Pamela’s Story

Site created on December 31, 2021

You are the best!  I am very aware of the love and care my friends have toward me and my family.  Together we have celebrated, mourned, played, learned, worked and grown into a community that matters to each other.  I love you!


Turning the page to the next chapter, we find more surprise and suspense.  


Back story - For a few years I was aware that I thought I couldn't hear as well as other people; I really needed to read lips to understand.  I figured I was a visual learner, so assumed  my brain was tricking me (I had a hearing test many years ago and it was fine).  Then the past couple years my children were a bit exasperated that I was having them repeat themselves, and this worsened to an obvious hearing loss and ringing in my left ear.  


In February 2021, I was examined by ENT and had a hearing test.  They confirmed that I indeed had lost hearing in the upper range of tones, so they suggested I get an MRI which confirmed that I had a growth next to my brain compressing against some important nerves: acoustic (hearing) nerve, vestibular (balance) nerve, and the facial nerve.  If the tumor continued to grow, it would further compromise the function of those nerves and press against my brain stem.  


Diagnosis of Acoustic Neuroma (sometimes known as Vestibular Schwannoma) - The sheath (lining) of a nerve became tumorous.  It is not cancerous.


I was evaluated at both MHealth/Fairview (University of Minnesota) skull base clinic and Mayo Clinic in Rochester; both excellent!  I decided to work with MHealth because the team had done more surgeries for this type of tumor, and I simply liked the ease of being in the same city for the current and future treatment.  We decided to observe my symptoms for 6 months and recheck for tumor growth to determine the treatment plan.    My MRI in November did show that the tumor was growing, and the hearing test reported more hearing loss.



Monday, January 3rd, I will have a craniotomy to remove the tumor - retrosigmoid approach for those of you who like details.  What does this mean?  I'll have a new haircut!  After the haircut, they estimate a 10-hour surgery and 5-7 days in the hospital for recovery.  


What happens in surgery?  To remove the tumor, they need to remove the nerve that went awry.  The MRI is not concise enough to tell us the exact nerve, so they won't know until they make visible contact.  Statistically, there is 40% chance my hearing will remain.  The balance nerve will for sure be eliminated, so my brain will need  to learn how to maintain an upright Pamela.  And I am really hoping my facial nerve stays intact, otherwise the left side of my face will be.... problematic.  To get me back to my spry self, I'll be in physical therapy for balance rehab, and perhaps I'll need therapy to learn how to engage the world with single-sided deafness.  Three months later I'll be feeling back to normal.


I am not too bashful to ask for your prayers in this matter.  Please lead with gratefulness!  I am so thankful that the tumor is slow-growing and benign.  I am amazed at the skill of doctors who confidently reassure me with their expertise, explanations, and "we've got this" attitude.  I am grateful for having nearly a year to process and prepare.  I thank God for giving me the gift of trusting He is with me, for me, and in me.  


Join me also in praying for the complete, safe removal of the tumor while preserving my hearing and facial nerves.  Pray for my tolerance of the vertigo and all the nasty stuff that comes with it.


And EVEN IF our prayers get answered in a way that differs from what my physical comfort yearns for, pray that I will accept and use the new circumstances in a way that brings new life and joy in unexpected ways.  There are details I am keeping private from this public site,  but for those of you who know my story up to this point know that I can overcome the unexpected.  It is only by the grace of God.  Period.  


So, I am hours from going into surgery to remove a type of brain tumor, and I am happy.  My oldest son, Ian, proposed to lovely Leigha just days ago.  My youngest son, Thomas, is navigating university during a pandemic like a pro.  My middle daughter, Sara, and her Michael are settling into their newly purchased home.  My family spent wonderful time together for Christmas and learned more about generosity.  My friends are innumerable.  Really, I am so blessed!


Let's do this!


~Pamela 

Newest Update

Journal entry by Pamela Strommen

Greetings!  Four weeks ago I was waking up from a craniotomy struggling to find lucid thoughts and clear vision, and today I am happy to report my vision is well on its way to normal.  I’ll let you judge whether my thoughts are lucid or not.   :-)

 
Read on if you want specifics again.
 
Vision:
When I look straight ahead, upward or toward the left, my vision is stable  - when I’m well rested.  When I look downward or toward the right, I still have some double vision. Just recently I noticed I could hold a gaze, but before that if I looked at something for too long it was as if my sight would disappear if I didn’t move my eyes to look at something else or simply close my eyes.  And when my brains starts doing the shimmy, my eyesight wants to join the dance, too.
 
The shimmy:
This is the name I give to the feeling of my brain vibrating inside my head.  It is hard to focus not only my eyes, but my mind wants to shut down, too.  This happens when I try to walk outside in the snow-white outdoors, when I move around the house too much, when I read a book or work at the computer for too long (30-60 minutes), and when I tried to drive that one time.  Once I retreat and rest, it quiets down.  The good news is the shimmy is happening less and less! 
 
Pain:
Totally manageable!  Yes, I get a headache with the shimmy, but it subsides with rest (sometimes Tylenol, too).   But, resting too long (laying with my head on a pillow) doesn’t always feel good either, so I’ve figured out some tricks to get everybody in agreement.  My hip wound has pretty much healed, but the surgical site behind my left ear is lingering to keep me humble.  
 
Hearing:
The fullness in my ear is lessening, the tinnitus is irritating, the noisy feedback with sound is disappointing, and isolating the source of sound is confusing.  But I have a measure of hearing in my left ear which I am loving!
 
Face:
Not sure the permanence, but right now my left upper lip and cheek are a little bit weak.  Hopefully as swelling goes down and muscles/nerves heal, it will go back to normal.

Balance:
I am not bouncing between walls anymore, so it’s not nearly as fun.  But if I want to feel like riding on a carnival ride, I just need to turn my head…or even move my eyeballs.  But that, too, is getting more boring.  The “retinal slip” is  easing a bit.  It’s hard to explain the sensation - when I turn my eyes, the environment takes a couple beats to keep up.  When I work it too much, the shimmy starts.  
I have never fallen, but I still find myself a little tippy.  It’s as if I don’t know that I am leaning too much or tipping over; I do catch it before I fall.  
 
Like I said with grief - it isn’t time that heals, it is what we do with time that heals.  I do need to be patient and allow time, but I also need to do rehab exercises to train my brain to use my vestibular system in a new way.  Next week I meet the surgeons again and I’ll have a hearing test.  I’ll let you know how things are going after that and hope to report that I’ll be driving.
 
That was all the ‘house keeping.’  Now a peek into some of my ‘lucid’ thoughts ( I dare you to read on).  ;-)
 
LIMINAL SPACE:  The time AFTER the end of one thing, but BEFORE the beginning of another thing.
 
I studied this concept when Peter, my husband, was ending his career at Process Displays but knew there would be something else next.  That time in the middle often is labeled negatively as a desert or wandering…with no answers.  But if you understand liminal space, you can lean into that middle season with no waste.  There is purpose, learning, listening, growing, waiting, preparing, wondering…it can be incredible! (Albeit painful, too.)
 
The “what’s next” for Pete was fully realized when he was riding his bike in the mountains of Colorado.  In an instant, he was seeing Jesus face to face; Peter would never experience a liminal space again.  This is wonderful…for him.
 
But for me, it was a sudden end.  In that same instant, I entered a liminal space.  And it has been a whopper!  Eighteen months ago, though, I sensed the beginning of my next thing as I entered into Life Coach certification and created my own business, StrommenView, LLC.  Then, just as it was getting started, I got the news that I have a benign tumor growing against my brain.  Back into a liminal space I go.
 
Why am I talking about this?  Because I want you to know that I am ok!  No need to feel sorry for this girl, no need to think how tragic life must be for me.  “Widowed, and now a brain tumor?  She can’t take much more!”   I beg to differ.  I don’t live by my own strength, so I can take whatever the Lord allows.  He is the one who holds me up; It’s His job and I trust Him.  Is it easy for me?  Nope!  But it sure helps to sit in this space knowing that there is purpose, growth, preparation and wonder.
 
So, as I write this today, I sense a new beginning is coming again.  It’s more fun to choose anticipation over woeful misery.  My body will continue to heal, and so will my heart.  I won’t rush this liminal space as it needs to work itself out, and I trust the process.  
 
Lest you think I am Pollyanna, know that I am very familiar with having a dark night of the soul.  Then you call me. You send me a card or flowers. You share a meal with me.  You check in with my kids.  You roll my trash cans back to their place and remove snow from my driveway.  You rub my back and change my bandages. You watch TV with me.  You drive me to appointments, to lunch, to the airport.  You drive by my house in a birthday parade with decorated cars.  You offer to pick up whatever I need at the store.  You clean my house.  You cry with me. You pray.
 
You are my healers.  
 
Thank you.
 
~Pamela
 

 

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