This morning around 2am they turned off her morphine drip and everything went downhill from there. Starting at 4am, any time Lily was awake she was crying out in pain. They tried so many things and grew concerned that it might be another issue with her heart. Each time she cried her stats would majorly dip. We were on edge, afraid that we would fall into the same pattern as her first surgery.

They got an echo and praise God it looked good! So that began the journey of trying to get Lily comfortable today.

They decided the problem was a three headed monster. Severe headaches, constipation, and withdrawal symptoms.

Finally at 6:00pm, they got her pain managed and her withdrawal symptoms under control. We even got some smiles.

We are praying so hard that progress can continue to be made and Lily will remain comfortable moving forward. We are also praying that we can start making progress with feeds, weans of oxygen and meds, and getting her chest tubes out so we can head out of the ICU.

Thankful for you all and still praising the Lord for his loving hand on Lily’s life.