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May 05-11

This Week

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Earlier this week I was accepted into a phase 0 clinical trial at Ivy Barrow Neurological Institute in Phoenix AZ. After a month of uncertainty (getting kicked off the the the trial in Houston for Progression, emergency radiation for tumors at my brain stem, speculation that I was misdiagnosed, speculation that I also have leptomeningeal disease...) I am elated to now have a plan of attack. Without my husband and his parents I would not have this opportunity I am so grateful to have such a wonderful family and support system.

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