Michael’s Story

Site created on August 22, 2020

When he was born, Michael inherited a rare genetic disorder called Kartagener Syndrome, or primary ciliary dyskinesia (PCD) with situs inversus totalis. This means that his major organs (heart, lungs, liver, spleen, etc.) are on the opposite sides of his body. Having PCD also means that Michael is prone to frequent respiratory infections, chronic pneumonia, and other complications. There's no cure for PCD. Michael and his doctor agree that his lungs have progressed to the point of requiring a transplant. A transplant is also not a cure. The goals of the transplant are for Michael to live better, and live longer. 

This is Michael's CaringBridge website. We're using it to keep family and friends like you updated on his progress as he undergoes and recovers from this major surgery. We appreciate any support you can provide, and we're grateful for your words of hope and encouragement.

Newest Update

Pinwheel Planting Ceremony

Journal entry by Matthew Dyer —

Yesterday Michael and I went to a pinwheel planting ceremony at OSU Hospital to honor transplant patients. Over 11,500 pinwheels were planted, each signifying a successful transplant surgery at OSU. The pinwheels were also symbolic. Each pinwheel had one stem and eight spokes. The stem represents the hero donor, and the spokes represent each of the eight major organs a donor may give and thus the potential number of lives one donor can save. 


Michael is doing well. He had a short spell of rejection (Level 2) but was treated for it and no longer has any signs or symptoms of it. He’s busy living his best life, including preparing to open a booth in an antique mall here in town. You should see all the antique treasures he’s been squirreling away. I’m sure he’ll let people know where to find it on Facebook or Instagram or something. Hopefully I haven’t let the cat out of the bag on that one! 🐱 

Oh, and some big news: he’s allowed to have houseplants again as long as he “won’t go too crazy.” If you know Michael, you know that’s going to be a challenge for him 🪴🪴🪴🪴🪴

Some pictures from yesterday’s ceremony are attached. It was the first large event we’ve attended since the pandemic began. Thankfully almost everyone there was properly wearing a mask. 😷

♥️♥️♥️
Read More of the journal titled "Pinwheel Planting Ceremony "
Patients and caregivers love hearing from you; add a comment to show your support.
Help Michael Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Michael's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Leave a comment of support for Michael

Did you know? A quick comment, no matter the situation (positive or negative), can boost morale by 28.2%.

Comments Hide comments

Load more comments
Read More Journal Entries

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Requests
Go to Ways to Help
SVG_Icons_Back_To_Top
Top