Kevin’s Story

Site created on November 16, 2017

Like many who get a serious disease, I never thought it would happen to me. Most of you know that I have been living with Multiple Sclerosis for almost a decade now. Somehow I figured that this would suffice on the health challenges front. I've learned a lot from living with it and the limitations MS brings. 


But I certainly never expected to get cancer. In early October 2017, I started having problems with my abdomen. At first, it felt just like indigestion, but then my stomach started distending. I was gaining a pound/day despite having trouble eating. I never knew just how vain I was until this happened! 


After a whole bunch of tests and visits to various doctors, it turned out that I had a somewhat rare and aggressive form a cancer called Signet Cell Adenocarcinoma of unknown origin. This basically means that we don't know where the primary tumor is, but are only seeing evidence of a metastasis in my G-I tract.  Thus my doctors have diagnosed this as a stage four cancer that likely cannot be cured. As I am only 47-years-old, this news was really shocking when I received it. 

So presumably you're here because our paths have crossed at some point. Given the outpouring of support I've received from all corners, it's simply impossible for me to respond to everyone in a timely way, especially as I go through treatment. I thought perhaps this website would be a good way for me to give regular updates on what is happening. I'll do my best to keep it updated. 


But, in providing regular updates, I'd also like to explore something else with you -- what it means to die well from a Christian perspective, for this is what I'm really seeking to learn in this chapter of my life. A few generations ago, people gave serious thought to this topic - and there's a vast literature on the subject going back centuries. I recognize that we live in a culture that celebrates youth and would rather do almost anything than discuss death. To some, this topic may sound depressing.  Let me guarantee that it's not. 


As it turns out, the key to "the art of dying" (as those in the medieval period called it) is first learning how to live well. The pursuit of character is central to this, but learning to love well is everything. This art of dying is what I'd like to explore in the coming weeks, months (and God willing) years on this site. 


What I'm trying to avoid is the very real temptation to "medicalize" death. This means turning over the decisions to the experts (my doctors) and not taking responsibility for my life. The tragedy is that modern dying tends to cut us off from the love of our various communities and to move God out of the picture in favor of the very tangible help medical science can bring. 


Yet, in my case, the wonders of modern medicine might keep me alive a little longer, but it can't teach to me how to live well. This is up to me to pursue. Is it possible to find joy and contentment in the midst of very real suffering? I hope that it is. The poet TS Eliot put it well: 

Of belonging to another, or to others, or to God/
The only wisdom we can hope to acquire/
Is the wisdom of humility: humility is endless.


And this is where the joy comes from -- finally stripping down the pretense and the defensive shields and simply finding joy in the daily delights (and hurts) of living. By dying to ourselves my hope is that we might all learn how to live a little bit better.  I can't think of anything more important to learn.  I'd be honored if you'd join me on this journey as I try to learn the art of dying well. 


Newest Update

Journal entry by Lorelee Dodge

Kevin typically spent weekdays in our home on retreat: he structured his day praying, reading and writing.  He had reading goals, prayer goals, memorization goals, exercise goals and writing goals.  And he generally wanted the house quiet to foster his concentration. 

It wasn’t always total silence.  While Kevin was reading, on low volume he often played classical music, early Christian music (typical composers:  Giovanni Palestrina, Thomas Tallis, and William Byrd), or Gregorian chant. 

But when it came to praying, Kevin kept it silent.  And as for writing, silence helped him better hear his inner voice.

When Kevin was alive, I begrudged this silence in our home.  I was working at the office during the week and when I was finally home on the weekend with some time to myself, I wanted to catch up on programs I had missed:  Bloomberg News, 60 Minutes, National Public Radio, legal podcasts, Freakonomics (a podcast about behavioral economics), etc. 

We lived in a home with an open floor plan where sound carried from the first floor to the second floor and vice versa.  Playing anything on a speaker in the kitchen or living room, for instance, invariably carried to remote parts of the house.

We have all learned to accommodate other people, whether at home, work, church or other endeavor.  And one could listen to a program or music not through an entertainment system, but through earphones. 

However, it’s hard to practice yoga while wearing earphones.  And a program’s reception through earphones often faded out while I was in parts of the house where the wifi signal was weak.  Needless to say, I wasn’t happy with Kevin’s preference for quiet. 

Once Kevin was diagnosed with cancer, however, my perspective changed.  What changed was not my appreciation for silence, but my behavior.  No longer did Kevin have to tell me that he could hear me.  I kept the house quiet.  I wanted our home quiet for his peace. 

But I didn’t live in silence; I kept the noise going in my head.  What was different was that I became very careful to use earphones whenever I wanted to listen to music or a podcast. 

And since Kevin died, I’ve had the freedom to blare whatever I’ve wanted through the entertainment system.  Believe me, I’ve done some of that.  I’ve played James Brown, Creedence Clearwater Revival, Aretha Franklin, Billy Joel, Chanticleer, Alan Jackson, and Luciano Pavarotti (what can I say – I have diverse tastes). 

But I’ve listened to maybe a handful of podcasts since Kevin died.  I’m way behind on Bloomberg Law and 60 Minutes.  I just haven’t kept up. 

Instead, I’ve been living much more in silence.  Why?  Well, it’s in the silence that I can better hear my own mind, my conscience, and God’s leaning. 

One thing I’ve really needed during this new season without Kevin is a sense of direction.  And from where do I find direction?  I hope to find direction from God’s principles as outlined in the scriptures, as explained by people of faith, and as revealed in my spirit. 

But I can’t sense God’s leaning or nudges when I’m filling my mind merely with the latest economic or legal theories.  I’ve learned that I need quiet.  And when my home is silent, it’s amazing to me the depth of thought and feeling that arises.  It doesn’t always arise, but when it does, it’s a reward.

I can’t believe it took Kevin dying for me to appreciate the silence that Kevin wanted in our home.  Now I get it.  I only wish that I had gotten it while he was still breathing here on planet earth so that I could tell him I get it. 

Kevin tried to give me the gift of silence while he was alive.  I didn’t receive his gift; I put the gift on the shelf.  I unwrapped his gift after he died.

Patients and caregivers love hearing from you; add a comment to show your support.
Help Kevin Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Kevin's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top