Hi everyone! Thank you so much for all the support and prayers since returning home! It makes us emotional to see the ways that people have cared from us from afar and now the ways we are still being cared for locally. We are beyond thankful!
Our return home has been challenging to say the least. We have definitely had to figure out new rhythms and routines as a family of four. We are finally getting into a groove but would appreciate prayer as we navigate being home and Lily’s health needs.
Lily came home on oxygen but we have been able to wean her down to only needing it at night. We have also weaned some meds. It’s exciting to continue making progress at home!
Our biggest prayer request is that Lily is able to get better at taking bottles and tolerating her tube feeds. Her doctors have thrown around the idea of putting in a G-tube if she doesn’t start taking larger volumes from her bottles. We obviously will do whatever is best for Lily, but would love to be able to solely use bottles.
Thankful for you all and we are so excited to be home!🤍
