Journal

Journal entry by Melissa Roe

Day 102 post transplant!!

Jordan was seen today by Dr.DiPersio in St. Louis. Not all of the biopsy results from last week are in but the ones that are back are negative for Leukemia!!!!  More results should be back sometime later this week. We are very hopeful for continued great news!

We no longer have to remain in St. Louis!!!  He will see Dr. Browning in Evansville every other week and see Dr. DiPersio in St. Louis every other week. Once they have his Graft vs Host Disease (GVHD) under control he should only have to go to STL once a month.  We cannot wait to spread these visits out. 

Dr. DiPersio has a new GVHD drug that just was approved by the FDA last month that he wants Jordan to try. It has been successful treating GVHD in clinical trials. We have to wait until they can get our insurance to approve the new drug. Hopefully since it’s a new one they can convince insurance to approve. 


This journey began just shy of a year ago and it has been a very long and difficult year.  Jordan still has a lot of healing ahead of him but he’s heading in the right direction.  We couldn’t have gotten through this year without you all. We are humbled by the love, prayers and support. Thank you from the bottom of our hearts!!! Please continue to pray for a full recovery. 

Please support others who need help by continuing to spread the word on bone marrow donation and blood donation. These simple gifts of life can help so many. 

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Journal entry by Melissa Roe

Day 99!

Hey all!
I just wanted to give a little update on how things are progressing for me. Today is day 99 after transplant. I see the doctor Monday and then I am officially done with STL. Everything is going pretty well, except I’m currently dealing with graft versus host disease(GVHD) it mainly affects my skin.
We are having trouble weaning me off my anti rejection meds as every time we lower the dose the GVHD flares up. This week I’ve had several not so great days, but after a medication adjustment I’m feeling better.
I will be back in Evansville Tuesday. Sadly I’ll be driving to doctors appointments in STL twice a month until we can get me weaned off my meds.
I plan on trying to return to work at D-Patrick #1 Used Cars starting in July. I worry about the heat because it really causes my GVHD to flare up.
But I’m fortunate to work for a great company with a great team of coworkers who I know will help me ease back into everything.
 
So if you know of anyone needing a new or used car please keep me in mind. (8126297236)
 
It’s been a very long and harrowing year.
Thank you everyone for your kind words, supporting me at fundraisers and signing up for the bone marrow registry!

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Journal entry by Melissa Roe

Day 70!   Just 32 to go!!!  Jordan is scheduled for his 100 day bone marrow biopsy on June 17. Then we should be able to come home!!!  He will see his oncologist in Evansville regularly and come to St. Louis once a month for about a year. Then the schedule of visits will get spread farther out. 

He‘s feeling better and able to get out more. Yesterday he met friends who were in town for a few hours and had a great time. 

Today I’m scheduled to donate blood. There is a huge shortage. If you are able to donate please schedule an appointment. It is painless and helps so many. I’m guilty of not realizing the importance of blood donation until I saw Jordan receive probably over 50 units of blood and platelets over this last year. 

Also please spread the word about  bethematch.org. So many people are praying for a match.

Journal entry by Melissa Roe

Day 57...only 43 to go and Jordan should be released from the St. Louis area.  So ready!!!!

I havent posted in a while because things have been pretty quiet around here. Jordan is feeling better daily. He has some skin issues which is a result of the transplant. It’s called graft vs host disease. Hopefully this will be temporary. Keep praying!!!  He tires easily but last Friday a friend of his came in and they went to a Cardinals game. He had a great time. Last night we went to see Miss Saigon which was terrific!  Jacob is coming in tonight and they are going to try to explore the city together this weekend. In a couple of weeks Jordan and I have tickets to see John Prine!!! We visit with my sister and her husband Alex a lot. Jordan loves their cooking, company and the “girls” (their sweet dogs or as Jordan calls them his cousins).  We had a recent visit from the “Mac Bash” crew. This is a great group of men that I worked with at Castle North and I’m blessed that they saw through my impersonation of a mean ole school secretary and care for me and my family. 

Thank you all again for all the cards, letters and prayers. Please let’s not forget to keep spreading the word about bethematch.org.   Jordan is getting a second chance at life because of his fathers donation. There are so many in need. There is absolutely no excuse for this. If you can’t donate stem cells you can always donate blood. This too is something I think we all forget about until we need it.

Journal entry by Melissa Roe

Day 34!

Jordan is currently getting a bone marrow biopsy. We come back next Wednesday for the results. We should know then if Dan’s cells have taken over. If that’s the case he will have his central line removed!!!!!  
Good news for today is that his counts are up and he can start getting out without his mask. His immune system is still compromised and will be for a year.  So if you plan on visiting him please make sure you are healthy.  He’s ready to start enjoying life again!!!  
Keep the prayers coming!!  Without a doubt they do work!!!!

Journal entry by Melissa Roe

Day 30!!!  Everything has been going really well. Jordan has been out of the hospital now for a week. He has one more week that he needs to stay in the apartment and then hopefully he can begin to explore the city. Pretty boring around here right now but he was surprised today by one of his oldest friends, Kolltin Ellis and Jessica Clark.  This visit really lifted his spirits. I’m sure I’m wrong but I think I might be getting on his nerves. 😂

Next Wednesday he will have a bone marrow biopsy so we will have more information on his progress soon. Keep up the positive thoughts, cards, and prayers. We really are grateful. 

Journal entry by Melissa Roe

Day 22!!!

Today is a glorious day!!!  Jordan was released from the hospital after only 28 days of the 50 anticipated days!!!!   Jordan and the family are beyond happy!!!  

He will be seen regularly as an outpatient getting various tests to see how he’s progressing.   He will still need a lot of rest and other than his appointments he’s been told to stay in the apartment for two more weeks and to wear a mask to prevent infections. 

Please keep the prayers coming!!!  They definitely are working!!!!!

Journal entry by Melissa Roe

Day 17!!!  Jordan’s white counts are starting to come back up. The doctor yesterday told him that it’s a possibility he could be discharged in a week or so!!!  This is amazing news since his stay was approved for 50 days!  He’s still needing blood and platelets which he gets nearly every day. He is weak, tired and bored but overall doing very well. Even though he could be discharged early he still needs to stay in St Louis until mid June, but out of the hospital will be so much more comfortable for him. 

Keep praying friends!!  It works!!

Journal entry by Nila Paradowski

Jordan's new home away from home for the next 20 or so days is room 6401 at St. Vincent's Hospital (formerly named St. Mary's Hospital). Jordan isn't happy about being in what he considers "a hospital prison" but his doc suggested that he make his room his own and friends have already delivered a larger TV. Nothing was mentioned about repainting or installing new blinds but last night his mom, Melissa, did get his room re-cleaned and a more comfortable bed brought in. The room cleaning and new bed were the result of an episode she embarrassingly described as "going postal." This is stressful for everyone—especially Jordan and his immediately family.  

The first round of chemo is over. It zapped Jordan's energy but didn't make him too nauseous. His gums have been very sore which is caused by the leukemia and not dental issues as we originally thought. His gums don't hurt as much so his meal choices are starting to expand a bit beyond hospital Jell-O and Lib's vanilla malts. 

Jordan can't afford to catch a bug or be exposed to any germs.  He CAN have visitors but they will need to suit up which means a mask and gown.  Flowers, fresh fruits and vegetables are also not allowed in his room. 

Jordan's hematologist/oncologist is Dr. Browning—the same doc who has treated other family members and friends. Dr. Browning has consulted colleagues at IU to be sure every possible step is being followed and all protocols are being done to help Jordan win his battle with acute myeloid leukemia (AML). It is too soon to know if Jordan will need more aggressive care at another medical center—MD Anderson, Barnes, etc.—if that is necessary, Dr. Browning will guide us. 
Jordan is receiving round the clock monitoring and he is in excellent hands. A second bone marrow test is scheduled for next Wednesday, August 1. There is a 50/50 chance that a bone marrow transplant will be needed and the most likely match will be his brother Jacob. If that doesn't pan out, the doc will go to the "bank." There is more chemo ahead. 

This is tough for everyone but we have faith that all will eventually be well. 

The family is grateful to all the friends, neighbors and family who have offered help, said prayers, sent cards of encouragement and brought meals. And, if you're part of the Roe river family, please don’t hesitate to stop by if you see Melissa and Dan on their front porch. 

We'll keep you posted. 
Cathy (Nila) Paradowski, Jordan’s Aunt, Melissa's Sister  



 

 

Jordan’s Story

Site created on July 24, 2018

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