This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 12-18

This Week

Tom hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

We’re back at MDA for Tom’s regularly scheduled monthly appointment with his Neuro-oncologist. Thus far, May has been a difficult month.
Tom took a sharp downturn about May 2nd/3rd. His gait was unsteady, he had a blank expression, he was disoriented and non-communicative - just not himself! 
After consulting with a couple of our children, the consensus was to get him to the MDA ER. We got here Saturday, May 4th, about 6:30.
They got him in immediately & started with all the routine tests, as well as a CT & MRIs of his brain. He had cerebral edema around his tumor bed and was admitted. His steroid dose was quadrupled & we were able to come home Wednesday. It was a rough time for sweet Tom - everything was confusing.
So.. we had a short week at home, and felt drained during those days.
The good news is that his thinking cleared up amazingly well! And he didn’t lose any long-term memory or his sense of humor!
The unfortunate news is that he’ll start Round #3 of the dreaded mega-dose chemo Wednesday - Sunday. Grateful for something that kills GBM cells, but .. it’s so hard on his system. Wish there were a “kinder, gentler” chemo!! Ha!
On the home front, it was a lovely Mother’s Day before we drove to Houston in a torrential downpour!! Our hydrangeas, gardenias, & roses have burst into gorgeous blooms, so I’ll get to continue cutting & sharing flowers with family & friends!
We thank God for His goodness in protecting and guiding and loving us in all the up’s & down’s of the past weeks! And we continue to be so grateful to you all for your kindness & prayers! More later..


Read the latest Journal Entry

4 Hearts • 4 Comments

SVG_Icons_Back_To_Top
Top