Journal entry by Chloe Bubert —
CHEMOTHERAPY UPDATE!!
Lonny is in the process of wrapping up his FIRST chemo treatment. He is doing SO well and in high spirits.
Some highlights:
- Lonny will have chemo every three weeks until August/September
- The rest of his treatments will be in outpatient
- So far side effects have been manageable and they expect they will continue to be
- He will be leaving the hospital tonight!
The rest of this update will include all information necessary for anyone caring for him over the next few weeks:
- Medications/Monitoring:
- Morning:
- Omeprazole (first thing upon waking, take indefinitely)
- Prednisone (with food through Tuesday)
- Evening:
- Shot
- Start Saturday night at 9pm
- Continue nightly for full 5 night supply
- KEEP IT IN THE FRIDGE
- Leave it out 30 minutes before you take the shot so it isn't so cold
- Claritin for bone pain (but he can take this anytime during the day, this is just a possibility)
- Shot
- Throughout the day
- Salt/baking soda mouth wash (4-5x EACH day)
- If sores show up, contact doctor for prescription
- Zafron at the FIRST sign of nausea - do NOT wait on this!
- Miralax for any constipation
- Monitor temperature
- Contact a doctor for ANYTHING above 100.4
- Monitor numbness in fingers and toes
- Contact a doctor with any issues
- Salt/baking soda mouth wash (4-5x EACH day)
- Morning:
- Precautions:
- Safety:
- EVERYONE needs to wear an N-95 mask around Lonny unless he is in his room alone
- ANYONE entering his room MUST wear a mask
- AVOID children
- AVOID sunlight (he must cover himself fully when outside)
- AVOID knives, razors, anything sharp
- He needs to stay active, but he shouldn't push himself too hard
- Diet:
- AVOID raw foods, leftovers, ANYTHING left out of the fridge, anything uncooked
- AVOID ALL supplements, natural herbs, including vitamin C
- LOTS OF WATER!!!
- Safety:
- Daily Essentials for ENTIRE chemo treatment:
- Mouth rinse (4-5 times daily)
- Monitor temperaure
- Monitor nausea and take medication at first sign of any nausea
- STAY HYDRATED
- STAY ACTIVE
- Wear a mask around ANYONE
- Stay away from kids and ANYONE who is frequently seeing people
- When in doubt, REACH OUT
Patients and caregivers love hearing from you; add a comment to show your support.
Help Lonny Stay Connected to Family and Friends
A $25 donation to CaringBridge powers a site like Lonny's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?