Kate’s Story

Site created on October 2, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Charles Ellis

Short Friday Updates for a while.

Kate's in good spirits today, a good day so far. That's the way, good ones and bad ones. Not predictable.

Recent news: Her lung disease is stable, consistent with an April, 2019 catscan. That's very good news. The pulmonologist feels her recent increased shortness of breath comes from aspiration. So, off to the G.I. doc. The pleural effusion was apparently an artifact of the x-ray. Not evident on the catscan. Also, good news.

Her weight remains lower than we want. Her feeding tube site, which has been a problem, has begun to calm down. We're trying to get a denser liquid so she can get more calories with a shorter time period using the tube.

Sjogren's continues to impair her eating. It occasionally flares bringing nausea, fever, increased fatigue.

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