Robert’s Story

Site created on February 20, 2019

Robert was diagnosed with "Lewy Body Dementia" about 2 years ago.  IMHO, i don't think he has the Lewy version, cuz he's reasonably functional, and he's not hallucinating.  i have to help him get dressed (diapers. jeans, belt, t-shirt, and hoodie).  he wears the same uniform everyday...even sleeps in it.  he waxes and wanes.  i never know what version of robert to expect every morning.  i'm understanding him more.  he tends to fight a lot with scotty in the evening...sundowners syndrome.  he's been able to walk up to supercuts and get a shave all by himself (he can no longer shave)  .  i give him the money and separate the tip money.  we both know when he's having a good day, when he can go places w/o getting lost.  my parents' house is the perfect place for us to live.  i always thought we'd move back to grass valley, but plans have changed.  we're within walking distance of just about everything here.  back in g.v., we're pretty isolated (just what i like about it), but robert can't drive, and walking to places are to far for him.  so, we take a day at a time.  it's the best way to do it.   i'm not ready for him to leave me yet.

Newest Update

Journal entry by Deborah Searles-Todd

it's been a long time since i updated this journal.   probably becuz every day is up and down.  i know that i love robert so much, and i can't handle the idea of losing him..😭.  some days (like today) you can't really tell there is anything wrong.  he's got the same wants and dislikes, looks the same, and he mostly acts the same, except sometimes he sleeps a lot.  

we sold my dad's Ranchero this past weekend, and he was right in there with us, chit-chatting with the buyer...just like robert's always been.  i have to check the house (and him) several times a day and lock up at night.  i miss him doing that, but i have no choice now.

the other night the doorbell rang, and he jumped up to get it.  i went running after him telling him not to open the door, but i was too late...thank God he got hung up opening the guard chain, cuz he only got that far.  i was beating on his back telling him NEVER to open the door like that at night, unless he knows who it is.  turned out, it was round table pizza with 2 orders that we didn't place.  we don't know how they ended up here, so we threw them out.  a little while later, robert came into the bedroom with them, asking me didn't i want my pizza?  i told him to throw them out again.  it was sweet.

he is still eating his coveted "honey oat cherrios" and leaving them around the house.  the other day he surprised me by picking all the spilled ones up around his chair...and this was just before his caregiver, Pie, came by.

he still gets along great with anyone, loves all the dogs, insists on wearing too tight jeans, and i have to squish him in with a well-worn belt, then his Christian t shirt, then his Afghan Daddy sweatshirt, and a Christian cap.  i think whenever i imagine him, it'll be in that outfit.

he can still take scotty for a walk locally, and find his way back (or scotty does...hah!).  he misses driving, but can still sometimes remember directions to places.  he still makes new friends (like the buyer of the Ranchero), and i'm so glad for that.  it's good to see him "holding court" again.  my heart breaks to think of life without him...🙏 🙏 🙏 😭 🙏 🙏 
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