Journal entry by Kristie Kremer —
Leo got discharged this AM and we are officially back home! Today is Thomas and I’s 11 year anniversary and I am happy to be home with him!
Leo progressed well with his feeds yesterday and is doing a great job taking his bottle. Yesterday was spent learning all the things I needed to know about gtube feeds and cares! We continue to give Leo Tylenol for pain. Some of our favorite nurses were working this week :)!
The biggest news is a Glenn surgery date was scheduled for June 3rd! This is of course if Leo can maintain his O2 saturations and his heart function remains stable otherwise it may be earlier.