Michelle’s Story

Site created on September 29, 2023

9/29/23  Hello to our friends, family and all the special people in our lives - John and I are so thankful for the love and support we have had in our work, our lives, and in prayer. My hope is that this platform is a place for us to keep you informed on my health and where we are as a family. Your love and prayers are what will make the difference in the days ahead for our family. 
(more to come soon....love, Michelle)



10/5/23 I was diagnosed with Hepatic Cholangiocarcinoma (HCC) by MRI on 9/18/23 after feeling fatigued more than normal during the day, and especially at the end of my days. Since then a battery of testing, procedures, and imaging has confirmed that diagnosis and a treatment plan with oncology is in place. My care has been incredible from my health system - enhanced by the sparkles of people that I have encountered who are from past personal relationships and work circles. These sparkles have made all the difference to me, like little beams of light guiding my path. 
My next adventure is chemotherapy and immunotherapy to start tomorrow. I'm ready to start and head into the next set of unknowns. Given all of the support our family has felt from our family, friends, work, St Agnes community, and our faith - who in our hearts are all one Team Bolen - I can't think of anything more we need. 
The love is so big. It's bigger than this cancer, bigger than fear, bigger than worry.  

Newest Update

Journal entry by Michelle Bolen

I have a friend who I've worked with for years that would describe a patient in distress and actively declining as "the freefall". Matt would say to the team "We have to stop the freefall." Meaning: we have to assess what has to happen immediately and do that, then do the next right thing when we have stabilized the patient. My freefall was the week of diagnosis and specialist visits and the news we were getting felt like we were falling through the net I was hoping would end this nightmare. "You know this looks like a X, not cancer." But, that didn't come and what was in its place was sad eyes and soft encouragement. 

Our freefall stopped when we met with my oncologist. To have a plan has always brought me comfort, I'm wired like that, but his was so clear and encouraging that I could feel the relief in the room from John and Jody. I am still guarded in my relief but fully know I am in the best of care.

We are not freefalling anymore - we are floating in our plan. Taking it one step at a time. Doing the next right thing. Gathering our team and resources to be prepared for the uphill battle. Talk to the girls. Take care of the girls. Love each other and have grace in our home.

The thing with floating is there is time now to enjoy the view: to love harder, leave nothing unsaid, comment on the trees turning, let go of the small stuff, prioritize the good stuff, enjoy the funnies. 

Floating is still scary but almost enjoyable with all our incredible support. Thank you. Thank you.

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