This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
Apr 28-May 04

This Week

Nothing Planned This Week
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

Hello friends and family! I know it's been awhile since an update on Nick's conditions but he has been doing so well I didn't feel the need to report. He is recovering with amazing strides, which includes Graduating High School and big plans for college. However, today he is having a new surgery on his airway because of Idiopathic subglottic stenosis. Which is simply the narrowing of the airway do to built-up scar tissue from repeated intubations! He says, "I just wanna breathe easy" so that is the plan! The doctor will use a CO2 laser and a balloon dilator inorder to open his airway. The scar tissue grew back and the area is about 1mm in diameter, for the airway that hindereds him from taking in 100% of the oxygen he needs. Especially considering his conditions within the brain! He is currently in surgery which is just underway. The procedure will last about an hour, with a two hour interval for recovery time. Hopefully this is the last surgery Nick will have to endure. As always, keep Nick in your thoughts and prayers, you are all amazing supports.  I'll keep everyone updated as the day continues!!

Read the latest Journal Entry

1 Comment

SVG_Icons_Back_To_Top
Top