Journal entry by Karen Leeb —
Sadness - a deep profound sense of grief. This is how I feel. Finally got a call from the research clinic in West Virginia regarding research they are doing. Program was on 60 Minutes and I immediately called to see if they would consider Mike. Well at 2:20 today they called and after a brief discussion I was informed he would not be considered for their research program. They are looking primarily for individuals with Alzheimer’s. No Lewy Body and no FTD. Sadness - a deep profound sense of grief. What do I say to him when he tells me he can’t live like this anymore. So tomorrow I will attempt to get his local physician to order a new skin biopsy test - Syn-One Test to see if we can get a more definitive diagnosis. Sadness 😞😞😞
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