Sheila’s Story

Site created on March 31, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

March is a big month in our family. It’s the month with the most family member birthdays, including mom’s on March 19, and if you’re lucky enough to have a March birthday, you are celebrated all month long. This year’s celebration took an unexpected turn when mom went to urgent care for what we thought were possibly kidney stones. A scan of her abdomen revealed an 8+ cm tumor on her liver. Fast forward 2 weeks and on Thursday, March 24th mom received her cancer diagnosis: Cholangiocarcinoma also called: bile duct cancer.

They say the waiting is the hardest part and whoever “they” are, weren’t joking. The time between discovering the tumor, going in for a biopsy, receiving her diagnosis and waiting to meet with doctors for next steps was very difficult, as you can imagine. We each did our due diligence to better understand the type of cancer she has, what treatment options would be possibilities, and what recovery might look like. Unfortunately, it felt a lot like doom scrolling.

Finally on Monday, March 28th mom and dad met with doctors to discuss her treatment options. We were all breathing a bit easier when she was told she was a good candidate for surgery; healthy, no signs of cancer spread, minimal surgical risk factors. WAY TO GO SHEILA FOR PRIORITIZING YOUR HEALTH AND WELLNESS ALL THESE YEARS!!!

Surgery is scheduled for Friday, April 15th. The surgeon will remove the tumor (Get out! You are unwanted), 1/2 her Liver (livers regenerate, yay for that), her Gallbladder (good thing this organ is more “ornamental” than anything else) and surrounding lymph nodes. To be clear, this is no simple surgery and they may find some unexpected challenges once the surgery begins. But, mom’s surgeon is skilled, experienced in treating this rare form of cancer, and feels optimistic that this will be a great first step towards her return to a cancer-free life.

Barring any complications, mom will stay at the hospital 3-4 days post-op and begin 6-8 weeks of recovery at home. She will do chemotherapy to help fight any cancer that may not be removed during surgery or that would want to try and come back.

Like many who face a cancer diagnosis and have the opportunity to move forward with treatment, we are working towards a couple milestones. First, is getting to 2 years with no reoccurrence. This particular type of cancer, if it returns, usually will do so within 2 years. The second milestone is 5+ years cancer free.

Mom’s road to recovery is long from where we stand today. It’s time to get going so that this road is in our rear view mirror sooner than later.

Mom has cancer. This fact sucks. However, we know with all the love, prayers, and positivity you are prepared to send her way and ours, we WILL come away from this experience cancer free and ready to celebrate many more birthdays in the month of March.

We will keep you posted, through journal entries and let you know what additional support would be welcomed.

What we know for sure: Mom’s faith will see her through. Pray for her to maintain her faith throughout this journey.
She loves receiving mail, good ‘ol fashion snail mail.
7107 Interlachen Court Eden Prairie MN 55346
Send your best greeting cards, the funnier, the better, hand written notes of inspiration and encouragement, or newspaper clippings have also been a Pates Family tradition…Read something interesting? Cut it out and send it mom’s way.
Listen to Motown music and dance to generate positive energy and then send it her way.
Phone calls and text messages will be appreciated and answered as mom can.

Again, thank you for visiting mom’s CaringBridge, for loving her as fiercely as we do and praying for her strength and resilience to see her all the way through.

Love,
Bob, Lindsay, Michael, and Andrew

Newest Update

Journal entry by Lindsay Steinke (Danielson)

Let it Snow, Let it Snow, Let it Snow. 

Winter is officially here in Minnesota as we all donned our shoveling or snow blowing finest yesterday.   8" of the "white stuff" blanketed the Twin Cities, setting the scene for the Holiday Season.  For those of you counting, you have 24 days left to make your way out to the General Store of Minnetonka to do a little shopping and enjoy one of their famous popovers with a cup of chicken and wild rice soup.  That is one of mine and Mom's favorite Christmas traditions,  that and having fried rice and egg rolls on Christmas Eve.  

To write the above is akin to taking the most satisfying deep breath in and out.  After many many months of Mom and Dad's days being dictated by doctors visits, hospital stays, challenging recovery at home, we are now able to put things on the calendar that have nothing to do with doctors, nurses, PAs, and the like.  A welcomed reminder that It's a Wonderful Life we are getting back to. 

I asked Mom if she'd like to share a little update and plan to have it be our last and final post here on her CaringBridge site, God-willing.  She agreed to put pen to paper or fingers to keyboard, to be more accurate, and so without further ado...

From the desk of Sheila Danielson: 

I received an early Christmas gift last week after my second set of CT scans since my surgery last April. The results show that I am “clean” meaning no cancer anywhere! Hallelujah! I followed up with the oncologist last Friday, November 25th and my blood work also looks like things are getting better and back to normal. He said since I had such a toxic reaction to the chemo my recovery is taking longer, however, I should be continuing to feel better and better over the next 2 months.  The only lump of coal this holiday season is that there is a lingering GI issue I am still following up on.  Despite this, I feel extremely blessed to have received the good news from my scans and bloodwork results. Next scan will be in March 2023.

I want to say how much I appreciate all of the support I have received and continue to receive from wonderful family and friends! From cards to calls, visits, walks, pizza, a music concert, lunch and dinner dates, it all means so much to me and Bob.  Speaking of Bob, he had his 2019 knee replacement  replaced October 28th.  Everything went very well, but we know that it's the recovery that's the hardest part.  So, please send up a prayer for Bob’s knee to heal well and quickly. 

Wishing everyone a happy holiday season and hope you all hug your loved ones!
God Bless
Sheila

On behalf of myself and our immediate family, thank you for visiting Mom's CaringBridge site during the past almost 10 months .  Having your love and support right here on the site or in all the shapes and forms Mom listed above, has been the extra bit of strength we all needed to keep faith during this journey.  It's no small thing that as we "sign-off" of CaringBridge Mom is alive, cancer free, and gently making her way back to full health and happiness.  One walk at a time, of course.  For all our blessings, including you, we are grateful.  

We hope you will find a moment this Holiday Season to raise your glass to Mom's health and to resilience. 

In 2023 may you be healthy, may you be happy, and may you have peace.  

In light & gratitude, 

Bob, Lindsay, Jordan & Alexander, Mike, Katie, Caleb, Jacob, Rachel, Sophia, John, & Isaac, & Andrew, Ness & Calvin

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