Wanted to post an update following my Doctor appts this week. Wow I haven’t posted for a year.
The myositis is cleared. I had my final IVIG treatment in February and I am back to normal. So blessed to have gotten Dr. Varadhachary for my neurologist. He is super nice and clearly good at what he does. Steve took pictures.
I also saw my Oncologist on Tuesday (also a wonderful doctor). They do blood work monthly. My cancer marker fluctuates even though I have no other symptoms. He has continued one of the chemo infusions since this all started in 2021. I got round 17 on Tuesday but it is no big deal, doesn’t make me sick and I still have hair :-) He will continue until my number settles or I develop side effects. He continues to do scans and look for issues. Although I long to be considered in remission it is nice to be watched this regularly so nothing develops that can’t be taken care of. The team is great and I enjoy seeing them each month. I am blessed to have insurance coverage to make it possible.
Wishing you a blessed Easter.