Update on Kenz.. We had to be at Children's at 7:00am for scans. Around 8:30am the anesthesiologist felt it was unsafe to sedate her if needed. He heard wheezing when listening to her. We were going to try to do scans not sedated. But then the nurses heard coughing and said if she coughs one time while laying there it would mess the whole scan up and insurance would not pay for another one. After they spoke with Dr.Wadhwa he was okay with this being rescheduled. Since she had pneumonia on 10/6 they like to wait 4-6 weeks after to recover from that.(Would have been nice to know beforehand) She is now rescheduled for 11/21/23.We went to clinic to see Dr.Wadhwa and Dr.Broadnox and they would still like for her to start her new chemo pill tonight. We went over possible side effects and signed consents. Kenz also had her labs drawn and they were all good. :)
She got her LAST monthly pentam breathing treatment also and she was so excited to hear it was the last one. She hates that nasty tasting mess.
She has been having pretty bad neuropathy pain in her feet and tummy aches a lot. We have decided to go back to 3 times a day on gabapentin and he prescribed Bentyl to possibly help with the tummy aches and we will also continue the lactaid.
PTL we do not have to go back to the clinic until Nov 21st :) She does have other specialist appointments before then. But, we are excited her weekly trips to the clinic get to be monthly now unless something comes up.
Thank you all for the love and support and especially the prayers for our princess warrior.
#Kenzistrong💚
Prayer Request:
* Remission for life
* A miracle for our girl so she doesn't have to take a chemo pill forever.
* For no major side effects of the new medication
* Pain free from neuropathy and stomach aches
* No sickness
* For all the children fighting cancer
