Lisa’s Story

Site created on April 3, 2020

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In the last week of February, I noticed a bump on the left side of my neck. It felt like a little egg, about 3cm long. I saw my family doc, and we did blood work and scheduled an ultrasound of my neck. Once the ultrasound report came back with some pretty scary words on it, things began to move very quickly. I had a telehealth conversation with my family doctor Monday. (Via video conference because between me finding it and the ultrasound happening, the novel corona virus had changed all our lives) He had already made contact with an oncologist at the Goshen Center for Cancer Care.

I was there the next morning, and before the weekend, had had a biopsy of lymph nodes on my neck and CT scans of, well, just about everywhere.

There are some phone calls you never want to get. These scenarios usually are imagined at 3:30 am or some other middle of the night time. (Though, for me, a 3:30 am call usually means I get to sleep a little longer and don’t have to go to work so early. It’s good news.) I would argue though, the scariest calls can come at the most mundane times of day. When your surgeon calls while you’re still groggy from the anesthesia, when your lunch date is interrupted by the specialist calling to say, “I have time to see you NOW”, and when, after a nearly sleepless night, you wake to your phone ringing at 9:00 on a Saturday morning, recognize the hospital prefix, and answer to hear your oncologist’s (since when do I have an oncologist?!?!?) voice. Your swallow hard, take a deep breath, grab the pencil (that thank heavens is beside the bed) and turn your tissue box on its side to take notes, already knowing the gist of what you’re about to hear.

Hodgkin’s Lymphoma. And it’s not just the lymph nodes on my neck. Though, due to the size of that bump, that fact doesn’t really change the treatment plan. The other things I remember him saying are “this is HIGHLY curable” and “we WILL cure this”. I hung up the phone feeling hopeful.

He called back Sunday, after our church had finished its Zoom meeting service in which I shared this new part of our lives with the congregation; who reached out their hands toward their video cameras, trying to reach across technology and actually hold me, blessing me and blessing our family. I was able to share with them the hope our Dr had given us, and when he called to check on me after the bombshell of the day before, I could honestly say we were ok.

So, then Monday came and the week became a week of telling people, figuring out work, having pre-chemo testing done and living in quarantine, entertaining and feeding children (actually, we’re so very lucky there) and all always being home together. Also, I realized, at the hospital for my screenings, that I’m on the other side of some line now. Very appropriate and matter of the fact questions from the hospital colleagues regarding pre-chemo screening and what type of cancer I have made me catch my breath.

Thursday, April 2, I met with the Dr and we formed a plan. And, that’s where we are moving forward from now. Moving forward in hope with so many people at our sides.

Newest Update

Journal entry by Lisa Miller

Pink Martini performed at the Goshen College Music Center tonight. I was happy they played one of my favorites, “Hang on Little Tomato”. I love the simple, beautiful melody; it makes me smile and dance a bit whenever I hear it. Part of the lyrics sound a little bit like our last year and a half:
Just hang on, hang on to the vine
Stay on, soon you'll be divine
If you start to cry, look up to the sky
Something's coming up ahead
To turn your tears to dew instead."

And so I hold on to this advice
When change is hard and not so nice
If you listen to your heart the whole night through
Your sunny someday will come one day soon to you

It’s not true that going through a hard thing always leads to something easier or better. But often we have to hang on and wait, sometimes doing the hard work of life, to get to the next, hopefully better, bit of time.

Great news and significant milestones in the last couple of weeks. Last week I had scans and a follow up appointment with my oncologist. Things are looking good at one year after chemo and we can space out follow ups a bit more. And, I was happy to have my port taken out this week! It feels good to have that amazing piece of hardware out because it’s not needed.

One year ago I was just starting to heal from the hard, hard work of chemo. My head was bald, my energy was gone, my hands and feet were numb, tingly and weak. Now I’m working my regular schedule, puttering outside, creating and planning projects and travel, and cooking with appetite. I am beyond grateful to the healthcare people and science that gave me the treatments my body needed. And, also to the caregivers, friends and family that gave me the care and support I needed to survive the treatments. That care continued over the past year to help me get back to be more like me, and to remind me to be patient.

China Forbes, lead singer of Pink Martini, sang a song she recently released, “Full Circle”. The lyrics say, in part:

And life will sweep you off your feet
Knock you off and drag you down
Someday you'll find yourself back here again
And you won't believe how far you've come
And you won't believe how much you've done
And you won't believe
That you keep coming round
Keep coming round

There are circles and cycles in life, and we often mark them as anniversaries, birthdays, or seasons. So, at this one year mark, even though every scan brings the fear and anxiety, I will marvel at the change and the healing. And I will sit in the golden sunshine of fall, with gratitude.
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