Our journey continues and Samantha continues to be strong and amazing. Today she has an MRI under anesthesia to take another look at the tumor. Our hope and prayer is that the meningioma has shrunk and will not cause problems in the future.
We do have another significant update. Through genetic testing we have discovered that Samantha has a very rare condition called Myhre Syndrome. While we are grateful to now have an understanding about how all of her medical issues are connected, there is a sobering list of new specialists to consult and a whole new level of testing to monitor future possible health issues relate to Myhre syndrome. Apparently, there are less than 200 confirmed cases of the syndrome in the world. We have always known Samantha is special…😍
Thanks for checking in and for your continued prayers. Karen j
