Michael’s Story

Site created on November 16, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Karen Leeb

Sadness - a deep profound sense of grief.  This is how I feel.  Finally got a call from the research clinic in West Virginia regarding research they are doing.  Program was on 60 Minutes and I immediately called to see if they would consider Mike.  Well at 2:20 today they called and after a brief discussion I was informed he would not be considered for their research program.  They are looking primarily for individuals with Alzheimer’s.  No Lewy Body and no FTD.  Sadness - a deep profound sense of grief. What do I say to him when he tells me he can’t live like this anymore.  So tomorrow I will attempt to get his local physician to order a new skin biopsy test - Syn-One Test to see if we can get a more definitive diagnosis.  Sadness 😞😞😞
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