Jordan | Journal | CaringBridge

Journal

Journal entry by Melissa Roe

I’m sorry that it has been awhile since I updated everyone. I’ve been waiting for more information to share. As of now the only donor we have “somewhat” ready is Jordan’s dad, Dan. Parents are always half matches for their children and Dan has successfully completed the first round of blood testing. On February 18 & 19 both Jordan and Dan will go through extensive testing at Siteman in preparation for Jordan’s transplant. As long as Dan is able to pass all his tests and physical,  the transplant process should begin the first week of March.  Jordan completed another round of chemo last week and is doing well. He’s been at work all this week.  If you’re looking for a new/used car give him a call!  Yes I am putting in a shameless plug for Dpat!!  Staying busy is what Jordan enjoys. 😀

I’m doing okay as most of you may have heard that I had emergency back surgery last week.  Never a dull moment surrounds the Roe Family these days. 

Please continue to keep Jordan and our family  in your prayers.  

Thank you for all the calls and texts checking on us. We appreciate it very much.  Please continue to share the importance of bone marrow donation. Register at bethematch.org. 
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.
Show your love and support for Jordan.
Make a donation to CaringBridge to keep Jordan’s site up and running.

Journal entry by Melissa Roe

We just received word that Jordan’s cousin Clayton is not a match. Yesterday Dan and I were at Siteman Cancer Center and he gave blood in the hopes that he might match and be healthy enough. We still don’t have that information yet.

We would like to thank everyone for the positive vibes and prayers. Keep praying and keep spreading the word on bone marrow donation. It is a matter of life and death for so many. 

Bethematch.org
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

We have been in a holding pattern for the last several weeks.  Today we received some bad news.  The backup donor for Jordan did not show up for his physical and additional testing.  His transplant is off again while additional donors are being sought.   I was told that our insurance only approved 2 potential donor testing at the cost of $10,000 each.  We have reached that point.  Fortunately, Siteman Cancer Center/Barnes Jewish Hospital in St. Louis was able to secure a grant to test 3 additional potential donors.  As a last resort, Siteman has requested to test Dan as a potential donor.  This is not ideal because of Dan's age, but on Monday, January 7, Dan and I will be going to Siteman for blood testing on Dan.  Insurance would not test cousins because of costs, so we have ordered a private test lab  to test my nephew, Clayton.  The test kit should be here today and we should know by mid week if by some miracle Clayton would be a potential match.

Jordan will need to start another round of chemo here in Evansville on January 14 since the transplant is a no go at this time.

I just don't understand why people sign up to help and then don't show up.  Please, Please continue to pray for Jordan and spread the word on how important bone marrow donation is.  This is a matter of life and death for so many and there is zero reason anyone should die waiting! Please pray for a fast resolution to his transplant.  Jordan will be turning 26 in September and will be off my insurance.  We must get this done soon!!!!!  Tell everyone under the age of 45 to go to BeTheMatch.com

Melissa
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

Around noon today we received some bad news.  Jordan’s donor did not pass the physical and will be removed from the registry. Needless to say we are so disappointed. We were so ready to put all this behind us. The backup donor has agreed to a donation date in January but his physical is not until the first week of January. We are still hopeful and optimistic that the backup donor passes his physical and we can proceed. New admit date will be January 14, 2019 with transplant on January 22. Please continue praying for us and the donor. Jordan will start chemotherapy in Evansville tomorrow for the next five days to keep the leukemia at bay while we wait. 

The good news is that we met the kindest couple today in St. Louis, Hal and Susan Miller. They are friends of my sister and they are snowbirds during the winter. They have so generously offered their home to Jordan and I to stay while they are out of town.  We will have a month or so to figure out at the end of our stay since things have gotten pushed back but we are very lucky to have Hal and Susan in our extended family. 

Please keep praying and please keep spreading the word about bone marrow donation. 3000 people die waiting for their match and as we learned today a match can change in a heartbeat. 
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

As surreal as it seems, we have gotten the last few dates locked down to begin the bone marrow transplant.  Jordan will be getting a central line placed on Friday, December 21. Then he will be admitted on Christmas Day to Barnes Jewish Hospital and chemo therapy in preparation for the transplant will begin at 4 am on December 26. Transplant day will be January 2, 2019.   The gift of life is the best gift ever!!!  Please remember to spread the word about being a donor. Bethematch.org. 

 

Please continue to keep Jordan and our family in your thoughts and prayers.   I will continue to update everyone with Facebook and Caring Bridge.  We will be home in the Spring and look forward to a happy and most importantly a HEALTHY New Year.   Thank you to all known and unknown who have supported and prayed for us all. I wish everyone a Merry Christmas and Happy New Year!!  Bring on 2019🎉!!
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

At 4:55 today I got a call from the nurse who’s coordinating Jordan’s transplant. At 4:30 this afternoon they got a call  from the perfect match that had been silent. He has AGREED to donate on January 2!!!  Jordan will be admitted on December 26th to start chemo in preparation for the transplant.   If he had waited until Monday to call, it would have had to be put off because Jordan would have already started a high dose chemotherapy here. God does answer prayers!!!  Thank you to all the people out there who have prayed for us. Keep praying that others who are waiting get their donor. Also one of Jordan’s prayer warriors asked us to include a 22 month old baby girl named Eleanor in our prayers. She too has cancer and needs prayers.   ❤️❤️❤️❤️
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

Today we learned that Jordans perfect match has not responded to his need for a donation. The transplant team is working on another lead. Because of this delay, Jordan will be undergoing another round of chemo next week.  The new dates for transplant that have been requested are at the end of January. Please continue to pray for a willing match and pray for Jordan as he heads into his 4th round of chemo.   Thank you all and please continue to pray for ALL who are waiting. 
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

Today Jordan was seen by his oncologist in St. Louis. We were hoping for a firm date for his transplant. We have been waiting for his perfect match to agree to the dates that the transplant team has requested. At this time the donor has not responded. We are in a holding pattern.  They have another match on the registry and they will be reaching out to them as well.  Please pray that our donor agrees to a date soon.  He had a lot of tests today that are needed before the transplant can progress. It was a long and exhausting day but we are still hopeful that we will move forward soon. 
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Comments Hide comments

Journal entry by Melissa Roe

I apologize that I haven’t posted lately. Things had been pretty easy after the last round of chemo...until this week. Jordan has had dental pain and it was determined today that he needs a root canal due to an infection. Unfortunately he has to wait until his blood counts improve. He has been to the infusion center twice this week for blood and platelets and was scheduled for another tomorrow.   He’s in a lot of pain and now running a fever over 101. We are currently in the ER waiting to be seen and then admitted. Tentatively oral surgery is scheduled for next Wednesday.  

The bone marrow transplant team has requested the donor be available the first week of December but as of today no formal date has been set. If the donor is available at that time Jordan will be admitted to Barnes Hospital in St. Louis the last week of November.  He will be in the hospital for 4 to 6 weeks and then remain in the area for a minimum of 100 days. I will keep everyone posted.  His next appointment at Siteman Cancer Center is November 19. 

I want to thank everyone who came out to Texas Roadhouse for his giveback day. You raised $1010!!!  

Chick-Fil-A at Crosspointe in Evansville is hosting a give back on Tuesday, November 20 from 4 to 8. I’ve attached the flyer. Please consider dining there or grabbing take out. You must show the flyer for Jordan to get the credit.

We appreciate all the support!!  We couldn’t get through this without all the love, prayers and good vibes.  Pray that this fever breaks and the dental pain eases soon. 
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Journal entry by Melissa Roe

Jordan completed his third round of chemo and was released from the hospital. He feels run down but otherwise he’s doing great. As his blood counts drop we need to keep watch for fever and protect him from germs. We are so hopeful he’ll get to stay home for a while. 

We have more news on the transplant.  Siteman Cancer Center has submitted the donors information to our insurance for final approval!!!  The only information we have is that the donor is a 26 year old male from the United States.   Once insurance says we are good to go they will make travel arrangements with the donor. If it works for the donor the transplant will happen around the first week of December.  Hopefully the donor is ready to go because we are beyond ready. Jordan just wants to get this chapter behind him and start healing and looking forward to a future without leukemia.

Thank you all for the prayers!  It is working!!!  We are so blessed to have found a donor who is considered a “perfect” match so quickly.  I’ve mentioned it before but 3000 people die every year waiting for their match!!!  Please encourage everyone you know between the ages of 18 and 45 to register at BeTheMatch.org. 

If if you are local and hungry tomorrow, please support Jordan by dining at Texas Roadhouse in Evansville. They are giving him 10% of sales that present the flyer I’ve attached. You can also just show the picture too. I am going to try to be there for part of the day as long as he’s well enough to be alone. I hope to see you there. 

Thank You All!!!
Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.

Comments Hide comments

Journal entry by Nila Paradowski

Jordan's new home away from home for the next 20 or so days is room 6401 at St. Vincent's Hospital (formerly named St. Mary's Hospital). Jordan isn't happy about being in what he considers "a hospital prison" but his doc suggested that he make his room his own and friends have already delivered a larger TV. Nothing was mentioned about repainting or installing new blinds but last night his mom, Melissa, did get his room re-cleaned and a more comfortable bed brought in. The room cleaning and new bed were the result of an episode she embarrassingly described as "going postal." This is stressful for everyone—especially Jordan and his immediately family.  

The first round of chemo is over. It zapped Jordan's energy but didn't make him too nauseous. His gums have been very sore which is caused by the leukemia and not dental issues as we originally thought. His gums don't hurt as much so his meal choices are starting to expand a bit beyond hospital Jell-O and Lib's vanilla malts. 

Jordan can't afford to catch a bug or be exposed to any germs.  He CAN have visitors but they will need to suit up which means a mask and gown.  Flowers, fresh fruits and vegetables are also not allowed in his room. 

Jordan's hematologist/oncologist is Dr. Browning—the same doc who has treated other family members and friends. Dr. Browning has consulted colleagues at IU to be sure every possible step is being followed and all protocols are being done to help Jordan win his battle with acute myeloid leukemia (AML). It is too soon to know if Jordan will need more aggressive care at another medical center—MD Anderson, Barnes, etc.—if that is necessary, Dr. Browning will guide us. 
Jordan is receiving round the clock monitoring and he is in excellent hands. A second bone marrow test is scheduled for next Wednesday, August 1. There is a 50/50 chance that a bone marrow transplant will be needed and the most likely match will be his brother Jacob. If that doesn't pan out, the doc will go to the "bank." There is more chemo ahead. 

This is tough for everyone but we have faith that all will eventually be well. 

The family is grateful to all the friends, neighbors and family who have offered help, said prayers, sent cards of encouragement and brought meals. And, if you're part of the Roe river family, please don’t hesitate to stop by if you see Melissa and Dan on their front porch. 

We'll keep you posted. 
Cathy (Nila) Paradowski, Jordan’s Aunt, Melissa's Sister  



 

 

Did you know?  A quick comment, no matter the situation (positive or negative), shows your support.
Jordan’s Story
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

SVG_Icons_Back_To_Top
Top