And just like that we are back to infusion day… the current plan is to go every 3 weeks and hope additional things will stop popping up so we can truly only go every three weeks. But after 13 months this has never been the case so one can dream…. Right???
Todays infusion came with a bit of anxiety as my last infusion drug (which I refer to as the death drug because it was truly awful) started to cause reactions on my second dose and I was so afraid of history repeating itself. I’m here to say a code gray was not accidentally called and I am not allergic to this current drug… phew 😅 it’s the small victories in this journey. This drug however has AWFUL premeds which do their job but one literally tastes like garbage and that’s not an exaggeration.
Today’s appointment was quick and easy in terms of appointments (9am - 12pm) and got to chat with my front desk besties and my growing network of nurse besties 💖. The staff at Fred Hutch truly are amazing and continue to be a bright spot in this horrible journey.
With the infusion done we now prep for the crash and wait for fix it Felix say “I can fix it!” Next week will be full of rest and catching up on my shows. My dr says walking is the best way to fight fatigue so will continue to push for at least a small walk each day!
Thank you to those who have sent me distractions and well wishes today and have volunteered to hang with Oreo next week… she has a lot of energy she needs to get out so any time with her is helpful… you can check the sign up link if you are able to help 💖
Here’s to better days and hoping the biggest side effect to the drugs continues to be fatigue
