Journal entry by Erik Sorensen —
Home!
Syndie was discharged today and is super happy to be back home! So far everything is normal. She hasn't had any infections, and no signs yet of rejection (graft-host). She is off to a great start!
She is not out of the clear though. The first 100 days post implant are still high risk for her for both infection as well as graft-host diswase. With a bone marrow transplant she has to grow a complete new immune system, and that takes about three months. And the first 100 days are when the most serious graft-host reactions occur. So, for these reasons she will be going to outpatient visits pretty frequently and especially in the next 4 weeks.
She will also remain at home during this period (when not at the clinic). Outside of graduation she will be generally self-isolating. For reference today is day 19 and day 100 is 8/1. So if you don't see her around, you know why.
Thank you for your prayers and support!
Erik
Syndie was discharged today and is super happy to be back home! So far everything is normal. She hasn't had any infections, and no signs yet of rejection (graft-host). She is off to a great start!
She is not out of the clear though. The first 100 days post implant are still high risk for her for both infection as well as graft-host diswase. With a bone marrow transplant she has to grow a complete new immune system, and that takes about three months. And the first 100 days are when the most serious graft-host reactions occur. So, for these reasons she will be going to outpatient visits pretty frequently and especially in the next 4 weeks.
She will also remain at home during this period (when not at the clinic). Outside of graduation she will be generally self-isolating. For reference today is day 19 and day 100 is 8/1. So if you don't see her around, you know why.
Thank you for your prayers and support!
Erik
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