Lydia’s Story

Site created on April 8, 2019

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Lydia was diagnosed with PAPVR when she was just 18 months old. She sees a cardiologist every year and this year they told us it was time to fix her heart.


Here is a breif explanation of her condition in Lydia's words: 
My heart is getting big because the red stuff is going to the right side. So when I go to my surgery they are going to put me to sleep so they can cut me open and fix everything. 


Here is a more textbook definition:

(PAPVR), when one or two of the pulmonary veins returns blood to the right atrium instead of the left atrium. From there, blood flows through the left ventricle to the aorta, where it is pumped to the rest of the body.
 
In partial anomalous pulmonary venous return (PAPVR), one or two of the pulmonary veins returns blood to the right atrium instead of the left atrium. This causes oxygen-rich blood to flow back to the lungs instead of on to the rest of the body.

Newest Update

Surprising Update

Journal entry by Rachel Myers —

We couldn't be more surprised or more thankful than when we received a phone call early this morning from the head of cardiac surgery, Dr. Jaggers. After reviewing the pre-op tests from yesterday, he has determined her current heart health does not meet the requirements to warrant open heart surgery, for now.

As Lydia said when we told her, "Wow! That's good. We should tell everyone thank you for praying." 

That is exactly what we want to say! Thank you to everyone for your outpouring of prayers and support. We are surprised and yet relieved.
Read More of the journal titled "Surprising Update"
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