After 22 days of being in room 709…Jonah came home today!!!!!!

To say there was a LOT of positive, high energy is an understatement.

Short post to conserve energy, because he discharged to a home (and city) with no power. Keep Houston in your prayers. They’re saying no power for us until next week sometime… keeping my expectations low. We have friends who have significant damage, and some may have lost their whole home. Please keep them in prayer.

Daily oral meds 2x/day, 1–2x/week outpatient clinic visits and blood products, and daily central line flushes with saline and heparin. 

Thank you for all the prayers, support and for being here. Hopefully very minimal posts until June 9 (BMT admission). 💚

(photo of Jonah getting a purple and an orange heart on his central line dressing. Dressing changes are HARD, and a fun drawing on them after makes them better. Once a week 🥵