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May 19-25

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Nayeli has been doing so well with her own breathing since being off the ventilator 24/7 as of April 11th. Yesterday we went in for a bronchoscopy to have her airways checked out to see if she could finally be done with the trach tube. We didn't want to post anything yet since it was still tentative but everything looked stable and she was decannulated (removal of the trach tube) yesterday morning. 

We stayed with her overnight in the hospital as they observed her to make sure she didn't have any airway collapse and that she learned how to cough out secretions through her mouth without needing any interventions. Besides being cranky that she had to skip a few meals and having a sore throat, she did amazingly well! So well, in fact, that we didn't have to stay the original planned 2 days of observation in the hospital. We got to come home today! 

With the exception of her feeding tube and her shunt(which has shown no issues) we are all done with the extra medical attention she needed throughout her day, no more cords/sensors, no more nursing! We've been waiting for this day for a long time and are happy to see her get closer and closer to a "normal" life. 

 

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A Nayeli le ha ido muy bien con su propia respiración desde que estuvo sin ventilador las 24 horas del día, los 7 días de la semana, a partir del 11 de abril. Ayer fuimos a una broncoscopia para revisar sus vías respiratorias y ver si finalmente podía terminar con el tubo traqueal. No queríamos publicar nada todavía, ya que aún era tentativo, pero todo parecía estable y fue decanulada (retirada del tubo traqueal) ayer por la mañana.

Pasamos la noche con ella en el hospital mientras la observaban para asegurarse de que no tuviera ningún colapso de las vías respiratorias y que aprendiera a toser las secreciones por la boca sin necesidad de intervenciones. Además de estar de mal humor porque tuvo que perserse algunas comidas y un dolor de garganta, ¡lo hizo increíblemente bien! Tan bien, de hecho, que no tuvimos que quedarnos los 2 días de observación planeados originalmente en el hospital. ¡Podimos volver a casa hoy!

Con la excepción de su sonda de alimentación y su derivación (que no ha mostrado problemas), hemos terminado con la atención médica adicional que necesitaba a lo largo del día, ¡no más cables/sensores, no más enfermeras! Hemos estado esperando este día durante mucho tiempo y estamos felices de verla acercarse cada vez más a una vida "normal".

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