This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 05-11

This Week

Peter hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

Just a quick follow up to let everyone know that following the disappointing surgery attempt and the subsequent drug reaction…Peter has recovered well! 

We are so grateful that his nerve pain following surgery only lasted about a week, and the drug reaction responded very well to the quick use of Prednisone.
He will be tapering off that med for several weeks yet, but he’s feeling mostly normal now.

He has recovered so well that we are able to take him on a short Spring Break trip for a long weekend to visit his sister in KC and do a college visit on Monday.

The long term plans are now that Peter has decided that he has no desire to have any more surgeries for a very, very long time. This is partly because his DRESS diagnosis has changed. His condition is now described as Multi-Drug-Hypersensitivity-Syndrome. (Because he reacts immediately now to new drugs…rather than after extended exposure with DRESS.) This now means that, going forward, his system will likely have the big reaction any time he needs to take any kind of a new medicine. Many of which are needed in surgery situations.
The dermatologist identified an antibiotic they gave during this last surgery that was new to him, which was probably the culprit this time. So, all antibiotics are to be avoided  (along with NSAIDs) for the forsee-able future.

In a wierd way, not having to deal with months of rehab and recovery is a little bit of a relief. Now the task is to settle in with living life with foot drop. Now, the plan is to work on getting past the Prednizone appetite, switch to an anti-inflammation diet plan, and lean into a good exercise routine and do some fun activities that work. Golf and shooting sports are now being considered for the summer. (Mom recommends Curling😆…but so far, not a big interest.)

🙏🏼🙏🏼😊

Thank you so much for all the prayers and support. We believe that your spiritual support has truly sustained Peter and our family through this journey. 

🙏🏼🙏🏼😊

Read the latest Journal Entry

5 Hearts • 5 Comments

SVG_Icons_Back_To_Top
Top