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He actually was able to go back to work today!!! Anyone who knows Jordan knows what an exciting accomplishment this is to him. He absolutely hated not working. The big news is he has accepted a position as a Sales Manager at Magna Motors in Evansville. They sell Mazda and Volvo brands as well as used cars. Please keep Jordan in mind and send customers his way.
Finally, Jordan’s 26th Birthday is Monday, September 2nd. For his birthday he is asking for donations to be made to Chemo Buddies. He’s hoping to raise $1000 for this amazing group of volunteers that make sure that no one goes through chemo alone. They provide support in a lot of ways from simple companionship to food, beverages, blankets and more. If you can’t make a donation please continue to share information for bethematch.org or donate blood at the American Red Cross.
This past 13 months has truly been the hardest time in our lives but we have been so blessed along this journey with miracles, friends and family. Thank you all from the bottom of our hearts.
Jordan was seen today by Dr.DiPersio in St. Louis. Not all of the biopsy results from last week are in but the ones that are back are negative for Leukemia!!!! More results should be back sometime later this week. We are very hopeful for continued great news!
We no longer have to remain in St. Louis!!! He will see Dr. Browning in Evansville every other week and see Dr. DiPersio in St. Louis every other week. Once they have his Graft vs Host Disease (GVHD) under control he should only have to go to STL once a month. We cannot wait to spread these visits out.
Dr. DiPersio has a new GVHD drug that just was approved by the FDA last month that he wants Jordan to try. It has been successful treating GVHD in clinical trials. We have to wait until they can get our insurance to approve the new drug. Hopefully since it’s a new one they can convince insurance to approve.
This journey began just shy of a year ago and it has been a very long and difficult year. Jordan still has a lot of healing ahead of him but he’s heading in the right direction. We couldn’t have gotten through this year without you all. We are humbled by the love, prayers and support. Thank you from the bottom of our hearts!!! Please continue to pray for a full recovery.
Please support others who need help by continuing to spread the word on bone marrow donation and blood donation. These simple gifts of life can help so many.
He‘s feeling better and able to get out more. Yesterday he met friends who were in town for a few hours and had a great time.
Today I’m scheduled to donate blood. There is a huge shortage. If you are able to donate please schedule an appointment. It is painless and helps so many. I’m guilty of not realizing the importance of blood donation until I saw Jordan receive probably over 50 units of blood and platelets over this last year.
Also please spread the word about bethematch.org. So many people are praying for a match.
I havent posted in a while because things have been pretty quiet around here. Jordan is feeling better daily. He has some skin issues which is a result of the transplant. It’s called graft vs host disease. Hopefully this will be temporary. Keep praying!!! He tires easily but last Friday a friend of his came in and they went to a Cardinals game. He had a great time. Last night we went to see Miss Saigon which was terrific! Jacob is coming in tonight and they are going to try to explore the city together this weekend. In a couple of weeks Jordan and I have tickets to see John Prine!!! We visit with my sister and her husband Alex a lot. Jordan loves their cooking, company and the “girls” (their sweet dogs or as Jordan calls them his cousins). We had a recent visit from the “Mac Bash” crew. This is a great group of men that I worked with at Castle North and I’m blessed that they saw through my impersonation of a mean ole school secretary and care for me and my family.
Thank you all again for all the cards, letters and prayers. Please let’s not forget to keep spreading the word about bethematch.org. Jordan is getting a second chance at life because of his fathers donation. There are so many in need. There is absolutely no excuse for this. If you can’t donate stem cells you can always donate blood. This too is something I think we all forget about until we need it.
prayers answered!!!! His central line has also been removed!!!!! I feel like we just won the lottery!!!!!
Keep praying for his recovery.
We were expecting results from Jordan’s Bone Marrow biopsy today. Unfortunately the full results are not in yet. They should be in any day. When we hear anything I will be sure and post.
Jordan is currently getting a bone marrow biopsy. We come back next Wednesday for the results. We should know then if Dan’s cells have taken over. If that’s the case he will have his central line removed!!!!!
Good news for today is that his counts are up and he can start getting out without his mask. His immune system is still compromised and will be for a year. So if you plan on visiting him please make sure you are healthy. He’s ready to start enjoying life again!!!
Keep the prayers coming!! Without a doubt they do work!!!!
Next Wednesday he will have a bone marrow biopsy so we will have more information on his progress soon. Keep up the positive thoughts, cards, and prayers. We really are grateful.
Jordan's new home away from home for the next 20 or so days is room 6401 at St. Vincent's Hospital (formerly named St. Mary's Hospital). Jordan isn't happy about being in what he considers "a hospital prison" but his doc suggested that he make his room his own and friends have already delivered a larger TV. Nothing was mentioned about repainting or installing new blinds but last night his mom, Melissa, did get his room re-cleaned and a more comfortable bed brought in. The room cleaning and new bed were the result of an episode she embarrassingly described as "going postal." This is stressful for everyone—especially Jordan and his immediately family.
The first round of chemo is over. It zapped Jordan's energy but didn't make him too nauseous. His gums have been very sore which is caused by the leukemia and not dental issues as we originally thought. His gums don't hurt as much so his meal choices are starting to expand a bit beyond hospital Jell-O and Lib's vanilla malts.
Jordan can't afford to catch a bug or be exposed to any germs. He CAN have visitors but they will need to suit up which means a mask and gown. Flowers, fresh fruits and vegetables are also not allowed in his room.
Jordan's hematologist/oncologist is Dr. Browning—the same doc who has treated other family members and friends. Dr. Browning has consulted colleagues at IU to be sure every possible step is being followed and all protocols are being done to help Jordan win his battle with acute myeloid leukemia (AML). It is too soon to know if Jordan will need more aggressive care at another medical center—MD Anderson, Barnes, etc.—if that is necessary, Dr. Browning will guide us.
Jordan is receiving round the clock monitoring and he is in excellent hands. A second bone marrow test is scheduled for next Wednesday, August 1. There is a 50/50 chance that a bone marrow transplant will be needed and the most likely match will be his brother Jacob. If that doesn't pan out, the doc will go to the "bank." There is more chemo ahead.
This is tough for everyone but we have faith that all will eventually be well.
The family is grateful to all the friends, neighbors and family who have offered help, said prayers, sent cards of encouragement and brought meals. And, if you're part of the Roe river family, please don’t hesitate to stop by if you see Melissa and Dan on their front porch.
We'll keep you posted.
Cathy (Nila) Paradowski, Jordan’s Aunt, Melissa's Sister
Site created on July 24, 2018
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