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- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. Click here to view older guestbook entries. Congrats on no apt for 2 years!! That must feel pretty good. You are right she is a bright beautiful young lady. So glad to hear she has "plans" for her future. Please share a hug with her for us. We have lived a miracle, celebrate each day! Michelle Shereck Moorhead, MN USA - Wednesday, October 21, 2015 4:27 PM CDT Hi I wanted to let you know my granddaughter Lillian who is only three was just diagonised with ewing sarcoma in her nasal cavity the size of a egg im scared to death about this her parents are a mess I feel like im still in a bed dream if there is anything you can tell us or guide us to help us to deal with this pleae let me know christine <2344beana@live.com> WORCESTER, ma - Sunday, June 7, 2015 9:07 PM CDT You were on my mind and heart tonight, so hunted around until I "found" you again. Saddened to hear how rough things have gotten.....adding these in lifting you all up. Ms Lu <LucelWings@aol.com> - Wednesday, September 4, 2013 10:14 PM CDT Hi there! I just wanted to stop by and say "hi" and wish you a wonderful week! Your friend, Devon DEVON FULFORD <devilrhps@yahoo.com> Austin, Texas United States - Wednesday, August 14, 2013 1:09 PM CDT Hello Maddy and family. I am sorry to hear of the latest developments. It just doesn't seem fair. I am truly excited that cancer is still at bay though. We think of you all often. We have a printing store in Fargo now and would love to have coffee sometime if you are ever in the area. We moved to Moorhead to be closer to the store so we are always around. :) Take care and we will keep you in our prayers. Michelle Shereck <michelles@minutemanpress.com> Moorhead, MN USA - Thursday, August 8, 2013 8:26 PM CDT Awesome!!! Our four year old was diagnosed on Valentine's Day. https://www.facebook.com/ConnersCrusade Hugs, Cristie Cristie Arnold <cristie.arnold@gmail.com> - Wednesday, March 13, 2013 7:20 PM CDT Hi Holly, Hi Family, Found myself thinking about you LOTS more than usual today, so thought I'd stop in to say Hello You're always in my thoughts and prayers. Hope riding's going well and that you had some Awesome Holidays! Happy New Year AND Happy Valentine's Day! Ms Lu <LucelWings@aol.com> - Thursday, February 7, 2013 11:28 AM CST you are in all of my prayers. never give up on your dreams. Katie Albertosarus - Wednesday, October 31, 2012 1:42 PM CDT My prayers are with you today!! My nephew who just turned 21 was diagnosed today with Ewings sarcoma. We are completely devistaed, as you are familiar with! It helps knowing we are not alone!! God bless you and your family!! Jamie Postal <jamie1072@msn.com> Duluth, mn st.Louis - Thursday, April 8, 2010 4:00 PM CDT Thank you for your kind words for my niece Maryah! Maddy you are such a beautiful young lady, and I hope all the best for a bright future!! Joanne (maryah's auntie) caringbridge.org/mn/maryah - Thursday, February 11, 2010 8:48 AM CST Stopping in to wish you a Happy Birthday from the Hugs and Hope Updates lady! :) Eileen - Thursday, January 14, 2010 4:44 PM CST Hello, my name is Shonda Gelormo. My 2 year old little cousin has just been diagnosed with Ewings Sarcoma and has her tumor on her rib. Please tell me more about your daughters story. We are all so worried and she is so young. She is at dupont hospital in delaware and her story is also on carring bridge. Her name is justyce butler. Please take a look. I cant see your story but i assume your daughter had it on her rib as well? I am so happy for her recovery and hope that justyce does the same. Please pray for her. Thank you. Shonda Gelormo <sgelormo@rahnsconcrete.com> Pottstown, PA USA - Tuesday, December 29, 2009 1:36 PM CST Hi Holly, Hello Maddison, Hi Family, Just wanted to stop in and wish you a Special, Holy, Blessed & Merry Christmas. Hope you have a lovely, fun and laughter-filled day. Much Love & Warm Support, Ms Lu <LucelWings@aol.com> - Wednesday, December 23, 2009 11:52 PM CST God bless you and your family! Emelin <godsgrl444@yahoo.com> Detroit, MI - Wednesday, November 4, 2009 10:27 PM CST Super strona ! Bylem i slad po sobie zostawilem ! Twoje-bajki Serdecznie zapraszamy teraz do naszego portalu ! Setki bajek on-line w naszej bazie ! Patryk <sebek2002@interia.pl> - Tuesday, April 14, 2009 4:50 AM CDT My son was diagnosed with Ewing's Sarcoma in September 2008 and in Dec. of 2008 he had his 11th rib removed,a spinal fusion on 3 vertebrae, and part of his plurel lining removed. He is currently receiving chemo until June. Your story is amazing and an encouragement. Ewing's is so uncommon that we have a hard time finding someone with the same thing. www.caringbridge.org/visit/nathanbayless Tom Bayless <tombayless@hotmail.com> Craigsville, WV US - Saturday, February 21, 2009 9:48 PM CST Hi Maddy, Wanted to stop in and wish you a very Happy Birthday m'dear! Sounds like you're doing AWESOME (and so is Mommy, grin). Hope you have a splendid Birthday and a FANTABULOUS year. Rooting and cheering Donny onward thru recovery too. Continuing to lift you all up in Prayer-Songs. Much Love & Warm Support, Ms Lu HH/DD/HH PPals Lucel-Melody Wings Atlanta, Ga USA - Sunday, January 18, 2009 2:29 AM CST NED!! Music to my ears!! NED!!! Yipee! Megan Barrett <mbarrett@mcgough.com> West St Paul, MN - Tuesday, January 13, 2009 9:26 PM CST Maryah also has scans on the 5th of January! And both scans will be NED-CLEAR!! Megan Barrett <mbarrett@mcgough.com> WSP, MN - Saturday, January 3, 2009 9:04 AM CST Hello my name is Paula and my daughter Heather was dx in Jan 2006 she lost 4 ribs and had no metasticize. I have read your journal and wanted to thank you for continuing to update. Heather is dealing with a lot of extra stresses lately and helped to see that she is not alone. She is now 11 and also recently asked me about having children and cried in despair wondering if her child if she could have them would have something wrong with it. Such big touch questions from kids whose only concern should be which PS3 game they are going to play next. Anyway Heather often sleeps 12-16 hours and we ask as you do what's up with that because she too was very tired before diagnosis. We worry about depression since she is struggling with her emotions and difficulties with school. School that has been a whole other issue . Anyway thank you again God Bless, Paula Owens Hartselle, Alabama www.caringbridge.org/visit/heatherowens Paula Owens <owenstripleh@yahoo.com> hartselle , al usa - Thursday, January 1, 2009 2:16 PM CST Hi Maddy, Hi Holly, Hi Family, Thought I'd stop by from the Parent-Pal site to see how you all are doing. Wahoooo for clear scans! That is marvelous. Maddy, I'm really sad about your friend's tumor news. That's hard stuff, as you know way too well. Will be lifting her up, and her family as well. (Just like I do you, grin). Holly, I can hear your checkbook hollering ouch all the way over here. Bless you. And, as you said, it's imperative to have mouths and teeth in good working order, so life can flourish. Bless you. Hopefully, let's skip the hernia tho, ok?! Well dear family, I'll close for now. Hope all is going well and you'll give your site an update soon, so we can know what Holiday's you celebrate and cheer you ever onward. Much Love & Warm Support, Ms Lu HH/HHPPals Lucel-Melody Wings Atlanta, Ga USA - Tuesday, December 9, 2008 8:09 PM CST hi to all, i am so happy to hear of maddy's clear scans and good health!! she is beautiful. think of you so very often. i have sent letters(e-mail) but not sure you are recieving them. i am so greatful for the blessing of maddys health. hope all is well and the family is healthy. all my love, pam pam raymer <ps raymer@charter.net> beloit, wi usa - Saturday, November 8, 2008 7:49 PM CST Congratulations on the results of the latest scans. As a mom of a Ewings patient I can't wait until we reach the point you are at now. My 12 year old son has Ewings, lost his left leg above the knee in May and we leave tomorrow to get his last Chemo treatment. My prayers are with you and your little one. Judy Clark <jc1@tularosa.net> Tularosa, NM - Monday, October 20, 2008 5:19 PM CDT HELP ST. JUDE BY CREATING A PEPPER AT CHILI'S TO FIGHT CHILDHOOD CANCER!!!! St. Jude Children’s Research Hospital and Chili’s Grill & Bar® announced the kick-off of their fifth annual Create-A-Pepper to Fight Childhood Cancer campaign. Now through September 30, Chili’s restaurants around the country and, for the first time, in Puerto Rico, are marking National Childhood Cancer Awareness Month by inviting people to get creative and raise funds to help St. Jude find cures and save children with cancer and other catastrophic childhood diseases. Guests at participating Chili’s restaurants can contribute to St. Jude in multiple ways: - Make a donation to St. Jude and receive a Create-A-Pepper chili pepper coloring sheet designed for display at restaurants during the month. - Purchase Create-A-Pepper T-shirts that can be customized with permanent marker. - Buy a customized Create-A-Pepper key that can be cut for use at home or the office. - Eat at Chili’s on Monday, Sept. 29, when Chili’s will donate 100 percent of profits from participating restaurant sales to St. Jude. Visit www.createapepper.com and to make an online donation. PASS IT AROUND!!!! GET YOUR FRIENDS/FAMILY TOGETHER!!! TRUST ME ITS SUCH AN AMAZING CAUSE :) CONTACT ME AT WWW.MYSPACE.COM/CINDY9584 Cindy Choi Miami, FL - Wednesday, September 17, 2008 0:33 AM CDT Hi Maddie and family,just wanted to say how much I enjoyed your inspirational story and how much hope it gives other families.Good Luck, happiness and especially good health. You are truly amazing x Adele Mills <adele.mills@live.com> KATY, TX USA - Thursday, August 28, 2008 10:02 PM CDT What a pretty little girl! Not to mention i LOVE the name Maddison, if/when I have a daughter in the future that most definitely will be her name. Anyway i'm so glad she's doing so well, it's always a joy to read her journal and how she's growing up and flourishing! I'm also happy to hear you guys have a sheltie puppy! I have a sheltie myself, he was evil as a puppy but has grown into a wonderful and kind-hearted dog. They're great family dogs, you guys made a good choice! Feel free to email me if you'd like any sheltie advice. Reina <amaterrassu@aol.com> US - Tuesday, May 27, 2008 1:29 AM CDT Maddison,Wishing you and your family a blessed Memorial Day. God bless,love & hugs,Linn,Daniel & Ariel The Marrero's <gillinn7@msn.com> Port Orchard, wa usa - Saturday, May 24, 2008 0:32 AM CDT trust in the gospel the word of god praise the lord and worship him always with tender compassionate charity care liane davies and richard smith <www.cerbc2008@googlesearch.com> tredegar, sw uk - Friday, May 23, 2008 8:06 AM CDT looking for christian penpals liane davies <www.cerbc2008@yahoo.com> tredegar, sw uk - Friday, May 2, 2008 9:46 AM CDT Hi Maddison and Family! I just thought I would stop by and wish you all a fabulous day! Erica D. Upper Saddle River, NJ 07458 - Monday, March 17, 2008 8:54 PM CDT Hi Maddison, Hi Family, I just wanted to stop by and wish you a Happy Valentine's Day! May your day be filled with giggles and fun, Love and delight for everyone! Much Love and Warm Support, Ms Lu Hugs&Hope/Dabbles&Doodles Lucel-Melody Wings Atlanta, Ga USA - Wednesday, February 13, 2008 12:34 AM CST Hello! Our son Jakob was diagnosed with Ewing's sarcoma in August 2007 and starting his 11th round of chemo this week. I was looking up survival stories on the net and I thank your family for sharing your journey. We have been writing on this same site, and are from Ottawa, Canada. Our site is: jakoblafleche Your story is an inspiration ! Joanne Desjardins <desjardins.joanne@yahoo.ca> ottawa, canada - Wednesday, February 6, 2008 5:30 PM CST And we are praying for you!! Things have been BUSY!! Hope all is well...way to go on CLEAR scans!!! Nice! Stay warm. Megs Barrett <mbarrett@mcgough.com> WSP, MN - Sunday, January 27, 2008 10:01 AM CST Maddy and Donovan ...Wow!!I can't believe how much hair you've got on that head of yours! I hope everything is going fantastic! I am still trying to finish up with school, still working the 2 jobs and freelance on the side.. My friend Theresa had her graduation party just this past sunday and I'm not sure if you guys remember her but she was the one filming while I was the one out of breath from playing with you two! Yup! That Theresa! She had her Disney pictures and after getting home I popped in the DVD where you and your brother were chasing me and i was chasing you.. ah that was the best memory of Disney I ever had.. lets keep this short shall I? I miss you guys! Next time you take a trip to Disney let me know I'm sure I'll get back there soon! Hope to bump into you at Disney!! Ziggy Chicano <pinayskye@msn.com> aurora, il USA - Monday, January 21, 2008 7:55 PM CST I picked Maddison to do a birthday box for in Hugs and Hope waaay back in December- and have tried contacting you several times the past ten days. I haven't heard from you, the emails definitely went through, did not bounce. Wonder who is getting your mail, lol?! I know you'll make her upcoming birthday a wonderful day and wish I could have participated, but I need you to verify the address that Hugs has (a p.o. box) shortly. I know you probably have a lot on your mind and may have just overlooked my emails, or they got blocked as spam or something. I'm not spam, I'm me! :) So email me! Cathie L CeramicEmporium.com, Dabbles/OWC/Hugs <ceramicemporium@bellsouth.net> Pensacola, FL - Friday, January 4, 2008 11:59 AM CST Merry Christmas! Love, Colton's family www.caringbridge.org/ca/coltonmeyer Laura ca - Saturday, December 15, 2007 0:27 AM CST Elliott, We will be thinkling of you tomorrow when you are having your bone marrow transplant. Everyone at Sandwich High School has been asked to wear their Orange Crush T's in your honor tomorrow. I'm looking forward to both seeing a sea of orange at the school tomorrow and hearing of your speedy recovery to good health. Thinking of you, Mrs. Frieders :) Mrs. Frieders Plano, IL 60545 - Tuesday, November 20, 2007 5:37 PM CST Kourtni - Saturday, November 3, 2007 2:14 AM CDT to Little Miss, I'm not sure if you remember, but I sent you a card in 2004 because your face captured my heart. I wanted to check up on you and see how you were doing. Mrs. Williams, how are you? ~ Take everything to God in prayer~ cindy tx - Wednesday, October 3, 2007 1:06 AM CDT I went to Maggie's service on Saturday...I was so moved by all the people that love her. I loved hearing the stories that Uncle Phil told. It was a beautiful service for a beautiful girl. I gave Cindy a big hug...a few of them. Oh I am going to miss that girl...I do believe there is a heaven and I know she is running free with no pain. I just wish she was pain free and running here on earth. We have to find these children a cure!! My heart can't take much more of this. Megan Barrett <mbarrett@mcgough.com> West St Paul, MN - Tuesday, August 28, 2007 10:07 PM CDT Holly am glad to be a part of your lives me and my husband Allen will stay in touch with Hugs&Hope Wanda&Allen McQuiston <funwithmycritters@yahoo.com> Exeland, Wi USA - Sunday, August 5, 2007 12:07 AM CDT Hi, my name is Paula and my daughter was dianosed Jan 06 with Ewings of the 7th left rib and had the 5th-8th rib resected. Scans have been clear and as with your daugther the tumor was necrotic at surgery. I am curious about the Gortex prosthetic and how it has been is comparison to growth. My daughter has a ridge in her back where it appears the plate is sticking through the surgeon will look at it on the 31st of this month and thinks he may need to build up the area with more tissue? to provide Heather more comfort. Thanks www.caringbridge.org/visit/heatherowens paula owens hartselle, al united states - Thursday, July 19, 2007 0:12 AM CDT Would you like me to add Maddison to Loyal Lamb Outreach http://loyallamb.tripod.com/LoyallambOutreach.html Tanja <loyallamb@cogeco.ca> Canada - Tuesday, July 17, 2007 3:27 PM CDT Maddison,Just driving by to say hi!God bless,love & hugs,Linn,Daniel & Ariel The Marrero's <gillinn7@msn.com> port orchard, wa usa - Monday, May 28, 2007 6:06 PM CDT I've been so busy...I am back!! I'll send you an e-mail on Monday when I am at work. The new picture is SO CUTE! I loved your dandelion story...I too have received many dandelions and probably gave out many dandelions...when you are a kid and a grown-up tells you they aren't flowers, they are weeds...you just don't believe them! In my heart, they will always be flowers....great story! Did you check out Maryah's website...she danced!! Boy was that a sight...or a blur through my tears! You can do anything you put your mind to :) Hope all is well...oh yeah....3 years in remission...be proud!! VERY PROUD!! Job well done! Megan Barrett <mbarrett@mcgough.com> West St Paul, MN - Saturday, May 19, 2007 4:17 PM CDT Sorry I haven't checked in for awhile, but it is so good to see such a great picture and get wonderful news. Yoo Hoo!! Keep it up. Cindy Nelson-Maggie Schumann's mom www.caringbridge.org/wi/maggie <cindyschu@aol.com> Milwaukee, WI - Monday, April 30, 2007 7:45 PM CDT hi everyone, i am so happy for Maddy and the whole family!!!!!! congradulations!!!!!!!!!!!!!!!!! 36 months is amazing and i am sure 5 years will be a life changing experience for you all. God is great!!!!!! hope you are planning for a super summer. did i mention that maddy is becoming more and more beautiful? hope the guys are doing well too. thinking of you all often. my phone and computor time have become almost non-existant. we have been spending alot of time discussing our plans for the summer and home improvements. we have started so many projects and cannot finish one. work is a 7 day thing for me and i am getting stressed and tired. i sure miss family and cooking. last time you'll hear that!!:) anyway, i am so happy for you all. thinking of you often and praying for you too. love, pam pam raymer <psraymer@charter.net> beloit, wi usa - Sunday, April 29, 2007 3:23 PM CDT Hi Maddison and Family My name is Jenna and I came across Maddison's site. Maddison is an amazing girl. Such an inspiration. Beautiful inside and out. Maddison is in my thoughts and prayers. www.caringbridge.org/canada/jenna Jenna <fighter_smiley@yahoo.ca> Kamloops, BC Canada - Monday, April 23, 2007 6:01 PM CDT Hi, my daughter alana was diagnosed with ewing's when she was 3 and we are 5 cycles away from being done with treatment now. Thank you for sharing your story, it really helped me have hope. Maddy is adorable! Check out her carepage if you want. www.carepages.com her carepage name is alanadelislecarepage. hope to hear from you. thanks again. melissa delisle <mottav@accuratecounts.com> amesbury, ma - Thursday, April 19, 2007 6:19 PM CDT Yeah baby, and we are steam rolling to the 5 year mark. Maddison you are absoleutly goregous. Melissa Dallas, TX - Wednesday, April 18, 2007 5:16 PM CDT Congratulations on three years!!! 36 months without cancer - without chemo - is something to celebrate, no matter what the doctors might think! :) It is so great to read how well things are going and how Maddy is thriving! Keep it up! All the best, Katie (E-Sarc) <kcollupy@student.stonehill.edu> Braintree, MA - Tuesday, April 10, 2007 10:19 PM CDT Happy Easter!! I hope you have a great weekend!! Donovan I hope you had a great birthday!!! I've been thinking about you lately (as always!). Maryah's mom, Rachel is having a boy!! He'll have 4 sisters...should be fun for him :) Megan Barrett <mbarrett@mcgough.com> West St Paul, MN - Thursday, April 5, 2007 5:44 PM CDT Maddison, I've been thinking a lot about you lately...I hope you are doing ok! I gave Maryah a big ol hug from you...she returns the hug!! You are never far from our thoughts. Keep going strong girl...you are amazing!! Megan Barrett-Martin <marrett@mcgough.com> West St Paul, MN - Saturday, March 3, 2007 8:55 AM CST Megan Barrett (Martin) <mbarrett@mcgough.com> West St. Paul, MN - Wednesday, February 14, 2007 6:31 PM CST Holly, It's not the news we were hoping for...it's back again. But, we have not lost faith and we still have HOPE....MARYAH'S HOPE!!! Megan Barrett-Martin <mbarrett@mcgough.com> West St. Paul, MN - Monday, January 29, 2007 5:53 PM CST Maddy, Hope you are doing good :) How does it feel to be another year older?? Just stopping by to let you know I am thinking about you!! Megan Barrett (Martin) <mbbarrett@mcgough.com> W St Paul, MN - Thursday, January 25, 2007 9:24 AM CST HAPPY BIRTHDAY MADDISON!!!!!!!! I hope you have a GREAT day!! Megan Barrett-Martin West St Paul, MN - Thursday, January 18, 2007 9:08 AM CST Quilts of Love stopping by to say HAPPY BIRTHDAY Maddison(jan18). We are keeping you and your family in our thoughts and prayers. Love and Prayers God Bless Quilts of Love Angel Trista Trista Long <Chris-Trista@att.net> Fairmont, Wv 26554 - Sunday, January 14, 2007 7:34 PM CST Holly & Maddy, Glad to hear everything is good with Maddy's health!! I am so glad to hear Donny found a new job!!! It will get easier in time..know that your in our thoughts & remain in our prayers. Jackie (Jessie's Mom) <helmbreck@sbcglobal.net caringbridge.org/wi/jessie> - Saturday, January 13, 2007 1:02 PM CST Still here and I'm still praying, that will never change! Just want you to know that I'm here...always. Megan Barrett (Martin) <mbarrett@mcgough.com> West St. Paul, MN - Saturday, January 13, 2007 8:58 AM CST Maddy- Just checking in to tell you I'm thinking of you. Hope you had a good weekend! Megan Barrett-Martin <mbarrett@mcgough.com> West St. Paul, MN - Sunday, January 7, 2007 9:57 AM CST Click here to sign the guestbook. | |||||||||||||||||||||||||||
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