Leo’s Story

Site created on February 7, 2024

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Kristie Kremer

Leo got discharged this AM and we are officially back home! Today is Thomas and I’s 11 year anniversary and I am happy to be home with him!

Leo progressed well with his feeds yesterday and is doing a great job taking his bottle. Yesterday was spent learning all the things I needed to know about gtube feeds and cares! We continue to give Leo Tylenol for pain.  Some of our favorite nurses were working this week :)! 

The biggest news is a Glenn surgery date was scheduled for June 3rd! This is of course if Leo can maintain his O2 saturations and his heart function remains stable otherwise it may be earlier. 

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