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May 19-25

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Sadness - a deep profound sense of grief.  This is how I feel.  Finally got a call from the research clinic in West Virginia regarding research they are doing.  Program was on 60 Minutes and I immediately called to see if they would consider Mike.  Well at 2:20 today they called and after a brief discussion I was informed he would not be considered for their research program.  They are looking primarily for individuals with Alzheimer’s.  No Lewy Body and no FTD.  Sadness - a deep profound sense of grief. What do I say to him when he tells me he can’t live like this anymore.  So tomorrow I will attempt to get his local physician to order a new skin biopsy test - Syn-One Test to see if we can get a more definitive diagnosis.  Sadness 😞😞😞

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