This is 18 months! It's crazy that Maeve is a year and a half old. 💕

Maeve got to trial off her dialysis for 8 hours on Friday and was given permission to go to the garden. So of course we loaded her up in our wagon (Thank you, Ms. Jane!) And off we went with oxygen tank and monitors in tow. She loved every minute and even got a bubble wand which she is still signing "more" to have even inside. She was easily fatigued, but it was so nice to see her be so content. We are definitely getting more smiles as well as toddler attitude from her as we continue to heal!

Prayers: That wisdom will be given to the doctors on how to best help Maeve's stomach. She has begun throwing up as well and that is so hard to watch when we don't really know why. She is not getting worse, but we are also struggling to make progress on decreasing her distention. Also for healing of her new lines. She is not clotting and healing the way we would hope. Though this no longer comes as a surprise, it is still hard to see her skin bleed and ooze and not heal quickly even with her platelet and blood transfusions. We are praying that this will be the last line replacement she will need and that her body can truly begin to heal from all of her procedures.

Praises: She has had 3 therapy sessions where she has practiced standing up and though she's not really happy about it, she's making great progress. She is now sitting unassisted for 45min before she gets tired and is loving her play time.