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May 19-25

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Nolan went home to God this morning at 9:45. The last few days, Nolan's health had been declining. His bilirubin level kept going up and was in the high 60s. His kidneys were showing that they were working extra hard to keep up and his chest x-ray showed that there was a lot of fluid around his lungs. He wasn't able to keep his oxygen saturations up and his heartrate was slowing down as well. He was being kept alive by the ventilator and medication.

This morning, Jacob and I got to hold our baby for the first time in a while and we told him repeatedly how much we love him and how proud we are of his fight. He fell asleep at 9:45, comfortably in our arms, unattached from the ventilator.

We are so incredibly proud of Nolan and all of the obstacles he overcame. He fought so incredibly hard and his too short life blessed many people. We would like to thank all of you for your continuous support, love and donations. We would also like to thank the many doctors and nurses we worked with at Children's as they made this journey a little easier to handle.

We will have a visitation for Nolan this Friday, October 18th from 5-8pm at Gearty-Delmore 39th Ave N and West Broadway, Robbinsdale, MN 55422. The funeral Mass will be held on Saturday, October 19th at 10am at Sacred Heart Catholic Church 4087 W Broadway Ave, Minneapolis, MN 55422. Internment at Gesthemane 8151 42nd Ave N, New Hope, MN 55427.

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