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May 12-18

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Hey everyone! Been meaning to get a little update on here for the past wk. Our little boy is doing amazing! He’s 10lbs now! Orson sleeps 5 hr stretches at night and is eating about 3oz every time he’s hungry. The only thing we’ve been struggling with is he seems to get the milk down the wrong pipe and into his lungs a bit and then we deal with that for hrs. Just trying to help him get it up. His acid reflux seems to be worse too so we are wondering if his fistula needs to be dilated. We have an appointment with Dr Okolo next wk. Seems like I get a call about every day from some doctor or other that needs to know how Orson is doing or set up a follow up appointment. The next few months are gonna be busy! His surgery to get the jaw hardware out is set for may 24 and they are also going to do his hearing test while he’s out for surgery because we weren’t able to get it to work when we went in for it. They say they can actually get a better testing when they are completely out than when they are just sleeping.  Right now Orson loves to look at his black and white pictures. And he loves car rides! Thankful for that! He’s a very happy baby and if he’s fussing he usually has a good reason for it. We went to church the other day for the first time and it was so wonderful to have him there! Thanks for all your continued love and prayers!

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