--WOW, how special!! Teri Nashville, TN - Thursday, August 12, 2004 2:54 PM CDT Maddy and Donovan! Hey i'm glad you guys made it home safely!! I'm kicking myself in the butt for not having a chance to participate with GKTW, but I sure am lucky enough to have bumped into you all!! I hope your trip was every bit as Magical as you had wished because the time that i did spend with you and your brother made me only believe and realize that I would never have experienced such joy when I helped make you two smile..and laugh!! I know you'll save the world Maddy and I'll be your cool kick-butt sidekick if you'll have me that is, and superstar donovan can win the hearts of all the fans! Miss you both! Ziggy <pinayskye@msn.com> aurora, il usa - Wednesday, August 11, 2004 11:40 AM CDT Maddison!! You are such a cutie. I hope you had a great time at Disney World. I hope this finds you and your family well. Take care Cutie Pie! Christine <mandrake30@yahoo.com> Collinsville, IL - Tuesday, August 10, 2004 8:03 PM CDT Hi everyone! I hope you had an awesome time at Disney! I did my wish trip in 2000 and stayed at Give Kids the World. It was an amazing experience and I am so happy that they have this facility available. It is just unbelieveable. I hope you had a flawless trip and I can't wait to see the pictures. Good luck with Wednesday's appointment! Katie Collupy (e-sarc) <KCollupy@stonehill.edu> Braintree, MA USA - Tuesday, August 10, 2004 10:39 AM CDT Maddy and Donavan you were a joy to meet in the Garden and thank you so much for being a part of my show!! We hope to see you back at the Magic Kingdom sometime soon and when you do, please don't forget to visit us at Storytime...Love Belle Belle Magic Kingdom, FL - Monday, August 9, 2004 9:56 AM CDT Yep, I'm already signing your guestbook again! I just had to tell you that a little while ago, I showed my 4 year old daughter, Mati, your picture. And right away she said, "She looks like an angel!" I thought you might like to hear that! :) Shannon (and Mati) <leddedchic@yahoo.com> PA - Sunday, August 8, 2004 9:49 PM CDT Hi there pretty girl! Just wanted to HOP in and say hi to you and your family! Enjoy the rest of your summer, which I'm quite sure you will! :)  Shannon A. (with Tumbleweed Foundation) <leddedchic@yahoo.com> Schuylkill County, PA USA - Sunday, August 8, 2004 8:17 PM CDT Hey Donovan, hey Maddy - hey all! Just dropped by to double check that your banners are still up and running and I read about Maddy's scans being clear. Great news! Keep kickin' cancer's butt Maddy and keep on helping Donovan - you're doing a great job! HelenH <geordielass999@hotmail.com> IS YOUR FAMILY BUSY KICKIN' CANCER'S BUTT?, - Saturday, August 7, 2004 3:39 PM CDT Hey Maddy and Donovan!! Its Ziggy! I met you two and your parents at EPCOT right before the fireworks!! I'm so glad I bumped into you two!! You two are adorable and I'm going to miss you even though all we did was play for just a few moments! I'm glad you came to Magic Kingdom and met me at Storytime with Belle! You made a very cute Chip Maddy and Donovan I was trying to get your attention so you'd smile but thats okay..you smiled enough when you got me wet from the water from the fountain!! Well just thought I'd say hi so hi!!! I'll tak to you later!! <3 Ziggy Siegrid "Ziggy" Chicano 3162 Whitney Road Aurora, IL 60504 Siegrid "Ziggy" Chicano <pinayskye@msn.com> Aurora, IL USA - Saturday, August 7, 2004 2:23 PM CDT Have a wonderful time. You all deserve to have some R&R and the memories of joyful times. Take care and we will continue to keep your entire family in our thoughts and prayers of strength and healing. Denise & Jim Murphy <denisemurphy@meritcare.com> Cummings, ND USA - Monday, August 2, 2004 10:23 PM CDT WWHHHHOOOOHHHHOOOOOO--look out Mickey and Minnie...here comes Maddy!! Have a great time:):) Teri Nashville, TN - Monday, August 2, 2004 5:44 PM CDT HI Holly Have fun on your trip. Call when ou get home. Maddy dont forget to give Mickey Mouse a big hug. O.K. Hope all goes as planned on your trip. Dont try to do everything at once and remember to rest and drink lots of water. Jean <JRNeset@polarcomm.com> Mayville, ND - Monday, August 2, 2004 2:40 PM CDT Hello Maddy and family!! only a couple of days till you fly out of here. I bet you are all getting excited! I remember that excitment and crazy feelings. We will be up on Tuesday evening with the Make-A-Wish folks to see you off. Can't wait to see you guys! Michelle Shereck <michelle.shereck@ndscs.nodak.edu> Wahpeton, ND USA - Monday, August 2, 2004 11:52 AM CDT Yea, clear scans! That is awesome news. By the way, your long row of !!!!, will make your guestbook stretch out like that as the same thing happened to Josh's. Just make a break in the !!! so it doesn't do that. Glad to hear you are planning for a trip as you all so deserve it! Always keeping Maddie in our prayers! Liz Larson and family <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Sunday, August 1, 2004 2:02 PM CDT I have been reading Maddison's website for a while now through Kody's site. I just returned from Disney World tonight. My husband and I took our 6 and now 9 year old sons and helped celebrate my 9 year old (christopher's) birthday. It was hot but fun. They loved Indiana Jones, Mission Space (which was not bad at all), Fantasmic show, and the buzz lightyear ride, and of course the Figment ride in Epcot. If you would like any ideas or have any questions I might be able to answer them for you. Have a great trip. Lynn Peters <lynn.peters@state.de.us> Claymont, DE USA - Thursday, July 29, 2004 10:26 PM CDT hi maddy + family I'm so sorry to hear about your migraine! I know how those are - the fact you were infront of the computer is crazy! Definately time to get your head checked ;-) I'm wishing you all health and joy and a wonderful summer. Kids - take it easy on your mom! Eliza <ebell_bt@hotmail.com> San Francisco, CA - Wednesday, July 28, 2004 1:24 PM CDT Holly- I have been checking on Maddy for a while, but have never posted before. I was watching VH1 yesterday (my guilty pleasure!) and there was a story that made me think of you. I don't know if you have heard the Jason Mraz song, "The Remedy", but I found out that he wrote it about one of his friends who was diagnosed with Ewings. It is a really good, inspiring song when you know that story. You should check it out! (And his friend is in remission now) Hope you have fun in Florida Holly <berryfalls@yahoo.com> - Wednesday, July 28, 2004 10:03 AM CDT Hey Maddy I bet you are so excited for your trip, you will have so much fun. Can't wait to hear all about it and see all the pictures, have a great time! Timi <tswier@sio.midco.net> - Tuesday, July 27, 2004 10:07 PM CDT Hello Little Miss and Mrs. Williams, its me Cindy. Im so glad her scans are clear and I hope ya'll have a wonderful time in Flordia. Mickey and Mini Mouse are the best!! I just wanted to let you know..there is a card on its way to you. Give Maddy a hug from me. Thanks. Take Care. love, Cindy Cindy <cindyt14@hotmail.com> - Monday, July 26, 2004 10:12 PM CDT Love Angel Toto <pat_totoofoz@yahoo.com> - Monday, July 26, 2004 8:41 PM CDT Hi Maddy~ Stopping in to say HI...I'm sure you are soooo excited about your upcoming trip...I bet you will have a BIG time! Take Care:) Teri Nashville, TN - Monday, July 26, 2004 4:16 PM CDT I hope you guys have a wonderful time on your trip. I think of your family often. I would love to see some new pictures of the kids. God Bless Aundrea Sims Dover, AR - Monday, July 26, 2004 3:47 PM CDT Hi- you don't know me, but Angel Pat is my mom and I check your website often for updates. I missed checking one day and missed the update on Maddy's scans - miss a day and you miss a lot I guess! Anyway, just wanted to let you know that Maddy has been in my prayers (and will continue to be) and I am so HAPPY for you that her scans are clear. Have a GREAT time at Disney! Angel Amy Pauls Roswell, GA USA - Monday, July 26, 2004 6:40 AM CDT Hey Maddy,Holly and fam, jsut wanted to say a quick HI and tell you how happy i'm that Maddy's scans are clear!! I go in on the 29th for mine:)I hope all of you have a ReLAXING and fun time in flordia!! Cant wait to hear all about it Love Emily and the rest of the Campbells Emily Campbell <emerz5@cableone.net> Fargo, nd usa - Sunday, July 25, 2004 11:37 PM CDT It wasn't just you with the website. I tried to pull up the guestbook page yesterday to sign in and got nothing. So, today is another day and it worked. What thrilling news about Maddy's scans. I was so excited when I read the news and went running down to tell my husband. We both continue to pray for Maddy. The trip to Disney is going to be great and remind Maddy to tell Mickey I said hello. There will be so much for all of you to do. Please update the site with pictures when you get back. Give Maddy an angel hug and kiss for me. Love, Angel Pat Pat Standard <standard@rabun.net> Clayton, GA US - Sunday, July 25, 2004 10:45 AM CDT Hello Mr. and Mrs. Williams, Madison and Donavan, I don't know if there's a limit to this, but we'll see. I am 17 yrs old and the first time I saw that segment "A Time to Live" my heart broke for the kids that go through cancer like little Maddie. Ever since then I have been reading sites like yours and books on children with cancer. But your site touched my heart so much. This is my first time signing a guestbook. God will take care of your beautiful angel. Kids see angels and I def. know God gave her one. So when shes too scared, her angel will be by her side. When you get scared your angel will also. GOd never leaves us hanging. This is your test of faith. I know you dont want a preacher right now, but I was felt like I had to say this. I just recently got aquainted with two kids with cancer. It melts my heart, but we have to stay strong for them. I never met lil Maddie, and I may never meet her, but I wish I can give her this hug. You are in my prayers Maddie, Mr. and Mrs. Williams, and Donavan. Cindy <cindyt14@hotmail.com> - Wednesday, July 14, 2004 1:52 AM CDT Hi Maddie and Family Stopping in from your Quilts Of Love Family to let you know we are thinking about you and have you in our prayers sending lots of angel ((hugs)) and blessings Angel Chris Quilts Of Love  Chris <wardsweb@earthlink.net> Los Angeles, CA USA - Friday, July 9, 2004 11:20 PM CDT Hi there. I just signed your guestbook to let you know that Maddy's banner is ready. I'd be happy to make one for Donovan to if you just want to let me know what you'd like on it! HelenH <geordielass999@hotmail.com> uk, THE BANNER SITE - Friday, July 9, 2004 6:13 AM CDT Hi. You don't know me, but I got to Maddison's site through cancer kids.org. I'm wondering if you've ever heard of the SuperSibs organization that provides support to siblings of children diagnosed with cancer in the United States. It may be of some help for Donovan. www.supersibs.org A Canadian friend Canada - Wednesday, July 7, 2004 10:31 PM CDT wE FOLLOW YOU DAILY AND WISH YO UTHE BEST JANNA, eMLIE, mATTHEW AND lOGAN bROWN <MOM2MSB@AOL.COM> HAMPSTEAD, NH usa - Wednesday, July 7, 2004 1:57 PM CDT Holly & Donny - You know that you are in our thoughts and prayers. We would like to say that these feelings go away but they don't. The GOOD thing though is that they will lessen and they will not come as often. Talking and writing about these feelings is one of the BEST things that you can do for yourself. Get them out, one way or another. Keeping them inside will make things so much worse. Holly, when you are having these feelings and thoughts and it is 3AM, call me. I too remember them night time lonely horrible feelings. Please do not feel bad for calling.... I would be honored to listen and help where I can. You will survive, even if it doesn't feel like it yet, it will get better. Keep being kind to one another and give lots of hugs. Keep friends close and GIVE LOTS OF HUGS. We are praying for you and sending lots of hugs, Michelle & Larry Shereck <mshereck@hotmail.com> Wahpeton, ND USA - Wednesday, July 7, 2004 12:51 AM CDT Hi Holly, Donny, Maddy and Donovan. I just wanted to say hi and that I am always thinking of you guys. The feelings that you are feeling are totally normal Holly. You just have to learn to live life day by day, and even minute by minute. It does feel that this cancer life never ends. I am 2 years off treatment and still have the fears and flashbacks of my battle. It never ends. Some people have told me to just forget it and move on, well you know what, once you have fought a battle like childhood cancer you can never forget it. Afterall it took 2 years out of my life. But just try to think not all of Maddy's cancer expereince is bad. I'm sure you got to meet many amazing people, like the nurses and docs and now really realize just how precious life is. I know I do now and so does my family. Just know that we are all in this fight together. Since Maddy and I had the same cancer and very similar treatments our futures are unknown but live today for today and treasure Maddy and Donovan and your husband everyday as you always do. If you ever need anyone to talk to just e~mail me because I know what your feeling, and we are in this fight together. Know that you guys are always in my heart and prayers. Love Kaeleigh xo <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Wednesday, July 7, 2004 12:23 AM CDT Hey Donovan - I just saw the pictures of you climbing the wall. What was that like? You must be pretty brave to do that. Wow!!! that was so cool. I've always wanted to try that. minda rexine <rexfiles@polarcomm.com> mayville, - Wednesday, July 7, 2004 7:17 AM CDT Oh Holly, I am praying for you guys. All of you have been so affected by this and I'm sure all the feelings you are having are quite normal. The feelings of running away. I truely wish I had the words or knew what to do to help you guys. You have become such a special family to me (us) and it breaks my heart to hear what you guys are going through. I will pray for each one of you for strength. Please know I am always here to talk to. Thinking of you. minda rexine <rexflies@gra.midco.net> mayville, nd - Wednesday, July 7, 2004 7:14 AM CDT Maddy, I am so glad you are taking ballet classes and you look beautiful in your dance outfit. Donovan looks like he's having fun on the climbing wall and it looks really tough. Have fun at Disney World and remember I love you. Angel Pat Pat Standard <standard@rabun.net> Clayton, GA US - Saturday, July 3, 2004 8:17 PM CDT What a beautiful face; a happy face with a precious fuzzy head. And I must say go Donovan. My husband is a climber. He built his own rock wall in our back yard it looks alot like the one you're climbing on. We live in Arkansas and there are lots of place to climb, but it makes me a nervous wreck, so I quit going years ago! He hasn't been out of the yard in a while since our kids have been born. His carefree sports, climbing, deep water diving, etc. didn't seem necessary after the girls came along. I'm happy things are going well. If you figure out a way to stopping the fighting let me know will ya! God Bless Aundrea Sims Dover, AR - Wednesday, June 30, 2004 3:20 PM CDT Dear Wonder Woman Maddy, The top photo on your photo page is wonderful. I can see that you are not going to waste one moment of the fun in life. Good for you! I will continue to pray for you and your family. Stephanie & RachelJoy <mom2rj@comcast.net> - Tuesday, June 29, 2004 12:01 AM CDT Hi Maddie and family, So happy to hear that your hair is coming back in. Joshua had very blonde hair prior to all of this fun too, but last time it came in it was brown. Still very cute though! It is just now starting to come back in. So happy to hear you are having fun in dance class Maddie! You just show them all up!! God bless you all and know that we keep you in our prayers each night! Liz Larson <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Monday, June 28, 2004 11:01 PM CDT My daughter had blonde hair prior to getting sick and now she has beautiful brown hair and it is so thick! She goes in and has blonde highlights in her hair, so pink would be cute. It does not take long once it starts to grow. Buy some Nioxin for Maddy, you can get it a beauty salon it helps it grow faster and healthy. Congrats with how well you are doing in ballet Maddy, that is so much fun... You will have to have your Mom take some pictures. God Bless you all! Timi <tswier@sio.midco> Sioux Falls, SD - Monday, June 28, 2004 7:07 PM CDT  Hi Maddie!! We're so happy to hear about your new "peach fuzz"!! Can't wait to see pictures too..I am sure it is beautiful!! Love you!! Kim, Karl and Kody Bear ~KODYS STORY~ - Sunday, June 27, 2004 8:35 PM CDT Hey, I'm the same way: 37 years old and I still don't know what I want to be when I grow up. :) Congrats on the ballet classes going so well, sounds like a lot of fun! And best of luck getting your home-improvement project finished. I just made my 3rd trip to Home Depot today. My husband swears there will be a new deck in the backyard by Sunday evening. We'll wait and see. :) Kristie (ALL List) Kendrie's Page <kristieokc@cox.net> Byron (Robins AFB), GA - Saturday, June 26, 2004 1:55 PM CDT Hi there Guys, I have not signed in for a while, but I check on Miss Maddie almost everyday. Please post pictures of the Fuzz!!! I will pray for financial blessings for your family. God Bless, Aundrea Sims Dover, AR - Thursday, June 24, 2004 10:27 AM CDT Hello Maddy and family, So glad to hear you are doing so great. And peach fuzz is fun too. We can't wait to see you guys. Just was going to mention that maybe you could have our Make-A-Wish call the Florida Make-A-Wish and see if there is anything they can do about Maddy swimming with the dolphins. You never know until you ask. Hope it works out. You all take care and hug each other often. We think of you lots and continue to pray for all of you. Love, The Shereck's Michelle, Larry, Lindsey (surviver), Benjamin & Curtis Michelle Shereck <michelle.shereck@ndscs.nodak.edu> Wahpeton, ND USA - Tuesday, June 22, 2004 1:09 PM CDT Glad to hear you are so busy and fuzzy!!! I loved your pictures from the relay and telathon. Keeping you and your family in my thoughts and prayers. Cindy Nelson - Maggie's mom www.caringbridge.org/wi/maggie Cindy Nelson <cindyschu@aol.com> Milwaukee, WI - Monday, June 14, 2004 7:38 PM CDT Hi Maddy! I was just thinking about you today and wanted to come by and say hello! I love all the pictures in your album! You are just too adorable! Sending you lots of hugs and prayers ~ Jean  Jean ~ Quilts of Love <jean@quiltsoflove.com> - Friday, June 11, 2004 3:15 PM CDT Maddy, you make a wonderful Wonder Woman. The pictures are terrific and I am so glad you had a good time with your team. It is good to know that you are doing well off chemo. Sugar started a new class and it is for the older puppies. She was the star of the class tonight. We took her on the boat Memorial Day weekend and she loved her life jacket. I will send you a picture of her in the jacket. Hugs and kisses to you. Angel Pat Pat Standard <standard@rabun.net> Clayton, GA US - Tuesday, June 8, 2004 10:17 PM CDT HI Holly and Maddy just wanted to drop in and say hi and that I continue to think of you guys everyday. The pics of Maddy are adorable, as always, and I love the theme you guys had. Anyway you guys are alwyas in my thoughts and prayers and give Maddy a big hug for me. xoxo love always, Kaeleigh <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Monday, June 7, 2004 2:45 PM CDT  Carolyn <carolyn@quiltsoflove.com> - Saturday, June 5, 2004 11:20 PM CDT Dear Holly , seems forever sinc ei have signed...sorry about that...so much has been going on I think I get to one or two sites to sign a week...but read all the time... Anyway... then my computer crashed and was down for almost 2 weeks.... So wanted to say hello...am thinking of you guys lots and keeping you in our prayers I hope you will feel somewhat refreshed by the time your trip comes so that you can enjoy it completely and come back feeling even better..... Much Love and many prayers Maria and Katelynn Katelynns Quest <regattacrew68@yahoo.com> - Friday, June 4, 2004 3:08 PM CDT BUONGIORNO A TUTTI !!! Thinking of you (that's no news !) especially today. Lots and lots of hugs from this side of the ocean. P.S. do I understand that it's father's day in US ? If so, a huge hug to super dad Donny (I hope you will still be my friend when I tell you I haven't yet been able to send you that sparkling wine I announced some time ago...). HUGS HUGS HUGS HUGS HUGS to all the Wonder Woman team ! and a huuuge one to Bat Man ! P.S. Holly, I hope you saved some of those Italian tissues I sent you...I am sure you will use them all today ! CIIIIIIIIAAAAAAOOOOOOOO !!! ... capisc ? A very big hug to Emily and her family !! Way to go guys. Sabrina <morini@agriflex.it> Forlì, FC Italy - Friday, June 4, 2004 9:35 AM CDT Hello I'm so glad to hear that Maddison is doing good and off her treatments. I just wanted to stop in and check to see how she was doing! It is wonderful news that she is doing well. We'll continue praying for her health. Trista~Quilts of Love <Chris-Trista@att.net> Fairmont, wv usa - Monday, May 24, 2004 10:38 PM CDT thinking of you guys! I'm looking forward to the potluck. So sorry you got sick Maddy. Thank you Holly for the tupperware. I love all of it!! It was like Christmas! hope to see you guys soon. thoughts and prayers always to you guys. minda rexine <rexflies@gra.midco.net> Mayville, - Friday, May 21, 2004 10:37 PM CDT Hi there cutie! We were at Walt Disney World last year, and it was so wonderful. RachelJoy thinks we could live happily ever after if we lived in Cinderella's castle. Come visit her website and see our photos. I can't bear to take them down yet. They bring back so many fun memories. Stephanie & RachelJoy <sstrom@quik.com> - Friday, May 21, 2004 10:30 PM CDT  Angel Toto <pat_totoofoz@yahoo.com> - Friday, May 21, 2004 7:40 PM CDT Maddy, I am so excited about your trip to Disney World. Please tell Mickey and Minnie Mouse I said hello. It has been several years since I have seen them. It is my guess that they would really want you and Donovan to start eating that good food Mom cooks. That will give you the energy to see everything at Disney. Sugar wanted me to tell you hello for her. I'll keep checking on you and your adventures this summer. Love always, Angel Pat Pat Standard <standard@rabun.net> Clayton, Ga US - Monday, May 17, 2004 2:26 PM CDT I guess I'm not totally understanding. Are you worried that your daughter is not eating, or are you concerned that she is gaining too much weight? Just wondering.? You should not worry about weight gain now. Your sweet daughter is alive. That is a BIG plus. The doctors will be able to maintain her weight, somewhat, with TPN. If she is gaining a lot of pounds due to her treatment...hey, she's alive! Bless every pound. Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com> - Friday, May 14, 2004 9:13 PM CDT So happy to hear that Maddison has been doing well. Hope you are feeling better now as it is no fun to be sick. That is great that you are working on your Make A Wish trip as you so deserve it. Where do you want to go Maddie? Joshua went to Disney World and still talks about it all the time. Glad you had a wonderful "Mother's Day". We will keep praying for all these children to remain cancer-free forever. Liz Larson <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Tuesday, May 11, 2004 8:08 AM CDT Hi Holly and Maddy. Just wanted to say that I am thinking of you guys today and always. Stay strong, and I'll be praying. ttys. xoxo Love always, Kaeleigh <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Sunday, May 9, 2004 12:35 AM CDT  ***I hope you're feeling better, Maddy! Get that little body of yours well again SOON!*** Sending lots and lots of BIG hugs and MUCH love your way!!!   Shannon, Jeff & Samantha Therese <humphity319@aol.com> #24 - Sunday, May 9, 2004 8:49 AM CDT Hello Maddy and Family! Such wonderful news that Maddy is off treatments now and doing so well ~ Prayers are answered! We will continue to send hugs and prayers not only for you but for all children fighting these horrible illnesses. Hugs, Jean  Jean ~ Quilts of Love <jean@quiltsoflove.com> - Thursday, May 6, 2004 11:52 AM CDT I am so glad you guys are home! Mike said he saw you guys at the grocery store. He said Maddy and Nicholas were so cute pushing their carts around. I was sad that I didn't go to the store so I could have seen you guys. I'm sending you hugs Holly as you must need them. The unknown is always scarey and hard to overcome. Jesus is the only one who knows and will always be there for you and your family giving you the strength. I know he's always been mine when I've needed it. I can't say enough how great it was to see you guys in Rochester. hope to see you soon. always in my prayers. minda rexine <rexflies@gra.midco.net> mayville, nd - Saturday, May 1, 2004 7:12 PM CDT WAY TO GO MADDY!!!! YOU'LL NEVER KNOW HOW MUCH I LOVE YOU!!(REMEMBER THAT HOLLY??) LOVE, EMILY EMILY CAMPBELL <emerz5@cableone.net> FARGO, ND US - Saturday, May 1, 2004 5:08 PM CDT Maddy sounds like just a beautiful, darling girl. Obviously you are raising her the right way and she reflects you. I am sending good wishes for your exciting future! Lori & Lyza www.caringbridge.org/canada/lyza Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Saturday, May 1, 2004 12:12 AM CDT Alright Maddy! awesome news. Mike said he saw you guys in the recovery room. as he told you Jackson had surgery the same day you did. you both did wonderful. that dr. Moir is so wonderful. it was such a great surprise seeing you guys. I was hoping to visit more but when you're there things are rather hectic. but we're home and Jack's doing great. I can't wait to ge together with you guys. hope you're home when you read this. I am so excited for you guys and pray for things only to be getting better. you are one strong little (BIG) girl Maddy. The world has truely been blessed by you and I am so blessed to know you. talk soon okay. give your mom a BIG hug and my thoughts and prayers will continue to be with you. minda rexine <rexflies@gra.midco.net> mayville, nd - Thursday, April 29, 2004 9:41 PM CDT WOW, Maddy, I am so happy to read that you sailed through your surgery yesterday. You really are an incredible WONDERful girl. I hope the geese are in better condition than they were last time. I am sure they were so happy to see you again. I wish you all a good trip back home; Guys, I know it will be a very very long journey BUT I know your heart is soooooo much lighter on the way back than it was on your way out. Maddy, it must feel incredible to be without that tube, eh Darling ? I expect to see new, updated pictures soon. The latest ones posted are absolutely georgeous. I can only imagine how incredibly excited Donovan must be at the great news about your tests and positive surgery outcome; he must be so eager to see you and hug you all again ! Lots and lots of hugs from us all here in ITALY !!! May they accompany you during your drive back. Holly & Donny : I am so happy. I wish I could hug you all in person ! I love you very much. Talk to you soon... WWWWAAAAAYYYYYY TO GO, WONDER WOMAN ! Sabrina <morini@agriflex.it> Forlì, FC Italy - Thursday, April 29, 2004 9:48 AM CDT Say YEAH for good scans. Hope the port and tube removal goes well. You all have been in my thoughts and prayers. Cindy Nelson www.caringbridge.org/wi/maggie Cindy Nelson <cindyschu@aol.com> Milwaukee, WI - Wednesday, April 28, 2004 6:37 PM CDT SSSSSSSIIIIIIIIIIII ! YYYYYEEEEEEESSSSSSS ! Can you tell I have just read your uncle's post ????????? I have been checking your site every single hour ! I was getting kind of nervous not seeing any news on it, no new words. The emotion I am feeling right now is difficult to explain. Tears are rolling down my cheecks but they are indeed tears of happiness. Thank you, thank you, thank you for getting the site updated and for sharing with us the wonderful news. Again (you must be sick of me by now) I send you my most special hugs for today's surgery once again happening on the 28th of the month. Evidently, Maddy, 28 is your magic number ! I love you so much I cannot explain. Special hugs to Donovan and to Jean taking such good care of him. Holly and Donny : I hope I can soon get some nice Italian sparkling wine up your way ... (although 2 ounces are enough for someone). To Maddy : my dear Wonder Woman, you are indeed WONDERful !!!! Sabrina <morini@agriflex.it> Forlì, FC Italy - Wednesday, April 28, 2004 8:58 AM CDT Hi Holly, Hoping that everything goes very well! You're in a tough spot right now, but like everything else, it gets better with time. The protocol is completed, your safety net has been taken away, and although you're happy Maddy's not being pumped with poison anymore, it's scary walking that tightrope without something to catch you. Watch her run, sing, dance, ask questions, ride her bike, play with Barbies and do all of the other things little girls like to do, and remember, you have a survivor for a daughter, a survivor who will grow to be a wonderful young lady. With time, you'll forget about that net that used to be so comforting, but getting to that point takes a lot of patience. I'll be thinking of you all! Congratulations, you've come so far. Katie (e-sarc) <KeCollupy@comcast.net> Braintree, MA USA - Monday, April 26, 2004 10:57 PM CDT Hi Try not to worry too much about Donovan, we well take care of him. We are all praying for good scans & surgery. Cant wait for you to be home so I have someone to talk to on the phone. Jean <JRNeset@netscape.net> - Sunday, April 25, 2004 9:44 PM CDT My heart breaks for you right now as you charter into the territory of the unknown...aka "off chemo." The insurance people who keep hounding you, along with the bill collectors just DON'T GET IT!! Only you and I know the hell we have been through with our children. Don't let this cancer take from you the happiness you have about Maddie being DONE. Do not let it take from you the plans you have for the rest of your daughter's life. Don't let it take your hopes or your dreams for her....do not let it consume your life. Do not look at statistics...DON'T DO IT!! Sure, the numbers for Ewing's are not great...we are living proof of that!! Look at Maddie...look at her sweet face, stare into her innocence and live it yourself!! You are done...you are free...she is free...believe it....LIVE it. Everyday. All of the other stuff is just clutter. Stay strong. Keep your faith. YOU ARE DONE!!! Love, Leigh Ann www.caringbridge.org/ga/cartermartin Leigh Ann Martin <lascm@bellsouth.net> Atlanta, GA - Sunday, April 25, 2004 8:56 PM CDT Holly, stopping by to say hello and sending thoughts, prayers, and good Karma for Maddy's tests this week. I hate that you are feeling so many stresses in your life on a constant daily basis...the struggle to be 'superwoman' is so unfair at times. I am a 'list' person to stay organized, and something has to be practically on fire to be moved from the bottom to the top. I'm sure that your family is at the top and am guessing that your needs are towards the bottom, or are they even on the list?? You're on fire girl....move yourself up to at least the second spot. Hope things get settled down. Take Care. Teri Nashville, TN - Sunday, April 25, 2004 8:58 AM CDT Your SOS message for us to leave you some kind words were heard...I always read but not always leave a message because as a cancer mom, don't always have time sweetie. Good luck on your journey this week. Will be thinking of you and checking your page. With much Love, Cindy and Elliott Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@comcast.net> - Saturday, April 24, 2004 11:15 PM CDT I just wanted to you to know that I'll be praying especially for a stress free, good test results,safe, and positive discussions with the doctors news next week. Give Maddy an extra big hug for me. Tell her Sugar did really well at her first night of puppy kindergarten. Love & Kisses, Angel Pat Pat Standard <standard@rabun.net> Clayton, GA` US - Saturday, April 24, 2004 7:24 PM CDT Hi Maddy and Holly. Just wanted you guys to know that I am thinking fo you today and everyday. I love the new pictures of Maddy. She sure is a sweet little girl. I wish you the best of luck with the upcoming surgery and scans and will keep Maddy high on my prayer list. Take care of yourselves and know that I am always thinking of you. Love Kaeleigh xo <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Saturday, April 24, 2004 5:25 PM CDT Hey Maddy and gang (Holly especially), Hope you're getting your packing done. It helps me to focus if I say a prayer with each piece packed. That way those suitcases are filled with prayers and before you know it, you're done! Remember that all of us here at Mayville Lutheran send a suitcase (and more) of prayers with you for a safe journey and clear scans and easy surgery and strength for each day. Let me know when you're settled in Rochester for the week - if you get a chance. I know you'll be swamped with things to do and your days will seem too short but very long all at once. I'll be praying for all of you each and every day. Please give hugs to Maddy and Donovan from me. Traveling mercies. God goes with you. Pastor Janna <revjmk40@hotmail.com> Mayville, ND - Saturday, April 24, 2004 4:00 PM CDT Congrats on the end of chemo and looking forward to line and tube out on Monday. When Maggie finished treatment, and I was so scared and crazy, her nurse practioner told me, "we will always be honest with you." It set me a little more at ease to not feel paranoid too, and to know that others feel as nervous as you do right now too. Hang in there. I love the new home page picture of Maddie. Cindy Nelson-Maggie's mom <cindyschu@aol.com> Milwaukee, WI - Friday, April 23, 2004 5:37 PM CDT Hi Holly and Maddy and Donavan & Donny Now you can quit saying there is no new entries. Of course since we talk on the phone very day for an hour or two I dont know what I can say that is new. Did you enjoy your bread sticks? Donny asked if I put Maddy up to that request. Guess what I actually completed finding the top of the dresser at the top of the stairs. (I now have a diaper case box full of stuff I dont know where to put) Next project to clear that thing in the kitchen - I think its called a table under the collect of items gathering there. Jean <JRNeset@netscape.net> - Thursday, April 22, 2004 11:00 PM CDT Hey Holly, it was sure good to see you at the circus. You all looked great. Maddy sure looked good. the best I've seen her for a long time. Isn't this weather crazy, you don't know how to dress in the morning. All is well here. I'm going out to see Missy in Washington next weekend to work on wedding plans. Get some last min things done. Better go, I'm working the music contest tomorrow and then Edy Thompson's benifit tomorrow evening. LONG day. Take care and give your kids a kiss & hug for me. Love ya kathy Kathy Ellingson <elliingsn@polarcomm.com> Galesburg, ND - Thursday, April 15, 2004 9:50 PM CDT Hi Holly I have phone again. The river flooding took out our phone line. they fixed it temporary today. Surprised I didnt see you at Wal-Mart this afternoon, Belle and I went to Forks. So when is the big celebration going to be?? Julie doesnt know how to say our dinner prayer any more, since the past nine months it has ended with help Maddy through her chemo, at supper Monday night we came to that point of the prayer and she just froze, so I said help Maddy recover from her chemo and Julie said but Mom shes done. Have a good day. Don't come to visit over here right now because Katie has pnenomia (sp?). Jean <JRNeset@netscape.net> - Wednesday, April 14, 2004 8:23 PM CDT Woo HOo.. what are you up to today? It is supposed to be a gorgeous spring day.. I am putting the lights up in my pond garden.. remember our time in the garden last year? Now we can have a really super happy time out there,,. complete with lighting.. now that our Maddy is done with chemo, and a new wonder woman! Come over and see us as soon as those counts are up so that we can plan our hotel party!! I love you and am really missing you today>> So.. I am going to get off here.. and call you! teehheee... pam <pterfehr@aol.com> - Wednesday, April 14, 2004 9:16 AM CDT Dear Holly - was concerned as to what was happening with Maddy - wow - so pleased I called into this site - treatment completed - well done! Do not concern yourself too much re diaphragm - Sinclair had most of his diaphragm removed - apart from not being able to have a 'six pack' - body - he has actually played social rugby - goretex - 'tough as' - now I can relax I know Maddy has made it through her treatment. Wen (esarc) Wendy Australia - Wednesday, April 14, 2004 2:59 AM CDT NO MORE CHEMO FOR MADDY!!!!!!!!! YAYAY!!!! may you remain cancer free FOREVER!!!!!!!! Love and Prayers, Princess Maddisynne and Phyllis <prc7186@aol.com> Hamilton, NJ USA - Tuesday, April 13, 2004 7:03 PM CDT Hello Holly. Was wondering how Maddy was doing so thought I would come here and take a look. I am SO happy treatment is finished! I have thought of you both so many times. Charlie is 2 years remission this month! Good news for us both. Take care, and write once in a while if you get a chance. ntbrown@highstream.net Norma Norma <ntbrown@highstream.net> VA - Tuesday, April 13, 2004 7:20 AM CDT Hoppy Easter Williams Family!!!!!!!!! Our hearts are filled with joy to read about little Maddy being done with Chemo. We remember all to well the feelings and craziness that goes with that. The "what now", the "back to normal", the "what about testing", the "fear of what’s next". The four thousand things that go through your mind. You need to know that you have survived a great obstacle and done so together. Surviving together is something to be proud of. We are proud of you and full of joy for you. There are many bumps in the road to come but none that could be as big as this. You are at the top of this hill, enjoy the fabulous view for a moment. You deserve it!!! We hope to be in touch soon to set up a get together! I have missed you and can’t wait to hug you with happy arms and cry tears of joy for Maddy! Michelle S. & Family <mshereck@hotmail.com> Wahpeton, ND - Monday, April 12, 2004 11:34 PM CDT YAAAAAAAAaa for you Maddy! You made it all the way through treatment. I'm praying that all your exams will go well, and you can get back to the job of just being a full time, fun seeking kiddo. I'm glad your Easter was eggstra special. Stephanie and RachelJoy <sstrom@quik.com> - Monday, April 12, 2004 8:19 PM CDT Hi everyone, Happy Easter! Congratulations on finishing chemo! I was so happy to read the GREAT news! Praying for good scans and great appointments - and a life free of Ewing's Sarcoma. It's almost time to put this all behind you (as best as you can - it's not easy) and watch Maddy grow into a beautiful young lady - we all know she's a pretty special little girl - the future is bright and she will embrace it. Lots of love to you all! Katie (e-sarc) <KeCollupy@comcast.net> Braintree, MA USA - Sunday, April 11, 2004 9:04 PM CDT Happy Easter Maddy and Family! Love, Lori & Lyza Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Sunday, April 11, 2004 1:37 PM CDT Wishing you a joyous and Happy Easter! Love, Cindy and Elliott Aldrich Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@comcast.net> - Saturday, April 10, 2004 11:24 PM CDT Hi Maddy, Holly and family. Congratulations on finishing treatment!!! Way to go Maddy. I knew that this day would come for you, because you are a survivor. Though there is still a long road, I know that you will be ok. Take care, and I'll be praying for no fevers and side-effects. Your always in my thoughts. Kaeleigh Barney <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Saturday, April 10, 2004 2:41 PM CDT Congratulations all of you!! Holly, your words were so right on the money--thoughts all us moms have had. Lori, Lyza's mom Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Saturday, April 10, 2004 1:25 PM CDT YEA!!!!! Congrats to Maddy and the whole family! What a wonderful day for you all. Sending prayers and positive thoughts always. I check on Maddy often, but am not always able to post. My baby, Jackson, just finished treatment too. I completely understand your fears. I keep thinking if I celebrate too much it will jinx it. I feel like I'm going crazy sometimes! I just have to stop myself, and remember that I can only cherish today! One day at a time. Be thankful for every day and don't worry about the future. It won't change a thing worrying now about what might never come. Happy Easter to you all! www.caringbridge.org/ca/jacskon Jennifer Smith <yestoloans2002@yahoo.com> Middletown, CA USA - Saturday, April 10, 2004 1:00 AM CDT Hi Holly and Maddy!! What a wonderful time of the year to be finishing with the chemo. New hope--New life. I wish you would have been well enough to hear your brother (uncle) sing at church tonight. When he sang, "Were You There?"--we definitely felt like we were. He did an awesome job. I hope you can see the video. I could listen to him over and over. Please have a healthy and happy Easter. Jesus and Maddy live!!!!!!!! Deb Kyllo <dck@polarcomm.com> Mayville, ND USA - Friday, April 9, 2004 10:26 PM CDT Holly, I am so relieved to know i am not alone in my ADHDNAOCVDBD( I added BD for Brain Dead) or whatever we call it!!!!!!!! Whew! I thought it was just me...you made me feel right at home with myself now! :)ANYway...We walked relay for Life Friday night and we were thinking about you guys and it was COLD enuff! TO MAKE US BELIEVE we had beamed ourselves right over to your Relay For Life NIGHT! Thinking of you and I am also now glad that I didn't beg norrow or steal money to take the kids to the CIRCUS! In my mind it is the way you remember it and I had been so down baout not EVER being able to afford taking them... I am sorry though that it was that way...:( I think I'll keep my memories and cry over something else I can't afford thats worth crying over!like that CRUISE TO THE BAHAMAS or something!!! Much Love and Many many Prayers Maria, Katelynn ,Ashlee, and the ZACKMAN! Katelynns Quest! <regattacrew68@bellsouth.net> Charlotte/Denver, NC - Tuesday, April 6, 2004 10:29 PM CDT Congrats on the end of chemo. I am Maggie's mom, my 11 year old who has Ewing's of her right fibula. She finished treatment last Oct. The end of treatment was almost as anxiety producing for me as the diagnosis---so I totally relate to your panic attack the other night. Hang in there. Maggie had her 6month post treatment scans last week, and she continues in remission. YEAH!!! I will continue to keep you and your family in my thoughts and prayers. Cindy Nelson-Maggie's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Tuesday, April 6, 2004 9:28 PM CDT Heyyy Maddy and family First off, a very big Happy Birthday wish to Donovan! And a very big HURRAH for MADDY congrats on the end of your chemo! Did you know my name is Maddison too? Only mine is spelled a little differently. MADDISYNNE. My big sissy has been visiting your site for a while now, but she never signed the guestbook. So I'm making her do it. Have a great day, and congrats again on NO MORE CHEMO!! Princess Maddisynne and Phyllis <prc7186@aol.com> Hamilton, NJ USA - Tuesday, April 6, 2004 6:17 PM CDT Wow, your house is BUSY and sounds like a lot of fun! So good to hear about the end of chemo. Thinking of you every day! Lori & Lyza Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Tuesday, April 6, 2004 2:36 PM CDT HAPPY BIRTHDAY DONOVAN !!! WOW, you are turning the big 6 !!! That's the first thing Tom told me when he woke up this morning. Guess what ? Yesterday we went to the coast and we visited the big department store there. When we got to the toy area, he spotted something very nice and asked me if we could get it. When I said "yes", he dropped two in the trolley, saying "one's for Donovan". You see ? You are always in our heart no matter how far we physically are. I hope your day is as glorious as ours, bright sun and blue skies. If not, we are sending you some Italian spring weather together with this e.mail so your birthday can be even brighter. We love you very much, Donovan, we think you are very special. Lots of hugs and kisses (and ear pulling - our birthday tradition) coming your way from Italy from us all. Have a wonderful day ! BUON COMPLEANNO !!!!! Sabrina, Tom, Missy, Anthony <morini@agriflex.it> Forlì, FC Italy - Friday, April 2, 2004 3:01 AM CST Hello Maddy and family! I know that it has been a while, sorry! Things are busy here too. No flooding though, thank you God! If you would like to contact me via email, we would like to set up a time to meet in Fargo for an afternoon of food and fun. Sorry to hear your trip has been postponed. Bummer!!! But getting to go is the funnest thing and waiting for cooler weather, healthier bodies, etc is a good thing too. I was wondering if you guys are involved or know about the "Walk" thing that Make A Wish is doing? It is on May 2nd and it is to raise money for Make A Wish. We are going and Lindsey and her grandmother (both cancer survivers) will be walking. Check out make a wish web sight for details. If you guys can make it down it would be great to see you. Take care and hugs to all. PS I look forward to your email. Michelle, Lindsey and Family <mshereck@hotmail.com> Wahpeton, ND 58075 - Thursday, April 1, 2004 10:05 PM CST Just checking in to see how things are going. Glad Maddy is doing well and keeping mom busy. We continue to think and pray for you all each day. God bless! Liz Larson <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Thursday, April 1, 2004 7:26 PM CST I read your web site and have watched for how Maddy has been doing since the beginning. Our thoughts and prayers are with your family.My sister works with you and has a daughter Maddys age and that is how I knew about Maddy. I wish I had your weather. It was 8 degrees out this morning when I took my 6 year old to school, and we have over 108 inches of snowfall so far this winter season. I like seeing the pictures of Maddy reading about her singing and dancing. She is really beautiful . Sharon Anchorage , AK USA - Tuesday, March 30, 2004 6:07 PM CST I check your site every day but haven't signed the guestbook in a long time. As the story of the Itsy Bitsy Spider goes, I hope the sun comes out and dries up all the rain in Mayville, ND. Daily I remember all of you in my prayers and am excited about Maddy's last chemo treatment. Give Maddy a hug for me and tell Donovan Happy Birthday. Love, Angel Pat Pat Standard <standard@rabun.net> Clayton, Ga US - Tuesday, March 30, 2004 5:38 PM CST Hi Holly and Maddy. Just wanted to drop in and say that even though I don't write that often, you guys are on my mind and in my prayers everday. I love the new pictures of Maddy. She sure is a cute little girl, I only wish I lived closer so I could meet you guys. Imagine that 2 Ewings survivors. Better go, but take care of yourselves and say hi to Maddy and Donovan for me. Kaeleigh Barney <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Monday, March 29, 2004 6:23 PM CST I'm guilty of being one of those individuals who comes to your site almost daily but doesn't sign the guestbook as often as I visit. This is to let you know that I think of you daily and I'm so thankful that Maddy is doing well. Praise be to the Lord. Melissa - Monday, March 29, 2004 12:50 AM CST Hi Holly, I'm so happy to read that Maddy is doing well. I'm even more excited that you're almost done with chemo! Poor Maddy has gone through so much! She's a trooper, a fighter and a winner. I love the stories you write about her - she has such spunk, which will get her through all of this. I'll be checking back to see how things are going! Katie (e-sarc) <KeCollupy@comcast.net> Braintree, MA USA - Sunday, March 28, 2004 8:48 PM CST hey miss Maddy! thinking of you and praying you're doing well. we're heading to Rochester in a few weeks for Jackson's appt. we'll be seeing Dr Moir. hate the appts but love to see him. would love to see you sometime. tell your mom we should get together soon and play. take care sweety! minda rexine <rexflies@gra.midco.net> mayville, nd - Sunday, March 28, 2004 8:40 PM CST Hope your today is going as well as yesterday did! Did you get to sleep last night? My new little person has a real case of missing home today.. I think she has slowed down enough now to realize that this may be longer than what she wants.. some tears today.. trying to get her to nap now, as she has a headache and runny nose.. so gave her some childrens flu and cold medicine.. and told her if she lays down and watches a movie, her head will feel better. She is a sweetheart.. and is getting along well with my other little one. After their nap, we are going to put on mud boots and go wander the yard for awhile.. as Rick has fixed the new bikes tire!! As usual, he will be the hero! Take care, call me later if you are bored! Give Maddy and Donovan a hug and kiss from me. So great that Maddy's counts are up! Love Ya Pam <pterfehr@aol.com> - Sunday, March 28, 2004 1:21 PM CST Holly, I was thinking about you this am while reading my "Focus On your Child" newsletter. I don't know if you know about it but it's free and it's very helpful in things like answering your kids questions about God!!!! It sounds like Maddy has plenty of those. The web site to sign up is www.focusonyourchild.com I encourage you to check it out. We keep praying for your family in our home and in our parish! Pam Hulstrand Portland Lutheran Parish Pam Hulstrand <pamhul@polarcomm.com> Portland, ND - Saturday, March 27, 2004 11:15 AM CST Hi! Just wanted to check in and see how Maddie, the self-professed "Bible answer girl" is doing! (too funny!) I also wanted to let you know that I think your son is right on target with regard to the bodily funtion hysterics. My son turned 6 (today!) and it's like I told my husband last night at the dinner table, "I understand that he has to burp. What bothers me is how much he obviously ENJOYS it!" Little boys. (sigh) What are we moms to do??? Take good care and I'll be back to check again soon. Kristie (ALL List) Kendrie's Page <kristieokc@cox.net> Byron (Robins AFB), GA - Thursday, March 25, 2004 9:48 AM CST OH MY GOSH! My self answered and said HELP CALL HOLLY GET A LECTURE FROM YOUR SISTER! hope your day, and your ulcers do better than mine are doing today!!! I hope these messages have made you laugh, giggle, smile and/or cry sister mine! didn't know I had these insecurities did ya!! pam <pterfehr@aol.com> - Thursday, March 25, 2004 9:38 AM CST I am NERVOUS.. And I said to myself ''SELF.. WHAT ARE YOU DOING'??? Feel free to offer any and all advice! PAM <pterfehr@aol.com> - Thursday, March 25, 2004 9:34 AM CST Hey Holly girl...and how are you this morning?? It was so much fun to see you the other day.. the only thing I feel bad about is that I had to leave so dang early. I could've talked to you all night (AGAIN) oooohhhhh poor Donny then! Let me know how my niece baby's counts are this morning. If I am not at home, try my cell.. cause we have dental appts in Lidgerwood at 1.. so will be on the road from 11:45 till about 3ish... but the cell phone will be on.. (not that I will get reception) teehee.. Where is the sunshine.. what is this wet stuff hovering??? I want to plant flowers and clean up my garden.. maybe this weekend, since my trip is cancelled, and it sounds like outside will be the place to be for noise control in my home this weekend.. want to help weed? I love you.. hug Maddy and Donovan and give Donny a little slap! Smile 12 times today, in memory of the chaos entering my home tomorrow! CHEERS... pam <pterfehr@aol.com> nd - Thursday, March 25, 2004 9:31 AM CST Hey! SOunds like it is pretty busy around your house. Everything here is going good. It is so nice to have nice weather. Lifts your spirits. I even got out for a walk around the block. My mom made me take the cell phone just in case i got tired. Hahah:)Can't wait to see you guys on Mon. Hopefully we will both be a go and can have our big parties soon!! Take care. See you soon. Love Emily Craig, Deb, Emily, Adam, and Ann <emerz5@cableone.net> Fargo, ND USA - Wednesday, March 24, 2004 10:58 PM CST Just wanted U to know that we are thinking of you and hope that all is still going well & that it'll stay that way now! I hope that you have a blessed Easter and remember what it means, He died for us so we can be free! God Bless and I lov ya, today, tomorrow and forever, Kathy Kathy Ellingson /path Mom and friend <elliingsn@polarcomm.com> Galesburg, ND - Tuesday, March 23, 2004 10:16 AM CST Glad to hear that things are going well and you only have "1" more chemo to go!!! That is so awesome!!! I am very excited for all of you that you are almost done. Maddie, you deserve anything and everything for that "End of Chemo Party" and I hope you can have it all. You have been so tough this past year and deserve to have some fun -or should I say LOTS of fun. We will pray that everything continues to go well and smoothly and times goes by quickly to that last chemo. Thanks for mentioning Joshua for prayers on your site. We are always thinking and praying for you all. God bless! Liz Larson and family <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Tuesday, March 23, 2004 8:43 AM CST Lyza is on steroids this week, so I can relate to your entry--though it isn't too bad this time around! Take all the help and all the naps you can Holly--makes it easier to answer all the "Why" questions!! Thinking of you. Lori Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Sunday, March 21, 2004 0:52 AM CST Hello Ladies! Maddy we are celebrating here for you too! I will be praying also that things will change smoothly.... We are thinking of you and praying for youalways Much Love Maria and Katelynn good thing there is a back button I almost made your guestbook turn pink! Katelynns Quest! <regattacrew68@bellsouth.net> NC - Saturday, March 20, 2004 5:25 AM CST Dear Holly, From one mother to another, I am so sorry for the pain that you have had to endure with Maddy's Ewing's. We are members of a "club" that we never asked to join. It's amazing how you feel an instant bond with people who are going through the exact thing that you are...they are really the ONLY ones who understand. To quote another fellow club member "we are on the same planet." I am so thrilled for you that Maddy's treatment is coming to an end. I sincerely hope that you "get your life back"....you are in my daily thoughts and prayers. Leigh Ann Martin, mother to Carter www.caringbridge.org/ga/cartermartin Leigh Ann Martin <lascm@bellsouth.net> Atlanta, GA - Friday, March 19, 2004 4:42 PM CST Dear Maddy, I am so glad to "meet" you. You are a very beautiful little girl!! I have found your website while visiting another Ewing's Sarcoma site...you see, my 7 year old son, Carter, has Ewing's also. I think you would really like him (and I know he would like you...Carter always "takes" to pretty girls!) I am so sorry that you and your family have had to face this monster (that's what we call Carter's cancer). But, you know, I'll bet that you are strong like Carter and that you have the ability to keep your family's strength up, too. And you're almost done!! That is so exciting!! My family will add you to our daily prayer list. Know that you have someone all the way down in Georgia that is thinking of you everyday. Love, Leigh Ann Leigh Ann Martin <lascm@bellsouth.net> Atlanta, GA - Friday, March 19, 2004 4:34 PM CST How great you only have one chemo to go!!!! What a great feeling! It will be great not having to go in every 3 weeks and things can settle down for you guys. No fevers and hoping these weeks go by quickly so you can get in there and get it done! Way to go Maddy! Kellie Beresh - Jacob's mom - Jake's Site <scbkab@cox.net> Omaha, Nebraska - Thursday, March 18, 2004 3:14 PM CST Hi Maddy, Just stopping in to say Hello, hope the weather is warming up a little bit each day. Sounds like to have been keeping your Mom busy, I hate to hear about the migraine, uggh. My thoughts and prayers are with you. Teri Nashville, TN - Wednesday, March 17, 2004 11:48 AM CST Hey Maddy Mae ... and the rest of the Williams clan. It was good to talk on Sunday night and I'm glad that all went well over the last couple days. The Kontz prayer list has Maddy and all of you right on the top! One to go ... One to go!! When I look back over the last months with you guys, I am constantly amazed how God has carried you through. Some days, you might not feel it, but God is there holding you up. I'll be calling ... I have some great news for you!! Love ya, Pastor Janna <revjmk40@hotmail.com> Mayville, ND - Wednesday, March 17, 2004 8:33 AM CST Hi Maddy, Only one chemo to go!! YAHOOO! Keep fighting, sweetie... Just here to say.... ~*~*~*HAPPY ST PAT'S DAY!*~*~*~  ~*~*Girlie's Page*~*~ Lots of love, XOXOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Wednesday, March 17, 2004 5:55 AM CST hey Maddy, you are doing a really great job and you have every reason to be proud. Happy Saint Patrick's Day in case you are celebrating it. love and healing energy from Canada mia http://www.the-healing-tree.com Mia <miafriedrich@lincsat.com> Staffa, ON Canada - Wednesday, March 17, 2004 5:48 AM CST Today is the day of your 2nd to last chemo... God.. In July, this day seemed so far away.. and here you are! I just wanted to let you guys know that I am so proud of how you have done with all of this. Donny and Holly.. you are just too awesome, as parents, you have been through a year of hell, and all of your decisions have been made "in the best interest of Donovan and Maddy".. you have both put your own needs on the back burner.. I am proud and honored to be your "big sister".. BUT.. I still won't wear those tights in public... tee hee.. I love you all! Donovan.. You are just the "coolest" big brother.. and I really really love you. Maddy.. you are surely the best "wonder woman" in this universe.. You keep on being so strong sweet heart.. summer, and swimming and camping are coming right up... not to mention Disney World.. You are going to have such a great year.. Pam <pterfehr@aol.com> Christine, ND - Monday, March 15, 2004 11:41 AM CST I just wonder who in the heck it was who doesn't want to s4e you in your tights!!! Or mine either! teeheee... But you know I love you girlfriend! Pam <pterfehr@aol.com> Christine, ND - Friday, March 12, 2004 4:56 PM CST hi there wonder woman maddison.:-) tell your mommy to get you a mosquito net for the summer for example from this web site: http://www.longroad.com/ i'm sorry that so many little girls and boys have to get sick before the industry realizes that they can't use all this poisonous stuff on furnitures and in nature. Too bad that little children have no lobby to speak of. When i first came to Canada 4 years ago ( from Germany) i was shocked to find out that people poison their houses with desinfection stuff and their lawns with pesticides and eat all this garbage.......... i hope, people wake up soon ( and NOT only the ones with sick children!!!!) so that something drastically can be done at the root of those problems. hugs to you and sorry for preaching to the choir! sending healing energy and love from Ontario mia http://www.the-healing-tree.com mia <miafriedrich@lincsat.com> staffa, on canada - Friday, March 12, 2004 5:19 AM CST Holly-- It's very normal to be mad at God. It's okay to be mad at God. I was, too. He's a big God and can take it. You are His child and He loves you no matter what, just as you love Maddy even when she's angry with you. I don't know why God allows bad things to happen, especially to children. It must have something to do with maturing in our faith. God could stop the suffering but sometimes He lets us go through it. I was asked to speak at our church's Lenten Vespers about my families spiritual journey during Rachel's treatment for Ewing's. My testimony talks about some of the things you touched on. If you want to read it, it's on Rachel's webpage at http://www.caringbridge.org/mn/rachelhansen and there is a link to it or you can find it by going into the journal history for March 4, 2004. I'd be more than happy to talk to you and help you as much as I can as you know I've gone through the same thing that you're going through. Let me know if you want to chat! Jodi Hansen http://www.caringbridge.org/mn/rachelhansen <FlyingCook@aol.com> Lakeville, MN - Wednesday, March 10, 2004 8:34 PM CST  I was in the 'online' neighborhood and wanted to stop by and say HI to you and your mom and see how things are going. You are such a BEAUTIFUL young lady. I know everyone is VERY proud of you! St. Patty's Day is just around the corner...don't forget to wear your GREEN! :) {{{HUGS}}}, Love and Prayers to you all, Angel Tracy ^i^ Quilts Of Love Tracy Skinner (Angel Tracy) <tracy.skinner@comcast.net> East Liverpool, OH USA - Wednesday, March 10, 2004 3:38 PM CST Hi Holly and Maddy. Just wanted to write and let you both know that I am thinking of you guy's. I love the pictures, she is such a cutie. Stay strong, and remember there are "only" 2 more chemos to go. Love to you both. Kaeleigh Barney(1 year off-treatment from ewings) <kaeleigh barney@yahoo.ca> Woodstock, Ontario Canada - Friday, March 5, 2004 2:21 PM CST Dear Holly and Maddie, congrats on only having two more chemos to go --- that is fabulous!! I would definitely be drinking from the "off duty" pitcher! :) Regarding borders, I am not very computer literate and there is probably a much better way to do it, but here's what I do, in a nutshell. 1. Do a google search for "free left borders" and find some that you like. 2. Download the borders to your hard drive. (usually just right clicking on them will give you the save option.) 3. Upload the borders to a web site some place. (I have a yahoo/geocities site that cost $5 a month just for this purpose. Geocities also offers free sites you can set up. I use the site just to store borders, pictures, etc.) 4. Go to CB Author Activity. Select "more backgrounds" option. 5. Down at the bottom, enter the url of the border you want (off of your geocities web site) Is that about as clear as mud? Even re-reading it myself it doesn't make much sense. The gist of it is that you have to have someplace on the web to upload the borders so you have a web address to enter on the CB site. Feel free to e-mail me directly if you want me to go into more detail. And like I said, there are lots of people who can most likely give you MUCH better instruction than that!! :) Kristie (ALL List) Kendrie's Page <kristieokc@cox.net> Bryon (Robins AFB), GA - Tuesday, March 2, 2004 11:32 PM CST Holly, You sound so upbeat, I am glad things are stable and going O.K. Maddie is so cute, so adorable. I love your pictures. I hope spring comes soon. Julie Julie <mjparater@aol.com> Lutz, Fl - Tuesday, March 2, 2004 6:46 PM CST Hi Holly I wouldlove to know where the rainbow brite borders cna be found ...it was so pretty I wish I knew how to do the full page everytime i do one only the border comes on... If you crop me aline an dleave me your number I'll call and guide you thru it its pretty easy once you know but Kim knows wayyyy more than me so she prob knows how to do more we will have a "toast" here in maddies honor for finishing chemo I love the sunshine theme...am partial to it already since that has always been Katelynns nickname from me...Maddie looks in her prayign pic alot like Katelynn at that age ...i'll send you a pick together they are "a worldfull of sunshine!" :) Pam , if you rea dthis i have sent you a few emails ...have you been gettign them? I think Katelynn wrote the boys over the weekend did they get it? Love to all of you Maria and Katelynn Katelynns Quest To FInd A Cure! <regattacrew68@bellsouth.net> NC - Tuesday, March 2, 2004 1:48 PM CST Hey Guys!! Let me know if you still want rainbow brite up...it only takes a minute!! Kim fl/kodysstory <kodysmom1995@yahoo.com> - Monday, March 1, 2004 8:40 PM CST Glad to hear you guys are home and doing well. That is so great that you are almost done and talking about the party at the hospital. That is so exciting!!! You have done an awesome job mom! We will keep praying! Liz Larson and family <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Monday, March 1, 2004 5:54 PM CST Hi Maddy & Holly! wow has it been a long time. I've been missing you guys. sorry I haven't been in touch before now. you guys have been through so much lately, once again. My thoughts and prayers are always with you guys. Maddy always know how special you are sweetie! I still think of the day I saw you outside the clinic ~ you bring a smile to my face whenever I think of you. be strong and Holly you too! prayers always!! minda rexine <rexflies@gra.midco.net> mayville, nd - Friday, February 27, 2004 9:09 PM CST So glad to hear the test results came out ok, but of course the main concern is for later, so you are smart to make sure all is documented!!! Good for you! So glad that Maddy is on the downhill slide of this whole thing - it will be so nice to not have to be at the hospital all the time! What an accomplishement for your whole family. Hang in there - much better days to come! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Thursday, February 26, 2004 10:21 AM CST Thinking of you today and always. Those doctors can be intimidating, can't they? Don't back down though--they are only human and you are your child's best advocate. Lori, Lyza's Mom. www.caringbridge.org/canada/lyza Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Wednesday, February 25, 2004 2:34 PM CST Dear Maddie and family. I am so glad you had such a good week and hope they continue to get better. Holly you have no choice but to fight for your beautiful daughter and if her doctor has a problem with that it is his problem, not yours!!!! You are all in my heart and prayers. Love and hugs Judy  Click on the angel to visit my web site: Catch An Angel Judy <tnderheart@yahoo.com> - Wednesday, February 25, 2004 10:32 AM CST Here we are on Ash Wednesday. As I was doing my devotions this morning, Maddy's little face kept popping up in my mind, so I just stopped. Praying for Maddy and all of you has been my Ash Wednesday devotions. Couldn't think of a better way to start this Lenten journey! It was good to see you on Monday and I'm looking forward to seeing you again on Thursday. Maybe I'll get a "Maddy hug" by then. She sure seemed to be connecting with Lindsey - what a neat thing for both of them - and for all of you. I will continue to pray throughout the day today and again will remind my 7th graders tonight to pray. Sounds like the news is good - considering everything. God does work miracles - sometimes they come in little ways - sometimes bigger. Hang in there, Maddy and Donovan and Donnie and Holly. God's holding you up - always. Love ya, Pastor Janna <revjmk40@hotmail.com> Mayville, ND - Wednesday, February 25, 2004 8:48 AM CST Hello Maddy and family; We are so honored to have met you yesterday. You are like family to us already. Funny how things like "cancer" can bring two families together the way it has us. You are a wonderful family and although you may not think so you are doing very well. Your lives are a little crazy right now but your miracle is happening everyday. Thank you for allowing us to be a part of your lives. We look forward to more visits and a "cancer free" party in the future. Hugs to you all, Michelle & Lindsey Shereck <mshereck@hotmail.com> Wahpeton, ND USA - Tuesday, February 24, 2004 11:36 AM CST Dear friends, I had surgery on my shoulder on Friday to repair a ton rotator cuff and tendon. While it is strenous and frustrating to have to type with one finger I am also thankful I can still check on all of you. I was nervous about the surgery but could feel the prayers of many of you and felt at peace as I went into surgery. Thank you for your prayers. The real point to my email is not my surgery. I swore during Jen's illness I would never take anything for granted but as life goes on it is easy to revert to old habits. I am facing several weeks of limited use of my left arm, but am thankful this will soon pass. There are many who face a lifetime of disability due to the ravages of these horrible diseases. My anxiety was nothing in comparison to the fear many of you face on a day to day basis. My heart goes out to you. HUG YOUR CHILD AND TELL THEM HOW SPECIAL THEY ARE. Remind them they touch our hearts and souls and set us on a straighter path. Lastly, our children are true heroes. They face pain, suffering and uncertainty with far more courage and strength than many of us possess. And certainly with more grace than I have. In many ways my surgery was a blessing. As I struggled with pain this weekend I thought of the pain my Jen and all of your children endure without complaining and I was in tears and ashamed. I am reminded we still take too much for granted. Nothing is guaranteed to us in life so we must take advantage of every moment and every blessing. I am also humbled. I was touched by the cards and emails from so many of you who took time from your own struggles to pray for me and touch my heart with your love and support. You ARE in my heart and prayers and I remember lessons I learned in the past. Today you and your children reminded me to count my blessings. I am praying for bountiful blessings and miracles for each of you. With much love, Judy Click on the angel to visit my web site: Catch An Angel Judy <tnderheart@yahoo.com> - Tuesday, February 24, 2004 5:04 AM CST Hi Holly, I am sorry I havent written in awhile, I think you know and understand why...but anyways, I am so sorry to hear about the mix up with the doctors and such. If you get a chance, I would like to talk to you personally...I think I can give you a little personal advice. I also want you to know that as hard as it may seem right now, know that God will not give you more than you can handle. Trust in god...even at your lowest moments (I know, I have been there recently). Sometimes life just doesnt make sense, but I do believe that there is a reason for everything. I will pray for your family. Hang in there! :) Love, Amy K <amarieknosalla@hotmail.com> Mayville, ND - Monday, February 23, 2004 11:45 PM CST Well that is crazy. I am not sure what to tell you to do but start by taking one day or one minute at a time. You could also visit your hospital chapel. I would start delegating and like others before me have said, call some local channels and newspapers in your area. That has worked wonders for Katia here in Florida. You really need some sort of support system. You can't do this alone and if you try you will become ill and be of no help to no one. deep breaths, we care. Julie Julie <mjparater@aol.com> Lutz, Fl - Monday, February 23, 2004 12:37 AM CST Hey Holly, Good nite, what else can go wrong to stress you out, I don't know what to say or do. I guess I would at least talk to some body, find out what they think, yea and document, that way maybe you're covered in the future. I've been praying for you all the time. I'm praying that her tests will go fine, and that you can keep strong. You know that if you need to talk, I'm here. Keep your chin up and give that little lady of yours a kiss for me. Kathy Kathy Ellingson /path Mom and friend <elliingsn@polarcomm.com> Galesburg, ND - Sunday, February 22, 2004 4:58 PM CST HI Holly, I was in shock when I heard what happened with Maddie's chemo. That is inexcusable and I would be beside myself also, but like my good friend, Kellie, wrote below it is probably good not to lose it and just go through the tests that need to be done to check everything out right now. I don't know if your insurance is covering everything, but you certainly should not be financially responsible for any of those tests that are extra because of their mistake. I don't know exactly what I would do in your shoes, as I do not know what to do in our situation right now either, but do not think it is probably a bad idea to consult somebody legally to see what their opinion is on it. Like Katelynn's mom said if it is going to help later (if anything should happen and we will all pray that it doesn't) to have something filed at the time the mistake was made then you should find that out. I know it is just one more thing that you have to take on and if you have anyone in your family or friends that could do some calling for you and find out I would give them that job. I also think if you do not have the support you need right now and money and help from the community would help in your situation, then call the local news and share your story. What I hear from all my friends and even people we didn't even know, is that it helps others feel good to do something for families like ours. If you could get someone to help with all the mundane stuff us mothers have to do so you can spend more time with the kids, that would be great. I am sooooo sorry that this has happened and you now have greater stress than even before. That is just so unfair as this path is hard enough. We will continue to pray for Maddison and your family each day and night and we will pray that this added chemo did not hurt her in any way. Hang in there! Liz Larson <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Sunday, February 22, 2004 2:06 PM CST Dearest Holly~ First and formost I am praying hard. 2. My heart is breaking fo ryou Yes, Seek legal adivce at least...I learned this the hard way....it has to be done now at least documented....Maddy will have till shes at least 19 to file for future damage I am pretty sure but, you need to get it filed in case somethhng comes up before shes old enough to speak for herself....sorry I know I am babbling.... but i know the overwhelmed feeling all too well after 4 yrs of this Katelynn and I are both in counseling and taking anti-axiety meds and I fought doing that for too long...i thought it would make me feel doped up but it doesn't I just feel mor ein control of my emotions and my nerves don't feel shot so that may be something that would help too...the Dr told us most cancer parents are on something and come by it rightly...long term stress depletes your bodyof its natural chemicals that help you cope....ok so now I am really babbling I am so sorry I just am so shocked and horrified that this happened its INEXCUSABLE!!!!!!!!!!!!!!! My heart just aches for you I will go and sorry if i said anything out of place... call legal aid first...a lawyer won't tell you if you should file for neglect vs malpractice...but legal aide may be able to 2 see if you can get a social worker or patient advocate there when you can't be to check on things and keep it written down...its good that you have this journal...its proof and get it copied to a floppy or cd as back-up I too was afraid of burning bridges when we have so few we can turn to for help with Katelynn...but, It was a wrong choice... I would go to the pastor and tell them you are at the end of your rope emotionally...the whole family is....you need a support system.....people to bring meals and groceries cleaN WHATEVER THEY CAN DO THAT YOU NEED SO YOU CAN JUST BE WITH MADDIE AND DONAVAN I HAVE ONLY BEEN FOLLOWING YOUR STORY FOR A SHORT TIME SINcE YOU (oops sorry about caps)found us but is there someway you guys can contact the community or paper so you can get some fundraising support to help you guys thru all this...oh Holly how I wish this was not happening..none of it and I wish since it is that I lived closer and could help you out somehow.... Much love and many many prayers Maria and Katelynn M <regattacrew68@bellsouth.net> - Saturday, February 21, 2004 7:44 PM CST UGH!!!!! I can't believe it!!! My mouth dropped open when I read that they gave her that extra chemo! Unbelievable! I cannot believe they weren't counting chemos and watching that closer. I will ask our oncology nurse what she thinks about it and the damage it could do -an uninvolved person may give you a more honest answer. I feel your shock, frustration and pain with this! I don't know what I would have done if they would have done this with Jake - I mean these Ewing's kids get so much chemo as it is and then to mess up with one like Dox?! I guess just try and stay calm until you know if there is damage done and chemo toxicity. I would think if she is not toxic, her body will handle it ok, but like I said, I will ask and let you know. You have every right to be upset - I will pray for some peace and stability in your family's life right now - you could use it. I guess the good thing is that you are almost done with the protocol and that the scans were clear - rejoice in that much and then deal with the other stuff as and if it does ever become a problem for Maddy. I can't believe this happened. Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Friday, February 20, 2004 10:40 PM CST HI Princess Madison~ Just stopping by to see how you and mommy were doing. I hope you are feeling better! Tell mommy i have plenty of friends for her gray hair! ;) Thinking of you guys and keeping you in prayer Love Maria and Katelynn Katelynns Quest To Find A Cure! <regattacrew68@bellsouth.net> NC - Friday, February 20, 2004 11:11 AM CST Maddy, I just wanted to say hi and that I hope things are starting to look up for you. I also hope that sometime we all can get together. Lots of love, Dawn. Courage is resistance to fear, mastery of fear - not absence of fear. -Mark Twain Dawn Williams <aprilfoolsbaby1975@yahoo.com> Hoople, ND - Thursday, February 19, 2004 7:11 PM CST Hey guys! Hows it going? Did you get some rain? We did.. How weird is that?? Good thing we cancelled the hotel thing.. the boys came home yesterday from school with a real "seal Like" cough.. now this morning our little is also coughing... looks like a trip to the clinic! Hope today is a great day for you.. I will be cleaning for our appt tomorrow at 11... call if you are up to it.. Love you lots.. Pam <pterfehr@aol.com> Christine, nd - Thursday, February 19, 2004 7:52 AM CST Hey girlie, Here's hoping for good things Tomorrow. I've said a prayer. We havwe been keeping real busy. You take care and Keep your chin up. Kathy Ellingson <elliingsn@polarcomm.com> Galesburg, ND - Wednesday, February 18, 2004 7:37 PM CST Please know that you'll be in my thoughts and prayers. Briana Roehling Pflugerville, TX - Wednesday, February 18, 2004 3:13 PM CST Just stopped to let you know I am praying for good scans on Thursday. You are in our hearts and prayers. Love and hugs Judy Click on the angel to visit my web site: Catch An Angel Judy <tnderheart@yahoo.com> - Wednesday, February 18, 2004 12:50 AM CST Glad to hear that things are getting better. Julie Julie <mjparater@aol.com> Lutz, Fl - Tuesday, February 17, 2004 9:42 AM CST We wanted to let you know that we are still praying for you each and every night. The girls wanted me to make sure I checked on you all tonight so that I could give them an update in the morning. I will share with them your trials and your incredible strength to face each moment of each day. After I read the last few lines (quotes) in your last entry I looked at the quote I have hanging on my computer. It says..."To the world you might be one person, but to one person you just might be the world." Holly, Donny and Donovan I am sure you are the world to Maddy! May God be with you all! Love - Rusty, Kim, Ashley & McKenzie Kim McDaniel <rkmcdaniel@frii.com> Fort Collins, CO USA - Monday, February 16, 2004 10:43 PM CST HI Maddie and family, So sorry that you have been so sick and stuck in the hospital. Sounds like our week we had in the hospital with RSV and no counts to speak of. It sucks! Like you said, it is only pneumonia or RSV, but with them in can be very dangerous. It was such a scary week for us and I'm sure for you too. I am so glad so is feeling better and her counts are going up. We will be praying for clear scans and will check back soon. You are almost done, hang in there. I know the end of treatment gets hard as you just want to do be done and they just don't seem to turn around as quickly as they did before. We pray things will go smoothly from here on out and you can get these next 3 done on schedule. God bless and hang in there. You have done amazing as remember at the beginning when you didn't think you could do all this. It is always surprising how strong we can be when we have to be. Wish we never had to prove it though as it is very difficult to have to go through it and it breaks my heart to read your journals as it sounds a lot like me at Joshua's bedside at night. I would take there place in a moment if I could. God bless! Liz Larson and family <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Sunday, February 15, 2004 12:59 AM CST So glad to read that Maddy is better today! Only 3 more chemos to go?!! How awesome! Hopefully they will pass quickly and easily. It seemed better for Jake once we quit the Doxorubicin (Adrimyacin), so hopefully the same will be true for Maddy. Good luck with the scans and x-rays on Thursday - we will check for results and pray for clear, clear, clear - which I'm sure will be the case. Have a good week! Kellie Beresh - Jacob's mom <scbkab@cox.net> Omaha, Nebraska - Sunday, February 15, 2004 9:50 AM CST Get better quick Sweetheart!! Happy Valentines Day... Love, your friends, Kim and Kody ~KODYS STORY~ <kodysmom1995@yahoo.com> - Saturday, February 14, 2004 10:02 PM CST Happy Happy Valentines Day!! Hope you are feeling better.. I will try to call you in a minute.. I have been thinking about you and sending lots of prayers! Love Auntie Pam Pam <pterfehr@aol.com> - Saturday, February 14, 2004 3:30 PM CST Shannon, Jeff & Samantha Therese <humphity319@aol.com> - Saturday, February 14, 2004 8:00 AM CST  Happy Valentines Day, From Everyone at Post Pals viks <viks@postpals.co.uk> - Saturday, February 14, 2004 0:52 AM CST Holly.. didn't talk to you last night, so read the journal.. and am sending you prayers, and strength and hoping that you didn't call to chat, because you were sleeping, and not because you were up with maddy.. how is our little girl doing today> I love you.. and really really miss you! Pam Pam <pterfehr@aol.com> christine, nd - Friday, February 13, 2004 2:13 PM CST Hi Holly, My heart sank when I read that Maddy has pneumonia. I am praying for a speedy recovery. I hope ya'll get to go home this weekend. I'm already waiting for a "good news" update. Love to Maddy from the girls in Arkansas. Gob Bless Aundrea Sims Dover, AR 72837 - Friday, February 13, 2004 9:23 AM CST Hope Maddy is feeling better very, very soon! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Thursday, February 12, 2004 10:29 PM CST Holly-- Not that Maddy is going to do the same thing that Rachel did, but the last three chemo's were the hardest on Rachel. Her counts seemed to bottom out quickly and they seemed to take forever to come back. After each of her last three chemo's we were in the hospital for three weeks because of complications and low counts. I will pray that that isn't what happens to Maddy. The doctors said that if she had had any more chemo sessions left that they would've really had to think about actually not giving them to her because she just wasn't handling them. But she did recover. A slow, agonizing recovery each time, but she did it. And now ... well, now she's a "normal" three-year-old running around growing her hair out. If you want to talk, you know my number. As always, thinking and praying for you. Jodi Hansen http://www.caringbridge.org/mn/rachelhansen <FlyingCook@aol.com> Lakeville, MN - Wednesday, February 11, 2004 11:23 AM CST Dearest Holly~ My heart aches for you both. I know you would trade places withher in a heartbeat... I am at a loss for words ....know that I am holding you both close in thought and in prayer Love Maria, Ashlee, Katelynn,and The Zackman A Prayer For Maddison katelynntreakle <regattacrew68@bellsouth.net> - Tuesday, February 10, 2004 11:59 AM CST So bummed to hear Maddy is sick and you guys are in the hospital - just where you didn't want to be. How sweet your entry tonight. We will be saying prayers for a quick recovery from this one - go away fever and come on white blood cells!!! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Monday, February 9, 2004 10:27 PM CST Holly.. I am home.. so if you cant sleep.. I'm here!! Conferences went ok... hmmm... My love and prayers are coming.. your journal entry today is such an expression of the wonderful parent you are that it brought tears to my eyes.. My friend.. I wish I could just make all this go away for a bit and let your heart rest.. but the good thing is that you are so strong for Maddy, you are what makes the world go around for that little girl. I do, worry about you and feel so helpless to help! I love you.. I am proud of you for staying strong for Maddy.. I send you all my strength to use for you. Pam Pam <pterfehr@aol.com> Christine, nd usa - Monday, February 9, 2004 9:15 PM CST This is my first visit to Maddy's site--Kody sent me. I am a mother of 2, Ty, who passed away in 2001 from congenital heart abnormalities, would be 3 in April, and Mady (madysen)who will be 2 in April. I just wanted to let you know that I will be praying for a miracle for Maddy. As we all know, sometimes a miracle is all that can save us. It only takes a minute to pray, but the outcome can last a lifetime. As you lay there at night, listening to the unpleasant hum of the feedingpump that has become second nature to you (I know all about that), know that somewhere out there, someone is praying for Maddy. As you hold your breath to hear hers, know that someone out there is praying for you. When you feel as though you will never make it through, and you just want to give up...know that somewhere out there, God is waiting to pick you up and carry you for a while. He is right there with Maddy, even when you actually catch a few winks of sleep--he will be there to rub her head and hold her hand. He won't leave her, or you. Not for a second. I know how hard the uncertainty must be for you. Know that Maddy is touching hundreds of lives through this site, and that all those she touches are praying for her. God bless you all. Jennifer Naeger www.caringbridge.org/mo/butterflyty <jnw_jnn@hotmail.com> - Monday, February 9, 2004 5:49 PM CST Dear Holly, I, again, find myself wanting to pick Maddy up and hold her. Even though we've never met, I feel like ya'll are members of my family. Laney, my 4 year old, sucks her thumb and I too sit by her bed at night and watch her sleep. It sounds strange, but I almost want to breathe her breath. A mothers love is a strong thing! I admire you so much, you are so strong and I will contine to pray for Maddy's health and peace and strength for you. God Bless, Aundrea Sims AR - Monday, February 9, 2004 4:25 PM CST Hello, Kisses, hugs and prayers for Maddy and for you. Anne <annedonnelly@shaw.ca> Abbotsford, BC Canada - Monday, February 9, 2004 1:40 PM CST Just checking in on little Maddie. I don't know how you guys manage in that weather. You are an amazing parent to your children. Keep your sense of humor. Julie mjparater@aol.com <mjparater@aol.com> Lutz, Fl - Monday, February 9, 2004 11:30 AM CST Hey Holly, You keep your chin up and try to think positive as much as you can. Enjoy all the day to day things, making those valentines. remember all the hard work we used to go tho to make those boxes, and boy they had to be beautful too. You know if there is anythinng thaat I can do I'm only a phone call away. Take care & God Bless Kathy Kathy Ellingson /path Mom and friend <elliingsn@polarcomm.com> Galesburg, ND - Monday, February 9, 2004 9:15 AM CST The line in your journal about Maddie asking you if she was going to die brought tears to my eyes. I remember my Jennifer asking the doctor the same thing. How I hate this horrid monster we call cancer - it just sucks. I am praying for good scans today and just wanted to check on all of you. You are always in my heart and prayers. Love and hugs Judy Click on the angel to visit my web site: Catch An Angel Judy <tnderheart@yahoo.com> - Monday, February 9, 2004 4:41 AM CST Hi Maddy~ Just stopping in to say hello and wish you good luck with your scan tomorrow. I don't know if I could lay still for that long...what a good little girl you are!! My thoughts and prayers are with you. Teri Nashville, TN - Sunday, February 8, 2004 6:22 PM CST Dear Maddy, your "neighbors to the north" are sending positive thoughts to you. Tell your mom to take care of herself so she can stay strong for you (maybe she needs to take time out for a massage?). My little girl, Lyza is 6 with ALL. Come visit our site when you get time. www.caringbridge.org/canada/lyza. Lori, Lyza's mom Lori Grainger <graingersrus@sasktel.net> Lloydminster, SK Canada - Saturday, February 7, 2004 12:28 AM CST Hi Maddy, I will be saying prayers for you. I pray that nothing will stop your progress and the finishing of your chemo on time. I would like to invite you to visit Smile Quilts http://smilequilts.com and see if we can make a virtual on line Smile Quilt just for you. If you would like a Smile Quilt, just have your mom fill out the request form and we would be happy to send some smiles and hugs your way. Sending you lots of hugs and I will be keeping you in my prayers. Hugs, Angel Sprite  Smile Quilts Angel Sprite <smilequilts@smilequilts.com> Eckert, Colorado USA - Saturday, February 7, 2004 4:19 AM CST I am praying for you and your precious baby girl. She is so sweet in the picture you have on the main page. I've been coming by and checking on her for the last few weeks and I don't sign the book very often but please know you are in my thoughts and prayers daily. Anne <annedonnelly@shaw.ca> Abbotsford, BC Canada - Friday, February 6, 2004 10:25 PM CST Keeping you in my prayers! Hope your weekend goes well. Kathy H. 1000 Oaks, CA - Friday, February 6, 2004 4:16 PM CST Sending many, many prayers your way. Terry Snyder (Angel Jalen's "Am-Maw") http://www.caringbridge.org/fl/jalen <vix207@aol.com> Royal Palm Beach, FL - Friday, February 6, 2004 2:09 PM CST Holly.. just checking in before I go to sleep.. looking to see if you updated anything, since I didnt get to talk to you tonight. Take care.. I hope you are sleeping.. call me in the morning.. I will be home till about 10:15.. then after 2.. Love you.. pam <pterfehr@aol.com> christine, nd - Friday, February 6, 2004 0:51 AM CST Will keep you all in my prayers. Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@comcast.net> sandwich, IL - Thursday, February 5, 2004 1:42 PM CST Dear Holly, Just a quick note to let you know that I will be praying that everything is okay with Maddy, and that the pain goes away. Also praying for comfort and strength for you. God Bless, Aundrea Sims AR - Thursday, February 5, 2004 8:56 AM CST Hey Holly! Yep, it's me... like you probably didn't get enough of me last night. I have missed you so much... so long since we talked. If you need anything thing else or just to talk, call. I am up until midnight most nights. Love you. Louise T. <tunseth@gra.midco.net> Mayville, ND Traill - Wednesday, February 4, 2004 9:54 PM CST Hi Molly and Little Angel Maddy, This is my first visit to your page. I came across you at Billy Gowacki Web site. You are a special and strong child like he is. I am so sorry you have to go through all this. No child of any or parent should have to bare such pain. I know what you are going through. My son had osteocarcoma. He had 10" of his right femur removed and had a prothesis inserted. He went through nine months of chemo and is doing very well. We are nine months post chemo and doing great. We believe he is cured. The Lord does mighty things. I will add you to my daily prayers and keep you close in my heart. God Bless All , Mary and family Mary McLeod Sault ste Marie, Michigan USA - Wednesday, February 4, 2004 3:30 PM CST Holly.. I know you are at the hospital today, hoping that Maddy is in a better mood for you! LOL.. hope that the interview goes well.. call me when you get home. Love Pam Pam <pterfehr@aol.com> Christine, nd usa - Wednesday, February 4, 2004 9:46 AM CST holly and pam i am shakign as I write this this is the first glimmer of hope i have had in a long time I spoke with Dr Kabrinski and he has treated a few adults with carcinoid and a couple of kids only without spread he seemed ot be fairly knowledgeable about it! He was astounded that Duke has no one willing to take her he gave me two options of having her doctor call or coming there! so I am emailing him some stuff then goign to have katelynns pediatrician call he said carcinoid is complicated He sounds soooo nice! i am so scared to get my hopes up! God has a reason for everything! you guys finding us may be the miracle we need! M <regattacrew68@bellsouth.net> - Tuesday, February 3, 2004 1:13 PM CST My goodness sound slike you need to see a doc! Maybe you have mono? Just wanted to say hello and that I am calling dr Kobrinskys office today I'll keep you in my prayers and will check back soon Love Maria and Katelynn Katelynns Quest To Find A Cure! <regattacrew68@bellsouth.net> Charlotte, NC - Tuesday, February 3, 2004 12:29 AM CST Hey sounds like you got some sleep today.. off and on.. Now tonight.. take a relaxing bath.. and watch a movie, and then go to bed and get a good night sleep.. you'll feel like a new woman tomorrow... Take care... ps performance went well, but dancing at 8:30 at night is too late for 3-5 yr olds.. boy were they all wired!! I dont think there was one girl doing the same thing at the same time tonight! LOL.. Love ya.. Pam sissy Pam <pterfehr@aol.com> Christine, nd usa - Monday, February 2, 2004 9:36 PM CST Holly.. So Maddy and Donny got off to the hospital this morning ok?? We are definitely at the countdown stage.. only 3 more to go.. And Maddy continues to do so well.. she's my champ! I hope that today, you can get some rest so that you are feeling better.. I just know that pineapple cake probably gave you some extra vitamins.. so now, you do your share and get some rest, and you will be cured! I will be gone tonight from 6:30 until about 9:00.. little missy has her dance performance tonight.. just think.. this time next year.. you and I will be dancin moms together!! That is going to be so dog gone much fun.. I can just see our two little girls stealin every show!! hugging and smiling their way right through the performances... We have some mioghty happy days coming! So.. get some rest.. we have things to do! ps we still need to schedule our lunch with Maddy.. If it would just warm up a bit.. or not?? have a good day.. my friend.. I'm thinking of you and sending love and prayer.. Pam Pam <pterfehr@aol.com> Christine, ND usa - Monday, February 2, 2004 8:21 AM CST Dear Holly~That was my very best friend sname! I have always loved the name Holly.... First I have to thank you and Pam(gonna email her in a sec) for all the wonderful entries you both left and for all the wonderful people you sent to her guestbooks! I CAN'T BEGIN TO TELL YOU HOW THAT LIFTED MY SPIRITS AND KATELYNN HAS ONLY HAD A CHANCE TO READ TWO AND SHE IS ALREADY EXCITED! THANK YOU THANK YOU THANK YOU!! I came by this morning to thank you and after reading Maddisons story myheart was so in my throat I could not find any words.... She is so beautiful and so precious and what a trial you all are going through! I will write more soon...we went to see the psychologist for the first time today and to recount whats going on what has gone on was just draining... You guys are in my hearts FOREVER! and always my prayers.... Love and hugz and many many prayers Maria and Katelynn ps I can help a little with your site but i don't know much...i love the border on Maddisons! <regattacrew68@bellsouth.net </font color>> go to zeocast.com i'll help tomorrow or Sun, :) zeocast is for the music and slideshow - Friday, January 30, 2004 7:14 PM CST Hey Holly and Maddy, Donovan and Donny.. It is too too too cold!! My car wouldn't even start yesterday.. whats with that?? What are your plans for the weekend, being as how Chemo starts on Monday?? This ole lady is staying home where it is warm and toasty.. I cant wait till summer.. Maddy will be done with chemo, we can hang out in the screen house and pool and drink pop and talk smart again.. maybe even play some cards!! what the heck.. its a nice dream for a cold day! Thank you to all on this page who are visiting Katelynn's page.. what a surprise they will find when they ever check in again.. thank you.. her sadness and feeling alone just broke my heart!! Hey Holly.. lets have a late night talk tonight.. maybe plan a getaway!! teehheeee Love sissy Pam <pterfehr@aol.com> Christine, nd usa - Friday, January 30, 2004 1:51 PM CST Hi Maddy and Mommy, Just came by to say hi and that you are in my prayers... The Footsteps Last night I had a dream. I dreamed I was walking along the beach with the Lord. Across the sky flashed scenes from my life. For each scene, I noticed two sets of FOOTPRINTS in the sand: one belonged to me, the other to the Lord. After the last scene of my life flashed before me, I looked back at the FOOTPRINTS in the sand. I noticed that at many times along the path of my life, especially at the very lowest and saddest times, there was only one set of FOOTPRINTS. This really troubled me, so I ask the LORD about it. "LORD, You said that once I decided to follow You, You'd walk with me all the way. But I have noticed that during the saddest and most troublesome times of my life, there was only one set of FOOTPRINTS. I don't understand why when I needed You most, You would leave me." The LORD replied, "My precious, precious child, I love you and would NEVER leave you. During your times of trial and suffering, when you could see only one set of FOOTPRINTS, IT WAS THEN THAT I CARRIED YOU." ~Author Unknown~ Katya <corades@mail.ru> Russia - Friday, January 30, 2004 9:15 AM CST Maddison--- I found your site and want you to know my heart goes out to you and your family. My prayers will be with you both. A caring friend in Minnesota <ristdavidw@comcast.net> - Thursday, January 29, 2004 9:10 PM CST Dear Maddy’s Mom! I found your site on Kody’s site several month ago, and I was following Maddy’s progress since then. I instantly liked her. Not only Maddy is a trooper, but your whole family is by now. I loved the last update, that you are going to spend more time together, to do what you have thought to do before, and how you feel about these amazing kids who are fighting so bravely for their lives. I think they are the greatest teachers for us, adults. I personally learned from them that: The reason angels can fly is because they are able to take themselves lightly. Life doesn't have to be perfect to be wonderful. ~ Annette Funicello ~ God brings men into deep waters not to drown them, but to cleanse them. ~ John H. Aughey ~ Good bye and the best of luck to you! Katya <corades@yahoo.com> Voronezh, Russia - Thursday, January 29, 2004 3:48 AM CST Maddie, Sounds like you had a blizzard! We have only had a little dusting where I live. It doesn't snow much in the South. So did brother get to school? I hope you didn't make Mom stay in the laundry room all day again. Hee Hee. You take care. You are in my prayers. Debbie Little (caringbridge.org/tn/littlecaleb) <littlecaleb@hotmail.com> Dickson, TN - Wednesday, January 28, 2004 11:50 PM CST Hi Maddy and family - we are visiting from Kendrie's. We would love to have a little of your snow - but just a little! LOL Glad you are doing well. Vicki, mama to Duncan, 5, ALL Lewisville, TX - Wednesday, January 28, 2004 10:04 PM CST Checking in to see how things have been going the past few days and decided to actually sign the guestbook today. I like the new picture! The look in her eyes just about says it all, doesn't it??? :-) That feistiness is what's going to get her through this! That's what I kept hearing about Rachel, too. You continue to be in my prayers. Jodi Hansen http://www.caringbridge.org/mn/rachelhansen <FlyingCook@aol.com> Lakeville, MN - Wednesday, January 28, 2004 9:17 PM CST Hi Maddy, Just stopping by to say hi. Have you been out to throw a snowball or two? We had snow a couple of weeks ago, but then the rain came and washed it all away. Stephanie and RachelJoy <sstrom@quik.com> - Wednesday, January 28, 2004 7:37 PM CST Hey you guys.. hows life today?? It is pretty dog gone cold here today.. have the old woodstove going I just love that smell. reminds me of my grandma! Just wanted you to know I am thinking of you.. and that I love you. Stay warm.. and if you pick up any diamonds from the snow.. lets take an escape trip!! Love you.. sissy pam pam <pterfehr@aol.com> christine, nd 58015 - Wednesday, January 28, 2004 12:30 AM CST Hi beautiful Maddy, I just stopped by to check on you and let you know you are always in my heart and prayers. Even my friends have added you to their prayer lists (reserved for VERY special children). Stay well sweet princess and may God bless you. Love, hugs and prayers, Judy My Web Site: Catch An Angel Judy Crawford <tnderheart@yahoo.com> Cookeville, TN - Wednesday, January 28, 2004 10:11 AM CST Maddie: We got your site from Kendrie's and wanted to stop and say hello. You are a brave little girl. Thinking of you. Elizabeth and Tyson www.caringbridge.org/fl/tyson Jacksonville, FL - Wednesday, January 28, 2004 10:02 AM CST Dear Maddie and family, My name is Lisa and I was diagnosed with ALL in 1979 when I was 15 years old. I am now 40, married to my high school sweetheart and have three beautiful children. I know what you are going through is tough and probably can not imagine life without hospitals, treatment and sickness, but it does get better. Hang in there, there is life after cancer. I will keep you in my thoughts and prayers. Lisa Jenkinson <lisajenkinson@yahoo.com> Lorton, VA USA - Wednesday, January 28, 2004 6:40 AM CST Hi Maddy~ This is my first time to your page--I also got here from Kendrie's site. You are such a precious little girl and I just wanted to stop in and say hello. I was born and raised in ND, so I remember those cold winters...thanks, but no thanks!! My thoughts and prayers are with you. Teri Nashville, TN - Tuesday, January 27, 2004 7:49 PM CST I'm always checking in on this cute little girl of yours but don't always sign. I read your whole journal history over Christmas. You have a way with words that makes me want to read more. I hope Maddy will be fine. And Donovan as well. I will be praying for your family and also hoping you don't freakin freeze to death. Julie Julie <mjparater@aol.com> Lutz, Fl - Tuesday, January 27, 2004 1:49 PM CST Hello Miss Maddison Mae!! Your name has such a nice southern ring to it!! I love it! I am shivering in my chair just reading your Mom's entry for today. Our high for today is 55 and I am freezing...I can't imagine -20! Burrrrrrrrrrrrr! I stop by and check on you often to see how you are doing! You are a special little girl and very lucky to have such a kind and loving Mom! She takes the time to share a very personal part of her life with all of us. You are covered in prayer from all parts of the country because of the love in your Mommy's heart. Give her a BIG BEAR HUG from me!! I bet she will really, really like that! You and your family are in my thoughts and prayers. I will check on you again soon! Sending you lots of Texas sized Hugs & Kisses! Emma <pek_1@charter.net> Spring, TX USA - Tuesday, January 27, 2004 12:57 AM CST OK.. this is the 2nd message today.. for some reason, my first one did not take.. I must be computer illiterate... hmmm.. I hope you guys have a great time at the party, it was so good to talk to you this morning. great to know that your make a wish is all paid for.. you are going to have so much fun at Disneyland. I love you guys. Donovan.. I am so proud and happy to hear that you are doing better in school.. that makes my heart just sing! Maddy.. as soon as your counts are great.. we need to have your birthday lunch.. Enya is so excited to give you 3 presents.. and she picked one out just especially for you! Holly and Donny.. keep on keeping strong.. you are my hero's! If I lived by you.. I would have helped you with all that dog gone snow.. I suppose you didnt take time to notice the diamonds sparkling in the snow?? no.. well maybe next time. :) Cheers.. your sissy Pam auntie Pam <pterfehr@aol.com> Christine, ND 58015 - Tuesday, January 27, 2004 11:10 AM CST Hello Precious Maddy, Family, and Friends. Please accept our thoughts and Prayers, and know that you are not alone. Please feel free to contact us at any time, I have sent you an e-mail with a number you can reach us at. We too, as you know are in a battle of our own, and draw strength from the thousands of Friends who have taken Billy under their wings. Prayer truly works, always believe. Please give Maddy a big Hug from us here in Sunny Florida. Be Well, Billy's Dad {Bill} Billy's Dad {Bill} <wacki56@aol.com> St. Pete., FL USA - Tuesday, January 27, 2004 11:05 AM CST Just a quick note to say I do stop by each day and check on Maddies progress and send up some prayers while i'm here. Anne <annedonnelly@shaw.ca> - Tuesday, January 27, 2004 10:25 AM CST Hi Maddy! I came to your site from Kendrie's - and I just wanted to leave a note to say hi and let you know I'm thinking of you! I hope you have a GREAT week! God bless and *warm hugs* My website! http://jenniferc.faithweb.com Jennifer C <jenniferc@ilovetocolor.com> Eugene, OR USA - Monday, January 26, 2004 6:34 PM CST Hi Maddison! You sure look cute in that pink picture!! I'm also here thanks to Kendrie's mom. Sorry to hear your counts are down. I hope they bounce back real quick!!! Tracy M. <tmangin@sympatico.ca> Windsor, ON Canada - Monday, January 26, 2004 5:01 PM CST HI Maddison and family, Sorry to hear your counts are down, but hopefully they will have a quick rebound. I love your new website and new pictures they are great. Thanks Holly for the email and the chicken soup recipe. After a week of fighting RSV we are home and had our 1st radiation treatment today. Joshua did well with it, thank God. Glad to hear Maddison is doing okay and even doing a little dancing! Hang in there. You are doing great!!! God bless and we will keep praying for you all!! Liz, Jay, Justin, Tanner and Joshua Larson <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Monday, January 26, 2004 3:54 PM CST Maddison Love the pink. I am on Kendries moms request to visit 100 kids sites and I can see she left you as one of the best for last. I hope your counts are better soon. Stay safe and strong. Heather (Bears who care) Heather <momsathomex3@yahoo.ca> Mississauga, ON Canada - Monday, January 26, 2004 11:29 AM CST Hello Maddy, You are such a sweet looking little girl. I sure hope you get feeling better. Have a great week, Your friends, Carolyn and Fisher www.caringbridge.org/va/fisherc <oshelrina@aol.com> Chesapeake, Va USA - Monday, January 26, 2004 6:04 AM CST Maddie, happy Belated Birthday! And you know what? A disco ball and loud music always makes me happy, too, although I am sorry you will miss the dance. Darn those pesky platelets, anyway! Other than that, I hope your weekend is going well. I really like all the photos in your album. Especially the sweet one of you sleeping. Beautiful, that's what you are! Continued best wishes, Kristie (ALL list) KENDRIE'S PAGE <kristieokc@cox.net> Byron (Robins AFB), GA USA - Saturday, January 24, 2004 11:02 PM CST Hi Maddie, I got your webpage from the infamous Kristie and Kendrie. I am starting at the bottom and going up...... We live in Boise, Idaho, probably not as cold here as there. I hope your counts rebound very quickly. Our little boy is Grant and he is 8 and just got leukemia last August. Guess what? As of Wednesday, he has the same hairdo as you!! Gorgeous! Have a wonderful day, I liked your birthday party pictures. Lynne, Jim, Grant and Katie www.caringbridge.org/id/grant Lynne Pekuri <Lynnepekuri@aol.com> Boise, Id - Thursday, January 22, 2004 3:40 PM CST Hi lil Maddison, I just wanted to stop by and let you know that you are one special little girl and VERY Strong!!!! :) I am praying for you and will be checking your site to see how you're doing! I hope you feel okay and are having as much fun as you can through this icky time. *warm, soft hugS* Bethany <sweetmelodiesoflife@yahoo.com> Riverton, WY USA - Thursday, January 22, 2004 0:58 AM CST Hi Maddison, I got your link from Kendries page and boy am I glad I did ! You are one pretty little girl and you have one funny Mommy. I laughed so hard at her entry. I especially like the lint part and the cow parts part. thank you for the laugh- I needed one. Take care. Lorraine www.caringbridge.org/pa/ourjohn Lorraine <Lorrainecott@aol.com> Pgh, PA USA - Thursday, January 22, 2004 0:32 AM CST I'm a day late, but I wanted to stop by and wish Maddy a VERY HAPPY BIRTHDAY. I hope your special day was as magical as it could have possibly been. I also hope you were able to fill up on lots of cake! Have an excellent week, hon! Sending lots and lots of BIG 'Happy Birthday' hugs your way!!! Shannon <humphity319@aol.com> - Monday, January 19, 2004 10:27 PM CST Happy Belated Maddy, you are gorgeous! Julie Julie <mjparater@aol.com> - Monday, January 19, 2004 3:05 PM CST Love and Hugs Carolyn ~Quilts of Love~ ~RAOK~ ~Hugs and Hope~  Carolyn <carolynj52@ilovejesus.net> - Monday, January 19, 2004 1:21 AM CST Dear Maddy, I hope you had a great birthday, and are feeling good for your very special day. You sure are one special little girl and I wish you only the best for the future. Happy 4th Birthday!!!! Love your friend, Kaeleigh <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Sunday, January 18, 2004 6:30 PM CST BUON COMPLEANNO, Pet ! I am just going off to make a fresh cream and pineapple cake in your honour ; I will draw a 4 on it with chocolate flakes (that Anthony's mum's just brought me from Cardiff). Sounds mouthwatering ? I bet. Well, you know you are invited to enjoy a huge piece anytime you want ! Just remember that when we get tucked in, it won't last very long. So, make sure you are here in a couple of hours, just when I take it out of the fridge !It is 10h40 a.m. and the kids have just woken up. I woke up at a staggering 08h40 (WOW) and the first thing that came into my (still foggy) mind was "Today Maddy's turning 4 ! WOW, you are a big girl ! Tonight, I will be dining with your favourite cawliflower cheese...fancy a bite ? I'll be glad to share ! A huuge hug to you, birthday girl on your special day. Make sure you give a huuuuge hug to Donovan and a terrif one to your Mum and Dad. I wish you all a wonderful day ! HUGS HUGS CIAO CIAO from us all Sabrina & Co. <morini@agriflex.it> Forlì, FC Italy - Sunday, January 18, 2004 3:43 AM CST Happy Early Birthday, Maddy! Jake's birthday - number 7 -is Thursday! So glad to hear you are doing so well and that you only have 4 more chemos left!!! Whoohooo! You are doing great and soon you will be in that ballet class and free from all this chemo junk! Keep going, Maddy! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Friday, January 16, 2004 7:36 PM CST HAPPY BELATED BRITHDAY BALLIRINA MADDY!!! I take dance to . i'm a tapper. Go luck sincerly Nate and meghan Meghan And Nate ~Our Angel on Earth~ www.caringbridge.org/ny/naters_page lyndonville, ny usa - Friday, January 16, 2004 8:44 AM CST Maddie you will make a beautiful ballerina. And when you grow up and become famous I can say I knew you when. (smile) I just stopped by to check on you and remind you all you are in my heart and fervent prayers. Love and hugs Judy Judy <tnderheart@yahoo.com> - Friday, January 16, 2004 2:17 AM CST First we are praying for you and your family all the time. I'm not good about signing guest books, but I do check on you at least once a day. I also have a little boy named Donovan. Holly, you could have an inter ear problem. I had that for several weeks, and what you just told about was very close to what I did. I didn't have an infection, just a problem. I makes you nuts. Hopefully it will go away just like mine did. The dr told me to rise slowly, bend slowly and MAKE SURE I ATE? Don't understand that but..... Ruthie Richardson Ruthie Richardson <grdrichardson@yahoo.com> Manvel, Tx - Wednesday, January 14, 2004 10:33 AM CST Maddy, I am so happy to get your website address so I can keep up with how you are doing. I am glad to hear you like the pink poodle purse. Tell Donovan hello for me. Remember I pray for you every day. Love, Angel Pat Pat Standard <standard@rabun.net> Clayton, Ga US - Tuesday, January 13, 2004 7:59 PM CST Dear Holly, I'm wishing you strength and praying Maddison will be in remission (forever) soon. Hang in there! All my love to your family. Ramona Davis <ramonak@directcon.net> PLacerville, CA - Tuesday, January 13, 2004 12:51 AM CST Why can't you go to Disney in the spring? Julie Julie <mjparater@aol.com> - Monday, January 12, 2004 11:34 AM CST BUONGIORNO, not difficult to guess who's writing ! Did I understand correctly about Maddy's birthday party being today ? I understood from earlier writings that you might celebrate it later than the actual date itself. Well, if you are having the party today, then Happy Birthday Party to all. Have the Chippendale boys turned up yet ? Ha ha ha. Hey, guess what ? Tomorrow I'm going back to work. It will be my first working day since Dec. 24th, and the exhibition is starting next Saturday. I really hope I will be able to write to you tomorrow as I really really wish to. Thomas is going reasonably ok although he's been in quite a lot of pain since Thursday. We're giving him Paracetamol twice a day now. I guess his tissues are scarring right now. He's practically on an ice-cubes and ice-creams kind of diet; Heaven to him ! The house is still very silent without Tom's voice and screams and speeches...Missy's ok although she cannot quite understand what is wrong with her brother. She kind of keeps at a slight distance, watching him with loving tender protective eyes, until he invites her for a hug and a kiss. Tom even made a drawing for you on the PC the other day. I'll try and send it a.s.a.p. Lots and lots and lots of wishes, hugs and kisses from us all. P.S. if you are having Maddy's birthday party today, pls keep me a slice of cake ! P.P.S. there better be at least one message from you on my work PC waiting for me tomorrow ! P.P.P.S. you have all been constantly in my heart. I love you all very very much. Sabrina <morini@agriflex.it> Forlì, FC Italy - Sunday, January 11, 2004 1:12 PM CST Just to let you know, we discussed our make a wish trip back in the summer and we deceided to wait till this February to celebrate one year in remission...now the trip is just four weeks off! So yes, you can ask for your wish to happen when YOU want it to. Hope this helps and I hope you start feeling a little better too...try and take a night off and have a date with your husband. Happy Anniversary!! Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@comcast.net> - Saturday, January 10, 2004 10:07 AM CST Dear Maddy and family, I am wishing you all a verry Happy New Year. Maddy I hope you have a wonderful 4th birthday and I hope the whole place smells like Strawberry Shortcake. God Bless and stay strong! Love, Aundrea Sims Dover, AR - Wednesday, January 7, 2004 4:03 PM CST CIAO A TUTTI, my dear friends, just checking in to see how you are all doing and to tell you that we are now home. Tom underwent surgery yesterday morning 8 a.m. Italian time. He was obviously very very sore; BUT he's very tough and very brave. We were sent home this morning around 10 a.m. He's doing fine. He's obviously still very very sore. It is also very quiet here for he is too sore to speak; he just about manages to whisper "ice" or "lolly" at regular intervals (all he is allowed to swallow for a few days). He actually does not mind in the least for he'd chew ice all day every day, notwithstanding the weather ! Lots of HUGS to you all, and a very special kiss to Master Donovan and to Maddy. CIAO CIAO CIAO P.S....thank you for thinking about us yesterday; I'm sure you would ! Sabrina <morini@agriflex.it> Forlì, FC Italy - Tuesday, January 6, 2004 11:17 AM CST Hi Maddy ! Your so pretty!. hang in there and stay away from those yucky germs ! My Nephew also has Ewings, but he's not pretty like you ;-) I will pray for you today. Keep fighting Ewings ! you can win ! Dan www.michaeldowning.org Dan Stuart <webmaster@michaeldowning.org> Peachtree City, GA - Monday, January 5, 2004 8:26 AM CST Dear Holly, Donny, Maddy and Master Donovan, BUONGIORNO - How are you Guys doing these days ??? I really really wish I had an e.mail addressed properly hooked up. It looks like Tom will undergo surgery (yes, the famous one) tomorrow morning. Unless something happens today or tonight (I have already noticed a runny nose, bags under his eyes, a generally unsettled look...maybe I'm suffering of some kind of surgery-postponing-fobia by now!), we are checking in tomorrow morning at 7 a.m. We do not know the exact surgery time, yet, but for sure, by the time you guys wake up, he will be done (I sure hope so). Anthony's taking him into the operating theatre for Tom gets tougher and gives himself more strength and courage when he is with his dad. Thank you for thinking about us and praying for us tomorrow. I hope you are all doing fine. I bet your kids are recovering from the effort of opening sooo many presents on Christmas day !Your photos showed so many, and the kids looked partcularly handsome. I love you all very much. HUGS - LOL P.S. I will (somehow) let you know how things are going with Tom P.P.S. Donny : it was nice talking with you the other day ! Sabrina <morini@agriflex.it> Forlì, FC Italy - Sunday, January 4, 2004 3:08 AM CST Dear Maddy & family, HAPPY NEW YEAR!!! I hope you've all had a wonderful Christmas and New Years celebration...I pray that 2004 will bring you all endless happy memories, lots of love, laughter, family and friends and more importantly a complete and total healing for precious Maddy...keep fighting and keep up the faith... ~*~*Girlie's Page*~*~ Love, XOXOXOXOXO Janice <janiceliew1981@yahoo.com> Melbourne, Australia - Friday, January 2, 2004 5:40 PM CST Dear Maddy, You are a hero. A hero is someone who can go through something they shouldn't have to, and still be able to smile and enjoy life. That's you! May 2004 be a year of healing and fun adventures. Stephanie and RachelJoy <sstrom@quik.com> - Friday, January 2, 2004 4:23 PM CST Hoping for a better 2004 and HEALTH to your sweet little girl...Think of you often and always read your page to see how she is doing....My very best wishes for a Happy Healthy New Year! Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@comcast.net> - Thursday, January 1, 2004 11:15 AM CST God grant us this year a wider view, So we see others' faults through the eyes of You; Teach us to judge not with hasty tongue, Neither the adult ... nor the young. Give us patience and grace to endure And a stronger faith so we feel secure; And instead of remembering, help us forget The irritations that caused us to fret. Freely forgiving for some offense And finding each day a rich recompense, In offering a friendly, helping hand And trying in all ways to understand, That all of us whoever we are ... Are trying to reach "an unreachable star." For the great and small ... the good and bad, The young and old ... the sad and glad, Are asking today, "Is life worth living?" And the answer is only in "loving" and "giving." For only "Love" can make man kind And Kindness of Heart brings Peace of Mind, And by giving love we can start this year To lift the clouds of hate and fear. ~*~*~*Wishing a happy 2004 to your family and friends*~*~*~ Sending lots and lots of BIG hugs your way!!! Shannon <humphity319@aol.com> - Wednesday, December 31, 2003 1:11 PM CST Carissima Holly it is now 9 p.m. and we are watching "The Mask". Missy's on my lap as I type this. We are all fine. I really loved talking to Donny the other night, although I was sorry I missed you. I am very glad you enjoyed the panettone I sent you. I hope you will ejoy everything else. As you can guess, Anthony has not yet fixed me up on an e-mail address, so I am unable to send you a proper message. Who knows, the new year might bring me more luck ! (or another husband more able internet-wise...). I love you all so very much. I hope you are having good days, especially Maddy...she even told me she loves me the other night, That did make my day ! Lots of hugs and kisses to Donovan, Maddy, Donny and of course you, my Pet ! HUGS Sabrina <morini@agriflex.it> Forlì, FC Italy - Sunday, December 28, 2003 2:09 PM CST Maddy it is so hard to go through everything that you are. One day it will be just a memory and you will be a normal child again. I am glad that you were able to get the presents that were asked and that Santa was good to you and your brother. Holly, stay strong and remember that attitude is everything. It is not fair that you and your family, most important Maddy is going through this. It is so hard to watch your child who once was a normal child to now not have the ability to be a normal child and is going through what she is right now... but one day she will be a normal child again. This will be a memory that you will never forget but one that makes you stronger and want to help others and make you know how blessed you truly are. God Bless Timi <tswier@iw.net> - Saturday, December 27, 2003 8:58 PM CST Holly-- Stopping by to see how you're doing. Know that my thoughts and prayers continue to be with you even if I'm not active on the Ewing's List now. I've found that I just can't keep up now that life is finally returning to "normal" for us. Rachel had her three-month scans on Tuesday and everything came back clear so it WAS a Merry Christmas for us!! I continue to pray that you get your miracle! Jodi & Rachel Hansen http://www.caringbridge.org/mn/rachelhansen <FlyingCook@aol.com> Lakeville, MN - Saturday, December 27, 2003 4:29 PM CST Hoping your Christmas was an excellent one and Santa brought you everything you asked for. I hope you and your family have a wonderful weekend! Sending lots and lots of BIG hugs your way!!! Shannon <humphity319@aol.com> - Friday, December 26, 2003 9:37 AM CST Carissimi amici, I have just connected myself to your web.site from home. I am so very sorry about Maddy having to undergo surgery (again !), about you, my dear Holly, having to leave her on the op bed and walk away. I am not surprised you collapsed on the floor. I am just so very sorry I could not be thre for you. My heart is with you all my friends, our first christmas "together". I love you all very very much. Maddy, you are indeed very very strong. A big Christmas hug to you all. With all my heart. Sabrina <morini@agriflex.it> Forlì, FC Italy - Thursday, December 25, 2003 10:07 AM CST Holly, Maddie and family, I just want you to know that even though you don't know us, we pray for you and are wishing you a Merry Christmas. We keep informed through Jason and Karla and kids. We pray you wiill know the miracle of His love in your lives this Christmas and through the New Year! Pam Hulstrand <pamhul@polarcomm.com> Portland, ND - Thursday, December 25, 2003 9:59 AM CST Merry Christmas Madison!! Love, Kim and Kody ~KODYS STORY~ <kodysmom1995@yahoo.com> - Wednesday, December 24, 2003 11:18 PM CST Cheyenne and the Fiveash family sends our love, prayers, and a wish for a Very Merry Christmas and the best New Year ever. God Bless Cheyenne's dad www.caringbridge.org/tx/cheyenne5 Roy Fiveash <rfiveash@wcc.net> san angelo, tx - Wednesday, December 24, 2003 4:25 PM CST  Jean - Quilts of Love <jean@quiltsoflove.com> - Wednesday, December 24, 2003 12:44 AM CST ~*~*~*~*~*Merry Christmas Eve, everyone!*~*~*~*~*~ If you and your family are celebrating tonight, I hope all of you have a wonderful time. Santa comes tonight and you know what that means.....plenty of presents to be opened in the morning. Yea! Wishing you all a VERY Merry Christmas Eve! Sending lots and lots of BIG hugs your way!!! Shannon <humphity319@aol.com> ***Merry Christmas and Happy New Year*** - Wednesday, December 24, 2003 5:45 AM CST Hoping you have a calm and peaceful holiday. Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@comcast.net> Sandwich, IL - Tuesday, December 23, 2003 9:20 PM CST Hang in there Holly!! My heart goes out to you as it sounds like you have MORE than your hands full with these two little ones. Try to enjoy Christmas as there is so much to be thankful for this year with her great surgery and all. I know it seems endless in the middle of treatment so can sympathize with that. Hope things go well and I'll be checking back in on you all. God bless and I will pray for more strength for you and your family to get through this treatment plan. Ugghhh!! I know it is hard!!! You can do it though!!! Liz Larson and family <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Monday, December 22, 2003 4:15 PM CST What a wonderful christmas you will all have together, we are so happy for you all. I know at times it is hard as parents, we do not get a lot of rest and are made to pack, do laundry but it is all worth it because you will have a family again. You have a gift right now and it is wonderful. Maddy and a family even though it is hard for everyone, smile and look at what you have. God Bless Timi <tswier@iw.net> - Sunday, December 21, 2003 11:29 PM CST Hi Maddy and family. Just wanted to drop in and say hi and wish you all a Merry Christmas. I think of Maddy all the time, and pray for her complete healing. She sure is one strong little girl,and is such a sweetie. I better go, but take care of yourself, and I'll be thinking of Maddy as she goes in for more poison tomorrow. I'll be praying and hoping that she feels o.k. in time for Christmas. Kaeleigh Barney <kaeleighbarney@yahoo.ca> Woodstock, Ontario Woodstock - Saturday, December 20, 2003 6:05 PM CST Hi Maddy and family! I just wanted to wish you all a Merry Christmas! I hope Santa makes a visit to your house this Christmas! I hope that the new year brings lots of happiness and joy your way. You are all in my prayers!! HAVE A MERRY CHRISTMAS! Love, Amy Knosalla <amarieknosalla@hotmail.com> Mayville, ND - Friday, December 19, 2003 9:18 PM CST Hi Maddy and Family, I am thinking of you all and I hope you have a most wonderful Christmas. Looking foward to reading a new update and praying that everyting is going as scheduled. God Bless, Aundrea Sims Dover, AR - Thursday, December 18, 2003 3:11 PM CST Dear Maddy, Donovan, Holly and Donny, for the very first time I am able to visit your web.site from home ! Maddy's been the very first sweet little face I saw from my own pc at home. It's 10 p.m. here in Italy now, it should be 3 p.m. with you. We are in the living room, enjoying our time together. Anthony just connected us to the Internet. Our mail box should be ok but we can only check that tomorrow. Maybe you'd like to send me a short note by e.mail as soon as you can so I can check if the mail works ? I couldn't wait any longer to let you know. I just hope the e.mail address will work, too. I love you all very much. I hope your day will be a good one. HUGS HUGS HUGS HUGS Buona giornata ! ...ciao holly (this was typed by Tom himself). CIAO HUGS Sabrina <sabrina-morini@virgilio.it> Forlì, FC Italy - Thursday, December 18, 2003 3:11 PM CST Hi Maddy, I just wanted to tell you Merry Chirstmas. All your family in South Dakota (grandma Janet and Grandpa george) hope you are feeling well. We all got our Christmas cards and they are awsome. Get well soon so you can come and visit. Lots of love and hugs Jamie Schultz <jamie_schultz_9@hotmail.com> Draper, SD USA - Thursday, December 18, 2003 1:46 PM CST HI Maddy and family, We will be praying that you start feeling better real soon. Always know that you all are always in our thoughts and prayers each day and can't wait for the day when you are done with your chemo treatments. I know how you feel about the cancer mom thing. Don't really think I like being part of that special group either. Not exactly the place where we thought any of us would be in our lives or ever choose to be. All we can do is Thank God for the blessings that we have with our children getting better. God bless and Merry Christmas to you all! Hang in there! Liz Larson and family <ljlarson@tconl.com www.joshuasjournal.org> Omaha, NE US - Wednesday, December 17, 2003 10:07 AM CST Hi Maddy, I am part of a group called BIBLEDOTCOM, and what we do is pray for people who need prayers, which I think we all do. I saw your friend Kodys prayer request from his mommy and daddy, and they sent me his website, and you were on there so I thought I would stop by and sign your guestbook. Maddy, do you know who Jesus is? He is the reason we are all here, He is the one who created everything you see, trees, flowers, pets, your parents, even you..and He loves us dearly. Anytime you are scared or hurting, or sad, you can talk to Him, and you know where He is? He is in people like myself, your mommy and daddy, and you. He lives in our hearts and helps us when we need Him. I think, no, I know He is with you. You are a remarkable child...and He has kept you so strong...and He will always love you. I will continue to pray for you and your family...and I wish you all a blessed holiday, for this holiday, we celebrate Jesus' birth. God Bless you Maddy! Ariane Grosskurth <thelordspainter@yahoo.com> Chicago, IL USA - Tuesday, December 16, 2003 10:59 PM CST hey maddy hope you are feeling better and i hope you have a merry christmas me my family and church are all praying for you and want you to know we love you god bless Tiffany McCrary-Central United Methodist <tmm5689@yahoo.com> Weddington, NC US - Monday, December 15, 2003 4:58 PM CST hi guys~ Maddy how are you little girl? I am thinking of you. I think your white Christmas tree sounds beautiful. They look like they have snow on them. did you help decorate the tree? I love doing that. they look so pretty with the lights on them and all the decorations. how's your momma? you know she sounds like a pretty great mom. tell her Jesus is always there giving her the strength she needs. my thoughts and prayers are always with you. hope to see you soon! minda <rexfiles@gra.midco.net> mayville, nd - Saturday, December 13, 2003 8:39 PM CST Hi Maddy and family, Glad to hear that things are going well for you and your family. I'm happy to hear that you are knocking another chemo out of the way. You are such a strong and brave little girl who have so many that love and pray for you each and every day. Geez, and I don't even have the pleasure to personally know you. You MUST be pretty special. Glad you seem to have peace in your heart this Christmas Mom and you are so right everything will work itself out. God bless you all and have a wonderful holiday season together. Liz Larson and family <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Wednesday, December 10, 2003 8:11 AM CST I was reading your journal and hope things continue to go well. My 10 year old daughter ended treatment for Ewing's in October. Her tumor was in her lower right leg. She had radiation therapy for 6 weeks last winter. Wanted to let you know that all the cleaning is worth it. I was super vigilant also, and I feel it really helped. She still is on Bactrim prophylaxsis for 4 more months. Cindy Nelson-mom to Maggie Schumann Milwaukee, WI - Tuesday, December 9, 2003 10:44 PM CST Hi MAddy ..how are you sweetie? Hope you're feeling good and getting stronger everyday. I think about everyday and pray for you too. I can still see you're little smiling face the day I met you. Tell your mom hi and she's in my prayers too. Your dad and Donovan are too. minda <rexfiles@gra.midco.net> mayville, nd - Tuesday, December 9, 2003 2:06 PM CST  I am starting my rounds early as I have many QOL children to visit, I just wanted to make sure you know we are all thinking of you and wishing you the best Christmas ever. I love the new Christmas picture! just to cute! Love Angel Toto <pat_totoofoz@yahoo.com> - Sunday, December 7, 2003 5:38 PM CST Maddy; It sounds like you are doing much, much better. That is really good news. Soon it will be Christmas. (How exciting when you are a child) It really is a fun time of the year. We still think of you often. Alden and Orpha <oal3140@polarcomm.com> - Saturday, December 6, 2003 5:56 PM CST Hey Maddie Mae! I'm glad you're feeling pretty good this round. It was fun to see you on Thursday and read and color. You're very good at coloring - and at singing! I hope to see you again soon - and your Mom and Dad and Donovan too! Keep singing! Love, Pastor Janna <revjmk40@hotmail.com> Mayville, - Saturday, December 6, 2003 10:31 AM CST Hi, Maddy! W E L C O M E *** H O M E ! ! ! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ WISHING ALL OF YOU A WONDERFUL CHRISTMAS SEASON, AND YOU'RE RIGHT, ALL THAT MATTERS IS THAT YOU ARE ALL TOGETHER. I AM KEEPING BARBIE IN MY PRAYERS AS WELL. GOD BLESS YOUR FAMILY AND I'LL CHECK IN SOON. LOVE & HUGS, GRAMMA L ~ Karen Karen LaMountain <AngelGrammaL@netscape.net> Selkirk, NY USA - Friday, December 5, 2003 10:09 PM CST Hi How's my Maddy today? Julie says Hi, also. she wants to invite you to her birthday party coming up soon. She want to know if Donovan has been a good big brother lately. When your counts are back up she would like to play with you. Have a good day. Bye, I Love You. Jean Neset <JRNeset@netscape.net> - Friday, December 5, 2003 10:04 PM CST HI Maddy. Just wanted to let you know that I am thinking of you, and hopeing that you are feeling pretty good. You are such a strong little fighter, and you to will be off-treatment someday soon. Thinking of you alway's and praying lot's. Sending big hugs your way. xo Kaeleigh Barney(1 year off treatment from ewings sarcoma) <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Friday, December 5, 2003 4:28 PM CST I tried to send you an e-mail but I don't think it went through, so I'll ask you here. In confirmation we have remembered your family in our prayers, and the girls in my small group made something they thought Maddy would like. I know how important cleanliness is (first hand), so after it was finished I did wash it and wrap it up (so it is clean)!! Could you let me know where I could leave it for you, or drop it off somewhere. I don't want to bother you by calling in case you are resting so if you could just e-mail me a message I'll do whatever works best! Hope things go well this week, I will continue to keep you in my prayers. My son goes back to Mpls. for a big checkup in Dec. so we're praying that he will get good reports too! Ardel Fugleberg <affrn@hotmail.com> Hope, ND - Monday, December 1, 2003 7:56 PM CST Hello Maddy and family. You are so very lucky as I am with having my daughter free of cancer. I am not able to buy my children a lot for Christmas but we have the best gift of all and that is health and prayers. Never forget that! Timi <tswier@iw.net> - Monday, December 1, 2003 7:10 PM CST Hi Maddy, Holly & boys! well it's Monday so you have had your chemo. I hope it well! My thoughts and prayers continue to be with you little wonder woman. I enjoyed reading the the Christmas lists. Isn't it fun no matter how old you get the list never goes away. My prayers are with you....thinking of you LOTS little Maddy! minda <rexfiles@gra.midco.net> mayville, nd 58257 - Monday, December 1, 2003 4:43 PM CST *Maddison & Family* I hope all of you had a wonderful Thanksgiving and didn't eat too much like me. Wishing you all a happy weekend. Sending lots and lots of BIG hugs your way!!! Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com> Haverhill, MA <3 Samantha's Mommy <3 - Friday, November 28, 2003 1:53 PM CST ~*~*~*~*~*~*~*~*Happy Thanksgiving*~*~*~*~*~*~*~*~ Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com> Haverhill, MA <3 Samantha's Mommy <3 - Thursday, November 27, 2003 8:26 AM CST Happy Thanksgiving little Maddy & family. Holly, I'm thinking of you and pray everyday for you. I'm here if you need anything. Right now I'll just keep the prayers coming. Little hugs to you Maddy. Minda <rexfiles@gra.midco.net> Mayville, nd - Wednesday, November 26, 2003 9:04 PM CST Hi Maddison and Family- Just wanted to wish you a very happy Thanksgiving and let you know you're in our prayers.  http://lightingchildrenslives.org Melanie Davila- Lighting Children's Lives <positivestories@aol.com> - Wednesday, November 26, 2003 3:14 PM CST Hi Maddy, Happy Thnskgiving (a day early)! You will be in our thoughts on Thanksgiving Day. I know that you have so much to be thankful for. Most importantly that you are so strong and winning this challenge. Love to you all from Dallas! Melissa and Justin <mehartley7@yahoo.com> - Wednesday, November 26, 2003 9:54 AM CST I just wanted to wish all of you a Happy Thanksgiving. Keep your heads high and think positive. You will all get through this! Maddy, I am praying for you each and everyday! You are truely a blessing to your family, and will always be. I hope you dont eat to much turkey! You take care, and keep fighting! Love, Amy Knosalla <amarie knosalla@hotmail.com> Mayville, ND - Tuesday, November 25, 2003 9:38 PM CST Hi, Maddy, Mommy, Daddy and Donovan, I just stopped by to wish you all a very Happy Thanksgiving. Keeping Maddy in my prayers. God bless all of you and have a wonderful holiday together. Hugs from Karen Karen LaMountain <AngelGrammaL@netscape.net> Selkirk, NY USA - Tuesday, November 25, 2003 0:38 AM CST Happy Thanksgiving to All!!!! I know your family has so much to be thankful for, but don't we all? My girls, Mattie and Laney are very excited about Thanksgiving. They get to stay home from school and pre-school and Mommy and Daddy stay home too. You can't beat that! Maddie, I am so proud of you, you are such a terrific child, and your family is blessed to have you in it. Your Christmas pictures are beautiful and I love your dress, you look like a little doll. I hope you have a wonderful Thanksgiving visiting with your cousins. Mattie and Laney will be visiting their cousins as well. We got our Christmas tree and other decorations down from the attic last night, so gues what we will be doing tonight?? That's right, putting up the tree. We tend to rush Christmas, but it's our most favorite time of year. I hope you continue to feel good. God Bless You All. Aundrea Sims Dover, AR USA - Monday, November 24, 2003 3:42 PM CST I have been meaning to write to you Maddy & Holly. You two totally made my day the other day when I saw you at the hospital. For those of you who haven't met Maddy I must tell you she is the neatest, sweetest, & most adorable little girl. Maddy you are truely a little angel you know that. You really brightened up my day. Wish it wouldn't have been so cold that day and we could have visited longer. Jackson thought you were pretty neat too. So what's on your Santa list? My kids have a very long list too. Every commercial that comes on gets them wishing & wanting. I think about you everyday Maddy and pray that Jesus watches over you and gets you better VERY soon. You are a true blessing and I feel blessed to have gotten to meet you. Take care you guys and remember to call if you need anything! ; ) Minda <rexfiles@gra.midco.net> Mayville, nd - Monday, November 24, 2003 1:39 PM CST Hello Miss Maddy! I am waiting for Santa, too! I already have my list made out and ready for him. I live really far away from you...in Texas. We don't have snow here like you have in North Dakota, but I sure do wish we did! I check your journal everyday to see how you are doing. Just wanted you to know that someone in Texas was thinking of you and praying for you! God Bless You and Your Family. Emma <pek_1@charter.net> Spring, TX USA - Monday, November 24, 2003 12:43 AM CST Hi Maddy! I am a friend of your Aunt Karla's. I read about you every week and I am glad you are home and doing well. You are such a beautiful girl. I hear you are very anxious for Christmas and Santa Claus to come...they will be here before you know it! God bless you all. Jacqy Fargo, ND - Monday, November 24, 2003 8:51 AM CST Good to hear that you are all doing real good. You continue to be in our thoughts and prayers. Hope you stay well so you can enjoy the holiday this week. You have much to be thankfull for. And, yes it is still 31 days until Christmas. Really, it is, Maddie. Alden and Orpha <oal3140@polarcomm.com> Arvilla, - Sunday, November 23, 2003 10:39 PM CST Hi, All You all look so great in the Christmas pictures. I leave on Tues. to go to my sister's for Tday and my 60th birthday. My grandnephew will be two on the same day. I'll get to meet him and my one year old grandniece. My sister thought this would be a good idea because of my age milestone. Hey, Maddy. You ask me what I'm giving you for various dates, so, "What are you giving me for my 60th birthday?" I'll settle for a big hug. Pamela Pamela Duthie - Sunday, November 23, 2003 4:42 PM CST Hi Maddie and family, Glad to hear things are going well and I love your new picture Maddie. So happy that your surgery is now behind you and you can concentrate on finishing out your chemo. Hang in there everyone and take ONE day at a time. I know it is a long road, but it goes by faster than you think. I am sitting here thinking about this week last year as that is when Joshua was diagnosed. It is hard to believe and such intense memories from last year. I lean on God each day to get me through. God Bless and try to enjoy this Thanksgiving as her great surgery outcome is certainly something to be thankful for. What a miracle God performed by shrinking that tumor that much. We will keep praying for you Maddie and your family. Liz, Jay, Justin, Tanner and Joshua Larson <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Sunday, November 23, 2003 8:57 AM CST HI Maddy. I am so glad to hear that your doing much better. I absolutely love your christmas pictures. Such a cutie you and your brother are. I'll be thinking of you, and praying that everything continues to go well for you. Take care sweetie. xo Kaeleigh Barney <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Sunday, November 23, 2003 8:19 AM CST Hi Maddy! I love your Christmas pictures. Your dress is very pretty. I hope you and your family can come to Uncle Jason's Christmas program at the church on Dec. 7th at 3:00. I think you'll really like it. We have trumpets, flutes and even big drums. I bet you'll even know some of the songs Uncle Jason will be singing. I'll be real busy playing the piano, but I'll be able to talk to you after the program. Hope to see you there. Deb Kyllo <dck@polarcomm.com> Mayville, ND - Sunday, November 23, 2003 6:44 AM CST Hi Maddy and Holly, I am so happy you are doing well Maddy. I pray for you all the time. You are such a miracle and I admire you so much for the strength you have. You are such a beautiful little girl. And Holly I think of you often and admire you for your strength too. I will keep praying for all of you and hope God continues to answer our prayers. Jill <jholt@polarcomm.com> Mayville, ND United States - Sunday, November 23, 2003 2:10 AM CST It is hard having a child with cancer. All of us who have had a child with cancer or going through cancer, understand the work that goes along that. You worry, you look into everything and you make everything clean. You are very blessed you have Maddy and everything you are going through is so worth it. Please never forget that. God Bless you and your family. Timi <tswier@iw.net> - Saturday, November 22, 2003 8:54 PM CST Oh my goodness! What a pretty picture...Maddy you are sooo pretty! You look so good I am so happy that you are feeling better. Holly please know that if there is anything and yes I do mean any thing that I can ever do for you and your family just let me know....I hope all keeps going well for you.. My thoughts and prayers are with you! love Margaret <snicky_kix@yahoo.com> Portland, nd us - Saturday, November 22, 2003 2:02 AM CST What a beautiful family picture. Wishing you all the best, Mary Mary <Hack1sjo@aol.com> St. Joseph, IL - Saturday, November 15, 2003 6:02 PM CST Hey Guys. Please know that we are here for you in our hearts and in prayer every single day. Maddy...is that really you in that beautiful Christams picture??? My goodness..you are sure a heartbreaker and a heart stealer to because you have stolen mine!! Love you all!!!!! Kim and Kody Bear ~KODYS STORY~ <kodysmom1995@yahoo.com> - Saturday, November 15, 2003 10:42 AM CST Hi Holly - just letting you know I am thinking and praying for you guys. I think of little MAddy so much! Glad you are back home. Prayers to all of you. minda rexine <rexfiles@gra.midco.net> mayville, nd - Thursday, November 13, 2003 2:04 PM CST Hi, Maddy and Mom! Sorry to hear that your experience at Mayo's was a frustrating one. I have heard much the same from many people. They do great things there, but drop the attitude. It's nice to be in a place where you know people and they care about you and your opinion. Hope this chemo goes quickly and how awesome then you will be halfway done! Can you believe it? Jake's nausea started to subside some once we got to the halfway point - hopefully that will be true for Maddy too. Hope you feel better too. I can't imagine with how physically and emotionally exhausting all this is to have to do it with fibromialgia! I'll pray for strength for you and your family. Take care and hang in there! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Thursday, November 13, 2003 7:46 AM CST HI Maddy's mom, Found Maddy's site from another CB site. Sounds like you are feeling a little blue - it sure is hard to keep up the fight for our kids and not feel a little down now and then. I find it helps to take a little me time (as hard as that is to do) an I can come back feeling a little better. Here in Ottawa the grey November day's don't help either... Anyway {{{Hugs to You}}}. Sue (Katie's Mom dx Pre-B ALL Aug 03) Sue Harvey <harverd@rogers.com; http://www.caringbridge.org/canada/katiespage> Ottawa, Ontario Canada - Wednesday, November 12, 2003 2:27 PM CST HI Maddie and family, Just signed on real quick to check up on you and thought I would send you a note to let you know that things will get better soon. CONCENTRATE on one day at a time and don't try to plan for your future right now. As hard as that might be, as I am a huge planner too, it is very important for your sanity not to worry too much ahead. Really not worth it as you do not know what will happen and your worrying doesn't help anyone, mostly yourself. I know SO MUCH how you just want to know that Maddie is going to be okay, because I say that ALL THE TIME about Joshua. If I just knew he was going to be okay then I could get through anything. Unfortunately, that is not going to happen and we have to trust in the Lord to carry those worries for us. TRY to find some time for yourself even if it is only 20 minutes or so (take more if you can get it certainly). What did you love to do before? Mine was taking some time to go to the gym and exercise and that makes a huge difference when I can get there. Whatever it is try to find some time it makes all the difference. Do it for your kids, because you can be a better mom if you can get a break. I know what you mean about the constant bickering and that can drive you crazy in itself. AND don't worry about repaying anyone now, you can do all the volunteer work or charity work you want when Maddie is all better. Your most important job now is taking care of yourself and your family and noone expects anything else from you. Remember Maddie is Superwoman, not you! Just a little joke but you know what I mean. You are doing the best you can right now. Focus on the positive, think about what you all just went through and savor that great feeling. We will continue to pray for Maddie and your family and may God bless you with the strength that you need to carry through each day. Hang in there! You can do it! Liz Larson <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Sunday, November 9, 2003 6:02 PM CST In your journal you say "So many people have been so kind and generous to us and I feel like I have nothing to give them in return" well that's silly. Everytime somebody gives you something you are giving them back something bigger than you know A BLESSING- nothing is unworthy of the Lord-No action is unimportant,no effort too tiny. And the Lord takes notice of them all.- see when you allow other people to give to you, you are granting THEM a blessing. So actually by receiving you are too giving. Also, I think it's great that you're expressing yourself through your journal and also lets other parents know they are not alone in their feelings. That too is you giving and sharing.Anyway, I just wanted to say that because I can feel your emotions and nobody likes to feel like that. And when the "whatif's" attack, do what I do, answer them and realize that life still will go on even if all of the whatif's occured. "Live each day as if it's favorite holiday! nobody's guaranteed another day!" I read that in a guestbook and now live by it. (((hugs)))And should you ever need a friendly ear, I'm just an email away! Melanie Davila <positivestories@aol.com> - Sunday, November 9, 2003 10:44 AM CST Hi, Maddie and Mommy ~~ hoping Wonder Woman is doing well. Mom, you've got to stop listening to "stories" - remember all the scary pregnancy stories when you were pregnant? You'll hear the same with an ill child. And please don't feel guilty if someone else's child gets ill. That is totally beyond your control. Just enjoy each day, as all of us must do. God bless and Maddie is in my prayers. Hugs from Karen aka Gramma L Karen LaMountain <AngelGrammaL@netscape.net> Selkirk, NY USA - Friday, November 7, 2003 10:48 PM CST Hey Maddy! I'm not sure if I've ever signed before, but after loosing your address for quite some time, I was happy to see that smiling face of yours again! I'm so glad that you are back home. I hope you guys are all feeling better and giving Mommy and Daddy a bit of a break! If you are ever in need of a more cheerful hospital visit, I'm not far from the Mayo (I live in Minneapolis) and would love to ease your visit! Hope that this weekend brings lotsa laughs and giggles! Maddie Paguyo www.caringbridge.org/mn/maddie <madelinepaguyo@yahoo.com> - Friday, November 7, 2003 9:26 PM CST Welcome home! It's always nice to hear that you're in your own place, seems to make everything feel a little better! I'll check back soon for some more good news.  Melanie Davila <positivestories@aol.com> - Wednesday, November 5, 2003 6:07 PM CST Maddy, YOU ARE AMAZING! What wonderful news, and you are home already! I am so happy for you and your family! Ronnie Wood <ronniewood@comcast.net> Scotch Plains, NJ - Wednesday, November 5, 2003 12:27 AM CST Welcome Home!! What great news. I'm sure it will take awhile, but your life should return to some normalcy now. Maddy is definitely one of God's Miracles!! Deb Kyllo <dck@polarcomm.com> Mayville, ND - Wednesday, November 5, 2003 6:08 AM CST So glad to hear you are home again. It is a wonderful feeling to be able to sleep in your own bed again. Sounds like Maddy is doing great. That is so good to hear. Alden and Orpha <oal3140@polarcomm.com> - Tuesday, November 4, 2003 9:16 PM CST I am so happy for you and your family! I check your website each and every day and keep you in my prayers and thoughts. Lynn Perry <jaylynnperry@yahoo.com> Omaha, NE USA - Tuesday, November 4, 2003 8:44 PM CST welcome home! what a wonderful surprise to read that this morning. I am so happy Maddy is doing so GOOD! You guys are back just in time for all this snow. Let me know if you need anything. I will give you a call when things calm down a little for you guys. So happy your home and look forward to seeing you! Minda <rexfiles@gra.midco.net> mayville, nd - Tuesday, November 4, 2003 11:12 AM CST I am so happy for all of you. Even though you don't know me, I have been checking the website and doing a lot of praying for your family. I know first hand about the power of prayer and the importance of support from as many people as possible. We spent 4 mo. in Rochester and 5 mo. in Minneapolis with my son through his leukemia and transplant, but THANK THE LORD, we too were blessed with a miracle!! You meet so many along the way that don't get their miracles, and they touch our lives in a way that is difficult to explain or understand. I'm so happy you got your miracle and my best to you through this healing process!! There's no place like home, right? Ardel Fugleberg <affrn@hotmail.com> Hope, ND USA - Monday, November 3, 2003 8:35 PM CST Maddy, you go girl!!!! You are do strong and couragous, you amaze me!!! Hi Holly, I am rejoicing with you. Maddy is a true testament that prayers are answered. Everytime I read your entries they are so inspirational they bring tears to my eyes. I can only imagine the emotions you and your husband have been going through. Maybe now, you all can rest and return to an emotional norm. God Bless you all Aundrea Sims Dover , AR - Monday, November 3, 2003 10:53 AM CST Hello Holly~ sorry to have missed your call last week. Jackson had a good appointment and it was good to see Dr.Moir but we are always anxious to get home, so we left right after his appt. I am so glad things continue to improve for Maddy. The power of prayer. There's nothing better. I can't wait to see little Wonder Woman when she gets back home. When I was a little girl I used to pretend I was wonder woman. Brings back memories of Wonder Woman. We'll have to play when she gets back. I know how you miss the comfort of your bed. There's no place like home. Tell Dr. Moir we say hello and we'll keep those prayers coming. Tell Maddy she is so special and the true wonder woman in my eyes now. Be strong Holly and remember I pray for you. so hard for a mom to see her child go through this. Be strong in your Faith. hope to see you soon! minda rexine <rexfiles@gra.midco.net> mayville, nd - Monday, November 3, 2003 10:14 AM CST Friends of the Caring Bridge. What has happened with Maddy is wonderful beyond words. I don't think Caring Bridge is just for little ones with cancer and I received a letter today. You are all so good and effective and praying that I ask you to offer up a prayer for the little girl and her family in the letter I've pasted in. Sent: Monday, October 20, 2003 8:52 AM Thursday night an 8-month-old little girl named Delaney pulled a hot Fry Daddy on her body. Her Mom, Deena, pulled her out of her walker and also burned herself. They life-flighted the little girl to Scottish Rite and then to Parkland Burn Center in Dallas. She has 40% burns on the trunk of her body. They are going to amputate at least 3 fingers on one hand and will have to graft skin from her Mom and Dad to help repair her. She is in critical condition and her lungs have filled with water. They don't know if she will live or not. They say the next few days will decide. They live in Florence, Texas and have two other children. THEY NEED AS MANY PRAYERS AS THEY CAN GET. Will you please forward this to as many prayer warriors! as you can? It only takes a moment to say a simple prayer for this sweet baby, and prayer is much more powerful than most people realize! Please - take minute to pray for this baby girl, and forward this request to anyone else you can. THANK YOU! Krista Heinold 2505 N.Navarro Victoria, Tx 77901 Pamela <docd1128@polarcomm.com> - Monday, November 3, 2003 1:05 AM CST Hi Maddy, I found your link while I was checking on a friend of mine, www.caringbridge.org/ia/jordangrosclaude. You sound like a very strong and brave little girl, keep up the good work!! Wishing you all the best from here in Illinois, Mary Mary <Hack1sjo@aol.com> St. Joseph, IL USA - Sunday, November 2, 2003 4:50 PM CST Just a note to say Amen and that I am so glad that Maddy is doing so well! I hope all continues to go so well for all of you...you deserve a break...I have been trying you Holly but you arenever in the room..oh well I like talking to Donny also... love and prayers....... Margaret <snicky_kix@yahoo.com> Portland, ND - Sunday, November 2, 2003 3:38 PM CST Hey Maddie Mae! God is certaintly good and all the prayers are holding you up. Holly and Donnie - please take care of yourselves in the midst of all this. I'm so excited to hear all the good news and know that God will give you strength and rest. My prayer bracelets are about worn out - but, don't worry - we continue to make more of them! All the silver is worn off the butterflies on mine just for Maddie. I continue to pray for no pain and healing, healing, healing. Hang in there. I can't wait until you're back in Mayville to get some of those hugs (and to give some). Prayers to all ... Pastor Janna Mayville, ND - Friday, October 31, 2003 8:30 AM CST Just checking on you again Maddie and thrilled to see you are still surprising everyone with how well you have done. I knew you would breeze right through it and amaze everyone just as Joshua did. Maybe that is where we are suppose to get our strength from is through these awesome kids who have gone through so much. God is Good! Liz Larson <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Thursday, October 30, 2003 11:36 PM CST We are so excited that everything went so well!!!!We are all thinking of you daily and you are all in our prayers. sTay strong-you've been tough up till now-keep it up!!! If you need anything let us know. Jeanne Walden <lmh@polarcomm.com> Portland, nd usa - Thursday, October 30, 2003 9:20 AM CST Good morning Maddy - Just wanted to say Hi and hope you have a good day. You never leave my thoughts. Minda Rexine <rexfiles@gra.midco.net> Mayville, ND - Thursday, October 30, 2003 6:58 AM CST I am so very very glad for all of you. God Bless! Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@yahoo.com> - Wednesday, October 29, 2003 8:56 PM CST Maddy The Wonder woman You came through the surgery fine, the Surgeon was real pleased. He thinks he got all the cancer And we are all relieved. You truly have been blessed what a Wonder Woman you are of all the patients they have had you're one of the best, by far. Now that the surgery is over and you get back on your feet, there are so many things to do and you have people to meet. There's the Doctors and the Nurses, and the patients that are here, and all those who come to see you, and your parents who are near. You will have many stories to tell for many, many years Everyone will listening to you as we wipe away our tears. Many have been praying for you because we love you so everyone is now so happy, more than you'll ever know. Please, do one thing for me each and every day, Thank the Lord for answering ALL the prayers we've prayed. Alden Alden <oal3140@polarcomm.com> Arvilla, ND - Wednesday, October 29, 2003 5:48 PM CST I don't have words to express how happy I am for you guys. What a wonderful BLESSING! This is so GREAT! I was really hoping to meet Maddy when we were in Rochester but our paths didn't cross. I was certainly looking for you guys. We'll just have to get together when you get her back home and she's up to it. My prayers will be with Maddy and her recovery and you Holly and Donnie too. I bet you feel like you can actually breath again. Thank you God for this wonderful blessing. Our prayers are with you. Minda Rexine <rexfiles@gra.midco.net> Mayville, ND - Wednesday, October 29, 2003 2:23 PM CST I Just want to say THANK YOU GOD! I am so happy for all of you! Now, get some peaceful rest. and Yake some time for yourselves. I heard that big sigh of relief all the way here! Talk to you soon! Kathy Kathy Ellingson <kellings@polarcomm.com> Galesburg, ND 58035 - Wednesday, October 29, 2003 1:02 PM CST I AM SOOOOO HAPPY FOR ALL OF YOU!!!! I knew she would make it! God does do mircles; and Maddison is a perfect example!!! COGRATS!!!! Love, Amy Knosalla <amarieknosalla@hotmail.com> Mayville, ND - Wednesday, October 29, 2003 11:15 AM CST Praise the Lord!!! John and Carolyn Motter Hope, ND Steele - Wednesday, October 29, 2003 10:23 AM CST I knew when I checked Maddy's site today there would be good news! Way to go, Maddy!!!! How great you don't have to have radiation. Prayers for a quick recovery - we are so happy for you guys!!! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Wednesday, October 29, 2003 9:50 AM CST Praise the Lord! How magnficent that his will has been done. Go to the Lord and bended knees with praise! It is wonderful to read and share in your joy. Thank you for sharing your previous daughter with us. Melissa <mehartley7@yahoo.com> - Wednesday, October 29, 2003 9:22 AM CST Maddy, Holly & Don THANK YOU GOD!!! God does answer prayers and everyone's prayers have been answered. He gave the surgeons the knowledge, Maddy the strength, and everyone else the faith that Maddy was going to pull through this just fine and show this cancer who was boss. The nurses at Merit Care came in and told us the news last night. Brittany started crying, as did we, and said God did it Mom. It was such wonderful news. Give Maddy a big hug from us and also to each of you. Our prayers continue to be with all of you every day. These prayers will not stop. Take care and God Bless each of you today and always. David, Diane & Brittany Wells <www.doubled@polarcomm.com> Larimore, ND - Wednesday, October 29, 2003 8:55 AM CST THANK YOU GOD!!! I am so thrilled to hear your good news. That is awesome! Way to go Maddison! I will continue to pray for her and your family. Your biggest hurdle out of the way and you will be home soon. God bless you all! Liz Larson <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Wednesday, October 29, 2003 8:35 AM CST PRAISE THE LORD FOR HE IS WORTHY OF PRAISE!!!!!!!!!!!!! Pam Hulstrand <pamhul@polarcomm.com> Portland, - Wednesday, October 29, 2003 8:08 AM CST What wonderful news!!! I thought of Maddy many times during the day yesterday. Our prayers have definitely been answered. I can hardly wait to see Jason at choir tonight. You guys are going to have a wonderful Thanksgiving. You have so much to be thankful for. We'll keep the prayers coming. Have a good week. Deb Kyllo <dck@polarcomm.com> Mayville, ND USA - Wednesday, October 29, 2003 5:54 AM CST IF i COULD PUT THIS IN 200 PT FONT I WOULD. YES YES YES! Pamela Mayville, - Tuesday, October 28, 2003 11:44 PM CST Hi Everyone - this message is to everyone that reads this web site (except Holly - since she is the one that called me with the news.) Holly doesn't think she will get the web site updated tonight so here is the info. About 6pm Maddy was out of surgery - everything went awsome, they got they whole tumer - part of which was dead - they wont have to do radiation. I just wanted everyone to know what she told me. God does answer prayer, but keep the prayers flowing. Jean Neset <JRNeset@netscape.net> Mayville, ND USA - Tuesday, October 28, 2003 7:48 PM CST What wonderful news!!!! I will be praying for Maddy and your entire family. Thank you God! Timi <tswier@iw.net> Sioux Falls, SD - Tuesday, October 28, 2003 3:50 PM CST I am praying..and cheering for the surgeon to get it all! I want a healthy Maddy back! All my love and prayers! Margaret Portland, nd - Tuesday, October 28, 2003 12:53 AM CST Yipee Yipee Yipee regarding Monday's news. She is in surgery as I send this. Go surgeon go! Get it all. Send us back a healthy Maddy. Pamela Mayville, - Tuesday, October 28, 2003 11:37 AM CST I am happy to read that you recieved some good news for once! I am praying for the surgery to go well! Take care I will be praying for you ALL today. in my pryers Nicole W <nicole54660@msn.com> Tomah, WI - Tuesday, October 28, 2003 7:58 AM CST Ps... I got a pink wig for her! Margaret <snicky_kix@yahoo.com> - Tuesday, October 28, 2003 3:13 AM CST I am so happy I am in tears! I can't wait to hear more good news....I will check back in tomorrow before and after work...I say a prayer for you everynight! I am so glad that you got the reports you were praying and waiting for! hugs to all of you... lots of love! Margaret <snicky_kix@yahoo.com> - Tuesday, October 28, 2003 3:10 AM CST What good news you have. That is really great. The power of prayer is already showing. We will be thinking about you tomorrow. Our prayers are with you. Alden and Orpha <oal3140@polarcomm.com> Arvilla, ND - Monday, October 27, 2003 10:22 PM CST Wow! That's great news! :) I will be praying for Maddie and a successful surgery tomorrow! In His Strong Love, Cassandra <cmraven@msn.com> Albuquerque, NM - Monday, October 27, 2003 10:08 PM CST Woooowwww! I am so excited for you guys and this awesome news!!!! Can you hear me cheering from Nebraska!!! I am so happy that chemo, though terrible with the side effects for Maddie, has worked wonders on that tumor. That is so great!!!!! I will be sending up extra prayers tonight and tomorrow for a successful surgery and quick recovery. I'm sure it won't slow her down too much. Joshua bounced back pretty quick after his 7 hour surgery, so Wonder Woman will be running the halls in no time. God is good! Way to go Maddison!!! (I mean Wonder Woman!) Liz Larson <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Monday, October 27, 2003 9:35 PM CST Hi! What an awesome report. I talked to Jason at church on Sunday and he told me that Maddy was go, go, going!! What a kid. I'll get the latest scoop from him at choir on Wednesday. I'm glad you can see the light at the end of the tunnel now. Prayers for Maddy and you guys are being answered big time. Good luck tomorrow!! Deb Kyllo <dck@polarcomm.com> Mayville, ND USA - Monday, October 27, 2003 8:06 PM CST Hi Holly Thank you for the update. I only checked the cite about 6 times today. We well be praying tomarrow for Maddy and You. Sorry I missed your call yesterday, but someone has to teach Sunday School. Cant wait for you guys to be home. Jean <JRNeset@netscape.net> - Monday, October 27, 2003 8:00 PM CST Glad to hear your good news. Best of luck with the surgery. I will continue to check on her daily. Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@yahoo.com> - Monday, October 27, 2003 7:52 PM CST Hi Maddy, Holly & Don Our prayers have been and will be with you everyday. Maddy will come though this surgery and be up and dancing like you said. With all of the prayers that are being said there is no other way it can go. We will be at Merit Care with Brittany tomorrow and I am sure they will be calling down there to see how Maddy is doing, so we will keep checking with the nurses tomorrow on the progress of Maddy's surgery. Take care and God Bless You All. David, Diane & Brittany Wells <www.doubled@polarcomm.com> Larimore, ND - Monday, October 27, 2003 1:03 PM CST Hi, Maddy and family! So glad you guys got to have such a good day. Poor geese - that is disgusting. I'm sure the paper would enjoy the story and might get some action. Good luck on your apts. tomorrow! We are headed for round #13 this week! Doesn't seem possible, but here we are! I loved the stories about Maddy and how she loves people and obviously everything about life. That attitude will get her through this! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Sunday, October 26, 2003 9:52 PM CST Hey Don, Holly and Madison.. Geez.. I miss you so much.. seems like way too long since we have talked!.. I had my friend Jeannie here for 5 days.. then went up to Grand Forks and taught CPI this weekend.. I have had you on my mind constantly... I still have money for you from the bracelets sold at the convention.. I am prying for you all all day and night long.. and missing you every second.. Here is my left over strength.. sending it for you to use up +++++. Oops, better save a little for myself for tomorrow.. I'll be waiting and praying.. I love you and I am so proud of you.. You are doing so awesome Holly. maybe we need to come up with a geese fund??? hugs to Maddy and Donny...Pam Ask Maddy if we are doing white wedding shoes?? :) Pam <pterfehr@aol.com> Christine, ND - Sunday, October 26, 2003 8:29 PM CST Hi Maddy and family, So glad to hear you did so well on your scans. What a brave little girl you are. We will pray that all the scans looks good and that surgery will be an easy and successful one. We will also continue to pray for strength and healing for the whole family as it sounds like some of you are a little under the weather. Just what you needed, huh? But then again it is amazing how stress can affect each of us and make us more susceptible to illnesses. Hopefully they will feel better soon. God bless and I will check back on Monday to see the good news on the scans. Hang in there! Liz Larson <ljlarson@tconl.com www.tconl.com/~larsonfamily> Omaha, NE US - Sunday, October 26, 2003 10:17 AM CST Hi Holly- I am so glad to read your update - I have been checking it everyday. My thoughts and prayers have been with you guys so much. I wanted to tell how much I enjoyed talking to you the other day on the phone. We are heading to Rochester Monday am for Jackson's appt. Hopefully we can hook up. Do you still have our cell#? Praying for you and little Maddy. Minda <rexfiles@gra.midco.net> Mayville, nd - Saturday, October 25, 2003 11:09 PM CDT Maddy, Holly & Don: Hi there! Just checking in to see if you have an update for today. We hope your day went really well and that Maddy had lots of fun at Camp Snoopy. Donovan was really good today! I made 15 quarts of apple sauce today and Donovan gets to take some home! Actually I told him that I would bring some to his house for him, but he can take some back to Grandma's tomorrow too. I gave Donovan lots of hugs and kisses "from Mom & Dad" (after we talked to you on the phone), and they were the tightest hugs he has given me. And boy did he give lots of kisses! So this is back at ya Mom & Dad! XO XO XO XO XO XO XO XO XO XO XO XO XO XO XO XXXXXXXXXXXXX!! Tonight he was being such a charmer. We were cuddling and I was drawing on his face lightly with my fingers. Since I told him to close his eyes, he did keep them closed, but he was giggling and couldn't stop. I couldn't help but giggle with him!!! It was so funny. So then I tried it on his back and he did the same. We were both laughing!! He has been so great! If I could take next week off from work, I would - just so he could stay at our house longer, but I have a lot going on right now. So he'll be going back to Grandma's tomorrow. Take care of yourselves and try to get some rest before Tuesday! We love you all and pray for strength! Karla, Jason, Austin, Alexis & Donovan <kmiddles@microsoft.com> - Saturday, October 25, 2003 10:37 PM CDT Hey Maddy and gang, We have been praying and praying for all of you this past week and weekend. Thanks for all the hugs and kisses on Wednesday, Maddy. Those are keeping the prayers on my lips and in my heart at all times! Hang in there and let God hold you up. Hope you got to see the geese by now and have had a little fun over the weekend. We love and miss you in Mayville! Pastor Janna <revjmk40@hotmail.com> Mayville, ND - Saturday, October 25, 2003 5:10 PM CDT Holly -n- Donny, Just a quick note to let you know that I was thinking about you and wanted to remind you that we pray for you everynite.... I pray that everything keeps going well for you... love you! Margaret <snicky_kix@yahoo.com> Portland, nd - Saturday, October 25, 2003 12:38 AM CDT Holly, Maddy and family; We had a real fun day yesterday. Three of the sisters(Karlas family)got together with their Mom, for the annual"apple turnover bake" day. All the kids had a great time. Donovan had a fun day,too. He rode bikes and played all day. When they were ready to go home, I asked him to come over to me and I put my arm around him and told him "thanks for coming to our house today". And then he turned around to me and gave me the biggest hug you ever saw. That just melted my heart. So then everybody said, "do I get one too? Then he gave everybody a big hug. I bet he slept good last night after all that activity in one day. Sounds like Maddy is doing great. What a good girl you have. Your family continues to be in our prayers. We think of you many times each day. Alden and Orpha <oal3140@polarcomm.com> Arvilla, ND - Saturday, October 25, 2003 10:25 AM CDT Praying that all goes well :) In His Strong Love, Cassandra <cmraven@msn.com> Albuquerque, NM - Saturday, October 25, 2003 1:08 AM CDT Don, Holly & Maddy: We are all thinking and praying for you. It sounds like the tests went great! Maddy is a little trooper! She is a brave little girl and very strong as well. We hope you have a good weekend now before surgery next week. Donovan came home with us last night and did great. Today, we went to my parents house for baking. Donovan got to play with Austin & Alexis' cousins. Auntie made apple turnovers and donuts (there will be some in your freezer waiting for you to come home :) ) and the kids played and played all day long. Donovan didn't want to go very far from my side. As long as I was in his view though, he was fine. My sister Kathy and I took all the kids to Nelson's Pumpkin Patch in Emerado. Donovan found a kid size wheel barrel and pushed it everywhere. He didn't go very far without it. They also had a small John Deer tractor for him to drive around (like a tricycle). He had lots of fun! I took pics that I'll share with you. On the way home, the kids had an interesting talk. It was fun to listen to them. I had just about hit some deer on three different occasions. Meanwhile Donovan was talking about his Dad's Ford in the garage that was damaged from hitting a deer. The conversation led to Ford vs. Chevy cars. I'm sure you can imagine how that discussion went between Austin & Donovan! :) He said that his family likes Fords and Chevy's. Then they talked about Maddy. Lexi asked how she was doing. Donovan told her that she was fine. Lexi asked about her feeding tube and Donovan told her again that she was doing fine. Then I asked if Maddy went to go have surgery, and he replied, "Yes, and she is going to get better so she can come home." We all did some cuddling tonight as soon as we got home! Sorry we missed your call!! We cuddled and then the kids went to bed. I didn't check messages until I started this message for you. We should be home all day tomorrow (Saturday) if you would like to call again. We'll try calling you in the morning as well. We hope Donny is feeling better. Try to get some rest Holly. You are so strong and an awesome MOM!! See you in a week Maddy! We love you all!!!!! Karla, Jason, Austin, Alexis and Donovan - Friday, October 24, 2003 9:04 PM CDT just stopping in to see how thing are going? crystal - caringbridge.org/mo/crystalcoin <angie_l_coin@yahoo.com> - Friday, October 24, 2003 2:01 PM CDT Please take a moment and visit my new site /www.caringbridge.org/ky/sweetpeascorner Love in Christ Kelli Froman <lilk_21@yahoo.com> Louisville , KY US - Thursday, October 23, 2003 6:44 PM CDT Hi Holly and Donnie...This is a prayer that I have that is really important to me, and I wanted to share it with you. A prayer IN SUFFERING AND ILLNESS: Lord God, help me to be open to what you want to di in my life through this suffering. I do not understand why I suffer, but I know that you once suffered, and that today you are with me as I suffer. I find suffering difficult and more than I can bear alone. So help me to rely on the truth of your word that, with suffering, you will provide the strength to bear it, or a way out. Help me to look forward in faith to that day when you will come to tranform my lowliness into your glory. Amen I know that this time is tough...I can not even imagine. I hope this prayer gives you some light and hope through this week, and always. I know Maddie will get though this. You are all in my prayers!!! Love, Amy Knosalla <amarieknosalla@hotmail.com> Mayville, ND - Thursday, October 23, 2003 1:21 PM CDT Donny -n- Holly.... Just a quick note to tell you that I am praying for you to have a speedy recovery for Maddy! I know that I can only imagine what you are going through but if there is ever a time when you just need someone to talk to or just a shoulder to lean on you know where to find me...you two are like family to me..geesh it's not just anyone I would go out and buy treats for at 12:15AM then deliver them....I continue to keep you all in my thoughts and prayers.. all my love! Margaret <snicky_kix@yahoo.com> Portland, nd - Wednesday, October 22, 2003 11:54 PM CDT I check in on your website every day and so enjoy reading your entries. It saddens me when the load you carry seems to overwhelm you. Remeber that the Lord will never forsake you or turn his back on you. During your darkest times he is there to carry you through. Spend some time on bended knees and allow the Lord to show you. With love, Melissa <mehartley7@yahoo.com> Wylie, TX - Tuesday, October 21, 2003 1:59 PM CDT you are all in my prayers each day. Liz Powers Sewanee, TN USA - Tuesday, October 21, 2003 10:06 AM CDT You don't know me but I've been reading Maddy's page for a while. I have a friend whose three children have been transplanted for MLD. I've found a lot of children who are suffering as well as their families. What a beautiful family you have. My heart goes out to you. May God reach down and surround you with his love and comfort. Vickie MI - Tuesday, October 21, 2003 7:23 AM CDT Holly: Hang in there girl! You may feel like you are weak and everything is falling apart, but yet in your journaling I can see your strength. God sent Maddie to you for a reason. He knew she would have a wonderful, loving family to help her through this. You're doing it!!! At some point, all this will seem like a bad dream, but yet you will have gotten through it. I feel very positive just because of the good days that Maddie has been having lately. She needs those going into the tough days ahead. You'll be able to do it. I think it is just wonderful that people from all over are praying for your family whether they know you or not. Your family has had an impact on so many people. There are so many positives going into the next few weeks, so hang in there. Deb Kyllo <dck@polarcomm.com> Mayville, ND - Tuesday, October 21, 2003 6:57 AM CDT YOu are in my thoughts and prayers. I pray that you will find strength, clarity and comfort. In His Strong Love, Cassandra <cmraven@msn.com> Albuquerque, NM - Tuesday, October 21, 2003 0:20 AM CDT just stopping by to say hi. crystal - caringbridge.org/mo/crystalcoin <angie_l_coin@yahoo.com> - Monday, October 20, 2003 9:54 PM CDT Hi Maddie and family, Sorry mom that you are not feeling well. Hopefully today will be better. You are in our thoughts and prayers as you are almost to the day of removing this terrible cancer. I will post a request on Joshua's site for prayers for Maddison. God bless! Liz Larson <www.tconl.com/~larsonfamily ljlarson@tconl.com> Omaha, NE US - Monday, October 20, 2003 8:15 AM CDT Holly, I don't really know you but have faithfully been reading your journal entries and crying with you and praying for you and Maddie and your family. Jason and Karla go to our church and keep us posted. As I read your entry this am the scripture that comes to my mind and heart is from 2Corinthians 12:8-10. "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong." Holly, you are trying hard to be strong for Maddie. Remember YOU don't have to be strong. It's ok to be weak because the Lord promises HE will be strong for you as you trust in HIM. I am praying you will know the strength of God's love to see you through minute by minute. Pam Hulstrand <pamhul@polarcomm.com> Portland, - Monday, October 20, 2003 7:05 AM CDT  Maddie.. Just wanted to drop over and wish you a FUN halloween. Hugs Carolyn <carolynj52@ilovejesus.net> Oklahoma United States - Monday, October 20, 2003 0:14 AM CDT I am not sure I have posted here as I read so many caringbridge pages but your request for messages is why I am here. My son has a page and I know what good these messages do so I am here to wish you love and luck in your upcoming days. I will certainally make it a point to check on your beautiful girl as often as I am able. My best wishes to you and your family Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@yahoo.com> - Sunday, October 19, 2003 12:36 AM CDT WISHING YOU THE BEST IN YOUR UPCOMING SURGERY, MADDY. WE WILL PRAYING FOR YOU AND YOUR MOM TO HAVE THE BEST OF LUCK AND A VERY SUCCESSFUL WEEK OF EVENTS. LOVE YOU. ALDEN AND ORPHA ARVILLA, ND - Saturday, October 18, 2003 7:48 AM CDT I just became aware of your situation on Friday. There was a basket of the prayer braclets at The PATH office in Fargo. We will Pray for Maddy and your family for healing and strength for all of you. May Gods comfort and strength be upon you all. Joel and chris Noreen <jcnor015@peoplepc.com> Christine, ND USA - Saturday, October 18, 2003 6:32 AM CDT Hi Ya'll, I'm so happy to hear such wonderful news. We will continue to pray that all things are in order for surgery and that the surgery goes perfectly. God Bless you all. Aundrea Dover , AR - Friday, October 17, 2003 12:42 AM CDT ***Have a happy Friday and a VERY happy weekend*** Sending lots and lots of hugs your way!!! Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com> Haverhill, MA <3 Samantha's Mommy <3 - Friday, October 17, 2003 11:01 AM CDT I am thinking of you, your family and Maddy. What wonderful news to see no tumor. The power of prayer is awesome. Keep up the positive attitude and very soon this will be as it is with me, something that you remember smile and know that miracles do happen!! If you ever need anything please send me an email. Take care and God Bless! Timi <tswier.curves@midconetwork.com> Sioux Falls, SD - Thursday, October 16, 2003 6:22 PM CDT We are all praying for you sweetie, your Quilts Of Love family hold you in their hearts. Hope you have a fun Halloween....I saw the beautiful pictures of you passing out candy. You sure look lik a little princess to me.  Hugs, Island Princessme. Island Princess <islandprincess@quiltsoflove.com> - Thursday, October 16, 2003 11:38 AM CDT DEAR MADDIE AND FAMILY SO GLAD TO HEAR THINGS ARE GOING BETTER,STILL PRAYING FOR YOU. GOD BLESS AND SAFE TRIP TO MAYO AMY J WAHPETON, ND - Thursday, October 16, 2003 11:28 AM CDT Maddy,Holly & Don Just read your update and it sounds like the miracle we have all been praying for just may be happening. The tumor has gotten smaller, that is a wonderful sign. We do know it is difficult sometimes to keep the faith, especially when you see your child going through such a horrific illness, but just know that you are all in our prayers every day to give Maddy strength to beat this and to give you (mom and dad) strength to get through this. Take care and God Bless. David, Diane & Brittany Wells <www.doubled@polarcomm.com> Larimore, ND - Thursday, October 16, 2003 11:19 AM CDT Holly, just think of all you will have to give thanks for this Thanksgiving! You will have the surgery behind you all and Maddie will be getting stronger every day! I think of you all often and pray all goes well next week in Rochester. Kathy Moser <DKM@polarcomm.com> Larimore, ND USA - Thursday, October 16, 2003 9:39 AM CDT Hi, Holly and Maddy! Aww, bologna sandwiches aren't so bad - in fact, I LOVE them!!! (hate to cook) I'm so glad you seem more hopeful, Holly. Optimism is sometimes the key to the whole ordeal. I will keep Maddy in my prayers and look for news of a successful operation. God bless your whole family. Love, Karen "gramma l" Karen LaMountain <AngelGrammaL@netscape.net> Selkirk, NY USA - Tuesday, October 14, 2003 10:50 PM CDT Hi Maddy and family, Just read your recent update and we'll be praying for you guys to be able to fly out next Wednesday. Do they not have a Ronald McDonald House or somewhere like that for you to stay instead of a hotel? I thought for sure they would. We will definitely be praying for a complete success and for strength for your whole family. Thanks for the comment about the book. I am going to pick that up. Just what all of us Cancer moms need each day. Will you be updating the website at all while you are gone? You are in our thoughts and prayers each day. God Bless! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Tuesday, October 14, 2003 10:46 AM CDT Hope Maddy feels better soon and that the fever monster stays away, so you guys can get a big break before surgery. We will be praying for Maddy on her surgery day. I'm sure she will come through with flying colors. Jake had his surgery on a Tuesday and we were home by Sat! These kids are so amazing! Just finishing with chemo #12 - haven't quite worked out the pass during the day to get unhooked and leave - that would be soooooo nice! Love the new pics. Will check again soon! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Sunday, October 12, 2003 10:46 PM CDT We will pray for Maddy and your entire family. Stay strong and positive... Attitude is everything! You will have a miracle as I did. Take care and God Bless! :) Timi <tswier.curves@midconetwork.com> Sioux Falls, SD - Sunday, October 12, 2003 6:41 PM CDT  I am glad to hear that chemo is going well - my prayers continue for you! Love Angel Toto - Friday, October 10, 2003 10:34 PM CDT Hi, Maddy! I see my friend Liz signed below. I'm so glad to hear this round of chemo is going well and hope that it continues. Jake is in for chemo right now also. What a great thing your pastor said to you - wow - something good for all of us cancer mom's to read! Thanks for sharing it! Maddy is going to make it and it's a shame your doctors don't give you hope. There is always hope and miracles happen all the time. Good luck with the rest of this round of chemo! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Friday, October 10, 2003 10:34 PM CDT HI Maddie and family, So glad you are almost done with this chemo and things are going well. We will be praying hard for you as we do every day for all these children that are battling cancer. We will pray that your surgery is a complete success and then you are half way through chemo. Yeeeaaahhh! One day at a time and you will get there. When you have a date on surgery, we will post it on Joshua's site for extra prayers to be said for her. Even though scary, it will be nice to get that behind you and get that tumor out of there. Joshua had a 2 pound tumor in his little chest too so I know how things can just be pushed aside to make room for it. Seems unbelievable that that could be possible and the kids are still running around unknowingly, but miracles happen every day and I believe Maddison will be just one more. God bless and I will continue to check on you. Hang in there! Liz, Jay, Justin, Tanner and Joshua Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Friday, October 10, 2003 9:39 AM CDT Hello, hello! Glad to "hear" you in better spirits. They say that the good Lord won't give us more than we can handle, and it must be true as you still have your sanity and one would have to wonder about you if you didn't have to battle the negative thoughts on a daily basis - there's just too much unknown. So hold the faith and give our love to everyone Wish we could've been there for your birthday, but will plan to visit you in Rochester. If it's the end of the month, I'll still be out doing programs, but will get there at some point, either after work for a couple hours or on the weekend. Will try call this weekend and see if you've got a definate surgery date scheduled so I can see what I can fanagle on my end with work. I tell everyone I can to send prayers your way and ours are included as well. We love you and give everyone XXX's & OOO's from us! Sis - Thursday, October 9, 2003 8:31 PM CDT I was directed to Maddison's site from another Caringbridge child. I must say that Mom, you make me laugh. It is marvelous to see that you have so much humor in light of the road you are currently traveling. Although without humor I'm sure you'd sit down and cry. Even though you do not know me I check in each day for updates on your precious little girl and will continue on the journey with you daily through prayer. Melissa <mehartley7@yahoo.com> Dallas, TX - Thursday, October 9, 2003 3:31 PM CDT Hi Maddy! Hi Holly...I just wanted to poke my head in and say hi. We sure miss having you at work. I hope all is going well, and I hope Maddy is feeling good. I just wanted to tell you that you do not look one day over 29 ;) I hope you are all hanging in there, and like always...you are all in my thoughts and my prayers!!!! Love, Amy Knosalla <amarieknosalla@hotmail.com> Mayville, - Thursday, October 9, 2003 11:36 AM CDT Hey Maddy, you are in our prayers. We think and pray for you and your family every day. Holly, when you become a Mother you never expect that you will ever have to deal with what you are, a Mother who has a child with Cancer. Please stay strong and remember you are not alone. It is a hard road you are going through but God is watching over you and you have so many that are praying for Maddy and your family. Timi <tswier.curves@midcontwork.com> Sioux Falls, SD - Wednesday, October 8, 2003 9:51 PM CDT Hi Maddy! Just stopping by to check on you and leave you and Donovan a little Halloween gift! Oh and Happy Birthday Mom! Don't worry - I never COULD bake! :) Hugs, Jean  Jean - Quilts of Love <jean@quiltsoflove.com> Tucson, - Sunday, October 5, 2003 12:28 AM CDT Hi Maddison Wow! You are a beautiful and brave girl. It's to good that you are still smiling and giggling. That's the stuff true heros are made of. Mom- the loss of thought process and forgetfulness of the things that used to seem so natural before is what we cancer moms call "chemo brain" It's when all thought information and previous skill get pushed into one small dark corner of the brain so we can make room for the overload of medical knowledge we must consume (and remember) for our child's treatment and care. Trying to remember something is often like trying to find that one missing sock in the laundry. I just wish someone could tell me how long it lasts *sigh* Even if the cookies didn't turn out, I bet you and Maddy had a great time trying =) My little girl is 4 and was dx 10/02 with leukemia. She still has 1 1/2 years left of chemo. It is just awful what that poison does to our precious children's bodies in hopes of saving their life. Valerie and Serena Bakersfield, Ca - Sunday, October 5, 2003 11:21 AM CDT Just stopping by to wish all of you a VERY happy, fun-filled and uneventful weekend. I check on Maddison often, though I don't always leave a message. Please know every one of you are ALWAYS in my thoughts and prayers. Sending lots and lots of hugs your way!!! Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com> Haverhill, MA - Friday, October 3, 2003 5:31 PM CDT Hi Maddison! Just here to say hi, sweetie... :) ~*Girlie's Page*~ ~*Janice's Page*~ Hugs, XOXOXOXO Janice Melbourne, Australia - Thursday, October 2, 2003 6:28 PM CDT We Love you All Very Much, Our Hearts, Thoughts and Prayers are with You Constantly. Grandpa & Grandma Middlestead - Thursday, October 2, 2003 1:23 PM CDT Hi Holly! Yep, it's me again... the grey haired wench. Oh, wait.. maybe I should say witch. one month and it's halloween.. my holiday. It was so good to see you the other day. Hey! Want to hear Dumb? In sept, I had an doctor's appointment.. so in August I put in my requests. Okay.. the schedule comes out and I don't have that day off. I go check with the personnel director, and sure enough, I forgot to write it down. Okay... make a new appointment for 20 Oct. My son is flying out to Utah that day, so I figured that I would take him to the airport and have my appointment the same day. So I hand my requests in for Oct. I get the schedule. I don't have the 20th off...go see the personnel director.. Holly, I forgot to request it off... Twice I have done this.. I must be getting alzheimers or oldsheimers. I managed to get it off with some fancy finagling. You know, I'm a pretty fair cook, so if there is a day that you don't feel like cooking, give me a call. I can throw something together for you. I cook, but I don't do dishes. Just thought I would clarify that. Take care, I am holding you guys in my thoughts and prayers. Love Ya. Louise <tunseth@gra.midco.net> Mayville, ND USA - Wednesday, October 1, 2003 0:28 AM CDT Hey you guys! I just wanted to say that it sure was good to see all of you at the benifit! I am glad that the benifit went well. I enjoyed the visit with the two of you. I hope you keep hanging in there...in a blink of an eye, this will all be over, and you will have a healthy little girl on your hands! Like I have said many times before, feel free to call me...I am always here to listen. Holly...I sure miss you at work! Take care, all of you, and GOD BLESS! Love, Amy Amy Knosalla Mayville, - Tuesday, September 30, 2003 11:33 AM CDT Hey Maddy! You looked beautiful at your party on Sunday night. We were all so glad that you could come. Tell your Mom that she looked beautiful too and your Dad and Donovan looked very handsome. I hope you had a good time and know that all the people there and a whole bunch of other people love you very much. Did you get a prayer bracelet, Maddy? The kids at church worked very hard to make those and now the rest of the bracelets are at the Foster Care convention to be sold there! I'm so proud of the youth group kids who worked so hard. They love you too and pray for you every day. Remember - and tell your Mom and Dad - that I ask for strength for the day each day for you. God will give strength for each day - sometimes looking ahead is just too overwhelming, but all God asks is that we trust today and have faith today. I love you guys! Pastor Janna Mayville, ND - Tuesday, September 30, 2003 8:34 AM CDT Dear Holly ~ Hi, my name is Karen aka Gramma L and I got to Maddy's site through another CaringBridge child's site (I think Kody's - not sure). I found my first CaringBridge pal through MakeAChildSmile when our granddaughter was ill with AML. I will keep Maddison in my daily prayers. God bless all of you. Hun, it is a long haul, but we will all be there for you, even if from far away and in our notes and prayers. Just try to remain optimistic (which you seem to be) and it's OK to feel down, so just go with your feelings and take one day at a time (which is all we can do anyway!). Maddison is a real cutie and so is your son. I'll be checking in - hope this is ok with you. Hugs from Karen aka Gramma L Yes, hun, it's tough, but you seem to Karen LaMountain <AngelGrammaL@netscape.net> Selkirk, NY USA - Tuesday, September 30, 2003 2:25 AM CDT Holly, It sounds like the benefit was a success, I am really quiet sad that I couldn't be there with you! I am thinking how much Maddy means to all of us and praying for a speedy recovery...I also agree with you our bosses are great, they are so understanding there it blows my mind. I miss you like crazy and want to call you so much just to chat and I can't my voice is coming and going still...well Holly just know you are in my prayers and thoughts more now then ever... all my love and prayers Margaret - Monday, September 29, 2003 10:59 PM CDT I thought the benefit was awesome. You're right about a lot of things going on in the community, so I thought the turn out was great. Maddy looked gorgeous. I'm so glad she was able to attend "her party". Prayers are coming your way like crazy, so hang on. You looked like you really had it together last night. I'm sure your family was just as proud of you as anybody else. The people in our Parish are asking about Maddy all the time, so please remember the people really care and are pulling for you guys big time. Deb Kyllo <dck@polarcomm.com> Mayville, ND - Monday, September 29, 2003 9:54 PM CDT *Maddison* I'm glad to hear you had a good weekend. I check in on you often although I don't always leave messages. Please know you and your family are ALWAYS in my thoughts and prayers. Sending lots and lots of hugs your way!!! Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com> Haverhill, MA <3 Samantha's Mommy <3 - Monday, September 29, 2003 9:11 PM CDT Hi! I check on you and Maddy every day. Sat night at church we lit a candle for you and your family. We keep you all in our prayers. Lynn Perry <jaylynnperry@yahoo.com> Omaha, NE USA - Monday, September 29, 2003 7:48 PM CDT Holly, Maddy, Don & Donovan: Although we don't always leave messages out on the guestbook online, I hope you know that we think of you continually! We chat on the phone, but these journal entries you can read over and over again to cheer you up! We check the site several times a day to get the latest updates in case its newer since we last talked. That's how much we think of you all. We love you so much! Maddy was so beautiful last night! She was a little princess in her glittery shoes and wearing her pretty white gloves! We are so fortunate that she could attend the benefit. There are so many wonderful people in the community that are praying for Maddy! I would like to extend a "Thank You" to all the family and friends that attended the benefit as well. There are so many of you with big hearts. Maddy: I have lots more apples for you! ;) The applesauce I sent home is made out of those same apples! I hope you'll try it too! I'll be making a bunch more if you would like some. Holly: You had a nice journal entry. Now that Maddy will have some more days at home, please let me know if I can watch the kids so that Mom & Dad can catch up on some sleep or go see a movie...whatever we can do to help you all enjoy life more and get a little normalcy back into your life. The cousins love being together too. Austin & Alexis would like to have Donovan & Maddy over more. (They had such a good time together last night!) Maddy is a fighter and she will make it! Karla & Jason, Austin and Alexis Mayville, ND USA - Monday, September 29, 2003 6:49 PM CDT Hi Maddy and family, I just read your posting for today and it brings instant tears to my eyes, because I remember all those feelings. I remember thinking everything was out of control and so overwelming that I couldn't cope. But, you are doing a great job and day by day you will get there. I leaned on God the most on those hard days and couldn't have gotten through it without my faith. I pray that you can do the same and it will bring you some comfort also. We will continue to pray for Maddie and your family, as you continue down this hard road. We will pray that Maddie does better with her new 3 week protocol and it brings her some good days to just play and enjoy being a child again. God bless you all! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Monday, September 29, 2003 4:03 PM CDT Hi Maddie.. I feel so sad that you are not feeling well. Maybe Tweety can help to cheer you up!! Love, Your friends.. Kim and Kody  ~KODYS STORY~ - Sunday, September 28, 2003 8:33 PM CDT Holly, Hi hun....I am up again tonight....I have some bad news..I won't be able to go to the benefit tomorrow..I went to the doctor today and found out that I have laryngitis so I can't go, I don't want to get anyone else sick. I will pray for you and keep you in my thoughts...I love you I miss you more than you know..take care and when I am better I will make some treats and bring them out for you... love and prayers Margaret - Sunday, September 28, 2003 3:18 AM CDT Hi Don, Holly, Donovan and little Ms. Maddie, I just wanted to let you know that you are in my prayers and thoughts all the time. I really enjoy visiting Maddies site, it keeps me inform on how things are going. Holly this is going to make all of you a stronger family unit, going through this. But you have such a good attitude and a lot of strengths that I am sure you did not know you had until this. I know somewhat of what you are going through since my mom is going through Lung cancer and my sister through Breast cancer. It is a terrible disease to have to go through as an adult and twice as hard on the little ones. But you know with all of your support and Holly with all of that positive attitude of yours things are going to be alright. I will write to you Holly at your e-mail address. But I just want to tell you that my prayers and thought are with all of you. I miss you Holly and Happy Early Birthday. You should have that party. I love you, Donna :) Donna Schwan <DonnaSchwan6399@msn.com> University Place, WA US - Friday, September 26, 2003 9:33 PM CDT Hi Maddie and family, It seems kind of funny that my friend Kellie Beresh is always signing guestbooks right before I do and always telling you what I was going to say. Us Cancer moms think the same after awhile. Joshua would of never been able to take a 2 week protocol as his counts would never be up that quickly. I have read several sites and spoke to other parents who have told me that their kids chemo or durations have had to be changed because they couldn't tolerate the regular protocol and they did just fine. Maddy will too! She is going to be walking in that Relay for Life race next year and don't you think otherwise. I agree with you on letting her do as much as she can on her high count days, because they just don't get enough of those days. We will pray that her little brother gets help in adjusting to all of this and feels better. That has got to be hard for him, but I'm sure couseling will help alot. We will keep praying for you all and check back soon. Liz Larson - Joshua's mom <www.tconl.com/~larsonfamily> Omaha, NE US - Friday, September 26, 2003 8:39 PM CDT I know it must have been difficult, but your decision to move to the three week schedule will be a good one for Maddy. We were so dissappointed at first when we were put on the three week protocol as randomized by the study, but now we are glad. I don't know if we or Jake could have handled that 2 week routine. At least with the three week one, Jake has one really good week of no shots or feeling bad and he has one good week of high counts to just be a kid and enjoy all that goes with that. I'm sure it will really help Maddy. She will beat this thing! Checking on you all the time... Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha , Nebraska - Friday, September 26, 2003 7:50 AM CDT Hello Holly and family, I am sending my prayers and love...I am looking forward to seeing you on Sunday..Just let me know if there is anything you need for me to do...I tried to call you the other night but I am guessing that you were tired and needed some sleep...I hope you are taking care of yourself too.. Love Margaret - Friday, September 26, 2003 0:48 AM CDT HI Maddy and Holly. I just wanted to let you know that I was thinking of you, and hopeing that maddy's fever soon goes down. She is a tough little girl and she will beat this. Keep up the strength, and I'll talk to you soon. Kaeleigh Barney <kaeleighbarney@yahoo.ca> Woodstock, Ontario Canada - Thursday, September 25, 2003 6:09 PM CDT Hi Maddy and Family, I got your website from another ewings sarcoma mom just like me. She told me all about your site. I have a daughter who is 4 years old with ewings in her skull. She is in the middle of radiation and chemo right now and doing good. She has her ups and downs but overall she has been VERY strong. I will continue to check your website and see how your doing we will think and pray for you all the time. Please feel free to contact me at cmtlusk@aol.com marjorie ewings mom santa clarita, ca - Thursday, September 25, 2003 4:34 AM CDT Hi Holly I think we have things ready for the benefit on Sunday. Hopefully Maddy is feeling better, good enough to come and enjoy the benefit and be able to see how many people really care for her and want to help her. WE are praying for you and Maddy all the time. The girls are constantly asking how she is. We will be bringing over some pumpkins when Maddy is ready for visitors. Jean Mayville, - Wednesday, September 24, 2003 10:06 PM CDT Dearest Maddy, My granddaughter is also named Madison. It's a beautiful name for such beautiful little girls. I pray for you, that God will touch you with his power and make you well. I hope today you are feeling much better. God's Blessings and Love Donna (Chey's mom) caringbridge.org/tx/cheyenne5 <rfiveash@wcc.net> - Wednesday, September 24, 2003 7:59 AM CDT Hi there, Was going to call tonight, but decided to check out your page first. Sounded like you guys had a pretty short night so will wait a day or two and call when you've hopefully had some sleep. Will be out of town all next week on programs, so will try get a call in before I leave. Haven't talked to Mom or Dad recently either -- where does the time go? The days just blur together with so much going on as I'm sure you'd agree. Have they scheduled surgery yet or are they waiting until the last chemo and see what they have to work with? Will talk to you soon, give my love to all! Sis and clan - Tuesday, September 23, 2003 8:34 PM CDT Hi Maddie and family, Glad to hear you are home, but sorry that you have had a couple rough nights with that blood transfusion and not sleeping well. Joshua did the same thing with wanting someone to sleep with him and being afraid of monsters in his room. He has never done that before and would even say that he knows there is no such things as monsters, but he is still scared. For awhile there I moved this little fold out chair that flips into a mattress by my bed and he slept there many a night. If it wasn't that we took turns sleeping with him until he fell asleep each night. It was tiring, but just recently he has done better and seems more secure. I have heard other parents say the same thing has happened, so it is probably just a security thing with all that they are going through. For your sake, I hope she lays still better than Joshua, because I just get kicked all night if he is in our bed. Not fun! We are praying for you to get through this round Maddie without having to go back in that darn hospital. Keep up the good work sweetie! God bless! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Tuesday, September 23, 2003 8:13 PM CDT Hi, Maddy and Family!!!! Checking on you all the time. We just got done with a chemo treatment too - ours was #11. You will be at #11 very soon too! Jake is feeling pretty good and is going to school tomorrow for a couple of days until his counts drop later in the week. We are hoping you are feeling good and that you have kept the fever monster at bay this time. Hang in there and your family too! Maddy, you and Jake are kicking Mr. Ewing's in the patootie!!! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Sunday, September 21, 2003 11:17 PM CDT We will pray for you, Maddie. You are an angel. Remember, God is watching over you, and He loves you so much. We pray that you will get better soon. Cory and Ginger Dunker and family from South Carolina Ginger Dunker <gindunker@yahoo.com> Aiken, SC Aiken - Sunday, September 21, 2003 9:19 PM CDT HI Maddie and family, Glad to hear you are home and no surprise temps yet. We will pray that it stays that way! Your right, mom, all you can do is try your best and sounds like you are doing an awesome job! Hang in there, 1 more chemo down!! God Bless and we will be praying for you! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Sunday, September 21, 2003 4:30 PM CDT No temp...no temp...hey, that's a song we sing in our home :) Good thoughts going your way...I know how it is to worry about the temp..... Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@yahoo.com> - Saturday, September 20, 2003 11:36 PM CDT Well hello Holly and Donnie...I tried to come out to your place this afternoon, and I even brought a friend, Damon, who has lots of muscles to help out...and we got lost! More lost than you know!!! I think the guy from the college messed up on the directions. Well anyway, I drove until I couldnt drive anymore (I was about to run out of gas...and I was still a long way from Mayville). I even stopped at two houses to see if they knew where you lived. So I am going to have to go the next time the school goes, but this time I am calling you for directions! So I do apologize, I wish I could have made it there; I was really looking forward to it. I hope things are going ok. I have been reading all the entries from people all over the country, and wow, I bet that helps you guys get through day to day. Inspirations of hope! Maddy is a miricle!!! Take care and I will see you soon!!! Amy Knosalla Mayville, ND US - Thursday, September 18, 2003 6:53 PM CDT I came upon your site and I do understand how scared you are. My daughter was diagnosed with Leukemia at the age of 17, August of 2001. The hardest thing as a Parent is to watch your child go through what they are and then having to stay strong for them. You want to scream and cry all the time but you can't because you have to stay strong for your child, your other children and also your family. It is alright to break down every once in awhile because you deserve it. We also became very close to two other families that were going through what we were and both of the young adults past away. It is so hard to deal with that and it does make you realize that you could also lose your child. You always seem to hear the bad stories of the ones who did not make it. I want you to know that my daughter is now 19 years old and has been cancer free for almost 2 years. She is going to College, what she went through is now just a memory. It will get easier, I promise!! Cancer is a horrible thing but it has given our family the ability to know how precious life is. We have also been so fortunate to meet so many special people because Cancer came into our lives. My prayers are with you and your family and if you ever do need to talk, email me and I will get a hold of you. It is very important that you hear and know that children do survive cancer. Your Maddison will be one of the survivors also! Timi <tswier.curves@midconetwork.com> Sioux Falls, SD Minnehaha - Thursday, September 18, 2003 3:42 PM CDT Hi all! I stumbled upon Maddison's site yesterday and I wanted to take a minute to say "hi" to all of you. Please know your entire family is in my thoughts and prayers. Sending lots and lots of hugs your way!!! Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com> Haverhill, MA ~Hi Maddison!!!~ - Thursday, September 18, 2003 12:54 AM CDT Hi Holly, I just want you to know that I think you are truely wonderful in all aspects! You and Donny seem to be hanging in there...stay strong! I know I have not been able to help out due to school and work, but today I am coming out to your place to do what I can. I am looking forward to dedicating my time off to a good cause...I am also looking forward to visiting with either you or Donny (whoever is home today). I want to give you both a big hug. I just can not even imagine the pain you both have gone through. I pray for your whole family every night. I hope and pray that Maddy gets better and stays strong. I was so happy to see both Maddy and Donivan at the parade...I am sure they had a blast! Like I said before, if you ever need someone to talk to PLEASE CALL ME! Love all of you! Amy K Amy Knosalla Mayville, ND US - Thursday, September 18, 2003 9:35 AM CDT Holly... Hey I am sorry that our conersation got cut short tonight..I will try to call you tomorrow (Thursday)...I am praying that everything goes well for you when you go to Rochester!!!! Kaitlyn sends her love to Maddy & Donavon! We all send our prayers! love ya Margaret - Thursday, September 18, 2003 0:32 AM CDT Hang in there, Kiddo! You're certainly entitled to your bad days and if you went through a box of Kleenix, then power to ya -- a good catharsis and probably overdue. Just remember that Maddy is making progress and there will be lotz of rough spots in the road that you just have to plow through and hope that smoother roads lie ahead soon! I sure hope your fundraiser goes great tonight. I'll try to call tomorrow night if it doesn't get too late. Our prayers, hugs and kisses are with you-- tell all Hi from us. Sis Mt. Lake, MN - Wednesday, September 17, 2003 10:15 PM CDT Hi Holly, I just read your last entry and my heart breaks for you. I will continue to pray for Maddy and the rest of your family. I don't know you and we've never met, but I feel like we are friends. Having a daughter the same age as Maddy, another daughter with the same name, and reading this web site everyday may be the reason. You are an inspiration to me, and I pray for Maddy and your family daily. I will continue to pray that she amazes the doctors with this round of chemo, that it would be easier on Maddy than they could have ever imagined. I pray for wisdom and compassion for the doctors and nurses and anyone else who comes into contact with Maddy. Tell Maddy she has friends in Arkansas who think she's beautiful. My girls have drawn some pictures that we will send soon. Love, Aundrea Sims Dover , AR - Wednesday, September 17, 2003 2:31 PM CDT Greetings from Texas Maddy. Special prayer requests are being sent to heaven praying that your hands and feet don't peel. More prayer for Mom and the family for strentght, endurance and comfort. I'm so thankful I was directed to your site and can be a prayer warrior for you. Melissa <mehartley7@yahoo.com> TX - Wednesday, September 17, 2003 11:05 AM CDT Maddy We are all praying for things to go well for you and we pray that you can soon have the surgery needed. Hang in there and we are praying for your Mommy too. She is doing a good job. We love you all. Alden and Orpha - Tuesday, September 16, 2003 10:14 PM CDT Your family has been in my thoughts and prayers ever since I heard about Mattie. Amidst all of the turmoil, it sounds like you are able to experience some bits of joy and happiness in your lives. I am so glad! Take care. Annette Bakken <abakken@ohnstadlaw.com> Mayville, ND USA - Tuesday, September 16, 2003 1:49 PM CDT Hello, my name is Kathy Hanson, I am Chrystal Dunker's niece. My cousin Lisa Oachs is also going to start chemo for breast cancer and our entire families prayers are with both Maddy and Lisa. Take care, Kathy Hanson Kathy Hanson <khanson@ethanol2000.com> Windom, MN USA - Monday, September 15, 2003 7:12 AM CDT Hi Maddy and family, Sorry to hear that you couldn't get in for chemo. Boy, do we know that story. We tried to get in twice last week, but had too low of counts. Unfortunately, it is a normal part of chemo and her body just needs a little break right now. Since you got a transfusion, I'm sure it won't be long before you get in and get it over with. I definitely know your frustration though. You get everything planned and arranged and then you get to do it all over again the next time you go in. Enjoy the time with your family instead of doing what I used to do by wasting that precious time and pouting about not getting in. You will probably be in next week so enjoy the weekend! Your family is always in our prayers! Enjoy that parade Maddy! God Bless! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Saturday, September 13, 2003 9:20 PM CDT Hello Maddy!! I hear your going to be on a float...woow, that is so cool!! Have Mom take pictures so we can all see... Love you and hope you ALL feel better!! Kim  ~KODYS STORY~ - Saturday, September 13, 2003 8:45 AM CDT We check your journal and Guestbook several time each day in order to keep up with the latest on how Maddy is doing. You have a tremendous amount of concern and support from all around. It sounds like Maddy is doing a little better. This is great! We continue to keep your Maddy in our prayers and also your family too. We think of you many times a day. We know from personal experience, just how scary this Cancer word can be, and I have been so blest in my treatment. Love you all. Alden and Orpha Arvilla, ND - Saturday, September 13, 2003 6:01 AM CDT Hello my name is Jenna and i was born with a rare bone disease. I really like this site, and Maddy is a true inspiration. I love that picture on the front, and I love her smile! She is in my prayers. My page: http://www.matmice.com/home/fighterandchampion Jenna <hockeys_life@hotmail.com> Kamloops, BC Canada - Saturday, September 13, 2003 2:25 AM CDT Don't sweat not getting in for chemo - I know it sooooooo frustrating, but it happens to everyone and you just never know when you will get in. That's why I always say to my friends never to make plans with us - who knows where we will be and when. Maddy's body just needs a rest - especially on that 2 week schedule. We do it every 3 weeks and a couple times Jake's counts could not keep up. Hang in there and enjoy the break!!! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Friday, September 12, 2003 11:16 PM CDT Just dropped over to welcome you to our Quilts of Love family..Welcome Sweetie, we love you..Hugs Carolyn  Carolyn <carolynj52@ilovejesus.net> Oklahoma - Thursday, September 11, 2003 11:54 PM CDT GREAT TO HEAR THAT ALL IS GOING BETTER FOR MADDIE.WILL KEEP ALL OF YOU IN MY PRAYERS. THINGS WILL GET BETTER FOR ALL. KEEP THE FAITH. AMY WAHPETON, ND - Thursday, September 11, 2003 2:08 PM CDT So glad to hear that Maddy is doing better and not having so many side effects. Hang in there mom and dad! I know everything is so overwelming now and not getting any sleep only makes things worse. We will pray that Maddy continues to handle her chemos well and that things settle down a little bit at home so you both can get some rest. God bless! Liz Larson- Joshua's mom <www.tconl.com/~larsonfamily> Omaha, NE US - Thursday, September 11, 2003 1:32 PM CDT Yeah for Maddy that she avoided the fever this time around!!! Maybe this will be her NEW pattern! I hope so! Our little one had such a hard time with all of this too, but he is doing better. Sometimes he tires of being handed around while we are in for hospital stays, but he has adapted. He tends to really cry when he hurts himself or complains of "headaches" just like big brother did when he was first diagnosed. Hang in there, family - it will settle down and you will start to feel like all this craziness is somewhat routine. It still stinks, but you get more used to it. Ewing's has nothing on Jacob or Maddy!!!! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Thursday, September 11, 2003 9:25 AM CDT Holly and Family, Hey, I read your latest journal entry and I am so happy to hear that everythng is going ok for you guys...(healthwise)...I am sorry that Donavon is taking it so hard..if you need for me to take him for a day just let me know he can come over and spend the day with Kaitlyn and watch movies or go to the park or maybe a DQ day..I don't know I just feel bad that I am not doing more for you...I should be getting the $$ I promised to you soon I hope it helps..also..Margaret D from work wants to talk to you about applying somewhere for help I just can't remember where so if you could talk to her that would be good...or I could and get back to you again too...talk to you again really soon..love you lots!!!!!! Margie - Thursday, September 11, 2003 1:32 AM CDT Holly~ It was nice to talk to you the other day. We all miss you at work and hope you get back as soon as you can. In the meantime don't give up all hope, many prayers are with you and your family. I hope little Maddy feels better soon!! Give her lots of hugs and kisses from the many people that are here cheering for her to get better. Well, take care I just wanted to write a little something to you and tell you that if you ever need something I am here!! Love, Amy Amy Zimprich <cool_babe200182@hotmail.com> Mayville, ND USA - Wednesday, September 10, 2003 6:04 PM CDT Thinking of you, Holly!! Sounds like you have quite a strong little girl. I'll keep you in my thoughts and prayers. Laura (Chrystal's friend from high school) Laura (Vetter) Marx <marxl@colheights.k12.mn.us> Shoreview, MN USA - Wednesday, September 10, 2003 1:04 PM CDT Holly and Don, You are in my thoughts and prayers. If there is anything I can do to help please give me a call. Nancy Pillen <npillen@pathinc.org> Horace, ND USA - Wednesday, September 10, 2003 8:51 AM CDT Hi Maddison! Kody Bear's website sent me here. What a precious doll you are. I will keep you in my prayers. God Bless all of you. Sandi Sandi Marquis Cantonment, FL - Wednesday, September 10, 2003 8:06 AM CDT Hi Maddy.. and Mom and Dad Chrystal has shared this address with us and we want you to know that we are sending healing love and prayers. We have friends praying all over the nation for your continuing progress. You are so beautiful.. inside and out. Love to all, Beth and George Roder Beth Roder <b_roder10@yahoo.com> Langdon, ND USA - Wednesday, September 10, 2003 7:09 AM CDT Hey Kiddo! So glad to hear Maddy got through the week without another trip back for fever and the like. She's such a trooper :0) Don's niece just found out she has breast cancer a few weeks ago and had surgery this past week to remove a tumor. The cancer is still in the lymph nodes, but Dr.'s figure the chemo should take care of that. Her dad died of a brain tumor, so has been real tough on Don's sister to see her daughter struck with this awful disease. Lisa is a real trooper, like Maddy, and has a fantastic attitude about it. She won't let this beast rule her life, and likewise, this beast will not controls yours forever. Such great progress has already been made in her treatment and I'm sure the trend will continue. Everyone here is praying for her and Don's family is always asking about her. She's in my prayers and sure wish I could be there to be of more help. We start our school programs on Monday and will be on the road every day til the end of Oct, so I won't be of much help other than in prayer. Give all a hug from us -- we love you! Chrystal, Don, Will, Alex and Juneau - Tuesday, September 9, 2003 10:45 PM CDT Liz and I so hope that things are going better for you guys!!! The Website and pictures are marvelous!! Bill and Liz Nelson <wa0brn@earthlink.net> Moorhead, MN USA - Tuesday, September 9, 2003 10:42 PM CDT Hi Holly and Donnie, I just wanted to write and say that all of you are in my prayers. As hard as it may seem right now, keep your head high-I know, it is much easier said than done. If either of you need anything, or just need someone to talk to, let me know. Give Mattie a hug for me...(even though I have never met her...) Hang in there! Love, Amy PS My new number is 788-4188 Amy Knosalla Mayville, ND US - Monday, September 8, 2003 11:58 PM CDT Holly and anyone else it may help. The juice I found that has worked for me when I get constipated is apple juice. One eight oz. glass and problem all gone very quickly. As an ileostomate, I'm not supposed to get constipated, but sometimes I do plug and it is very uncomfortable till I drink the apple juice. I've never had to repeat. Six ounces might, particularly with a childs small size. Pamela <docd1128@polarcomm.com> - Monday, September 8, 2003 6:47 PM CDT So glad to hear that beautiful Maddison is doing better. We have been praying for her and God is listening. We will continue to pray that her little body adjusts to all these medicines and day by day you will get there. It is unbelievable that we are almost done with 10 months of chemo. I remember at the beginning thinking that we could never do all this, but here we are and you will be too. IF Maddison is drinking and likes juices, Joshua's constipation problems were helped alot by Gerber pear juice. It is usually in the baby section of the grocery store. Doesn't work for everyone, but worth a try, because that is just no fun to deal with, for her or you. Hang in there, you are doing great!! God Bless! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Monday, September 8, 2003 12:25 AM CDT Hello Maddison...Angel Moo here just stopped in to welcome you to Quilts of Love...so happy you have joined us sweeetie.. LEaving you with Lots of Love n Snuggle!  Angel Moo WV - Monday, September 8, 2003 5:47 AM CDT So glad to hear Maddy outran the fever thing this time. She is getting stronger and stronger and her body more used to the medicine that will eventually make her one happy, healthy little girl again!!!! Hot here in 'ole Nebraska - 90, but no humidity, so Jake could stand being outside a little here and there. Pretty soon you guys will be on number 11 like us and you will wonder how you ever made it through. Faith, patience and a whole lot of love! So, So glad Maddy made it with no fever this weekend - a much deserved break for all of you! Will check back soon! Kellie Beresh- www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraska - Sunday, September 7, 2003 10:28 PM CDT Sounds like prayers are being answered already and your days are going a little bit better. I love Maddy's virtual quilt. I missed talking to Jason and Karla in church today. I'm anxious to meet you at the benefit. I thought of Maddy all during our sermon today--about God taking "sighs". Jason and Karla can explain. Continue to hang in there. People are praying for you from all over the world. What a wonderful thing!! Deb Kyllo <dck@polarcomm.com> Mayville, ND USA - Sunday, September 7, 2003 9:46 PM CDT Hey Holly, Nice journaling! Hope things are going as good as they can be. We all got Karla married off on the 30th. The wedding cake I made for her turned out so awesome! Coral (Rena's oldest) had a mild siezure during the ceremony so it was a bit exciting. She is finally getting in to the doctor tuesday for some test Rena set up. She had some when she was younger but they hadn't found out anything at that time. Logan was able to get a 4 day pass to come home for the wedding, so it was fun to see him again. The love life is going pretty slow. Al has been working more with the P.D. since one of the full time guys quit. I hope that Al gets to be the replacement guy so he won't have to bust his butt working 2 jobs, I know what its like and it is definetly a bitch. JoAnn Wallace <joannrwallace@hotmail.com> Backus, MN - Sunday, September 7, 2003 6:37 PM CDT Our thoughts & prayers have been for you & are still in place since we heard about Maddison. I know that God will guide you all through this trying time. I hope to get to the hospital on Maddy's next trip. Be strong & keep the faith. Uncle Jim & Aunt Marilyn - Sunday, September 7, 2003 1:01 PM CDT Hi Maddy, Just want to let you know how much I enjoyed making your virtual quilt. I hope you like it. Please know that you are in our thoughts and prayers.... Big Hugs,  Angel Jane (Quilts of Love) Jane <gigi2@ukonline.co.uk> CT - Sunday, September 7, 2003 9:51 AM CDT Hi Maddison, I got your site off Kody's site and thought I'd come by and say a big HOWDY! I live all the way across the world from you in Australia...that's pretty cool, huh? Well, I'll definitely be adding you to my prayer list, sweetie.. you are one tough trooper and I'll be cheering you on :) Stay strong! ~*Girlie's Page*~ ~*Janice's Page*~ Hugs & kisses, XOXOXOXOX Janice Melbourne, Australia - Sunday, September 7, 2003 2:36 AM CDT I discovered your name on Cheyenne's page and I want you and your family to know that this Texan is praying for you. Through the years I have seen many miracles and I just know your healing will be another one. Charlotte Kolls San Angelo, TX - Saturday, September 6, 2003 11:17 PM CDT Hi Maddy! We are so happy to have you as a part of our Quilts of Love family! We'll be dropping by to visit often! We will have you in our thoughts and prayers! I can't wait to see your Quilt of Love!  Jean - Quilts of Love <jean@quiltsoflove.com> Tucson, AZ - Saturday, September 6, 2003 4:35 PM CDT Hey, looks like things are going better this week. I talked to Maddy for I bet 20 min on the phone..She really is a little angel. I'd told her that my Mommy had been in the same hospital that she was and she wanted to know every thing about her. I was thinking about get her some new PJ and she said that No she wears clothes there and that she's wearing "her new outfit" I just had to laugh. You take care and keep your chin up..Lov U all, today,tomorrow,and forever... Kathy Ellingson /path Mom and friend <kellings@polarcomm.com> Galesburg, ND - Saturday, September 6, 2003 2:42 PM CDT Maddy, Don & Holly It was so wonderful to be able to see Maddy at Merit Care. The first time we met your little angel was when you came into the hospital room so Maddy could see Brittany's port and so Maddy could see that Brittany was also losing her hair. Since that time, Maddy has touched Brittany's heart in such a big way. When we were in Merit Care for Brittnys' spinal tap and chemo treatment on Tuesday, and found out Maddy was there, Brittany was determined she had to see Maddy. When we said goodbye to Maddy and Daddy in the hallway on Tuesday, as Daddy was pulling Maddy in the wagon, Brittany was full of tears. When we left she said you know Mom it's just not fair that Maddy has cancer, she is so little. It was hard to know what to say to her at that point. Maddy is in Brittany's bedtime prayers every night, as she is in ours. When Brittany was diagnosed with Leukemia we thought our world was totally shattered. We didn't know what to do. We do know just how difficult it is for you Don and Holly and we send our prayers to give you strength to endure this. David, Brittany & I found a saying in a devotional and we keep this in our hearts every day: YESTERDAY IS HISTORY TOMORROW IS A MYSTERY TODAY IS A GIFT THAT'S WHY THEY CALL IT THE PRESENT We truly have lived each day as a gift from God. We also know just how hard it is to keep strong, especially when your child is in pain. We both have prayed that God would just take it away from Brittany and give it to us. Just know our thoughts and prayers are with both of you and Maddy every day. When we are back in Fargo again for Brittany's chemo treatment we will see if you are there. We would love to be able to see you again and see Madddy's beautiful smile. Take Care and God Bless Today and Always. David, Diane & Brittany Wells <www.doubled@polarcomm.com> Larimore, ND - Saturday, September 6, 2003 11:19 AM CDT Maddy; You are getting so many prayers, from all around the world. Like so many say,"keep the faith". Hang in there Holly and the rest of your family. It's not an easy job that you are faced with, but you can do it! Alden and Orpha - Saturday, September 6, 2003 10:49 AM CDT Hello Maddison... I'm so happy to hear that you are our newest member of our Quilts of Love family!!! Love you..:0) :0) :0) Angel Kim and Kody Bear too!!  ~KODYS STORY~ - Saturday, September 6, 2003 8:25 AM CDT Maddy: Our prayers are with you and your family as your battle continues. Our grandson (4 1/2 now) was diag. with neuroblastoma at 18 months which is a children's cancer also. He was in the 4th stage of 4 stages and was treated at Rochester also. They were wonderful up there and after a very hard year and a half of chemo & surgeries, Travis is a very active 4 1/2 year old ready to start pre-school next week! His cancer is in remission thanks to all the wonderful people out there who also poured out tons of prayers! Keep the faith and remember there is great power in friends & prayers! Love & Prayers, Audrey W. Audrey Weiler <audweiler@hotmail.com> LeMars, Ia USA - Saturday, September 6, 2003 0:26 AM CDT Angel Toto - Friday, September 5, 2003 10:40 PM CDT Hi Maddy! My name happens to be Maddie as well. I am thirteen and have a brain tumor too. I stumbled upon your website and will keep you in my prayers. You certainly are a beauty and I hope you can be out running around with all your friends as soon as possible! Goo Maddy! Maddie www.caringbridge.org/mn/maddie - Friday, September 5, 2003 5:20 PM CDT Hi Maddison and family, I just found your website from my friend Kellie Beresh and I am so happy that I did. What a beautiful little girl you are! We also have a little boy named Joshua fighting this cancer beast and know how hard it is, especially in the beginning. Boy, do I remember what you are going through with your thoughts every day mom. I am so sorry that you are having so many side effects from your chemo and hope those pass, as I do know other children that have had many problems in the beginning with side effects, but they did get better. My heart goes out to your family as that makes it even harder to deal with. If there was one thing that I have learned through this terrible journey is to take one day at a time. Try not to think too far ahead right now as it is way too hard to even try to do that. I did the same as you at the beginning and that was the advice I was given. It really did help. One day at a time and you will get through this and you will have your little girl back again. Joshua also had surgery and then chemo two weeks later as I think this is pretty common to get started right away. It ended up to be fine and we were amazed and how fast he healed. He had a very long surgery to remove a 2 pound tumor and the doctors couldn't believe how fast he recovered. I'm sure Maddison will be the same way. Kids are just amazing with how well they cope with things. We will keep Maddison in our prayers and if you ever need someone to talk to who is on the same road as you, just write. God bless you all and stay strong! Liz Larson <www.tconl.com/~larsonfamily> Omaha, NE US - Friday, September 5, 2003 5:16 PM CDT Hello Maddie and family, got your site from Kody's....prayers rushing your way for healing strength! Take care Michelle Michelle Phillips <jusm4us@cablenet-va.com> St. Paul, VA USA - Friday, September 5, 2003 5:14 PM CDT Hi Maddie, I also have a little girl named Mattie, and she is 6. I got you web-site yesterday from Kody's site. I thought about you all day yesterday and woke up this morning thinking of you. I have another little girl named Laney and she is the same age as you, and you remind me of her sooo much. You are both extra beautiful!!! I bet you guys would have lots of fun playing together. Hugs and kisses sweetie! Dear Maddie's mom, I was so touched with Maddie's picture in the hospital bed that I wanted to pick her up and hold her and make her feel better. I'm sure you think this every minute of the day. Last night I read in the bible of the power of faith, prayer, and God's healing, and I prayed for you and Maddie. I will continue to pray for healing, strength, peace, and fun feel-good days. I look foward to reading updates about Maddie. It makes me want to be a better mommy. Love, Aundrea Sims Dover , AR - Friday, September 5, 2003 3:47 PM CDT Hello Maddison!!! You are such a cute little girl. Your website is so neat. You made me smile looking at you with your terrific balloons. I am praying for you and your family. I'll check back on your website often. Jennifer Russellville, arkansas usa!! - Friday, September 5, 2003 1:52 PM CDT Hi Maddison...such a beautiful name for such a beautiful girl! I think Wonder Woman is an excellent choice for Halloween!  Please know that you're all in my thoughts and prayers. Terry Snyder (Angel Jalen's "Am-Maw") http://www.caringbridge.org/fl/jalen <vix207@aol.com> Royal Palm Beach, FL - Friday, September 5, 2003 1:16 PM CDT What a cutie you are Maddison! I will be sending lots and lots of prayers your way (yours too mom!!). And I will check up on you often! Lots of sunshine and happy days to you!! lori <nevlor_2000@yahoo.com> baldwin park, ca usa - Friday, September 5, 2003 1:06 PM CDT Hi Maddy... Islanf Princess here from Quilts Of Love. We are so happy to have you join our family. Welcome sweetie and we are all praying for you. Warm hugs, Island Princess  Island Princess <islandprincess@quiltsoflove.com> - Friday, September 5, 2003 12:59 AM CDT Hi! Wonder Woman- what a great idea! Glad to hear you guys can get out for a couple of hours on your longs stays. I may have to campaign a bit for that on our next long stays - that would be awesome!!! Sounds like Maddy is feeling pretty good and aren't these kids so amazing? Take her cues - she will feel better about all of this in time and keep getting out when you can and have some fun! I know with Jake sometimes it's worth the risk letting him get to school or out somewhere just to keep his mental health going - I know attitude is what's gotten us this far. We'll pray for the fever monster to stay away and for Maddy to feel good. Just take one day at a time - keep telling yourself that. If Maddy has a good day, reflect on that and don't worry about what's coming tomorrow. Many good thoughts coming to you from Nebraska!!! Kellie Beresh - Jacob's mom <scbkab@cox.net> Omaha, Nebraska - Friday, September 5, 2003 11:22 AM CDT Maddison is a beautiful little girl and she also posseses my favorite name for a girl! I am seventeen years old, still in high school, and I am so inspired by Maddison's bravery. I have had many health problems though none so serious as Maddison's, and from watching my single mom handle herself amidst my struggles I know what courage you have. Keep that smile on your face...that is what means the most to your little girl. I plan to become a pediatric oncologist, with the intent of lending hope to lovely children like Maddison and devoted parents like you. Stay strong. You inspire me. With hope and prayers, Savanna Savanna <gilhoolygrl@aol.com> FL USA - Friday, September 5, 2003 10:56 AM CDT What a beautiful child you are blessed to love and care for. I learned of your site from another little guy, Kody Bear! Prayers are being sent to heaven by me request peace and comfort along with strength for you and your little princess. There is no task to big for the Lord! Melissa Dallas, TX - Friday, September 5, 2003 9:33 AM CDT "Cast your cares on the Lord and he will sustain you:he will never let the righteous fall" psalm 55:22 Prayers for strength and Guidance. What a beautiful child! We are friends of Trimpers,all three of their children have MLD and one of their followers shared your "site" with us.Stay strong and Keep the Faith! Trimper Trooper - Friday, September 5, 2003 9:20 AM CDT Holly and Maddy and Donny and Donovan, I have been praying for peace for all of you. It sounds like God is giving that to some extent. Maddy is so smart that she does understand. Let her teach you lots of things as it sounds like she is. I have many of our youth group kids praying for Maddy as well and I've been seeing the Make a Wish jars all over town. That, too, keeps Maddy in everyone's thoughts and prayers. God is holding you tight - even when you can't feel it - God is there. Peace and Love, Pastor Janna Mayville, ND - Friday, September 5, 2003 8:49 AM CDT Ciao ragazze (hello there girls), I have had the honour to "meet" you through Kody Bear's site. I am very grateful to Kim for introducing you to me. Your wonderful big eyes have absolutely captured my heart and so has your story. I send you all a very warm Italian hug, together with a little piece of our beautiful, clear skies, sunny day, to brighten up your room and warm your hearts. CIAO CIAO CIAO CIAO Sabrina <morini@agriflex.it> Forlì, FC Italy - Friday, September 5, 2003 3:50 AM CDT I don't have magic words to make you feel better but do know that that there are many of us on the same or similar jounary and really do know what you are feeling. All you can do is what you are doing now and without a doubt the ONLY thing that matters is you and your family. Take care of each other and your baby and let God do the rest. I wish you all the very best and will keep your precious daughter in my prayers. Cindy Aldrich(www.caringbridge.org/il/elliott) <elliottsmama@yahoo.com> Sandwich, Il - Thursday, September 4, 2003 9:55 PM CDT Hi Maddison, what a beautiful little girl you are. I learned of your site from Kody's and wanted to pop over and let you know that you have been added to our ever growing prayer list. Since our daughter was diagnosed back in July with a dpg, our prayer list has grown, sooooo long. I know that the prayers are helping our little girl Cheyenne and I also know how much they helped Donna and I. There was a time in early July that we were in the depths of dispair. Prayers and GOD brought us through that and continues to keep us going. Just last weekend, I myself went through a day of high emotions and what if's. As if to help ease my pain, within minutes God showed me several survivors of this horrible tumor that my daughter has. Then as I turned on the television, there was a sermon on keeping the faith, never what ifing, and knowing for positive that God is with us and is answering our prayers. You will continue in our prayers every single day, without exception, because we know that Through GOD, All things are Possible. Maddison, just like our Cheyenne, needs a miracle, and a miracle we will pray for. God Bless you all. Cheyenne's dad www.caringbridge.org/tx/cheyenne5 Roy Fiveash <rfiveash.wcc.net> San Angelo, Tx USA - Thursday, September 4, 2003 9:16 PM CDT Hello. You don't know me but I have three children who are going through a bone marrow transplant. Someone who signed our guestbook mentioned your site and thought you could use prayers. I read your entry tonight and do not know a lot about your whole situation, but many of the things you wrote about hit home. We understand some of your frustrations. There is one thing we can do for you right away. Tonight I will pray for Maddy and for you to have the strength to get through what you have to. Someday all of these treatments will seem barbaric and they will have easier ways to deal with cancer. Until then have faith and when this is over Maddy will provide hope for many when they hear her story and how she overcame cancer. And of course how her mother saved her life. Jane Trimper <www.caringbridge.org/mi/trimpermld> Stanton, MI - Thursday, September 4, 2003 7:37 PM CDT Maddy, you are such a beautiful princess. What an inspirational website. I showed my shero your picture with the geese. She likes Barney too. Her name is Ta'Bria and we will keep you close to our hearts in prayer. God Bless you and your family. Celia & Ta'Bria www.tabriaswebspiration.homestead.com// Celia & Ta'Bria <AKACelia@aol.com> Indianapolis, IN USA - Thursday, September 4, 2003 2:28 PM CDT I have no idea what it must feel like to be in your shoes, but please know this...I'm praying for you! The Lord will help you bear your burdens, and has Maddison in HIS hands. Lean on him and HE will give you the strength you need! HE will hear your name often from me! Kendra Simpson <kbusyboys@wmconnect.com> Asheville, NC - Thursday, September 4, 2003 1:44 PM CDT The power of prayer is awesome, I must say!! I learned of Maddy's site from Minda's (from Mayville) Mom Julie. ND isn't that big and word does travel fast. Anyway, my prayers are with you all and God will see you all through this. There are so many people praying and will continue to pray for Maddison. I think this site is absolutely wonderful and gives people a place to say what they are feeling and get much needed feedback from others going through the same thing. My thoughts and prayers are with you all. Cynthia Heckman <hogrider71@bis.midco.net> Mandan, ND USA - Thursday, September 4, 2003 1:27 PM CDT I got your website off of Kody's in Florida. My 6 year old son has Ewing's Sarcoma of his skull. He had a lemon size tumor right behing his right ear. Taking it out was very tricky and he almost didn't make it through surgery, but he did and we started chemo 2 weeks later. We are on the same protocol as you sounds like. 3 days and 6 days every 3 weeks. He had 5 and a half weeks of radiation to his head and now we just finished number 10 out of 14 of the chemos. We have 4 more left! I am reading your story and know all the emotions you are going through. When Jake was first diagnosed in January 2003, I was consumed by prognosis statistics. Now we have let all that go and just get through everyday. It is hard letting go of having control of your life and being able to make plans. But we have done it and gotten through it and Jake is doing great! YOU CAN DO THIS AND YOU WILL!!! Let go of trying to do everything! Only do the necessary things. Let the house and other committments go and just do what you can. ASK for help and when someone says, "Let me know if I can do anything," have something ready to give them to do - clean up your yard, your house, go to the grocery store, bring food or anything else you need up to the hospital. Hang in there - this does get easier. I know it may seem hard to think that now, but it does. We will be saying prayers for Maddy and I will e-mail you my number and address and you can call me anytime. Praying for you and we will check on Maddy daily! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy <scbkab@cox.net> Omaha, Nebraksa - Thursday, September 4, 2003 11:50 AM CDT  Hello Maddison!! I recieved a very touching letter today from your friend, Cynthia Hickman...she told me all about a very beautiful and brave girl that she's knows...and one VERY, VERY loving and strong Mommy!! :0) I'm so glad I got this chance to get to know you. Sweetie..know that I will be praying so hard for you to feel better and I'll, of course, be checking up on you everyday. Stay strong little one and Mommy too!! Many prayers being sent from our house in Florida to yours.... Your new friend, Kim  Mom..if you would like us to create a personal "virtual quilt" for Madisson..please click on the litle angel above..it will take you straight to Quilts of Love homepage...if you would like to check out my little boy, Kody's quilt..you can find it on Index page 1. We would be honored to create a special quilt for a special little girl... Kim ~KODYS STORY~ - Thursday, September 4, 2003 10:12 AM CDT DEAR HOLLY AND FAMILY. I HOPE AND PRAY THAT THINGS ARE GOING BETTER. JUST REMEMBER JESUS SAID HE WOULD NEVER LEAVE US OR FORSAKE US AND WHEN YOU ARE FEELING LIKE YOU JUST CAN NOT GO ON JUST REMEMBER HE IS THERE FOR YOU ALL YOU HAVE TO DO IS JUST ASK AND HE WILL GIVE YOU WHAT YOU NEED TO GET THROUGH THIS. I WILL KEEP YOU AND YOUR FAMILY IN MY PRAYERS. BE BLESSED AMY AMY WAHPETON, ND USA - Thursday, September 4, 2003 8:28 AM CDT Hello Holly - I can't imagine what you and your family are going through. My heart breaks for you. Your little Maddy is so beautiful, little butterfly! We have been to Mayo for my 18 month old and it's a great facility but I too hated going there and still do. The Dr's and nurses are so wonderful there. The best of the best. I wish I had the right words to say to you to take your pain away, but I don't all I can offer are my prayers and know the Lord will not give you anything you can't handle. You are stronger then you know. Your strength will come from God - even when you think you can't take anymore he's always there holding you up and carrying you in his arms. I know your heart is in pieces and your world is crashing before you eyes. Our babies are so much of our life - they bring us life. May Maddison continue to do that for you. Would love to meet you sometime. I have a 3 year old who I am sure would love to play sometime with Maddy. My thoughts and prayers to you and your family, Minda Rexine <rexfiles@polarcomm.com> mayville, nd - Wednesday, September 3, 2003 10:09 PM CDT Holly, Donny, Maddison and Donovan - It breaks my heart to hear about your pain and fear, and while I can only imagine how difficult this time must be for you I am sure the reality of it for you is a million times worse. We pray for you every day and ask God to give you the strength you all need to get through this. Keep hoping and dreaming and praying. Although we don't understand what God intends for us now, I truly believe we can be assured that if we trust in Him something great will result! Love - Kim McDaniel Fort Collins, CO - Wednesday, September 3, 2003 10:03 AM CDT Holly, Maddy and Donny - For a family to go through so much grief is hard to even think about, much less experience. I send loving energy at the spirit level. It's all I can do. As spirits, you are all brave and all gaining a lot on life's Big Scoreboard, but it's the physical you're dealing with right now, and no one else can know what you're going through. Thank you for sharing your feelngs honestly. In the realm of all possibilities, a positive outcome is still possible in the physical. It's guaranteed in the spiritual. Let's all focus intensely on a healthy, happy family in this life, in the near future. You deserve it. Maddy is beautiful! Dan McAneny <dmcaneny@ec.rr.com> Wilmington , NC USA - Tuesday, September 2, 2003 7:47 PM CDT Holly & Don My thoughts and prayers remain with you! Please let me know if there is anything I can do. I can't possibly imagine how difficult things are for you right now. Just remember to keep the faith and cherish all that the Lord has given you. Ruth Rice - Tuesday, September 2, 2003 10:52 AM CDT Holly, I know that things are tough but know that we are here for you and we'll do whatever we can. Keep you chin up We are all praying and thinking of you daily. Take care, We love ya. Kathy Ellingson /path Mom and friend <kellings@polarcomm.com> Galesburg, ND - Monday, September 1, 2003 9:26 PM CDT Holly, hang in there girl, you can do it. We're all on-line any time to help. One hour at a time, one day at a time. Babble and rant, it's good for you. Take care....Hugs.....Susi, e-sarc, mom Susi New Westminster, BC Canada - Monday, September 1, 2003 7:30 PM CDT Congratulations, Claire. I hope you continue to do well. I hope Maddy does as well as you. It was very nice of you to write to Maddy. Pamela - Sunday, August 31, 2003 6:24 PM CDT Hi Maddy! My name is Claire and I had Ewing's Sarcoma just like you. I was diagnosed at almost 3 and am now 5! I got through my treatments and surgery just fine, and I pray that you do too. They are not easy to take, but hang in there. I will pray for you to get better. Love, Claire (my mom,Kim,saw your website on the e-sarc board) Claire Leffingwell <kimleffingwell@juno.com> Stillwater, OK - Saturday, August 30, 2003 11:47 PM CDT Holly, This scripture came to mind as I prayed for you after reading your last entry. 2 Corinthians 12:8-10 "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more glady about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong." I am praying that you would know Christ's overwhelming love and strength for you during this time!!!! Pam Hulstrand Portland, - Saturday, August 30, 2003 8:49 AM CDT Dear Holly, I'm so sorry Maddy is having to go through this. Precious girl...I'm praying for her and your family. Tina, mom to Nick from the e-sarcoma board - Saturday, August 30, 2003 7:20 AM CDT Dear Holly, You poor thing. My heart aches for you since I know exactly how you feel. And poor little Maddy. I hope that they can get control of her reaction to the chemo with the steroids and then just get on with the protocol. She will get through this and so will you! Vent as much as you like, it's healthy for you. What you're going through is awful I know but try to just take one day at a time or else it is just too overwhelming. Sending you hugs and prayers. Agnes (from the E-Sarc List) Agnes Ortiz Kelly <Tatikel@aol.com> Hackensack, NJ USA - Saturday, August 30, 2003 7:08 AM CDT dear holly your friends from the esarc list are with you Truus van der Spek <truusvanderspek@hotmail.com> oegstgeesth, ZH The Netherlands - Saturday, August 30, 2003 5:50 AM CDT Don, Holly and family- you have been in my thoughts and prayers. Stay strong and I pray that things will get easier for you! Clare Clare Mark <cmark@pathinc.org> Davenport, nd USA - Thursday, August 28, 2003 9:14 AM CDT Donny, Holly and kids, I am so sorry to hear about Maddy and her down days...I wish I could have been there for you this past week-end...I really am feeling kinda guilty about that...I was locked in..I am so sad for you...I wish for one day even if just for and hour we could go bakc in time and recapture the fun easy going days of summer...you know the pool partys...BBQ's.....kids playing outside...the sound of laughter on the breeze..these are the things I wish for you and your family and week of nothing but rest and carefree fun! You are in my rhoughts daily and really if there is anything you need from me just let my know........ all my love and prayers...... Margie - Wednesday, August 27, 2003 0:22 AM CDT Hi Holly, I hope things have improved since last weeks entry. You hang in there things will get better. You are a strong woman and if anyone can do this it is you. I will be in Fargo later in the week, but I think that is when you are at Mayo. I will check at the Hospital in Fargo. Take Care and have hope, Cheri Cheri <clangei@pathinc.org.> GF, ND 58203 - Monday, August 25, 2003 5:04 PM CDT HI Holly You are in my thoughts all the time. We froze the little bit of corn that we had yesterday and I thought of you. When I look at the apple tree covered with apples I think of you and how we wont be able to do apple sauce & pies together. I'll bring you over some corn and potatoes when you get back from rochester. The second meeting for planning the benefit is tomarrow (tuesday 26th) at 7:00 at Mayville Lutheran Church anyone who would like to help is welcome to attend or they can contact me to be put on the list of workers. Keep a positive attitude and cherrish every moment. Julie has added "Help Maddy get better" to the end of every prayer for every meal we eat. Which is what we all pray and hope for. Jean Neset <JRNeset@netscape.net> Mayville, ND - Monday, August 25, 2003 10:19 AM CDT Hi Holly. I know that times are tough. Keep your chin up. You are a strong woman and I know you can handle anything. Its hard to have sick kids, and I can't even imagine everything you are going through, but try to think of the positive things. Thank goodness we live in a place where there is such good medical care! Stay strong and take care of yourself so that you don't get sick too. Please let me know if I can do anything for you. Karla - Friday, August 22, 2003 8:44 PM CDT Holly, Don, Maddison and Donovan, I just wanted to let you know that I am thinking about you and praying for all of you especially little Maddison, every day. Be strong and take each week, one day at a time. Evey day is so precious! Give Maddison a hug from Teacher Tana and tell I am thinking about her. Say hi to Donovan and I hope he has a good year in Kindergarten. Keep strong!! Tana Braaten, Child Development Programs Tana Braaten Hatton, ND USA - Friday, August 22, 2003 3:23 PM CDT We are so happy to hear that Maddy is having a great week! That is such good news! Although we talk to you, we also look forward to each published update on the journal as well. We check several times a day! The kids talk about Maddy often too. Good Luck in Rochester next week. We're all praying for you! Love you very much! Karla, Jason, Austin & Alexis - Friday, August 22, 2003 6:56 AM CDT Hey Holly and gang, I've been on vacation, but I still check on Maddy daily on this site. It sounds like there are some glimmers of light in the darkness. Just remember - God doesn't give you anymore than God can handle - we get more than we can handle all the time. I love you guys and keep praying for Maddy and all of you. Pastor Janna Mayville, ND - Thursday, August 21, 2003 7:19 PM CDT So glad to hear that Maddy is having a good day once in a while. Enjoy them as they come. We hope and pray that she has more and more all the time. Your family continues to be in our prayers. We think of you often. Alden and Orpha - Monday, August 18, 2003 8:19 PM CDT Hey, another piece of information I didn't get when I had chemo, either time. Wasn't told about the chemo destroying the bladder. Knew I was to drink a lot of fluid to protect the kidneys and all that IV fluid too so peeing just sort of has to happen. Glad she is being so cheerful. What a pain with the house. Guess I'll have to get around to trying Krispy Kremes someday. I always liked Spudnuts, but haven't seen them anywhere in a very long time. What are funyuns? Good for Make a Wish. Now if we can hook her up with a celebrty mentor. Pamela Mayville, - Sunday, August 17, 2003 5:38 PM CDT We are so glad to hear that Maddy had a wonderful day!!! We hope to see you this weekend. We have some fun stuff for Maddy too! The power of prayer is working for Maddison. We continue to think of you all and pray for you always. Love you! Jason, Karla, Austin & Alexis Mayville, ND - Saturday, August 16, 2003 9:15 AM CDT Hey Holly, Please tell me when i can help!! Anyways trevor is better and we cant wait to visit. I got the best picture that you should put up, I will bring it over. Tell margret she needs to work harder i was gettin all the lights last night. Anyways Trevor cant wait to go to C.C. with Donavan, so we will have to set it up call me love you and miss all of you very much. PS: I love you cuz "i can dance" (who sang that???) Danielle - Thursday, August 14, 2003 10:46 PM CDT Hi Don & Holly: I just learned of this terrible time you are going through. I know Jason from church. I'm his piano player. I'll be giving him a call to see how things are going. Our Portland Parish has seen God's miracles before with cancer. A little over a year ago, a 22 year old man from our Parish got leukemia. His chances were dim. With a lot of prayer from our Parish and the wonderful doctors in Rochester, he has recovered. He just got married a couple of weeks ago. We know the power of prayer. I hope you can find a support group or some other parents, etc. who have gone through a similar situation. You sound like you are burning yourself out. Try not to. Everybody needs to worry and pray for Maddy. Nobody needs anything else. Our Parish is large, so you have a lot of people praying for Maddy and your family. God be with you. Deb Kyllo <dck@polarcomm.com> Mayville, ND USA - Thursday, August 14, 2003 3:49 PM CDT Holly, Don and Maddy; We are thinking of you every day. Our prayers continue for Maddy to recover and be back to her usual self as we know her. It sounds like she is getting excellent care from her parents. It is not an easy job. Hang in there! Alden and Orpha - Wednesday, August 13, 2003 9:02 PM CDT Holly....My dearest friend! I will bring my pliers, hammer, screwdriver or anyother tool you need as long as I get to spend some time with you seeing you smile again! It brightened my day to see you and hear you laugh ( even though it was a tired one) You know I am always only a phone call away and will do anything for you! My thoughts and prayers are with you and your family! ****big hugs for all of you**** margaret eliason <snicky_kix@yahoo.com> Portland, ND - Wednesday, August 13, 2003 1:28 AM CDT Holly & Family~ I can not imagen what your family is going through in this difficult time in your life. You and your little girl Maddy are in my thoughts and prayers everyday and will continue to be. If you ever need someone to talk to I will be here for you. Life maybe hard and you will have your good and bad days but just remember to spend as much time with the ones you love they will be there for you through thick and thin and they are what keeps a person strong. Take care of yourselves and just remember there are several people who care about you and wish you all the best. *~*Hugs & Kisses*~* Crystal Kvernen <crystal_kvernen69@hotmail.com> Portland, ND - Wednesday, August 13, 2003 1:27 AM CDT Holly....My dearest friend! I will bring my pliers, hammer, screwdriver or anyother tool you need as long as I get to spend some time with you seeing you smile again! It brightened my day to see you and hear you laugh ( even though it was a tired one) You know I am always only a phone call away and will do anything for you! My thoughts and prayers are with you and your family! ****big hugs for all of you**** margaret eliason <snicky_kix@yahoo.com> Portland, ND - Wednesday, August 13, 2003 1:18 AM CDT I am another online friend of your Uncle Ron. I have grandchildren Maddies age and I can't imagine what you are going through. I have been praying for your family will continue to so. I am sure it is hard to think of yourself right now Holly, but be sure to take care of YOU. Ruth McNerney Blue Earth, MN USA - Tuesday, August 12, 2003 11:01 PM CDT Holly, Donny, Donovan, Maddy, my thoughts and prayers are with you from Australia. May God comfort you and keep you all strong. Chris Martin Chris Martin <cmartin@pathinc.org> Melbourne, Vic Australia - Tuesday, August 12, 2003 6:10 AM CDT Thinking of you and your family Stacey and kids <swagner@pathinc.org> fargo, - Monday, August 11, 2003 5:23 PM CDT Holly, Donny, Maddison and Donovan-Our thoughts and prayers are with all of you as you face each new day. Cherish the good times and take care of yourselves and each other. We are praying for a miracle in your little Maddy, and hope that she gets stronger and happier each day. Don & Karen Salwey and family (Karla's sister) Grand Forks, ND USA - Monday, August 11, 2003 2:42 PM CDT Dear Donnie & Holly, just read the latest update. I hope you guys hang in there. I wish there was something I could do to help. I am praying for Maddison and so is my church. My Pastor prays for her every day. I have several people that I work with praying for her also (and for you guys). Peggy Schutz <pschutz@txns.org> Jacksboro, TX USA - Monday, August 11, 2003 1:31 PM CDT Hi Holly. Geez, I miss you. Work is not the same without your wit and humor to keep me going and in stitches. I'm not going to say I know what you are going through, because I don't. But I want to offer you my friendship and If you need anything done, or need anything that I can help with or you think I can help with, let me know.. call or email. I think of you and your family often and pray for the very best to come of this trial. God only gives the hardest challenges to those he knows can handle them.... You are one of the strongest people I know. Take care. Love You. Louise Louise Tunseth <tunseth@gra.midco.net> Mayville, ND Traill - Monday, August 11, 2003 11:00 AM CDT Hey, Sis! Glad to hear you're hangin' tight and holdin' up! It does seem to help to stay busy - but don't ruin your health in the process. You've got other's who need you, so take care of yourself - you're gonna burn yourself out :0) I've been thinking about all of you lotz. My schedule is crazy this time of year - haven't had a day off work since July sometime, often late nights, so didn't want to call the hospital and risk waking Maddy should she finally be sleeping. Next week my schedule will keep me in the office rather than on the road, so will try call before we come out for Aunt Clara's b'day. Give my love, hugs and kisses to everyone and we'll see you soon!! Chrystal, Don, Will and Alex <croder@rconnect.com> Mt. Lake, MN USA - Monday, August 11, 2003 9:32 AM CDT Pam and others, We are working on setting up an account with the Goose River Bank. It is a small enough bank that donations sent there in Maddy's name will get into the account. Pator Jeff will be talking with Holly and Donny about the logistics and he may be the person to whom they will give expense bills so that he will sign payment checks. This can save a lot of headaches and prevent any unthnking/careless/etc. person adding to their grief by questioning where money is spent. Pamela Mayville, - Sunday, August 10, 2003 4:41 PM CDT It was great to talk to you last night Holly. I am not calling you because I know that all of the calls are becoming overwhelming for you. When you get a moment, please let me know where donations can be sent. I am proud you are my friend.. and never have I been prouder of you and Donny than I am now. The night we found out.. I told you that God only picks the best, most loving, wonderful parents to parent children who are ill.. He sure knew what he was doing when he gave Maddy and Donavon you two. Remember to take care of each other too. I love you. Pam Pam Terfehr <Pterfehr@aol.com> Christine, nd USA - Sunday, August 10, 2003 12:19 AM CDT Sounds like you are doing everything you can. Just keep surviving day by day(minute by minute). You are a terrific mom Holly and I know you are strong enough to handle this!God bless you all. I pray for God to give you strength to endure, wisdom to make decision, and peace to understand(if that's possible). Kathy Moser <DKM@polarcomm.com> Larimore, ND USA - Friday, August 8, 2003 10:18 AM CDT I'm an online friend of your Uncle Ron. Our family has been touched by cancer, too. I just wanted to let you know that my family and I will be keeping you and your family in our prayers. God bless you little one. God bless your family, too. Dean Huffman <huffman4@marion.net> Marion, Ohio USA - Thursday, August 7, 2003 6:24 PM CDT Prayers for your family. I truely understand what you are going through. I went through this with my 14 month old who fought a brain tumor. Only those who have been there can understand the emotions, strengths, and rollercoaster days. If you need to talk, vent, or just a friend I'm here. Char (Littlepistol) Smith <Csmith317@neo.rr.com> Mansfield, OH Richland - Thursday, August 7, 2003 5:19 PM CDT I do feel sad for you, your family, and especially for Maddy. A lot of times when things aren?t going my way and live just doesn?t seem fair I think of this reading from one of my AA books and sometimes have to go back and reread it. Maybe life is fair, as both good and bad things happen to all. Just that I want the good things for me. Fret not your mind with puzzles that you cannot solve. The solutions may never be shown to you until you have left this life. The loss of dear ones, the inequality of life, the deformed and the maimed, and many other puzzling things may not be known to you until you reach the life beyond. ?I have yet many things to say unto you, but ye cannot hear them now.? Only step by step, stage by stage, can you proceed in your journey into greater knowledge and understanding. There is an old saying that God will never give us more then we can handle. Well, so far in my life that is true. Has it always been good, get real. But could it of been worse for me, you bet. I don?t have a magic wand, but what I can do is pray for all of you. Love you all and do give the little lady a big hug and kiss for me. Uncle Ron Uncle Ron - Thursday, August 7, 2003 12:48 AM CDT I do feel sad for you, your family, and especially for Maddie. A lot of times when things aren?t going my way and live just doesn?t seem fair I think of this reading from one of my AA books and sometimes have to go back and reread it. Maybe life is fair, as both good and bad things happen to all. Just that I want the good things for me. Fret not your mind with puzzles that you cannot solve. The solutions may never be shown to you until you have left this life. The loss of dear ones, the inequality of life, the deformed and the maimed, and many other puzzling things may not be known to you until you reach the life beyond. ?I have yet many things to say unto you, but ye cannot hear them now.? Only step by step, stage by stage, can you proceed in your journey into greater knowledge and understanding. There is an old saying that God will never give us more then we can handle. Well, so far in my life that is true. Has it always been good, get real. But could it of been worse for me, you bet. I don?t have a magic wand, but what I can do is pray for all of you. Love you all and do give the little lady a big hug and kiss for me. Uncle Ron Ron Morris, MN USA - Thursday, August 7, 2003 12:45 AM CDT Hey Holly - I already see the "Mom can handle this" attitude kicking in on this most recent post, and am so proud of you. I am sorry Maddy is feeling bad, but the in-between times of chemo does give her some time to recover and be more of herself. It is after the 4-5 day wait after chemo though when her vounts go up again. Hang in there, youu are doing exactly what you need to be doing today. I am going to call you a little later (it is 11:15 a.m. in Virginia, so I know it is earlier in the morning for you). So proud of ya! Norma Norma Brown <ntbrown@highstream.net> Carson, VA USA - Thursday, August 7, 2003 10:15 AM CDT Maddy: I love you so very much! I hope you never forget that! It was very nice to see your smile and happiness when I came to visit you. I'm very sorry that you couldn't come to my house or go with me camping. My heart sank when I had to tell you no. When you grow up, you'll understand this a little better. For now, please stay strong! When you get better, I promise that you can come to my house any time you want and we'll have a party! You are a magnificent little girl and you have wonderful parents to help you through this. I know you want it to stop, but that bump needs to go away first. My thoughts and prayers are with you continuously for you to feel better and heal quickly. I love you! Auntie Karla - Thursday, August 7, 2003 7:40 AM CDT Glad Maddy didn't have to go into the hospital on Wed. Hope she continues to stay out until treatment time. Can someone whose child is/has done very well please write. Positive stuff regarding a cancer is always encouraging to those who are or have been there. Pamela - Thursday, August 7, 2003 5:34 AM CDT Holly, I know how hard this is, especially in the beginning. The struggle you will face in the next year will not be easy but you must focus on your faith in God and listen to the doctors. Learn about Maddy's care, try to enjoy the time you are able to spend at home, between treatments. You must be careful to avoid comparing your child to others, because each cancer is different. Each EWINGS case is different. Your doctors will guide you and you must remain as calm and thoughtful as possible to allow yourself to make good decisions and good use of the "down time" that is sure to come in between hospital visits. Love your little girl, she is a gift. She is still here, God is watching over her and will guide you in your efforts to seek treatment and help her heal. Please know Delaney and I are praying for your family and especially for little Maddy! Renée Renée La Forest - Mom, Team Delaney (www.caringbridge.org/oh/teamdelaney) <team_delaney@hotmail.com> Dublin, OH USA - Wednesday, August 6, 2003 3:54 PM CDT We know what you are going through. We lost our son to ewing's over a month ago...hang in there maddy , you can do it!!!eat good and drink a lot of gatorades!!!! mark and aileen lee <www.kylelee28.com> rancho cucamonga, ca usa - Wednesday, August 6, 2003 3:00 PM CDT We wish your whole family the best as you go through this difficult time. Bruce, Christi, Zach, Max, & Alex Hoiberg Sioux Falls, SD - Wednesday, August 6, 2003 1:05 PM CDT Holly, we will keep Maddy and your whole family in our prayers. Kevin & Kim Nelson Larimore, ND - Wednesday, August 6, 2003 8:42 AM CDT Holly, Good job with the entry on the 6th. Of course every day is a constant struggle and you are willing to trade your life to make your precious Maddy well. I would expect nothing less. Your poor little love is looking so rugged, like the waifs in many pictures. Pamela <docd1128@polarcomm.com> - Wednesday, August 6, 2003 5:04 AM CDT The marvelous richness of human experience would lose something of rewarding joy if there were not limitations to overcome. The hilltop hour would not be half so wonderful if there were no dark valleys to traverse. we love you very much!!!! Danielle and Trevor Fargo , ND USA - Tuesday, August 5, 2003 11:59 PM CDT There are many people praying for you, Maddy. Hang in there. I know it is not easy for you or your parents. We are thinking of you all. Alden and Orpha - Tuesday, August 5, 2003 9:57 PM CDT We just found out from Jason and Karla about Maddie. We will put her on the prayer list at our churches and get all the saints praying! May God sustain you with His supernatural power, love and peace. Pam Hulstrand (Portland Lutheran Parish) Pam Hulstrand <pamhul@polarcomm.com> Portland, ND - Tuesday, August 5, 2003 5:10 AM CDT We know this is the hardest time for you right now, Just thinking of you all and praying... Dan & Kathy Moser (Karla's sister), and boys Larimore, ND USA - Monday, August 4, 2003 10:15 PM CDT We think of you all each day and can only imagine how difficult this time is for you. We pray that you can find comfort and strength in knowing that God is with you! Get well soon, Maddison! All our love, Rusty, Kim, Ashley & McKenzie McDaniel <rkmcdaniel@frii.com> Fort Collins, CO USA - Monday, August 4, 2003 1:39 PM CDT Our prayers are with Maddy and her family for a quick and complete recovery. Jim & Marilyn Morrison <mnjmorrison@yahoo.com> West Fargo, ND USA - Sunday, August 3, 2003 10:31 PM CDT Maddy, our prayers are for you and your family. Our love to all. Don and Sharon McDaniel Loveland, CO USA - Sunday, August 3, 2003 10:29 PM CDT Hope Maddison is hanging in there strong! That's just a horrible thing for a three year old to have to go through. Anyway, just to let you know, I'm a close personal friend of Jason and Karla Middlestead. Positive thoughts... Positive thoughts... Doug Lannom <lannom@aero.und.edu> Grand Forks, ND United States - Sunday, August 3, 2003 8:57 PM CDT Our prayers and love are with you our LITTLE PRINCESS. Grandpa and Grandma Middlestead Argusville , ND - Sunday, August 3, 2003 7:33 PM CDT OUR THOUGHTS AND PRAYERS ARE FOR YOU MADDY AND YOUR FAMILY. WE PRAY THAT YOU CAN GAIN WEIGHT AND GET STRONGER TO FACE THE SURGERY NEEDED. ALDEN AND ORPHA <oal3140@polarcomm.com> ARVILLA, ND - Sunday, August 3, 2003 7:12 PM CDT We will be thinking of you and praying for you Maddison. Scott, Heather, Maddison, and Megan McDaniel Loveland, CO USA - Sunday, August 3, 2003 4:46 PM CDT We all love you and wish you the very best through this difficult ordeal. Jason, Karla, Austin, Alexis - Sunday, August 3, 2003 1:30 PM CDT |
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