This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 12-18

This Week

Trenton hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

No major updates today. We met the nephrologist that will handle trentons outpatient dialysis and discussed options going forward and his current labs. 

His hemoglobin, hematocrit and red blood cells remain low. We are avoiding a transfusion unless it is our only option. Transfusions add antibodies and that can, in turn, cause extra sensitivity to a transplant.  They are currently giving him IV iron weekly and hoping that with dialysis relieving stress from his kidneys that his body will start to produce more red blood cells and his numbers will continue to rise. 

As far as the transplant, we are still waiting for insurance to do the prior authorization to start the evaluation process. Until they have that we can't get it scheduled. Hopefully that will come through soon. We have 2.5 months to get through the process and get him accepted on the recipient list before he turns 18. Getting him listed as a minor is a key part to make this process as quick as possible for him

To everyone who has donated to the GoFundMe for Trenton, THANK YOU!  The generosity of our friends, family, community and complete strangers has humbled me for a second time in the last 5 years. It is a relief to know that future weeks of missed work, unpaid, I will still be able to pay the mortgage and support my kiddos. I appreciate every single one of you.  

Read the latest Journal Entry

1 Heart • 1 Comment

SVG_Icons_Back_To_Top
Top