Jordan’s Story

Site created on July 24, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Melissa Roe

Day 102 post transplant!!

Jordan was seen today by Dr.DiPersio in St. Louis. Not all of the biopsy results from last week are in but the ones that are back are negative for Leukemia!!!!  More results should be back sometime later this week. We are very hopeful for continued great news!

We no longer have to remain in St. Louis!!!  He will see Dr. Browning in Evansville every other week and see Dr. DiPersio in St. Louis every other week. Once they have his Graft vs Host Disease (GVHD) under control he should only have to go to STL once a month.  We cannot wait to spread these visits out. 

Dr. DiPersio has a new GVHD drug that just was approved by the FDA last month that he wants Jordan to try. It has been successful treating GVHD in clinical trials. We have to wait until they can get our insurance to approve the new drug. Hopefully since it’s a new one they can convince insurance to approve. 

This journey began just shy of a year ago and it has been a very long and difficult year.  Jordan still has a lot of healing ahead of him but he’s heading in the right direction.  We couldn’t have gotten through this year without you all. We are humbled by the love, prayers and support. Thank you from the bottom of our hearts!!! Please continue to pray for a full recovery. 

Please support others who need help by continuing to spread the word on bone marrow donation and blood donation. These simple gifts of life can help so many.
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