Nayeli’s Story

Site created on December 13, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place and plan on uploading pictures, medical updates and her milestones as she continues to grow. We appreciate your support and words of hope, love and encouragement. Thank you for visiting.

Nayeli Mae Cabrera let us know it was her time to be born by waking Brie up at 4AM in the morning with sharp pains in her abdomen. We rushed to the hospital as we knew this wasn't normal and there we were informed that Brie was experiencing symptoms of preeclampsia. They let us know that they had to take action fast as Brie and Nayeli could be at risk of not surviving the pregnancy if we waited any longer. The doctors and surgeons quickly prepped and before we knew it Brie and I heard a small cry at 11:45AM Thursday, December 10th. Nayeli had arrived to this world weighing in at 1lb 3oz -- 15 weeks earlier than expected. 

The amazing nurses in the NICU quickly carried her away to an incubator so that she had her necessary oxygen, nutrients, and warmth that she had just left behind. I was able to be with the nurses as they put Nayeli into her incubator and before they whisked her off to the NICU, they stopped by to let Brie take a peek. She was able to put a hand into the incubator. Nayeli was oh so tiny, but she grabbed Brie's finger and held tight.

...and so we began this difficult journey as parents of a 25-week old. 

-Brie & Estuardo Cabrera

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Bienvenido a nuestra pagina en Caring Bridge. Lo estamos usando para mantener a familiares y amigos actualizados en un solo lugar y planeamos subir fotos, status médicas y sus hitos a medida que continúa creciendo. Agradecemos su apoyo y palabras de esperanza, amor y animo. Gracias por su visita.


Nayeli Mae Cabrera nos hizo saber que era su hora de nacer al despertar a Brie a las 4 de la mañana con dolores agudos en el abdomen. Corrimos al hospital porque sabíamos que esto no era normal y allí nos informaron que Brie estaba sintiendo síntomas de preeclampsia. Nos hicieron saber que tenían que actuar rápido ya que Brie y Nayeli podrían correr el riesgo de no sobrevivir al embarazo si esperábamos más. Los médicos y cirujanos se prepararon rápidamente y antes de que nos diéramos cuenta, Brie y yo escuchamos un pequeño grito a las 11:45 a.m. del jueves 10 de diciembre. Nayeli había llegado a este mundo con un peso de 1 libra 3 oz, 15 semanas antes de lo esperado.


Las enfermeras increíbles de la NICU la llevaron rápidamente a una incubadora para que tuviera el oxígeno, nutrientes y el calor necesarios que acababa de dejar atrás. Pude estar con las enfermeras mientras metían a Nayeli en su incubadora y antes de que la llevaran a la NICU, se detuvieron para que Brie echara un vistazo. Pudo meter una mano en la incubadora. Nayeli era tan pequeña, pero agarró el dedo de Brie y lo apretó con fuerza.


... y así comenzamos este viaje difícil como padres de una niña de 25 semanas.

Newest Update

Trach Graduation Day!

Journal entry by Estuardo & Brie Cabrera —

Nayeli has been doing so well with her own breathing since being off the ventilator 24/7 as of April 11th. Yesterday we went in for a bronchoscopy to have her airways checked out to see if she could finally be done with the trach tube. We didn't want to post anything yet since it was still tentative but everything looked stable and she was decannulated (removal of the trach tube) yesterday morning. 

We stayed with her overnight in the hospital as they observed her to make sure she didn't have any airway collapse and that she learned how to cough out secretions through her mouth without needing any interventions. Besides being cranky that she had to skip a few meals and having a sore throat, she did amazingly well! So well, in fact, that we didn't have to stay the original planned 2 days of observation in the hospital. We got to come home today! 

With the exception of her feeding tube and her shunt(which has shown no issues) we are all done with the extra medical attention she needed throughout her day, no more cords/sensors, no more nursing! We've been waiting for this day for a long time and are happy to see her get closer and closer to a "normal" life. 

 

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A Nayeli le ha ido muy bien con su propia respiración desde que estuvo sin ventilador las 24 horas del día, los 7 días de la semana, a partir del 11 de abril. Ayer fuimos a una broncoscopia para revisar sus vías respiratorias y ver si finalmente podía terminar con el tubo traqueal. No queríamos publicar nada todavía, ya que aún era tentativo, pero todo parecía estable y fue decanulada (retirada del tubo traqueal) ayer por la mañana.

Pasamos la noche con ella en el hospital mientras la observaban para asegurarse de que no tuviera ningún colapso de las vías respiratorias y que aprendiera a toser las secreciones por la boca sin necesidad de intervenciones. Además de estar de mal humor porque tuvo que perserse algunas comidas y un dolor de garganta, ¡lo hizo increíblemente bien! Tan bien, de hecho, que no tuvimos que quedarnos los 2 días de observación planeados originalmente en el hospital. ¡Podimos volver a casa hoy!

Con la excepción de su sonda de alimentación y su derivación (que no ha mostrado problemas), hemos terminado con la atención médica adicional que necesitaba a lo largo del día, ¡no más cables/sensores, no más enfermeras! Hemos estado esperando este día durante mucho tiempo y estamos felices de verla acercarse cada vez más a una vida "normal".

Read More of the journal titled "Trach Graduation Day!"
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