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May 26-Jun 01

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It's funny how life can give you an unexpected slap in the face every once in a while. It happens to us all, the ups and downs are just a part of life. Well, this week we had an unexpected down. 

In December I had a PET scan and everything looked really good. Most of my tumors were inactive, just a couple in the peritoneum were still active and in my mind we would keep working to make them inactive as well. Since then we have had continued problems with my platelet count. When they were too low the doctor may put off chemo for the next week or decrease the amount of chemo I would get, which happened somewhat frequently. Through this we kept an eye on my tumor marker numbers, which were great last fall. Over the winter the numbers have risen, but not by a lot, so when I went in for my CT scan last Thursday I expected things not to be as good as in December, but not much change. Unfortunately there was change.

I saw my doctor on Monday pre-chemo to go over the results, and was very surprised to hear that those tumors in the peritoneum had grown to twice the size they had been in December. Dr. Singh and I talked, and the plan is to get a PET scan in early June to have a more detailed and second look.  That scan will help determine where we go from here, possibly an all new different chemo regimen, maybe a clinical trial.  I'm not sure if my current chemo has not been working well because my body has become resistant to it or if it's because I haven't been able to get the full amount on the every 2 week schedule, but 3 years and 3 months on the same chemo is pretty good. 

Am I worried? Yes, a little bit. The hard part is the unknown. What will the PET scan say? What kind of treatment will I go to, what side effects, how often would treatments be? Will it work? But now is the time to push the worry away, and live in the moment. There's nothing we can do right now, we just have to wait and see. While we wait I am going to do the things I want to do, get my plants planted, go have a good time with friends and family, all the normal things, because that's life and there's still a lot of hope with further treatment! 

Thanks to you all for your continued support, messages, and love!!! 

Kim



 

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